help!

[Guest guest]

Saw your post on enzymes board............a few questions and i will try and

help.

Is he unhappy at school?

is he gfcf?

does he have any other diet restrictions?

does he avoid sugar?

any supplements?

how old is he?

any bowel symptoms?

any chelation done?

meantime, check out dana's site

www.autismchannel.net

also, www.autism-programs.com which has articles to help keep your spirits up!

if you call them and talk to steven wertz, say julie ross in scotland said to

call him. they also have a conference site you can post on.

lastly, post this also on the site called 'recoveredkids' [no space] at

www.

lots of informed parents there.

meantime the enzymes board was a great move.........they really know their

stuff, and CARE!!

YOU WILL BE IN MY PRAYERS.

JULIE

[Guest guest]

Hi ladies! I've been reading over your posts and I'm soo happy I found a group

of ladies that are here to support eachother!! I have soo many questions!!I did

previously send a post regarding a good Las Vegas doctor to do my explant.

However, I am 7 months pregnant barely making it day by day. It's very

difficult as you all know. I know I'm going to have to wait a bit before I get

explanted but was just trying to figure out some things I can do while I wait to

help. For instance, I wanted to get tested to see if any chemicals can be found

in my body. What sort of tests do I have done and who will do these tests? My

regular physician is supportive of me getting my implants out but she just

doesn't know how to test for the harmful effects of them. I would love to find

a more knowedgable doctor but I'm in Las Vegas and haven't read about or heard

about any doctor who knows about the effects of implants and I don't want to

waist my time, money, and the little energy I have on finding one. NEED HELP!

[Guest guest]

I feel the same way...not sure what to do for my son. we have not been measured but we did see a nuerosurgeon who said he had mild to moderate plagio. He too feels that it will correct itself. I will keep on checking this post to see what other people say.Sent from my Verizon Wireless BlackBerryFrom: "LadyBugg" <lilmissdoolittle@...>Sender: Plagiocephaly Date: Wed, 19 Jan 2011 17:45:21 -0000<Plagiocephaly >Reply Plagiocephaly Subject: HELP! My son Garrett was diagnosed with plagiocephaly. He was a preemie, 2 months early, and spent 8 weeks in the NICU. He is now 7 months old and doing great otherwise! Here's my issue... we were sent to Physical Therapy first for his torticollis. He is doing better with his neck range of motion and all. He still has the flat spot on the back of his head, therefore affecting the right side of his head, making that ear and forehead more prominent. From PT, we were sent to an Orthopedist for evaluation for a band. They stated that based on the measurements, he is in the severe category, so he needs to have a band. However, I went to Shriner's with him yesterday for a 2nd opinion/treatment options for the torticollis. The doctor there is a spinal surgeon as well. His neck bones and all are great, it's the neck muscles. And, the doctor thinks that with continued PT/OT his ead will continue to do better without a band.So now I am CONFUSED!!!!!! All the what ifs? are floating through my head... do I band him or not? what if I don't and he has a funny shaped head forever? I need some advice from mommies who have been through this PLEASE!!!!!! =) Thank You!!!!! =)

[Guest guest]

Correcting the tort is very important (stretching and working on those muscles).

But that won't fix all the problems with his head that have already occurred. I

would say the only reason not to band is if his neck is so messed up that the

band would actually worsen the tort - which is usually not the case. Banding

will help correct the existing shape, and tort will help with the problem going

forward. You need to work on both. Otherwise there is no way to compensate for

all the asymmetric growth that has already occurred.

-christine

sydney, 5 yrs, starband grad

>

> My son Garrett was diagnosed with plagiocephaly. He was a preemie, 2 months

early, and spent 8 weeks in the NICU. He is now 7 months old and doing great

otherwise!

>

> Here's my issue... we were sent to Physical Therapy first for his torticollis.

He is doing better with his neck range of motion and all. He still has the flat

spot on the back of his head, therefore affecting the right side of his head,

making that ear and forehead more prominent.

>

> From PT, we were sent to an Orthopedist for evaluation for a band. They stated

that based on the measurements, he is in the severe category, so he needs to

have a band.

>

> However, I went to Shriner's with him yesterday for a 2nd opinion/treatment

options for the torticollis. The doctor there is a spinal surgeon as well. His

neck bones and all are great, it's the neck muscles. And, the doctor thinks that

with continued PT/OT his ead will continue to do better without a band.

>

> So now I am CONFUSED!!!!!! All the what ifs? are floating through my head...

do I band him or not? what if I don't and he has a funny shaped head forever?

>

> I need some advice from mommies who have been through this PLEASE!!!!!! =)

Thank You!!!!! =)

>

[Guest guest]

We went with the doc band and were VERY pleased with our son's progress. Two bands and six and a half months later, what a difference. He even went through PT to help with the muscles in his neck. Good luck.

From: LadyBugg <lilmissdoolittle@...>Subject: Re: HELP!Plagiocephaly Date: Wednesday, January 19, 2011, 6:36 PM

thank you so much for your opinions/thoughts! this is my first child, so I've never had to deal with this. and, I don't want to second guess myself or make the wrong decision. >> I think you need to go with the band. Many physicians seem to think that> with the torticollis getting better, the head will round itself out, but> that doesn't seem to be true. It probably won't get worse, but if the> plagio is severe, you should go with the band.> > Unfortunately, it seems that many physicians don't take this seriously> enough. My wife and I really had to push our pediatrician for a referral to> a pediatric surgeon. His attitude was that it was

mild and would round> itself out. The surgeon, who had more experience with it, could tell right> away that it was moderate (which measurements later confirmed) and> recommended the helmet.> > Hopefully doctors will start taking this more seriously (and thank you to> everyone who has been circulating the petition to the pediatricians> organization), but until then, I think we parents have to take it upon> ourselves to educate our doctors.> > -- > Please reply to amarcus@...>

[Guest guest]

Hi,At 7 months your son's head is too rigid to significantly improve on its own. All the research supports this notion. Ask the spinal surgeon to send you studies supporting his opinion. Also, why is a spinal surgeon giving his opinion on plagio--usually a craniofacial specialist or less commonly a neurosurgeon deals with plagio. While your son's neck ROM will continue to improve with PT, it's too late to fix the head shape. If he were under 6 months and the tort was resolved, you could expect to see improvement. It's simply too late. Your second opinion is like our ped was--uninformed about banding. My daughter's ped began telling me when she was 8 weeks old that her head would round out on its own. I believed her until we were referred to PT for tort at 6 months and the PT brought up banding.

Her head progressively worsened. It was too late by then for my daughter. We had to band at 8 months. Go for the band and move quick. 7 months is a good time to band but move on it NOW as every day that goes by is a lost opportunity for correction. The clock is ticking and baby's growth will dramatically slow by 12 months.Good luck!-Amy From: LadyBugg <lilmissdoolittle@...>Plagiocephaly Sent: Wed, January 19, 2011 12:45:21 PMSubject: HELP!

My son Garrett was diagnosed with plagiocephaly. He was a preemie, 2 months early, and spent 8 weeks in the NICU. He is now 7 months old and doing great otherwise!

Here's my issue... we were sent to Physical Therapy first for his torticollis. He is doing better with his neck range of motion and all. He still has the flat spot on the back of his head, therefore affecting the right side of his head, making that ear and forehead more prominent.

From PT, we were sent to an Orthopedist for evaluation for a band. They stated that based on the measurements, he is in the severe category, so he needs to have a band.

However, I went to Shriner's with him yesterday for a 2nd opinion/treatment options for the torticollis. The doctor there is a spinal surgeon as well. His neck bones and all are great, it's the neck muscles. And, the doctor thinks that with continued PT/OT his ead will continue to do better without a band.

So now I am CONFUSED!!!!!! All the what ifs? are floating through my head... do I band him or not? what if I don't and he has a funny shaped head forever?

I need some advice from mommies who have been through this PLEASE!!!!!! =) Thank You!!!!! =)

[Guest guest]

Right. I don't understand why some doctors don't use common sense and wonder how an ossified skull can reshape itself before making statements like "it will round itself out". With a much younger, more pliable skull where the plagiocephaly is still mild, repositioning can help the baby not have further damage. Some growth spurts could even the flattening out too at that point. But past the very early months, the laws of physics simply don't support the idea that a more solidified skull will pop back into shape on its own.

[Guest guest]

Glad your little one is doing well. As a 1st time mom, I knew that I would always wonder "what if", so we decided to band because I would rather be safe than sorry. I knew banding wouldn't hurt, but by not banding my baby's head may not correct itself and may even get worse. Only you can make the decision of what is best for your baby and your family. Good luck!

> Plagiocephaly > From: lilmissdoolittle@...> Date: Wed, 19 Jan 2011 17:45:21 +0000> Subject: HELP!> > My son Garrett was diagnosed with plagiocephaly. He was a preemie, 2 months early, and spent 8 weeks in the NICU. He is now 7 months old and doing great otherwise! > > Here's my issue... we were sent to Physical Therapy first for his torticollis. He is doing better with his neck range of motion and all. He still has the flat spot on the back of his head, therefore affecting the right side of his head, making that ear and forehead more prominent. > > From PT, we were sent to an Orthopedist for evaluation for a band. They stated that based on the measurements, he is in the severe category, so he needs to have a band. > > However, I went to Shriner's with him yesterday for a 2nd opinion/treatment options for the torticollis. The doctor there is a spinal surgeon as well. His neck bones and all are great, it's the neck muscles. And, the doctor thinks that with continued PT/OT his ead will continue to do better without a band.> > So now I am CONFUSED!!!!!! All the what ifs? are floating through my head... do I band him or not? what if I don't and he has a funny shaped head forever? > > I need some advice from mommies who have been through this PLEASE!!!!!! =) Thank You!!!!! =)> > > > ------------------------------------> > For more plagio info