Re: Fw: reason for unsubscribing>Shari Blackwell

[Guest guest]

Shari,

I DON'T want to see you leave our group. I am sorry you have not felt

like you have learned very much here. I really do not know alot

myself but I know as far as support I couldn't do without having

someone to talk to about my fears, what to do when I don't know about

a new symptom or a fever or whatever. We might not know it all and

some of us more than others but we are there to help when we can. We

don't all have the same symptoms. It would be easier if we did but

someone here might have one symptom and someone else might have the

other symptom. That is what makes MSA so hard to deal with besides

the fact that it is rare. We are here to help you in any way that we

can.

God bless you and your cousin,

Belinda

> I wrote her off-list and explained why I have come back 3 times and

why she

> should too. I think I have been a member of this list for about

1.5-2 years

> now but have only been active for the past month or so. I felt out

of place

> when I first posted and again the second time I tried it. It was

not until

> these past few months that I finally felt the warmth from folks

here and

> felt comfortable staying. I hope she comes back.

>

> Deborah

>

>

> From: " Pam Bower "

> Reply-To: shydrager@y...

> To: " sds "

> Subject: Fw: reason for unsubscribing

> Date: Thu, 16 May 2002 20:39:00 -0300

>

> Can some people please write to Shari? I'm not sure why she feels

she

> couldn't find any information here. She did post once and I

checked the

> archives, I wrote her back and Belinda wrote her and invited her to

the

> Sunday chat room. Others may have written her off list.

>

> Hugs,

> Pam

>

> reason for unsubscribing

>

>

> >

> > Though I did receive alot of e-mail. Just over 3000 in the past

2 weeks.

> I found nothing that I was looking for. I know so very little

about MSA. I

> wanted to learn about it. My cousin has it. She is a patient at

Mayo. The

> doctors there told her that she is the ONLY patient they have ever

had that

> has every illness conected to MSA. They said it is common to have

some or

> even many of the illnesses. But not all. I wanted to know what to

look for

> and how to help my cousin cope with her life as it is now.

> >

> >

> >

> > Thank you

> >

> > Shari Blackwell

> >

> >

> >

> > ---------------------------------

> >

[Guest guest]

Belinda, Did you send this to her directly? She did in fact unsubscribe the

other day.

Her email is shadylady0114@...

Regards,

Pam

reason for unsubscribing

> >

> >

> > >

> > > Though I did receive alot of e-mail. Just over 3000 in the past

> 2 weeks.

> > I found nothing that I was looking for. I know so very little

> about MSA. I

> > wanted to learn about it. My cousin has it. She is a patient at

> Mayo. The

> > doctors there told her that she is the ONLY patient they have ever

> had that

> > has every illness conected to MSA. They said it is common to have

> some or

> > even many of the illnesses. But not all. I wanted to know what to

> look for

> > and how to help my cousin cope with her life as it is now.

> > >

> > >

> > >

> > > Thank you

> > >

> > > Shari Blackwell

> > >

> > >

> > >

> > > ---------------------------------

> > >

[Guest guest]

Belinda, Did you send this to her directly? She did in fact unsubscribe the

other day.

Her email is shadylady0114@...

Regards,

Pam

reason for unsubscribing

> >

> >

> > >

> > > Though I did receive alot of e-mail. Just over 3000 in the past

> 2 weeks.

> > I found nothing that I was looking for. I know so very little

> about MSA. I

> > wanted to learn about it. My cousin has it. She is a patient at

> Mayo. The

> > doctors there told her that she is the ONLY patient they have ever

> had that

> > has every illness conected to MSA. They said it is common to have

> some or

> > even many of the illnesses. But not all. I wanted to know what to

> look for

> > and how to help my cousin cope with her life as it is now.

> > >

> > >

> > >

> > > Thank you

> > >

> > > Shari Blackwell

> > >

> > >

> > >

> > > ---------------------------------

> > >