Help

[Guest guest]

has always been mainstreamed as well for school work. Though I wish she

would get extra time for things since she isn't the quickest. I remember back

in 1st grade. She was the 24th out of 24 to be done at all times and it always

made the teacher mad. That was a long time a go even before we knew there was

an actual dx.

[Guest guest]

sue its best to write about your child and ask for comments. also you

can search the archives for areas of interest. r u in the uk?

> hi im sue and i have just joined i find out that my 6 yr old son

has

> austim about a yr ago and trying to find out as much info as

> possible i have been emailing mandi from poole and im sure you know

> of her so any info anyone can give me the better,

>

>

> regards

>

> sue

[Guest guest]

Hi Sue,

You might be interested in joining the autism treatment also for

LOTS of info as to how to properly detox and recover your child.

R

[Guest guest]

> Hi Sue,

> You might be interested in joining the autism-

mercury also for LOTS of info as to how to properly

detox and recover your child.

> R

>

> thanks i will have a look

regards

sue

[Guest guest]

No actual experience but if it were my child I would probably stop the enzymes

and see if he still does it. If he stops then you know but if he continues it

may be just how he is feeling about something at school. How are his bowels?

Does he get irritable bowel symdrome? Is he stressed? Maybe he is under

pressure? Has anything upset him recently eg pet dying, friend moving away etc

Some kids feel differently at school then at home.

Then after a break of enzymes try them again and see if the same thing happens?

Ask him how he feels when he lies his head down at school. Things are changing

for us all the time.

Re: -- whey question

>

> Just our story on whey protein powders. I took Ian to a DAN!

> naturopath last year for basic profile testing. The only issue he

> had was likely related to low protein intake (unstable blood sugars

> and some low normal amino acids). At the time, I found Ian's moods

> to be quite unstable. He would 'crash' at about 10 am and be very

> unpleasant to handle.

>

> With the addition of whey protein powder to his rice milk, Ian's

> blood sugar levels were more consitent and his mood stabalized

> greatly. Perhaps that is what you are seeing in your child? We

> also used a drop of chromium a day.

>

> A thought. We use Jay Robb's whey protein powder (US brand).

> Vanilla flavored. I now have Ian on cow's milk again, but we still

> use the powder in the morning and evening drink. I no longer use

> the chromium.

>

> Pam

>

>

> > , the Immunocal came today. n came home from school a

> mess --

> > crying every 2 minutes, very fragile, clumsy. I gave him some

> yogurt with the

> > immunocal stirred into it. I don't want to draw conclusions based

> on only this one

> > time, but there's been an immediate Happy Child Effect -- he's

> *very calm,

> > focused, cheerful, social. Could be the Friday Effect too I guess.

> >

> > Anyway my question is, can I give it once a day or do you think

> it's

> > important to split the dose? Won't be that hard once school's out

> but we've got

> > another 3 weeks to go.

> >

> > Nell

> >

> >

> >

[Guest guest]

My put his head on his desk when he was anxious.

S.

----Original Message-----

From: Edith Brickman [mailto:bedith@...]

Sent: Sunday, May 09, 2004 12:09 PM

Subject: Help

I have had my grandson (8) on Probiotics, Prime Zyme and Peptizyde for

about

two months. Built up slowly. I had to stop the Peptizye because of

constant purping. I received a call from his teacher telling me that at

first he was great, but as of late he has no focus in school and just puts

his head on the desk. He did not do this before the enzymes. I have

withdraw them for now. We will wait to see if his focus continues to

improve. Has anyone in the group experimented anything like this. Any

help

would be very appreciated.

Edith Brickman

Re: -- whey question

>

> Just our story on whey protein powders. I took Ian to a DAN!

> naturopath last year for basic profile testing. The only issue he

> had was likely related to low protein intake (unstable blood sugars

> and some low normal amino acids). At the time, I found Ian's moods

> to be quite unstable. He would 'crash' at about 10 am and be very

> unpleasant to handle.

>

> With the addition of whey protein powder to his rice milk, Ian's

> blood sugar levels were more consitent and his mood stabalized

> greatly. Perhaps that is what you are seeing in your child? We

> also used a drop of chromium a day.

>

> A thought. We use Jay Robb's whey protein powder (US brand).

> Vanilla flavored. I now have Ian on cow's milk again, but we still

> use the powder in the morning and evening drink. I no longer use

> the chromium.

>

> Pam

>

>

> > , the Immunocal came today. n came home from school a

> mess --

> > crying every 2 minutes, very fragile, clumsy. I gave him some

> yogurt with the

> > immunocal stirred into it. I don't want to draw conclusions based

> on only this one

> > time, but there's been an immediate Happy Child Effect -- he's

> *very calm,

> > focused, cheerful, social. Could be the Friday Effect too I guess.

> >

> > Anyway my question is, can I give it once a day or do you think

> it's

> > important to split the dose? Won't be that hard once school's out

> but we've got

> > another 3 weeks to go.

> >

> > Nell

> >

> >

> >

[Guest guest]

> I have had my grandson (8) on Probiotics, Prime Zyme and Peptizyde

for about

> two months. Built up slowly. I had to stop the Peptizye because of

> constant purping.

First, did you continue the probiotic after you stopped the enzymes?

Probiotic can cause burping.

Also, check the enzymes you have. Do they contain papain/bromelain?

You might want to try the AFP Peptizyde and the SCD Zyme Prime, which

don't contain those ingredients. Some kids don't tolerate those.

It also might be that he needs No-Fenol, to address other issues that

are not addressed by the other two enzymes.

Dana

[Guest guest]

> My problem is i dont feel the food he is taking in is being broken

> down in other for him to thrive on this diet. His weight has more or

> less stayed the same but recent couple months he is losing, in all 4

> pounds.

Try giving enzymes, they can help with better absorption of the

nutrients in the foods.

Also try increasing his fat intake.

Dana

[Guest guest]

Have you tried melatonin to help with sleep? We have used this with my daughter

for years and it has made a huge difference.

Our doctor is fine with its use. In fact, he says he likes the fact that it also

has antioxidant capabilities. We do use a product that has only melatonin in it

- no magnesium or B vitamins. Some of the less expensive brands also have

dextrose as a filler.

As I said we have used this for years and it really helped get my daughter's

sleep patterns straightened out. She is so much better when she gets adequate

sleep, so we will keep using it. Also, our doctor has said we can use valerian

root as well if we need it. I have used it from time to time with no problem.

HELP

Okay, I started giving my kids GSE last Saturday. Today is the last

day that I am going to give it so to hopefully avoid any bacteria

problems. Okay here is where we stand. For my son the humming has

stopped and all is good with him. But for my daughter, she is still

getting up at about 3AM and either she craws in bed with someone

(either me or my son) and goes back to sleep. This morning when my

husband got home from work, he found her up, watching TV and eating

marshmallows (she ate half a bag). I am almost certain that she had

yeast issues, but she was never tested. All I know is that if it

doesn't stop waking at 3AM, I am either going to turn the motion

detector on (and run the risk of waking the entire building when she

gets up) or get a door alarm from First Alert (found them at Walmert

yesterday 4 for $10).

As for the side effects of the GSE that she is experiencing, she is

coughing and having a runny nose. My son has an upset stomach and

sore throat for most of the week.

Any suggestions on what else to try before I ask the Psychatrist to

put her on something?

[Guest guest]

--I had several long battles with yeast with my daughter.

Diflucan worked once, and then didn't work the next time. There are

several different strains, and GSE may not work on the strain your

daughter has at this time. Of course, the marshmallows are really

going to give the yeast a boost for now. I finally tried a product

called Candex, and it is an enzyme product that eats the cell wall of

the yeast. So, in theory it should not matter what strain it is. I've

treated my daughter with it two different times now, and each time it

has cleared upi her yeast symptoms. She is sleeping through the night

now, and she went about a year waking up every night like your

daughter. Maybe it would help your daughter, and if not, there are no

side effects to worry about.--Tod

> Okay, I started giving my kids GSE last Saturday. Today is the last

> day that I am going to give it so to hopefully avoid any bacteria

> problems. Okay here is where we stand. For my son the humming has

> stopped and all is good with him. But for my daughter, she is still

> getting up at about 3AM and either she craws in bed with someone

> (either me or my son) and goes back to sleep. This morning when my

> husband got home from work, he found her up, watching TV and eating

> marshmallows (she ate half a bag). I am almost certain that she had

> yeast issues, but she was never tested. All I know is that if it

> doesn't stop waking at 3AM, I am either going to turn the motion

> detector on (and run the risk of waking the entire building when she

> gets up) or get a door alarm from First Alert (found them at Walmert

> yesterday 4 for $10).

>

> As for the side effects of the GSE that she is experiencing, she is

> coughing and having a runny nose. My son has an upset stomach and

> sore throat for most of the week.

>

> Any suggestions on what else to try before I ask the Psychatrist to

> put her on something?

>

>

[Guest guest]

I might try the Candex, is that something I might be able to find at the local

healthfood store? If not I am thinking about trying Exzymeca's Candiase.

Tod <tod_s_2000@...> wrote:

--I had several long battles with yeast with my daughter.

Diflucan worked once, and then didn't work the next time. There are

several different strains, and GSE may not work on the strain your

daughter has at this time. Of course, the marshmallows are really

going to give the yeast a boost for now. I finally tried a product

called Candex, and it is an enzyme product that eats the cell wall of

the yeast. So, in theory it should not matter what strain it is. I've

treated my daughter with it two different times now, and each time it

has cleared upi her yeast symptoms. She is sleeping through the night

now, and she went about a year waking up every night like your

daughter. Maybe it would help your daughter, and if not, there are no

side effects to worry about.--Tod

> Okay, I started giving my kids GSE last Saturday. Today is the last

> day that I am going to give it so to hopefully avoid any bacteria

> problems. Okay here is where we stand. For my son the humming has

> stopped and all is good with him. But for my daughter, she is still

> getting up at about 3AM and either she craws in bed with someone

> (either me or my son) and goes back to sleep. This morning when my

> husband got home from work, he found her up, watching TV and eating

> marshmallows (she ate half a bag). I am almost certain that she had

> yeast issues, but she was never tested. All I know is that if it

> doesn't stop waking at 3AM, I am either going to turn the motion

> detector on (and run the risk of waking the entire building when she

> gets up) or get a door alarm from First Alert (found them at Walmert

> yesterday 4 for $10).

>

> As for the side effects of the GSE that she is experiencing, she is

> coughing and having a runny nose. My son has an upset stomach and

> sore throat for most of the week.

>

> Any suggestions on what else to try before I ask the Psychatrist to

> put her on something?

>

>

[Guest guest]

My local health food store has it, as well as my local Vitamin Shoppe.

The two products are very similar. Incidently, after reading the other

listmates response about Melatonin, my daughter always went to sleep

fine as well, but always woke up in the night.

> > Okay, I started giving my kids GSE last Saturday. Today is the last

> > day that I am going to give it so to hopefully avoid any bacteria

> > problems. Okay here is where we stand. For my son the humming has

> > stopped and all is good with him. But for my daughter, she is still

> > getting up at about 3AM and either she craws in bed with someone

> > (either me or my son) and goes back to sleep. This morning when my

> > husband got home from work, he found her up, watching TV and eating

> > marshmallows (she ate half a bag). I am almost certain that she had

> > yeast issues, but she was never tested. All I know is that if it

> > doesn't stop waking at 3AM, I am either going to turn the motion

> > detector on (and run the risk of waking the entire building when she

> > gets up) or get a door alarm from First Alert (found them at Walmert

> > yesterday 4 for $10).

> >

> > As for the side effects of the GSE that she is experiencing, she is

> > coughing and having a runny nose. My son has an upset stomach and

> > sore throat for most of the week.

> >

> > Any suggestions on what else to try before I ask the Psychatrist to

> > put her on something?

> >

> >

>

>

>

[Guest guest]

> Okay, I started giving my kids GSE last Saturday. Today is the last

> day that I am going to give it so to hopefully avoid any bacteria

> problems. Okay here is where we stand. For my son the humming has

> stopped and all is good with him. But for my daughter, she is still

> getting up at about 3AM

GSE does not address all strains of yeast. Try oil of oregano or

garlic or uva ursi or caprylic acid or one of the other anti-yeast

remedies.

>>and either she craws in bed with someone

> (either me or my son) and goes back to sleep.

Here is what I did at first, before I figured out why my son woke up

in the middle of the night. Maybe you will find something here you

can use

http://www.danasview.net/sleep.htm

> As for the side effects of the GSE that she is experiencing, she is

> coughing and having a runny nose. My son has an upset stomach and

> sore throat for most of the week.

For my kids, those were the only " die off " symptoms they had. Yeast

leaving thru the nose and throat.

Dana

[Guest guest]

They are not prescribed - you just buy some! VERY SAFE - 80 years of useage

of behind them, no 'overdose' ever found!

_www.houstonni.com_ (http://www.houstonni.com) for the enzymes and

_www.enzymestuff.com_ (http://www.enzymestuff.com) for heaps of info

HTH

Mandi in UK

hello , can any one explain how enzymes are prescribed, who prescribes , the

supplements etc .... i need more information .thanx

[Guest guest]

Welcome Cheryl,

I am sending you a private email, Tawny

>

>

> I HAVE BEEN DIAGNOSED WITH SEVERE RA I AM A WOMEN OF 49 YEARS I

WENT

> YESTERDAY TO HAVE A DR APPOINTMENT NOW THEY SAY THEY CANNOT ACCEPT

> MY INSURANCE AND I HAVE TO PAY UP FRONT THEY WANT 300 DOLLARS FIRST

> VISIT THEN ONCE A MONTH I PAY 1001 DOLLARS A MONTH FOR INSURANCE I

> THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT IN THERE

NETWORK

> THEY WILL NOT ACCEPT IT SO I HAD TO LEAVE WITHOUT SEEING THE DR I

> LIVE IN CONSTANT [PAIN AND WHAT HURTS ME THE MOST MY SON IS SERVING

> HIS SECOND TOUR OF DUTY IN IRAQ AND HIS MOTHER CANNOT EVEN GET

> MEDICAL ATTENTION FOR THIS I AM VERY UPSET CAN ANY OPNE GIVE ME

SOME

> IMFO ON WHAT I CAN DO I NEED TO BE UNDER DRS CARE BUT CANNOT AFFORD

> THOSE PRICES WHAT DO YOU DO

[Guest guest]

Hi, sorry you are having a lot of trouble. You have to look for another

Doctor. They are out there. You just happened to find a Jerk's office, not a

Doctor's office.

Where do you live? I can't believe any place in this country would treat a

person the way they treated you.

I hope you live near me, then I could give you my Doctor's number, but that

is probably not possible. You probably live far from me. I live in New Jersey.

There is all kinds of insurance. Let me know where you live and I will help

you find some.

Sincerely, Colletti

Anjillah@...

[Guest guest]

I will also write you privately. You are in all of our prayers and many of

us are in the same position. I finally got Medicare after years of suffering

but I could not and still can't afford many of my meds. There is help for your

meds depending on your income.....

This is a great group however and you have come to the right place!

Peace to you and our prayers are with your son !

Jacquie

[Guest guest]

I have RA as well I'm 36 and was diagnosed at the age of 14 and have been

getting medical and SSI benifits and all my medications are covered by it

including Drs. visits. Good luck

tdianaok <tdianaok@...> wrote:

Welcome Cheryl,

I am sending you a private email, Tawny

>

>

> I HAVE BEEN DIAGNOSED WITH SEVERE RA I AM A WOMEN OF 49 YEARS I

WENT

> YESTERDAY TO HAVE A DR APPOINTMENT NOW THEY SAY THEY CANNOT ACCEPT

> MY INSURANCE AND I HAVE TO PAY UP FRONT THEY WANT 300 DOLLARS FIRST

> VISIT THEN ONCE A MONTH I PAY 1001 DOLLARS A MONTH FOR INSURANCE I

> THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT IN THERE

NETWORK

> THEY WILL NOT ACCEPT IT SO I HAD TO LEAVE WITHOUT SEEING THE DR I

> LIVE IN CONSTANT [PAIN AND WHAT HURTS ME THE MOST MY SON IS SERVING

> HIS SECOND TOUR OF DUTY IN IRAQ AND HIS MOTHER CANNOT EVEN GET

> MEDICAL ATTENTION FOR THIS I AM VERY UPSET CAN ANY OPNE GIVE ME

SOME

> IMFO ON WHAT I CAN DO I NEED TO BE UNDER DRS CARE BUT CANNOT AFFORD

> THOSE PRICES WHAT DO YOU DO

[Guest guest]

Welcome to the group.

I was saddened by your post, and wanted to let you know that I am

wishing you the best. There are many wonderful people who post here

and share information and resources. I am certain that with their help,

you will be on your way to getting the help and assistance you so

desperately need.

Nobody should have to suffer in pain without medical care the way you

are.

>

>

> I HAVE BEEN DIAGNOSED WITH SEVERE RA I AM A WOMEN OF

49 YEARS I WENT

> YESTERDAY TO HAVE A DR APPOINTMENT NOW THEY SAY

THEY CANNOT ACCEPT

> MY INSURANCE AND I HAVE TO PAY UP FRONT THEY WANT

300 DOLLARS FIRST

> VISIT THEN ONCE A MONTH I PAY 1001 DOLLARS A MONTH

FOR INSURANCE I

> THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT

IN THERE NETWORK

> THEY WILL NOT ACCEPT IT SO I HAD TO LEAVE WITHOUT

SEEING THE DR I

> LIVE IN CONSTANT [PAIN AND WHAT HURTS ME THE MOST MY

SON IS SERVING

> HIS SECOND TOUR OF DUTY IN IRAQ AND HIS MOTHER

CANNOT EVEN GET

> MEDICAL ATTENTION FOR THIS I AM VERY UPSET CAN ANY

OPNE GIVE ME SOME

> IMFO ON WHAT I CAN DO I NEED TO BE UNDER DRS CARE BUT

CANNOT AFFORD

> THOSE PRICES WHAT DO YOU DO

[Guest guest]

Isn't our medical system frustrating? Can you call your insurance company,

or visit their web site, to find out if there is a rheumetologist that is in

your network? If there isn't a rheumy in your network, maybe you can call

the insurance company and appeal? If your insurance is through an employer,

maybe they have someone on staff who can help you with this? Good luck!

> > THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT

> IN THERE NETWORK

> > THEY WILL NOT ACCEPT IT

[Guest guest]

I agree- I would see if I could appeal the decision immediately. Check with your

local department of social services/public health. Michigan has a state

disability/medical program. Maybe your state does as well. Are you medicaid

eligible?

-------------- Original message ----------------------

From: " ~B " <wgbren@...>

>

>

> Isn't our medical system frustrating? Can you call your insurance company,

> or visit their web site, to find out if there is a rheumetologist that is in

> your network? If there isn't a rheumy in your network, maybe you can call

> the insurance company and appeal? If your insurance is through an employer,

> maybe they have someone on staff who can help you with this? Good luck!

>

>

> > > THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT

> > IN THERE NETWORK

> > > THEY WILL NOT ACCEPT IT

>

>

>

>

>

>

>

>

>

[Guest guest]

I'm sorry you were treated this way. Doctors usually let you know

before you make the appointment if your insurance isn't accepted

there. They really messed up. Contact your insurance company and let

them tell you who is a participating physician.

I hope you find a good one.

a

On Thu, 03 Mar 2005 21:01:18 -0000, cs <cheryl011020012000@...> wrote:

>

>

> I HAVE BEEN DIAGNOSED WITH SEVERE RA I AM A WOMEN OF 49 YEARS I WENT

> YESTERDAY TO HAVE A DR APPOINTMENT NOW THEY SAY THEY CANNOT ACCEPT

> MY INSURANCE AND I HAVE TO PAY UP FRONT THEY WANT 300 DOLLARS FIRST

> VISIT THEN ONCE A MONTH I PAY 1001 DOLLARS A MONTH FOR INSURANCE I

> THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT IN THERE NETWORK

> THEY WILL NOT ACCEPT IT SO I HAD TO LEAVE WITHOUT SEEING THE DR I

> LIVE IN CONSTANT [PAIN AND WHAT HURTS ME THE MOST MY SON IS SERVING

> HIS SECOND TOUR OF DUTY IN IRAQ AND HIS MOTHER CANNOT EVEN GET

> MEDICAL ATTENTION FOR THIS I AM VERY UPSET CAN ANY OPNE GIVE ME SOME

> IMFO ON WHAT I CAN DO I NEED TO BE UNDER DRS CARE BUT CANNOT AFFORD

> THOSE PRICES WHAT DO YOU DO

>

>

>

>

>

>

>

>

>

[Guest guest]

I agree- I would see if I could appeal the decision immediately. Check with your

local department of social services/public health. Michigan has a state

disability/medical program. Maybe your state does as well. Are you medicaid

eligible?

-------------- Original message ----------------------

From: " ~B "

>

>

> Isn't our medical system frustrating? Can you call your insurance company,

> or visit their web site, to find out if there is a rheumetologist that is in

> your network? If there isn't a rheumy in your network, maybe you can call

> the insurance company and appeal? If your insurance is through an employer,

> maybe they have someone on staff who can help you with this? Good luck!

>

>

> > > THOUGHT WOULD HELP ME BUT NOW A DAYS IF YOU ARE NOT

> > IN THERE NETWORK

> > > THEY WILL NOT ACCEPT IT

>

>

>

>

>

>

>

>

>

[Guest guest]

> We started the GFCF diet almost 2 weeks ago. This problem really

> started 4 weeks ago when he started school which he loves but really

> worsened after being on the diet. We also took him off soy milk and

> started vanilla rice dream and he has been painfully constipated.

We use mineral oil for that. Is there an adjustment/purging phase? If

> so, any tips and usually how long does it last?

>

Rice Dream (can be very constipating) is RICE milk , however, it does

contain some gluten in it. We had to switch from that, it caused us

problems. We ordered Vance's Darifree. It comes powered, you just add

water, tastes great on cereal and you can bake & cook with it too.

I am not much help, everything I know, I have learned from here or

's book. I believe not sleeping is a phenol or yeast issue. Have

you went over all the things you are giving him now that he is on the

GFCF diet....there very well may be some offender in there you haven't

tied to it...JMO tho

[Guest guest]

> Nicolas(3 years old HFA dx in March) started preschool 4 weeks ago.

> Prior to that he was a great afternoon napper (2-3 hours most days)

> And a very good sleeper all around. . Now, I still put him down and

> leave him in there 1 hour+ but he doesn't go to sleep (he plays with

> his toys) so I get him up.

Check what happens at preschool. Maybe he is eating foods there

without enzymes, or his teacher wears strong perfume, or something

similar, which is affecting his sleep.

> We started the GFCF diet almost 2 weeks ago. This problem really

> started 4 weeks ago when he started school which he loves but really

> worsened after being on the diet. We also took him off soy milk and

> started vanilla rice dream and he has been painfully constipated.

Rice is constipating. Rice Dream rice milk substitute is also not gf.

Other constipation ideas

http://www.danasview.net/constip.htm

Dana