Bev

[Guest guest]

Bev,

I can really say that God has taken care of my Aunt. Her name is , and

her husband's name is ph! Odd, huh? I always thought that was pretty

special. Thanks for the kind words...very sweet!!

Hope you had a wonderful day, Bev!

Love,

Krissy

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[Guest guest]

In a message dated 6/30/2002 12:20:32 PM Eastern Daylight Time,

bfrey97147@... writes:

> Just have to share....last night Craig tied his shoes by

> himself!!!!!!! We started working on it when school let out, and he's been

> practicing 10-20 times at a stretch, and after 100 practices gets to buy

> something. When he does it independently, we'll go to eat at Friendly's

> (his

> pick). By the 153rd try, he did it independently (verbal prompts from me,

> though). Now he's getting it about every third or fourth try. We are SO

> excited!!

Hi Bev,

What a great accomplishment! Craig must be so proud of himself.

Charlyne

Mom to Zeb 9 DS/OCD ?

[Guest guest]

, I'm a bit innundated with all the emails. How do I get off the general email list, at least for a while. I am so exhausted I can't read them all. Thank you very much.

Bev (b-morwil@...)

Re: [ ] Bev

Bev,

My history is similar to yours in some ways. I was diagnosed with systemic lupus in Oct 96. I have been on plaquenil the majority of the time since I was diagnosed. I had a laparascopic roux-en-y gastric bypass in Dec 01. When I had the gastric bypass I was on two meds for hypertension and my BP was still in the moderately high range. I also had problems with acid reflux and was on zantac for that. I had plantar fasciitis in my right foot so bad I was considering surgery. I was actually scheduled to have surgery on my right hand for carpal tunnel a few weeks after the gastric bypass, but my surgeon told me he thought losing weight might help the carpal tunnel syndrome at least temporarily. I can't remember what other weight related things I had going on. Anyway, having the gastric bypass was one of the best decisions I ever made. I recovered well from the surgery and had no complications. I went back to work in just under three weeks and was back to doing a great deal of business travel about 7 weeks after the surgery. I weighed 260 lbs and had a BMI of 38.5 when I had the surgery. I now weigh 155 lbs and have a BMI of 23.2. I would have the gastric bypass again in a minute. From January to July 02, I felt better than I had felt in years. Getting the weight off took care of the acid reflux, hypertension, both the plantar fasciitis and carpal tunnel syndrome improved. My joint pain from lupus was already very much improved with taking plaquenil, but since the gastric bypass, I have virtually no joint pain.

In July 02, I ended up in the hospital with acute pancreatitis. I first had pancreatitis in Jan 2000, so as far as we know, it had nothing to do with the gastric bypass. After months of being unable to determine why my liver enzymes were often very elevated, I had a liver biopsy the end of Dec 2002. On January 6, 2003 I was told I have AIH. Not long after that I found out I have type 2 diabetes - pretty ironic after having lost 105 lbs! However, they think the diabetes was caused by the numerous attacks on my pancreas, but it could just be because I inherited it. My mom has type 2 diabetes and she has never been overweight. At this point I am not on any medication for diabetes and we hope to keep it that way since the oral meds are hard on the liver. I feel sure that if I were still 100 lbs overweight the diabetes would be much worse.

I don't know a lot about PBC but I think there are some in the group that have both AIH and PBC.

W

[Guest guest]

Bev,

You can go to the web site and edit your group settings. You can change to just get a daily digest e-mailed to you with all the messages in one e-mail or you can change so that you don't get any e-mail and just read the messages on the internet.

W

[Guest guest]

Bev....(with my apologies to )

Go to liver problems homepage......

near the top on the right is a place where it says edit

membeship.....cick onit and that page will have a place a short way down

where you can click on 4 different choices of receiviing messages...

take your choice... you can have 1 daily email sent to you in a digest

form or you can ask that you receive no mail and you can go to archives

whenever you want to read what is happening or you can have no mail and

let the moderators) ....joanne or joan...... contact you with any

important news. It is a very simplew operation, but if it does confuse

you ask Joan or Joanne to do it for you....

hope this helps...

love jerry

[Guest guest]

I've never heard that methotrexate can cause cancer. It used to be used

in the treatment of cancer, in much higher doses than used for RA. I

had breast cancer in 2001, and continued taking methotrexate during

radiation treatments. I'm not saying that was a good thing, but it was

the only choice of medication for RA that I had at the time. What I am

saying is that you shouldn't be afraid to take methotrexate because

you've had breast cancer. Sue

On Monday, June 27, 2005, at 02:48 PM, Beverly Schmidt wrote:

>

> They wanted to put me on methotrexate but I had breast cancer in 2000

> and this can cause cancer

[Guest guest]

Bev:

Have you tried any of the patient assistance programs

for various medications? They are there to help those

patients without insurance and with low income to get

the meds they need. I am sure that and a

could post some - you can also look them up on the

internet under patient assistance programs for

rheumatoid arthritis - there are quite a few that

might be of help to you. Sorry to hear that you have

so much pain and the doctors were such jerks. It's

wonderful that your sister and her husband have given

you a home, and I hope that they also give you the

support you need emotionally. It's hard sometimes for

family and friends to understand what we go through,

but know that you always have us and we are always

here for you.

Kathe in CA

--- Beverly Schmidt <baschmidt@...> wrote:

> Hi Kathe,

> I just joined the group over the weekend and getting

> the e-mails right and left. I got RA in 1985 and is

> was in my hands and wrists. It has completely taken

> over my life. I have trouble taking meds and when

> I was first trying to find help they won't listen to

> me and when I finally couldn't keep an appt. they

> send my meds for my stomach. He did not listen to

> me and so went back to my family doctor and he won't

> listen so I just toughed it through with motrin and

> aspirian. Then they but a coating on the aspirian

> and couldn't take it anymore and the motrin was

> making me so sick to my stomach, I couldn't hardly

> more around. My doctor finally retired and by then

> was down to 89 lbs. and could hardly move let alone

> eat. I got a lady doctor and she got me on low

> doses of prednisone and gradually increased the

> dosage. I am still on the prednisone as 5 mg a day

> will keep most of the pain away but it has not

> stopped the damage to my fingers, elbow, and bones,

> and the teeth that bother me day and night! They

> wanted to put me on methotrexate but I had breast

> cancer in 2000 and this can cause cancer so did not

> want to take it and they rheumatologist won't take

> me off the prednisone and he couldn't explain to me

> what was happening with my teeth. I am still on

> the prednisone everyday and have been since 1995 and

> have people concerned about this but my doctor tells

> me to continue. I am trying to go to 2.5 mg. every

> other day and 5 mg the other days. That helps me

> enough in the summer. In the winter time then I

> have more pain but I just can't take a lot of meds

> as have had ulcers in the past. I am on disability

> and can't get medicaid as made too much money back

> in the 80's. Just wanted to know what others have

> done. I live with my sister and brother-in-law as

> couldn't afford to keep the house I lived in on the

> disability and couldn't work anymore. My mood

> swings are sometimes bad and it is causing problems

> in my everyday life. I have moved away from my home

> town and have never adjusted to it. Thanks Bev

> Re: [ ] Roxanna

>

>

> Hi Roxanna:

>

> You have come to the right place to find support and

> information - we have all been where you are now,

> and

> I still have days like that, so we truly do know

> what

> you are going through. The people in this group are

> like family and I know I can always come here in my

> darkest days and find support. What you are

> currently

> going through is very familiar to all of us. Do you

> have family or friends that can help you with things

> right now?

>

> I have been diagnosed with RA and Fibro now for six

> years. It is very difficult to get diagnosis at

> times, and then the search for the correct

> medication,

> combination of medications, begins. Are you on any

> medications at this time? You need to be on pain

> meds, at the very least, so that you can get some

> relief while waiting for the blood work to come

> through.

>

> When I initially went in with hands red-hot, swollen

> to twice their normal size, and severe pain, my

> doctor

> put me immediately on Prednisone for the pain and

> inflammation, and Motrin, while we waited for blood

> work. I was RA positive and she began me on a DMARD

> (disease modifying drug)too. Since then, I have

> been

> on many different medications, and am currently on

> Methotrexate, Enbrel, Mobic, Trazadone, and Ultracet

> for the RA/Fibro. I have good days and bad days,

> but

> I am still able to do most of what I want to do,

> just

> at a slower pace.

>

> Yes, there is light at the end of the tunnel, but

> finding the right meds for you can take a bit of

> time,

> and all the meds take time to build up in your

> system

> before you feel any effects - during the time I have

> had to change medications, and was in a lot of pain,

> I

> would be given Prednisone to get me through. It's

> not

> a drug you want to take for a long time, but for the

> short run, it can be a really big help.

>

> You need a doctor who is aggressive in treatment -

> because the first few months/years after diagnosis

> are

> the most important in finding medications that will

> help slow the progression of the disease. If your

> current doctor is reluctant to treat your pain and

> symptoms, find another. You need to be pro-active to

> fight these diseases. You will find out a lot of

> great information here, sometimes I find out things

> here even before my doctor does. Our moderators,

>

> and a, are great.

>

> It's hard to cope with the fact that you can't do

> things you used to take for granted, and not know

> what

> the future holds, and we all have been there.

> Please feel free to post anytime, vent all you want,

> we're always here for you.

>

> Hope this has helped - I sure rambled on did't I?

> lol

>

> Kathe in CA

>

>

>

> --- silvervistasilvermine

> <silvervistasilvermine@...> wrote:

>

> > Hi,

> >

> > I came across this site and joined looking for

> > support and advice to

> > my recent condition I have been stressing over.

> > It's been a little

> > over 6 weeks from onset, have had 1 visit with a

> RH

> > Doctor. My

> > condition has been getting worse and I'm a bit

> > freaked out about it.

> > Doc said fibromylgia and am having more blood work

> > for RA. I

> > glanced over a few past postings and what stuck

> out

> > to me was the

> > finger flipping. That has started with my hands

> in

> > the last couple

> > weeks or so, ring and pinkyfinger first on the

> > lefthand and now on

> > the right also. I have pain I cannot imagine,

> > stiffness in

> > shoulders, hips, knees, & anckles and my hands are

> > the worse and I

> > wake up as if my hands have been stuck as if I've

> > been hanging on

> > the monkey bars for hours. Knees kinda stuck and

> my

> > brain is not

> > accepting this very well. I panic because I can't

> > move or get out

> > of bed for a while and I have to use my forearms

> to

> > lift myself up

> > or roll back and forth on my hips to contort

> myself.

> > I'm having

> > problems opening drink bottles and other things.

> Do

> > I sound

> > familar? Would appreciate correspondence and

> > advice. Starting to

> > feel like I might have mad cow (OT). Do things

> get

> > better? Thanks

> > for any imput.

> >

> > Roxanna

> >

> >

> >

> >

> >

>

>

>

> Kathe in CA

>

>

> __________________________________________________

>

[Guest guest]

Hi Bev

I am in Schoolcraft...a small village just south of Kalamazoo. We

will be in Farmington Hills for a few hours next Saturday. My

husband wants to check out an MG. There are enough of us to arrange

a meeting in southern Michigan, including several in the Detroit

area. Dawn in Ohio might not be to far away either. I would love to

get together with others nearby, but won't have time until

September. I am working more than 60 hours a week during the growing

season, as I work for a chemical and fertilizer company. Let's see

how many are interested, then plan accordingly.

Jo (who discovered that a 4 year old who doesn't want to wake

up is very hard to get around for daycare)Grandma had forgotten that.

- In achalasia , " Beverly " <bgv41@...> wrote:

>

> Jo,

> Just noted that you are located in Michigan.

> There appears to be a group in England who live close enough to

one

> another to actually meet and share thoughts.

> I live in a suburb north of Detroit. Any chance of your being in

that

> vicinity?

> Bev

>

>

>

> > I would love to trade places with you! Always did want to see

> Australia, and you could enjoy this Michigan weather that can't

> decide if it wants to snow, rain, sunshine, or something in

between!

> > Jo (2 months post-op today)

> >

> > ykosworks <ykosworks@> wrote:

> >

> > Hello to everyone - old and new members. I have been away and

> unable

> > to read any messages all month. I will have to read and catch

up.

> > I am now 3 months post heller myotomy and still eating. It was

> > definitely a great decision to do so and I am enjoying the food.

I

> > have put on 3kg and feeling healthier. I am still really tired

and

> > don't cope with too much stress or anything involving too much

> > energy. I don't know if that is a A thing or not.Still am

loosing

> > hair and get migraines when I get too tired. As long as I take

my

> > time eating, chew food up really well and have water handy to

wash

> it

> > down most things are going down. Some meals can be pretty

> > uncomfortable to get down, stress and tiredness can add to that

too.

> > We had a break away and had some work to get done while away.

> > I was fortunate to find a beautiful great dane pup to bring home

> too.

> > We called her and she is getting along fine with the

family

> > and our other dog. It must have meant to be when I found her

after

> > not long loosing our other dog. We were able to take our dogs to

> the

> > beach while we were away and had a great time there with them.

Our

> > older dog had never been to the beach before, living in the

desert.

> I

> > think she slept the whole day after, she was so worn out.

> > By now Deborah would have had her surgery. I will read on to

catch

> > up. I hope you are doing well Deb.

> > Congratulations Crystal on your 3 months post op too. How have

you

> > been going?

> > Hello Anne, Notan, Peggy, Sandi, , Kathy and I am really

> vague

> > at this time of night when I am tired so I am sorry if I have

> missed

> > your names. Hope everyone is coping well and 2006 is proving to

be

> a

> > much better year for all. I am being positive it will.

> >

> > Bye for now.

> > in Australia ( stinking hot I must say too)

> > It is so hot out airconditioner can not cope too. We have had

our

> > longest number of days over 40degrees celcius in Jan in over 60

> years

> > this month. When we were driving to South Australia, we fueled

up

> at

> > one place and it was 51deg celcius. That is pretty bad. Even the

> dogs

> > refused to get out of the bus for a pee.

> > How's the snow?

> > We could heat it up for you.

> >

> >

> >

> >

> >

> >

[Guest guest]

Bev and Jo,

I am located in Waterville, Ohio (near Toledo) and therefore am just over an hour from Detroit.

From: achalasia [mailto:achalasia ] On Behalf Of Jo BlauerSent: Friday, May 12, 2006 11:46 PMachalasia Subject: Re: Bev

Hi Bev I am in Schoolcraft...a small village just south of Kalamazoo. We will be in Farmington Hills for a few hours next Saturday. My husband wants to check out an MG. There are enough of us to arrange a meeting in southern Michigan, including several in the Detroit area. Dawn in Ohio might not be to far away either. I would love to get together with others nearby, but won't have time until September. I am working more than 60 hours a week during the growing season, as I work for a chemical and fertilizer company. Let's see how many are interested, then plan accordingly. Jo (who discovered that a 4 year old who doesn't want to wake up is very hard to get around for daycare)Grandma had forgotten that.- In achalasia , "Beverly" <bgv41@...> wrote:>> Jo, > Just noted that you are located in Michigan.> There appears to be a group in England who live close enough to one > another to actually meet and share thoughts.> I live in a suburb north of Detroit. Any chance of your being in that > vicinity?> Bev> > > > > I would love to trade places with you! Always did want to see > Australia, and you could enjoy this Michigan weather that can't > decide if it wants to snow, rain, sunshine, or something in between!> > Jo (2 months post-op today)> > > > ykosworks <ykosworks@> wrote:> > > > Hello to everyone - old and new members. I have been away and > unable > > to read any messages all month. I will have to read and catch up. > > I am now 3 months post heller myotomy and still eating. It was > > definitely a great decision to do so and I am enjoying the food. I > > have put on 3kg and feeling healthier. I am still really tired and > > don't cope with too much stress or anything involving too much > > energy. I don't know if that is a A thing or not.Still am loosing > > hair and get migraines when I get too tired. As long as I take my > > time eating, chew food up really well and have water handy to wash > it > > down most things are going down. Some meals can be pretty > > uncomfortable to get down, stress and tiredness can add to that too.> > We had a break away and had some work to get done while away.> > I was fortunate to find a beautiful great dane pup to bring home > too. > > We called her and she is getting along fine with the family > > and our other dog. It must have meant to be when I found her after > > not long loosing our other dog. We were able to take our dogs to > the > > beach while we were away and had a great time there with them. Our > > older dog had never been to the beach before, living in the desert. > I > > think she slept the whole day after, she was so worn out.> > By now Deborah would have had her surgery. I will read on to catch > > up. I hope you are doing well Deb. > > Congratulations Crystal on your 3 months post op too. How have you > > been going?> > Hello Anne, Notan, Peggy, Sandi, , Kathy and I am really > vague > > at this time of night when I am tired so I am sorry if I have > missed > > your names. Hope everyone is coping well and 2006 is proving to be > a > > much better year for all. I am being positive it will.> > > > Bye for now.> > in Australia ( stinking hot I must say too)> > It is so hot out airconditioner can not cope too. We have had our > > longest number of days over 40degrees celcius in Jan in over 60 > years > > this month. When we were driving to South Australia, we fueled up > at > > one place and it was 51deg celcius. That is pretty bad. Even the > dogs > > refused to get out of the bus for a pee.> > How's the snow?> > We could heat it up for you.> > > > > > > > > > > >

[Guest guest]

I emailed you an invitation to a Dr. Feng capsulectomy party, let me know if the

date works for you. I asked what day we could both get in.

[Guest guest]

Ah...many, very happy with her !

I am happy for you !

When the power of love

overcomes the love of power

the world will know peace.

~ Jimi Hendrix

Bev

I emailed you an invitation to a Dr. Feng capsulectomy party, let me know if the date works for you. I asked what day we could both get in.