Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 , Yes, that is often a problem with MSA. Is he taking a lot of Sinemet? Take care, Bill Werre ---------------------------------- Maciejewski wrote: > I have been noticing lately that Jeff has " unconscious " restlessness in his > legs when he's in a reclining position. It's not really twitching, but he > will rapidly rock his feet back and forth CONTINUALLY. It goes on for > hours, and today I noticed that it even occurs when he's napping. It used > to happen occasionally, but now it's pretty constant. Also, when I bring > it to his attention, he tries to stop it by placing one foot over the > other, but he can't seem to control it. He has complained occasionally of > tremors in his hands and he will have uncontrollable twitching and flailing > at night as well. Is this a " normal " symptom of MSA? > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 , This is called restless leg sydrome, and although it is possible to have this problem without MSA, it is a common symptom of MSA. It can happen while awake or while asleep, and often accompnies REM behavior disorder. The medication most often given for the problem is klonopin (aka clonazapam) but many people do not tolerate that medication well so it should be used with caution. Carol & Rob > I have been noticing lately that Jeff has " unconscious " restlessness in his > legs when he's in a reclining position. It's not really twitching, but he > will rapidly rock his feet back and forth CONTINUALLY. It goes on for > hours, and today I noticed that it even occurs when he's napping. It used > to happen occasionally, but now it's pretty constant. Also, when I bring > it to his attention, he tries to stop it by placing one foot over the > other, but he can't seem to control it. He has complained occasionally of > tremors in his hands and he will have uncontrollable twitching and flailing > at night as well. Is this a " normal " symptom of MSA? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 , This is called restless leg sydrome, and although it is possible to have this problem without MSA, it is a common symptom of MSA. It can happen while awake or while asleep, and often accompnies REM behavior disorder. The medication most often given for the problem is klonopin (aka clonazapam) but many people do not tolerate that medication well so it should be used with caution. Carol & Rob > I have been noticing lately that Jeff has " unconscious " restlessness in his > legs when he's in a reclining position. It's not really twitching, but he > will rapidly rock his feet back and forth CONTINUALLY. It goes on for > hours, and today I noticed that it even occurs when he's napping. It used > to happen occasionally, but now it's pretty constant. Also, when I bring > it to his attention, he tries to stop it by placing one foot over the > other, but he can't seem to control it. He has complained occasionally of > tremors in his hands and he will have uncontrollable twitching and flailing > at night as well. Is this a " normal " symptom of MSA? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 , My brother has restless legs syndrome. They are real bad at night when he is sleeping and as he is going to sleep. His doctor has him taking Sinmet now. My sister-in-law said it was a God send because she couldn't sleep with him before he started taking the medicine. God bless, Belinda > , > It was one of the early symptoms that Warren had and his nuerologist put him > on a med to help what he called " restless legs " . I'm sorry I don't remember > the name of it. Now he's on Sinemet to help control twitching everywhere. > If you have a nuerologist I suggest you call him or your regular Dr. > S. > Restless Legs > > > > I have been noticing lately that Jeff has " unconscious " restlessness in > his > > legs when he's in a reclining position. It's not really twitching, but he > > will rapidly rock his feet back and forth CONTINUALLY. It goes on for > > hours, and today I noticed that it even occurs when he's napping. It used > > to happen occasionally, but now it's pretty constant. Also, when I bring > > it to his attention, he tries to stop it by placing one foot over the > > other, but he can't seem to control it. He has complained occasionally of > > tremors in his hands and he will have uncontrollable twitching and > flailing > > at night as well. Is this a " normal " symptom of MSA? > > > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe@y... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 , My brother has restless legs syndrome. They are real bad at night when he is sleeping and as he is going to sleep. His doctor has him taking Sinmet now. My sister-in-law said it was a God send because she couldn't sleep with him before he started taking the medicine. God bless, Belinda > , > It was one of the early symptoms that Warren had and his nuerologist put him > on a med to help what he called " restless legs " . I'm sorry I don't remember > the name of it. Now he's on Sinemet to help control twitching everywhere. > If you have a nuerologist I suggest you call him or your regular Dr. > S. > Restless Legs > > > > I have been noticing lately that Jeff has " unconscious " restlessness in > his > > legs when he's in a reclining position. It's not really twitching, but he > > will rapidly rock his feet back and forth CONTINUALLY. It goes on for > > hours, and today I noticed that it even occurs when he's napping. It used > > to happen occasionally, but now it's pretty constant. Also, when I bring > > it to his attention, he tries to stop it by placing one foot over the > > other, but he can't seem to control it. He has complained occasionally of > > tremors in his hands and he will have uncontrollable twitching and > flailing > > at night as well. Is this a " normal " symptom of MSA? > > > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe@y... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Greetings Belinda and ! During waking hours this problem is known as Restless Leg Syndrome. During sleep it is know as Periodic Limb Movement Disorder. They are not always related. Someone can have restless legs during the day, but no problems when sleeping. And the reverse can be true .. no problems during the day, but frequent movement of legs and arms during sleep. This is not tied to REM sleep, so is not REM Behavior Disorder. And as Belinda notes, medication can help. Sometimes the Parkinsons medications makes a difference. Other times drugs such as klonopin helps. By the way, PLMD does awaken (if only slightly) the sleeper, and results in poor sleep, eventually causing sleep deprivation. So, this does matter. Oh, and for me this was one of the early signs that something neurological was amiss. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Greetings Belinda and ! During waking hours this problem is known as Restless Leg Syndrome. During sleep it is know as Periodic Limb Movement Disorder. They are not always related. Someone can have restless legs during the day, but no problems when sleeping. And the reverse can be true .. no problems during the day, but frequent movement of legs and arms during sleep. This is not tied to REM sleep, so is not REM Behavior Disorder. And as Belinda notes, medication can help. Sometimes the Parkinsons medications makes a difference. Other times drugs such as klonopin helps. By the way, PLMD does awaken (if only slightly) the sleeper, and results in poor sleep, eventually causing sleep deprivation. So, this does matter. Oh, and for me this was one of the early signs that something neurological was amiss. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 , Is Shaky leg sydrome or Periodic Limb Movemnet Disorder part of Parkinson's disease? I mean is it a possible symptom? God Bless, Belinda > Greetings Belinda and ! > > During waking hours this problem is known as Restless Leg Syndrome. During > sleep it is know as Periodic Limb Movement Disorder. They are not always > related. Someone can have restless legs during the day, but no problems > when sleeping. And the reverse can be true .. no problems during the day, > but frequent movement of legs and arms during sleep. This is not tied to > REM sleep, so is not REM Behavior Disorder. > > And as Belinda notes, medication can help. Sometimes the Parkinsons > medications makes a difference. Other times drugs such as klonopin helps. > > By the way, PLMD does awaken (if only slightly) the sleeper, and results in > poor sleep, eventually causing sleep deprivation. So, this does matter. > > Oh, and for me this was one of the early signs that something neurological > was amiss. > > > Regards, > =jbf= > > B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 I read a document recently that concluded (as best I can remember), (a) people with PD and PD+ tend to have a higher occurrence of this than the normal population, and ( doctors should treat it more aggressively, as bad sleep degrades the quality of life. Regards, =jbf= B. Fisher Re: Restless Legs , Is Shaky leg sydrome or Periodic Limb Movemnet Disorder part of Parkinson's disease? I mean is it a possible symptom? God Bless, Belinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Jim: I was about to respond when I read your note. Ken had terrible restless legs and also arms when he slept BEFORE he was diagnosed and started to take Sinemet. After that, he almost never had those particular symptoms again unless his potassium level was off. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 > Peg and I (she's the one with MSA / SD) both report restless legs. Both of > us have been helped by taking extra calcium and magnesium in the evenings. > In Peg's case we have also given her an extra 1/2 sinemet and that has > seemed to help at times. > > Peg and Jim from Guam > > > > > Date: Sat, 13 Apr 2002 00:46:28 -0400 > From: " B. Fisher " > Subject: RE: Restless Legs > > I read a document recently that concluded (as best I can remember), (a) > people with PD and PD+ tend to have a higher occurrence of this than the > normal population, and ( doctors should treat it more aggressively, as bad > sleep degrades the quality of life. > > > Regards, > =jbf= > > B. Fisher > > > ******************************** > *** Peg & Jim > *** # 29 Cruz Heights > *** Ipan-Talofofo, Guam 96930-4736 > *** USA > *** > *** Note: Guam is 15 hours ahead of > *** Eastern Standard Time (EST). > *** 14 ahead of EDT. > ******************************** I take Mirapex for restless leg. It helps a lot. Rich Doonan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 Does "restless leg" syndrome also include moving the entire leg - such as restlessness, agitation? Bob has started to do this between 2:00 - 3:30 - 4:00 a.m. - it has really become bad - grabs and moves the covers, etc., then, after an hour and a half or so, he will eventually fall back asleep. Causes condom catheter to come off, etc. Any suggestions? We go to the neurologist tomorrow Thanks, Elaine Grimmesey grimmesey-e@... 805 893-2086 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 Does "restless leg" syndrome also include moving the entire leg - such as restlessness, agitation? Bob has started to do this between 2:00 - 3:30 - 4:00 a.m. - it has really become bad - grabs and moves the covers, etc., then, after an hour and a half or so, he will eventually fall back asleep. Causes condom catheter to come off, etc. Any suggestions? We go to the neurologist tomorrow Thanks, Elaine Grimmesey grimmesey-e@... 805 893-2086 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 Does "restless leg" syndrome also include moving the entire leg - such as restlessness, agitation? Bob has started to do this between 2:00 - 3:30 - 4:00 a.m. - it has really become bad - grabs and moves the covers, etc., then, after an hour and a half or so, he will eventually fall back asleep. Causes condom catheter to come off, etc. Any suggestions? We go to the neurologist tomorrow Thanks, Elaine Grimmesey grimmesey-e@... 805 893-2086 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 Elaine, Ask the neuro about it. Could be a med or just the disorder. Take care, Bill --------------------------------- BandEGrimmesey@... wrote: Does "restless leg" syndrome also include moving the entire leg - such as restlessness, agitation? Bob has started to do this between 2:00 - 3:30 - 4:00 a.m. - it has really become bad - grabs and moves the covers, etc., then, after an hour and a half or so, he will eventually fall back asleep. Causes condom catheter to come off, etc. Any suggestions? We go to the neurologist tomorrow Thanks, Elaine Grimmesey grimmesey-e@... 805 893-2086 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 Elaine, Ask the neuro about it. Could be a med or just the disorder. Take care, Bill --------------------------------- BandEGrimmesey@... wrote: Does "restless leg" syndrome also include moving the entire leg - such as restlessness, agitation? Bob has started to do this between 2:00 - 3:30 - 4:00 a.m. - it has really become bad - grabs and moves the covers, etc., then, after an hour and a half or so, he will eventually fall back asleep. Causes condom catheter to come off, etc. Any suggestions? We go to the neurologist tomorrow Thanks, Elaine Grimmesey grimmesey-e@... 805 893-2086 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 Elaine, Ask the neuro about it. Could be a med or just the disorder. Take care, Bill --------------------------------- BandEGrimmesey@... wrote: Does "restless leg" syndrome also include moving the entire leg - such as restlessness, agitation? Bob has started to do this between 2:00 - 3:30 - 4:00 a.m. - it has really become bad - grabs and moves the covers, etc., then, after an hour and a half or so, he will eventually fall back asleep. Causes condom catheter to come off, etc. Any suggestions? We go to the neurologist tomorrow Thanks, Elaine Grimmesey grimmesey-e@... 805 893-2086 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 Bob had a sleep disorder test at a sleep disorder center about three weeks ago (two weeks after heart attack, took him from Rehabilitation Center to sleep center) - he slept 1 1/2 hours all night - so don't think the results will be too revealing - in fact I know that they are not. Everything was abnormal, of course. I wish we could have one in the home - I've read that some of you have done this? Elaine Grimmesey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 Also ask about REM sleep disorder. There are doctors who specialize in sleep disorders and can be very helpful Marilyn in TN Reply-To: shydrager Date: Mon, 15 Apr 2002 17:23:11 -0400 To: shydrager Subject: Re: Restless Legs Elaine, Ask the neuro about it. Could be a med or just the disorder. Take care, Bill --------------------------------- BandEGrimmesey@... wrote: Does " restless leg " syndrome also include moving the entire leg - such as restlessness, agitation? Bob has started to do this between 2:00 - 3:30 - 4:00 a.m. - it has really become bad - grabs and moves the covers, etc., then, after an hour and a half or so, he will eventually fall back asleep. Causes condom catheter to come off, etc. Any suggestions? We go to the neurologist tomorrow Thanks, Elaine Grimmesey grimmesey-e@... 805 893-2086 If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 Also ask about REM sleep disorder. There are doctors who specialize in sleep disorders and can be very helpful Marilyn in TN Reply-To: shydrager Date: Mon, 15 Apr 2002 17:23:11 -0400 To: shydrager Subject: Re: Restless Legs Elaine, Ask the neuro about it. Could be a med or just the disorder. Take care, Bill --------------------------------- BandEGrimmesey@... wrote: Does " restless leg " syndrome also include moving the entire leg - such as restlessness, agitation? Bob has started to do this between 2:00 - 3:30 - 4:00 a.m. - it has really become bad - grabs and moves the covers, etc., then, after an hour and a half or so, he will eventually fall back asleep. Causes condom catheter to come off, etc. Any suggestions? We go to the neurologist tomorrow Thanks, Elaine Grimmesey grimmesey-e@... 805 893-2086 If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 Also ask about REM sleep disorder. There are doctors who specialize in sleep disorders and can be very helpful Marilyn in TN Reply-To: shydrager Date: Mon, 15 Apr 2002 17:23:11 -0400 To: shydrager Subject: Re: Restless Legs Elaine, Ask the neuro about it. Could be a med or just the disorder. Take care, Bill --------------------------------- BandEGrimmesey@... wrote: Does " restless leg " syndrome also include moving the entire leg - such as restlessness, agitation? Bob has started to do this between 2:00 - 3:30 - 4:00 a.m. - it has really become bad - grabs and moves the covers, etc., then, after an hour and a half or so, he will eventually fall back asleep. Causes condom catheter to come off, etc. Any suggestions? We go to the neurologist tomorrow Thanks, Elaine Grimmesey grimmesey-e@... 805 893-2086 If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 , It was one of the early symptoms that Warren had and his nuerologist put him on a med to help what he called " restless legs " . I'm sorry I don't remember the name of it. Now he's on Sinemet to help control twitching everywhere. If you have a nuerologist I suggest you call him or your regular Dr. S. Restless Legs > I have been noticing lately that Jeff has " unconscious " restlessness in his > legs when he's in a reclining position. It's not really twitching, but he > will rapidly rock his feet back and forth CONTINUALLY. It goes on for > hours, and today I noticed that it even occurs when he's napping. It used > to happen occasionally, but now it's pretty constant. Also, when I bring > it to his attention, he tries to stop it by placing one foot over the > other, but he can't seem to control it. He has complained occasionally of > tremors in his hands and he will have uncontrollable twitching and flailing > at night as well. Is this a " normal " symptom of MSA? > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
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