Re: My MCS/ Implant story part 2

[Guest guest]

Hi again..

I should add I had very bad EMF. At one time, I couldn't talk on the phone ( I still have to gas out anything new like a computer, phone ..TV, but when the total load is down I am very tolerant of my gassed out pleasures like my laptop and some mindless telli

I didn't want to go into all the gross physical details of the things that were happening to my body as I was watching myself die. There is no question in my mind, I would have only lasted a few more months tops back then before alternative medicine treatment.

After the chemical mistake was put in the ductwork and I lost all I gained only to be worse and start over, I developed new illnesses like very severe hypoglycemia..and worse brain inflammation. I can't tell you how many times I went down like a rock, but someone always found me before it was too late and figured it out...before I passed out.

It's quite scary to be homeless and so sick. I've met so many MCS people in this predicament. Tragic.

About a year and a half after my dad died and my husband was in the hospital, I developed UC. (I also couldn't visit my husband in the hospital because I can't go in there). the stress of that and trying to explain it to the medical people! I had to seek treatment for the UC since I didn't know what it was yet and felt I was in trouble, so hired someone to get me to the out of state clinic. That was quite a trip experience. I was away two months for that. I've been on steroids ever since because I didn't tolerate the other conventional meds (even compounded).. I do get relapses with that. I tried acupuncture but for some reason it works in reverse for the UC. I'm still trying to find additional help there other than diet which is crucial.

The steroids are horrible. They affect my personality big time, cause debilitating depressions, as well as the other things we all know they do to our bodies and immune system.. vision ..etc.

Usually I'm buried in paperwork in my office, dealing with the system on all levels. When my dad was alive, for my mother, my husband and myself.. plenty of work to do.. Spent a couple of hours on the phone with my health insurance company today and two yesterday... appeals, appeals, appeals. Too much bureaucracy.. ridiculous system. But I fight tooth and nail. They've taken enough, as long as I can still function I'll fight for my rights as well as for my family.

I miss more than I can say, what we take for granted like being with people we choose.. Independence to be able to go food shopping... something as simple as that. Having lots of animals, doing rescue work, being there for those I have loved. Contributing to society in a positive manor.... just some examples. Sometimes my need to "get out" wins over what's left of my intellect, and I'll go to Whole Foods which I can handle for about 20 minutes and just be sick for the day but nothing life threatening

[Guest guest]

~

I am so glad you wrote your story....at least part of it......

I am so sorry you go thru soooo much.

Ilena on the Humantics Foundation site has many of our

stories on her site, and MyImplantStory, Gretchen does

on her site, would you consider letting them post your

story ? You dont have to use your real name if you rather

stay anonymous, or can just use your first name.

It helps get the stories out there to inform others

what actually happens to people from implanted devices.

Had I read all their stories pre implant, I would have

NEVER done it to begin with.......

I feel if we can save one more person from going thru

what we have, then we are doing good.

You know, WE are the truth !

Anyone else willing to tell their story, please, please DO !

Opening up, I hope, has freed you some.....

Keep on writing !

Love N Hugs N HOPE ~

Dede

When the power of love

overcomes the love of power

the world will know peace.

~ Jimi Hendrix

Re: My MCS/ Implant story part 2

Hi again..

I should add I had very bad EMF. At one time, I couldn't talk on the phone ( I still have to gas out anything new like a computer, phone ..TV, but when the total load is down I am very tolerant of my gassed out pleasures like my laptop and some mindless telli

I didn't want to go into all the gross physical details of the things that were happening to my body as I was watching myself die. There is no question in my mind, I would have only lasted a few more months tops back then before alternative medicine treatment.

After the chemical mistake was put in the ductwork and I lost all I gained only to be worse and start over, I developed new illnesses like very severe hypoglycemia..and worse brain inflammation. I can't tell you how many times I went down like a rock, but someone always found me before it was too late and figured it out...before I passed out.

It's quite scary to be homeless and so sick. I've met so many MCS people in this predicament. Tragic.

About a year and a half after my dad died and my husband was in the hospital, I developed UC. (I also couldn't visit my husband in the hospital because I can't go in there). the stress of that and trying to explain it to the medical people! I had to seek treatment for the UC since I didn't know what it was yet and felt I was in trouble, so hired someone to get me to the out of state clinic. That was quite a trip experience. I was away two months for that. I've been on steroids ever since because I didn't tolerate the other conventional meds (even compounded).. I do get relapses with that. I tried acupuncture but for some reason it works in reverse for the UC. I'm still trying to find additional help there other than diet which is crucial.

The steroids are horrible. They affect my personality big time, cause debilitating depressions, as well as the other things we all know they do to our bodies and immune system.. vision ..etc.

Usually I'm buried in paperwork in my office, dealing with the system on all levels. When my dad was alive, for my mother, my husband and myself.. plenty of work to do.. Spent a couple of hours on the phone with my health insurance company today and two yesterday... appeals, appeals, appeals. Too much bureaucracy.. ridiculous system. But I fight tooth and nail. They've taken enough, as long as I can still function I'll fight for my rights as well as for my family.

I miss more than I can say, what we take for granted like being with people we choose.. Independence to be able to go food shopping... something as simple as that. Having lots of animals, doing rescue work, being there for those I have loved. Contributing to society in a positive manor.... just some examples. Sometimes my need to "get out" wins over what's left of my intellect, and I'll go to Whole Foods which I can handle for about 20 minutes and just be sick for the day but nothing life threatening