Re: CPAP versus Trach for breathing problems

[Guest guest]

Need some advice!

My husband, , is in the hospital for the third time this year (Critical

Care Unit) and each time breathing problems were the underlying problem.

Two times he passed out and stopped breathing, the third time he stopped

breathing while lying in bed and rescue breathing had to be done prior to

the ambulance arriving. All three times it took awhile for to respond

to assisted breathing and each episode has been very serious. and I

are faced with a decision about a procedure recommended by his Dr.

(Pulmonary specialist). They would like to put do a tracheotomy on Monday,

May 20th. We would prefer an alternative such as the C-Pap. A sleep study

was done a few years ago without a diagnosis of sleep apnea. has

never read about anyone getting a trach on this list and told the doctor

that all seemed to do fine with a C-Pap. The doctor told him to get some

rest and to stay away from his computer this weekend. The doctor and his

nurse have observed while resting and he has had episodes where he has

stopped breathing. His nurse also said that he has had an episode while she

was talking with him. He is short of breath and does better breathing

through his mouth. The doctor did say that if we decided to go with the

C-Pap that would be required to use it 24 hours for his own safety.

Thank you for your advice and any experience you have had with this.

was diagnosed in 1999 with Shy-Drager.

God Bless!

Shirley and Markham

-

>

>I had a sleep study done, and although I had figured he would say a

>C-Pap or Bi-Pap, I was completely floored by what I was told. He said

>I had some " minor " instances that he was not too worried about at the

>time. He was more concerned over the episode of prolonged oxygen

>deprivation that showed up. He told me that along with the charts I

>had for him he also wants me to doc. everytime I wake up either not

>breathing or gasping for air. He said he could probably get approval

>for oxygen on one doc time, but it would be easier for 2 or 3 times.

>Okay, I don't remember anyone hear saying anything about this

>problem at night. He did say that it is uncommon for them to doc this

>problem on a sleep study. So I am wondering - Could he be talking

>about the central apnea that Fisher has mentioned a couple of

>times. Just strange. Other than him still trying out new combo of

>med, things are fairly okay. Just wondering is all

>

>love to all and happy valentine's day and God Bless

>wanda

>

>

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

If you will go to the web page http://groups.yahoo.com/group/shydrager and

search the archives for " trach " , there are several discussions mentioning

the trach. Several around Dec. 2000.

Hope this helps

Re: CPAP versus Trach for breathing problems

Need some advice!

My husband, , is in the hospital for the third time this year (Critical

Care Unit) and each time breathing problems were the underlying problem.

Two times he passed out and stopped breathing, the third time he stopped

breathing while lying in bed and rescue breathing had to be done prior to

the ambulance arriving. All three times it took awhile for to respond

to assisted breathing and each episode has been very serious. and I

are faced with a decision about a procedure recommended by his Dr.

(Pulmonary specialist). They would like to put do a tracheotomy on Monday,

May 20th. We would prefer an alternative such as the C-Pap. A sleep study

was done a few years ago without a diagnosis of sleep apnea. has

never read about anyone getting a trach on this list and told the doctor

that all seemed to do fine with a C-Pap. The doctor told him to get some

rest and to stay away from his computer this weekend. The doctor and his

nurse have observed while resting and he has had episodes where he has

stopped breathing. His nurse also said that he has had an episode while she

was talking with him. He is short of breath and does better breathing

through his mouth. The doctor did say that if we decided to go with the

C-Pap that would be required to use it 24 hours for his own safety.

Thank you for your advice and any experience you have had with this.

was diagnosed in 1999 with Shy-Drager.

God Bless!

Shirley and Markham

-

>

>I had a sleep study done, and although I had figured he would say a

>C-Pap or Bi-Pap, I was completely floored by what I was told. He said

>I had some " minor " instances that he was not too worried about at the

>time. He was more concerned over the episode of prolonged oxygen

>deprivation that showed up. He told me that along with the charts I

>had for him he also wants me to doc. everytime I wake up either not

>breathing or gasping for air. He said he could probably get approval

>for oxygen on one doc time, but it would be easier for 2 or 3 times.

>Okay, I don't remember anyone hear saying anything about this

>problem at night. He did say that it is uncommon for them to doc this

>problem on a sleep study. So I am wondering - Could he be talking

>about the central apnea that Fisher has mentioned a couple of

>times. Just strange. Other than him still trying out new combo of

>med, things are fairly okay. Just wondering is all

>

>love to all and happy valentine's day and God Bless

>wanda

>

>

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

If you will go to the web page http://groups.yahoo.com/group/shydrager and

search the archives for " trach " , there are several discussions mentioning

the trach. Several around Dec. 2000.

Hope this helps

Re: CPAP versus Trach for breathing problems

Need some advice!

My husband, , is in the hospital for the third time this year (Critical

Care Unit) and each time breathing problems were the underlying problem.

Two times he passed out and stopped breathing, the third time he stopped

breathing while lying in bed and rescue breathing had to be done prior to

the ambulance arriving. All three times it took awhile for to respond

to assisted breathing and each episode has been very serious. and I

are faced with a decision about a procedure recommended by his Dr.

(Pulmonary specialist). They would like to put do a tracheotomy on Monday,

May 20th. We would prefer an alternative such as the C-Pap. A sleep study

was done a few years ago without a diagnosis of sleep apnea. has

never read about anyone getting a trach on this list and told the doctor

that all seemed to do fine with a C-Pap. The doctor told him to get some

rest and to stay away from his computer this weekend. The doctor and his

nurse have observed while resting and he has had episodes where he has

stopped breathing. His nurse also said that he has had an episode while she

was talking with him. He is short of breath and does better breathing

through his mouth. The doctor did say that if we decided to go with the

C-Pap that would be required to use it 24 hours for his own safety.

Thank you for your advice and any experience you have had with this.

was diagnosed in 1999 with Shy-Drager.

God Bless!

Shirley and Markham

-

>

>I had a sleep study done, and although I had figured he would say a

>C-Pap or Bi-Pap, I was completely floored by what I was told. He said

>I had some " minor " instances that he was not too worried about at the

>time. He was more concerned over the episode of prolonged oxygen

>deprivation that showed up. He told me that along with the charts I

>had for him he also wants me to doc. everytime I wake up either not

>breathing or gasping for air. He said he could probably get approval

>for oxygen on one doc time, but it would be easier for 2 or 3 times.

>Okay, I don't remember anyone hear saying anything about this

>problem at night. He did say that it is uncommon for them to doc this

>problem on a sleep study. So I am wondering - Could he be talking

>about the central apnea that Fisher has mentioned a couple of

>times. Just strange. Other than him still trying out new combo of

>med, things are fairly okay. Just wondering is all

>

>love to all and happy valentine's day and God Bless

>wanda

>

>

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>