Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Krista, Thank you for sharing your story about your mother.. I am so sorry about your loss, my thoughts and prayers are with you and your family. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Krista, Thank you for sharing your story about your mother.. I am so sorry about your loss, my thoughts and prayers are with you and your family. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Dear Krista, Please accept our condolences on the loss of your mother. Our prayers are with you and your family at this time and the days and months to come. I am so happy that you were able to find this group and that it was of some comfort to you. Prayers and sympathy to you and yours, Jean & Chrissie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Dear Krista, Please accept our condolences on the loss of your mother. Our prayers are with you and your family at this time and the days and months to come. I am so happy that you were able to find this group and that it was of some comfort to you. Prayers and sympathy to you and yours, Jean & Chrissie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Krista: I am thinking of you at this time--it is hard to let go, but fond memories will help you in the future. Lou ReynoldsAt 10:43 PM 4/19/2002 +0000, you wrote: >Dear all > >Even though I am fairly new to this group(since February this year) >and don't know any of you personally, I feel it's appropiate to >finish the story of my mother here too. She died peacefully in her >sleep Wedensday night. We knew she was dying, but it came as a big >surprise that death was that near. I had visited her Wedensday >afternoon but she was sleeping most of the time and not really >responsive when she was awake. However when my sister came to see her >a couple of hours later she was awake and able to indicate yes and >no. The night before and that morning she had had terrible spasms, >which the nurses and caregivers had had a tough time getting under >control. This means that she had had quite a lot of anti-spasm >medicine and this probably affected her breathing. > >When my father went to bed at 11 o'clock she was sleeping peacefully, >her caregivers checked on her at 1 o'clock, she was still sleeping - >breathing normally they said. At 3.30 they came by again as they >always do at that time and they found her dead!!! She looked all >relaxed(which we think and hope means she didn't have any spasms when >she died). The weird thing is that my sister woke up(at her home) at >2 o'clock and the night after her death both my father and my sister >and my aunt woke up and couldn't sleep at 2 o'clock. Strange!!!!! > >We are all terribly sad and at the same time relieved that she >doesn't have to suffer anymore. The way she died was merciful, I am >glad that she didn't have to stuggle with death for days - she had >suffered enough the last 6 1/2 years. Even though she has not been >dead for 48 hours yet, the memories of what she was like and what she >looked like before MSA are coming back. Before her death I was afraid >that one only remembers the last years,(that of course brought the >family close together but these years were also a tough experience >for all of us -especially for my mother)the suffering and sorrow. But >to all of you out there, I can say that the happy memories come back >fast. > >My mother is still at home, her coffin is placed in " the best >parlour " with flowers and candles and will remain there until Tuesday >and the funeral. This might sound strange to some of you(and it is >not that common in Denmark either) but it was something people >did " in the days of old " and my father's wish. I think it has been >very therapeutic - even though she is gone she is still among us - if >you know what I mean. Today I actually sat next to her coffin crying >for a bit and it was a good feeling. (In Denmark it's not really >Spring yet and of course that is also one of the reasons why this has >been possible.) > >I am very grateful that I finally found this group(even though I wish >I had found it earlier) It has been such a relief to read about >personal experiences with MSA from a layman's point of view and not >only medical descriptions. I admire that many of you have such a >positive attitude when writing about MSA. I must admit that my >opinion is that this disease is the devil's work!!! I would be happy >to pass on experiences and advice to MSA patients from Denmark, so >feel free to refer them to me if anyone comes along. I think I might >send this internet address to the neurologist who diagnosed my >mother, then he can pass it on to future Danish MSA patients. > >Well, this message turned out to be a rather long one so I think I >will finish here!!! > > " Pools of sorrow, waves of joy >are drifting through my open mind, >possessing and caressing me. " > Lennon & McCartney > >Sincerely Krista Lauridsen, Denmark > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Krista: I am thinking of you at this time--it is hard to let go, but fond memories will help you in the future. Lou ReynoldsAt 10:43 PM 4/19/2002 +0000, you wrote: >Dear all > >Even though I am fairly new to this group(since February this year) >and don't know any of you personally, I feel it's appropiate to >finish the story of my mother here too. She died peacefully in her >sleep Wedensday night. We knew she was dying, but it came as a big >surprise that death was that near. I had visited her Wedensday >afternoon but she was sleeping most of the time and not really >responsive when she was awake. However when my sister came to see her >a couple of hours later she was awake and able to indicate yes and >no. The night before and that morning she had had terrible spasms, >which the nurses and caregivers had had a tough time getting under >control. This means that she had had quite a lot of anti-spasm >medicine and this probably affected her breathing. > >When my father went to bed at 11 o'clock she was sleeping peacefully, >her caregivers checked on her at 1 o'clock, she was still sleeping - >breathing normally they said. At 3.30 they came by again as they >always do at that time and they found her dead!!! She looked all >relaxed(which we think and hope means she didn't have any spasms when >she died). The weird thing is that my sister woke up(at her home) at >2 o'clock and the night after her death both my father and my sister >and my aunt woke up and couldn't sleep at 2 o'clock. Strange!!!!! > >We are all terribly sad and at the same time relieved that she >doesn't have to suffer anymore. The way she died was merciful, I am >glad that she didn't have to stuggle with death for days - she had >suffered enough the last 6 1/2 years. Even though she has not been >dead for 48 hours yet, the memories of what she was like and what she >looked like before MSA are coming back. Before her death I was afraid >that one only remembers the last years,(that of course brought the >family close together but these years were also a tough experience >for all of us -especially for my mother)the suffering and sorrow. But >to all of you out there, I can say that the happy memories come back >fast. > >My mother is still at home, her coffin is placed in " the best >parlour " with flowers and candles and will remain there until Tuesday >and the funeral. This might sound strange to some of you(and it is >not that common in Denmark either) but it was something people >did " in the days of old " and my father's wish. I think it has been >very therapeutic - even though she is gone she is still among us - if >you know what I mean. Today I actually sat next to her coffin crying >for a bit and it was a good feeling. (In Denmark it's not really >Spring yet and of course that is also one of the reasons why this has >been possible.) > >I am very grateful that I finally found this group(even though I wish >I had found it earlier) It has been such a relief to read about >personal experiences with MSA from a layman's point of view and not >only medical descriptions. I admire that many of you have such a >positive attitude when writing about MSA. I must admit that my >opinion is that this disease is the devil's work!!! I would be happy >to pass on experiences and advice to MSA patients from Denmark, so >feel free to refer them to me if anyone comes along. I think I might >send this internet address to the neurologist who diagnosed my >mother, then he can pass it on to future Danish MSA patients. > >Well, this message turned out to be a rather long one so I think I >will finish here!!! > > " Pools of sorrow, waves of joy >are drifting through my open mind, >possessing and caressing me. " > Lennon & McCartney > >Sincerely Krista Lauridsen, Denmark > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Krista, I do not know you at all, but my heart goes out to you and your family at this time. I agree, this disease seems like the devil's work, as my sister and I just today were remembering my dad before MSA, just a year or 2 ago. My great grandparents were laid out in coffins in the living room (of German descent-its how they did things back then), so its not strange at all. Just wanted to express sympathy to you. cindy b. I have lost my mother > Dear all > > Even though I am fairly new to this group(since February this year) > and don't know any of you personally, I feel it's appropiate to > finish the story of my mother here too. She died peacefully in her > sleep Wedensday night. We knew she was dying, but it came as a big > surprise that death was that near. I had visited her Wedensday > afternoon but she was sleeping most of the time and not really > responsive when she was awake. However when my sister came to see her > a couple of hours later she was awake and able to indicate yes and > no. The night before and that morning she had had terrible spasms, > which the nurses and caregivers had had a tough time getting under > control. This means that she had had quite a lot of anti-spasm > medicine and this probably affected her breathing. > > When my father went to bed at 11 o'clock she was sleeping peacefully, > her caregivers checked on her at 1 o'clock, she was still sleeping - > breathing normally they said. At 3.30 they came by again as they > always do at that time and they found her dead!!! She looked all > relaxed(which we think and hope means she didn't have any spasms when > she died). The weird thing is that my sister woke up(at her home) at > 2 o'clock and the night after her death both my father and my sister > and my aunt woke up and couldn't sleep at 2 o'clock. Strange!!!!! > > We are all terribly sad and at the same time relieved that she > doesn't have to suffer anymore. The way she died was merciful, I am > glad that she didn't have to stuggle with death for days - she had > suffered enough the last 6 1/2 years. Even though she has not been > dead for 48 hours yet, the memories of what she was like and what she > looked like before MSA are coming back. Before her death I was afraid > that one only remembers the last years,(that of course brought the > family close together but these years were also a tough experience > for all of us -especially for my mother)the suffering and sorrow. But > to all of you out there, I can say that the happy memories come back > fast. > > My mother is still at home, her coffin is placed in " the best > parlour " with flowers and candles and will remain there until Tuesday > and the funeral. This might sound strange to some of you(and it is > not that common in Denmark either) but it was something people > did " in the days of old " and my father's wish. I think it has been > very therapeutic - even though she is gone she is still among us - if > you know what I mean. Today I actually sat next to her coffin crying > for a bit and it was a good feeling. (In Denmark it's not really > Spring yet and of course that is also one of the reasons why this has > been possible.) > > I am very grateful that I finally found this group(even though I wish > I had found it earlier) It has been such a relief to read about > personal experiences with MSA from a layman's point of view and not > only medical descriptions. I admire that many of you have such a > positive attitude when writing about MSA. I must admit that my > opinion is that this disease is the devil's work!!! I would be happy > to pass on experiences and advice to MSA patients from Denmark, so > feel free to refer them to me if anyone comes along. I think I might > send this internet address to the neurologist who diagnosed my > mother, then he can pass it on to future Danish MSA patients. > > Well, this message turned out to be a rather long one so I think I > will finish here!!! > > " Pools of sorrow, waves of joy > are drifting through my open mind, > possessing and caressing me. " > Lennon & McCartney > > Sincerely Krista Lauridsen, Denmark > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Dear Krista: So sorry to hear of the loss of your dear mother. Our thoughts and prayers are with you and all your family. God Bless you all. Pat from Framingham, MA, USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Dear Krista: So sorry to hear of the loss of your dear mother. Our thoughts and prayers are with you and all your family. God Bless you all. Pat from Framingham, MA, USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Krista, I am so sorry to hear of your mother's passing. I lost my mother Joyce 17 months ago and I know how hard it is. I was glad to hear that some memories of your mother before MSA are coming back. That has been almost impossible for me, though I can still see her by the kitchen counter when I walked into the house. I will be thinking of you and your family and of your mother. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Krista, I am so sorry to hear of your mother's passing. I lost my mother Joyce 17 months ago and I know how hard it is. I was glad to hear that some memories of your mother before MSA are coming back. That has been almost impossible for me, though I can still see her by the kitchen counter when I walked into the house. I will be thinking of you and your family and of your mother. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Krista, Thank you for sharing the story of your mother's passing. As a caregiver, I worry that my husband will suffer and that his death will be a difficult one. You have helped to ease that fear. Your letter is sad, yet peaceful, and I hope that is how you are feeling. Our thoughts and prayers are with you and your family as you bid your mother a final farewell. Carol & Rob Lexington, Massachusetts > Dear all > > Even though I am fairly new to this group(since February this year) > and don't know any of you personally, I feel it's appropiate to > finish the story of my mother here too. She died peacefully in her > sleep Wedensday night. We knew she was dying, but it came as a big > surprise that death was that near. I had visited her Wedensday > afternoon but she was sleeping most of the time and not really > responsive when she was awake. However when my sister came to see her > a couple of hours later she was awake and able to indicate yes and > no. The night before and that morning she had had terrible spasms, > which the nurses and caregivers had had a tough time getting under > control. This means that she had had quite a lot of anti-spasm > medicine and this probably affected her breathing. > > When my father went to bed at 11 o'clock she was sleeping peacefully, > her caregivers checked on her at 1 o'clock, she was still sleeping - > breathing normally they said. At 3.30 they came by again as they > always do at that time and they found her dead!!! She looked all > relaxed(which we think and hope means she didn't have any spasms when > she died). The weird thing is that my sister woke up(at her home) at > 2 o'clock and the night after her death both my father and my sister > and my aunt woke up and couldn't sleep at 2 o'clock. Strange!!!!! > > We are all terribly sad and at the same time relieved that she > doesn't have to suffer anymore. The way she died was merciful, I am > glad that she didn't have to stuggle with death for days - she had > suffered enough the last 6 1/2 years. Even though she has not been > dead for 48 hours yet, the memories of what she was like and what she > looked like before MSA are coming back. Before her death I was afraid > that one only remembers the last years,(that of course brought the > family close together but these years were also a tough experience > for all of us -especially for my mother)the suffering and sorrow. But > to all of you out there, I can say that the happy memories come back > fast. > > My mother is still at home, her coffin is placed in " the best > parlour " with flowers and candles and will remain there until Tuesday > and the funeral. This might sound strange to some of you(and it is > not that common in Denmark either) but it was something people > did " in the days of old " and my father's wish. I think it has been > very therapeutic - even though she is gone she is still among us - if > you know what I mean. Today I actually sat next to her coffin crying > for a bit and it was a good feeling. (In Denmark it's not really > Spring yet and of course that is also one of the reasons why this has > been possible.) > > I am very grateful that I finally found this group(even though I wish > I had found it earlier) It has been such a relief to read about > personal experiences with MSA from a layman's point of view and not > only medical descriptions. I admire that many of you have such a > positive attitude when writing about MSA. I must admit that my > opinion is that this disease is the devil's work!!! I would be happy > to pass on experiences and advice to MSA patients from Denmark, so > feel free to refer them to me if anyone comes along. I think I might > send this internet address to the neurologist who diagnosed my > mother, then he can pass it on to future Danish MSA patients. > > Well, this message turned out to be a rather long one so I think I > will finish here!!! > > " Pools of sorrow, waves of joy > are drifting through my open mind, > possessing and caressing me. " > Lennon & McCartney > > Sincerely Krista Lauridsen, Denmark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Dear Krista, I am so sorry to hear of your mother's passing. I know that it also must be a blessing to know that she died peacefully. Your mother will always be with you in your heart. God bless you and your family, Belinda > Dear all > > Even though I am fairly new to this group(since February this year) > and don't know any of you personally, I feel it's appropiate to > finish the story of my mother here too. She died peacefully in her > sleep Wedensday night. We knew she was dying, but it came as a big > surprise that death was that near. I had visited her Wedensday > afternoon but she was sleeping most of the time and not really > responsive when she was awake. However when my sister came to see her > a couple of hours later she was awake and able to indicate yes and > no. The night before and that morning she had had terrible spasms, > which the nurses and caregivers had had a tough time getting under > control. This means that she had had quite a lot of anti-spasm > medicine and this probably affected her breathing. > > When my father went to bed at 11 o'clock she was sleeping peacefully, > her caregivers checked on her at 1 o'clock, she was still sleeping - > breathing normally they said. At 3.30 they came by again as they > always do at that time and they found her dead!!! She looked all > relaxed(which we think and hope means she didn't have any spasms when > she died). The weird thing is that my sister woke up(at her home) at > 2 o'clock and the night after her death both my father and my sister > and my aunt woke up and couldn't sleep at 2 o'clock. Strange!!!!! > > We are all terribly sad and at the same time relieved that she > doesn't have to suffer anymore. The way she died was merciful, I am > glad that she didn't have to stuggle with death for days - she had > suffered enough the last 6 1/2 years. Even though she has not been > dead for 48 hours yet, the memories of what she was like and what she > looked like before MSA are coming back. Before her death I was afraid > that one only remembers the last years,(that of course brought the > family close together but these years were also a tough experience > for all of us -especially for my mother)the suffering and sorrow. But > to all of you out there, I can say that the happy memories come back > fast. > > My mother is still at home, her coffin is placed in " the best > parlour " with flowers and candles and will remain there until Tuesday > and the funeral. This might sound strange to some of you(and it is > not that common in Denmark either) but it was something people > did " in the days of old " and my father's wish. I think it has been > very therapeutic - even though she is gone she is still among us - if > you know what I mean. Today I actually sat next to her coffin crying > for a bit and it was a good feeling. (In Denmark it's not really > Spring yet and of course that is also one of the reasons why this has > been possible.) > > I am very grateful that I finally found this group(even though I wish > I had found it earlier) It has been such a relief to read about > personal experiences with MSA from a layman's point of view and not > only medical descriptions. I admire that many of you have such a > positive attitude when writing about MSA. I must admit that my > opinion is that this disease is the devil's work!!! I would be happy > to pass on experiences and advice to MSA patients from Denmark, so > feel free to refer them to me if anyone comes along. I think I might > send this internet address to the neurologist who diagnosed my > mother, then he can pass it on to future Danish MSA patients. > > Well, this message turned out to be a rather long one so I think I > will finish here!!! > > " Pools of sorrow, waves of joy > are drifting through my open mind, > possessing and caressing me. " > Lennon & McCartney > > Sincerely Krista Lauridsen, Denmark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Dear Krista, I am so sorry to hear of your mother's passing. I know that it also must be a blessing to know that she died peacefully. Your mother will always be with you in your heart. God bless you and your family, Belinda > Dear all > > Even though I am fairly new to this group(since February this year) > and don't know any of you personally, I feel it's appropiate to > finish the story of my mother here too. She died peacefully in her > sleep Wedensday night. We knew she was dying, but it came as a big > surprise that death was that near. I had visited her Wedensday > afternoon but she was sleeping most of the time and not really > responsive when she was awake. However when my sister came to see her > a couple of hours later she was awake and able to indicate yes and > no. The night before and that morning she had had terrible spasms, > which the nurses and caregivers had had a tough time getting under > control. This means that she had had quite a lot of anti-spasm > medicine and this probably affected her breathing. > > When my father went to bed at 11 o'clock she was sleeping peacefully, > her caregivers checked on her at 1 o'clock, she was still sleeping - > breathing normally they said. At 3.30 they came by again as they > always do at that time and they found her dead!!! She looked all > relaxed(which we think and hope means she didn't have any spasms when > she died). The weird thing is that my sister woke up(at her home) at > 2 o'clock and the night after her death both my father and my sister > and my aunt woke up and couldn't sleep at 2 o'clock. Strange!!!!! > > We are all terribly sad and at the same time relieved that she > doesn't have to suffer anymore. The way she died was merciful, I am > glad that she didn't have to stuggle with death for days - she had > suffered enough the last 6 1/2 years. Even though she has not been > dead for 48 hours yet, the memories of what she was like and what she > looked like before MSA are coming back. Before her death I was afraid > that one only remembers the last years,(that of course brought the > family close together but these years were also a tough experience > for all of us -especially for my mother)the suffering and sorrow. But > to all of you out there, I can say that the happy memories come back > fast. > > My mother is still at home, her coffin is placed in " the best > parlour " with flowers and candles and will remain there until Tuesday > and the funeral. This might sound strange to some of you(and it is > not that common in Denmark either) but it was something people > did " in the days of old " and my father's wish. I think it has been > very therapeutic - even though she is gone she is still among us - if > you know what I mean. Today I actually sat next to her coffin crying > for a bit and it was a good feeling. (In Denmark it's not really > Spring yet and of course that is also one of the reasons why this has > been possible.) > > I am very grateful that I finally found this group(even though I wish > I had found it earlier) It has been such a relief to read about > personal experiences with MSA from a layman's point of view and not > only medical descriptions. I admire that many of you have such a > positive attitude when writing about MSA. I must admit that my > opinion is that this disease is the devil's work!!! I would be happy > to pass on experiences and advice to MSA patients from Denmark, so > feel free to refer them to me if anyone comes along. I think I might > send this internet address to the neurologist who diagnosed my > mother, then he can pass it on to future Danish MSA patients. > > Well, this message turned out to be a rather long one so I think I > will finish here!!! > > " Pools of sorrow, waves of joy > are drifting through my open mind, > possessing and caressing me. " > Lennon & McCartney > > Sincerely Krista Lauridsen, Denmark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Krista My thoughts are with you as you move through these days. May you find peace in knowing the suffering is now over. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 i am very sad for your loss but relieved it was without pain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Krista - You and your family our in my thoughts and prayers. I could relate to your words. Take care. Terry (in Iowa) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Krista - You and your family our in my thoughts and prayers. I could relate to your words. Take care. Terry (in Iowa) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Krista - You and your family our in my thoughts and prayers. I could relate to your words. Take care. Terry (in Iowa) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Krista, I'm so sorry to hear of your loss. I know the deep pain you are feeling. I still can't believe my daddy is gone. It's just not right. My thoughts and prayers are with you. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Krista, I'm so sorry to hear of your loss. I know the deep pain you are feeling. I still can't believe my daddy is gone. It's just not right. My thoughts and prayers are with you. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Krista, I'm so sorry to hear of your loss. I know the deep pain you are feeling. I still can't believe my daddy is gone. It's just not right. My thoughts and prayers are with you. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Krista, I am just now reading your message. We are truly sorry about your loss, but was glad to read that you are working on remembering your mother when she was her well self. We realized this weekend how quickly people forget that this body that does not work, used to be able to do great things. It has been difficult even for me to be willing to acknowledge that my husband and I can not do the things that we used to do. We held a celebration of my husband's 70 years this weekend. For the party, we asked people to share pictures of stories about him. As those items came to us, we were surprised to hear our nine year old grand-daughter say that she was surprised that Papa could walk at one time. She has grown up with his illness and really does not remember the good times. Please know that many of us are thinking of you and your family. Marilyn in TN > > Reply-To: shydrager > Date: Fri, 19 Apr 2002 22:43:34 -0000 > To: shydrager > Subject: I have lost my mother > > Dear all > > Even though I am fairly new to this group(since February this year) > and don't know any of you personally, I feel it's appropiate to > finish the story of my mother here too. She died peacefully in her > sleep Wedensday night. We knew she was dying, but it came as a big > surprise that death was that near. I had visited her Wedensday > afternoon but she was sleeping most of the time and not really > responsive when she was awake. However when my sister came to see her > a couple of hours later she was awake and able to indicate yes and > no. The night before and that morning she had had terrible spasms, > which the nurses and caregivers had had a tough time getting under > control. This means that she had had quite a lot of anti-spasm > medicine and this probably affected her breathing. > > When my father went to bed at 11 o'clock she was sleeping peacefully, > her caregivers checked on her at 1 o'clock, she was still sleeping - > breathing normally they said. At 3.30 they came by again as they > always do at that time and they found her dead!!! She looked all > relaxed(which we think and hope means she didn't have any spasms when > she died). The weird thing is that my sister woke up(at her home) at > 2 o'clock and the night after her death both my father and my sister > and my aunt woke up and couldn't sleep at 2 o'clock. Strange!!!!! > > We are all terribly sad and at the same time relieved that she > doesn't have to suffer anymore. The way she died was merciful, I am > glad that she didn't have to stuggle with death for days - she had > suffered enough the last 6 1/2 years. Even though she has not been > dead for 48 hours yet, the memories of what she was like and what she > looked like before MSA are coming back. Before her death I was afraid > that one only remembers the last years,(that of course brought the > family close together but these years were also a tough experience > for all of us -especially for my mother)the suffering and sorrow. But > to all of you out there, I can say that the happy memories come back > fast. > > My mother is still at home, her coffin is placed in " the best > parlour " with flowers and candles and will remain there until Tuesday > and the funeral. This might sound strange to some of you(and it is > not that common in Denmark either) but it was something people > did " in the days of old " and my father's wish. I think it has been > very therapeutic - even though she is gone she is still among us - if > you know what I mean. Today I actually sat next to her coffin crying > for a bit and it was a good feeling. (In Denmark it's not really > Spring yet and of course that is also one of the reasons why this has > been possible.) > > I am very grateful that I finally found this group(even though I wish > I had found it earlier) It has been such a relief to read about > personal experiences with MSA from a layman's point of view and not > only medical descriptions. I admire that many of you have such a > positive attitude when writing about MSA. I must admit that my > opinion is that this disease is the devil's work!!! I would be happy > to pass on experiences and advice to MSA patients from Denmark, so > feel free to refer them to me if anyone comes along. I think I might > send this internet address to the neurologist who diagnosed my > mother, then he can pass it on to future Danish MSA patients. > > Well, this message turned out to be a rather long one so I think I > will finish here!!! > > " Pools of sorrow, waves of joy > are drifting through my open mind, > possessing and caressing me. " > Lennon & McCartney > > Sincerely Krista Lauridsen, Denmark > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Krista, I am just now reading your message. We are truly sorry about your loss, but was glad to read that you are working on remembering your mother when she was her well self. We realized this weekend how quickly people forget that this body that does not work, used to be able to do great things. It has been difficult even for me to be willing to acknowledge that my husband and I can not do the things that we used to do. We held a celebration of my husband's 70 years this weekend. For the party, we asked people to share pictures of stories about him. As those items came to us, we were surprised to hear our nine year old grand-daughter say that she was surprised that Papa could walk at one time. She has grown up with his illness and really does not remember the good times. Please know that many of us are thinking of you and your family. Marilyn in TN > > Reply-To: shydrager > Date: Fri, 19 Apr 2002 22:43:34 -0000 > To: shydrager > Subject: I have lost my mother > > Dear all > > Even though I am fairly new to this group(since February this year) > and don't know any of you personally, I feel it's appropiate to > finish the story of my mother here too. She died peacefully in her > sleep Wedensday night. We knew she was dying, but it came as a big > surprise that death was that near. I had visited her Wedensday > afternoon but she was sleeping most of the time and not really > responsive when she was awake. However when my sister came to see her > a couple of hours later she was awake and able to indicate yes and > no. The night before and that morning she had had terrible spasms, > which the nurses and caregivers had had a tough time getting under > control. This means that she had had quite a lot of anti-spasm > medicine and this probably affected her breathing. > > When my father went to bed at 11 o'clock she was sleeping peacefully, > her caregivers checked on her at 1 o'clock, she was still sleeping - > breathing normally they said. At 3.30 they came by again as they > always do at that time and they found her dead!!! She looked all > relaxed(which we think and hope means she didn't have any spasms when > she died). The weird thing is that my sister woke up(at her home) at > 2 o'clock and the night after her death both my father and my sister > and my aunt woke up and couldn't sleep at 2 o'clock. Strange!!!!! > > We are all terribly sad and at the same time relieved that she > doesn't have to suffer anymore. The way she died was merciful, I am > glad that she didn't have to stuggle with death for days - she had > suffered enough the last 6 1/2 years. Even though she has not been > dead for 48 hours yet, the memories of what she was like and what she > looked like before MSA are coming back. Before her death I was afraid > that one only remembers the last years,(that of course brought the > family close together but these years were also a tough experience > for all of us -especially for my mother)the suffering and sorrow. But > to all of you out there, I can say that the happy memories come back > fast. > > My mother is still at home, her coffin is placed in " the best > parlour " with flowers and candles and will remain there until Tuesday > and the funeral. This might sound strange to some of you(and it is > not that common in Denmark either) but it was something people > did " in the days of old " and my father's wish. I think it has been > very therapeutic - even though she is gone she is still among us - if > you know what I mean. Today I actually sat next to her coffin crying > for a bit and it was a good feeling. (In Denmark it's not really > Spring yet and of course that is also one of the reasons why this has > been possible.) > > I am very grateful that I finally found this group(even though I wish > I had found it earlier) It has been such a relief to read about > personal experiences with MSA from a layman's point of view and not > only medical descriptions. I admire that many of you have such a > positive attitude when writing about MSA. I must admit that my > opinion is that this disease is the devil's work!!! I would be happy > to pass on experiences and advice to MSA patients from Denmark, so > feel free to refer them to me if anyone comes along. I think I might > send this internet address to the neurologist who diagnosed my > mother, then he can pass it on to future Danish MSA patients. > > Well, this message turned out to be a rather long one so I think I > will finish here!!! > > " Pools of sorrow, waves of joy > are drifting through my open mind, > possessing and caressing me. " > Lennon & McCartney > > Sincerely Krista Lauridsen, Denmark > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Krista, I am just now reading your message. We are truly sorry about your loss, but was glad to read that you are working on remembering your mother when she was her well self. We realized this weekend how quickly people forget that this body that does not work, used to be able to do great things. It has been difficult even for me to be willing to acknowledge that my husband and I can not do the things that we used to do. We held a celebration of my husband's 70 years this weekend. For the party, we asked people to share pictures of stories about him. As those items came to us, we were surprised to hear our nine year old grand-daughter say that she was surprised that Papa could walk at one time. She has grown up with his illness and really does not remember the good times. Please know that many of us are thinking of you and your family. Marilyn in TN > > Reply-To: shydrager > Date: Fri, 19 Apr 2002 22:43:34 -0000 > To: shydrager > Subject: I have lost my mother > > Dear all > > Even though I am fairly new to this group(since February this year) > and don't know any of you personally, I feel it's appropiate to > finish the story of my mother here too. She died peacefully in her > sleep Wedensday night. We knew she was dying, but it came as a big > surprise that death was that near. I had visited her Wedensday > afternoon but she was sleeping most of the time and not really > responsive when she was awake. However when my sister came to see her > a couple of hours later she was awake and able to indicate yes and > no. The night before and that morning she had had terrible spasms, > which the nurses and caregivers had had a tough time getting under > control. This means that she had had quite a lot of anti-spasm > medicine and this probably affected her breathing. > > When my father went to bed at 11 o'clock she was sleeping peacefully, > her caregivers checked on her at 1 o'clock, she was still sleeping - > breathing normally they said. At 3.30 they came by again as they > always do at that time and they found her dead!!! She looked all > relaxed(which we think and hope means she didn't have any spasms when > she died). The weird thing is that my sister woke up(at her home) at > 2 o'clock and the night after her death both my father and my sister > and my aunt woke up and couldn't sleep at 2 o'clock. Strange!!!!! > > We are all terribly sad and at the same time relieved that she > doesn't have to suffer anymore. The way she died was merciful, I am > glad that she didn't have to stuggle with death for days - she had > suffered enough the last 6 1/2 years. Even though she has not been > dead for 48 hours yet, the memories of what she was like and what she > looked like before MSA are coming back. Before her death I was afraid > that one only remembers the last years,(that of course brought the > family close together but these years were also a tough experience > for all of us -especially for my mother)the suffering and sorrow. But > to all of you out there, I can say that the happy memories come back > fast. > > My mother is still at home, her coffin is placed in " the best > parlour " with flowers and candles and will remain there until Tuesday > and the funeral. This might sound strange to some of you(and it is > not that common in Denmark either) but it was something people > did " in the days of old " and my father's wish. I think it has been > very therapeutic - even though she is gone she is still among us - if > you know what I mean. Today I actually sat next to her coffin crying > for a bit and it was a good feeling. (In Denmark it's not really > Spring yet and of course that is also one of the reasons why this has > been possible.) > > I am very grateful that I finally found this group(even though I wish > I had found it earlier) It has been such a relief to read about > personal experiences with MSA from a layman's point of view and not > only medical descriptions. I admire that many of you have such a > positive attitude when writing about MSA. I must admit that my > opinion is that this disease is the devil's work!!! I would be happy > to pass on experiences and advice to MSA patients from Denmark, so > feel free to refer them to me if anyone comes along. I think I might > send this internet address to the neurologist who diagnosed my > mother, then he can pass it on to future Danish MSA patients. > > Well, this message turned out to be a rather long one so I think I > will finish here!!! > > " Pools of sorrow, waves of joy > are drifting through my open mind, > possessing and caressing me. " > Lennon & McCartney > > Sincerely Krista Lauridsen, Denmark > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
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