Re: [Deborah and BelindaMSA] Re: RE : (MSA) : DEBORAH

[Guest guest]

After reading the posts from you gals I feel a bit like Alice as she spoke

to the Queen of Hearts.

Which way do I go?

-- Barb

"Love may be priceless, but it demands a huge expenditure of

time." --Suzanne Fields

[Guest guest]

Barb,

As long as you keep laughing, go whatever way that feels right. You have

earned the right.

We suffer so much from these various forms of PD+ whether we are the

patient or the caregiver. So much of our time is spent in pain and

suffering and dealing with the everyday reality that is put in front of us.

With our bodies supplying all the negativity and anyone could possibly think

that " someone else " could handle in a lifetime, we have no choice but to try

and get through as best we can. We are all crying inside.

We hurt for ourselves, or love ones who may or may not understand what we

go through and we grieve for all the " might have been's. " A lot of us,

including myself, have chosen not to respond in anger but to accept that God

has purpose and meaning for our lives and he in his infinite wisdom will use

us for his good. So many times I have said and have herd others say, " Why

me? " with the answer always being, " Why not me. "

I was enraged yesterday when a person who has no idea what this disease is

all about told my husband and myself, " What is the use in winning the battle

if you are going to lose the war? " It took a while for this statement to

sink in and when it did I was surprised by how much it bothered me.

WHAT DIFFERENCE? I'll tell you what difference.... the difference is that

every battle WE win may be one less battle someone else does not have to

fight or does not have to suffer so much when they fight because someone has

gone before them and might have an answer to help them through.

The point I am trying to make is that I refuse to give in to this disease

and become it's victim. I will laugh at it, fight it and take charge of it

in every way I know how. Humor is not a disguise that I hide behind but an

armor that I use in combating it.

We have to find things to laugh at. We have to dig deep to find joy.

This disease that is taking our lives or our loved ones lives can't take our

spirit or our hope if we don't let it. So lets keep sharing the joy that we

can find all the while supporting one another through all the negatives that

are laid out in front of us everyday.

Hugs & Warm Fuzzies

Deborah aka Tenacity Wins

After reading the posts from you gals I feel a bit like Alice as she

spoke to the Queen of Hearts.

Which way do I go?

[image]

-- Barb

" Love may be priceless, but it demands a huge expenditure of time. "

--Suzanne Fields

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Barb,

As long as you keep laughing, go whatever way that feels right. You have

earned the right.

We suffer so much from these various forms of PD+ whether we are the

patient or the caregiver. So much of our time is spent in pain and

suffering and dealing with the everyday reality that is put in front of us.

With our bodies supplying all the negativity and anyone could possibly think

that " someone else " could handle in a lifetime, we have no choice but to try

and get through as best we can. We are all crying inside.

We hurt for ourselves, or love ones who may or may not understand what we

go through and we grieve for all the " might have been's. " A lot of us,

including myself, have chosen not to respond in anger but to accept that God

has purpose and meaning for our lives and he in his infinite wisdom will use

us for his good. So many times I have said and have herd others say, " Why

me? " with the answer always being, " Why not me. "

I was enraged yesterday when a person who has no idea what this disease is

all about told my husband and myself, " What is the use in winning the battle

if you are going to lose the war? " It took a while for this statement to

sink in and when it did I was surprised by how much it bothered me.

WHAT DIFFERENCE? I'll tell you what difference.... the difference is that

every battle WE win may be one less battle someone else does not have to

fight or does not have to suffer so much when they fight because someone has

gone before them and might have an answer to help them through.

The point I am trying to make is that I refuse to give in to this disease

and become it's victim. I will laugh at it, fight it and take charge of it

in every way I know how. Humor is not a disguise that I hide behind but an

armor that I use in combating it.

We have to find things to laugh at. We have to dig deep to find joy.

This disease that is taking our lives or our loved ones lives can't take our

spirit or our hope if we don't let it. So lets keep sharing the joy that we

can find all the while supporting one another through all the negatives that

are laid out in front of us everyday.

Hugs & Warm Fuzzies

Deborah aka Tenacity Wins

After reading the posts from you gals I feel a bit like Alice as she

spoke to the Queen of Hearts.

Which way do I go?

[image]

-- Barb

" Love may be priceless, but it demands a huge expenditure of time. "

--Suzanne Fields

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Barb,

As long as you keep laughing, go whatever way that feels right. You have

earned the right.

We suffer so much from these various forms of PD+ whether we are the

patient or the caregiver. So much of our time is spent in pain and

suffering and dealing with the everyday reality that is put in front of us.

With our bodies supplying all the negativity and anyone could possibly think

that " someone else " could handle in a lifetime, we have no choice but to try

and get through as best we can. We are all crying inside.

We hurt for ourselves, or love ones who may or may not understand what we

go through and we grieve for all the " might have been's. " A lot of us,

including myself, have chosen not to respond in anger but to accept that God

has purpose and meaning for our lives and he in his infinite wisdom will use

us for his good. So many times I have said and have herd others say, " Why

me? " with the answer always being, " Why not me. "

I was enraged yesterday when a person who has no idea what this disease is

all about told my husband and myself, " What is the use in winning the battle

if you are going to lose the war? " It took a while for this statement to

sink in and when it did I was surprised by how much it bothered me.

WHAT DIFFERENCE? I'll tell you what difference.... the difference is that

every battle WE win may be one less battle someone else does not have to

fight or does not have to suffer so much when they fight because someone has

gone before them and might have an answer to help them through.

The point I am trying to make is that I refuse to give in to this disease

and become it's victim. I will laugh at it, fight it and take charge of it

in every way I know how. Humor is not a disguise that I hide behind but an

armor that I use in combating it.

We have to find things to laugh at. We have to dig deep to find joy.

This disease that is taking our lives or our loved ones lives can't take our

spirit or our hope if we don't let it. So lets keep sharing the joy that we

can find all the while supporting one another through all the negatives that

are laid out in front of us everyday.

Hugs & Warm Fuzzies

Deborah aka Tenacity Wins

After reading the posts from you gals I feel a bit like Alice as she

spoke to the Queen of Hearts.

Which way do I go?

[image]

-- Barb

" Love may be priceless, but it demands a huge expenditure of time. "

--Suzanne Fields

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Deborah,

I like the way you think! :>)

God Bless,

Belinda

> Barb,

>

> As long as you keep laughing, go whatever way that feels right.

You have

> earned the right.

>

> We suffer so much from these various forms of PD+ whether we are

the

> patient or the caregiver. So much of our time is spent in pain and

> suffering and dealing with the everyday reality that is put in

front of us.

> With our bodies supplying all the negativity and anyone could

possibly think

> that " someone else " could handle in a lifetime, we have no choice

but to try

> and get through as best we can. We are all crying inside.

>

> We hurt for ourselves, or love ones who may or may not understand

what we

> go through and we grieve for all the " might have been's. " A lot

of us,

> including myself, have chosen not to respond in anger but to accept

that God

> has purpose and meaning for our lives and he in his infinite wisdom

will use

> us for his good. So many times I have said and have herd others

say, " Why

> me? " with the answer always being, " Why not me. "

>

> I was enraged yesterday when a person who has no idea what this

disease is

> all about told my husband and myself, " What is the use in winning

the battle

> if you are going to lose the war? " It took a while for this

statement to

> sink in and when it did I was surprised by how much it bothered me.

>

> WHAT DIFFERENCE? I'll tell you what difference.... the difference

is that

> every battle WE win may be one less battle someone else does not

have to

> fight or does not have to suffer so much when they fight because

someone has

> gone before them and might have an answer to help them through.

>

> The point I am trying to make is that I refuse to give in to this

disease

> and become it's victim. I will laugh at it, fight it and take

charge of it

> in every way I know how. Humor is not a disguise that I hide

behind but an

> armor that I use in combating it.

>

> We have to find things to laugh at. We have to dig deep to find

joy.

> This disease that is taking our lives or our loved ones lives can't

take our

> spirit or our hope if we don't let it. So lets keep sharing the

joy that we

> can find all the while supporting one another through all the

negatives that

> are laid out in front of us everyday.

>

> Hugs & Warm Fuzzies

> Deborah aka Tenacity Wins

>

>

>

> After reading the posts from you gals I feel a bit like Alice as she

> spoke to the Queen of Hearts.

>

> Which way do I go?

>

> [image]

>

> -- Barb

> " Love may be priceless, but it demands a huge expenditure of

time. "

> --Suzanne Fields

>

>

>

>

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger:

http://messenger.msn.com