For

[Guest guest]

In a message dated 10/26/2004 10:26:49 PM Eastern Standard Time,

cookie6@... writes:

Thank you! I was actually thinking about water for Owen. The problem

is, because it's (the PA) is still going so aggressively, the last

time we saw his Rheumy (5 weeks ago) Owen's back was just a bit achy.

But in that time, he's lower back is killing him, plus he's got new

spots in his feet. Next Wednesday is his next appt.

Anyway, thans again

Leanne

Hey Leane...if you can get the rheumy to approve a certain amount of PT (so

you don't have trouble with your insurance), then the physical therapists can

react to what is bothering him at the time they see him without you having to

go back to the rheumy...when I first went to PT, the rheumy wrote a scrip

for PT for my back and my hands. The PTs then recommended the additional water

therapy, which the doctor approved.

Some other thoughts on PT...doctors usually don't mind prescribing it

because it is something you can do to manage your care yourself. Make sure you

tell the PTs that your goal is self management, that way, they will teach your

son how to do daily things to keep muscle strength, improve flexibility and

reduce pain.

I know we are all different and have different responses to this disease,

but I am convinced that 3 months of almost daily PT helped get my PA into

remission, and I rely much more on the exercises I learned in PT to control the

pain than I do on the meds. For example, if I wake up and my back hurts, I

immediately stretch and then try to get to the pool to do the exercises I

learned in PT. I really don't need the PT anymore because I kept a binder full

of

all of the exercises. It certainly doesn't replace medication, but I think

it really helps their impact. And I feel like there is a portion of this mess

that I can control!

Another reason why I have been very aggressive with exercise/PT, rest and

diet is my age...I was diagnosed at 32, and my rheumy was very concerned that

many drugs stop working after a time (so not good to run through all your

options too soon), and she wanted my body to help as much as possible rather

than

go straight to the most aggressive drugs. I am also not able to take the

new biologics due to MS/lupus risk, so my approach has been a little more

alternative.

Best of luck,

[Guest guest]

Leanne,

Wow! Very cool! Small world eh? I lived there with a couple and their small

boys as their nanny. I was the children's nursery school teacher and then when

the husband was asked to move there for 6 months to work for Hawker de Havlin

they asked me if I would come along and nanny for them. Well, what young kid

would not jump at the chance to live in Australia for free? I sure do miss

it there, it was a great place to live.

[ ] for

I know Chipping Norton!

We used to live at Norah Head, it's near Toukley.I was born and bred

there.

Leanne

[Guest guest]

: I just found this document in my archives. It has lots of abstracts

and full articles on in utero exposure to SSRIs, including the one I copied

below.

http://www.socialaudit.org.uk/425ssritable.htm

2001 Nordeng et al Paroxetine

Fluoxetine

Citalopram " Neonatal withdrawal syndrome commonly occurs in infants exposed

during the third trimester to drugs known to cause addiction. We report five

cases of neonatal withdrawal syndrome after third trimester in utero SSRI

exposure. In three cases the mother used paroxetine in doses from 10mg to 40mg,

one

mother used citalopram 30mg, and one mother used fluoxetine 20mg. Withdrawal

symptoms occurred within few days after birth and lasted up to one month after

birth. Four of the infants needed treatment with chlorpromazine. Symptoms

were irritability, constant crying, shivering, increased tonus, eating and

sleeping difficulties and convulsions. "

" Blind Reason "

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

[Guest guest]

Hi ,

Seems we have a lot in common ~ and I will absolutely hug my bro ~ and tell him

how much he means to me. Although we are very different (he being outgoing and

almost obnoxious and me being very shy), we have always been there for each

other. All this said, I am very sorry to hear about your brother ~ our lives

here on this planet are very short and with that I attempt to find the good and

beautiful in each day (often I fail, but often I succeed) and loved ones are at

the top!!

Oh, and my Dad's name is Harry ~ so we have the Kar, Ker, Har thing too....

I of course don't let my mom off until she comes up with my actual name, and

sometimes she'll reply with " you know who I'm talking to, I'm looking right at

you... "

Best wishes,

(Idaho)

[Guest guest]

Hi

You certainly have a great sense of humor. Makes a cloudy day sunny.

Thanks for all your valuable input also.

Barb

[Guest guest]

In a message dated 1/20/05 12:44:27 AM GMT Standard Time, NITTYG@...

writes:

Hi

You certainly have a great sense of humor. Makes a cloudy day sunny.

Wish it did Barb................its still pouring down here! lol

[Guest guest]

Dear Susie,

Thank you so much for writing about your experience with changing

eating habits, cooking more, planning, etc. I'm sure will get

a lot from it.

Terrific advice!

Bee

[Guest guest]

>>> When I first visited this board, I thought it was set up to

promote a certain enzyme manufacturer. But, reading along for quite

some time now, I don't think this is true.

I am very glad you can admit you found something was different than

you first perceived. This group was set up to discuss enzyme therapy.

Some manufacturers and organizations are for education and people

thinking for themselves and some manufacturers and organizations are

not (they want you to believe their marketing, period...no questions.)

>>>Instead, I think it's better to characterize most board members as

being honest, BUT not being able to " think critically " .

You are closer, keep working on it. Actually, I think a major strong

point of this group is that it is filled with those who 'think

critically'. It is this critical thinking that has debunked many past

myths about enzymes, diets, nutrition, and gut health. It is this

group's critical thinking that has caused other groups and autism

doctors to re-think what they were doing and recommending.

Critical thinking can be a taught skill (as in graduate school) or on

your own (a personal effort and talent). But critical thinking is not

dependent on whether you agree with someone else or not.

>>>It's virtually impossible what the person below stated about

homeopathy: " we are very pleased with the results so far " . He'll get

a million dollars IF what he tells is not a lie.

To me, this clearly is stating an opinion on their results to the

current moment. The person is not claiming any type of fact, just an

opinion about their individual experience. So how do you get the

word 'lie' to apply to it? And how can the person's current feelings

be called 'impossible'. I don't see anything in their post that hints

of not using critical thinking. Please re-phrase this so I can

understand your point because it doesn't make any sense the way you

wrote it. Thank you.

>>>> But the worst thing is that I'm afraid the same idea holds

for " we are very pleased with the results of taking Houston Enzymes

so far " .

See above. This also doesn't make much sense to call expressed

feelings on an individual experience " an idea that holds " true or not.

I believe there was a snyde remark made about me earlier too...but it

was another bit confused statement so I am not sure. You might be

having trouble with vocabulary here, and so when you used the

term 'critical thinking', it might not be what you meant to say.

Trying to read between the lines and get your meaning, I think you

are trying to say that you need more answers on enzymes to specific

questions you have. And you need these enzymes to be more 'convinced'

about enzymes.

That is totally fine. Questions are welcome. A good and sound therapy

should be able to stand up to enzymes. And if there is a flaw in a

theory or 'fact', that needs to be known to so people have accurate

information.

If you are having trouble formulating a question without coming

across as some rude jerk with bad attitude, try following this format

(This is how I taught my son who speaks in a rather abrasive way).

1. State specifically what is confusing or bothering you in terms of

an 'I' statement and which facts do not match up. For example: I

don't understand why you think X = Y when this reference shows X = X,

and your child's symptoms don't match Y anyway.

2. State specifically what you want to know. Focus on the facts, not

the person you are talking to. For example: ignore that you feel the

person feasts on slime and fermented broccoli for breakfast and

say, " Why do you believe that X increases essential fatty acid

function when the omega-3 supplements may not even get to the parts

of the body that need it? "

3. Ask for backup or references of some kind. If the person is

stating his opinion or feelings, just accept those are opinions and

not facts. For example: I have not heard that anywhere before. Where

do you base this on? Does anyone have any references for this?

The goal is to get you your answers in the most efficient manner

possible. Sometimes there isn't a direct 'proof' but that doesn't

mean it is wrong either. It can be an unknown.

.

[Guest guest]

Well , if my son was like this maybe I'd feel like you. Many of us here

have or had kids very delbiltated by their Autism, my son is severe, does

not talk.

Before we started Biomed he could feel no pain, was covered in eczema, had

no eye contact, 7-9 liquid yellow poops per day, butt was raw, held his hands

over his ears spinning all day long, wouldn;t hug us or even acknowledge our

existence, no self help skills, not ptoilet trained, ran off and kept going if

not restrained, did not understand danger, had no receptive langauge and

lost the 3 words he had before regression He was indeed " locked in his own

world "

Five years later he still has no words, I still consider him severe,

however, he communicates brilliantly, has near normal eye contact, doesn't spin,

feels pain appropriately, shows us where he is hurt, loves human contact,

inititates affection and receives it warmly, initiates games with his family,

has

clear skin (unless he had gut bug flare), good receptive language, great self

help skills, is toilet trained and wipes his bum effectively (and pulls the

chain!!!), knows danger, can take him anywhere, responds to no, stop, wait,

has real brown formed poops and looks soooo much better.

So when after 10 days of enzymes we had that first great normal poop, that

was a wow, " I am really pleased with these enzymes " - do you get it now??? Your

starting point has a lot to dso with how you feel about a response!!

Mandi in UK

Other people don't

notice my son has autism; only in particular confusing situations, he

shows autistic traits.

[Guest guest]

> If you are having trouble formulating a question without coming

> across as some rude jerk with bad attitude, try following this format

> (This is how I taught my son who speaks in a rather abrasive way).

??? So your son is not cured of his autism as you told us?

Give him some more Peptizyde, and probably some caps of No Fenol too,

then he'll be fine.

To get to the point I started with: any person who can prove that

homeopathic drugs consist of more than only sugar and water,

immediately receives one million dollars. So isn't it a bit hillarious

that a person here on this board claims that a homeopathic treatment

of autism has " very good results " for him?

I consider autism in one regard as HIV and Cancer: the regular

medicine does not provide a cure, but so called alternative medicine

claims it does. You can make such people desperately searching for a

cure really believe everything. Also parents of autistic kids are a

goldmine for the organised crime that's called alternative medicine.

As you know, autism is a very subtile " disease " . Other people don't

notice my son has autism; only in particular confusing situations, he

shows autistic traits. Alternative medicine is also based on the fact

that when people take a " drug " , in this case water mixed with sugar,

they are thinking " I'm getting better! I'm getting better! " .

Because autism is such a subtile disease, it's often very difficult to

consider wether the treatment is effective or not, but if someone else

said " we are getting very good results with this treatment " ,

imagination comes to play and suddenly your autistic kid is cured!

As for the enzymes, my son has bowel problems too. He's taking

Peptizyde, and that helped a lot. But I can't say that his autism is

suppressed now. There's no objective way to determine that; scientists

now claim that maybe brain scans can offer a solution, but for now I

stick to the opinion that enzymes " simply " help digestion.

>

> >>> When I first visited this board, I thought it was set up to

> promote a certain enzyme manufacturer. But, reading along for quite

> some time now, I don't think this is true.

>

> I am very glad you can admit you found something was different than

> you first perceived. This group was set up to discuss enzyme therapy.

> Some manufacturers and organizations are for education and people

> thinking for themselves and some manufacturers and organizations are

> not (they want you to believe their marketing, period...no questions.)

>

>

> >>>Instead, I think it's better to characterize most board members as

> being honest, BUT not being able to " think critically " .

>

> You are closer, keep working on it. Actually, I think a major strong

> point of this group is that it is filled with those who 'think

> critically'. It is this critical thinking that has debunked many past

> myths about enzymes, diets, nutrition, and gut health. It is this

> group's critical thinking that has caused other groups and autism

> doctors to re-think what they were doing and recommending.

>

> Critical thinking can be a taught skill (as in graduate school) or on

> your own (a personal effort and talent). But critical thinking is not

> dependent on whether you agree with someone else or not.

>

>

> >>>It's virtually impossible what the person below stated about

> homeopathy: " we are very pleased with the results so far " . He'll get

> a million dollars IF what he tells is not a lie.

>

> To me, this clearly is stating an opinion on their results to the

> current moment. The person is not claiming any type of fact, just an

> opinion about their individual experience. So how do you get the

> word 'lie' to apply to it? And how can the person's current feelings

> be called 'impossible'. I don't see anything in their post that hints

> of not using critical thinking. Please re-phrase this so I can

> understand your point because it doesn't make any sense the way you

> wrote it. Thank you.

>

>

> >>>> But the worst thing is that I'm afraid the same idea holds

> for " we are very pleased with the results of taking Houston Enzymes

> so far " .

>

> See above. This also doesn't make much sense to call expressed

> feelings on an individual experience " an idea that holds " true or not.

>

> I believe there was a snyde remark made about me earlier too...but it

> was another bit confused statement so I am not sure. You might be

> having trouble with vocabulary here, and so when you used the

> term 'critical thinking', it might not be what you meant to say.

>

> Trying to read between the lines and get your meaning, I think you

> are trying to say that you need more answers on enzymes to specific

> questions you have. And you need these enzymes to be more 'convinced'

> about enzymes.

>

> That is totally fine. Questions are welcome. A good and sound therapy

> should be able to stand up to enzymes. And if there is a flaw in a

> theory or 'fact', that needs to be known to so people have accurate

> information.

>

> If you are having trouble formulating a question without coming

> across as some rude jerk with bad attitude, try following this format

> (This is how I taught my son who speaks in a rather abrasive way).

>

> 1. State specifically what is confusing or bothering you in terms of

> an 'I' statement and which facts do not match up. For example: I

> don't understand why you think X = Y when this reference shows X = X,

> and your child's symptoms don't match Y anyway.

>

> 2. State specifically what you want to know. Focus on the facts, not

> the person you are talking to. For example: ignore that you feel the

> person feasts on slime and fermented broccoli for breakfast and

> say, " Why do you believe that X increases essential fatty acid

> function when the omega-3 supplements may not even get to the parts

> of the body that need it? "

>

> 3. Ask for backup or references of some kind. If the person is

> stating his opinion or feelings, just accept those are opinions and

> not facts. For example: I have not heard that anywhere before. Where

> do you base this on? Does anyone have any references for this?

>

> The goal is to get you your answers in the most efficient manner

> possible. Sometimes there isn't a direct 'proof' but that doesn't

> mean it is wrong either. It can be an unknown.

>

> .

[Guest guest]

On Mar 13, 2005, at 11:37 AM, frankyvanhecke wrote:

>

>> If you are having trouble formulating a question without coming

>> across as some rude jerk with bad attitude, try following this format

>> (This is how I taught my son who speaks in a rather abrasive way).

>

> ??? So your son is not cured of his autism as you told us?

> Give him some more Peptizyde, and probably some caps of No Fenol too,

> then he'll be fine.

>

You're just a laugh a minute, . If you don't think that " typical "

children can speak abrasively, then you clearly live under a rock.

> As you know, autism is a very subtile " disease " .

For most of our kids, autism is anything but " subtle " (correct

spelling). Maybe for your son, but not for most. It obvious you

cannot see past your own situation to understand what the rest of us

are dealing with. Ah, I get it now...impairment of comprehension,

socially inappropriate behavior, lack of empathy......YOU are on the

spectrum! It all makes perfect sense now. We'll cut you some slack,

then.

[Guest guest]

Greetings ~

I've spent some time here too, and found the folks to be very

helpful. If you ask specific questions they will tell you what has

worked for them and give you ideas of things to try for your

situation. None of them guarantee that their suggestions will work

for you, just that they had success with it.

I'm really at a loss to determine just what you hope to accomplish

in this forum. All I sense is that you are angry and are kicking the

dog here... I'm sorry for your situation and hope that you find

peace.

[Guest guest]

" If you don't think that " typical "

children can speak abrasively, "

If you dont believe the above you can have my NT 15 yr old LMAO

in Oceanside, CA

Fighting for one child, in hopes it helps another child.

__________________________________________________

[Guest guest]

Rehearsing social interactions with your son will

give him more of a repertoire. The more scripts he has under his belt, the

more spontaneous he can be. I know that sounds weird, but that is how it is

working out with my son. We are practicing different situations, and Sasha

is becoming slowly more and more natural in his interactions. I do believe

our children can learn to relax enough to be spontaneous, but this can take

confidence and a record of success.

,

I did this with my son when he was Sasha's age. Everyone thought I was

crazy, but it worked! Of course he still has his " quirks " , but I found the

" social practice " you are describing to be a wonderful help to him. Hang in

there , you're doing a great job!!!

>From: Tombrello <suso903tomb@...>

>Reply-

>

>Subject: Re: ( ) Echolalia and repetitive speech

>Date: Tue, 29 Mar 2005 09:35:35 -0800

>

>Naomi,

>

>I highly recommend that you and your boyfriend have couples counseling so

>that you can discuss this with an objective party. It would be terrific if

>the counselor has experience with autistic children and can give you both

>some sound advice for how to cope. Do you have access to a babysitter so

>that the two of you can get away from time to time?

>

>I hope the speech therapist can help your son work through the echolalia

>and repetitive speech. Rehearsing social interactions with your son will

>give him more of a repertoire. The more scripts he has under his belt, the

>more spontaneous he can be. I know that sounds weird, but that is how it is

>working out with my son. We are practicing different situations, and Sasha

>is becoming slowly more and more natural in his interactions. I do believe

>our children can learn to relax enough to be spontaneous, but this can take

>confidence and a record of success.

>

>Best wishes with this. This is hard, I know. My son's issues have placed an

>enormous strain on my marriage. And it isn't getting easier because of the

>peer pressure and bullying issues ds is encountering at this time. I

>continue to hope that things will settle down for us soon. I hope they will

>for you, too.

>

> T.

>mom of Sasha, 7

>

>

>At 10:56 AM 3/29/2005 +0000, you wrote:

>

>

> >Hello everyone! I know it's been a long time since I've posted in

> >here, but I could really use some help..

> >

> >.. To those who don't remember me, my son is almost four now and is

> >in the process of being diagnosed with possible Aspergers, we have a

> >paediatricians appointment early next month.

> >

> >One of the main problems I have at the moment is my son's speech..

> >he tends to ask the same questions over and over again, even when

> >I've given him an answer. We saw a Speech Therapist last week who

> >informed me that this is probably because he is trying to have a

> >conversation, but doesn't know how to and the only thing he can

> >think of to do is ask questions, or mimick others (echolalia).

> >

> >I'm having some problems dealing with it... he'll ask me to do

> >things like go and stand in the kitchen, for no particular reason.

> >If I say " no " and explain why not, he'll just keep asking and asking

> >until he shouts. This does get very tiresome but I don't know if

> >there's anything I can do to curb it. It's worse for other people

> >too... my son now does this to my boyfriend.. For example, he'll ask

> >him if we can go for a ride in his car, and when he's told we can't,

> >he'll just keep asking to the point where my boyfriend gets quite

> >annoyed. He does this a lot with my boyfriend with all sorts of

> >questions, usually ones that require my boyfriend to do something,

> >like hand over the controls to the PlayStation when he's playing on

> >it, or go into his room etc... I'm so increidibly worried that this

> >sort of behaviour is going to drive my boyfriend away... I know it's

> >very difficult for a man to take on a woman and her child, and even

> >harder if that child has these sorts of problems.

> >

> >My son *is* the centre of my universe, but I just don't think I can

> >handle life on my own. I eventually want to settle down with " Mr.

> >Right " , get married, have our own house and possibly more children.

> >My boyfriend and I are very much in love and we've started making

> >loose long-term plans, but they're started to get blurred a little

> >as my boyfriend i unsure whether my son is going to end up being too

> >much to take on. We had a serious discussion about this yesterday

> >and I'm now very worried of what's going to happen.

> >

> >Is there anything that can be done about the repetitive

> >speech/questions? I still hold out hope that we'll be able to have a

> >decent conversation with my son one day... He's starting to give us

> >proper answers to questions now, but I'm not sure if it's just

> >because he's been taught what to say, or whether the answers are

> >spontaneous.

> >

> >Anyway, sorry to have gone on, if anyone's willing to lend some

> >advice, that would be excellent. Feel free to email me direct at

> >griffinng@ . co. uk (Minus the spaces!).

> >

> >Thanks in advance for anyone who can possibly help,

> >Naomi

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

In a message dated 5/9/2005 10:00:25 PM Eastern Daylight Time,

watermelanie@... writes:

> i made a list of all my diseases and symptoms for his records. and i wrote

> a

> list of questions and concerns and at the bottom, i wrote a sad little

> paragraph

> about my quality of life. my doctor always has his assistant come in to

> check

> on me and see whats going on before he ever comes in the room. so, i plan

> on handing those pages to her and asking that the doctor reads them before

> he steps through the door (should take him all of 2 minutes, max.) i have

> also

> been pretty weepy lately, so i imagine that i'll do a bit of crying too.

> which

> always makes a doctor listen better. for so many years, i would bite lip

> and

> grit my teeth and try so very hard to be brave. how is anyone supposed to

> know how bad it is and how much pain i'm in? once i opened the floodgates

> though, it seems i can't stop it. oh, well. at least i have something to

> cry

> about!

This is the way to do it. Go in with there with the papers. I usually

give them to the receptionist when i sign in. Keep a copy for yourself and let

him keep a copy. Sometimes i send him a copy via the mail ahead of time and

mark it personal so he has time to really take it in.

And yes cry and tell him how this has effected your life- how else is he

supposed to know- hes probably never had the problem himself. Most people go

in and they think they should just buck up and act like everythings fine when

its not. I don't believe in this. I don't think its the way to get the

treatment you need. I go in and cry and tell him all the things I feel I have

lost

from my life due to this surgery. After all its only the truth and you are a

HUMAN BEING- not just an xray. Some of these docs, especially surgeons are

so out of touch with the personal aspect of it. They operate on anesthetized

bodies, they are like mechanics, they are the nuts and bolts guys. I don't

think there is any harm in reminding him that you are an actual person whos

whole

life is being affected by this thing. Good for you- you need to take charge,

educate yourself, tell the doc all of it, all of the consequences of the

injury. I often say to my doc- anybody who ythinks this is a walk in the park

should come home and spend 24 hours with me in my living hell.

I find Dr.'s respond much better if you remind them that you are a human

being with a life that you have lost a great deal of due to this injury.

These docs need to see more of that. Good for you- you go girl- please let us

know how the appointment went. I screamed for a year that there was something

tewrribly wrong with my neck and back. They all said its just soft tissue

damage. Finally my whole right side started going numb, I had a hard time with

speech, loosing my balance. I thought I was loosing my mind.

Finally after going in and telling the orthopedic I felt like nobody was

listening to me- he sat and listened. They forget sometimes- the pace is so

fast for them- you have to remind them that you are first a human being who

needs

to be heard. By the time I got him to order an MRI my spine was in such bad

shape- spinal cord compression, discs completely dislodge- one bone pressing

on the spinal cord- all of the sudden I had his attention- I had been one wrong

move from a wheelchair or death for a year. He couldn't get me to a n

eurosurgeon fast enough. But because of the year their are permanent damages to

a

lot of the nerves and now I will suffer needlessly for the rest of my life.

Thats the day I realized YOU HAVE TO SCREAM UNTIL THEY LISTEN TO YOU. SCREAM,

CRY, whatever it takes- make them hear you- its your right.

Good luck,

Kathy

[Guest guest]

Hey , I have talked with you at the NSF forums. Glad to see you

here. I too, learned lots of good info from these ladies even though my

flatback was not caused by Harrington rods. I always wondered what your

nickname meant. Now it makes complete sense!! Hope to be talking to you

some more. Theresa

[Guest guest]

Yes positivie strokes and yes I am doing much better. I was not as

sick as I thought i would be. I bounced right back and believed it was

a step back instead of 100 steps back. Doing quite well.

Thank you for the pep talk I needed that.

[Guest guest]

Dear ,

Yes, it is possible to take too many supplements. I am not a health professional

but I do have a degree in Biology and a minor in Chemistry, so have a scientific

background. Our bodies are under immense stress dealing with all the Candida

toxins that aren't supposed to be living in our intestinal tracts in such huge

numbers. If we weren't already overloaded we would not have any symptoms.

Every thing we ingest has to be dealt with on some level, broken down,

digested and handled by the liver and kidneys, there are lots of different

pathways. Everything on earth is a chemical, remember the periodic table of the

elements from 7th grade science? Well everything on earth is made up of those

elements, whether it is something as simple as water H20 or grapefruitseed

extract or Diflucan or bread or whatever.

Everything has a chemical equation and is a chemical. Of course some are

more 'natural' than others, but think about tobacco, that is basically a dried

leaf, what could be more natural than that? Some are things that are body should

be making but isn't (or we think it isn't) and some will genuinely help our

condition by working as anti-fungals or anti-biotics or whatever. Even the water

soluble vitamins have to be broken done and dealt with molecule by molecule

before the extra ends up in your urine.

Anyway, I believe you have to pick and chose what you are asking your body to

deal with, when it is already under such huge stress. There are so many things

to do that help your body heal, without adding more 'chemicals' to it to

process, I think the diet is the most important thing, because you can lessen

your body's load hugely by eating the right things and not overeating, then

there is the exercising, you can oxygenate your entire system and completely

flush it out with hard aerobic exercise and then a stretching program like a

good yoga class, and then you can get enough SLEEP, heaps of people don't do

that ( I don't) and drink enough water. Then there is the stress reduction

thing, I wonder how many of us with this condition, run around like chickens

with our heads cut off trying to keep up with our own lives? Anyway, I think it

is vitally important to do all of the above and take one anti-fungal type thing

at a time and ascertain for yourself if it is working and then maybe try

something else if you want to, as well, 3-4 weeks later. I truly believe that

our natural state is balance and our bodies will find this balance if we treat

them right and give them the raw ingredients (i.e.. four things mentioned above)

The supplement industry is huge and getting bigger all the time because we

all want a magic pill. The most pervasive argument is -you should take it, you

can't get it in your food any longer, which is probably true if you eat

processed food all the time, but luckily for us all there is still good food

around, an orange couldn't be an orange unless it had pretty much the same

genetic make-up and chemical composition it's always had. Anyway, undoubtedly

this will engender some debate, I hope I don't sound too preachy, I just feel

very strongly about this and I've come to this after trying lots of different

supplements myself, and spending a fortune and even though I am way better now,

I STILL keep thinking Oh, I should try this or try that instead of trusting my

body to stay healthy. (I take 200 mg of Grapefruit seed extract everynight and a

pro-biotic capsule every few weeks- that is a whole other thing, I told my

doctor I think yogurt makes it worse and she agreed with me that it could, if

you are in balance and you put acidophilous in there every now and then it

should colonise and reproduce itself without you having to ingest millions more

each day)

But again, everyone has to work this all out for themselves, don't they?

Thank-you for the link to Whole approach, I think that has the best diet lists

of any I have seen.

Kind Regards,

Cheryl

[Guest guest]

HiCheryl,

You are so kind to send such a detailed explanation. Thank you so much. I am

going to cut back on the supplements and try to give my body and liver more of a

break. I have been on the diet for three months and am ready to feel more

energetic, but I know I also have to be more patient.

[Guest guest]

Tuesday, April 25, 2006, 3:52:48 AM, Cheryl wrote:

C> if you are in balance and you put

C> acidophilous in there every now and then it should colonise and reproduce

itself without you

C> having to ingest millions more each day)

Hi, Cheryl. This is something that I've been thinking about lately, as

regards getting rid of the last vestiges of candida (as opposed to

beating down a bad overgrowth in severe cases). I'll post this to get

any corrections or additional info from anyone.

First, you need to get enough bacteria past the stomach acid. Possible

ways are to get large amounts of guaranteed-live bacteria with

homemade yogurt or kefir. (Are the species of bacteria in kefir

better?) If using tablets, does the enteric coating (so-called

" pearls " ) actually work? If using non-coated capsules, taking food

with the bacteria might protect the bacteria better. With coated

tablets, you might want them with no food so they zip through the

stomach as quickly as possible.

Second, the bacteria need a place to attach. If the surface of the

intestines are already covered over with a layer of adhering yeast,

then the new bacteria simply have no physical place to attach. Plus,

the yeast will be protecting itself by creating a biofilm and also by

excreting toxins to kill off the competition.

So, to implant the new bacteria, you need to kill or sweep way the

candida first.

It seems from reading here that not all fungus/yeast killers work the

same in all people. That might be because the strains are different or

maybe because the environment in the gut is different or because the

amount of growth there is more or less severe. In severe cases there

might be the usual layer of yeast attached to the intestine, then

covered with a layer of the fungus form (pseudohyphae/hyphae

germinated as filaments from the yeast). The layer probably can get

thicker in even more severe cases.

All that being said, there were times in years past when I would chew

3 cloves of garlic a day for a week, then follow with 3 or 4 days of

10 oz of fresh yogurt or more per day - and it made no difference. I

did similar with cloves, etc., with the same net result of zero.

So, I'm thinking that the internal environment has to be changed to be

hospitable to the good bacteria and inhospitable to the candida. pH

seems a likely candidate. But so far, I've only uncovered " eat lots of

leafy green vegetables " as a way to change pH in the intestine. I'm

also trying to put together a series of days as an experiment on

myself using sulfur (MSM) to see how that changes anything.

--

Regards,

A.B.

[Guest guest]

grrrrr... health insurance in america.... some country.. .grrrrrrrrrrrrrr... sighOn 10/12/07, snooksmama@...

<snooksmama@...> wrote:

" Dedicated to Health Insurance for College Students " . The Good News About Current Law in States Without Similar Legislation…Once children reach age 19, they can continue to receive benefits under their parents' health insurance if they are enrolled as full time college students. The reason for this is that full time college students are concentrating on their studies and cannot be expected to work full time in order to obtain their own health insurance. This makes sense.

The Bad News About Current Law in States Without Similar Legislation…If a college student suddenly becomes seriously ill or injured and cannot maintain a full time college schedule, he or she has three choices:

1.

Maintaining a full time schedule against doctors' advice and possibly decreasing his or her chance of getting well.

2.

Cutting back his or her hours and losing the very health benefits he or she is relying on for recovery, or

3.

Cutting back his or her hours and paying the cost of maintaining health insurance through C.O.B.R.A, the premiums for which are often too great for a familyto bear.

-- " I am not sick. I am broken. But I am happy as long as I can paint. " --Frida Kahlo

[Guest guest]

>

> I don't presume to know your medical history and what cancer you've

> dealt with or are dealing with. However, I can tell you that my chronic

> lymphocytic leukemia presented as the very type of node below the

> jawline that you're talking about. I've never had a biopsy. My

> condition was diagnosed with a CBC with differential. Have you had one

> of those? Often bloodwork will negate any need for biopsy.

> Ellen

>

Thank you, Ellen, I have. It was all normal .. but they're suspecting this is a

breast cancer

metastasis and that wouldn't show up on a blood test, unfortunately. I sure

WISH it was that

easy! ;)

xxoo

[Guest guest]

Breuss Cancer Cure has excellent success rates as well. It's

basically a 6 week program of zero protein. It's an excellent book

and one of the first I ever read about curing cancer.

Yesterday I listened to a recording which was a mix of many topics

regarding raw foods and one of the things that came up was white blood

cells. He was talking about a raw food athlete who had virtually no

white blood cells (I think he said none but I could be wrong on

that...I'll listen to it again soon and take notes this time). When

the body is healthy apparently we don't need as many white blood cells

as we are thought to need.

Another interesting point is I read the other day about white blood

cells and this will be published in October is that when a baby is

immunized the large white blood cells actually collapse small

capillaries and this is believed to be one of the causes of autism.

It was a Canadian doctor who discovered this and worked on this theory

for years. Now, this got me thinking about aloe vera since it's also

excellent for leukemia (sorry to not provide references for that but I

read that in a German book). It gets into the very smallest of

capillaries which help to increase circulation and of course bring

nutrients to the nutrient-starved areas of the body.

And of course any heavy metals would be blocking nutrient receptor

sites too.

That should give you a few more things to investigate. I do believe

that leukemia is reversible and I've seen it happen a couple of times

and read about it dozens of times too. I don't have much time today

but can look up a few more things in my books later in the week.

Probably it's better to correspond with me off-group since I don't

read every post, just scan the digest and I might miss responses here.

Sharon

>

> Traditional Chinese medicine has an excellent track record with

> leukemias. Go to this website (but be sure to use Internet Explorer,

> Netscape won't work) http://www.lukeacupuncture.com

> Look at the section on the left " about Dr. Tian, " then call him or

> e-mail him.

> Ellen

> P.S. I've been going to him for nearly 5 years for my chronic

> lymphocytic leukemia, and am doing well.

>

[Guest guest]

Anyone with no white blood cells would be critically ill. This would

require a " Bubble Boy " existence even to stay alive.

Mike

Sharon wrote:

>

> Breuss Cancer Cure has excellent success rates as well. It's

> basically a 6 week program of zero protein. It's an excellent book

> and one of the first I ever read about curing cancer.

>

> Yesterday I listened to a recording which was a mix of many topics

> regarding raw foods and one of the things that came up was white blood

> cells. He was talking about a raw food athlete who had virtually no

> white blood cells (I think he said none but I could be wrong on

> that...I'll listen to it again soon and take notes this time). When

> the body is healthy apparently we don't need as many white blood cells

> as we are thought to need.

>

[Guest guest]

Now, I cant find your email address. lol

Hello all

I know I rarely post on here, but I do read the posts. I'm needing

some help

with a new problem that has entered my family. It seems that my 16

year old

daughter has a tumor growing from her spinal cord into her lung and

on her

aorta. This is called a Schwannoma. She will be scheduled for surgery

in

about 2 weeks. The doctor has informed us that she will very probably

come

out of surgery paralyzed from the chest down. I'm desparately trying

to find

a support group for her as a teen and I'm not having much luck. If

any of

you knows of one, please let me know. This is going to be a difficult

things

for her as she is the top track runner on the girl's team at her high

school. Thank you all for your support.