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Hi !

What did the doctor say/do about it? What symptoms do you associate with it?

Does the echo show anything else as well? Do you have a lyme literate

cardiologist?

Thanks,

Cheryl :o)

P.S. What is electrophysiological testing?

==

Message: 17

Date: Sun, 16 May 1999 18:28:08 -0400

From: " Van Ness " <jaqui@...>

Subject: Re: Echocardiogram

" Has anyone had an echo show tricuspid insufficiency (regurgitation)? "

Hi Cheryl,

Yes, mine does

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  • 7 months later...

> I don't think that once the cadiologist gives the okay sign that cardiac

> problems will develop. Maggie just had her final check and the

cardiologist

> assured me that she would NOT develop the difficulties later.

;

Heart problems CAN happen later in life. I think if problems are not

present at birth (or shortly after) your child is safe until 18 years (I

think it is). Just ask Dr. Len Leshin, he will confirm this. Once our

children become adults the risk is there again. There is info about this on

the net.

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I wanted to add my 2cent to the conversation about heart problem developing

later. They can cause is proof of it. When she was born everything

checked out fine. went yearly for check up and at the age of 2 she had

developed a Mirtual Vaule Reguartion. It is minor and been correceted by

meds now. The value is getting weaker but we have it checked once a year.

As for her neck we had it checked at 2 and again at 6 and so far nothing,

hopefully it stays that way. Sorry to hear about Danny hate the idea of him

having to slow down. I can't imagine what it is like.

As for Dayton as always had heart problems and as for his neck we had it

checked at 15 months so far we are good.

Well I will hush now..

mom to 6(DS)and Dayton 18months(DS)

Re: Heart

>From: " " <lauranra@...>

>

>> I don't think that once the cadiologist gives the okay sign that cardiac

>> problems will develop. Maggie just had her final check and the

>cardiologist

>> assured me that she would NOT develop the difficulties later.

>

>

>;

> Heart problems CAN happen later in life. I think if problems are not

>present at birth (or shortly after) your child is safe until 18 years (I

>think it is). Just ask Dr. Len Leshin, he will confirm this. Once our

>children become adults the risk is there again. There is info about this

on

>the net.

>

>

>

>>http://DSyndrome.com/Multiples

>

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Our children will be ok...

Everyone remember to visit your pediatric cardiologist

as recomended.They did an echo on Skylar in-utero &

thought they seen the " major " heart defect,boy did she fool

them,the echo after her birth revealed a small pinhole & cleft

on her one value.The pinhole has closed & the cleft just makes

a little murmur noise....so as her cardiologist says...she has a normal

heart & should come in once a year for a checkup!!

Amber : )

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I had no idea....I truly thought we were totally in the clear concerning

Maggie's heart. I suppose I need not worry cause anything can happen to any

of my children at anytime too.

Re: Heart

>From: " " <lauranra@...>

>

>> I don't think that once the cadiologist gives the okay sign that cardiac

>> problems will develop. Maggie just had her final check and the

>cardiologist

>> assured me that she would NOT develop the difficulties later.

>

>

>;

> Heart problems CAN happen later in life. I think if problems are not

>present at birth (or shortly after) your child is safe until 18 years (I

>think it is). Just ask Dr. Len Leshin, he will confirm this. Once our

>children become adults the risk is there again. There is info about this

on

>the net.

>

>

>

>>http://DSyndrome.com/Multiples

>

http://DSyndrome.com/Multiples

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  • 4 weeks later...

I started on Tapazole 1 week ago-30mg x 2 per day. My heart kind of thumps for

a short time a couple of times a day, but I am not sure if it's the T or the

amount of beta blocker I am on. My endo and I discussed upping the dose of beta

blocker, but then we decided to start the T and never increased it.

I have a question of my own: Those of you who take Tapazole-did you have a

temporary lift of the brain fog-like a couple of days-when you first started

taking it, only to wake up one day and have it back again? I felt great for 5

days, now it seems like I am back to normal hyperT symptoms.

dina smosna wrote:

> Hi Elaine,

>

> I have a wierd feeling sometime with my heart. It feels like it is chug a

> lugging for a few seconds and then goes away. I dont know if it is the same

> thing or not. I am HyperT also and on a low dose of tapazol and my blood

> test are normal now. Dina

> ______________________________________________________

>

> ------------------------------------------------------------------------

> Want to send money instantly to anyone, anywhere, anytime?

> You can today at X.com - and we'll give you $20 to try it! Sign

> up today at X.com. It's quick, free, & there's no obligation!

> 1/332/5/_/6563/_/947787911/

>

> -- 20 megs of disk space in your group's Document Vault

> -- docvault/hyperthyroidism/?m=1

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Re: heart

>I started on Tapazole 1 week ago-30mg x 2 per day. My heart kind of thumps

for

>a short time a couple of times a day, but I am not sure if it's the T or

the

>amount of beta blocker I am on. My endo and I discussed upping the dose of

beta

>blocker, but then we decided to start the T and never increased it.

>

>I have a question of my own: Those of you who take Tapazole-did you have a

>temporary lift of the brain fog-like a couple of days-when you first

started

>taking it, only to wake up one day and have it back again? I felt great

for 5

>days, now it seems like I am back to normal hyperT symptoms.

>

>dina smosna wrote:

>

>> Hi Elaine,

>>

>> I have a wierd feeling sometime with my heart. It feels like it is chug

a

>> lugging for a few seconds and then goes away. I dont know if it is the

same

>> thing or not. I am HyperT also and on a low dose of tapazol and my blood

>> test are normal now. Dina

>> Hi Dina, and Everyone: I am still on Tapazol 5mg per day for the

last 2 months I had my heart checked 3 weeks ago because of the

irregularity. It feels like a frog is jumping around in my throat and chest,

stops for a bit and then jumps from my chest to my throat again. Dr. said

seems normal, well my quess is that it doesn't feel normal. I am currently

seeing another Naturopath who I hope will be able to help. This Naturopath

has people come from all over to see him. I have asked him about HGH and I

was extremely impressed, he is a virtual book on the subject in other words

he is well educated on the subject and as a matter of fact he has attended

lectures of the author of the book I read He also uses HGH regularly in

his clinic, as for me however, he has done a whole battery of tests and will

let me know on Tuesday (I hope) if he thinks it is advisable for me to go

ahead and use it. About Diet, well I am also looking into this beginning

with glucose intolerance (a form of Celiac Disease) thus poor absortion of

nutrients etc. etc. etc. I believe there is a good possibility there is a

connection. Sheri____________________________________________________

>>

>> ------------------------------------------------------------------------

>> Want to send money instantly to anyone, anywhere, anytime?

>> You can today at X.com - and we'll give you $20 to try it! Sign

>> up today at X.com. It's quick, free, & there's no obligation!

>> 1/332/5/_/6563/_/947787911/

>>

>> -- 20 megs of disk space in your group's Document Vault

>> -- docvault/hyperthyroidism/?m=1

>

>

>------------------------------------------------------------------------

>Bolt down the furniture. LiquidPrice.com is giving away one

>serious Dream Home Theater. The ultimate $15,000 cinematic

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>

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>

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  • 7 months later...

Dear Madeleine, I do know for sure that I have chlamydia pneumonia - my

antibodies to this are way off the charts! I am taking a homeopathic

preparation for this under my tongue which is slowly lowering my reaction.

I probably have mycoplasma too but that has not been proved. When I first

caught this thing it went into my ears and into the valves in my heart. I

was on a holter monitor and had an echo-cardiogram of my heart which was

when they told me I had mitral valve prolapse. When I first got sick I

thought I was having a stroke and collapsed. There was a cardiac surgeon

who came to my aid, a very kind man who told me I was having a " cardiac

event " . (it was terrifying) At first I took doxy all the time, constantly

but I cannot tolerate it any longer.

It seems to me that I read in the CFIDS Chronicle that most of us with CFS

have an average of 6 different things we are " carrying " . I was warned to

stay away from other PWC as I can even catch more stuff from them!!

I wish they would find out what the underlying thing is that triggers all

this (maybe it is Lyme?)

Oh, I must add that I have seemingly recovered from my mitral valve

prolapse!!!! It was diagnosed in 1984 when I first caught CFIDS. In 1988 I

had an episode of blindness and so had to make the round of neurologist and

a cardiologist again (looked at my carotid arteries) and I was told that I

never had mitral valve prolapse! I am sure no cardiologist will believe this

but I believe it was healed! (partly by antibiotics which I mainly got on my

own - I always make sure my colds are treated and never believe that garbage

that goes around now about how you can't treat a cold).....well, I had

better stop here :-) Canary

From: " Madeleine Schatz " <Sierra376@...>

egroups

Sent: August 26, 2000 7:55:40 PM GMT

Subject: [ ] Heart

Hi Canary Alice,Our messages just crossed here! I wanted to add that many

CFS victims DO have heart involvement. I know I get chest pains and

sometimes my heart seems to race and/or pound and sometimes feels like it

misses a beat. Some CFS people have mitral valve prolapse (I think I'm

thinking of the right thing.). I don't know what if any heart damage or

defects I have from CFS since all doctors are so useless. You should be

tested for chlamydia pneumonia (along with the various myco's.) because it

is found in heart disease. I was tested for all these by Garth Nicolson and

was negative but of course that doesn't mean I AM negative just like with

the LUAT--the PCR tests can't detect the DNA of the organisms when they are

dormant and not circulating in the blood even though they could be in the

cells and tissues and continuing to destroy your body. I sure wish I knew

which germ(s) are destroying mine. Madeleine

Many thanks to our founder and friend, Marta McCoy, for making what

it is today.

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  • 1 year later...
Guest guest

In a message dated 6/12/02 8:12:15 PM Pacific Daylight Time,

writes:

> . His heart was

> > enlarged and he needed surgery ASAP. Definitely keep track of the

> > cardiology component.

>

Also, had chest xray, if heart was enlarged, I think the pulmo. doc

would've noticed it, but we're having the echo/EKG done anyway.

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Guest guest

nathan gets those done every so many years through his yearly ds clinic check

ups he has had several ekg's two echos those arnt veery easy but he has

gotten better with age on that and the xrays usually arnt a prob i tell him

he is getting his picture taken and to say cheeeese, :) . Cardiology is an

important issue that needs to be followed through the lifetime, especially

with any type of breathing problems such as sleep apnea, or energy and or

circulation problems. shawna.

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  • 2 weeks later...
Guest guest

Hey let's hope not. So far I have not heard or read anything. I know it can

damage your eyes, kidneys and other good stuff, but so far not the heart. Lizi

dragonrider <dragonrider@...> wrote: The other night while Mike and

I were renting a movie, I was standing at the counter to be checked out, and I

had the most horrible pain in my heart, it only lasted a second, but it made me

yell out and embarrassed me. had it lasted longer then that second I think I

would have died it was bad!! I just yelled ahhhhh , does this treatment cause

heart problems??

CAROL

Dear Lord, Either Quiet The Waves

Or Lift Me Above Them;

It's Too Late To Learn To Swim.

Crowley

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Guest guest

Hey let's hope not. So far I have not heard or read anything. I know it can

damage your eyes, kidneys and other good stuff, but so far not the heart. Lizi

dragonrider <dragonrider@...> wrote: The other night while Mike and

I were renting a movie, I was standing at the counter to be checked out, and I

had the most horrible pain in my heart, it only lasted a second, but it made me

yell out and embarrassed me. had it lasted longer then that second I think I

would have died it was bad!! I just yelled ahhhhh , does this treatment cause

heart problems??

CAROL

Dear Lord, Either Quiet The Waves

Or Lift Me Above Them;

It's Too Late To Learn To Swim.

Crowley

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Guest guest

Wow! Carol,

I would go to the Doctor and find out. I know I have

heard it can cause breathing problems. Dana

--- dragonrider <dragonrider@...> wrote:

> The other night while Mike and I were renting a

> movie, I was standing at the counter to be checked

> out, and I had the most horrible pain in my heart,

> it only lasted a second, but it made me yell out and

> embarrassed me. had it lasted longer then that

> second I think I would have died it was bad!! I just

> yelled ahhhhh , does this treatment cause heart

> problems??

> CAROL

> Dear Lord, Either Quiet The Waves

> Or Lift Me Above Them;

> It's Too Late To Learn To Swim.

>

> Crowley

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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Guest guest

Wow! Carol,

I would go to the Doctor and find out. I know I have

heard it can cause breathing problems. Dana

--- dragonrider <dragonrider@...> wrote:

> The other night while Mike and I were renting a

> movie, I was standing at the counter to be checked

> out, and I had the most horrible pain in my heart,

> it only lasted a second, but it made me yell out and

> embarrassed me. had it lasted longer then that

> second I think I would have died it was bad!! I just

> yelled ahhhhh , does this treatment cause heart

> problems??

> CAROL

> Dear Lord, Either Quiet The Waves

> Or Lift Me Above Them;

> It's Too Late To Learn To Swim.

>

> Crowley

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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Guest guest

Carol..yes it can cause heart problems. The medication can bring your

red blood cells down too low...red cells carry oxygen throughout your

body..when this happens, your heart isn't getting enough oxygen and

problems can develop..tell the doctor..judy

Re: heart

Wow! Carol,

I would go to the Doctor and find out. I know I have

heard it can cause breathing problems. Dana

--- dragonrider <dragonrider@...> wrote:

> The other night while Mike and I were renting a

> movie, I was standing at the counter to be checked

> out, and I had the most horrible pain in my heart,

> it only lasted a second, but it made me yell out and

> embarrassed me. had it lasted longer then that

> second I think I would have died it was bad!! I just

> yelled ahhhhh , does this treatment cause heart

> problems??

> CAROL

> Dear Lord, Either Quiet The Waves

> Or Lift Me Above Them;

> It's Too Late To Learn To Swim.

>

> Crowley

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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Guest guest

Carol..yes it can cause heart problems. The medication can bring your

red blood cells down too low...red cells carry oxygen throughout your

body..when this happens, your heart isn't getting enough oxygen and

problems can develop..tell the doctor..judy

Re: heart

Wow! Carol,

I would go to the Doctor and find out. I know I have

heard it can cause breathing problems. Dana

--- dragonrider <dragonrider@...> wrote:

> The other night while Mike and I were renting a

> movie, I was standing at the counter to be checked

> out, and I had the most horrible pain in my heart,

> it only lasted a second, but it made me yell out and

> embarrassed me. had it lasted longer then that

> second I think I would have died it was bad!! I just

> yelled ahhhhh , does this treatment cause heart

> problems??

> CAROL

> Dear Lord, Either Quiet The Waves

> Or Lift Me Above Them;

> It's Too Late To Learn To Swim.

>

> Crowley

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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  • 2 years later...

Hi Kay,

Dr. has a formula on the QX called "anti-scar". You may want to type this in by name or number and piggyback it along with the heart sarcode on a circulation program.

Gage

A FIB

Kathy - do you have a protocol for stabilizing the heartbeat, beyondthe obvious panel in EEG program -- my husband goes into a 'loop beat'as a result of an ASD operation from childhood ( hole in heart) theytell us the resulting condition which has manifested in later life (these episodes) are scar tissue which sometimes interupts theelectrical apparatus when adrenals or other stimuli kick off --Episode last night - I used the stablize heartbeart repeatedly, hetook a Xanax ( prescribed by MD when these occurr -- to relax andsometimes get heartbeart back) and seems fine this morning - he isalmost 50 and usually ends up in ICU getting shocked. I purchased theQXCI in hopes we could impact this condition and avoid the hospitalevents......Thx Kay Goode ............................................

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  • 1 month later...
Guest guest

Seashell,

During my first LLMD visit that came up as one of my symptoms. It was new

for me at that time. Even though Lyme can cause it he urgently sent me to a

cardiologist. Yes, Lyme was causing mine and has infected my heart, but we

also found a leaky valve that is causing a heart murmer. Before lyme

treatment I couldn't even change a diaper without being out of breath and

would sit on the floor literally after just changing a simple diaper while

she ran off to play. That part is better with ABX treatment. I still get

palpitations sometimes but not as much, the breathless is still there but

not as much, same with the rapid pulse, butterflies, pounding heart and

flushing.

Just what I experienced...

Beth

Message: 20

Date: Tue, 15 Mar 2005 03:27:29 -0000

From: " seashell_555 " <seashell_555@...>

Subject: heart beats really fast

I just got off the phone with a woman from a Lyme Support group.

When I told her a couple of my symptoms were shortness of breath, and

my heart beating very fast with little exertion (like 3 minutes on

the elliptical) she said it appears that the lyme has gotten to my

heart. Anybody know anything about this?

Thanks,

Seashell

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  • 1 year later...
Guest guest

>

> I am right now on a heart monitor checking my heart rate. The last

5 days have been nerve-wracking. I have not had a period since last

February, but have the symptoms of getting another one within a

week. My heart rate, for no reason, would skyrocket around 3 in the

morning. Doc thinks it is hormonal and thryroid too. I am on

Levoxyl.

> Just wondering if candida is playing its roll on this too. I am

seeing the doc again tomorrow. Have dizziness, slightly irregular

heart rate, and extremely tired.

==>Are you nearing menopause? Yes candida does play a role in the

malfunction of all organs in the body, i.e. thyroid, adrenals, which

influence heart rate because it makes all of the body's cells go

rigid so even if the body is making proper hormones (female ones &

thyroid) they cannot get into the cells where they are needed to to

their job. It also causes you to feel dizzy and become very tired.

See my article for the long list of symptoms & diseases that candida

causes. Following the diet, taking supplements and doing other

things recommended in my program will help the body heal, cure

candida and eventually the organ functions and cells will

normalize. But it takes time, persistence and diligence.

==>But it is good you are checking it out with the doctor. If he

cannot find anything wrong you know it is candida, and at the very

least whatever it is that this program won't hurt you, and it will

help the body heal.

Bee

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  • 2 years later...
  • 1 year later...

At one time before the drug companies took over medical education, the thyroid

was the first thing checked for this.

NaturalThyroidHormones/

Is good.

Also google for Dr Mark Starr as well, I have his book, Hypothyroidism Type 2.

In this is before and after xrays of the heart

when treated with natural thyroid. Amazing.

Not saying this is so in every case, but in the vast majority.

and

http://heartscanblog.blogspot.com/

Bruce

[ ] Heart

Does anyone know of a good group for heart patients? My friend has a weak

heart (workig 20%). He has a pace maker and defibrilator. The medications he is

on is making him so sick. I was looking to talk to ohters going through the same

thing. Any suggestions?

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he has a very weak heart that they think was damaged by too much drinking.

On Feb 19, 2010, at 7:46 PM, Bruce P wrote:

> At one time before the drug companies took over medical education, the thyroid

was the first thing checked for this.

> NaturalThyroidHormones/

> Is good.

>

> Also google for Dr Mark Starr as well, I have his book, Hypothyroidism Type 2.

In this is before and after xrays of the heart

> when treated with natural thyroid. Amazing.

> Not saying this is so in every case, but in the vast majority.

> and

> http://heartscanblog.blogspot.com/

>

> Bruce

>

> [ ] Heart

>

> Does anyone know of a good group for heart patients? My friend has a weak

heart (workig 20%). He has a pace maker and defibrilator. The medications he is

on is making him so sick. I was looking to talk to ohters going through the same

thing. Any suggestions?

>

>

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>

> he has a very weak heart that they think was damaged by too much drinking.

When I was very ill and the doctors were denying me treatment and implying I was

crazy, I began having a nightcap most nights. I normally don't drink. But I

had a nightcap almost every night for about a year. By the end of the year, I

was having the equivalent of 4 drinks most nights. I did it to knock back the

excruciating pain in my sinuses. Alcohol kills infection. I eventually

realized that the things keeping my pain under control were things that killed

infection (including hot baths), because painkillers did next to nothing for me

at that time. I stopped drinking when I figured out enough alternative medicine

stuff to control infection without drinking alcohol. I really hate alcohol and

always have. For most of my life, I could tell you when I last had a drink in

terms of " At my cousin's wedding three years ago. "

So I have come to believe that some alcoholics are self medicating for

undiagnosed infection. One of the things that has done a lot to strengthen my

heart is killing off a backlog of strep infection. I think the main thing that

helped with that specific problem is a combination of olive leaf extract,

vitamin a, and vitamin e.

Here are a couple of other posts I wrote about healing my heart, which go into

more detail than I have time for right now:

http://onibasu.com/archives/am/268400.html

http://onibasu.com/archives/am/268473.html

Good luck with this.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

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this man is in very serious condition and on about 7 medications. he is not

about to go off any of them. he just wants a support group to compare meds. and

reactions with them. thanks

On Feb 20, 2010, at 5:16 AM, michele_in_california wrote:

>

>

>

> >

> > he has a very weak heart that they think was damaged by too much drinking.

>

> When I was very ill and the doctors were denying me treatment and implying I

was crazy, I began having a nightcap most nights. I normally don't drink. But I

had a nightcap almost every night for about a year. By the end of the year, I

was having the equivalent of 4 drinks most nights. I did it to knock back the

excruciating pain in my sinuses. Alcohol kills infection. I eventually realized

that the things keeping my pain under control were things that killed infection

(including hot baths), because painkillers did next to nothing for me at that

time. I stopped drinking when I figured out enough alternative medicine stuff to

control infection without drinking alcohol. I really hate alcohol and always

have. For most of my life, I could tell you when I last had a drink in terms of

" At my cousin's wedding three years ago. "

>

> So I have come to believe that some alcoholics are self medicating for

undiagnosed infection. One of the things that has done a lot to strengthen my

heart is killing off a backlog of strep infection. I think the main thing that

helped with that specific problem is a combination of olive leaf extract,

vitamin a, and vitamin e.

>

> Here are a couple of other posts I wrote about healing my heart, which go into

more detail than I have time for right now:

>

> http://onibasu.com/archives/am/268400.html

> http://onibasu.com/archives/am/268473.html

>

> Good luck with this.

>

> Michele

> http://www.healthgazelle.com

> http://www.kidslikemine.com

> http://www.solanorail.com

>

>

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  • 7 months later...

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