Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 Shirley and , I do not know but I pray that you will be able to get the cpap or bipap instead of a trach. I agree with you I don't recall anyone else having to get the trach but I might be wrong. God bless, Belinda > Need some advice! > > My husband, , is in the hospital for the third time this year (Critical > Care Unit) and each time breathing problems were the underlying problem. > Two times he passed out and stopped breathing, the third time he stopped > breathing while lying in bed and rescue breathing had to be done prior to > the ambulance arriving. All three times it took awhile for to respond > to assisted breathing and each episode has been very serious. and I > are faced with a decision about a procedure recommended by his Dr. > (Pulmonary specialist). They would like to put do a tracheotomy on Monday, > May 20th. We would prefer an alternative such as the C-Pap. A sleep study > was done a few years ago without a diagnosis of sleep apnea. has > never read about anyone getting a trach on this list and told the doctor > that all seemed to do fine with a C-Pap. The doctor told him to get some > rest and to stay away from his computer this weekend. The doctor and his > nurse have observed while resting and he has had episodes where he has > stopped breathing. His nurse also said that he has had an episode while she > was talking with him. He is short of breath and does better breathing > through his mouth. The doctor did say that if we decided to go with the > C-Pap that would be required to use it 24 hours for his own safety. > > Thank you for your advice and any experience you have had with this. > was diagnosed in 1999 with Shy-Drager. > > God Bless! > Shirley and Markham > - > > > >I had a sleep study done, and although I had figured he would say a > >C-Pap or Bi-Pap, I was completely floored by what I was told. He said > >I had some " minor " instances that he was not too worried about at the > >time. He was more concerned over the episode of prolonged oxygen > >deprivation that showed up. He told me that along with the charts I > >had for him he also wants me to doc. everytime I wake up either not > >breathing or gasping for air. He said he could probably get approval > >for oxygen on one doc time, but it would be easier for 2 or 3 times. > >Okay, I don't remember anyone hear saying anything about this > >problem at night. He did say that it is uncommon for them to doc this > >problem on a sleep study. So I am wondering - Could he be talking > >about the central apnea that Fisher has mentioned a couple of > >times. Just strange. Other than him still trying out new combo of > >med, things are fairly okay. Just wondering is all > > > >love to all and happy valentine's day and God Bless > >wanda > > > > > > > > > >If you do not wish to belong to shydrager, you may > >unsubscribe by sending a blank email to > > > >shydrager-unsubscribe@y... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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