Re: Marg and living in BC; my grandfather

[Guest guest]

Aletta,

When I came to BC 27years ago I thought it was the best place in the world to live.Even then I thought health care was`nt as good as at home (England).Over the years it`s got worse and worse and now I cant believe how cruel our health authority is .They have decided to close down our Intermediate care home -a lovely `home` to 20 residents , given them 30 days to find somewhere else or be sent up to our local hospital until they can be placed somewhere We have been protesting madly as you may have seen on TV or read in the papers .We just hope so many people will protest that the government will be shamed into caring for our sick and elderly Some hope! I feel so sorry for the people in Kimberley who have lost their hospital This goverment has got to be stopped before they get todo too much more damage As to the Mayo clinic ,I guess I`m looking for someone who really knows about SDS/MSA to be able to tell me one way or another what is really wrong with me but no I`m not going to go if the cost is too much.....I plan to go to the UK and see Prof Mathias instead.I dont think I can really rest until I have seen an expert and as I dontspend a lot of money on myself usually I think I will be good to myself this one time and then I can go back and manage my care through my GP.Well I better stop rambling on Thanks for caring Aletta I really appreciate your postings and all the advice you share goodnight for today,

Marg Manson.

mesaletta wrote: Marg:Even if you go to the Mayo, what will you have achieved, unless you can afford to live in the US the treatments available to you will not improve. Think hard before you spend the money, you might be better off spending it on PT, better foods, rainy day fund. I too am frightened by the changes in health care, and I know the treatment I've been getting is sub-standard at best. I'm terrified of losing ground because there will not be long or acute care beds for us, and our illness has no support group within reach. If you have a good GP put him/her in contact with resources in the states (mine is internet friendly, and willing to do the reading). More testing won't cure you, treatment is still symptomatic, a well informed GP can manage that part nicely. Even if the grass is greener on the other side, can we afford it, will it improve your life or just take precious funds and moments away?Of course, if you can afford it, go girl.If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe

[Guest guest]

Marg,

I think if you can afford it peace of mind can be priceless. I know

my doctor has me going for a second opinion only because the disease

is terminal.

God bless,

Belinda

Marg:

> Even if you go to the Mayo, what will you have achieved, unless you

> can afford to live in the US the treatments available to you will

not

> improve. Think hard before you spend the money, you might be better

> off spending it on PT, better foods, rainy day fund. I too am

> frightened by the changes in health care, and I know the treatment

> I've been getting is sub-standard at best. I'm terrified of losing

> ground because there will not be long or acute care beds for us,

and

> our illness has no support group within reach. If you have a good

GP

> put him/her in contact with resources in the states (mine is

internet

> friendly, and willing to do the reading). More testing won't cure

you,

> treatment is still symptomatic, a well informed GP can manage that

> part nicely. Even if the grass is greener on the other side, can we

> afford it, will it improve your life or just take precious funds

and

> moments away?

>

> Of course, if you can afford it, go girl.

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe@y...

>

>

>

>

>

[Guest guest]

belinda

<I do believe my mind would be more at peace if I had as firm a diagnosis as possible .Then I CCould put all my energy into fighting it rather than putting a lot of time and energy into trying to find a reasonably knowlegable Doc and in trying to find solutions to my symptoms. This group has been so helpful ..just reading the postings has helped. When and where do you go for your second opinion?

Love

Marg Manson:

Marg

,I think if you can afford it peace of mind can be priceless. I know my doctor has me going for a second opinion only because the disease is terminal. God bless,Belinda Marg:> Even if you go to the Mayo, what will you have achieved, unless you > can afford to live in the US the treatments available to you will not > improve. Think hard before you spend the money, you might be better > off spending it on PT, better foods, rainy day fund. I too am > frightened by the changes in health care, and I know the treatment > I've been getting is sub-standard at best. I'm terrified of losing > ground because there will not be long or acute care beds for us, and > our illness has no support group within reach. If you have a good GP > put him/her in contact with resources in the states (mine is internet > friendly, and willing to do the reading). More testing won't cure you, > treatment is still symptomatic, a well informed GP can manage that > part nicely. Even if the grass is greener on the other side, can we > afford it, will it improve your life or just take precious funds and > moments away?> > Of course, if you can afford it, go girl.> > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe@y...> > > > >

[Guest guest]

belinda

<I do believe my mind would be more at peace if I had as firm a diagnosis as possible .Then I CCould put all my energy into fighting it rather than putting a lot of time and energy into trying to find a reasonably knowlegable Doc and in trying to find solutions to my symptoms. This group has been so helpful ..just reading the postings has helped. When and where do you go for your second opinion?

Love

Marg Manson:

Marg

,I think if you can afford it peace of mind can be priceless. I know my doctor has me going for a second opinion only because the disease is terminal. God bless,Belinda Marg:> Even if you go to the Mayo, what will you have achieved, unless you > can afford to live in the US the treatments available to you will not > improve. Think hard before you spend the money, you might be better > off spending it on PT, better foods, rainy day fund. I too am > frightened by the changes in health care, and I know the treatment > I've been getting is sub-standard at best. I'm terrified of losing > ground because there will not be long or acute care beds for us, and > our illness has no support group within reach. If you have a good GP > put him/her in contact with resources in the states (mine is internet > friendly, and willing to do the reading). More testing won't cure you, > treatment is still symptomatic, a well informed GP can manage that > part nicely. Even if the grass is greener on the other side, can we > afford it, will it improve your life or just take precious funds and > moments away?> > Of course, if you can afford it, go girl.> > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe@y...> > > > >

[Guest guest]

belinda

<I do believe my mind would be more at peace if I had as firm a diagnosis as possible .Then I CCould put all my energy into fighting it rather than putting a lot of time and energy into trying to find a reasonably knowlegable Doc and in trying to find solutions to my symptoms. This group has been so helpful ..just reading the postings has helped. When and where do you go for your second opinion?

Love

Marg Manson:

Marg

,I think if you can afford it peace of mind can be priceless. I know my doctor has me going for a second opinion only because the disease is terminal. God bless,Belinda Marg:> Even if you go to the Mayo, what will you have achieved, unless you > can afford to live in the US the treatments available to you will not > improve. Think hard before you spend the money, you might be better > off spending it on PT, better foods, rainy day fund. I too am > frightened by the changes in health care, and I know the treatment > I've been getting is sub-standard at best. I'm terrified of losing > ground because there will not be long or acute care beds for us, and > our illness has no support group within reach. If you have a good GP > put him/her in contact with resources in the states (mine is internet > friendly, and willing to do the reading). More testing won't cure you, > treatment is still symptomatic, a well informed GP can manage that > part nicely. Even if the grass is greener on the other side, can we > afford it, will it improve your life or just take precious funds and > moments away?> > Of course, if you can afford it, go girl.> > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe@y...> > > > >