Re: CPAP versus Trach for breathing problems>Shirley and

[Guest guest]

Shirley and ,

I do not know but I pray that you will be able to get the cpap or

bipap instead of a trach. I agree with you I don't recall anyone else

having to get the trach but I might be wrong.

God bless,

Belinda

> Need some advice!

>

> My husband, , is in the hospital for the third time this year

(Critical

> Care Unit) and each time breathing problems were the underlying

problem.

> Two times he passed out and stopped breathing, the third time he

stopped

> breathing while lying in bed and rescue breathing had to be done

prior to

> the ambulance arriving. All three times it took awhile for

to respond

> to assisted breathing and each episode has been very serious.

and I

> are faced with a decision about a procedure recommended by his Dr.

> (Pulmonary specialist). They would like to put do a tracheotomy on

Monday,

> May 20th. We would prefer an alternative such as the C-Pap. A

sleep study

> was done a few years ago without a diagnosis of sleep apnea.

has

> never read about anyone getting a trach on this list and told the

doctor

> that all seemed to do fine with a C-Pap. The doctor told him to

get some

> rest and to stay away from his computer this weekend. The doctor

and his

> nurse have observed while resting and he has had episodes

where he has

> stopped breathing. His nurse also said that he has had an episode

while she

> was talking with him. He is short of breath and does better

breathing

> through his mouth. The doctor did say that if we decided to go

with the

> C-Pap that would be required to use it 24 hours for his own

safety.

>

> Thank you for your advice and any experience you have had with

this.

> was diagnosed in 1999 with Shy-Drager.

>

> God Bless!

> Shirley and Markham

> -

> >

> >I had a sleep study done, and although I had figured he would say a

> >C-Pap or Bi-Pap, I was completely floored by what I was told. He

said

> >I had some " minor " instances that he was not too worried about at

the

> >time. He was more concerned over the episode of prolonged oxygen

> >deprivation that showed up. He told me that along with the charts

I

> >had for him he also wants me to doc. everytime I wake up either not

> >breathing or gasping for air. He said he could probably get

approval

> >for oxygen on one doc time, but it would be easier for 2 or 3

times.

> >Okay, I don't remember anyone hear saying anything about this

> >problem at night. He did say that it is uncommon for them to doc

this

> >problem on a sleep study. So I am wondering - Could he be talking

> >about the central apnea that Fisher has mentioned a couple of

> >times. Just strange. Other than him still trying out new combo

of

> >med, things are fairly okay. Just wondering is all

> >

> >love to all and happy valentine's day and God Bless

> >wanda

> >

> >

> >

> >

> >If you do not wish to belong to shydrager, you may

> >unsubscribe by sending a blank email to

> >

> >shydrager-unsubscribe@y...

> >

> >

> >

> >

> >

[Guest guest]

Shirley & ,

Unfortunately, we have had several members of the group who have had

trach's. There are several things that can cause breathing

problems. The most common is sleep apnea, but it is also possible to

have complete or partial vocal cord paralysis, which can lead to a

partial or complete blockage of the airway. This was mentioned at

the Boston Meeting. I think a good otolaryngologist (SP??) would be

able to tell if that is the case. It might be wise to request a

consult.

Carol & Rob

Lexington, MA

> > Need some advice!

> >

> > My husband, , is in the hospital for the third time this

year

> (Critical

> > Care Unit) and each time breathing problems were the underlying

> problem.

> > Two times he passed out and stopped breathing, the third time he

> stopped

> > breathing while lying in bed and rescue breathing had to be done

> prior to

> > the ambulance arriving. All three times it took awhile for

> to respond

> > to assisted breathing and each episode has been very serious.

> and I

> > are faced with a decision about a procedure recommended by his Dr.

> > (Pulmonary specialist). They would like to put do a tracheotomy

on

> Monday,

> > May 20th. We would prefer an alternative such as the C-Pap. A

> sleep study

> > was done a few years ago without a diagnosis of sleep apnea.

> has

> > never read about anyone getting a trach on this list and told the

> doctor

> > that all seemed to do fine with a C-Pap. The doctor told him to

> get some

> > rest and to stay away from his computer this weekend. The doctor

> and his

> > nurse have observed while resting and he has had episodes

> where he has

> > stopped breathing. His nurse also said that he has had an

episode

> while she

> > was talking with him. He is short of breath and does better

> breathing

> > through his mouth. The doctor did say that if we decided to go

> with the

> > C-Pap that would be required to use it 24 hours for his own

> safety.

> >

> > Thank you for your advice and any experience you have had with

> this.

> > was diagnosed in 1999 with Shy-Drager.

> >

> > God Bless!

> > Shirley and Markham

> > -

> > >

> > >I had a sleep study done, and although I had figured he would

say a

> > >C-Pap or Bi-Pap, I was completely floored by what I was told.

He

> said

> > >I had some " minor " instances that he was not too worried about

at

> the

> > >time. He was more concerned over the episode of prolonged oxygen

> > >deprivation that showed up. He told me that along with the

charts

> I

> > >had for him he also wants me to doc. everytime I wake up either

not

> > >breathing or gasping for air. He said he could probably get

> approval

> > >for oxygen on one doc time, but it would be easier for 2 or 3

> times.

> > >Okay, I don't remember anyone hear saying anything about this

> > >problem at night. He did say that it is uncommon for them to

doc

> this

> > >problem on a sleep study. So I am wondering - Could he be

talking

> > >about the central apnea that Fisher has mentioned a couple

of

> > >times. Just strange. Other than him still trying out new

combo

> of

> > >med, things are fairly okay. Just wondering is all

> > >

> > >love to all and happy valentine's day and God Bless

> > >wanda

> > >

> > >

> > >

> > >

> > >If you do not wish to belong to shydrager, you may

> > >unsubscribe by sending a blank email to

> > >

> > >shydrager-unsubscribe@y...

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Shirley & ,

Unfortunately, we have had several members of the group who have had

trach's. There are several things that can cause breathing

problems. The most common is sleep apnea, but it is also possible to

have complete or partial vocal cord paralysis, which can lead to a

partial or complete blockage of the airway. This was mentioned at

the Boston Meeting. I think a good otolaryngologist (SP??) would be

able to tell if that is the case. It might be wise to request a

consult.

Carol & Rob

Lexington, MA

> > Need some advice!

> >

> > My husband, , is in the hospital for the third time this

year

> (Critical

> > Care Unit) and each time breathing problems were the underlying

> problem.

> > Two times he passed out and stopped breathing, the third time he

> stopped

> > breathing while lying in bed and rescue breathing had to be done

> prior to

> > the ambulance arriving. All three times it took awhile for

> to respond

> > to assisted breathing and each episode has been very serious.

> and I

> > are faced with a decision about a procedure recommended by his Dr.

> > (Pulmonary specialist). They would like to put do a tracheotomy

on

> Monday,

> > May 20th. We would prefer an alternative such as the C-Pap. A

> sleep study

> > was done a few years ago without a diagnosis of sleep apnea.

> has

> > never read about anyone getting a trach on this list and told the

> doctor

> > that all seemed to do fine with a C-Pap. The doctor told him to

> get some

> > rest and to stay away from his computer this weekend. The doctor

> and his

> > nurse have observed while resting and he has had episodes

> where he has

> > stopped breathing. His nurse also said that he has had an

episode

> while she

> > was talking with him. He is short of breath and does better

> breathing

> > through his mouth. The doctor did say that if we decided to go

> with the

> > C-Pap that would be required to use it 24 hours for his own

> safety.

> >

> > Thank you for your advice and any experience you have had with

> this.

> > was diagnosed in 1999 with Shy-Drager.

> >

> > God Bless!

> > Shirley and Markham

> > -

> > >

> > >I had a sleep study done, and although I had figured he would

say a

> > >C-Pap or Bi-Pap, I was completely floored by what I was told.

He

> said

> > >I had some " minor " instances that he was not too worried about

at

> the

> > >time. He was more concerned over the episode of prolonged oxygen

> > >deprivation that showed up. He told me that along with the

charts

> I

> > >had for him he also wants me to doc. everytime I wake up either

not

> > >breathing or gasping for air. He said he could probably get

> approval

> > >for oxygen on one doc time, but it would be easier for 2 or 3

> times.

> > >Okay, I don't remember anyone hear saying anything about this

> > >problem at night. He did say that it is uncommon for them to

doc

> this

> > >problem on a sleep study. So I am wondering - Could he be

talking

> > >about the central apnea that Fisher has mentioned a couple

of

> > >times. Just strange. Other than him still trying out new

combo

> of

> > >med, things are fairly okay. Just wondering is all

> > >

> > >love to all and happy valentine's day and God Bless

> > >wanda

> > >

> > >

> > >

> > >

> > >If you do not wish to belong to shydrager, you may

> > >unsubscribe by sending a blank email to

> > >

> > >shydrager-unsubscribe@y...

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Shirley & ,

Unfortunately, we have had several members of the group who have had

trach's. There are several things that can cause breathing

problems. The most common is sleep apnea, but it is also possible to

have complete or partial vocal cord paralysis, which can lead to a

partial or complete blockage of the airway. This was mentioned at

the Boston Meeting. I think a good otolaryngologist (SP??) would be

able to tell if that is the case. It might be wise to request a

consult.

Carol & Rob

Lexington, MA

> > Need some advice!

> >

> > My husband, , is in the hospital for the third time this

year

> (Critical

> > Care Unit) and each time breathing problems were the underlying

> problem.

> > Two times he passed out and stopped breathing, the third time he

> stopped

> > breathing while lying in bed and rescue breathing had to be done

> prior to

> > the ambulance arriving. All three times it took awhile for

> to respond

> > to assisted breathing and each episode has been very serious.

> and I

> > are faced with a decision about a procedure recommended by his Dr.

> > (Pulmonary specialist). They would like to put do a tracheotomy

on

> Monday,

> > May 20th. We would prefer an alternative such as the C-Pap. A

> sleep study

> > was done a few years ago without a diagnosis of sleep apnea.

> has

> > never read about anyone getting a trach on this list and told the

> doctor

> > that all seemed to do fine with a C-Pap. The doctor told him to

> get some

> > rest and to stay away from his computer this weekend. The doctor

> and his

> > nurse have observed while resting and he has had episodes

> where he has

> > stopped breathing. His nurse also said that he has had an

episode

> while she

> > was talking with him. He is short of breath and does better

> breathing

> > through his mouth. The doctor did say that if we decided to go

> with the

> > C-Pap that would be required to use it 24 hours for his own

> safety.

> >

> > Thank you for your advice and any experience you have had with

> this.

> > was diagnosed in 1999 with Shy-Drager.

> >

> > God Bless!

> > Shirley and Markham

> > -

> > >

> > >I had a sleep study done, and although I had figured he would

say a

> > >C-Pap or Bi-Pap, I was completely floored by what I was told.

He

> said

> > >I had some " minor " instances that he was not too worried about

at

> the

> > >time. He was more concerned over the episode of prolonged oxygen

> > >deprivation that showed up. He told me that along with the

charts

> I

> > >had for him he also wants me to doc. everytime I wake up either

not

> > >breathing or gasping for air. He said he could probably get

> approval

> > >for oxygen on one doc time, but it would be easier for 2 or 3

> times.

> > >Okay, I don't remember anyone hear saying anything about this

> > >problem at night. He did say that it is uncommon for them to

doc

> this

> > >problem on a sleep study. So I am wondering - Could he be

talking

> > >about the central apnea that Fisher has mentioned a couple

of

> > >times. Just strange. Other than him still trying out new

combo

> of

> > >med, things are fairly okay. Just wondering is all

> > >

> > >love to all and happy valentine's day and God Bless

> > >wanda

> > >

> > >

> > >

> > >

> > >If you do not wish to belong to shydrager, you may

> > >unsubscribe by sending a blank email to

> > >

> > >shydrager-unsubscribe@y...

> > >

> > >

> > >

> > >

> > >