Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 Belinda, I haven't been following every single word in the notes being passed the last few days but I honestly don't believe any personal attacks were intended. Written communications can be difficult sometimes since tone of voice doesn't come through. And especially when we feel down or a bit upset written words can seem really hurtful even if the person who wrote them didn't intend to hurt. From what you write to others and about yourself I know you to be a positive and caring person. Some of your posts are just plain inspirational. So please don't second guess yourself and feel you need to defend anything. Just keep on keepin' on. Oh... I also know of a research study for CBGD... stay tuned... I'll go find it. Hugs, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 Belinda, I haven't been following every single word in the notes being passed the last few days but I honestly don't believe any personal attacks were intended. Written communications can be difficult sometimes since tone of voice doesn't come through. And especially when we feel down or a bit upset written words can seem really hurtful even if the person who wrote them didn't intend to hurt. From what you write to others and about yourself I know you to be a positive and caring person. Some of your posts are just plain inspirational. So please don't second guess yourself and feel you need to defend anything. Just keep on keepin' on. Oh... I also know of a research study for CBGD... stay tuned... I'll go find it. Hugs, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 Pam, Thank you. I can not do the first study because I have had speech problems for almost a year now. I have a speech therapist who is helping me. God bless, Belinda > Belinda, I haven't been following every single word in the notes being > passed the last few days but I honestly don't believe any personal attacks > were intended. Written communications can be difficult sometimes since tone > of voice doesn't come through. And especially when we feel down or a bit > upset written words can seem really hurtful even if the person who wrote > them didn't intend to hurt. From what you write to others and about > yourself I know you to be a positive and caring person. Some of your posts > are just plain inspirational. So please don't second guess yourself and > feel you need to defend anything. Just keep on keepin' on. Oh... I also > know of a research study for CBGD... stay tuned... I'll go find it. > > Hugs, > Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 Belinda, please stay right where you are....on the list. I don't know where the discussion went or why you feel this way but I love to read your comments, suggestions and words of inspiration. In fact, last night I managed to get stung by a scorpian and am still experiencing the pain from that as I slowly type this. When poison control explained what would probably occur over the next 24 hours I just smiled to myself. My first thoughts? Well, if my MSA/CBGD friends can endure pain every day, I can certainly handle this. Thank you and everyone else for helping to put even more perspective in my life. Being positive does not mean you cannot express how you feel or your opinion. It should just mean that what you express is meant to help others heighten their understanding. And that's what you do best. Tingling away in AZ, ((((()))))Jan > I do not know how or why an issue came about to insult someone,or > someones,who were trying to help or relay their experiences.I do not > know why it is ok for insults to be made and no recourse should be > allowed to defend oneself. I know that I am not an authority on MSA. > I only know that neurologist specializing in movement orders are > specialist. I know that I have been told I have CBGD and not MSA. I > Do know that I have pain in every muscle of my body. It is not a > figment of my imagination. I do not push pain doctors, opiates, or > muscle relaxants. I do know if someone asked if someone was taking > something for pain I told them yes and what I take. I do not know if > others have pain with MSA if they don't I am so glad they don't. I go > to a neurologist in Atlanta that worked for the NIH and for Emory > Medical University who has had other patients with movement disorders > who knows that I go to a pain doctor and knows the medicines I take. > As far as going to a pain specialist specializing in movement > disorders, I don't. Please, note OVERDOSING on any kind of medication > is NOT recommended. You should only take what is prescribed for you > and nothing else. I do not believe and PLEASE NOTE THAT THIS IS MY > BELIEF that you can become addicted to medicines if you need them. I > also know that MSA, CBGD, PSP, ALS, and other rare brain disorders > are terminal and there is no quick fix for any of them. I do not put > doctors down but I can say that I had to go through a few doctors > before I found one who could tell me what he believed was wrong with > me. This doctor could only do that after trying PD drug such as > Requip on me to find out I do not have Parkinson's only Parkinson's > like symptoms. He also had to watch me for several months before > telling me his diagnoses. This is not an exact science that can be > told to someone over 1 visit or even a few visits. I also believe > though just because one doctor is good for 1 person doesn't make that > doctor good for all people. Just because a doctor can come highly > recommended and you don't feel comfortable working with that doctor > doesn't mean you are wrong in changing doctors. That is why there is > more than one neurologist out there. I believe that ALL movement > disorders are NOT something you would wish on anyone NOT even your > worse enemy. I believe a support group should be there for everyone > in the group regardless if that person is sick or the caregiver. It > should not be there to critize anyone regardless of who that person > is or how you personally feel about that person. It might be since I > have Corticobasal Ganglionic Degeneration that I should not be in > this support group. Even though this might be the case, I can not and > would not tell you which doctor you have to see. I can not and would > not tell you have to take pain medicine. I can not and would never > try to tell anyone to do something that would harm them. It is > fortunate to be in a country that anyone has the right to make > choices for theirselves. > God Bless, > Belinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 Belinda, please stay right where you are....on the list. I don't know where the discussion went or why you feel this way but I love to read your comments, suggestions and words of inspiration. In fact, last night I managed to get stung by a scorpian and am still experiencing the pain from that as I slowly type this. When poison control explained what would probably occur over the next 24 hours I just smiled to myself. My first thoughts? Well, if my MSA/CBGD friends can endure pain every day, I can certainly handle this. Thank you and everyone else for helping to put even more perspective in my life. Being positive does not mean you cannot express how you feel or your opinion. It should just mean that what you express is meant to help others heighten their understanding. And that's what you do best. Tingling away in AZ, ((((()))))Jan > I do not know how or why an issue came about to insult someone,or > someones,who were trying to help or relay their experiences.I do not > know why it is ok for insults to be made and no recourse should be > allowed to defend oneself. I know that I am not an authority on MSA. > I only know that neurologist specializing in movement orders are > specialist. I know that I have been told I have CBGD and not MSA. I > Do know that I have pain in every muscle of my body. It is not a > figment of my imagination. I do not push pain doctors, opiates, or > muscle relaxants. I do know if someone asked if someone was taking > something for pain I told them yes and what I take. I do not know if > others have pain with MSA if they don't I am so glad they don't. I go > to a neurologist in Atlanta that worked for the NIH and for Emory > Medical University who has had other patients with movement disorders > who knows that I go to a pain doctor and knows the medicines I take. > As far as going to a pain specialist specializing in movement > disorders, I don't. Please, note OVERDOSING on any kind of medication > is NOT recommended. You should only take what is prescribed for you > and nothing else. I do not believe and PLEASE NOTE THAT THIS IS MY > BELIEF that you can become addicted to medicines if you need them. I > also know that MSA, CBGD, PSP, ALS, and other rare brain disorders > are terminal and there is no quick fix for any of them. I do not put > doctors down but I can say that I had to go through a few doctors > before I found one who could tell me what he believed was wrong with > me. This doctor could only do that after trying PD drug such as > Requip on me to find out I do not have Parkinson's only Parkinson's > like symptoms. He also had to watch me for several months before > telling me his diagnoses. This is not an exact science that can be > told to someone over 1 visit or even a few visits. I also believe > though just because one doctor is good for 1 person doesn't make that > doctor good for all people. Just because a doctor can come highly > recommended and you don't feel comfortable working with that doctor > doesn't mean you are wrong in changing doctors. That is why there is > more than one neurologist out there. I believe that ALL movement > disorders are NOT something you would wish on anyone NOT even your > worse enemy. I believe a support group should be there for everyone > in the group regardless if that person is sick or the caregiver. It > should not be there to critize anyone regardless of who that person > is or how you personally feel about that person. It might be since I > have Corticobasal Ganglionic Degeneration that I should not be in > this support group. Even though this might be the case, I can not and > would not tell you which doctor you have to see. I can not and would > not tell you have to take pain medicine. I can not and would never > try to tell anyone to do something that would harm them. It is > fortunate to be in a country that anyone has the right to make > choices for theirselves. > God Bless, > Belinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 I couldn't agree more - support is what we are here for - and it should be unconditional. We can learn a lot from each other, not just about the illness but for lessons in perceverance and dignity. Stay put, I for one want you here, I can see I'm not alone. ((((cyberhugs))) At 5/28/02 08:24 AM Tuesday, you wrote: Belinda, please stay right where you are....on the list. I don't know where the discussion went or why you feel this way but I love to read your comments, suggestions and words of inspiration. In fact, last night I managed to get stung by a scorpian and am still experiencing the pain from that as I slowly type this. When poison control explained what would probably occur over the next 24 hours I just smiled to myself. My first thoughts? Well, if my MSA/CBGD friends can endure pain every day, I can certainly handle this. Thank you and everyone else for helping to put even more perspective in my life. Being positive does not mean you cannot express how you feel or your opinion. It should just mean that what you express is meant to help others heighten their understanding. And that's what you do best. Tingling away in AZ, ((((()))))Jan > I do not know how or why an issue came about to insult someone,or > someones,who were trying to help or relay their experiences.I do not > know why it is ok for insults to be made and no recourse should be > allowed to defend oneself. I know that I am not an authority on MSA. > I only know that neurologist specializing in movement orders are > specialist. I know that I have been told I have CBGD and not MSA. I > Do know that I have pain in every muscle of my body. It is not a > figment of my imagination. I do not push pain doctors, opiates, or > muscle relaxants. I do know if someone asked if someone was taking > something for pain I told them yes and what I take. I do not know if > others have pain with MSA if they don't I am so glad they don't. I go > to a neurologist in Atlanta that worked for the NIH and for Emory > Medical University who has had other patients with movement disorders > who knows that I go to a pain doctor and knows the medicines I take. > As far as going to a pain specialist specializing in movement > disorders, I don't. Please, note OVERDOSING on any kind of medication > is NOT recommended. You should only take what is prescribed for you > and nothing else. I do not believe and PLEASE NOTE THAT THIS IS MY > BELIEF that you can become addicted to medicines if you need them. I > also know that MSA, CBGD, PSP, ALS, and other rare brain disorders > are terminal and there is no quick fix for any of them. I do not put > doctors down but I can say that I had to go through a few doctors > before I found one who could tell me what he believed was wrong with > me. This doctor could only do that after trying PD drug such as > Requip on me to find out I do not have Parkinson's only Parkinson's > like symptoms. He also had to watch me for several months before > telling me his diagnoses. This is not an exact science that can be > told to someone over 1 visit or even a few visits. I also believe > though just because one doctor is good for 1 person doesn't make that > doctor good for all people. Just because a doctor can come highly > recommended and you don't feel comfortable working with that doctor > doesn't mean you are wrong in changing doctors. That is why there is > more than one neurologist out there. I believe that ALL movement > disorders are NOT something you would wish on anyone NOT even your > worse enemy. I believe a support group should be there for everyone > in the group regardless if that person is sick or the caregiver. It > should not be there to critize anyone regardless of who that person > is or how you personally feel about that person. It might be since I > have Corticobasal Ganglionic Degeneration that I should not be in > this support group. Even though this might be the case, I can not and > would not tell you which doctor you have to see. I can not and would > not tell you have to take pain medicine. I can not and would never > try to tell anyone to do something that would harm them. It is > fortunate to be in a country that anyone has the right to make > choices for theirselves. > God Bless, > Belinda If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 Oh Jan! I know that being stung by a scorpion is very painful. My husband and I bought a lake house after we were married. He was bit by a scorpion and I was scared terribly for him. I called the Pain control center and they couldn't understand why I was scared. They started laughing and telling me that the scorpion in Georgia were not poisionous. I didn't know that since every movie I had ever seen they were. My husband jokes about that with me until this day. Are they poisionous in Arizona? I sure hope not! The pain you will be experiencing will be bad enough. I hope you can take something for the pain! Praying for you all! Love and gentle hugs, Belinda > > I do not know how or why an issue came about to insult someone,or > > someones,who were trying to help or relay their experiences.I do > not > > know why it is ok for insults to be made and no recourse should be > > allowed to defend oneself. I know that I am not an authority on > MSA. > > I only know that neurologist specializing in movement orders are > > specialist. I know that I have been told I have CBGD and not MSA. I > > Do know that I have pain in every muscle of my body. It is not a > > figment of my imagination. I do not push pain doctors, opiates, or > > muscle relaxants. I do know if someone asked if someone was taking > > something for pain I told them yes and what I take. I do not know > if > > others have pain with MSA if they don't I am so glad they don't. I > go > > to a neurologist in Atlanta that worked for the NIH and for Emory > > Medical University who has had other patients with movement > disorders > > who knows that I go to a pain doctor and knows the medicines I > take. > > As far as going to a pain specialist specializing in movement > > disorders, I don't. Please, note OVERDOSING on any kind of > medication > > is NOT recommended. You should only take what is prescribed for you > > and nothing else. I do not believe and PLEASE NOTE THAT THIS IS MY > > BELIEF that you can become addicted to medicines if you need them. > I > > also know that MSA, CBGD, PSP, ALS, and other rare brain disorders > > are terminal and there is no quick fix for any of them. I do not > put > > doctors down but I can say that I had to go through a few doctors > > before I found one who could tell me what he believed was wrong > with > > me. This doctor could only do that after trying PD drug such as > > Requip on me to find out I do not have Parkinson's only > Parkinson's > > like symptoms. He also had to watch me for several months before > > telling me his diagnoses. This is not an exact science that can be > > told to someone over 1 visit or even a few visits. I also believe > > though just because one doctor is good for 1 person doesn't make > that > > doctor good for all people. Just because a doctor can come highly > > recommended and you don't feel comfortable working with that doctor > > doesn't mean you are wrong in changing doctors. That is why there > is > > more than one neurologist out there. I believe that ALL movement > > disorders are NOT something you would wish on anyone NOT even your > > worse enemy. I believe a support group should be there for everyone > > in the group regardless if that person is sick or the caregiver. It > > should not be there to critize anyone regardless of who that person > > is or how you personally feel about that person. It might be since > I > > have Corticobasal Ganglionic Degeneration that I should not be in > > this support group. Even though this might be the case, I can not > and > > would not tell you which doctor you have to see. I can not and > would > > not tell you have to take pain medicine. I can not and would never > > try to tell anyone to do something that would harm them. It is > > fortunate to be in a country that anyone has the right to make > > choices for theirselves. > > God Bless, > > Belinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 Belinda, Scorpians in AZ are poisonous but they do not cause death. They just cause a lot of pain which is usually gone in about 24 hours. I am counting the hours. The worse part for me is not being able to help Jerry as well. Thank goodness school is out and can help him too. Typing is also hard when using one finger on the left hand. But, I can't complain too much since all of you go through worse every day. Since I was sorting laundry when this happened I have now decided that laundry is hazardous to your health and if possible one should avoid it. Hugs, Jan > > > I do not know how or why an issue came about to insult someone,or > > > someones,who were trying to help or relay their experiences.I do > > not > > > know why it is ok for insults to be made and no recourse should > be > > > allowed to defend oneself. I know that I am not an authority on > > MSA. > > > I only know that neurologist specializing in movement orders are > > > specialist. I know that I have been told I have CBGD and not MSA. > I > > > Do know that I have pain in every muscle of my body. It is not a > > > figment of my imagination. I do not push pain doctors, opiates, > or > > > muscle relaxants. I do know if someone asked if someone was > taking > > > something for pain I told them yes and what I take. I do not know > > if > > > others have pain with MSA if they don't I am so glad they don't. > I > > go > > > to a neurologist in Atlanta that worked for the NIH and for Emory > > > Medical University who has had other patients with movement > > disorders > > > who knows that I go to a pain doctor and knows the medicines I > > take. > > > As far as going to a pain specialist specializing in movement > > > disorders, I don't. Please, note OVERDOSING on any kind of > > medication > > > is NOT recommended. You should only take what is prescribed for > you > > > and nothing else. I do not believe and PLEASE NOTE THAT THIS IS > MY > > > BELIEF that you can become addicted to medicines if you need > them. > > I > > > also know that MSA, CBGD, PSP, ALS, and other rare brain > disorders > > > are terminal and there is no quick fix for any of them. I do not > > put > > > doctors down but I can say that I had to go through a few doctors > > > before I found one who could tell me what he believed was wrong > > with > > > me. This doctor could only do that after trying PD drug such as > > > Requip on me to find out I do not have Parkinson's only > > Parkinson's > > > like symptoms. He also had to watch me for several months before > > > telling me his diagnoses. This is not an exact science that can > be > > > told to someone over 1 visit or even a few visits. I also believe > > > though just because one doctor is good for 1 person doesn't make > > that > > > doctor good for all people. Just because a doctor can come highly > > > recommended and you don't feel comfortable working with that > doctor > > > doesn't mean you are wrong in changing doctors. That is why there > > is > > > more than one neurologist out there. I believe that ALL movement > > > disorders are NOT something you would wish on anyone NOT even > your > > > worse enemy. I believe a support group should be there for > everyone > > > in the group regardless if that person is sick or the caregiver. > It > > > should not be there to critize anyone regardless of who that > person > > > is or how you personally feel about that person. It might be > since > > I > > > have Corticobasal Ganglionic Degeneration that I should not be in > > > this support group. Even though this might be the case, I can not > > and > > > would not tell you which doctor you have to see. I can not and > > would > > > not tell you have to take pain medicine. I can not and would > never > > > try to tell anyone to do something that would harm them. It is > > > fortunate to be in a country that anyone has the right to make > > > choices for theirselves. > > > God Bless, > > > Belinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 Belinda, Scorpians in AZ are poisonous but they do not cause death. They just cause a lot of pain which is usually gone in about 24 hours. I am counting the hours. The worse part for me is not being able to help Jerry as well. Thank goodness school is out and can help him too. Typing is also hard when using one finger on the left hand. But, I can't complain too much since all of you go through worse every day. Since I was sorting laundry when this happened I have now decided that laundry is hazardous to your health and if possible one should avoid it. Hugs, Jan > > > I do not know how or why an issue came about to insult someone,or > > > someones,who were trying to help or relay their experiences.I do > > not > > > know why it is ok for insults to be made and no recourse should > be > > > allowed to defend oneself. I know that I am not an authority on > > MSA. > > > I only know that neurologist specializing in movement orders are > > > specialist. I know that I have been told I have CBGD and not MSA. > I > > > Do know that I have pain in every muscle of my body. It is not a > > > figment of my imagination. I do not push pain doctors, opiates, > or > > > muscle relaxants. I do know if someone asked if someone was > taking > > > something for pain I told them yes and what I take. I do not know > > if > > > others have pain with MSA if they don't I am so glad they don't. > I > > go > > > to a neurologist in Atlanta that worked for the NIH and for Emory > > > Medical University who has had other patients with movement > > disorders > > > who knows that I go to a pain doctor and knows the medicines I > > take. > > > As far as going to a pain specialist specializing in movement > > > disorders, I don't. Please, note OVERDOSING on any kind of > > medication > > > is NOT recommended. You should only take what is prescribed for > you > > > and nothing else. I do not believe and PLEASE NOTE THAT THIS IS > MY > > > BELIEF that you can become addicted to medicines if you need > them. > > I > > > also know that MSA, CBGD, PSP, ALS, and other rare brain > disorders > > > are terminal and there is no quick fix for any of them. I do not > > put > > > doctors down but I can say that I had to go through a few doctors > > > before I found one who could tell me what he believed was wrong > > with > > > me. This doctor could only do that after trying PD drug such as > > > Requip on me to find out I do not have Parkinson's only > > Parkinson's > > > like symptoms. He also had to watch me for several months before > > > telling me his diagnoses. This is not an exact science that can > be > > > told to someone over 1 visit or even a few visits. I also believe > > > though just because one doctor is good for 1 person doesn't make > > that > > > doctor good for all people. Just because a doctor can come highly > > > recommended and you don't feel comfortable working with that > doctor > > > doesn't mean you are wrong in changing doctors. That is why there > > is > > > more than one neurologist out there. I believe that ALL movement > > > disorders are NOT something you would wish on anyone NOT even > your > > > worse enemy. I believe a support group should be there for > everyone > > > in the group regardless if that person is sick or the caregiver. > It > > > should not be there to critize anyone regardless of who that > person > > > is or how you personally feel about that person. It might be > since > > I > > > have Corticobasal Ganglionic Degeneration that I should not be in > > > this support group. Even though this might be the case, I can not > > and > > > would not tell you which doctor you have to see. I can not and > > would > > > not tell you have to take pain medicine. I can not and would > never > > > try to tell anyone to do something that would harm them. It is > > > fortunate to be in a country that anyone has the right to make > > > choices for theirselves. > > > God Bless, > > > Belinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 Belinda, Scorpians in AZ are poisonous but they do not cause death. They just cause a lot of pain which is usually gone in about 24 hours. I am counting the hours. The worse part for me is not being able to help Jerry as well. Thank goodness school is out and can help him too. Typing is also hard when using one finger on the left hand. But, I can't complain too much since all of you go through worse every day. Since I was sorting laundry when this happened I have now decided that laundry is hazardous to your health and if possible one should avoid it. Hugs, Jan > > > I do not know how or why an issue came about to insult someone,or > > > someones,who were trying to help or relay their experiences.I do > > not > > > know why it is ok for insults to be made and no recourse should > be > > > allowed to defend oneself. I know that I am not an authority on > > MSA. > > > I only know that neurologist specializing in movement orders are > > > specialist. I know that I have been told I have CBGD and not MSA. > I > > > Do know that I have pain in every muscle of my body. It is not a > > > figment of my imagination. I do not push pain doctors, opiates, > or > > > muscle relaxants. I do know if someone asked if someone was > taking > > > something for pain I told them yes and what I take. I do not know > > if > > > others have pain with MSA if they don't I am so glad they don't. > I > > go > > > to a neurologist in Atlanta that worked for the NIH and for Emory > > > Medical University who has had other patients with movement > > disorders > > > who knows that I go to a pain doctor and knows the medicines I > > take. > > > As far as going to a pain specialist specializing in movement > > > disorders, I don't. Please, note OVERDOSING on any kind of > > medication > > > is NOT recommended. You should only take what is prescribed for > you > > > and nothing else. I do not believe and PLEASE NOTE THAT THIS IS > MY > > > BELIEF that you can become addicted to medicines if you need > them. > > I > > > also know that MSA, CBGD, PSP, ALS, and other rare brain > disorders > > > are terminal and there is no quick fix for any of them. I do not > > put > > > doctors down but I can say that I had to go through a few doctors > > > before I found one who could tell me what he believed was wrong > > with > > > me. This doctor could only do that after trying PD drug such as > > > Requip on me to find out I do not have Parkinson's only > > Parkinson's > > > like symptoms. He also had to watch me for several months before > > > telling me his diagnoses. This is not an exact science that can > be > > > told to someone over 1 visit or even a few visits. I also believe > > > though just because one doctor is good for 1 person doesn't make > > that > > > doctor good for all people. Just because a doctor can come highly > > > recommended and you don't feel comfortable working with that > doctor > > > doesn't mean you are wrong in changing doctors. That is why there > > is > > > more than one neurologist out there. I believe that ALL movement > > > disorders are NOT something you would wish on anyone NOT even > your > > > worse enemy. I believe a support group should be there for > everyone > > > in the group regardless if that person is sick or the caregiver. > It > > > should not be there to critize anyone regardless of who that > person > > > is or how you personally feel about that person. It might be > since > > I > > > have Corticobasal Ganglionic Degeneration that I should not be in > > > this support group. Even though this might be the case, I can not > > and > > > would not tell you which doctor you have to see. I can not and > > would > > > not tell you have to take pain medicine. I can not and would > never > > > try to tell anyone to do something that would harm them. It is > > > fortunate to be in a country that anyone has the right to make > > > choices for theirselves. > > > God Bless, > > > Belinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 Pam I thought it was a good idea when someone on the list suggested that we contacted you to report that we had responded to Dr Shults questionaire.I responded the next day .I see that he is looking for people with more definite dx(probable ,rather than possible) but I still think us possibles should respond and let them know that there is plenty of interest and enthusiasm for their research.Personally I hope to have a chance to help in any way.Thanks for all you do for this group Love Marg .Manson Pam Bower wrote: Belinda, I haven't been following every single word in the notes beingpassed the last few days but I honestly don't believe any personal attackswere intended. Written communications can be difficult sometimes since toneof voice doesn't come through. And especially when we feel down or a bitupset written words can seem really hurtful even if the person who wrotethem didn't intend to hurt. From what you write to others and aboutyourself I know you to be a positive and caring person. Some of your postsare just plain inspirational. So please don't second guess yourself andfeel you need to defend anything. Just keep on keepin' on. Oh... I alsoknow of a research study for CBGD... stay tuned... I'll go find it.Hugs,PamIf you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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