Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 Belind, Look Swetheart, if some people get their kicks out of criticising others who are trying to survive and find comfort among others with like problems, ignore them. I believe in a situation where all you people get together and let your hair down, you are allowed to voice your feelings, otherwise you might as well not sign on in the first place. If anybody feels offended they can ask what you mean. It is very theraputic to let go about what bothers you. If any person finds themselves uncomfortable with your views, they don't have to look at them. Personally I have never read anything bad into what you have said. I must have missed the bit being spoken of, as I don't read every note. I don't have that much time. I do know however, of the ones I have read, that they make me feel a bit better, as I am finding many wounderful people who, although they may not have exactly the same illness that I have, are caring and helpful, while discussing the problems they have come across, which include daily living , medical people and many other things. Keep going love, and be yourself. That's what I believe helps everybody else. Love and hugs from Bill P God Bless > I do not know how or why an issue came about to insult someone,or > someones,who were trying to help or relay their experiences.I do not > know why it is ok for insults to be made and no recourse should be > allowed to defend oneself. I know that I am not an authority on MSA. > I only know that neurologist specializing in movement orders are > specialist. I know that I have been told I have CBGD and not MSA. I > Do know that I have pain in every muscle of my body. It is not a > figment of my imagination. I do not push pain doctors, opiates, or > muscle relaxants. I do know if someone asked if someone was taking > something for pain I told them yes and what I take. I do not know if > others have pain with MSA if they don't I am so glad they don't. I go > to a neurologist in Atlanta that worked for the NIH and for Emory > Medical University who has had other patients with movement disorders > who knows that I go to a pain doctor and knows the medicines I take. > As far as going to a pain specialist specializing in movement > disorders, I don't. Please, note OVERDOSING on any kind of medication > is NOT recommended. You should only take what is prescribed for you > and nothing else. I do not believe and PLEASE NOTE THAT THIS IS MY > BELIEF that you can become addicted to medicines if you need them. I > also know that MSA, CBGD, PSP, ALS, and other rare brain disorders > are terminal and there is no quick fix for any of them. I do not put > doctors down but I can say that I had to go through a few doctors > before I found one who could tell me what he believed was wrong with > me. This doctor could only do that after trying PD drug such as > Requip on me to find out I do not have Parkinson's only Parkinson's > like symptoms. He also had to watch me for several months before > telling me his diagnoses. This is not an exact science that can be > told to someone over 1 visit or even a few visits. I also believe > though just because one doctor is good for 1 person doesn't make that > doctor good for all people. Just because a doctor can come highly > recommended and you don't feel comfortable working with that doctor > doesn't mean you are wrong in changing doctors. That is why there is > more than one neurologist out there. I believe that ALL movement > disorders are NOT something you would wish on anyone NOT even your > worse enemy. I believe a support group should be there for everyone > in the group regardless if that person is sick or the caregiver. It > should not be there to critize anyone regardless of who that person > is or how you personally feel about that person. It might be since I > have Corticobasal Ganglionic Degeneration that I should not be in > this support group. Even though this might be the case, I can not and > would not tell you which doctor you have to see. I can not and would > not tell you have to take pain medicine. I can not and would never > try to tell anyone to do something that would harm them. It is > fortunate to be in a country that anyone has the right to make > choices for theirselves. > God Bless, > Belinda > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 Dear Bill, Thank you. I have a smart " a " question to ask you. Since in the last post I told you your family would rather talk to you instead of you being 6 feet under I need to ask this. Since in Aussie you are already down under does that mean when we say buried 6 ft down under are people in Aussie buried 6 ft up over? hehe, sorry couldn't resist. lots of love and gentle hugs, Belinda > Belind, > Look Swetheart, if some people get their kicks out of criticising others > who are trying to survive and find comfort among others with like problems, > ignore them. I believe in a situation where all you people get together and > let your hair down, you are allowed to voice your feelings, otherwise you > might as well not sign on in the first place. If anybody feels offended > they can ask what you mean. It is very theraputic to let go about what > bothers you. If any person finds themselves uncomfortable with your views, > they don't have to look at them. Personally I have never read anything bad > into what you have said. > I must have missed the bit being spoken of, as I don't read every note. > I don't have that much time. I do know however, of the ones I have read, > that they make me feel a bit better, as I am finding many wounderful people > who, although they may not have exactly the same illness that I have, are > caring and helpful, while discussing the problems they have come across, > which include daily living , medical people and many other things. > Keep going love, and be yourself. That's what I believe helps everybody > else. > Love and hugs from Bill P > God Bless > > > > I do not know how or why an issue came about to insult someone,or > > someones,who were trying to help or relay their experiences.I do not > > know why it is ok for insults to be made and no recourse should be > > allowed to defend oneself. I know that I am not an authority on MSA. > > I only know that neurologist specializing in movement orders are > > specialist. I know that I have been told I have CBGD and not MSA. I > > Do know that I have pain in every muscle of my body. It is not a > > figment of my imagination. I do not push pain doctors, opiates, or > > muscle relaxants. I do know if someone asked if someone was taking > > something for pain I told them yes and what I take. I do not know if > > others have pain with MSA if they don't I am so glad they don't. I go > > to a neurologist in Atlanta that worked for the NIH and for Emory > > Medical University who has had other patients with movement disorders > > who knows that I go to a pain doctor and knows the medicines I take. > > As far as going to a pain specialist specializing in movement > > disorders, I don't. Please, note OVERDOSING on any kind of medication > > is NOT recommended. You should only take what is prescribed for you > > and nothing else. I do not believe and PLEASE NOTE THAT THIS IS MY > > BELIEF that you can become addicted to medicines if you need them. I > > also know that MSA, CBGD, PSP, ALS, and other rare brain disorders > > are terminal and there is no quick fix for any of them. I do not put > > doctors down but I can say that I had to go through a few doctors > > before I found one who could tell me what he believed was wrong with > > me. This doctor could only do that after trying PD drug such as > > Requip on me to find out I do not have Parkinson's only Parkinson's > > like symptoms. He also had to watch me for several months before > > telling me his diagnoses. This is not an exact science that can be > > told to someone over 1 visit or even a few visits. I also believe > > though just because one doctor is good for 1 person doesn't make that > > doctor good for all people. Just because a doctor can come highly > > recommended and you don't feel comfortable working with that doctor > > doesn't mean you are wrong in changing doctors. That is why there is > > more than one neurologist out there. I believe that ALL movement > > disorders are NOT something you would wish on anyone NOT even your > > worse enemy. I believe a support group should be there for everyone > > in the group regardless if that person is sick or the caregiver. It > > should not be there to critize anyone regardless of who that person > > is or how you personally feel about that person. It might be since I > > have Corticobasal Ganglionic Degeneration that I should not be in > > this support group. Even though this might be the case, I can not and > > would not tell you which doctor you have to see. I can not and would > > not tell you have to take pain medicine. I can not and would never > > try to tell anyone to do something that would harm them. It is > > fortunate to be in a country that anyone has the right to make > > choices for theirselves. > > God Bless, > > Belinda > > > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe@y... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 How many thousand feet am I under - your wrong! It is only about a third of that in metres God Bless > > > > > > > I do not know how or why an issue came about to insult someone,or > > > someones,who were trying to help or relay their experiences.I do > not > > > know why it is ok for insults to be made and no recourse should be > > > allowed to defend oneself. I know that I am not an authority on > MSA. > > > I only know that neurologist specializing in movement orders are > > > specialist. I know that I have been told I have CBGD and not MSA. > I > > > Do know that I have pain in every muscle of my body. It is not a > > > figment of my imagination. I do not push pain doctors, opiates, or > > > muscle relaxants. I do know if someone asked if someone was taking > > > something for pain I told them yes and what I take. I do not know > if > > > others have pain with MSA if they don't I am so glad they don't. > I go > > > to a neurologist in Atlanta that worked for the NIH and for Emory > > > Medical University who has had other patients with movement > disorders > > > who knows that I go to a pain doctor and knows the medicines I > take. > > > As far as going to a pain specialist specializing in movement > > > disorders, I don't. Please, note OVERDOSING on any kind of > medication > > > is NOT recommended. You should only take what is prescribed for > you > > > and nothing else. I do not believe and PLEASE NOTE THAT THIS IS MY > > > BELIEF that you can become addicted to medicines if you need > them. I > > > also know that MSA, CBGD, PSP, ALS, and other rare brain disorders > > > are terminal and there is no quick fix for any of them. I do not > put > > > doctors down but I can say that I had to go through a few doctors > > > before I found one who could tell me what he believed was wrong > with > > > me. This doctor could only do that after trying PD drug such as > > > Requip on me to find out I do not have Parkinson's only > Parkinson's > > > like symptoms. He also had to watch me for several months before > > > telling me his diagnoses. This is not an exact science that can be > > > told to someone over 1 visit or even a few visits. I also believe > > > though just because one doctor is good for 1 person doesn't make > that > > > doctor good for all people. Just because a doctor can come highly > > > recommended and you don't feel comfortable working with that > doctor > > > doesn't mean you are wrong in changing doctors. That is why there > is > > > more than one neurologist out there. I believe that ALL movement > > > disorders are NOT something you would wish on anyone NOT even your > > > worse enemy. I believe a support group should be there for > everyone > > > in the group regardless if that person is sick or the caregiver. > It > > > should not be there to critize anyone regardless of who that > person > > > is or how you personally feel about that person. It might be > since I > > > have Corticobasal Ganglionic Degeneration that I should not be in > > > this support group. Even though this might be the case, I can not > and > > > would not tell you which doctor you have to see. I can not and > would > > > not tell you have to take pain medicine. I can not and would never > > > try to tell anyone to do something that would harm them. It is > > > fortunate to be in a country that anyone has the right to make > > > choices for theirselves. > > > God Bless, > > > Belinda > > > > > > > > > If you do not wish to belong to shydrager, you may > > > unsubscribe by sending a blank email to > > > > > > shydrager-unsubscribe@y... > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 How many thousand feet am I under - your wrong! It is only about a third of that in metres God Bless > > > > > > > I do not know how or why an issue came about to insult someone,or > > > someones,who were trying to help or relay their experiences.I do > not > > > know why it is ok for insults to be made and no recourse should be > > > allowed to defend oneself. I know that I am not an authority on > MSA. > > > I only know that neurologist specializing in movement orders are > > > specialist. I know that I have been told I have CBGD and not MSA. > I > > > Do know that I have pain in every muscle of my body. It is not a > > > figment of my imagination. I do not push pain doctors, opiates, or > > > muscle relaxants. I do know if someone asked if someone was taking > > > something for pain I told them yes and what I take. I do not know > if > > > others have pain with MSA if they don't I am so glad they don't. > I go > > > to a neurologist in Atlanta that worked for the NIH and for Emory > > > Medical University who has had other patients with movement > disorders > > > who knows that I go to a pain doctor and knows the medicines I > take. > > > As far as going to a pain specialist specializing in movement > > > disorders, I don't. Please, note OVERDOSING on any kind of > medication > > > is NOT recommended. You should only take what is prescribed for > you > > > and nothing else. I do not believe and PLEASE NOTE THAT THIS IS MY > > > BELIEF that you can become addicted to medicines if you need > them. I > > > also know that MSA, CBGD, PSP, ALS, and other rare brain disorders > > > are terminal and there is no quick fix for any of them. I do not > put > > > doctors down but I can say that I had to go through a few doctors > > > before I found one who could tell me what he believed was wrong > with > > > me. This doctor could only do that after trying PD drug such as > > > Requip on me to find out I do not have Parkinson's only > Parkinson's > > > like symptoms. He also had to watch me for several months before > > > telling me his diagnoses. This is not an exact science that can be > > > told to someone over 1 visit or even a few visits. I also believe > > > though just because one doctor is good for 1 person doesn't make > that > > > doctor good for all people. Just because a doctor can come highly > > > recommended and you don't feel comfortable working with that > doctor > > > doesn't mean you are wrong in changing doctors. That is why there > is > > > more than one neurologist out there. I believe that ALL movement > > > disorders are NOT something you would wish on anyone NOT even your > > > worse enemy. I believe a support group should be there for > everyone > > > in the group regardless if that person is sick or the caregiver. > It > > > should not be there to critize anyone regardless of who that > person > > > is or how you personally feel about that person. It might be > since I > > > have Corticobasal Ganglionic Degeneration that I should not be in > > > this support group. Even though this might be the case, I can not > and > > > would not tell you which doctor you have to see. I can not and > would > > > not tell you have to take pain medicine. I can not and would never > > > try to tell anyone to do something that would harm them. It is > > > fortunate to be in a country that anyone has the right to make > > > choices for theirselves. > > > God Bless, > > > Belinda > > > > > > > > > If you do not wish to belong to shydrager, you may > > > unsubscribe by sending a blank email to > > > > > > shydrager-unsubscribe@y... > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 How many thousand feet am I under - your wrong! It is only about a third of that in metres God Bless > > > > > > > I do not know how or why an issue came about to insult someone,or > > > someones,who were trying to help or relay their experiences.I do > not > > > know why it is ok for insults to be made and no recourse should be > > > allowed to defend oneself. I know that I am not an authority on > MSA. > > > I only know that neurologist specializing in movement orders are > > > specialist. I know that I have been told I have CBGD and not MSA. > I > > > Do know that I have pain in every muscle of my body. It is not a > > > figment of my imagination. I do not push pain doctors, opiates, or > > > muscle relaxants. I do know if someone asked if someone was taking > > > something for pain I told them yes and what I take. I do not know > if > > > others have pain with MSA if they don't I am so glad they don't. > I go > > > to a neurologist in Atlanta that worked for the NIH and for Emory > > > Medical University who has had other patients with movement > disorders > > > who knows that I go to a pain doctor and knows the medicines I > take. > > > As far as going to a pain specialist specializing in movement > > > disorders, I don't. Please, note OVERDOSING on any kind of > medication > > > is NOT recommended. You should only take what is prescribed for > you > > > and nothing else. I do not believe and PLEASE NOTE THAT THIS IS MY > > > BELIEF that you can become addicted to medicines if you need > them. I > > > also know that MSA, CBGD, PSP, ALS, and other rare brain disorders > > > are terminal and there is no quick fix for any of them. I do not > put > > > doctors down but I can say that I had to go through a few doctors > > > before I found one who could tell me what he believed was wrong > with > > > me. This doctor could only do that after trying PD drug such as > > > Requip on me to find out I do not have Parkinson's only > Parkinson's > > > like symptoms. He also had to watch me for several months before > > > telling me his diagnoses. This is not an exact science that can be > > > told to someone over 1 visit or even a few visits. I also believe > > > though just because one doctor is good for 1 person doesn't make > that > > > doctor good for all people. Just because a doctor can come highly > > > recommended and you don't feel comfortable working with that > doctor > > > doesn't mean you are wrong in changing doctors. That is why there > is > > > more than one neurologist out there. I believe that ALL movement > > > disorders are NOT something you would wish on anyone NOT even your > > > worse enemy. I believe a support group should be there for > everyone > > > in the group regardless if that person is sick or the caregiver. > It > > > should not be there to critize anyone regardless of who that > person > > > is or how you personally feel about that person. It might be > since I > > > have Corticobasal Ganglionic Degeneration that I should not be in > > > this support group. Even though this might be the case, I can not > and > > > would not tell you which doctor you have to see. I can not and > would > > > not tell you have to take pain medicine. I can not and would never > > > try to tell anyone to do something that would harm them. It is > > > fortunate to be in a country that anyone has the right to make > > > choices for theirselves. > > > God Bless, > > > Belinda > > > > > > > > > If you do not wish to belong to shydrager, you may > > > unsubscribe by sending a blank email to > > > > > > shydrager-unsubscribe@y... > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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