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>

> My son visited with his doctor today and got his ears checked. his

left ear was

> fine but when the doctor tried to stick in the instrament to check

ears in the

> right ear, my son cringed with pain. The doc also noted that that

one ear was

> 100.5 degrees as opposed to the other ear which was 98.1. No visible

infection though. What could this be?

Bacteria or yeast overgrowth.

> Is there anything anyone has used to naturally clear this up? Can

this be a

> fungus or yeast overgrowth? Please help!!

It was yeast at my house. I gave oral GSE. If you suspect bacteria,

you can consider OLE. Or garlic/mullein oil.

Dana

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  • 1 year later...
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Ear pain IS included as a symptom on many Lyme symptom lists. The ear pain can

be internal, like an ear infection, or external. I have had both. Many times I

have had my doc check my ears because they hurt so bad, like ear infections do.

Sometimes she finds them red and inflammed inside and sometimes they appear

clear. What often helps me is to take Mucinex (which is now OTC - guaifenesin)

to open up the eustachion tubes. This usually clears up the pressure, too. I

am usually on Lyme ABX which would clear up any ear infection, so we do not add

in any additional ABX for the ear pain. I have had a lot of it and we believe

it is directly related to the LYME. Sometimes my external ears turn red, swell,

are hot to the touch and painful. It usually lasts for a couple of days at a

time, and then just goes away. It is strange when that happens, and I have

spoken to a couple of other people who have experienced the same thing after

contracting Lyme.

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Hi,

Thanks for replying =)  I know ear pain is listed on the symptom list and I did

get this years ago but that has gone away and now I have constant ear

pressure/fullness which was not listed on the symptom list so that is why I

asked if anyone gets this.  Mine is definitely not related to sinuses or

eustasion  tube blockage because I saw several ENT's to check for that and they

said everything was clear.  That is why it is so strange.  I was told by my

doctor that Lyme can attack the inner ear (which is not something that can be

seen visually as the middle ear can be) causing ear pressure and/or pain and/or

dizziness.  I was just curious how many people deal with this and it sounds

like a lot of us.  Someone should think about adding that symptom on the lyme

list.  I just started treatment today so we'll see if that gets any better over

time...I pray it does!

Owner

Metro Dogs LLC

[ ] RE:Ear pain

Ear pain IS included as a symptom on many Lyme symptom lists. The ear pain can

be internal, like an ear infection, or external. I have had both. Many times I

have had my do

c check my ears because they hurt so bad, like ear infections do. Sometimes she

finds them red and inflammed inside and sometimes they appear clear. What often

helps me is to take Mucinex (which is now OTC - guaifenesin) to open up the

eustachion tubes. This usually clears up the pressure, too. I am usually on

Lyme ABX which would clear up any ear infection, so we do not add in any

additional ABX for the ear pain. I have had a lot of it and we believe it is

directly related to the LYME. Sometimes my external ears turn red, swell, are

hot to the touch and painful. It usually lasts for a couple of days at a time,

and then just goes away. It is strange when that happens, and I have spoken to

a couple of other people who have experienced the same thing after contracting

Lyme.

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  • 2 months later...
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I think any antibiotic ear drops should work. I use tobradex.

Check out my cholesteatoma blog at lisaceardisease.blogspot.com

IDQ Companies

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Hey !

Sorry to hear that you have this condition. I had cholesteatoma earlier this

year and had a LOT of ear pain from it. I was using ear drops occasionally to

calm the pain as well but when I had a check up with an ear doctor, they told me

that I should not use ear drops!

Overuse of the ear drops might make your ear immune to the effectiveness of

antibiotics altogether. I was advised to stick to Tylenol for pain.

Also, you can put cotton in your ear to avoid pain from the air. You should also

keep water out of your ear! Water/moistness helps cholesteatomas grow. I was

told to rub a little bit of petroleum jelly (vasaline) into a piece of cotton

and then to put that in my ear. The petroleum blocks the water and the cotton

wicks it away.

I hope that helps. Be well.

Peace,

Kat

>

> Hi I'm new. Just arrived in SD from the UK. I've been dx as having small

attic c/toma & needing surgery.

>

> I am getting ear pain but no draining - pain seems to be if the air is cold /

there is a draft / after showering sometimes. Has anyone else had that?

>

> I've got an appt in August to see a surgeon nearby.

>

> What ear drops would you recommend? I've been using Gentisone which seems to

calm the ear a little.

>

>

>

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My doctors always told me to keep my ears warm and if its hot where u are just

wear a headband to protect them from the cold and draft. I personally that, that

works. as for the shower you must make sure you dont get any water in you ears

if you dont already wear a shower cap start using it. I would not use just any

ear drops as you may cause more damage.

Hope this helps.

>

> Hi I'm new. Just arrived in SD from the UK. I've been dx as having small

attic c/toma & needing surgery.

>

> I am getting ear pain but no draining - pain seems to be if the air is cold /

there is a draft / after showering sometimes. Has anyone else had that?

>

> I've got an appt in August to see a surgeon nearby.

>

> What ear drops would you recommend? I've been using Gentisone which seems to

calm the ear a little.

>

>

>

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Thanks for the advice, this is brilliant.

I didn't know that water helps the c/toma grow!!! I will ensure that I am

significantly more careful with water. I thought that this was post surgery

rather than before.

It is very hot here but there is a good breeze from the sea even where we are.

It gets cold at night and also of course there is plenty of air conditioning

which are all irritating my ear. I will get a headband, that is a good idea

thanks.

As for the ear drops, I will stop using them. 3 different sets of antibiotics

didn't touch my ear infection earlier in the year, only these drops so you are

right I had better watch out! :( I've found tylenol didn't work either & have

rarely taken co codamol which I've brought with me from the UK and they work a

treat :)

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Be careful of the painkillers that you do use. You may have to be

completely off of them for a certain period of time before any surgery

can take place. Check with your doc.

Matt

amandajlear wrote:

>

>

> Thanks for the advice, this is brilliant.

>

> I didn't know that water helps the c/toma grow!!! I will ensure that I

> am significantly more careful with water. I thought that this was post

> surgery rather than before.

>

> It is very hot here but there is a good breeze from the sea even where

> we are. It gets cold at night and also of course there is plenty of

> air conditioning which are all irritating my ear. I will get a

> headband, that is a good idea thanks.

>

> As for the ear drops, I will stop using them. 3 different sets of

> antibiotics didn't touch my ear infection earlier in the year, only

> these drops so you are right I had better watch out! :( I've found

> tylenol didn't work either & have rarely taken co codamol which I've

> brought with me from the UK and they work a treat :)

>

>

>

>

--

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  • 6 months later...

>

> Hi,

> Just a quick question about ear pain. I am not sure if I am retracing, or

detoxing through my ears, or even if it really matters which is happening. I

had swimmer's ear a few times as a kid, one bad ear infection as an adult, and

ruptured an ear drum on an airplane flight about 15 years ago.

>

> I am now having ear pain and swelling that is interfering with my sleep and

hearing. I have been doing treatments per Bee's site (ie garlic oil and CO,

also tried the hydrogen peroxide drops) and am happy to continue along with

those but had a thought. I can't tell if it is inner ear, middle ear or even

outer ear (swimmer's ear) and am wondering if that matters. I don't seem to

have any sinus congestion, so today I started wondering if it could be my outer

ear that is the problem. I can't see anything of course, and my son just said my

ear looked a little red.

>

> I do know with swimmer's ear you want to keep your ear dry, so maybe keeping

the garlic oil in for long periods of time would keep it too damp? I know lots

of people here have had ear issues, so just wanted to make sure I was doing what

I could to support my healing.

+++Hi Marcie. I don't think it matters exactly what is happening with your

ears, except to " know " that your body is doing its job, and if you are getting

ear symptoms it is because of that.

+++I don't think moisture in your ears would be a problem, unless it was water.

Ears like moisture from the air too, just like the nose, sinuses, skin, etc.;

just don't put any directly in your ears.

+++You are doing everything right, so don't be concerned. I've discovered that

when my body was retracing something treatments didn't help, so all I could do

was lessen the pain. I usually do that with heat. So you could apply heat to

your ears by holding a light bulb close enough to feel the heat, but not to

burn. Or put one of those packs on your ear(s) that you heat up in a microwave,

or use a heating pad.

All the best, Bee

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Hi  Marcie, Bee and others,

I feel compelled to write after reading your email.  A natural remedy for ear

pain which I discovered in Germany is:- 

Chop an onion into small pieces and then place these inside a handkerchief.

Secure the handkerchief with an elastic band (or something similar).  Place the

handkerchief over the sore ear, and then a warm water bottle over that. Lie down

for a while (10-15mins) and the pain will subside.

I am always amazed by this simple remedy. I have suffered dreadfully from sinus

and ear pain in the past, and this has always worked. 

Bee, I have been reading and learning (I am still navitgating my way around the

site - oh so much to read and too little time),  and am slowly getting myself

onto your program. My history mirrors those of many (too many) others who have

spent countless years trying to find the answers to  'ill' health.  Now though

I see a light at the end of my tunnel. Thank you. 

Kind regards,

> Hi,

> Just a quick question about ear pain. I am not sure if I am retracing, or

detoxing through my ears, or even if it really matters which is happening. I

had swimmer's ear a few times as a kid, one bad ear infection as an adult, and

ruptured an ear drum on an airplane flight about 15 years ago.

>

> I am now having ear pain and swelling that is interfering with my sleep and

hearing. I have been doing treatments per Bee's site (ie garlic oil and CO,

also tried the hydrogen peroxide drops) and am happy to continue along with

those but had a thought. I can't tell if it is inner ear, middle ear or even

outer ear (swimmer's ear) and am wondering if that matters. I don't seem to

have any sinus congestion, so today I started wondering if it could be my outer

ear that is the problem. I can't see anything of course, and my son just said my

ear looked a little red.

>

> I do know with swimmer's ear you want to keep your ear dry, so maybe keeping

the garlic oil in for long periods of time would keep it too damp? I know lots

of people here have had ear issues, so just wanted to make sure I was doing what

I could to support my healing.

+++Hi Marcie. I don't think it matters exactly what is happening with your

ears, except to " know " that your body is doing its job, and if you are getting

ear symptoms it is because of that.

+++I don't think moisture in your ears would be a problem, unless it was water.

Ears like moisture from the air too, just like the nose, sinuses, skin, etc.;

just don't put any directly in your ears.

+++You are doing everything right, so don't be concerned. I've discovered that

when my body was retracing something treatments didn't help, so all I could do

was lessen the pain. I usually do that with heat. So you could apply heat to

your ears by holding a light bulb close enough to feel the heat, but not to

burn. Or put one of those packs on your ear(s) that you heat up in a microwave,

or use a heating pad.

All the best, Bee

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,

Thank you so much. That sounds like something worth trying and also something

Bee would not object to. It does sound so very simple, yet those are often the

best remedies!

Marcie

>

> Hi  Marcie, Bee and others,

> I feel compelled to write after reading your email.  A natural remedy for ear

pain which I discovered in Germany is:- 

> Chop an onion into small pieces and then place these inside a handkerchief.

Secure the handkerchief with an elastic band (or something similar).  Place the

handkerchief over the sore ear, and then a warm water bottle over that. Lie down

for a while (10-15mins) and the pain will subside.

>

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>

> Hi  Marcie, Bee and others,

> I feel compelled to write after reading your email.  A natural remedy for ear

pain which I discovered in Germany is:- 

> Chop an onion into small pieces and then place these inside a handkerchief.

Secure the handkerchief with an elastic band (or something similar).  Place the

handkerchief over the sore ear, and then a warm water bottle over that. Lie down

for a while (10-15mins) and the pain will subside.

> I am always amazed by this simple remedy. I have suffered dreadfully from

sinus and ear pain in the past, and this has always worked.

+++Hi . I agree that the onion poultice you describe is very good for the

ears. It is also good for lung congestion, bronchitis, coughs, etc.

+++My favorite remedy is garlic, because I used it for my grandson's ear aches

when he was 9 months old. In less than 5 minutes after putting a raw piece of

garlic, or a few drops of garlic oil, he stopped crying, his ear wasn't red, and

it totally handled the problem! Of course garlic is in the onion family of

foods, so any of them work well.

 

> Bee, I have been reading and learning (I am still navitgating my way around

the site - oh so much to read and too little time),  and am slowly getting

myself onto your program. My history mirrors those of many (too many) others who

have spent countless years trying to find the answers to  'ill' health.  Now

though I see a light at the end of my tunnel. Thank you.

+++You are very welcome! That's good you are getting on the total program!

The best to you, Bee

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  • 3 months later...
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Hi le

Your not going to die from TX.

You might think that you are, but you wont.

According to my research, the chance of dying from the TX itself, is almost zero.

People may have died from other complications - like l have CHF [congestive heart failure - weak heart], and the Interferon may be too strong for my heart.

Your ear pain may be nothing more than some minor infection, or ear problem.

Head colds commonly cause earaches.

If it concerns you greatly, please go see your doctor ASAP.

Please do not stop your TX without your doctors advice.

Youve come so far, and done so well.

Pretty soon you will be able to put all this HCV stuff behind you, and get on with your life.

love

don in ks

From: dbrown715907 <dbrown715907@...>Subject: [ ] ear pain Date: Wednesday, April 28, 2010, 8:53 PM

the last few days Ihave been having this bad ear pain, like someone is stabbing a pencil trew my ear. So I was looking up side effects and I saw some crazy stuff, I was reading that a 21 year old kid died while on this tx. Why? Is this shit gonna kill me you think? Im bugging out. What would be the signs or will I just drop. I would rather take the time I can get with hep c then die during tx. ------------------------------------

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yes I know Im not going to stop, I just saw this web site that had adverse

reactions 2 of the people who passed were older but one was only 21 and it

freaked me out. Im not ready. My little boy is going to always need me around (

he has autism ) And Im sure my baby girl will too, but she will leed a normal

life. I need to be here for him tx or no tx. Just after seeing that it scared

me. I am actully having ok days, my house is a mess but tonight I even brought

the kids for a walk around the block a whole 4 times. I am actully gaining

weight from this crap, who would have guessed. Everytime I ask my dr if this

could kill me he gives me some bs answer like different things happen to

different people. Anyways Im pretty health for the most part. Today was my 5th

wedding aniversary, as many of you know my husband went to Baltimore to work so

i spent it home with the kids, I did go buy myself a new tubbawear set, and that

was nice. lol Its the little thngs sometimes that keep you going. Thanks Don!

Xoxox le

>

>

> From: dbrown715907 <dbrown715907@...>

> Subject: [ ] ear pain

>

> Date: Wednesday, April 28, 2010, 8:53 PM

>

>

> the last few days  Ihave been having this bad ear pain, like someone is

stabbing a pencil trew my ear. So I was looking up side effects and I saw some

crazy stuff, I was reading that a 21 year old kid died while on this tx. Why? Is

this shit gonna kill me you think? Im bugging out. What would be the signs or

will I just drop. I would rather take the time I can get with hep c then die

during tx.

>

>

>

> ------------------------------------

>

>

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Hi le

I would like the URL address of that site you mentioned where folks have died from HCV TX.

I would like to check it out.

I have a folder all about 'will I die from HCV TX'?

http://health.dir./group/ /links/TREATMENT_OF_HEPATITIS_C_001253393566/DEATHS_FROM_HCV_TREATMENT_001272511906/

If your site has facts/figures, I sure could use them.

I need as much info on HCV as I can get.

When you get done cleaning your house will you come over to my house and clean for me?

LMAO

You know Im just funnin you. :-)

Just stick out the TX, le.

Youve got all the motivation in the world running around your feet, and your doing great.

You will one day be so glad.

HAPPY ANNIVERSARY YOU

love

don in ks

From: dbrown715907 <dbrown715907@...>Subject: [ ] Re: ear pain Date: Wednesday, April 28, 2010, 11:15 PM

yes I know Im not going to stop, I just saw this web site that had adverse reactions 2 of the people who passed were older but one was only 21 and it freaked me out. Im not ready. My little boy is going to always need me around ( he has autism ) And Im sure my baby girl will too, but she will leed a normal life. I need to be here for him tx or no tx. Just after seeing that it scared me. I am actully having ok days, my house is a mess but tonight I even brought the kids for a walk around the block a whole 4 times. I am actully gaining weight from this crap, who would have guessed. Everytime I ask my dr if this could kill me he gives me some bs answer like different things happen to different people. Anyways Im pretty health for the most part. Today was my 5th wedding aniversary, as many of you know my husband went to Baltimore to work so i spent it home with the kids, I did go buy myself a new tubbawear set, and that was nice. lol Its

the little thngs sometimes that keep you going. Thanks Don! Xoxox le> > > From: dbrown715907 <dbrown715907@...>> Subject: [ ] ear pain> > Date: Wednesday, April 28, 2010, 8:53 PM> > > the last few days Ihave been having this bad ear pain, like someone is stabbing a pencil trew my ear. So I was looking up side effects and I saw some crazy stuff, I was reading that a 21 year old kid died while on this tx. Why? Is this shit

gonna kill me you think? Im bugging out. What would be the signs or will I just drop. I would rather take the time I can get with hep c then die during tx. > > > > ------------------------------------> >

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Hi le,I guess I can second that. You may think you are going to die, but you won't. actually. What you may be experiencing is the "psychotic" side effects of tx. Not that you are going crazy, but tx does have it's mental sides. For me I became quite a bit paranoid, I could make a mountain out of a mole hill. A couple times I was sure I was dying from something or another. Maybe a brain tumor, when I had a headache. A heart attack when my chest hurt (from normal aches and pains). Like Don said., hang in there. I would take 400 mg of ibuprofen, a nice hot bath, listen too ENYA, or some other soothing music and try to relax. You probably are having trouble sleeping, maybe take 25 mg of benadryl. Knocks me out all the time. Hang in there. BTW, How long have you been on

tx? Randy O Website-- SuncoastHepCFriends.OrgForum -- Suncoast HepC Friends ForumFrom: dbrown715907 <dbrown715907@...> Sent: Wed, April 28, 2010 9:53:59 PMSubject: [ ] ear

pain

the last few days Ihave been having this bad ear pain, like someone is stabbing a pencil trew my ear. So I was looking up side effects and I saw some crazy stuff, I was reading that a 21 year old kid died while on this tx. Why? Is this shit gonna kill me you think? Im bugging out. What would be the signs or will I just drop. I would rather take the time I can get with hep c then die during tx.

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I have an ear story. A couple years ago I went to see a new wholistic type

osteopath. I told her my symptoms were constant low grade pain in my kidney,

liver area, shoulder blade and then around to my armpit and breast and then up

my neck inside my ear and pressure and pain in my eye, all on the right side.

She just looked at me funny and said, " How did you know that? " I said, " What? "

She said, " That is a nerve path in your body, etc., etc. "

A few years ago, I had that same stabbing feeling in my ear and lost the normal

hearing, had more of a echo, tinnitus type thing going on. But it resolved

itself. I was not on treatment. My guess is that when our liver is swollen due

to ups and downs in inflammation due to life or bad diet or a drink or

treatment, it presses on that nerve and then you have these variable related

symptoms.

When I went to the opthamologist for my, before treatment check, this month, he

told me the same thing, that there is a nerve system that runs up that side.

That is probably why there is the risk of retinal problems on those with inner

eye issues before starting tx.

le, you will be OK. It is an odd side effect. You might look up what they

recommend for tinnitus... drops, cotton ball, I don't know.

By the way, you are dashing my positive thinking about wieght loss during

treatment!!! I have kinda ordered up my set of symptoms. I've planned on losing

20-30 pounds, to be kept off permantly and in exchange for that blessing, I'll

accept a couple days of flu like symptoms after injections. But nothing

else....heh.

Keep checking in, everyone has a different experience and we are all here in the

same boat loving on each other.

Love, Deb

> >

> >

> > From: dbrown715907 <dbrown715907@>

> > Subject: [ ] ear pain

> >

> > Date: Wednesday, April 28, 2010, 8:53 PM

> >

> >

> > the last few days  Ihave been having this bad ear pain, like someone is

stabbing a pencil trew my ear. So I was looking up side effects and I saw some

crazy stuff, I was reading that a 21 year old kid died while on this tx. Why? Is

this shit gonna kill me you think? Im bugging out. What would be the signs or

will I just drop. I would rather take the time I can get with hep c then die

during tx.

> >

> >

> >

> > ------------------------------------

> >

> >

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Deb,You just keep them positive thoughts and get on with yourself!The more positive you enter treatment, the better you can keep your attitude during treatment, the easier it will be for you...I like your outlook; 20-30 pounds, won't rebound those, a little flu once a week...good luck with that!It's like Don was talking about a couple weeks ago, the dragon in our bodies, and the dragon in our heads. The dragon in our head is the one we have the most control over, and if it's calm and positive, the dragon in our bodies has a harder time running the show.SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett [ ] Re: ear pain

I have an ear story. A couple years ago I went to see a new wholistic type osteopath. I told her my symptoms were constant low grade pain in my kidney, liver area, shoulder blade and then around to my armpit and breast and then up my neck inside my ear and pressure and pain in my eye, all on the right side. She just looked at me funny and said, "How did you know that?" I said, "What?" She said,"That is a nerve path in your body, etc., etc."

A few years ago, I had that same stabbing feeling in my ear and lost the normal hearing, had more of a echo, tinnitus type thing going on. But it resolved itself. I was not on treatment. My guess is that when our liver is swollen due to ups and downs in inflammation due to life or bad diet or a drink or treatment, it presses on that nerve and then you have these variable related symptoms.

When I went to the opthamologist for my, before treatment check, this month, he told me the same thing, that there is a nerve system that runs up that side. That is probably why there is the risk of retinal problems on those with inner eye issues before starting tx.

le, you will be OK. It is an odd side effect. You might look up what they recommend for tinnitus... drops, cotton ball, I don't know.

By the way, you are dashing my positive thinking about wieght loss during treatment!!! I have kinda ordered up my set of symptoms. I've planned on losing 20-30 pounds, to be kept off permantly and in exchange for that blessing, I'll accept a couple days of flu like symptoms after injections. But nothing else....heh.

Keep checking in, everyone has a different experience and we are all here in the same boat loving on each other.

Love, Deb

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This is the first time I have seen the off and on pain I have in my right side

described exactly. It can be really painful--especially the ear pain. Sounds

like a good explanation--Did she tell you what to do? Doctors don't pay much

attention to me--I'm just old and my Hep C has stabilized at Stage 2 as far as

they can tell so I don't plan to treat

SuziQ

>

> I have an ear story. A couple years ago I went to see a new wholistic type

osteopath. I told her my symptoms were constant low grade pain in my kidney,

liver area, shoulder blade and then around to my armpit and breast and then up

my neck inside my ear and pressure and pain in my eye, all on the right side.

She just looked at me funny and said, " How did you know that? " I said, " What? "

She said, " That is a nerve path in your body, etc., etc. "

> > >

> >

>

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Thanks so much for the info. Sounds as if you have really run the gamut with

alternatives and looked for information. My Dr Berkson experience was a trip

!!! I knew my labs were good. I had been on his oral protocol for about 8

months. He ordered a few more labs and then asked me why I was there. He said I

was fine but since I was there I ought to go ahead and have some ALA IV's. He

added Vit D3 as I was low on that. He added Low Dose Naltrexone. I took it for

about 4 mos, have stopped as it caused chronic headaches for me. May start

again at extremely low dose and build up.Univ of Pennsylvania is hoping to get

enough evidence to get clinical trials on LDN.

Yes, the treatment is so much more successful with 2b. I am 1b and the success

rate was about 30% when I was diagnosed. I was already 65 when diagnosed so the

doctor said my success might be even lower. As I approach 76 in August, I am

sure my age would affect the possibility of success. As I have aged with Hep C

other things are appearing--especially in the last two years. I have early Type

2 diabetes, high blood pressure and Some kidney problems. ALL could be related

to Hep C. ALL could be related to aging. ALL could be related to DIET. Would

love to hear a little more discussion on the forum of how much diet affects the

health of the liver and what one can do to help keep the liver healthy. I feel

incredibly fortunate that Hep C has affected my life so little. I basically

stopped drinking in 1966, did a little light drinking when I divorced in 1983.

Then I stopped when my son was killed in auto accident in 1984--afraid I might

use alcohol to deaden pain. I've lived alone since 1983 except when I cared for

my mom during the last years of her dementia. Was a single mom for many years.

That was the really scary time!! Lost a dear friend from the " wild years " to

cancer that could not be treated because she was on transplant list for her Hep

C seven years ago. She had long ago stopped using, but did not stop drinking.

No one else from those years is left. I think I have had such an easy time

because I was taught from childhood to concentrate on what I DO have rather than

what I DON'T have.

I know at times that I may seem a little out dated--but in truth I am. I also

am proof that Hep C does Not mean a death sentence.

SuziQ

--- In , " truthseeker103 " <truthseeker103@...>

wrot

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SuziQ

You know, dont you, that you are my hero? Seriously.

I just love your strength to carry on, your knowledge, your positive attitude, and everything that you teach us all.

I wish there was a Dr B for each of us, to guide us, and care for us.

I have watched all his YouTube videos, and read most everything he has written about the liver.

I am a regular on his site, and am constantly listening out for new stuff from him.

This is about as close as I personally will ever get to him.

There is alot more clinical studies going on than just at UP.

Every once in awhile I run across something in the LDN groups.

Its mostly about MS and other health issues, but occasionally a tidbit about the liver.

LDN research is very slow because most Med Professionals dont take it seriously yet.

But it is comming along.

I agree 100% with you about the need for more diet discussion and info on forum.

I am a big believer in diet helping us fight and heal.

I post whatever I can find, and have compiled quite a bit in the HCV Links Library.

Folders - 005A Self Help & 005C/D/E & 006G-M Diet -

http://health.dir./group/ /links

There is a lot more in the HCV News Archieves - folders 000C.

Im like you in a way - I dwell on what I have, not on what I dont.

This way I am always content, and each day is a blessing.

Please post more if you can - I just love your wisdom, knowledge, and stories.

You teach us so many things, and you are living proof to boot.

love

don in ks

From: SuziQ <ancientkron@...>Subject: [ ] Re: ear pain Date: Saturday, May 1, 2010, 2:09 AM

Thanks so much for the info. Sounds as if you have really run the gamut with alternatives and looked for information. My Dr Berkson experience was a trip !!! I knew my labs were good. I had been on his oral protocol for about 8 months. He ordered a few more labs and then asked me why I was there. He said I was fine but since I was there I ought to go ahead and have some ALA IV's. He added Vit D3 as I was low on that. He added Low Dose Naltrexone. I took it for about 4 mos, have stopped as it caused chronic headaches for me. May start again at extremely low dose and build up.Univ of Pennsylvania is hoping to get enough evidence to get clinical trials on LDN. Yes, the treatment is so much more successful with 2b. I am 1b and the success rate was about 30% when I was diagnosed. I was already 65 when diagnosed so the doctor said my success

might be even lower. As I approach 76 in August, I am sure my age would affect the possibility of success. As I have aged with Hep C other things are appearing--especially in the last two years. I have early Type 2 diabetes, high blood pressure and Some kidney problems. ALL could be related to Hep C. ALL could be related to aging. ALL could be related to DIET. Would love to hear a little more discussion on the forum of how much diet affects the health of the liver and what one can do to help keep the liver healthy. I feel incredibly fortunate that Hep C has affected my life so little. I basically stopped drinking in 1966, did a little light drinking when I divorced in 1983. Then I stopped when my son was killed in auto accident in 1984--afraid I might use alcohol to deaden pain. I've lived alone since 1983 except when I cared for my mom during the last years of her dementia. Was a single

mom for many years. That was the really scary time!! Lost a dear friend from the "wild years" to cancer that could not be treated because she was on transplant list for her Hep C seven years ago. She had long ago stopped using, but did not stop drinking. No one else from those years is left. I think I have had such an easy time because I was taught from childhood to concentrate on what I DO have rather than what I DON'T have. I know at times that I may seem a little out dated--but in truth I am. I also am proof that Hep C does Not mean a death sentence. SuziQ --- In , "truthseeker103" <truthseeker103@...> wrot------------------------------------MEMBERS WITH WEBSITES ABOUT HEP

C:'s website: http://www.healthyhepper.comPam's website: http://www.HEALSoftheSouth.org and http://www.HEALSoftheSouth.comScarlet's website: http://www.youngliving.org/scarletADD Your Website, Support Group, Newsletter or HEP C LINKS to the Healthy Hepper Hepatitis Database-Directory: http://www.healthyhepper.com/db/dbsearch.htm

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My Doc had me put athletes foot cream in my ear with a Q-tip. It worked and have

been doing it for a few years now. Don't know if we have same problem but may be

worth a shot. Good luck

Butch

> > >

> > > I have an ear story. A couple years ago I went to see a new wholistic type

osteopath. I told her my symptoms were constant low grade pain in my kidney,

liver area, shoulder blade and then around to my armpit and breast and then up

my neck inside my ear and pressure and pain in my eye, all on the right side.

She just looked at me funny and said, " How did you know that? " I said, " What? "

She said, " That is a nerve path in your body, etc., etc. "

> >

> > > > >

> > > >

> > >

> >

>

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The fungus that you treat with atheletes foot cream is common with Hcv. I ended up with a anti fungal cream ( presc) that I use everyday... Most of my body is involved. When it got real bad in my ear, it caused fluid build up. I currently have a tube in one ear ; all cause of that fungus..." yeast dermatitis" I researched it and found it is a side of either the HCV or liver disease( I forget which).http://facebook.com/people/andTrudy-Kinsey/1340460877 " A well- behaved woman never made History". Trudy On May 2, 2010, at 12:24 PM, "butchholland2002" <butchholland2002@...> wrote:

My Doc had me put athletes foot cream in my ear with a Q-tip. It worked and have been doing it for a few years now. Don't know if we have same problem but may be worth a shot. Good luck

Butch

> > >

> > > I have an ear story. A couple years ago I went to see a new wholistic type osteopath. I told her my symptoms were constant low grade pain in my kidney, liver area, shoulder blade and then around to my armpit and breast and then up my neck inside my ear and pressure and pain in my eye, all on the right side. She just looked at me funny and said, "How did you know that?" I said, "What?" She said,"That is a nerve path in your body, etc., etc."

> >

> > > > >

> > > >

> > >

> >

>

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  • 8 months later...

Hi ladies,

I just got back from seeing an Ear, Nose and Throat specialist, due to some ear

pain I've been having. He took one look at my left ear and said, Yup, it's not

normal.

Sooooo, I'm having a cat scan of my ear as soon as it can be fit in.

It brought back memories of Rogene and her demise from ear cancer. I told him

about Rogene and he told me that it did not look like cancer, but he said there

is definitely something like a growth behind my ear drum, and lots of scar

tissue on it as well. He seemed almost befuddled by it, but definitely sure

that it was abnormal, and concerned about it.

So, the saga continues!!!! What next???

I'm sad today....

My son leaves tomorrow morning.....

Along with our truck being broken into and the loss of over $2000 in cash, this

year has not started out very well!!

But, I'll keep trusting God!

Patty

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Hello Patty ~

I am so sorry there is so much going on in your world.......

My goodness ! Here is a big but gentle hug for you (( ))

My thoughts and prayers are with you for everything

you are going thru right now.

Sending you lots of Love, Healing Energy,

Prayers, and Strength......

Please keep us posted on how you are feeling and

on the results of your test !

Love

Dede

When the power of love

overcomes the love of power

the world will know peace.

~ Jimi Hendrix

Ear pain

Hi ladies,

I just got back from seeing an Ear, Nose and Throat specialist, due to some ear pain I've been having. He took one look at my left ear and said, Yup, it's not normal.

Sooooo, I'm having a cat scan of my ear as soon as it can be fit in.

It brought back memories of Rogene and her demise from ear cancer. I told him about Rogene and he told me that it did not look like cancer, but he said there is definitely something like a growth behind my ear drum, and lots of scar tissue on it as well. He seemed almost befuddled by it, but definitely sure that it was abnormal, and concerned about it.

So, the saga continues!!!! What next???

I'm sad today....

My son leaves tomorrow morning.....

Along with our truck being broken into and the loss of over $2000 in cash, this year has not started out very well!!

But, I'll keep trusting God!

Patty

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