Re: scared to death

[Guest guest]

Hi Margie

I had a R THR about 5 years ago and had about a month off work

i felt so good because I had no pain at all for the first time in months

-- Re: scared to death

Margie:It is normal to be scared, but after your surgery you will be so happyto get back to your life without pain that it will all be worth it! Ispent six years in constant pain because "the time wasn't right" to beout of commission for a few months. Boy was I stupid!I had my hip replaced four years ago and I feel great. I forgetsometimes that I have a hip replacement because I never feel any painany more.Good luck and remember that there will be a few uncomfortable days aftersurgery, but it is all worth it.>> Hi everyone. My name is Margie and I'm new to this group and I just> wanted to say hello. I am glad to find this group because I am> terrified of my upcoming hip replacement surgery on next Tuesday. I> went to the hospital this week for my pretesting and it really justhit> me and I have been shaking all week. I've never had surgery before and> I am so scared. I tried listing the reasons for my husband and all he> can say is just think how good you're going to feel afterwards. Am I> nuts to be so scared? What can I really expect in the hospital and> afterwards? I know I have to have the surgery because I can't livelike> this any more. I'm a school teacher and I am having a difficult time> doing my job which I love. How long can I reasonably expect to stay> home from work? And will I be able to do the things I used to do> before? I guess I'm rambling a bit and I apologize in advance. Thanks,> Margie>__________ NOD32 1.1747 (20060910) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com__________ NOD32 1.1747 (20060910) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com

[Guest guest]

It is good that he told you what he thought about rather than acting it out. It gave

you the opportunity to tell him the consequences of such behavior. Do you

think he understood you? Pat K

scared to death

Tonight Danny and I went bowling on our regular bowling league. He was bowling bad and I wasnt' doing much better. He was getting mad and madder.

Here is the scary part on the way home he told me he wanted to bop a bowling ball over my head.

I said so you wanted to kill me cause you know that is what would happen and you would go to juvenile hall and then to jail. He said well when I got out I would got to college. I said no you don't understand you kill someone you do not get out of jail.

Then I told him if he ever came after me with a bowling ball or anything else to hurt me I was going to call the police and have him arrested. He said why would you do that and I said cause you don't hurt the people you love. No response.

And my husband doesn't think he needs meds I guess it is going to take me to die to get him on meds.

Sharon

[Guest guest]

not to sure, I told him that they would take him away and lock him up in a juvenile facility and when he turned 18 he would be put in jail with all the regular guys who do bad things. He said oh well when I get out I can go to college and I said - honey you will never get out of prison if you kill someone - he never responded or talked to me the rest of the night.

From: pkuenstler@... <pkuenstler@...>Subject: Re: scared to deathautism Date: Friday, July 31, 2009, 6:29 AM

It is good that he told you what he thought about rather than acting it out. It gave you the opportunity to tell him the consequences of such behavior. Do you think he understood you? Pat K scared to death

Tonight Danny and I went bowling on our regular bowling league. He was bowling bad and I wasnt' doing much better. He was getting mad and madder. Here is the scary part on the way home he told me he wanted to bop a bowling ball over my head.I said so you wanted to kill me cause you know that is what would happen and you would go to juvenile hall and then to jail. He said well when I got out I would got to college. I said no you don't understand you kill someone you do not get out of jail.Then I told him if he ever came after me with a bowling ball or anything else to hurt me I was going to call the police and have him arrested. He said why would you do that and I said cause you don't hurt the people you love. No response.And my husband doesn't think he needs meds I guess it is going to take me to die to get him on meds.Sharon

[Guest guest]

..Sharon,

It doesn't sound like he understands the consequences of that type of behavior. I am so glad that he didn't actually do what he talked about. My son has been at juvenile detention twice and it didn't phase him one bit. The only thing that has changed his behavior and attitude about going back to juvenile detention was the Abilify. I wish your husband would be willing to explore medication. Granted, medicating can have its downsides as well, but it is worth a try if what you are doing isn't working. I speak from experience that I wasn't willing for about 4years to start medication. I tried everything I could to avoid medication. I now realize what a positive addition medication has been to my family. I pray for you and your family.

From: Sharon <kmusikmom2@...>autism Sent: Friday, July 31, 2009 1:00:56 PMSubject: Re: scared to death

not to sure, I told him that they would take him away and lock him up in a juvenile facility and when he turned 18 he would be put in jail with all the regular guys who do bad things. He said oh well when I get out I can go to college and I said - honey you will never get out of prison if you kill someone - he never responded or talked to me the rest of the night.

From: pkuenstleraol (DOT) com <pkuenstleraol (DOT) com>Subject: Re: scared to deathAutismBehaviorProbl emsgroups (DOT) comDate: Friday, July 31, 2009, 6:29 AM

It is good that he told you what he thought about rather than acting it out. It gave you the opportunity to tell him the consequences of such behavior. Do you think he understood you? Pat K scared to death

Tonight Danny and I went bowling on our regular bowling league. He was bowling bad and I wasnt' doing much better. He was getting mad and madder. Here is the scary part on the way home he told me he wanted to bop a bowling ball over my head.I said so you wanted to kill me cause you know that is what would happen and you would go to juvenile hall and then to jail. He said well when I got out I would got to college. I said no you don't understand you kill someone you do not get out of jail.Then I told him if he ever came after me with a bowling ball or anything else to hurt me I was going to call the police and have him arrested. He said why would you do that and I said cause you don't hurt the people you love. No response.And my husband doesn't think he needs meds I guess it is going to take me to die to get him on meds.Sharon

[Guest guest]

Please do not be afraid, because we will all help you to get well. The implants are not safe, and we will help you to find a good surgeon to have them removed when you are ready. I have been through hell because of breast implants.

Honey, I am so sorry that you are sick, but there is hope....stay close.

Love always....Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``

scared to death

HI - i am so new to all of this, including the idea that my 4 year old implants are what's been making me so ill. slowly for the last 3 years, deathly for the last 4 months...2 days ago my sister in law sent me an episode of Mtv Tru life of who got sick from her implants and I sat there and cried because i related to her on every level. I've made an appointment for a consultation with the doc who put them in for monday and as you all understand, i barely have the strength to talk, let alone explain my situation to someone who might not believe it. are there any tips for the direction i'm going in? I mean, he did a great job at the surgery, I just think there is toxic mold in the implant..should I be honest and trust that he will take them out safely? I just feel like he knows exactly how he put them in so it'd be the simple answer. And with an autoimmune issue, how is it going thru surgery? I'm so scared that my body can't handle it...i'm down to 104 lb s and i'm 5'6". i'm at the end of my rope i feel...financially, physically, emotionally...i'm in the orange county area in CA if anyone has any suggestions. thnx!

[Guest guest]

Hi,

Welcome to our group, though I am sorry that you have to be here at all. I am

thankful that your sister in law has been helpful to you and is watching out for

you by sending you the video. It's quite shocking and depressing to realize

that the implants can be so harmful, but it's true....so many women have

suffered. So you are not alone by any means.

OK...about the surgeon. It is generally our suggestion to avoid going to the

surgeon who originally put them in, because they will often take a stance of

being offended, or threatened by the possibility that you could be sick. They

will usually downplay the symptoms, totally deny that there is any possibility

that you could be sick from them, and will sometimes offer to take them out of

you for free(mine did), but the reason that is a bad idea is because they won't

have any vested interest in doing the explant correctly. You see, there is a

correct way to remove implants, and then there is the usual way. You want this

surgery done perfectly so you can have the best chance at recovery!

The right way is to have a total capsulectomy at removal. This just means that

the implant as well as the scar tissue is removed. The scar tissue is the film

of tissue that forms around the implant to " wall it off " from the rest of your

body. It's the body's way of protecting itself from a foreign object. That will

often be contaminated with silicone degradation products, oils, and other gunk

that can keep your body from really healing well.

What most plastic surgeons do when they go in to remove the implants is to cut

through that scar tissue and just pull out the implants and sew you back up.

They will claim that a total capsulectomy is not necessary and even believe that

the extra scar tissue will help plump up your breasts a little bit. Extra

tissue in there for volume. But that is a dangerous stance, and will not help

you get better. That stuff has to go.

So in answer to your question, you can speak honestly to him, but I would not

trust him to do what is in your best interest without a thorough discussion of

what you expect and what you want him to do for you. If he is mature and

understanding, he won't mind the discussion. If he is arrogant he will be

offended that you are knowledgeable about explant and are dictating what you

want done, and that would be the time to get up and leave and look for someone

else to do your surgery for you.

Thankfully, you have several choices in CA. We have a list of CA doctors, so

you might want to keep that handy in case you need to look elsewhere.

Do you have support from family? Loved ones who can be there for you during

this time?

It will be helpful to stay close while you go through this difficult time. It

is easy to become discouraged. But stay hopeful. There have been many women who

have overcome this difficult situation.

Your immune system may quiet down a little bit during and a few weeks after the

surgery. There is a period of time I have called " the honeymoon period " where

you can feel pretty darn good after the implant removal, as the immune system

stops being in attack mode. But sometimes about 6 weeks later the immune system

can gear up again and those symptoms can return and that is when the true

healing begins, with detoxing and lifestyle changes.

I hope this is helpful...please take a look at our explant folder with all of

its tip sheets and questions/answers. It will help you prepare for this

important surgery.

Wishing you well...I know it's hard, but you can get through it.

Hugs,

Patty

>

> HI - i am so new to all of this, including the idea that my 4 year old

implants are what's been making me so ill. slowly for the last 3 years, deathly

for the last 4 months...2 days ago my sister in law sent me an episode of Mtv

Tru life of who got sick from her implants and I sat there and cried

because i related to her on every level. I've made an appointment for a

consultation with the doc who put them in for monday and as you all understand,

i barely have the strength to talk, let alone explain my situation to someone

who might not believe it. are there any tips for the direction i'm going in? I

mean, he did a great job at the surgery, I just think there is toxic mold in the

implant..should I be honest and trust that he will take them out safely? I just

feel like he knows exactly how he put them in so it'd be the simple answer. And

with an autoimmune issue, how is it going thru surgery? I'm so scared that my

body can't handle it...i'm down to 104 lbs and i'm 5'6 " . i'm at the end of my

rope i feel...financially, physically, emotionally...i'm in the orange county

area in CA if anyone has any suggestions. thnx!

>

[Guest guest]

Hi and I am so sorry that you have been sick from your implants. I know how scarey all of this is. It is a very bad feeling to be so sick with no answers from the medical field. I had mine 4 years too. They did have what I guess is mold, there was stuff floating inside and black lines all on the inside of the shell. From my experience with my original PS was not good. He said that I would not be happy with the outcome and that there is no proof that they make people sick, and suggested that I should move up to silicone. He also said that they weren't leaking and they were. I have the same weight problems as you too. I am far to skinny and can't gain weight. So just be prepared and realize that this is

something that most of us hear from them. Alot of these support groups have a list of PS that believe in the disease. I don't know about this one because I suck at using computers but toxic breast implants does. If you don't mind me asking what are some of your other symptoms? I was just explanted 2 months ago and my symptoms flare so I think that it is too soon for me to tell much of a difference yet. But I am so thankful that I got those toxic mold infested bags out. I am so happy that you found out what is making you sick. Now atleast you are a step closer to the end of this painful journey. I wish you the best!

From: glory2glory1401 <glory2glory1401@...> Sent: Sat, September 11, 2010 10:41:59 AMSubject: Re: scared to deathHi,Welcome to our group, though I am sorry that you have to be here at all. I am thankful that your sister in law has been helpful to you and is watching out for you by sending you the video. It's quite shocking and depressing to realize that the implants can be so harmful, but it's true....so many women have suffered. So you are not alone by any means.OK...about the surgeon. It is generally our suggestion to avoid going to the surgeon who originally put them in, because they will often take a stance of being offended, or threatened by the

possibility that you could be sick. They will usually downplay the symptoms, totally deny that there is any possibility that you could be sick from them, and will sometimes offer to take them out of you for free(mine did), but the reason that is a bad idea is because they won't have any vested interest in doing the explant correctly. You see, there is a correct way to remove implants, and then there is the usual way. You want this surgery done perfectly so you can have the best chance at recovery!The right way is to have a total capsulectomy at removal. This just means that the implant as well as the scar tissue is removed. The scar tissue is the film of tissue that forms around the implant to "wall it off" from the rest of your body. It's the body's way of protecting itself from a foreign object. That will often be contaminated with silicone degradation products, oils, and other gunk that can keep your body from really

healing well. What most plastic surgeons do when they go in to remove the implants is to cut through that scar tissue and just pull out the implants and sew you back up. They will claim that a total capsulectomy is not necessary and even believe that the extra scar tissue will help plump up your breasts a little bit. Extra tissue in there for volume. But that is a dangerous stance, and will not help you get better. That stuff has to go.So in answer to your question, you can speak honestly to him, but I would not trust him to do what is in your best interest without a thorough discussion of what you expect and what you want him to do for you. If he is mature and understanding, he won't mind the discussion. If he is arrogant he will be offended that you are knowledgeable about explant and are dictating what you want done, and that would be the time to get up and leave and look for someone else to do your

surgery for you.Thankfully, you have several choices in CA. We have a list of CA doctors, so you might want to keep that handy in case you need to look elsewhere.Do you have support from family? Loved ones who can be there for you during this time?It will be helpful to stay close while you go through this difficult time. It is easy to become discouraged. But stay hopeful. There have been many women who have overcome this difficult situation.Your immune system may quiet down a little bit during and a few weeks after the surgery. There is a period of time I have called "the honeymoon period" where you can feel pretty darn good after the implant removal, as the immune system stops being in attack mode. But sometimes about 6 weeks later the immune system can gear up again and those symptoms can return and that is when the true healing begins, with detoxing and lifestyle changes.I hope this is

helpful...please take a look at our explant folder with all of its tip sheets and questions/answers. It will help you prepare for this important surgery.Wishing you well...I know it's hard, but you can get through it.Hugs,Patty>> HI - i am so new to all of this, including the idea that my 4 year old implants are what's been making me so ill. slowly for the last 3 years, deathly for the last 4 months...2 days ago my sister in law sent me an episode of Mtv Tru life of who got sick from her implants and I sat there and cried because i related to her on every level. I've made an appointment for a consultation with the doc who put them in for monday and as you all understand, i barely have the strength to talk, let alone

explain my situation to someone who might not believe it. are there any tips for the direction i'm going in? I mean, he did a great job at the surgery, I just think there is toxic mold in the implant..should I be honest and trust that he will take them out safely? I just feel like he knows exactly how he put them in so it'd be the simple answer. And with an autoimmune issue, how is it going thru surgery? I'm so scared that my body can't handle it...i'm down to 104 lbs and i'm 5'6". i'm at the end of my rope i feel...financially, physically, emotionally...i'm in the orange county area in CA if anyone has any suggestions. thnx!>------------------------------------

[Guest guest]

It's amazing, I cry as I read your responses because it is overwhelming that you

girls can be so sweet and supportive to perfect strangers. I guess none of us

thought we'd ever be in this awful of a situation. i've been having these weird

" panic attacks " and times where it's hard to swallow, and also short dizzy

spells for about 2 yrs but they were so sporatic i just wrote them off. In July

my dizziness got so bad 2 days in a row while i was driving i cried to my

husband that i just thought something was really " off " in my body. I had

vertigo standing, sitting, was super dehydrated, ibs, then constipation, my

heart started palpitating (and hasn't stopped to this day), my blood pressure

was really low, body temperature low, vision is foggy, i'm in a constant state

where i just want to zone out, like a zombie. At one point i had a metal taste

in my mouth. Then as the days went on my muscles began to shake and i couldn't

stand or walk for very long. Mornings are always the worst, i hate waking up

wondering if you'll feel better today just to find that your heart is still

pounding out of your chest. My arm muscles feel weak and twitch from time to

time, a rash developed on my neck, my hair comes out in alarming amounts, i get

shooting pains in my chest, i have a deathly fear of being alone because I feel

like i might pass out and die...but how does this make sense to people who've

never felt this way? And to top it off, i had a friend say to another friend

when this all happened, " do you think she's making this up in her head? " that

one got to me. frankly, kaiser docs made me feel like i was just crazy. They

diagnosed me with BPPV, low blood pressure (told me to eat more salt) and

depression and anxiety. oh and at first told me it was too early to tell and it

could be a virus that could last up to 6 weeks. I had to fight for them to

continue looking for an answer. Let me tell you, i had at least 30 vials of

blood drawn...i stopped when they got up to testing me for cushings disease

because i looked like a drug addict with bruises on my veins and 2, i didn't

know what the hell Decadron was (had to swallow it before the blood test) and i

didn't want to swallow it in case it made me feel worse! while the whole time

they're telling me, well you have double what your ANA should be and high

cortisol levels, but that's NORMAL in a lot of people..that's what the

specialist said to me...I lost all faith at that point. I went back to a

holistic doc i hadn't seen in 3 years. it was like visiting an old friend...i

don't know why i ever strayed....i tested positive for heavy metals, chemicals,

parasites, yeast overgrowth, and adrenals being fatigued..so we got on a serious

program and let me tell you, it's the only reason i can still get out of bed.

I still have most of the symptoms but they are all being kept somewhat under

control. i'm sure i'd be lying in a hospital bed somewhere if i'd stayed with

kaiser. so we got to the point where i was clear of metals and chemicals but my

symptoms were still there and she was perplexed. That's when my sister in law

told me about the mtv episode and i watched it..So i told my doc about the mold

idea the other day and she had never done it before but did muscle testing on my

breat tissue and sure enough i came up positive loud and clear for fungus. it

blew her mind and my mind too.

so, good to know about the original PS stuff. A friend of mine's mom was my

nurse that worked for him at the time and i had a chat with her and she said i

can be honest with him and that when she worked there, there was a class action

suit against an implant company and that he might be understanding..but now i'm

nervous because of what you said about the capsulectemy..how do i get the list

of docs in CA...i'm so new to the site i don't even know where to look...i just

want them out asap it's not even funny. My dad has been there for me when my

husbands at work..the rest of my family has moved out of state but they all

support me from afar. that's my other big issue is that i feel like i've

exhausted my poor dad and husband. it's a stress on Everyone! I will keep the

appt for consult on monday so thanks for the tips!! i so appreciate it..so

erin, how did you choose who explanted them then?

bev

> >

> > HI - i am so new to all of this, including the idea that my 4 year old

implants

> >are what's been making me so ill.  slowly for the last 3 years, deathly for

the

> >last 4 months...2 days ago my sister in law sent me an episode of Mtv Tru

life

> >of who got sick from her implants and I sat there and cried because i

> >related to her on every level.  I've made an appointment for a consultation

with

> >the doc who put them in for monday and as you all understand, i barely have

the

> >strength to talk, let alone explain my situation to someone who might not

> >believe it.  are there any tips for the direction i'm going in?  I mean, he

did

> >a great job at the surgery, I just think there is toxic mold in the

> >implant..should I be honest and trust that he will take them out safely?  I

just

> >feel like he knows exactly how he put them in so it'd be the simple answer. 

And

> >with an autoimmune issue, how is it going thru surgery?  I'm so scared that

my

> >body can't handle it...i'm down to 104 lbs and i'm 5'6 " . i'm at the end of my

> >rope i feel...financially, physically, emotionally...i'm in the orange county

> >area in CA if anyone has any suggestions.  thnx!

> >

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Hi and I have every symptom you have. All of them. My anxiety or that is what I call it when my heart is pounding so fast and hard is always worse in the morning. I talked to alot of doctors where I live and a holistic doctor here who believes and treated people who were sick from implants and when they were explanted they used my explant doctor. Once I met him I felt very comfortable with him. He has done alot of them and he mentioned the scar tissue being removed before I brought it up. I will look at the other support group and see if I see any doctors in your area.

From: bebe444girl <moodynomad@...> Sent: Sat, September 11, 2010 8:13:38 PMSubject: Re: scared to deathIt's amazing, I cry as I read your responses because it is overwhelming that you girls can be so sweet and supportive to perfect strangers. I guess none of us thought we'd ever be in this awful of a situation. i've been having these weird "panic attacks" and times where it's hard to swallow, and also short dizzy spells for about 2 yrs but they were so sporatic i just wrote them off. In July my dizziness got so bad 2 days in a row while i was driving i cried to my husband that i just thought something was really "off" in my body. I had vertigo standing, sitting, was

super dehydrated, ibs, then constipation, my heart started palpitating (and hasn't stopped to this day), my blood pressure was really low, body temperature low, vision is foggy, i'm in a constant state where i just want to zone out, like a zombie. At one point i had a metal taste in my mouth. Then as the days went on my muscles began to shake and i couldn't stand or walk for very long. Mornings are always the worst, i hate waking up wondering if you'll feel better today just to find that your heart is still pounding out of your chest. My arm muscles feel weak and twitch from time to time, a rash developed on my neck, my hair comes out in alarming amounts, i get shooting pains in my chest, i have a deathly fear of being alone because I feel like i might pass out and die...but how does this make sense to people who've never felt this way? And to top it off, i had a friend say to another friend when this all

happened, "do you think she's making this up in her head?" that one got to me. frankly, kaiser docs made me feel like i was just crazy. They diagnosed me with BPPV, low blood pressure (told me to eat more salt) and depression and anxiety. oh and at first told me it was too early to tell and it could be a virus that could last up to 6 weeks. I had to fight for them to continue looking for an answer. Let me tell you, i had at least 30 vials of blood drawn...i stopped when they got up to testing me for cushings disease because i looked like a drug addict with bruises on my veins and 2, i didn't know what the hell Decadron was (had to swallow it before the blood test) and i didn't want to swallow it in case it made me feel worse! while the whole time they're telling me, well you have double what your ANA should be and high cortisol levels, but that's NORMAL in a lot of people..that's what the specialist said to

me...I lost all faith at that point. I went back to a holistic doc i hadn't seen in 3 years. it was like visiting an old friend...i don't know why i ever strayed....i tested positive for heavy metals, chemicals, parasites, yeast overgrowth, and adrenals being fatigued..so we got on a serious program and let me tell you, it's the only reason i can still get out of bed. I still have most of the symptoms but they are all being kept somewhat under control. i'm sure i'd be lying in a hospital bed somewhere if i'd stayed with kaiser. so we got to the point where i was clear of metals and chemicals but my symptoms were still there and she was perplexed. That's when my sister in law told me about the mtv episode and i watched it..So i told my doc about the mold idea the other day and she had never done it before but did muscle testing on my breat tissue and sure enough i came up positive loud and clear for fungus. it blew her

mind and my mind too.so, good to know about the original PS stuff. A friend of mine's mom was my nurse that worked for him at the time and i had a chat with her and she said i can be honest with him and that when she worked there, there was a class action suit against an implant company and that he might be understanding..but now i'm nervous because of what you said about the capsulectemy..how do i get the list of docs in CA...i'm so new to the site i don't even know where to look...i just want them out asap it's not even funny. My dad has been there for me when my husbands at work..the rest of my family has moved out of state but they all support me from afar. that's my other big issue is that i feel like i've exhausted my poor dad and husband. it's a stress on Everyone! I will keep the appt for consult on monday so thanks for the tips!! i so appreciate it..so erin, how did you choose who explanted them

then?bev > >> > HI - i am so new to all of this, including the

idea that my 4 year old implants > >are what's been making me so ill. slowly for the last 3 years, deathly for the > >last 4 months...2 days ago my sister in law sent me an episode of Mtv Tru life > >of who got sick from her implants and I sat there and cried because i > >related to her on every level. I've made an appointment for a consultation with > >the doc who put them in for monday and as you all understand, i barely have the > >strength to talk, let alone explain my situation to someone who might not > >believe it. are there any tips for the direction i'm going in? I mean, he did > >a great job at the surgery, I just think there is toxic mold in the > >implant..should I be honest and trust that he will take them out safely? I just > >feel like he knows exactly how he put them in so it'd be the simple

answer. And > >with an autoimmune issue, how is it going thru surgery? I'm so scared that my > >body can't handle it...i'm down to 104 lbs and i'm 5'6". i'm at the end of my > >rope i feel...financially, physically, emotionally...i'm in the orange county > >area in CA if anyone has any suggestions. thnx!> >> > > > > ------------------------------------> >

[Guest guest]

Wow, you still have all of the symptoms 2 months after explant? I hope not, if you do I'm so sorry. I do know the heart palpitations are a big part of adrenal fatigue and that can take a long time to straighten out after the stress our bodies and organs are going thru. Are you on any kind of adrenal support? I guess I shouldnt get the false hope of surgery being a 'quick fix'. I can tell you the symptoms of mcs too if you're interested. That's what they thought I had because I'm a hairdresser...the symptoms are almost all the same as the ones we have... Sent via BlackBerry by AT&TFrom: Barber <erinbarber91@...>Sender: Date: Sat, 11 Sep 2010 18:49:13 -0700 (PDT)< >Reply Subject: Re: Re: scared to deathHi and I have every symptom you have. All of them. My anxiety or that is what I call it when my heart is pounding so fast and hard is always worse in the morning. I talked to alot of doctors where I live and a holistic doctor here who believes and treated people who were sick from implants and when they were explanted they used my explant doctor. Once I met him I felt very comfortable with him. He has done alot of them and he mentioned the scar tissue being removed before I brought it up. I will look at the other support group and see if I see any doctors in your area. From: bebe444girl <moodynomad@...> Sent: Sat, September 11, 2010 8:13:38 PMSubject: Re: scared to deathIt's amazing, I cry as I read your responses because it is overwhelming that you girls can be so sweet and supportive to perfect strangers. I guess none of us thought we'd ever be in this awful of a situation. i've been having these weird "panic attacks" and times where it's hard to swallow, and also short dizzy spells for about 2 yrs but they were so sporatic i just wrote them off. In July my dizziness got so bad 2 days in a row while i was driving i cried to my husband that i just thought something was really "off" in my body. I had vertigo standing, sitting, wassuper dehydrated, ibs, then constipation, my heart started palpitating (and hasn't stopped to this day), my blood pressure was really low, body temperature low, vision is foggy, i'm in a constant state where i just want to zone out, like a zombie. At one point i had a metal taste in my mouth. Then as the days went on my muscles began to shake and i couldn't stand or walk for very long. Mornings are always the worst, i hate waking up wondering if you'll feel better today just to find that your heart is still pounding out of your chest. My arm muscles feel weak and twitch from time to time, a rash developed on my neck, my hair comes out in alarming amounts, i get shooting pains in my chest, i have a deathly fear of being alone because I feel like i might pass out and die...but how does this make sense to people who've never felt this way? And to top it off, i had a friend say to another friend when this allhappened, "do you think she's making this up in her head?" that one got to me. frankly, kaiser docs made me feel like i was just crazy. They diagnosed me with BPPV, low blood pressure (told me to eat more salt) and depression and anxiety. oh and at first told me it was too early to tell and it could be a virus that could last up to 6 weeks. I had to fight for them to continue looking for an answer. Let me tell you, i had at least 30 vials of blood drawn...i stopped when they got up to testing me for cushings disease because i looked like a drug addict with bruises on my veins and 2, i didn't know what the hell Decadron was (had to swallow it before the blood test) and i didn't want to swallow it in case it made me feel worse! while the whole time they're telling me, well you have double what your ANA should be and high cortisol levels, but that's NORMAL in a lot of people..that's what the specialist said tome...I lost all faith at that point. I went back to a holistic doc i hadn't seen in 3 years. it was like visiting an old friend...i don't know why i ever strayed....i tested positive for heavy metals, chemicals, parasites, yeast overgrowth, and adrenals being fatigued..so we got on a serious program and let me tell you, it's the only reason i can still get out of bed. I still have most of the symptoms but they are all being kept somewhat under control. i'm sure i'd be lying in a hospital bed somewhere if i'd stayed with kaiser. so we got to the point where i was clear of metals and chemicals but my symptoms were still there and she was perplexed. That's when my sister in law told me about the mtv episode and i watched it..So i told my doc about the mold idea the other day and she had never done it before but did muscle testing on my breat tissue and sure enough i came up positive loud and clear for fungus. it blew hermind and my mind too.so, good to know about the original PS stuff. A friend of mine's mom was my nurse that worked for him at the time and i had a chat with her and she said i can be honest with him and that when she worked there, there was a class action suit against an implant company and that he might be understanding..but now i'm nervous because of what you said about the capsulectemy..how do i get the list of docs in CA...i'm so new to the site i don't even know where to look...i just want them out asap it's not even funny. My dad has been there for me when my husbands at work..the rest of my family has moved out of state but they all support me from afar. that's my other big issue is that i feel like i've exhausted my poor dad and husband. it's a stress on Everyone! I will keep the appt for consult on monday so thanks for the tips!! i so appreciate it..so erin, how did you choose who explanted themthen?bev > >> > HI - i am so new to all of this, including theidea that my 4 year old implants > >are what's been making me so ill. slowly for the last 3 years, deathly for the > >last 4 months...2 days ago my sister in law sent me an episode of Mtv Tru life > >of who got sick from her implants and I sat there and cried because i > >related to her on every level. I've made an appointment for a consultation with > >the doc who put them in for monday and as you all understand, i barely have the > >strength to talk, let alone explain my situation to someone who might not > >believe it. are there any tips for the direction i'm going in? I mean, he did > >a great job at the surgery, I just think there is toxic mold in the > >implant..should I be honest and trust that he will take them out safely? I just > >feel like he knows exactly how he put them in so it'd be the simpleanswer. And > >with an autoimmune issue, how is it going thru surgery? I'm so scared that my > >body can't handle it...i'm down to 104 lbs and i'm 5'6". i'm at the end of my > >rope i feel...financially, physically, emotionally...i'm in the orange county > >area in CA if anyone has any suggestions. thnx!> >> > > > > ------------------------------------> >

[Guest guest]

Hi, I do have good days now and my symptoms flare it has it has been about 2 weeks since the last flare so I am hoping that they will get farther and farther apart. I am not on anything for adrenal support. Do you know of anything? I also have weird what I think is allergic reaction to any type or medical tape or basically anything that sticks to me at all. It takes my skin color away. Does anyone have this? There is also alot of added stress in my life right now. My husband is deployed. I know that this throws my body off too. There are some women who feel alot better really fast after surgery. I just feel better knowing that those things are out of me.

From: "moodynomad@..." <moodynomad@...> Sent: Sat, September 11, 2010 10:00:36 PMSubject: Re: Re: scared to death

Wow, you still have all of the symptoms 2 months after explant? I hope not, if you do I'm so sorry. I do know the heart palpitations are a big part of adrenal fatigue and that can take a long time to straighten out after the stress our bodies and organs are going thru. Are you on any kind of adrenal support? I guess I shouldnt get the false hope of surgery being a 'quick fix'. I can tell you the symptoms of mcs too if you're interested. That's what they thought I had because I'm a hairdresser...the symptoms are almost all the same as the ones we have... Sent via BlackBerry by AT & T

From: Barber <erinbarber91@...>

Sender:

Date: Sat, 11 Sep 2010 18:49:13 -0700 (PDT)

< >

Reply

Subject: Re: Re: scared to death

Hi and I have every symptom you have. All of them. My anxiety or that is what I call it when my heart is pounding so fast and hard is always worse in the morning. I talked to alot of doctors where I live and a holistic doctor here who believes and treated people who were sick from implants and when they were explanted they used my explant doctor. Once I met him I felt very comfortable with him. He has done alot of them and he mentioned the scar tissue being removed before I brought it up. I will look at the other support group and see if I see any doctors in your area.

From: bebe444girl <moodynomad@...> Sent: Sat, September 11, 2010 8:13:38 PMSubject: Re: scared to deathIt's amazing, I cry as I read your responses because it is overwhelming that you girls can be so sweet and supportive to perfect strangers. I guess none of us thought we'd ever be in this awful of a situation. i've been having these weird "panic attacks" and times where it's hard to swallow, and also short dizzy spells for about 2 yrs but they were so sporatic i just wrote them off. In July my dizziness got so bad 2 days in a row while i was driving i cried to my husband that i just thought something was really "off" in my body. I had vertigo standing, sitting, was

super dehydrated, ibs, then constipation, my heart started palpitating (and hasn't stopped to this day), my blood pressure was really low, body temperature low, vision is foggy, i'm in a constant state where i just want to zone out, like a zombie. At one point i had a metal taste in my mouth. Then as the days went on my muscles began to shake and i couldn't stand or walk for very long. Mornings are always the worst, i hate waking up wondering if you'll feel better today just to find that your heart is still pounding out of your chest. My arm muscles feel weak and twitch from time to time, a rash developed on my neck, my hair comes out in alarming amounts, i get shooting pains in my chest, i have a deathly fear of being alone because I feel like i might pass out and die...but how does this make sense to people who've never felt this way? And to top it off, i had a friend say to another friend when this all

happened, "do you think she's making this up in her head?" that one got to me. frankly, kaiser docs made me feel like i was just crazy. They diagnosed me with BPPV, low blood pressure (told me to eat more salt) and depression and anxiety. oh and at first told me it was too early to tell and it could be a virus that could last up to 6 weeks. I had to fight for them to continue looking for an answer. Let me tell you, i had at least 30 vials of blood drawn...i stopped when they got up to testing me for cushings disease because i looked like a drug addict with bruises on my veins and 2, i didn't know what the hell Decadron was (had to swallow it before the blood test) and i didn't want to swallow it in case it made me feel worse! while the whole time they're telling me, well you have double what your ANA should be and high cortisol levels, but that's NORMAL in a lot of people..that's what the specialist said to

me...I lost all faith at that point. I went back to a holistic doc i hadn't seen in 3 years. it was like visiting an old friend...i don't know why i ever strayed....i tested positive for heavy metals, chemicals, parasites, yeast overgrowth, and adrenals being fatigued..so we got on a serious program and let me tell you, it's the only reason i can still get out of bed. I still have most of the symptoms but they are all being kept somewhat under control. i'm sure i'd be lying in a hospital bed somewhere if i'd stayed with kaiser. so we got to the point where i was clear of metals and chemicals but my symptoms were still there and she was perplexed. That's when my sister in law told me about the mtv episode and i watched it..So i told my doc about the mold idea the other day and she had never done it before but did muscle testing on my breat tissue and sure enough i came up positive loud and clear for fungus. it blew her

mind and my mind too.so, good to know about the original PS stuff. A friend of mine's mom was my nurse that worked for him at the time and i had a chat with her and she said i can be honest with him and that when she worked there, there was a class action suit against an implant company and that he might be understanding..but now i'm nervous because of what you said about the capsulectemy..how do i get the list of docs in CA...i'm so new to the site i don't even know where to look...i just want them out asap it's not even funny. My dad has been there for me when my husbands at work..the rest of my family has moved out of state but they all support me from afar. that's my other big issue is that i feel like i've exhausted my poor dad and husband. it's a stress on Everyone! I will keep the appt for consult on monday so thanks for the tips!! i so appreciate it..so erin, how did you choose who explanted them

then?bev > >>

> HI - i am so new to all of this, including the idea that my 4 year old implants > >are what's been making me so ill. slowly for the last 3 years, deathly for the > >last 4 months...2 days ago my sister in law sent me an episode of Mtv Tru life > >of who got sick from her implants and I sat there and cried because i > >related to her on every level. I've made an appointment for a consultation with > >the doc who put them in for monday and as you all understand, i barely have the > >strength to talk, let alone explain my situation to someone who might not > >believe it. are there any tips for the direction i'm going in? I mean, he did > >a great job at the surgery, I just think there is toxic mold in the > >implant..should I be honest and trust that he will take them out safely? I just > >feel like he knows exactly

how he put them in so it'd be the simple answer. And > >with an autoimmune issue, how is it going thru surgery? I'm so scared that my > >body can't handle it...i'm down to 104 lbs and i'm 5'6". i'm at the end of my > >rope i feel...financially, physically, emotionally...i'm in the orange county > >area in CA if anyone has any suggestions. thnx!> >> > > > > ------------------------------------> >

[Guest guest]

Hi,

Just to clarify on the whole symptoms after explant thing....

YES, getting the implants out is not like pulling a bad tooth!

I had symptoms still even 18 months after explant! But slowly everything went

away. Very, very slowly. It takes the immune system months to settle down.

This is so important to understand. When I first got sick 8 months after

implantation and joined Ilena's support group, I was told back then that since I

had saline implants such a short time, I would get better very fast. Oh, that

was wrong! It was so wrong!

It made me impatient to get better, because my symptoms were so depressing. I

was soooooo sick there were times I just totally thought my life was over. I

wanted to get better fast, and I did whatever it took to make that happen.

But alas, my body had its own ideas about healing. It was a very slow process,

and I want to save you guys the same anxiety I dealt with. Don't expect to get

better right away. Be patient. Let your body do the work of healing, and don't

make yourself crazy with expectations of going back to being 100% normal in a

few weeks. It is just not a realistic expectation. It may take years. But if

you relax, let this be a period of learning and slowing down, taking time to

enjoy the small pleasures in life and renew faith, to just stop, breathe,

meditate, slow down, and yet detox your body, you will see slow, gradual

progress.

Adrenal glands can heal after adrenal exhaustion, with the right supplements and

therapies. That gives us hope. But it does take patience!!!!!!

HUgs,

Patty

> > >

> > > HI - i am so new to all of this, including the idea that my 4 year old

> >implants

> >

> > >are what's been making me so ill.  slowly for the last 3 years, deathly for

> >the

> >

> > >last 4 months...2 days ago my sister in law sent me an episode of Mtv Tru

life

> >

> > >of who got sick from her implants and I sat there and cried because

i

> > >related to her on every level.  I've made an appointment for a consultation

> >with

> >

> > >the doc who put them in for monday and as you all understand, i barely have

> >the

> >

> > >strength to talk, let alone explain my situation to someone who might not

> > >believe it.  are there any tips for the direction i'm going in?  I mean, he

> >did

> >

> > >a great job at the surgery, I just think there is toxic mold in the

> > >implant..should I be honest and trust that he will take them out safely?  I

> >just

> >

> > >feel like he knows exactly how he put them in so it'd be the simple

answer. 

> >And

> >

> > >with an autoimmune issue, how is it going thru surgery?  I'm so scared that

my

> >

> > >body can't handle it...i'm down to 104 lbs and i'm 5'6 " . i'm at the end of

my

>

> > >rope i feel...financially, physically, emotionally...i'm in the orange

county

>

> > >area in CA if anyone has any suggestions.  thnx!

> > >

> >

> >

> >

> >

> > ------------------------------------

> >

> >