Torticollis

[Guest guest]

hello all! it's been probably two years since i wrote on here. i had my explant

by dr kolb april of 08. she diagnosed me with hypothyroidism and an eye test

proved positive for mold exposure. unfortunately it wasn't from my implants. the

mold is in my parents house, where i HAVE to live right now. i can't afford to

live on my own for having to pay for my surgery and other bills. so i know

consistent exposure to unclean air is probably a lot of my problem. i have also

had worsening neck pain and widespread pain since the surgery. as well as,

fatigue, depression, memory loss, off balance, lightheaded, dizzy, problems

getting thoughts together and speaking them, numbness and tingling. i was

trying to get massage 2x a month and the chiropractor 1x but massage started to

irritate more than relax. i am an ex licensed massage therapist, so to me,

massage fixes almost everything. in my case, i'm very disappointed. i had seen

my family dr and told him of all my symptoms i had been having all my blood work

came back ok. he suggested i see a neurologist. with a $50 co pay i waited. i

started having numbness and burning pain in my right forearm and my chiro said

may be a slipped disk and he also said see a neurologist. i had one more visit

with him one eve after work and by the 11 the next morning i could barely move

my head. that's when i finally went to the neurologist. through NO extensive

testing at all he diagnoses me with fibromyalgia and mild cervical dystonia (aka

torticollis or wryneck). i had feared the fibro sense i had read that it often

coexists with hypothyroidism and generally if you have one autoimmune disease

your risk is higher of developing another. i recently read that they think

torticollis may be autoimmune related as well. when i told him about my implants

and my experience with dr kolb and the eye test for mold he rolled his eyes and

shook his head and said he didn't believe it. that it didn't even matter because

we're all exposed to mold. yeah, i get that but a certain amount CAN BE too

much. it grows on my clothes, shoes, and anything paper in my bedroom. so after

TOTALLY dismissing the eye test for mold he does a little test of his own. i sit

in a chair and he asks me to close my eyes (yall are gonna love this) he then

asks me who the current president is. now, i'm not very political but i'm not

THAT stupid either. but i'm sure most of you on here can relate. when put on the

spot, my mind went completely blank (as it so often does) and i couldn't think

of anything. i felt so STOOOOOPID! lol then it came to me and i told him. then

he asks me who the president was before that. i told him. then he asked the one

before that. i told him. he then asks me to open my eyes. he steps back and says

" you have mild cervical dystonia. " i'm like..... " uhhhhhhhhhh......and how is it

exactly you came to that conclusion? " and he said " when you answered the

questions your head pulled to the left " . it was all i could do to not bust out

laughing. here's a guy that don't believe in an eye test for mold exposure but

yet he's gonna ask me about stupid presidents to diagnosed me with a disease

that could possibly leave me disfigured in the future? i don't get it. he also

said he didn't believe that the environment had any connection to the demise of

our immune system. that the human immune system was strong enough to fight off

almost anything. i was dumbfounded by his stupidity. had i not paid 50 bucks i

would have walked out of his office but i figured i'd hang out and see what else

he had to say. so from what i understand my only other option besides oral meds

is botox injections in my neck. which i DO NOT want to do. i just received an

FDA botox warning last wk in my inbox about what its doing to people when it

travels away from the injection site to other areas of the body. how do they get

away with doing this crap to us? he gave me a prescription for a low does of

muscle relaxer and an antidepressant used for fibro pain. one of which i

recently read on the spasmodictorticollis.org website is on the " medications to

avoid " list saying it may cause or worsen the condition. so either this dr wants

me to get worse or he just hasn't really educated himself very much on the

condition. either way it's aggravating. i've only been taking the medication for

about a month. it seemed to help with the pain but the side effects are just

ridiculous and it's making me more depressed. has anyone on here had the same

experience with dystonia or know someone who has or is? i haven't been able to

sleep on my right side in months. i wake up every morning and the pain in my

neck is so bad. it hurts to stretch my shoulder away from my head. i'm showering

in the eve and then again in the morning JUST to try and relax my muscles. i am

currently reading a book some of you may have heard of or would like to read.

it's called " the autoimmune epidemic " by donna jackson nakazawa. it talks mainly

about how our environment and the things (chemicals,heavy metals etc) we come

in contact with are killing us. i am currently doing a heavy metal detox. i am

desperate. 34 yrs old and i barely care about anything anymore. i rarely leave

the house or care to talk to anyone. i'm in so much pain and in such a bad mood

all the time i don't want to be around anyone. any advice from anyone?