Help

November 26, 2005

Amber,

Hang in there for a few more months. In some cases gluten takes up to six

months to leave the body.

About the removal of all these other foods, Has it been based on testing or

observed reaction?

Have you checked into Specific Carbohydrate Diet?

http://www.pecanbread.com/

I wish I had more insight for you.

Best,

Haleh

--- Amber Eisler <eislerfamily@...> wrote:

> I put my child on the gfcf yeast and corn free diet about 2 and a half

> months ago, and didn't see any difference. I started Houston peptizyde,

> zyme prime and no-fenol about 2 months, didn't see any difference. I slowly

> removed other foods, peanuts, sugar, honey, egg yolk, chocolate with

> nothing. I added some supplements, calcium powder, zinc, B-6, bufferened

> magnesium glycinate, taurine, pro-complex multi-vitamin, cod liver oil-

> nothing. He sleeps just as crappy, cheeks get just as pink, and poop is

> just as mushy, and no change in behavior. Today is day number 5 on an

> elimination diet, chicken, egg white, potatoes, and buckwheat flour, also a

> little canola oil and unrefined sea salt that I baked to kill the mold. And

> his cheeks still get pink when he eats, he sleeps about 2-3 hours at night,

> and his poop is mushy. I don't know what else to do. Am I still feeding him

> something that he could be reacting to?

>

> On 11/26/05, haleh niazmand <halniaz@...> wrote:

> >

> > While enzymes help our children, they do not take care of all

> > intolerances.

> > It is a good idea to keep a food journal documenting what he eats and how

> > he

> > reacts/behaves. That way you know better what may be a problem food. Also

> > anything you see in his mushy poop that may be undigested is another sign

> > for

> > identifying problem foods.

> > Staying away from all artificial colors, flavors, MSG, chemical adetives,

> > processed food helped my son tremendously.

> > This is a long road and a rigorous process but the rewards of seeing our

> > children happy and recovering is more than worth it.

> >

> > Is you child on GFCF diet. The diet has been so far the single most

> > helpful

> > thing for my son. Some people can do enzymes without diet, some can't. My

> > son

> > needs the diet and the enzymes.

> > Best,

> > Haleh

> >

> > --- kennetheriklucy <eislerfamily@...> wrote:

> >

> > > If you stop feeding your child any food that contain phenols, and are

> > > giving hin Houston no-fenol, and after he eats, his cheeks still turn

> > > pink, why would that be? Could it be yeast that turns his cheeks

> > > pink? Any suggestions for helping him sleep better at night? I give

> > > him melatonin, but it only lasts about an hour and a half. He sleeps

> > > about 3 or 4 hours a night. I also started giving him kirkman zinc,

> > > one in the morning, and one at bedtime, and his poop is still just as

> > > mushy.

> > >

> >

November 26, 2005

I removed gluten and casien about 2 and a half months ago. Then, just a few

high allergy foods like chocolate, apples, sugar. He still had ( and still

has ) red cheeks, mushy poop, and sleeps horribly. I haven't had any tests

done, I just got desperate and decided to take out everything. That doesn't

seem to be working. I am going to call my Dr. on Monday morning and make an

appointment. I'll ask him for some tests. In the mean time do you think I

should continue with this drastic diet? I intend to stay gfcf, but what

about everything else? Any advice?

On 11/26/05, haleh niazmand <halniaz@...> wrote:

>

> Amber,

> Hang in there for a few more months. In some cases gluten takes up to six

> months to leave the body.

> About the removal of all these other foods, Has it been based on testing

> or

> observed reaction?

> Have you checked into Specific Carbohydrate Diet?

> http://www.pecanbread.com/

> I wish I had more insight for you.

> Best,

> Haleh

>

> --- Amber Eisler <eislerfamily@...> wrote:

>

> > I put my child on the gfcf yeast and corn free diet about 2 and a half

> > months ago, and didn't see any difference. I started Houston peptizyde,

> > zyme prime and no-fenol about 2 months, didn't see any difference. I

> slowly

> > removed other foods, peanuts, sugar, honey, egg yolk, chocolate with

> > nothing. I added some supplements, calcium powder, zinc, B-6,

> bufferened

> > magnesium glycinate, taurine, pro-complex multi-vitamin, cod liver oil-

> > nothing. He sleeps just as crappy, cheeks get just as pink, and poop is

> > just as mushy, and no change in behavior. Today is day number 5 on an

> > elimination diet, chicken, egg white, potatoes, and buckwheat flour,

> also a

> > little canola oil and unrefined sea salt that I baked to kill the mold.

> And

> > his cheeks still get pink when he eats, he sleeps about 2-3 hours at

> night,

> > and his poop is mushy. I don't know what else to do. Am I still feeding

> him

> > something that he could be reacting to?

> >

> > On 11/26/05, haleh niazmand <halniaz@...> wrote:

> > >

> > > While enzymes help our children, they do not take care of all

> > > intolerances.

> > > It is a good idea to keep a food journal documenting what he eats and

> how

> > > he

> > > reacts/behaves. That way you know better what may be a problem food.

> Also

> > > anything you see in his mushy poop that may be undigested is another

> sign

> > > for

> > > identifying problem foods.

> > > Staying away from all artificial colors, flavors, MSG, chemical

> adetives,

> > > processed food helped my son tremendously.

> > > This is a long road and a rigorous process but the rewards of seeing

> our

> > > children happy and recovering is more than worth it.

> > >

> > > Is you child on GFCF diet. The diet has been so far the single most

> > > helpful

> > > thing for my son. Some people can do enzymes without diet, some can't.

> My

> > > son

> > > needs the diet and the enzymes.

> > > Best,

> > > Haleh

> > >

> > > --- kennetheriklucy <eislerfamily@...> wrote:

> > >

> > > > If you stop feeding your child any food that contain phenols, and

> are

> > > > giving hin Houston no-fenol, and after he eats, his cheeks still

> turn

> > > > pink, why would that be? Could it be yeast that turns his cheeks

> > > > pink? Any suggestions for helping him sleep better at night? I

> give

> > > > him melatonin, but it only lasts about an hour and a half. He sleeps

> > > > about 3 or 4 hours a night. I also started giving him kirkman zinc,

> > > > one in the morning, and one at bedtime, and his poop is still just

> as

> > > > mushy.

> > > >

> > >

November 27, 2005

>

> If you stop feeding your child any food that contain phenols, and are

> giving hin Houston no-fenol, and after he eats, his cheeks still turn

> pink, why would that be? Could it be yeast that turns his cheeks

> pink?

Can be yeast overgrowth or die off, can be other foods he does not

tolerate, can be nutritional deficiencies, or supplement intolerance,

or environmental issues.

What does he eat?

>>Any suggestions for helping him sleep better at night?

Try giving him some B vitamins, maybe 200% of USRDA. Give them in the

morning, see if that helps his sleep.

Also, probiotics can help.

Dana

November 27, 2005

> elimination diet, chicken, egg white, potatoes, and buckwheat flour,

also a

> little canola oil and unrefined sea salt that I baked to kill the

mold. And

> his cheeks still get pink when he eats, he sleeps about 2-3 hours at

night,

> and his poop is mushy. I don't know what else to do. Am I still

feeding him

> something that he could be reacting to?

It is possible. My son did not tolerate any fats or oils until I

added mito cocktail and amino acids.

It might be something other than the food tho. Maybe supplements, or

lack of supplements. Yeast overgrowth, or bad bacteria overgrowth.

Do you or his teacher wear perfume?

Does he take a nap?

Dana

November 27, 2005

I've never heard of USRDA, and he doesn't take probiotics yet.

On 11/27/05, danasview <danasview@...> wrote:

>

> >

> > If you stop feeding your child any food that contain phenols, and are

> > giving hin Houston no-fenol, and after he eats, his cheeks still turn

> > pink, why would that be? Could it be yeast that turns his cheeks

> > pink?

>

> Can be yeast overgrowth or die off, can be other foods he does not

> tolerate, can be nutritional deficiencies, or supplement intolerance,

> or environmental issues.

>

> What does he eat?

>

> >>Any suggestions for helping him sleep better at night?

>

> Try giving him some B vitamins, maybe 200% of USRDA. Give them in the

> morning, see if that helps his sleep.

>

> Also, probiotics can help.

>

> Dana

>

November 27, 2005

No, nobody wears perfume. He takes in the morning ( all kirkman )

1 multiple mineral complex pro-support, 1 B-complex, 1 buffered magnesium

glycinate, 1 zinc, 1 taurine and cod liver oil. He also gets a quarter tsp.

each of Houston peptizyde, and zyme prime and an eighth of a tsp of

no-fenol. Also for four days, he gets 2 drops of gse, and for the next four

1 drop of oregano oil. At lunch, he gets all three enzymes and a quarter

tsp. of kirkman powdered calcium. At supper, he gets all three enzymes, 1

buffered magnesiun glycinate, and 1 taurine. At bedtime, he gets 1

melatonin, and 1 zinc. I also rub just a little magnesium sulfate cream (

kirkman ) on his back in the morning and before bed. He doesn't take a

nap. Sometimes, he tries, but if he naps in the day even for a half an

hour, he won't sleep at night.

On 11/27/05, danasview <danasview@...> wrote:

>

> > elimination diet, chicken, egg white, potatoes, and buckwheat flour,

> also a

> > little canola oil and unrefined sea salt that I baked to kill the

> mold. And

> > his cheeks still get pink when he eats, he sleeps about 2-3 hours at

> night,

> > and his poop is mushy. I don't know what else to do. Am I still

> feeding him

> > something that he could be reacting to?

>

> It is possible. My son did not tolerate any fats or oils until I

> added mito cocktail and amino acids.

>

> It might be something other than the food tho. Maybe supplements, or

> lack of supplements. Yeast overgrowth, or bad bacteria overgrowth.

>

> Do you or his teacher wear perfume?

>

> Does he take a nap?

>

> Dana

>

March 11, 2006

No. Find an old fashioned pediatric dentist.

He will use a restraint device and a local

anesthetic. Just make sure he does not put

mercury into the child's mouth. My impression

is that most pediatric dentists use composite

now and not mercury fillings.

Many states have an online system that will check

for ethical violations and will state when

the dentist was first licensed. In Georgia we

use a pediatric dentist who has been practicing,

without problems, since the 60s. We found him

after we heard the same story you relate. Our

old guy is much more conservative than the flashy

new guy who hospitalizes even typical kids for

caps and such. The new dentists are whimps!

They also get paid a whole lot more for a

hospitalization than an office procedure.

--- shygirl75158 <horses@...> wrote:

> Had to take our son to the dentist for a toothache

> the other day.

> The dentist says that due to his autism, we will

> have to employ an

> anesthesiologist and put our son under in order to

> work on his

> teeth. He said he will need a pulpectomy and then

> he will cap the

> tooth with stainless steel. He has some other small

> cavities and he

> will fill those and bond the back teeth. These are

> all baby teeth,

> but the dentist said he will not lose these for a

> while.

>

> Our son has come such a long way. I fear so many

> things about the

> anesthesia including regression or worse. This

> procedure is going

> to be VERY expensive, and that is blowing my mind.

>

> The dentist is a mercury free, pediatric dentist.

> The procedure

> will be done at his office. How safe is any of this

> for a child who

> is mercury toxic with autism? I couldn't bear to

> see our son

> regress. I don't wnat to do anything that will

> negate all our hard

> work.

>

> What other option is there for this bad tooth? How

> bad would it be

> jsut to pull it and for him to have a gap there for

> a while until

> his permanent tooth came in?

>

> Is a stainless steel cap okay for a child who has

> heavy metal issues?

>

> Please reply.

>

> Thanks,

>

> Haven

> horses@...

>

__________________________________________________

March 11, 2006

Dentists who accept medicare typically still use mercury fillings and insist on

fluoride. The restraint device is called a papoose and is basically a velcro

body wrap and can freak some kids out. I think dentists in cities and on the

coasts are more likely than others to use composite and that mercury-free

dentists are still the exception.

S S

<tt>

No. Find an old fashioned pediatric dentist.

He will use a restraint device and a local

anesthetic. Just make sure he does not put

mercury into the child's mouth. My impression

is that most pediatric dentists use composite

now and not mercury fillings.

Many states have an online system that will check

for ethical violations and will state when

the dentist was first licensed. In Georgia we

use a pediatric dentist who has been practicing,

without problems, since the 60s. We found him

after we heard the same story you relate. Our

old guy is much more conservative than the flashy

new guy who hospitalizes even typical kids for

caps and such. The new dentists are whimps!

They also get paid a whole lot more for a

hospitalization than an office procedure.

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

March 12, 2006

> What other option is there for this bad tooth? How bad would it be

> jsut to pull it and for him to have a gap there for a while until

> his permanent tooth came in?

This is what I would do, altho it would depend on where the tooth was

and how long it will be before the permanent tooth comes in.

Dana

June 6, 2006

What do you need help with? My son wasn't diagnosed until he was 11, so you are

lucky in that regard... you need to have her evaluated by a psychiatrist or

neurologist... get an official diagnosis, you can get a referral from your

doctor, then go from there... Asperger's is complicated but she can still have a

very fulfilling life, people say Bill Gates has Asperger's, that Einstien had

Asperger's... you just have to relate to her differently than you would a

" normal " child. Let me know if I can help in any way:) Tami

( ) Help

my daughter is 5 yrs old at her IEp they stated that they feel that she

may have aspergers. I don't know anything about this can someone help

me.

thanks

michelle

June 6, 2006

Tami

Thank you for getting back to me. We live in California and she has been

refered this agency that specializes in this field. What kind of questions

should I be asking? My daughter is really hard to handle. how do you talk with

children that have aspergers?

how do you get them to do things or wear things? She sometimes acts if she is

biopolar. She can sit with you then all of the sudden she is hitting you. What

kind of things did your son do?

thanks for your help

Tami Ober <nyx@...> wrote:

What do you need help with? My son wasn't diagnosed until he was 11,

so you are lucky in that regard... you need to have her evaluated by a

psychiatrist or neurologist... get an official diagnosis, you can get a referral

from your doctor, then go from there... Asperger's is complicated but she can

still have a very fulfilling life, people say Bill Gates has Asperger's, that

Einstien had Asperger's... you just have to relate to her differently than you

would a " normal " child. Let me know if I can help in any way:) Tami

( ) Help

my daughter is 5 yrs old at her IEp they stated that they feel that she

may have aspergers. I don't know anything about this can someone help

me.

thanks

michelle

June 8, 2006

Well, when my son used to hit me, I would either hold him down, or put him in a

timeout chair. I would always say, " We don't hit Mommy! " Firmly, but not angry.

How do you talk to her? How verbal is she? Because I NEVER raise my voice, I

used to but that just made things worse. I tell hiim to do something once,

twice tops, if he says 5 more minutes, I will allow that, and if he doesn't do

it, becasue he is involved in a game or something, I just quietly turn it off,

and if he gets mad, I just say, when you do what I asked you to do, you can

continue playing... stick to your guns... but never get angry in front of her.

Leave the room if you have to. Start off with the positive, say like, " if you

put your clothes on without fighting, we will have time to read a story or have

a special treat " , always try to start off positive. It really does work, just

find out what she wants or likes to do, and use it to your advantage. Use lots

of praise... say " WOW, you did so well!! " when she does what you want her to

do. Always remember, today is a new day. Never bring up bad behavior from

yesterday, because that gives them the idea that you don't think they can

change, and they won't. They are smart. If you tell her, we are going to do

things differently so we can all get along, and be happy together, and let her

know you are the boss but you are a fair and kind boss... with your actions. My

son will do anything I ask him now, because he knows that the consequences are

fair and I wont get mad at him... I think part of his opposition was that he

knew I was mad and he was stressed out. Also, ALWAYS leave plenty of time

because they take longer than you think almost always, cause when we are late,

we get stressed, but they don't care. The agency, is it counseling? Just let

them know about her behavior and your observations and answer their questions

honestly... Remember, it's hard, but remember, it isn't them being bad, it's the

Asperger's and you just have to change the way you look at things... it will

make your life sooo much better and happier:) let me know if you need any more

advice, sorry I didn't write back sooner, was at work:( Take care!!!!!

( ) Help

my daughter is 5 yrs old at her IEp they stated that they feel that she

may have aspergers. I don't know anything about this can someone help

me.

thanks

michelle

June 8, 2006

Tami

Thank you for all the info.... I really starting to think maybe this isn't

what she has. I am so confussed because I want to know of some of the symptoms

that she would have. My daughter is very social. But she doesn't have friends

that she talks about or wants to see. People are telling me that aspergers are

normally not socail. So i am pretty confused. Is there a web-site that can

tell me this kinda of info. Because some of the things that you are talking

about i see some of those symptoms with her. please let me know.

Thank you

Tami Ober <nyx@...> wrote:

Well, when my son used to hit me, I would either hold him down, or put

him in a timeout chair. I would always say, " We don't hit Mommy! " Firmly, but

not angry. How do you talk to her? How verbal is she? Because I NEVER raise my

voice, I used to but that just made things worse. I tell hiim to do something

once, twice tops, if he says 5 more minutes, I will allow that, and if he

doesn't do it, becasue he is involved in a game or something, I just quietly

turn it off, and if he gets mad, I just say, when you do what I asked you to do,

you can continue playing... stick to your guns... but never get angry in front

of her. Leave the room if you have to. Start off with the positive, say like,

" if you put your clothes on without fighting, we will have time to read a story

or have a special treat " , always try to start off positive. It really does work,

just find out what she wants or likes to do, and use it to your advantage. Use

lots of praise... say " WOW, you did so

well!! " when she does what you want her to do. Always remember, today is a new

day. Never bring up bad behavior from yesterday, because that gives them the

idea that you don't think they can change, and they won't. They are smart. If

you tell her, we are going to do things differently so we can all get along, and

be happy together, and let her know you are the boss but you are a fair and kind

boss... with your actions. My son will do anything I ask him now, because he

knows that the consequences are fair and I wont get mad at him... I think part

of his opposition was that he knew I was mad and he was stressed out. Also,

ALWAYS leave plenty of time because they take longer than you think almost

always, cause when we are late, we get stressed, but they don't care. The

agency, is it counseling? Just let them know about her behavior and your

observations and answer their questions honestly... Remember, it's hard, but

remember, it isn't them being bad, it's the Asperger's and

you just have to ! change t he way you look at things... it will make your life

sooo much better and happier:) let me know if you need any more advice, sorry I

didn't write back sooner, was at work:( Take care!!!!!

( ) Help

my daughter is 5 yrs old at her IEp they stated that they feel that she

may have aspergers. I don't know anything about this can someone help

me.

thanks

michelle

June 9, 2006

Just a little insight on the social thing, your Daughter may be social at

home, and different at school, as home is the comfort zone, my Son has a lot of

friends at school, people he says that are friends, but none of them will do

anything with him out of school, or call or anything, he considers anyone who

says HI to him, a friend I guess. LOL!

June 9, 2006

THANK YOU FOR THE INFO!!!! HER TEACHER STATES THAT SHE IS SOCIAL AT

SCHOOL. BUT WHEN I GO TO THE SCHOOL AND OBSERVE HER SHE IS ALWAYS

DOING HER OWN THING. BUT SHE TALKS TO OTHER KIDS. DO YOU KNOW OF A

GOOD WEB-SITE THAT I CAN GET SOME GOOD INFO FROM?

THANKS

MICHELLE

>

> Just a little insight on the social thing, your Daughter may be

social at

> home, and different at school, as home is the comfort zone, my Son

has a lot of

> friends at school, people he says that are friends, but none of

them will do

> anything with him out of school, or call or anything, he considers

anyone who

> says HI to him, a friend I guess. LOL!

>

June 9, 2006

THANK YOU FOR THE INFO!!!! HER TEACHER STATES THAT SHE IS SOCIAL AT

SCHOOL. BUT WHEN I GO TO THE SCHOOL AND OBSERVE HER SHE IS ALWAYS

DOING HER OWN THING. BUT SHE TALKS TO OTHER KIDS. DO YOU KNOW OF A

GOOD WEB-SITE THAT I CAN GET SOME GOOD INFO FROM?

THANKS

MICHELLE

>

> Just a little insight on the social thing, your Daughter may be

social at

> home, and different at school, as home is the comfort zone, my Son

has a lot of

> friends at school, people he says that are friends, but none of

them will do

> anything with him out of school, or call or anything, he considers

anyone who

> says HI to him, a friend I guess. LOL!

>

June 9, 2006

I always thought my son had a lot of friends at school. They have

comon interests and seem to play well for extended periods of time.

What I noticed is that when the other kids are ready to move on my son

would rather continue playing his game than move on to play a new

game, it's like the game is his friend. He would rather play his game

alone than play a different game with his " friends "

In , CLNALT@... wrote:

>

> Just a little insight on the social thing, your Daughter may be

social at

> home, and different at school, as home is the comfort zone, my Son

has a lot of

> friends at school, people he says that are friends, but none of them

will do

> anything with him out of school, or call or anything, he considers

anyone who

> says HI to him, a friend I guess. LOL!

>

June 9, 2006

Hi ,

I am in the San area and there are some really great resources

here! My son has AS and was diagnosed when he was 8 (11 now) and he

is very social. That child won't stop talking sometimes. It is

common for AS children to talk at length about subjects that are

interesting to them. In fact sometimes it is difficult to get them

engaged in a converstaion that does not lead back to their area of

interest. Children with AS need structure around everything they do.

They need it so much that they will build their own structure. My

son will not brush his teeth before putting on his shoes. He takes

his meds in a specific order and has a little ritual that he must do

or he will feel ill. They plan out activities and if you try to get

them to change their plan they can get very upset! In third grade my

son had a substitute teacher who wanted them to do writing before they

read a book. My son was livid and insisted that the teacher did not

know what she was doing, they ALWAYS read before they start the

writing part of their day.

When it feels like you son is being difficult or not listening ask if

he has a plan that he is in the process of completing. I was amazed

the first time my son told me he couldn't brush his teeth without his

shoes on. It gave me a whole new insight into his way of thinking.

June 9, 2006

My son is in a Social Skills group at the Center for Social Thinking.

Winner is the director and she wrote a book called

" Thinking About You Thinking About Me " She does seminars all over the

country to help parents and educators learn a successful system of

teaching social cognition. You can find the details at

www.socialthinking.com

I buy posters from them to hang in my son's classrooms. They are

helpful for all the students and remind him to stay focused and on

task. My favorite is the Boring Moments one.

Our children arn't able to recognize the hidden rules at school. Not

knowing that staring at people makes them uncomfortable can be

detrimental to your child's social status at school. None of our kids

will have the highest social status but helping them to see the hidden

rules will go a long way in their social successes.

June 9, 2006

My daughter has not yet been diagnosed she is 5 and willl turn 6 in Oct. I am

struggling so hard because I don't know how to talk to her. So what ends up

happening I lose my patients and I start to raise my voice. She gets so fixed

on so many things what she watches on TV the food she eats. Who suggested that

your son get tested? Everyone keeps telling me that she doesn't have because

she talks to everyone. I live in the Sacramento area. Let me know about the

resources.

Thanks

shirebay <shirebay@...> wrote: