God Bless

[Guest guest]

I do not know how or why an issue came about to insult someone,or

someones,who were trying to help or relay their experiences.I do not

know why it is ok for insults to be made and no recourse should be

allowed to defend oneself. I know that I am not an authority on MSA.

I only know that neurologist specializing in movement orders are

specialist. I know that I have been told I have CBGD and not MSA. I

Do know that I have pain in every muscle of my body. It is not a

figment of my imagination. I do not push pain doctors, opiates, or

muscle relaxants. I do know if someone asked if someone was taking

something for pain I told them yes and what I take. I do not know if

others have pain with MSA if they don't I am so glad they don't. I go

to a neurologist in Atlanta that worked for the NIH and for Emory

Medical University who has had other patients with movement disorders

who knows that I go to a pain doctor and knows the medicines I take.

As far as going to a pain specialist specializing in movement

disorders, I don't. Please, note OVERDOSING on any kind of medication

is NOT recommended. You should only take what is prescribed for you

and nothing else. I do not believe and PLEASE NOTE THAT THIS IS MY

BELIEF that you can become addicted to medicines if you need them. I

also know that MSA, CBGD, PSP, ALS, and other rare brain disorders

are terminal and there is no quick fix for any of them. I do not put

doctors down but I can say that I had to go through a few doctors

before I found one who could tell me what he believed was wrong with

me. This doctor could only do that after trying PD drug such as

Requip on me to find out I do not have Parkinson's only Parkinson's

like symptoms. He also had to watch me for several months before

telling me his diagnoses. This is not an exact science that can be

told to someone over 1 visit or even a few visits. I also believe

though just because one doctor is good for 1 person doesn't make that

doctor good for all people. Just because a doctor can come highly

recommended and you don't feel comfortable working with that doctor

doesn't mean you are wrong in changing doctors. That is why there is

more than one neurologist out there. I believe that ALL movement

disorders are NOT something you would wish on anyone NOT even your

worse enemy. I believe a support group should be there for everyone

in the group regardless if that person is sick or the caregiver. It

should not be there to critize anyone regardless of who that person

is or how you personally feel about that person. It might be since I

have Corticobasal Ganglionic Degeneration that I should not be in

this support group. Even though this might be the case, I can not and

would not tell you which doctor you have to see. I can not and would

not tell you have to take pain medicine. I can not and would never

try to tell anyone to do something that would harm them. It is

fortunate to be in a country that anyone has the right to make

choices for theirselves.

God Bless,

Belinda