Re: Frustrated - Deborah/Tenacity

[Guest guest]

Hang on sweetie, we are all pulling for you. Your story isn't over yet!

Hugs,

Pam.

P.S. Everyone can read Deborah's story in the Charlotte Observer online.

http://www.charlotte.com/mld/charlotte/news/special_packages/deep_inside_deb

orahs_brain/

Frustrated

> Hi Everyone, Maybe someone can help me help the doctors figure this one

out.

>

> I am miserable. I am back in the hospital again with a rash covering my

> body head to toe. I burn and itch. My skin is bright red. My

fingernails

> have almost no color. My muscles hurt and the joints in my body feel like

I

> have been hit with a baseball bat every time I move anything.

>

> So far, CAT scan is normal, chest x-ray is normal, white blood cell

count

> is normal. glucose level is high, iron level low, cholesterol is high. I

> have been running a temperature up to 103 degrees though my normal temp is

> 97.4 The infectious disease specialist almost went rounds with

this

> morning when he told that I couldn't have a normal temp of 97.4 and

> that he goes by the standard and 101 is low grade no matter what we think

my

> normal temp is.

>

> Strep culture came back normal.

>

> What should we do? We have an internest and infectious disease doc that

> has showed up. We have been waiting for 2 days for the dermatologist and

> neurologist and rhumatologist to show up. This is the 3ed out break of

this

> rash since February. We are at a loss to all of this an I am sick of

> hurting and itching and being the receipent of any more " I really don't

> know's " from the docs. Surely there is something that they can do to

> figure this out! Today marks my 4th hospitalization and my 27th day in

the

> hospital since Dec. 20. Enough is enough.

>

> Deborah

> aka Tenacity