Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Barb (we have several Barbs on the list), There is no quick and easy way of diagnosing MSA. MSA is a certain collection of slowly appearing symptoms which often take years to show up. Many who start with Parkinson's like movement problems are first diagnosed with Parkinson's at first. Even if you do get a diagnoses of MSA it is only a "possible" or "probable" MSA diagnoses as an autopsy is the only completely sure diagnostic method at this time. I don't know what you mean by "What in particular impelled you to seek a diagnosis, or keep going if you initially had a different diagnosis?" Once you have a diagnoses of a movement disorder of any type you keep going to the neurologist and they see more symptoms than the original disorder, so they change the diagnoses on their own. The same should be true for any first symptoms which appear. There is no cure for MSA at this time. Therefore the doctors only treat the symptoms as best they can. In early stages, medicines can help many symptoms a lot. In later stages, like the disorder itself, different medicines work differently for different patients. It IS important to work closely with your doctor to adjust the medicines early in the progress of the disorder. You MUST answer the doctor's questions completely and honestly. You must keep a daily record of temperature, reclining and sitting BP at least. Notes on any new or passing symptoms each day can remind you what to tell the doctor. About two days before seeing the doctor, look over all the notes from the time of the last visit, average the BP's, temperature and note the high and lows. Then list any new or different symptoms (even if they only showed up once) and briefly write it out for the doctor (keep it to a half page at most). Then write out any questions you have for the doctor and leave room to write brief answers. That saves you and the doctor time as you do not have to call back and check on things. If you have MSA (possible or probable), you can help yourself by doing these additional simple things: * Exercise daily - range of motion (stretching) exercises are best, do not exercise until it hurts, do aerobic exercise only if you can and not until you are wiped out. Ten minutes at a time six times a day is better than wiping yourself out with a hour at one time. Make sure you speak loudly and clearly several times a day, if nothing else read out loud for ten minutes a couple of times a day to someone across the room from you. * Make sure you drink (and swallow as putting it in the glass and dumping half down the drain as it is flat does not count) 64 ounces of liquid per day. Caffinated drinks do not count as they are dehydrating. * Eat lots of fruit (fresh and dried are best). This helps with added antioxidants AND helps prevent constipation. Leafy green veggies can not hurt either. But in any case, keep a balanced diet. * Don't forget your daily record mentioned above. Finally, watch for any type of infection. If you suddenly (over a day or two) develope fatigue, more symptoms, confusion, loss of movement or worsening of symptoms, you probably have some sort in infection. It can be a UTI, pneumonia, blood or yeast infection. It is best to see a doctor ASAP. If it really is flooring you, go to the ER. Take care, Bill Werre ------------------------------------- bob0sin2002 wrote: dear folks: I am in a diagnostic quandry...you would do me a great favor if some of you would be willing to briefly describe how you became certain of a diagnosis of MSA. What in particular impelled you to seek a diagnosis, or keep going if you initially had a different diagnosis? Thanks much Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Dear Ray: Thanks for the helpful response. I just posted a short summary of my current situation to mesaletta, though I'm not sure I'm using the reply function correctly. Your practical suggestions are especially to the point: I have a lot of information but am flumoxed by anxiety, uncertainty and what's probably denial. Although I do exercise and eat lots of fruit and vegetables, I don't keep a written record, don't drink enough, and haven't been utterly honest with my neurologist, out of fear, mostly. Your advice seems sound and helpful and I appreciate the encouragement. My last initial is D: if I'm on this list for the duration I'll be plenty forthcoming and sooner as opposed to later. Barb D > > > dear folks: I am in a diagnostic quandry...you would do me a great > > favor if some of you would be willing to briefly describe how you > > became certain of a diagnosis of MSA. What in particular impelled you > > to seek a diagnosis, or keep going if you initially had a different > > diagnosis? Thanks much Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Dear Ray: Thanks for the helpful response. I just posted a short summary of my current situation to mesaletta, though I'm not sure I'm using the reply function correctly. Your practical suggestions are especially to the point: I have a lot of information but am flumoxed by anxiety, uncertainty and what's probably denial. Although I do exercise and eat lots of fruit and vegetables, I don't keep a written record, don't drink enough, and haven't been utterly honest with my neurologist, out of fear, mostly. Your advice seems sound and helpful and I appreciate the encouragement. My last initial is D: if I'm on this list for the duration I'll be plenty forthcoming and sooner as opposed to later. Barb D > > > dear folks: I am in a diagnostic quandry...you would do me a great > > favor if some of you would be willing to briefly describe how you > > became certain of a diagnosis of MSA. What in particular impelled you > > to seek a diagnosis, or keep going if you initially had a different > > diagnosis? Thanks much Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Dear Ray: Thanks for the helpful response. I just posted a short summary of my current situation to mesaletta, though I'm not sure I'm using the reply function correctly. Your practical suggestions are especially to the point: I have a lot of information but am flumoxed by anxiety, uncertainty and what's probably denial. Although I do exercise and eat lots of fruit and vegetables, I don't keep a written record, don't drink enough, and haven't been utterly honest with my neurologist, out of fear, mostly. Your advice seems sound and helpful and I appreciate the encouragement. My last initial is D: if I'm on this list for the duration I'll be plenty forthcoming and sooner as opposed to later. Barb D > > > dear folks: I am in a diagnostic quandry...you would do me a great > > favor if some of you would be willing to briefly describe how you > > became certain of a diagnosis of MSA. What in particular impelled you > > to seek a diagnosis, or keep going if you initially had a different > > diagnosis? Thanks much Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Barb D. ) I use because I want business checks to go to , but everyone here calls me Bill. ) We are a BIG worldwide family here. You MUST be completely honest with your neurologist. They NEED every bit of info they can get to properly diagnose you and help you as much as they can. It sounds as if you need to consider giving up driving, if you have not already given it up. My wife was in your situation about 8 years ago when she had to finally accept a wheelchair, and we went to grief counseling. After that we made all final arrangements and went on with our lives accepting the fact that we had limitations. We went to Disney World with the grandkids in 1998 and others here travel late in the disorder. So while you may have limits, you can still have a reasonable quality of life for some time if you fight for it (providing you even have MSA). My wife died late last year after a diagnoses of Parkinson's in 1990 and MSA in 1995 (by experts at NIH) - this was almost 16 years after what we know now were possible first slight symptoms of MSA. I would suggest that you take a look at your home and plan for things like wheelchair access. You do not need to do anything now, but recognize that you may need a wheelchair to get around in the future. No one gets the same exact symptoms and some here were diagnosed as MSA and lived over twenty years only to find out that they had a similar disorder. This is NOT an exact world with MSA or things like it. Even with a MSA diagnoses, you do not know for sure and you need to keep living as normal a life as possible. Hang in there and take care, Bill Werre -------------------------------------------- bob0sin2002 wrote: > Dear Ray: Thanks for the helpful response. I just posted a short > summary of my current situation to mesaletta, though I'm not sure I'm > using the reply function correctly. Your practical suggestions are > especially to the point: I have a lot of information but am flumoxed > by anxiety, uncertainty and what's probably denial. Although I do > exercise and eat lots of fruit and vegetables, I don't keep a written > record, don't drink enough, and haven't been utterly honest with my > neurologist, out of fear, mostly. Your advice seems sound and helpful > and I appreciate the encouragement. My last initial is D: if I'm on > this list for the duration I'll be plenty forthcoming and sooner as > opposed to later. Barb D > > > > > > > dear folks: I am in a diagnostic quandry...you would do me a great > > > favor if some of you would be willing to briefly describe how you > > > became certain of a diagnosis of MSA. What in particular impelled > you > > > to seek a diagnosis, or keep going if you initially had a > different > > > diagnosis? Thanks much Barb > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Barb D. ) I use because I want business checks to go to , but everyone here calls me Bill. ) We are a BIG worldwide family here. You MUST be completely honest with your neurologist. They NEED every bit of info they can get to properly diagnose you and help you as much as they can. It sounds as if you need to consider giving up driving, if you have not already given it up. My wife was in your situation about 8 years ago when she had to finally accept a wheelchair, and we went to grief counseling. After that we made all final arrangements and went on with our lives accepting the fact that we had limitations. We went to Disney World with the grandkids in 1998 and others here travel late in the disorder. So while you may have limits, you can still have a reasonable quality of life for some time if you fight for it (providing you even have MSA). My wife died late last year after a diagnoses of Parkinson's in 1990 and MSA in 1995 (by experts at NIH) - this was almost 16 years after what we know now were possible first slight symptoms of MSA. I would suggest that you take a look at your home and plan for things like wheelchair access. You do not need to do anything now, but recognize that you may need a wheelchair to get around in the future. No one gets the same exact symptoms and some here were diagnosed as MSA and lived over twenty years only to find out that they had a similar disorder. This is NOT an exact world with MSA or things like it. Even with a MSA diagnoses, you do not know for sure and you need to keep living as normal a life as possible. Hang in there and take care, Bill Werre -------------------------------------------- bob0sin2002 wrote: > Dear Ray: Thanks for the helpful response. I just posted a short > summary of my current situation to mesaletta, though I'm not sure I'm > using the reply function correctly. Your practical suggestions are > especially to the point: I have a lot of information but am flumoxed > by anxiety, uncertainty and what's probably denial. Although I do > exercise and eat lots of fruit and vegetables, I don't keep a written > record, don't drink enough, and haven't been utterly honest with my > neurologist, out of fear, mostly. Your advice seems sound and helpful > and I appreciate the encouragement. My last initial is D: if I'm on > this list for the duration I'll be plenty forthcoming and sooner as > opposed to later. Barb D > > > > > > > dear folks: I am in a diagnostic quandry...you would do me a great > > > favor if some of you would be willing to briefly describe how you > > > became certain of a diagnosis of MSA. What in particular impelled > you > > > to seek a diagnosis, or keep going if you initially had a > different > > > diagnosis? Thanks much Barb > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Barb D. ) I use because I want business checks to go to , but everyone here calls me Bill. ) We are a BIG worldwide family here. You MUST be completely honest with your neurologist. They NEED every bit of info they can get to properly diagnose you and help you as much as they can. It sounds as if you need to consider giving up driving, if you have not already given it up. My wife was in your situation about 8 years ago when she had to finally accept a wheelchair, and we went to grief counseling. After that we made all final arrangements and went on with our lives accepting the fact that we had limitations. We went to Disney World with the grandkids in 1998 and others here travel late in the disorder. So while you may have limits, you can still have a reasonable quality of life for some time if you fight for it (providing you even have MSA). My wife died late last year after a diagnoses of Parkinson's in 1990 and MSA in 1995 (by experts at NIH) - this was almost 16 years after what we know now were possible first slight symptoms of MSA. I would suggest that you take a look at your home and plan for things like wheelchair access. You do not need to do anything now, but recognize that you may need a wheelchair to get around in the future. No one gets the same exact symptoms and some here were diagnosed as MSA and lived over twenty years only to find out that they had a similar disorder. This is NOT an exact world with MSA or things like it. Even with a MSA diagnoses, you do not know for sure and you need to keep living as normal a life as possible. Hang in there and take care, Bill Werre -------------------------------------------- bob0sin2002 wrote: > Dear Ray: Thanks for the helpful response. I just posted a short > summary of my current situation to mesaletta, though I'm not sure I'm > using the reply function correctly. Your practical suggestions are > especially to the point: I have a lot of information but am flumoxed > by anxiety, uncertainty and what's probably denial. Although I do > exercise and eat lots of fruit and vegetables, I don't keep a written > record, don't drink enough, and haven't been utterly honest with my > neurologist, out of fear, mostly. Your advice seems sound and helpful > and I appreciate the encouragement. My last initial is D: if I'm on > this list for the duration I'll be plenty forthcoming and sooner as > opposed to later. Barb D > > > > > > > dear folks: I am in a diagnostic quandry...you would do me a great > > > favor if some of you would be willing to briefly describe how you > > > became certain of a diagnosis of MSA. What in particular impelled > you > > > to seek a diagnosis, or keep going if you initially had a > different > > > diagnosis? Thanks much Barb > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 - Dear Bill: I am not driving at night and have given some thought to the other points you raise. Your matter of fact tone is helpful-- particularly the part abt getting on with the life that's possible. Also sixteen years is not three or seven or even nine, though I take your point abt the intrinsic imprecision of dx. Thanks again, Barb D -- In shydrager@y..., Werre wrote: > Barb D. > > ) I use because I want business checks to go to , but > everyone here calls me Bill. ) We are a BIG worldwide family here. > > You MUST be completely honest with your neurologist. They NEED every bit of > info they can get to properly diagnose you and help you as much as they can. > It sounds as if you need to consider giving up driving, if you have not > already given it up. My wife was in your situation about 8 years ago when > she had to finally accept a wheelchair, and we went to grief counseling. > After that we made all final arrangements and went on with our lives > accepting the fact that we had limitations. We went to Disney World with the > grandkids in 1998 and others here travel late in the disorder. So while you > may have limits, you can still have a reasonable quality of life for some > time if you fight for it (providing you even have MSA). My wife died late > last year after a diagnoses of Parkinson's in 1990 and MSA in 1995 (by > experts at NIH) - this was almost 16 years after what we know now were > possible first slight symptoms of MSA. > > I would suggest that you take a look at your home and plan for things like > wheelchair access. You do not need to do anything now, but recognize that > you may need a wheelchair to get around in the future. No one gets the same > exact symptoms and some here were diagnosed as MSA and lived over twenty > years only to find out that they had a similar disorder. This is NOT an > exact world with MSA or things like it. Even with a MSA diagnoses, you do > not know for sure and you need to keep living as normal a life as possible. > > Hang in there and take care, Bill Werre > > -------------------------------------------- > > bob0sin2002 wrote: > > > Dear Ray: Thanks for the helpful response. I just posted a short > > summary of my current situation to mesaletta, though I'm not sure I'm > > using the reply function correctly. Your practical suggestions are > > especially to the point: I have a lot of information but am flumoxed > > by anxiety, uncertainty and what's probably denial. Although I do > > exercise and eat lots of fruit and vegetables, I don't keep a written > > record, don't drink enough, and haven't been utterly honest with my > > neurologist, out of fear, mostly. Your advice seems sound and helpful > > and I appreciate the encouragement. My last initial is D: if I'm on > > this list for the duration I'll be plenty forthcoming and sooner as > > opposed to later. Barb D > > > > > > > > > > > dear folks: I am in a diagnostic quandry...you would do me a great > > > > favor if some of you would be willing to briefly describe how you > > > > became certain of a diagnosis of MSA. What in particular impelled > > you > > > > to seek a diagnosis, or keep going if you initially had a > > different > > > > diagnosis? Thanks much Barb > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe@y... > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Greetings Barb D ! PLEASE do not drive. Let's speak plainly here. It's very inconvenient to give up driving and that freedom. But it is a LOT more inconvenient to live with the fact that pride may have killed someone! Once my neurologist diagnosed me with problems with the cerebellum, he basically said " Stop driving. Period. " Ouch. I continued for another years. But I finally realized that I was not getting better and it was not worth risking injury to others. No way the life or safety is worth my pride and freedom. By the way - as to a diagnostic certainty, the only way to attain that is through post-mortem. I am NOT that interested in a diagnosis. Fortunately, my current neurologist (only my second) let me know right up front that he would be happy to help me hunt for a diagnosis, BUT ... There were four groups of patients he had. The first group of his patients he can put a name on the disorder AND help them improve their situation. The second group he can put a name on the disorder but only treat symptoms. The third group he can not put a name on the disorder, but can at least help treat the symptoms. The final group he can do nothing for the disorder (whether he can name it or not didn't matter). His point? What good is the name, if all that can be done is symptom management? But then we aggressively spent about a year hunting for a diagnosis. At the end of it, he was fairly certain it was cerebellar degeneration. He asked me to see a neuro-ophthalmologist (neurologist who also is a doctor of ophthalmology). My eye movements were not normal, but I also have scarring on the retina of one eye. Well the neuro-ophthamologist clinched the diagnosis of cerebellar degeneration. He is not certain if it is MSA or not, because I do not (yet) neatly fall into any of the groups. It is possible I will fall into one of the groups. But why worry. In the long run, he can do nothing other than manage the symptoms. HOWEVER, Bill is absolutely correct. My neurologist can not help me manage my symptoms unless I let him know what my symptoms are. Honesty is necessity when it comes to a neurological disorder. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Bill, I saw earlier where you told Barb D. that you should do stretch exercises for 10 mins a day and not to over do. I have been going on the use it or lose it theory since you have said it plenty of times to all of us. I enjoy working in my flowerbeds and some days are better than others. I might work an hour outside in them. I take breaks, do a little break etc. I know if I do too much which sometimes I go for more than a hour I suffer greatly for it for the next few days.My question is though would it be just as bad for me to do too much (as far as staying on this earth) as to not doing anything? I want to live as long as possible and don't want to shorten my time if doing to much is going to do that. I hope this makes sense to you but I know you have seen how other people had faired over time so I hope you can help me with this upon your observations. I know no one can say yes or no definitly but just your observations would be appreciated by me. Thanks and God bless, Belinda > > > > > > > dear folks: I am in a diagnostic quandry...you would do me a great > > > > favor if some of you would be willing to briefly describe how you > > > > became certain of a diagnosis of MSA. What in particular impelled > > you > > > > to seek a diagnosis, or keep going if you initially had a > > different > > > > diagnosis? Thanks much Barb > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe@y... > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 -Bill and Belinda: I appreciate Belinda's sentiment, as the only advice my family doctor gave me early last year was to " exercise, exercise, exercise. " I took him at his word & 16 months later am stronger, more flexible, & in better cardiovascular shape than in a long while. I generally do an hour/day divided among ballet/yoga (stretches & simpler strength exercises), free weights (small & many repetitions), and treadmill (fast walk). I defifinitely feel better for it--if I miss I know it & am sorry. This might also give Bill a better fix on my current status. Rather than producing injury or exhaustion (neither the case as I've been careful & worked up slowly), I have only found it to be physically & emotionally beneficial. I hope to do more gardening shortly too, as our flowerbeds sure could use it! Barb -- In shydrager@y..., " belnorest " wrote: > Bill, > I saw earlier where you told Barb D. that you should do stretch > exercises for 10 mins a day and not to over do. I have been going on > the use it or lose it theory since you have said it plenty of times > to all of us. I enjoy working in my flowerbeds and some days are > better than others. I might work an hour outside in them. I take > breaks, do a little break etc. I know if I do too much which > sometimes I go for more than a hour I suffer greatly for it for the > next few days.My question is though would it be just as bad for me to > do too much (as far as staying on this earth) as to not doing > anything? I want to live as long as possible and don't want to > shorten my time if doing to much is going to do that. I hope this > makes sense to you but I know you have seen how other people had > faired over time so I hope you can help me with this upon your > observations. I know no one can say yes or no definitly but just your > observations would be appreciated by me. > Thanks and God bless, > Belinda > > > > > > > > > > > > dear folks: I am in a diagnostic quandry...you would do me a > great > > > > > favor if some of you would be willing to briefly describe how > you > > > > > became certain of a diagnosis of MSA. What in particular > impelled > > > you > > > > > to seek a diagnosis, or keep going if you initially had a > > > different > > > > > diagnosis? Thanks much Barb > > > > > > If you do not wish to belong to shydrager, you may > > > unsubscribe by sending a blank email to > > > > > > shydrager-unsubscribe@y... > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 -Bill and Belinda: I appreciate Belinda's sentiment, as the only advice my family doctor gave me early last year was to " exercise, exercise, exercise. " I took him at his word & 16 months later am stronger, more flexible, & in better cardiovascular shape than in a long while. I generally do an hour/day divided among ballet/yoga (stretches & simpler strength exercises), free weights (small & many repetitions), and treadmill (fast walk). I defifinitely feel better for it--if I miss I know it & am sorry. This might also give Bill a better fix on my current status. Rather than producing injury or exhaustion (neither the case as I've been careful & worked up slowly), I have only found it to be physically & emotionally beneficial. I hope to do more gardening shortly too, as our flowerbeds sure could use it! Barb -- In shydrager@y..., " belnorest " wrote: > Bill, > I saw earlier where you told Barb D. that you should do stretch > exercises for 10 mins a day and not to over do. I have been going on > the use it or lose it theory since you have said it plenty of times > to all of us. I enjoy working in my flowerbeds and some days are > better than others. I might work an hour outside in them. I take > breaks, do a little break etc. I know if I do too much which > sometimes I go for more than a hour I suffer greatly for it for the > next few days.My question is though would it be just as bad for me to > do too much (as far as staying on this earth) as to not doing > anything? I want to live as long as possible and don't want to > shorten my time if doing to much is going to do that. I hope this > makes sense to you but I know you have seen how other people had > faired over time so I hope you can help me with this upon your > observations. I know no one can say yes or no definitly but just your > observations would be appreciated by me. > Thanks and God bless, > Belinda > > > > > > > > > > > > dear folks: I am in a diagnostic quandry...you would do me a > great > > > > > favor if some of you would be willing to briefly describe how > you > > > > > became certain of a diagnosis of MSA. What in particular > impelled > > > you > > > > > to seek a diagnosis, or keep going if you initially had a > > > different > > > > > diagnosis? Thanks much Barb > > > > > > If you do not wish to belong to shydrager, you may > > > unsubscribe by sending a blank email to > > > > > > shydrager-unsubscribe@y... > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 -Bill and Belinda: I appreciate Belinda's sentiment, as the only advice my family doctor gave me early last year was to " exercise, exercise, exercise. " I took him at his word & 16 months later am stronger, more flexible, & in better cardiovascular shape than in a long while. I generally do an hour/day divided among ballet/yoga (stretches & simpler strength exercises), free weights (small & many repetitions), and treadmill (fast walk). I defifinitely feel better for it--if I miss I know it & am sorry. This might also give Bill a better fix on my current status. Rather than producing injury or exhaustion (neither the case as I've been careful & worked up slowly), I have only found it to be physically & emotionally beneficial. I hope to do more gardening shortly too, as our flowerbeds sure could use it! Barb -- In shydrager@y..., " belnorest " wrote: > Bill, > I saw earlier where you told Barb D. that you should do stretch > exercises for 10 mins a day and not to over do. I have been going on > the use it or lose it theory since you have said it plenty of times > to all of us. I enjoy working in my flowerbeds and some days are > better than others. I might work an hour outside in them. I take > breaks, do a little break etc. I know if I do too much which > sometimes I go for more than a hour I suffer greatly for it for the > next few days.My question is though would it be just as bad for me to > do too much (as far as staying on this earth) as to not doing > anything? I want to live as long as possible and don't want to > shorten my time if doing to much is going to do that. I hope this > makes sense to you but I know you have seen how other people had > faired over time so I hope you can help me with this upon your > observations. I know no one can say yes or no definitly but just your > observations would be appreciated by me. > Thanks and God bless, > Belinda > > > > > > > > > > > > dear folks: I am in a diagnostic quandry...you would do me a > great > > > > > favor if some of you would be willing to briefly describe how > you > > > > > became certain of a diagnosis of MSA. What in particular > impelled > > > you > > > > > to seek a diagnosis, or keep going if you initially had a > > > different > > > > > diagnosis? Thanks much Barb > > > > > > If you do not wish to belong to shydrager, you may > > > unsubscribe by sending a blank email to > > > > > > shydrager-unsubscribe@y... > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Barb D. Thank you so much for answering this. I am glad to know that I can't over do and harm my life span. LOL! I don't want to do anything to shorten that! I have to be a joy and a pain in the butt to my loved ones as long as possible! >grins< God bless, Belinda > > > > > > > > > > > dear folks: I am in a diagnostic quandry...you would do me > a > > great > > > > > > favor if some of you would be willing to briefly describe > how > > you > > > > > > became certain of a diagnosis of MSA. What in particular > > impelled > > > > you > > > > > > to seek a diagnosis, or keep going if you initially had a > > > > different > > > > > > diagnosis? Thanks much Barb > > > > > > > > If you do not wish to belong to shydrager, you may > > > > unsubscribe by sending a blank email to > > > > > > > > shydrager-unsubscribe@y... > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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