Patty

[Guest guest]

Did you find out what caused the brother to die? It is scary indeed. My daughter has offered to donate hers to Hunt if needed. I don't think I could handle it. Unfortunately my health is not good and there is no way in ____ they would take my liver.

Rosemary

[Guest guest]

Patty - Did the cortiszone (spelled wrong) help your pain at all? I have been having a lot of pain in my neck and shoulders area and it's got to the point where I am getting

pretty miserable and grumpy. They gave me Vioxx and Cep (something) can't take either one they have asprin in them and I am very allergic. Advil effects asthma so I am

getting pretty desperate. I have the all over pain but the right shoulder is the worse. Do you think it would work?

Thanks a bunch for your info. Hug's Lou Hewitt

[Guest guest]

Hi Patty,

I found The Celestine Prophecy to be one of the best books I have read in years. It is an alternative view of our changing world and incorporates both eastern and western philosophies. It is an easy read and eludes to so much spirituality. I have worked emergency rooms for more than 20 years, and it is true that the full moon brings more women in labor, more crazy folks, and more activity in general than at other times.

Patty, I howl also at the full moon, it is a great catharsis, promotes stress to dissolve. (I am so glad to hear that someone else does this!!!!!!!)

/FL

[Guest guest]

Lou,

Does it help. Too soon to tell. I was told 2-3 days before the inflamation does down. I am still in significany pain when I change positions but whils in pne position, stitting, lying down of walking, it is better. Last night I woke up everytime I tried to rool over (I assume that was what happened.. I was asleep so I can't be 100% sure. I then had to consiously work to get in the position I wanted (because of the pain) then I could return to sleep. Last week the cold water in the pool really helped so I made myself do that agaim. In fact I was in the pool about 20, got out, took a shower then sat down to answer my email and my legs feel the same as if I had come in from the cold. [the rest of you can go sit in the snow)! I am optimistic about the cortisone. I'll let you know. Feel free to ask me in a few days, I' m suceptical to these contagious brain farts.

Lou, sorry I just reread your post. Two years ago I had a shot in the bursa in my shoulder and it was like a miracle. Yes do it. I was responding now to the area he shot up in the middle of my back. Sometimes the pain of the shot is worth it. The shoulder is a good example!

Patty

-----Original Message-----From: mhe3053904@... [mailto:mhe3053904@...]Sent: Saturday, February 02, 2002 1:47 AM Subject: Re: [ ] PattyPatty - Did the cortiszone (spelled wrong) help your pain at all? I have been having a lot of pain in my neck and shoulders area and it's got to the point where I am gettingpretty miserable and grumpy. They gave me Vioxx and Cep (something) can't take either one they have asprin in them and I am very allergic. Advil effects asthma so I amgetting pretty desperate. I have the all over pain but the right shoulder is the worse. Do you think it would work?Thanks a bunch for your info. Hug's Lou Hewitt

[Guest guest]

,

You also howl in Florida? To bad we can't howl together, but florida is a long stste and if I recall you are in the palm coast area right?

Patty

-----Original Message-----From: dagelo [mailto:dagelo@...]Sent: Saturday, February 02, 2002 9:23 PM Subject: Re: [ ] Patty

Hi Patty,

I found The Celestine Prophecy to be one of the best books I have read in years. It is an alternative view of our changing world and incorporates both eastern and western philosophies. It is an easy read and eludes to so much spirituality. I have worked emergency rooms for more than 20 years, and it is true that the full moon brings more women in labor, more crazy folks, and more activity in general than at other times.

Patty, I howl also at the full moon, it is a great catharsis, promotes stress to dissolve. (I am so glad to hear that someone else does this!!!!!!!)

/FL

[Guest guest]

Patty, it is good to know that I am not the only one who wakens when they turn over. This has been the case for me for more years than I can think! I get so stiff in bed that I have to get comfortable each time I turn. I did not know that everyone didn't do that! GOsh! I do know though, that when I started the prednisone, that I seem to wake up less than ever. Now, it is only about 3 times a night. For me, that is wonderful!

debby

RE: [ ] Patty

Lou,

Does it help. Too soon to tell. I was told 2-3 days before the inflamation does down. I am still in significany pain when I change positions but whils in pne position, stitting, lying down of walking, it is better. Last night I woke up everytime I tried to rool over (I assume that was what happened.. I was asleep so I can't be 100% sure. I then had to consiously work to get in the position I wanted (because of the pain) then I could return to sleep. Last week the cold water in the pool really helped so I made myself do that agaim. In fact I was in the pool about 20, got out, took a shower then sat down to answer my email and my legs feel the same as if I had come in from the cold. [the rest of you can go sit in the snow)! I am optimistic about the cortisone. I'll let you know. Feel free to ask me in a few days, I' m suceptical to these contagious brain farts.

Lou, sorry I just reread your post. Two years ago I had a shot in the bursa in my shoulder and it was like a miracle. Yes do it. I was responding now to the area he shot up in the middle of my back. Sometimes the pain of the shot is worth it. The shoulder is a good example!

Patty

-----Original Message-----From: mhe3053904@... [mailto:mhe3053904@...]Sent: Saturday, February 02, 2002 1:47 AM Subject: Re: [ ] PattyPatty - Did the cortiszone (spelled wrong) help your pain at all? I have been having a lot of pain in my neck and shoulders area and it's got to the point where I am gettingpretty miserable and grumpy. They gave me Vioxx and Cep (something) can't take either one they have asprin in them and I am very allergic. Advil effects asthma so I amgetting pretty desperate. I have the all over pain but the right shoulder is the worse. Do you think it would work?Thanks a bunch for your info. Hug's Lou Hewitt

[Guest guest]

In a message dated 2/21/02 3:16:27 PM Pacific Standard Time, pcmcobb@... writes:

I have just been too ill to worry with it. In addition, I have also developed bronchitis. Finally, my fever is just a low grade one today. I didn't have the energy to get out of bed for a couple of days. My doctor's nurse has been calling to check on me everyday since I went in on Monday. Hopefully I will be back to my usual fatigued self in a couple of days.

Carol, that's the good news and the bad news! How lovely that the nurse is calling to check on you! Best wishes.

Harper

[Guest guest]

Thanks, I have just now opened e-mail after 2 days. I have just been

too ill to worry with it. In addition, I have also developed

bronchitis. Finally, my fever is just a low grade one today.

I didn't have the energy to get out of bed for a couple of days.

My doctor's nurse has been calling to check on me everyday since

I went in on Monday. Hopefully I will be back to my usual fatigued

self in a couple of days.

Carol

J. wrote:

carol,

I hate to hear of all the complications, hang in there, hopefully it will

end up to be artifactual.Patty

-----Original

Message-----

From: Philip Cobb [mailto:pcmcobb@...]

Sent: Tuesday, February 19,

2002 12:56 PM

Subject: Re: [ ]

Hi Carol....

Thanks. No, it is not variceal bleeding. I was on a combination

of 2 medications that can cause easy bleeding and bruising as a side effect.

I had this problem once before, when after my last heart cath, I had bruising

all over my belly in addition to the groin area. Also, could not

get the bleeding at the cath site to stop. It was so bad that my

cardiologist thought I had an aneurism. Scared me to death!

The vascular lab showed a hematoma, but they suspected the excessive bleeding

was due to these meds and took me off. Just recently, my neurologist

put me back on one. Then the orthopaedic surgeon put me back on the

other. I informed him of the previous problem and he thought I was

nuts, but did say if I ran into any problems to discontinue the med.

Of course, when I started coughing blood I could not just assume it was

a benign situation. Luckily, no varices. I now know to never

take these 2 drugs in combination again. I have never had a problem

when just on one at a time. I am sure that is more than you were

wanting to know. Take care.

Carol

flatcat9@... wrote:

In

a message dated 2/18/02 8:38:15 PM Pacific Standard Time, pcmcobb@...

writes:

Having

a reaction to 2 meds and started coughing blood. Went to the doctor.

Just need to take it easy. Know that I care and wish I had some answers.

Later. Carol

Sorry to hear

this. Is it variceal, esophageal bleeding? (I may have spelled

this incorrectly.)

Harper

[Guest guest]

Debbie,

yes I live in Hollywood. Went for the MRI this AM. I got a copy of the films

and although I don't see the ortho til next tues I took themwith me to

Physical Thaerpy tonight. Bill, my PT looked at them he said that although

he was not qualified to interpret them it looks like slipping and that I do

not have nerve compression. He said they weren't exactly normal (he

commented that I wasn't either) ... true LOL. So I feel better. I woulsd

love to avoid surgery. I feel better, I was stressing. I am still very shaky

on there steriods but better. They also called from my liver labs today,

they are good, SGPT is 100 but mine does fluctuate. Prograf level is 6.5 so

I am OK. I reallyy thought all the meds I am on may play havoc with my

livers enzymes. Tha back thing will be wait & see and I am going to stick

withthe physical therapy. He has been working on all my abdominal adhesions

from all the scarring and I think that is helping. (Except all that

tightness was keeping my gut in a little) My abs are working as two muscles

across the incision and strengthening them is an objective of the therapy.

Pain is better now,. I would consider acupuncture if it became chronic. My

arguement now is with my husband who swears by his chiropracter. I don't

believe cracking is the solution to my back pain. I'm glad it works for him.

He thinks I am being narrowminded.

Oh well....

We have awesome folks here in Florida. Lets try to find out where everyone

is. We've talked about a little AIH mtg... who knows???

Patty

[ ] Patty

Patty,

Sorry to hear things aren't so great. I don't know what kind of

problem you're having with your back but I do recommend acupunture

for pain. I know I've talked about the pain in my neck :?O but I

also use it for the pain I sometimes have in my lower back. I had a

herniated disc in '93 and back surgery in '94. They did a

microdiscectomy on me. I wish I hadn't waited so long. It was

instant relief. Except for minor pain, which I think is caused by

stress, I've been great.

Let me know how you're doing.

Didn't you use to live in Lauderdale?

Debbie/FL

[Guest guest]

Patty,

I think an AIH mtg. would be great. So far, I think you and I are

the only ones down south. I'm always looking for an excuse to go to

Orlando. Then I get to see my long lost daughter. If she can find

time. KIDS!

Debbie/FL

> Debbie,

> yes I live in Hollywood. Went for the MRI this AM. I got a copy of

the films

> and although I don't see the ortho til next tues I took themwith me

to

> Physical Thaerpy tonight. Bill, my PT looked at them he said that

although

> he was not qualified to interpret them it looks like slipping and

that I do

> not have nerve compression. He said they weren't exactly normal (he

> commented that I wasn't either) ... true LOL. So I feel better. I

woulsd

> love to avoid surgery. I feel better, I was stressing. I am still

very shaky

> on there steriods but better. They also called from my liver labs

today,

> they are good, SGPT is 100 but mine does fluctuate. Prograf level

is 6.5 so

> I am OK. I reallyy thought all the meds I am on may play havoc with

my

> livers enzymes. Tha back thing will be wait & see and I am going to

stick

> withthe physical therapy. He has been working on all my abdominal

adhesions

> from all the scarring and I think that is helping. (Except all that

> tightness was keeping my gut in a little) My abs are working as two

muscles

> across the incision and strengthening them is an objective of the

therapy.

>

> Pain is better now,. I would consider acupuncture if it became

chronic. My

> arguement now is with my husband who swears by his chiropracter. I

don't

> believe cracking is the solution to my back pain. I'm glad it works

for him.

> He thinks I am being narrowminded.

> Oh well....

>

> We have awesome folks here in Florida. Lets try to find out where

everyone

> is. We've talked about a little AIH mtg... who knows???

> Patty

>

> [ ] Patty

>

>

> Patty,

> Sorry to hear things aren't so great. I don't know what kind of

> problem you're having with your back but I do recommend acupunture

> for pain. I know I've talked about the pain in my neck :?O but I

> also use it for the pain I sometimes have in my lower back. I had a

> herniated disc in '93 and back surgery in '94. They did a

> microdiscectomy on me. I wish I hadn't waited so long. It was

> instant relief. Except for minor pain, which I think is caused by

> stress, I've been great.

> Let me know how you're doing.

> Didn't you use to live in Lauderdale?

>

> Debbie/FL

>

>

>

>

[Guest guest]

Patty,

I had not checked e-mail in a couple of days. I am so sorry to hear about your

problem.

It is now Monday evening and I am wondering how your appointment went. Were you

able to find out anything definitive? The unknown is always frightening. I am

keeping you in my prayers. Let us know what you learn about this. We care.

Carol

J. wrote:

> I'll tell you life is never boring. Some of you probably recall me talking

> about my back bothering me, in fact for you newbys, I try to be more active

> and share some of my experiences with AIH but lately I have been only

> reading and complaining. It's been hard for me to sit atthe computer.

>

> Any, my back started bothering me several months ago. I went through several

> x rays,Physical Therapy, lots of percoset, and steriods. Last Wed I had an

> MRI. The Dr (orthopedist) called Thure and insisted I come right in. Of

> course my anxiety skyrocketed as the Dr (at least this one) doesn't call me

> (I had an appt Fri, he didn't want to wait).

>

> He showed me a 'lesion' on L4 (thats lumbar spine level 4) it was very

> obvious on the MRI. The radiologists reposrt has lots of words like rule out

> neoplasm. and other cancer type words. I freaked out. It was like something

> out of a movie. He said he had never seen anything like it and both he and

> the radfiol;ogist had 'no idea' what it is. He ordered a stat bone scan to

> see if there were any other 'lesions' anywhere else. I had the bone scan on

> Friday and the transplant team got involved. They have me seeing the top

> spinal expert ay UM at 8AM Monday morning. I don''t htink through all my

> other stuff, hepatic coma, liver cfailure, transplant, my 30+ post

> transplant hospitalizations even the stroke caused by the stupid intern in

> 1990 have I ever been so stressed. This is the first tme I have been well

> and had to wait for something like this. Every other time I have been too

> sick. It makes me incapeable of understanding the living hell my husband and

> family haveone through. I am getting stressed telling you guys aboput oit. I

> feel I have to, we are like crisis family.

>

> I am amusing myself into believing I have been watching too much Star Trek

> and my L4 is invaded by aliens. I don't know how to place meaning on words

> like severly abnormal levels of infiltration.

>

> I wish I had more to say. Tommorrow at 8 ANM who knows what will happen. It

> is my understanding a biopsy is the next step. Hopefully this guy tommorrow

> will have some experience & will exolapin it easily... I already checked him

> out: Harvard Medical School, Spinal Fellowship at NY Cedar My Sinai. Tzakis,

> my transplant surgeon seems to be taking this personally that someone he

> workrd so hard on is having this experience.

>

> Antway, I am on hifh anxiety management. I cannot believe what the cortisol

> excreted into our bodies when we are freaking out can do.

> Hope it leaves my AIH is it's nice happy post transplant remission.

> Patty

> [ ] Patty

> >

> >

> > Patty,

> > Sorry to hear things aren't so great. I don't know what kind of

> > problem you're having with your back but I do recommend acupunture

> > for pain. I know I've talked about the pain in my neck :?O but I

> > also use it for the pain I sometimes have in my lower back. I had a

> > herniated disc in '93 and back surgery in '94. They did a

> > microdiscectomy on me. I wish I hadn't waited so long. It was

> > instant relief. Except for minor pain, which I think is caused by

> > stress, I've been great.

> > Let me know how you're doing.

> > Didn't you use to live in Lauderdale?

> >

> > Debbie/FL

> >

> >

> >

> >

[Guest guest]

Patty, I saw your second message, about the biopsy. I'll be thinking of you. You one tough lady. Hang in there. Best wishes.

Harper

[Guest guest]

In a message dated 3/19/02 12:26:19 PM Pacific Standard Time, writes:

Thanks Guys,

Wouldn't it be nice if we could get cybermassage... yum! I think I will

continue to see my PT just for massage, he is good and does all that

craniofacial stuff which is suppore to normalize body fluids. Very relaxing.

Can't go today, big bandage on my back makes it too uncomfortable to lay on

my back. Maybe by thursday. I should have some results by then.

Karl (my husband) stayed home today to make sure I am OK, He uses his

anxiety very well.. He is now cleaning the gutters...

I'll keep you informed.

Patty

Yes, that gutter-cleaning anxiety response is quite useful! What's happening with your job -- trivial as that is, right now.

Harper

[Guest guest]

thanks for writing back. The hospital is university pittsburgh medical center. This is where I will go for my liver transplant if it ever comes through. I am afraid that the same disease will affect any new liver I get. I live in west virginia and when people found out what I had they made me quit helping at my sons school and I was asked not to help out at the concession stand where my son plays football and baseball. People wher afraid thay might catch it.My church has been very supportive but the people in this rural community are very ignorant. I even have trouble getting dentists to work on me,they are afraid I may get infection since my immune system is now so low and thay are afraid for themselves.

I guess since my family has a hard time understanding everything maybe I expect to much from other people.

again thanks for saying hi,

[Guest guest]

Oh ....how terrible that you have trouble finding a dentist. Have you considered having a medical doctor make up a card or letter for you that shows that AIH is NOT contagious? Just a thought.

I have to carry around a paper that tells what the diagnosis code is so that if I go to ER I make them believe me that I am really sick! Hey..at least you are in a pretty part of the country...at least that is what I have heard, that W. Virginia is just beautiful. It is one state that I have not been in yet. I have some oil rights there-left over from my grandmother's estate. One day, I really want to go and see the area.

debby

Re: [ ] patty

thanks for writing back. The hospital is university pittsburgh medical center. This is where I will go for my liver transplant if it ever comes through. I am afraid that the same disease will affect any new liver I get. I live in west virginia and when people found out what I had they made me quit helping at my sons school and I was asked not to help out at the concession stand where my son plays football and baseball. People wher afraid thay might catch it.My church has been very supportive but the people in this rural community are very ignorant. I even have trouble getting dentists to work on me,they are afraid I may get infection since my immune system is now so low and thay are afraid for themselves. I guess since my family has a hard time understanding everything maybe I expect to much from other people. again thanks for saying hi,

[Guest guest]

Thanks for the suggestion I,ll talk to my dr. I've tried explaining and even asked them to talk to my dr. but no luck.

[Guest guest]

Hi I live in Newburg wv and I love upmc hospital at least they treat me like I'm a person not some weird specimen. When I go to the hospitals in morgantown everyone treats me like I'm some kind of zoo exibit and want to poke prod and talk. I don't mind answering the questions because I hope it helps them understand better and maybe have some empathy for other people that just because we don't "look" sick doesn't mean ther isn't something wrong

thanks for writting hope to hear from you soon.

brenda

[Guest guest]

,

University of Pittsburg is ranked one of if not the best transplant centers in the country (the top four are USC, U MIAMI, CEDARS MT SINAI , UPMC), I like this because mine is Miami.

The ignorance is a different matter. People immediatly associate AIH with one of the viral hepatitis. It is such an uncommon, but I don't think rare disease that people are not aware of it. Perhaps a response like 'It's not the viral type of hepatitis, it is autoimmune like ...I always say arthritis except it effects my liver... or if I think the analogy fits better... similar to the disease Walter Peyton had, but a little bit different. Then if they really want to know more tell them.

My only discomfort with this answer is that it uses Hep B & C as they bad guys and there is alot of ignorance about those also.

There is a member here from west virginia.

Hang in there.

Patty

-----Original Message-----From: MITSMEMYERS@... [mailto:MITSMEMYERS@...]Sent: Sunday, April 07, 2002 2:42 PM Subject: Re: [ ] patty

thanks for writing back. The hospital is university pittsburgh medical center. This is where I will go for my liver transplant if it ever comes through. I am afraid that the same disease will affect any new liver I get. I live in west virginia and when people found out what I had they made me quit helping at my sons school and I was asked not to help out at the concession stand where my son plays football and baseball. People wher afraid thay might catch it.My church has been very supportive but the people in this rural community are very ignorant. I even have trouble getting dentists to work on me, they are afraid I may get infection since my immune system is now so low and thay are afraid for themselves. I guess since my family has a hard time understanding everything maybe I expect to much from other people. again thanks for saying hi,

[Guest guest]

,

I'm from WV too. sburg. Where in WV do you live? I live in

West Palm Beach, FL. Even though it's a much bigger place I still

have had to do some educating. We have a very rare disease and just

the mention of hepatitis scares people. I was a teacher and

everyones first response was to keep me away from the kids. That

ended up happening anyway but not because they though I was

contagious. U of Pitts is a great hosp. I have a cousin that lives

in Orlando but has had most of her care done at U of Pitts. She has

many odd diseases. Some that have never been seen before.

If there's anything I can help you with let me know.

Debbie/FL

> thanks for writing back. The hospital is university pittsburgh

medical

> center. This is where I will go for my liver transplant if it ever

comes

> through. I am afraid that the same disease will affect any new

liver I get.

> I live in west virginia and when people found out what I had they

made me

> quit helping at my sons school and I was asked not to help out at

the

> concession stand where my son plays football and baseball. People

wher

> afraid thay might catch it.My church has been very supportive but

the people

> in this rural community are very ignorant. I even have trouble

getting

> dentists to work on me,they are afraid I may get infection since my

immune

> system is now so low and thay are afraid for themselves.

> I guess since my family has a hard time understanding everything

maybe I

> expect to much from other people.

> again thanks for saying hi,

[Guest guest]

Hello ,

Randy and I live in WV also... where are you? We live in Green Bank and "rural" is a nice term for where we live...LOL.

It is really awful how often times people do not understand this disease nor do they want to take the time to learn about it. I figure it is their loss indeed.

Email us and let us know more about you!

Cheryl & Randy Randy tx 12-14-99 AIH

Cheryl is his Living Liver Donor

Cleveland Clinic Foundation, Cleveland, OH

[Guest guest]

Hi would love to meet you guys. We will be spending alot of time in Elkins this summer since Steve will be getting laid off in 3 weeks. I hope we can work out a time to meet. We camp at a place called Alpine Shores so if your up that way stop in. The people who run the place know us real well so you won't have any trouble finding our camper.

If you have children it's a real nice place for them with playground. basketball, horseshoes, fishing and swimming. It's like one big family up there where we all get together forpotluck dinners and family activities.

hope to see you.

brenda

[Guest guest]

Cheryl

Hi I am sorry this has nothing to do with the group but I remember you

saying you passed your EMT county test. I am taking my soon here in CA any

suggestions on special things to study for. Sorry I have taken the group's

time. This is important to me and I have been stressing over it, and now my

LFT's are going up.

Thank you for your time

Glo

>From: cheryl722@...

>Reply-

>

>Subject: Re: [ ] patty

>Date: Mon, 8 Apr 2002 00:52:39 EDT

>

>Hello ,

>

>Randy and I live in WV also... where are you? We live in Green Bank and

> " rural " is a nice term for where we live...LOL.

>

>It is really awful how often times people do not understand this disease

>nor

>do they want to take the time to learn about it. I figure it is their loss

>indeed.

>

>Email us and let us know more about you!

>

>Cheryl & Randy

>Randy tx 12-14-99 AIH

>Cheryl is his Living Liver Donor

>Cleveland Clinic Foundation, Cleveland, OH

>

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Thanks Carol,

I wish I had a diagnosis. The biopsy from yesterday will not be able to read

for about 5 days as the bone needs to be decalcified first. This is the last

option before an open spinal procedure. I guess I should be grateful it is

only in L4, whatever it is, and who knows how long it has been there??

I appreciate all you and your kind thoughts and well wishes. This is not an

AIH issue so I don't like to focus on it too much here. I do know you are

all concerned and I will keep you up-to-date. For today it's back to 1-2

days of chewing on percosets LOL.

For those of you who recall the last biopsy story. I had the pleasure this

time of a prolonged conversation with the same good looking biopsy doctor

laying face down on the table with my backside in the air but this time I

was a bit more covered. Much more dignified this time.

Patty

Re: [ ] RE: & Tony

>

> Thanks for thinking about me. I am still here. I have been too

depressed

> to

> write anything positive so have been lurking the days I have opened posts.

> I was

> out of town for a few days due to a death in my family. That only

> complicated

> matters. Unfortunately, I had to deal with some members of my family with

> whom I

> have been estranged since my Mother's death. Just that stress made me

> physically

> ill. I had been having a difficult time getting over the complications I

> had

> started having in February. Then 2 weeks ago, I finally had a day that I

> had

> planned to make myself get out and visit some elderly homebound members of

> our

> church (thinking it would help my state of mind to help someone else) and

I

> had

> been gone for 2 hours when I had a call on my cell phone. It was the

> monitoring

> station for our security system telling me that they had received a fire

> alarm

> signal for our home and had notified the fire department! All the way

home

> I

> kept thinking it must be a false alarm. I drove up right behind the fire

> trucks. My husband was right behind me. When they opened the door and

> black

> smoke came out I realized that this was REAL. Then came the true

> depression. I

> had caused the fire. I had tried to be efficient and start dinner before

> leaving

> that morning. I had gone off and left everything cooking. I now

realize

> I am

> no longer capable of multi-tasking. Thank goodness we had an alarm system

> with a

> smoke detector or we would have come home to ashes. It has been bad

enough

> dealing with smoke damage. So, that is where I have been, trying to climb

> out of

> my own mess.

>

> Then, when I read the posts from Lydia, Patty, and Tony and so many others

> battling serious problems, I try to keep things in the proper perspective.

>

> Take care and God bless.

>

> Carol

>

> MKANTZLE@... wrote:

>

> > Hey guys,

> >

> > Has anyone heard from Carol lately. Just wondering if she's OK. I

don't

> > remember if she was going on vacation or not? Carol if you're out there

> talk

> > to us.

> >

> >

> >

> >

> >

[Guest guest]

Patty,

We do not care if it is liver related or not. We care about you. The good

looking doc again? Now we know why you keep going back for these biopsies! Hope

you get some good news soon. Let us know.

Carol

J. wrote:

> Thanks Carol,

> I wish I had a diagnosis. The biopsy from yesterday will not be able to read

> for about 5 days as the bone needs to be decalcified first. This is the last

> option before an open spinal procedure. I guess I should be grateful it is

> only in L4, whatever it is, and who knows how long it has been there??

> I appreciate all you and your kind thoughts and well wishes. This is not an

> AIH issue so I don't like to focus on it too much here. I do know you are

> all concerned and I will keep you up-to-date. For today it's back to 1-2

> days of chewing on percosets LOL.

> For those of you who recall the last biopsy story. I had the pleasure this

> time of a prolonged conversation with the same good looking biopsy doctor

> laying face down on the table with my backside in the air but this time I

> was a bit more covered. Much more dignified this time.

> Patty

>

> Re: [ ] RE: & Tony

> >

> > Thanks for thinking about me. I am still here. I have been too

> depressed

> > to

> > write anything positive so have been lurking the days I have opened posts.

> > I was

> > out of town for a few days due to a death in my family. That only

> > complicated

> > matters. Unfortunately, I had to deal with some members of my family with

> > whom I

> > have been estranged since my Mother's death. Just that stress made me

> > physically

> > ill. I had been having a difficult time getting over the complications I

> > had

> > started having in February. Then 2 weeks ago, I finally had a day that I

> > had

> > planned to make myself get out and visit some elderly homebound members of

> > our

> > church (thinking it would help my state of mind to help someone else) and

> I

> > had

> > been gone for 2 hours when I had a call on my cell phone. It was the

> > monitoring

> > station for our security system telling me that they had received a fire

> > alarm

> > signal for our home and had notified the fire department! All the way

> home

> > I

> > kept thinking it must be a false alarm. I drove up right behind the fire

> > trucks. My husband was right behind me. When they opened the door and

> > black

> > smoke came out I realized that this was REAL. Then came the true

> > depression. I

> > had caused the fire. I had tried to be efficient and start dinner before

> > leaving

> > that morning. I had gone off and left everything cooking. I now

> realize

> > I am

> > no longer capable of multi-tasking. Thank goodness we had an alarm system

> > with a

> > smoke detector or we would have come home to ashes. It has been bad

> enough

> > dealing with smoke damage. So, that is where I have been, trying to climb

> > out of

> > my own mess.

> >

> > Then, when I read the posts from Lydia, Patty, and Tony and so many others

> > battling serious problems, I try to keep things in the proper perspective.

> >

> > Take care and God bless.

> >

> > Carol

> >

> > MKANTZLE@... wrote:

> >

> > > Hey guys,

> > >

> > > Has anyone heard from Carol lately. Just wondering if she's OK. I

> don't

> > > remember if she was going on vacation or not? Carol if you're out there

> > talk

> > > to us.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

He's nice too. Of course I've only seen him when I'm face down on the table

or afterwards when I'm still happy on versed & morphine but even then I can

tell a good one.

Even my husband thinks he is nice, they talked about skiing between my

questions about my bone tissue... men!!! (sorry to those of you of the male

persuasion)

Patty

Re: [ ] RE: & Tony

> >

> > Thanks for thinking about me. I am still here. I have been too

> depressed

> > to

> > write anything positive so have been lurking the days I have opened

posts.

> > I was

> > out of town for a few days due to a death in my family. That only

> > complicated

> > matters. Unfortunately, I had to deal with some members of my family

with

> > whom I

> > have been estranged since my Mother's death. Just that stress made me

> > physically

> > ill. I had been having a difficult time getting over the complications

I

> > had

> > started having in February. Then 2 weeks ago, I finally had a day that

I

> > had

> > planned to make myself get out and visit some elderly homebound members

of

> > our

> > church (thinking it would help my state of mind to help someone else)

and

> I

> > had

> > been gone for 2 hours when I had a call on my cell phone. It was the

> > monitoring

> > station for our security system telling me that they had received a

fire

> > alarm

> > signal for our home and had notified the fire department! All the way

> home

> > I

> > kept thinking it must be a false alarm. I drove up right behind the

fire

> > trucks. My husband was right behind me. When they opened the door and

> > black

> > smoke came out I realized that this was REAL. Then came the true

> > depression. I

> > had caused the fire. I had tried to be efficient and start dinner

before

> > leaving

> > that morning. I had gone off and left everything cooking. I now

> realize

> > I am

> > no longer capable of multi-tasking. Thank goodness we had an alarm

system

> > with a

> > smoke detector or we would have come home to ashes. It has been bad

> enough

> > dealing with smoke damage. So, that is where I have been, trying to

climb

> > out of

> > my own mess.

> >

> > Then, when I read the posts from Lydia, Patty, and Tony and so many

others

> > battling serious problems, I try to keep things in the proper

perspective.

> >

> > Take care and God bless.

> >

> > Carol

> >

> > MKANTZLE@... wrote:

> >

> > > Hey guys,

> > >

> > > Has anyone heard from Carol lately. Just wondering if she's OK. I

> don't

> > > remember if she was going on vacation or not? Carol if you're out

there

> > talk

> > > to us.

> > >

> > >

> > >

> > >

> > >