Guest guest Posted July 14, 2008 Report Share Posted July 14, 2008 Hi Sam I wish I knew what she meant by "they only do FT3 for research purposes". The do FT3 to check whether people are hypERthyroid so they do not ONLY do this for research purposes. I think your doctor could write to say she NEEDS this test done in this particular case. I get mine tested automatically every three months for the past several years, and there has never been a problem with the labs. up here in West and north Yorkshire. He does sound to have an adrenal problem. Are you able to see a private doctor Sam, because it sounds as if you need specialist help as soon as possible for Marc. luv - Sheila She put the result for T3 in the post the same night which was good of her. I asked her would the T3 be total T3 or FT3 and apparently they only do FT3 for research purposes so his result will be TT3 not much use but they do not think it necessary to do RT3 in a child.Marc is still not too well and is still fatigued and nauseous. yesterday he had a horrible headache and vomitted quite a bit. he is still complaining of being dizzy and "just not right" so i phoned the endocrine nurse who said he should go back to the GP as it doesn,t sound like a hormone problem but more like migraine which you can get in your stomach and head. i have also had Marcs eyes checked as his eyesight is getting worse qiute quickly of late but thankfully there is no change there so that is not the problem. Marc has also had a blocked nose for about three weeks - the doctor is not sure why this is persisting but it may be hayfever although his eyes are not streaming or itchy he just has this blocked up nose.Anyway i will let you know his T3 result when it comes back. I am just a bit concerned for Marc as he is going to France with his school next week and i would like to see him being able to fully enjoy it.Thanks SheilaSam >No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.10/1551 - Release Date: 14/07/2008 06:49 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2008 Report Share Posted July 14, 2008 I asked for my T3 to be done last blood test and it was done with no questions asked. I was expecting a fight after what I read on here but I was pleasantly surprised! Looks as if all labs operate under different criteria From: sheilaturner <sheilaturner@...>Subject: Re: Re: new to forumthyroid treatment Date: Monday, 14 July, 2008, 6:55 PM Hi Sam I wish I knew what she meant by "they only do FT3 for research purposes". The do FT3 to check whether people are hypERthyroid so they do not ONLY do this for research purposes. I think your doctor could write to say she NEEDS this test done in this particular case. I get mine tested automatically every three months for the past several years, and there has never been a problem with the labs. up here in West and north Yorkshire. He does sound to have an adrenal problem. Are you able to see a private doctor Sam, because it sounds as if you need specialist help as soon as possible for Marc. luv - Sheila She put the result for T3 in the post the same night which was good of her. I asked her would the T3 be total T3 or FT3 and apparently they only do FT3 for research purposes so his result will be TT3 not much use but they do not think it necessary to do RT3 in a child.Marc is still not too well and is still fatigued and nauseous. yesterday he had a horrible headache and vomitted quite a bit. he is still complaining of being dizzy and "just not right" so i phoned the endocrine nurse who said he should go back to the GP as it doesn,t sound like a hormone problem but more like migraine which you can get in your stomach and head. i have also had Marcs eyes checked as his eyesight is getting worse qiute quickly of late but thankfully there is no change there so that is not the problem. Marc has also had a blocked nose for about three weeks - the doctor is not sure why this is persisting but it may be hayfever although his eyes are not streaming or itchy he just has this blocked up nose.Anyway i will let you know his T3 result when it comes back. I am just a bit concerned for Marc as he is going to France with his school next week and i would like to see him being able to fully enjoy it.Thanks SheilaSam >No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.4.10/1551 - Release Date: 14/07/2008 06:49 Not happy with your email address? Get the one you really want - millions of new email addresses available now at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008  ....then I bet you live in good old Yorkshire. Many of the Yorkshire laboratories do test for Free T3 - and I think we probably have more endocrinologists who will now recommend Armour thyroid if their patients are not doing well on L-thyroxine alone - and consequently, more GP's who are now prescribing Armour. Luv - Sheila I asked for my T3 to be done last blood test and it was done with no questions asked. I was expecting a fight after what I read on here but I was pleasantly surprised! Looks as if all labs operate under different criteria From: sheilaturner <sheilaturnertpa-uk (DOT) org.uk>Subject: Re: Re: new to forumthyroid treatment Date: Monday, 14 July, 2008, 6:55 PM Hi Sam I wish I knew what she meant by "they only do FT3 for research purposes". The do FT3 to check whether people are hypERthyroid so they do not ONLY do this for research purposes. I think your doctor could write to say she NEEDS this test done in this particular case. I get mine tested automatically every three months for the past several years, and there has never been a problem with the labs. up here in West and north Yorkshire. He does sound to have an adrenal problem. Are you able to see a private doctor Sam, because it sounds as if you need specialist help as soon as possible for Marc. luv - Sheila She put the result for T3 in the post the same night which was good of her. I asked her would the T3 be total T3 or FT3 and apparently they only do FT3 for research purposes so his result will be TT3 not much use but they do not think it necessary to do RT3 in a child.Marc is still not too well and is still fatigued and nauseous. yesterday he had a horrible headache and vomitted quite a bit. he is still complaining of being dizzy and "just not right" so i phoned the endocrine nurse who said he should go back to the GP as it doesn,t sound like a hormone problem but more like migraine which you can get in your stomach and head. i have also had Marcs eyes checked as his eyesight is getting worse qiute quickly of late but thankfully there is no change there so that is not the problem. Marc has also had a blocked nose for about three weeks - the doctor is not sure why this is persisting but it may be hayfever although his eyes are not streaming or itchy he just has this blocked up nose.Anyway i will let you know his T3 result when it comes back. I am just a bit concerned for Marc as he is going to France with his school next week and i would like to see him being able to fully enjoy it.Thanks SheilaSam >No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.4.10/1551 - Release Date: 14/07/2008 06:49 Not happy with your email address? Get the one you really want - millions of new email addresses available now at No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.10/1551 - Release Date: 14/07/2008 06:49 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 NO Sheila, I am in Lincolnshire!!! From: sheilaturner <sheilaturner@ tpa-uk.org. uk>Subject: Re: [thyroidpatientadvo cacy] Re: new to forumthyroidpatientadvoc acygroups (DOT) comDate: Monday, 14 July, 2008, 6:55 PM Hi Sam I wish I knew what she meant by "they only do FT3 for research purposes". The do FT3 to check whether people are hypERthyroid so they do not ONLY do this for research purposes. I think your doctor could write to say she NEEDS this test done in this particular case. I get mine tested automatically every three months for the past several years, and there has never been a problem with the labs. up here in West and north Yorkshire. He does sound to have an adrenal problem. Are you able to see a private doctor Sam, because it sounds as if you need specialist help as soon as possible for Marc. luv - Sheila She put the result for T3 in the post the same night which was good of her. I asked her would the T3 be total T3 or FT3 and apparently they only do FT3 for research purposes so his result will be TT3 not much use but they do not think it necessary to do RT3 in a child.Marc is still not too well and is still fatigued and nauseous. yesterday he had a horrible headache and vomitted quite a bit. he is still complaining of being dizzy and "just not right" so i phoned the endocrine nurse who said he should go back to the GP as it doesn,t sound like a hormone problem but more like migraine which you can get in your stomach and head. i have also had Marcs eyes checked as his eyesight is getting worse qiute quickly of late but thankfully there is no change there so that is not the problem. Marc has also had a blocked nose for about three weeks - the doctor is not sure why this is persisting but it may be hayfever although his eyes are not streaming or itchy he just has this blocked up nose.Anyway i will let you know his T3 result when it comes back. I am just a bit concerned for Marc as he is going to France with his school next week and i would like to see him being able to fully enjoy it.Thanks SheilaSam >No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.4.10/1551 - Release Date: 14/07/2008 06:49 Not happy with your email address? Get the one you really want - millions of new email addresses available now at No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.4.10/1551 - Release Date: 14/07/2008 06:49 Not happy with your email address? Get the one you really want - millions of new email addresses available now at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 No problem down south either. Chris > > From: sheilaturner <sheilaturner@...> > Subject: Re: Re: new to forum > thyroid treatment > Date: Tuesday, 15 July, 2008, 8:32 AM > > > > > > >  > ...then I bet you live in good old Yorkshire. Many of the Yorkshire laboratories do test for Free T3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 I have terrible problems and I am in Essex. My doctor wrote in big letters on form "taking T3" but they still wouldn't test it. Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 morning all; i had no problem getting t3 done in west sussex regards jane > > ...then I bet you live in good old Yorkshire. Many of the Yorkshire laboratories do test for Free T3 - and I think we probably have more endocrinologists who will now recommend Armour thyroid if their patients are not doing well on L-thyroxine alone - and consequently, more GP's who are now prescribing Armour. > > Luv - Sheila > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008  Just shows how wrong I can be *grin* - anyway, you are not all that far away. luv - Sheila NO Sheila, I am in Lincolnshire!!!  ...then I bet you live in good old Yorkshire. Many of the Yorkshire laboratories do test for Free T3 - and I think we probably have more endocrinologists who will now recommend Armour thyroid if their patients are not doing well on L-thyroxine alone - and consequently, more GP's who are now prescribing Armour. Luv - Sheila Not happy with your email address? Get the one you really want - millions of new email addresses available now at No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.4.10/1551 - Release Date: 14/07/2008 06:49 Not happy with your email address? Get the one you really want - millions of new email addresses available now at No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.10/1551 - Release Date: 14/07/2008 06:49 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Hi Sam, With electrolytes bang in the middle of the range the serum potassium can still be outside the cells and hence producing low energy output. A son of that age might, in any case, be suffering low magnesium and/or low zinc ~ the latter shows as white flecks in the nails. It's difficult to show a low magnesium status in the cells by measuring what's in the blood/serum and it may be worthwhile adding some magnesium with calcium to his diet. The zinc should contain a small amount of copper if it's given over a long period or in high amounts. Migraine like effects could well be down to low magnesium and/or low vit B6 (these two recommended for women who get 'periodic' migraine). If I recall rightly, I got migraine for about the same couple of years of adolescence.....but no obvious signs of thyroid disease. In retrospect, I may have been low on folic acid for all those years. Is the moniker ('Aplastic' telling me something??) Low B12/low folates? best wishes Bob > > > > > > MODERATED TO REMOVE DUPLICATED COPY. I HAVE JUST LEFT THE LATEST > QUESTIONS AND YOUR ANSWERS. - LUV - SHEILA > > ________________________________ > > > I am taking him to the GP tomorrow so will insist on his > > electrolyes and aldosterone being done along with the FT3. He is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 > > >> > > > > > MODERATED TO REMOVE DUPLICATED COPY. I HAVE JUST LEFT THE LATEST > > QUESTIONS AND YOUR ANSWERS. - LUV - SHEILA> > > ________________________________> > > > > I am taking him to the GP tomorrow so will insist on his> > > electrolyes and aldosterone being done along with the FT3. He is > >>Hi Bob I have started Marc on magnesium and calcium and vitamin B6 and he already takes a multi vit with extra vit c. He does have white flecks on his nails so will try a little zinc. The migraines could well be just to do with his age etc and with him being on Growth hormone and cortisol these too could be playing a part - also "fingers crossed" it could be that his body is actually experiencing a strange phenomenon called GROWTH" . Yes the aplastic refers to my own bone marrow. I referred to myself as that for the years i was ill with aplastic anaemia but still use it even tho i am in partial remission and feeling much better. Marc does not have AA but he has one cell line down - his platelets - with his red cells being a liitle larger than they should be which i am told is due to his condition, also they are probably not functioning as well as they ought to. i have been advised his blood condition does not in any way contribute to his tiredness. Thanks for your time Bob Cheers Sam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 > > Just shows how wrong I can be *grin* - anyway, you are not all that far away. > > luv - Sheila > > > NO Sheila, I am in Lincolnshire!!! > > > > > > > >  > > ...then I bet you live in good old Yorkshire. Many of the Yorkshire laboratories do test for Free T3 - and I think we probably have more endocrinologists who will now recommend Armour thyroid if their patients are not doing well on L-thyroxine alone - and consequently, more GP's who are now prescribing Armour. > > Luv - Sheila > sarah, Sheila I think the problem here is that he is a child - whether that has some bearing on the matter because she did mention that children do not have their T3 tested just TT3 - i did point out that he was 14 and A HALF and not a small child but i will go AGAIN to the GP and ask her to specifically request FT3 LOL Sam > > > > > > > > ------------------------------------------------------------------- - > Not happy with your email address? > Get the one you really want - millions of new email addresses available now at > > No virus found in this incoming message. > Checked by AVG - http://www.avg. com > Version: 8.0.138 / Virus Database: 270.4.10/1551 - Release Date: 14/07/2008 06:49 > > > > > > ------------------------------------------------------------------- ----------- > Not happy with your email address? > Get the one you really want - millions of new email addresses available now at > > > No virus found in this incoming message. > Checked by AVG - http://www.avg.com > Version: 8.0.138 / Virus Database: 270.4.10/1551 - Release Date: 14/07/2008 06:49 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Hi Sam Nails might take a few weeks to respond, electrolytes perhaps a little quicker. Any signs of iron deficiency/low ferritin? Growth hormone will cause a lack of iron if all cells ( blood volume etc) are proliferating under its influence. Even white cells need iron. best wishes Bob > > please delete messages already read before clicking SEND. It makes it difficult to read . Luv - Sheila > ____________________________________________> > > Hi Bob > > I have started Marc on magnesium and calcium and vitamin B6 and he > already takes a multi vit with extra vit c. He does have white Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 My nails were terrible - so I started taking one tablet a day of Silica 2500. Now, I could prise the metal cap off a bottle of beer they are SO strong. Luv - Sheila Nails might take a few weeks to respond, electrolytes perhaps a little quicker. Any signs of iron deficiency/low ferritin? .. No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.0/1558 - Release Date: 17/07/2008 09:56 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Hi Sam It's possible your son may have low zinc as one of the main causes of his low growth ~ needing growth hormone? But as you also mention the aplastic anemia (in yourself) and ITP in Marc with low platelets ~ do they have a treatment strategy that accommodates the variations caused by both pituitary/thyroid problems and interferencs arising from deficiencies of either trace elements, minerals or vitamins? It's probably quite difficult to manage all of those factors within a medical model and that discipline.....ie it's a good idea to keep your doc informed of your own initiatives .... I suspect you have a notebook (diary?) of things that have happened for yourself and that you have done one for Marc as well? best wishes Bob ~~~~~~~~ > I think the problem here is that he is a child - whether that has > some bearing on the matter because she did mention that children do > not have their T3 tested just TT3 - i did point out that he was 14 > and A HALF and not a small child but i will go AGAIN to the GP and > ask her to specifically request FT3 > > LOL > Sam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Hi , kids can be called " twice exceptional " or gifted/LD which isn't a drawback necessarily. My son who has diagnoses of OCD, dysgraphia and HFA/Aspergers was in the gifted classes and honors classes. Was in Honor Society in high school. I would think of it as your son might need some supports in school to help with his " learning style " or any classroom problems - which the latter could be anything from talking too much, needing reminders to stay on task/prompt to work, staying in seat or likes to ask lots of questions! doesn't have to be behavior/outbursts to get help in the classroom. He might need some accommodations and/or modifications for schoolwork, might not. If he's anything like my son, they couldn't expect him to be organized, which he did improve at that in high school. How great that he is so gifted musically! My son never had any one major area of interest like a lot of children can. Oh he went through a Pokemon obsession, that type thing, but no huge interest in something better like musical instruments. He was in band, played the trumpet. Ahem, no huge talent there, LOL, but was in band from 6 to 11th or 12th grade. My is 19 now. I am hoping for him to get his driver's licence this next month, if I can find the time to practice parking a bit more and the 3-point turn. He won't get to go off driving just anywhere without me, but I think will be fine getting to/from certain places in our small city, rural county. He's enjoying his 2nd year at our community college (across the street from where I work so I take him/pick up) and he is their Student Gov't treasurer and also treasurer in Science Club. Plans to get into medical research. Also plans to go away to university next year, which I will say I worry about! single mom, 3 sons > > My son was recently diagnosed with Aspergers. We¢ve had concerns prior to this diagnosis but since he was such a precocious and articulate child we ignored some of the early signs. Now that we have the diagnosis we are a little overwhelmed. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Dear , Welcome to the group. Although I am also new to the group, I guess I can have some advice that worked well in my 7-year old AS son. (1) There is too much material on the net. It is quite understandable that you feel overwhelmed. I would suggest that you go through some basic books, for instance Attwood's "Complete Guide to Asperger's Syndrome" and then Boyd's "Parenting a child with AS: 200 Tips and strategies". But never give up reading. Reading will give you the courage and patience you'll much need. It will also help you help understand your son and develop strategies accordingly. (2) Don't forget this is not a sprint run; this is a marathon run. Use your energy wisely. Take very good care of yourself. Don't give up the things that you usually do, that make you feel fine. Find someone you can wholeheartedly trust; talk to him/her, express your feelings. (3) Don't expect too much in the short run. Go slowly. Start with few interventions which you think will give the best results. (4) However trivial the reasons on the surface for his tantrums may seem to you, don't forget these are real for him. Give him a huge hug, kiss him, soothe him. Make him feel secure. Don't enter into a discussion with him on whatever triggered his tantrum; you may end up in a nonsense conversation in which there will be no winner. (5) Whatever you do, never give up giving him what they call unconditional love. Do not ever yell, or shout at him. When you feel like doing, leave the room, do something else. Such behaviors hurt them much more than we can think of. (6) And do not forget AS could be both a curse and a blessing. It is you to turn it into blessing. These are what I could call beginnig strategies that worked well with my son and paved the way for further inteventions. Although my son had serious problems at the school last year, we are doing fine this year. We never had to use any medications for him. With my warmest feelings of sympathy Oguz Isik Ankara/Turkey From: karen merz <lizecom2003@...>Subject: ( ) New to forum Date: Monday, November 24, 2008, 6:17 PM My son was recently diagnosed with Aspergers. We¢ve had concerns prior to this diagnosis but since he was such a precocious and articulate child we ignored some of the early signs. Now that we have the diagnosis we are a little overwhelmed. We received the diagnosis from the McCarton Center in NY last Wednesday. Dr. McCarton delivered the news herself and left us both feeling very optimistic but now I am feeling like I may have naively mistaken her optimism. My son is obsessed with musical instruments. We attend music class once a week. He can tell you the parts of every instrument. His favorite instrument is the Oboe. He can tell you what instruments are in the Brass, String, Woodwind and family. A few weeks ago I indulged his obsession by walking in a local music store and asking if we could see an oboe. The owner was so impressed by that he followed us down the street insisting that we take the oboe free. He said that my son is a musical genius and needs this oboe. Well instead of explaining the situation there on the street I graciously declined the offer and told him we would visit the oboe again. Having just begun this journey I am feeling overwhelmed by the amount of information in books and on the internet. I am very interested in hearing about other parent¢s experiences and success stories. I've read that many successful people have this condition, e.g., Bill Gates but I've also read that children with Aspergers are no longer viewed as gifted and talented but labeled with a handicap. I¢ve also read that I should set aside time for him to indulge in his obsessions, which, also includes numbers, letters and colors, but try to get him involved with new things, which is always a challenge. I appreciate any advice. Thank you in advance for your help. Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Thanks This helps me put things in perspective as well as comforting to hear a similiar situation. > > > > My son was recently diagnosed with Aspergers. We¢ve had concerns > prior to this diagnosis but since he was such a precocious and > articulate child we ignored some of the early signs. Now that we > have the diagnosis we are a little overwhelmed. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Hi , My daughter was just diagnosed this year too (she's going to be 7 next week), so I know what you're feeling. With my daughter, I knew she was different, I just didn't know why. I think that's pretty true of most parents of kids with AS. My daughter is also twice-exceptional. Every professional who has worked with her have all said that she is definitely gifted, although she will likely never test that way because of her anxiety (timed tests are distressing for her). That's one of the reasons we decided to homeschool--we knew that we would never be able to get appropriate services for her academically as well as socially. We tried private school and got burned very badly. Homeschooling lets us address her unique needs and put her on the appropriate grade levels for different types of work. It isn't for everyone, but it is working pretty well for us at this time. Yes, technically AS is a disability. But that doesn't mean that these children (and people!) don't have an enormous amount to give to this world. Don't let the term " disability " be a limitation to you. Let it open open doors for things like services, social skills training, etc., but DONT let it hold you (or him) back. These are the kids who have the potential to do truly great things. Its such a shame that we have to fight so hard to get others to see that. One of the most powerful moments for me came before we ever even got a diagnosis. I realized that her quirks and differences were so embedded in who she was, that even if I COULD change her and make her " typical " , I wouldn't. She wouldn't be the same person, and I love her how she is. My job is to help her cope with the things she doesn't understand, be comfortable in her own skin, and find her place in this world. It's not all fun and roses and never has been. We have really hard, hard days sometimes. But it's one day at a time, one thing at a time. Every day is a new chance. Tony Atwood's book helped me and my husband a lot in really understanding how she thinks differently. That's probably been the most difficult thing for me, and I think it is for most of us parents: trying to understand and really " get " that these kids have a completely different way of thinking and processing information. Once I got a basic understanding of that, it's been easier to structure interventions, discipline strategies, ways to talk her down/deal with behaviors, etc. Some of it is still trial and error, since every kid is different, but it has helped tremendously. Above all, never lose sight of the fact that YOU are the expert on your child. You know him better than any doctor, educator, etc. Many will challenge that (possibly including members of your own family--that has happened to me more than once), but don't let them get to you. If you know something is right or wrong for your child, be vocal about it. Don't give up. Take it a day at time and take joy in your son. I bet he is an amazing child. Amy > > My son was recently diagnosed with Aspergers. We¢ve had concerns prior to this diagnosis but since he was such a precocious and articulate child we ignored some of the early signs. Now that we have the diagnosis we are a little overwhelmed. > > We received the diagnosis from the McCarton Center in NY last Wednesday. Dr. McCarton delivered the news herself and left us both feeling very optimistic but now I am feeling like I may have naively mistaken her optimism. > > My son is obsessed with musical instruments. We attend music class once a week. He can tell you the parts of every instrument. His favorite instrument is the Oboe. He can tell you what instruments are in the Brass, String, Woodwind and family. A few weeks ago I indulged his obsession by walking in a local music store and asking if we could see an oboe. The owner was so impressed by that he followed us down the street insisting that we take the oboe free. He said that my son is a musical genius and needs this oboe. Well instead of explaining the situation there on the street I graciously declined the offer and told him we would visit the oboe again. > > Having just begun this journey I am feeling overwhelmed by the amount of information in books and on the internet. I am very interested in hearing about other parent¢s experiences and success stories. I've read that many successful people have this condition, e.g., Bill Gates but I've also read that children with Aspergers are no longer viewed as gifted and talented but labeled with a handicap. > > I¢ve also read that I should set aside time for him to indulge in his obsessions, which, also includes numbers, letters and colors, but try to get him involved with new things, which is always a challenge. > > I appreciate any advice. > > Thank you in advance for your help. > > Sincerely, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2009 Report Share Posted June 29, 2009 > > I'm Sue from Tx. I am very ill was on antbx for 12 years for acne and also had crush head injury - so lot's of activity in my facial region. My nervous system is wrecked, adrenals and thryroid and other endocrine function extremely poor. I digest fats very poorly, actually digestion period is tough, I belch and belch until my throat is inflamed. It's better with enzymes but still rough. I started the CO and it reveves up my metablolishm so much. I'm really concerned for my life. > > Sorry for the sob story but it's real bad - > Q: Can you become allergic to the CO taking it daily? Hi Sue from TX Bee will answer this in more detail and I would try to out much of what you have learned about your body. Based on my experience when fed properly, (and Bee has a fabulous menu) our bodies have amazing abilities to heal. I would suspect you are worried and the best thing to do when worried is to do something that improves your health. As you get stronger you think better and do better and rest better. You become more efficient and your sense of well being will drastically improve. Long story short, I would review Bee's information and start today and read some more and continue. I'll change one word in your question: Can you become allergic to the air taking it daily? Yep, same answer, NO. When you eat the good stuff it wakes our bodies up and what we think are some bad allergic reaction is the opposite, a good healing reaction. The junk in our bodies does not just dissolve, it must find a way out and it comes out through our elimination system, coughing, itching and even through eyes and toes. So if we misinterpret it we stop taking that which nourishes our temples. Here is my last example. If you have ever been or known a smoker then you know that they think the first thing they need to do when waking in the morning, (those that can still sleep)is to light up. That is because if they don't they start coughing as the body is try to clear out junk. They smoke and the cough goes away. I quess that wasn't my last example. The same thing happens with antibiotics. We think we see our bodies becoming worse if we stop their use and after a few days/weeks our bodies having been unshackled start to heal and if we feed it the good stuff then excellent health does return. Good luck and Bee will probably give you a womans version of it now. Neal from PDX. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2009 Report Share Posted June 29, 2009 > > Hi Folks..interesting forum. > I'm Sue from Tx. I am very ill was on antbx for 12 years for acne and also had crush head injury - so lot's of activity in my facial region. My nervous system is wrecked, adrenals and thryroid and other endocrine function extremely poor. I digest fats very poorly, actually digestion period is tough, I belch and belch until my throat is inflamed. It's better with enzymes but still rough. I started the CO and it reveves up my metablolishm so much. I'm really concerned for my life. I eat good by most standards as sugar affects me poorly - I get instant whiteheads around my nose, ears, permiter of face. I like the coconut oil but it seems hard on my adrenals. I desperately dry from the inside out and realize I need these fats but find it hard to eat to many. I have inflammation systemically and am so constipated I can only move my bowels now with an enema. Strange but the fats/oils come out my eyes, has anyone else experienced this? > > Sorry for the sob story but it's real bad - > Q: Can you become allergic to the CO taking it daily? +++Hi Sue from TX. Welcome to our group. All of your symptoms and health problems can be improved with this program since it is designed to give your body what it needs to heal itself naturally, the way nature intended. +++There are many things on this program which assist/help your thyroid and adrenals and the rest of your endocrine system. +++You can't possibly have problems digesting the " good " fats I recommend since most of them do not get digested the same way as unnatural fats and oils - they do not require any digestive enzymes nor even bile since they are absorbed directly from the first part of the small intestines through the lymphatic system into the bloodstream. +++The reason you are belching isn't because of poor fat digestion; you are belching because of poor digestion of proteins and carbohydrates (any foods that aren't protein and fat). +++You don't want to take any digestive enzymes that the pancreas produces since they are all neutralized in the stomach by stomach acid. I only recommend taking Betaine hydrochloric acid and doing other things that improve digestion - see this section of my main candida article: http://www.healingnaturallybybee.com/articles/intro2.php#s27 +++Please start with small amount of unrefined coconut oil, and slowly increase it as I recommend in my articles. Ensure you read 1) How to Successfully Overcome Candida and 2) Curing Candida, How to Get Started: http://www.healingnaturallybybee.com/articles/menu2_8.php > > Comment: The eggs have vitamin D and I worry about vitamin D as it's a prehormone and when you have inflammatory diseases it works countintuitive with the innate immune system. This is research that is new regarding inflammatory diseases, note the Marshall Protocol -- any one familiar with this theory? +++Yes I am very familiar with the Marshall Protocol and it is a very dangerous program for many reasons, but mainly because of his misconceptions about vitamin D. Yes, vitamin D is a prehormone, which is vital for your health, and in order for your body to not be inflammed. +++But again, inflammation is very misunderstood, when all it IS, is toxins! > it dawned on me I needed to take something out of my body ie. the infection instead of just keep putting supplements in. Every system in my body is affected. My parasympathic nervous systems never shuts down. I have HAD to start sleeping pills as I am a walking zombie and have gotten deep sleep much possible since age 14 and the car accident. +++What you need is to ensure you are getting all of the " proper nutrients " your body requires so it can heal itself, which includes some basic important supplements, including vitamins D, A & E, omega 3, etc. which are listed in my candida articles. +++I think you mean that your sympathetic nervous system doesn't turn off, right? In order to switch your body over from the sympathetic nervous system to the parasympathetic nervous system do deep breathing exercises regularly and frequently, and also get on this complete program so your body can start the healing process. Here's deep breathing exercises: http://www.healingnaturallybybee.com/articles/breath1.php > > Also I seem to be allergic to the yolks of regular eggs , maybe ok with organic i haven't tested them. The fiber in vegetables are really tough to digest right now, too. +++No human body can be allergic to good foods from Mother nature since our bodies are designed to consume them in order to be healthy. The reason you think you are allergic to eggs is because eggs are high in sulphur, which is antifungal, so like coconut oil it will cause healing reactions and symptoms - see this article about Healing Foods, Herbs & Spices: http://www.healingnaturallybybee.com/articles/heal14.php > > I am down to 100 lbs and I'm so dry my body wants to concave. It's been odd as I have ALWAYS eaten better than anybody I knew. I saddened that the kineslogolgist never keyed in on the bacterial/fungal issues. > > Sorry to jump in with all my baggage here, I have structural issues so I know there are complications possible outside of candida. I feel like I'm being scalded from the inside out. +++Hang in there Sue, since this program has helped many people - see these great Success Stories: http://www.healingnaturallybybee.com/success/index.php +++Take one step at a time and eventually you too can be healthy! All the best, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 Here is the first thing I would do check your Estradiol levels if high your Testosterone levels will be on the low side like this. Your Brain sees Estradiol as Testosterone and thinks the High Estradiol levels are Testosterone and slows down sending the LH and FSH to your Testis to make more Testosterone so you end up with lower levels. If your labs come back on the higher side over 30 pg/ml then getting this down your Testosterone levels can go back up some 200 to 300 points. Get this test done at Quest labs do the Estradiol Sensitive Test #4021 the range is 13 to 54 pg/ml best to be at 20 if your over 50 you need to take Arimidex to get this down. http://www.medibolics.com/ArimidexBoostsTestosterone.htm http://jcem.endojournals.org/cgi/content/full/89/3/1174 http://www.lef.org/magazine/mag2008/nov2008_Dangers-of-Excess-Estrogen-in-the-Ag\ ing-Male_01.htm If your Estradiol levels are good then look at Adrenls and Thyroid. Do a 4x's in a day Saliva Test for your Cortisol levels and test your Thyrod. http://livingnetwork.co.za/hormones/adrenal-fatigue/ http://livingnetwork.co.za/hormones/thyroid-problems/ Co-Moderator Phil > From: Jim <jim122676@...> > Subject: New to forum > > Date: Tuesday, June 29, 2010, 12:53 PM > Hi all, Glad to see you here. > I had a surgery inflicted on my testicles about a year ago > and > have had very low energy mentally and physically as well as > exhaustion hot sensations in my body,dificulty > concentrating,memory and diminished sexual desire ever > since.Does this sound like low testosterone? Im 33 and > before hand i had very high energy,been experiencing them > for about a year.I find living with these symptoms to be > very hard. I had my testosterone checked and it was around > 500. How can I be having all these symptoms non-stop? > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 I took the thyroid and adrenal test already. Thyroid was normal.Adrenals almost normal but producing a slightly elevated amounted of cortisol, which i am taking a natural product to reduce. If I have an elevated estrogen level,you are saying it would be the reason my testosterone test says 500 but am still having the low testosterone symptoms? So can I go to a normal doctor and tell him I am experiencing hot flashes and energy issues,etc? Do you think he will do the estrogen test? > > > From: Jim <jim122676@...> > > Subject: New to forum > > > > Date: Tuesday, June 29, 2010, 12:53 PM > > Hi all, Glad to see you here. > > I had a surgery inflicted on my testicles about a year ago > > and > > have had very low energy mentally and physically as well as > > exhaustion hot sensations in my body,dificulty > > concentrating,memory and diminished sexual desire ever > > since.Does this sound like low testosterone? Im 33 and > > before hand i had very high energy,been experiencing them > > for about a year.I find living with these symptoms to be > > very hard. I had my testosterone checked and it was around > > 500. How can I be having all these symptoms non-stop? > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 Was it a vasectomy you had? I only ask because I read this can cause problems with testsosterone levels > > Hi all, Glad to see you here. > I had a surgery inflicted on my testicles about a year ago and > have had very low energy mentally and physically as well as exhaustion hot sensations in my body,dificulty concentrating,memory and diminished sexual desire ever since.Does this sound like low testosterone? Im 33 and before hand i had very high energy,been experiencing them for about a year.I find living with these symptoms to be very hard. I had my testosterone checked and it was around 500. How can I be having all these symptoms non-stop? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 Yes,it was a vasectomy. Worst mistake I ever made and would never recommend it to anyone. > > > > Hi all, Glad to see you here. > > I had a surgery inflicted on my testicles about a year ago and > > have had very low energy mentally and physically as well as exhaustion hot sensations in my body,dificulty concentrating,memory and diminished sexual desire ever since.Does this sound like low testosterone? Im 33 and before hand i had very high energy,been experiencing them for about a year.I find living with these symptoms to be very hard. I had my testosterone checked and it was around 500. How can I be having all these symptoms non-stop? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 Dr Carruthers talks about it in this book, which I read recently http://www.amazon.com/Testosterone-Revolution-Rediscover-Overcome-Menopause/dp/0\ 007122756/ref=sr_1_1?ie=UTF8 & s=books & qid=1277836960 & sr=8-1 i hope you can get it all sorted out and feel better soon > > > > > > Hi all, Glad to see you here. > > > I had a surgery inflicted on my testicles about a year ago and > > > have had very low energy mentally and physically as well as exhaustion hot sensations in my body,dificulty concentrating,memory and diminished sexual desire ever since.Does this sound like low testosterone? Im 33 and before hand i had very high energy,been experiencing them for about a year.I find living with these symptoms to be very hard. I had my testosterone checked and it was around 500. How can I be having all these symptoms non-stop? > > > > > > Quote Link to comment Share on other sites More sharing options...
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