Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Dear Shirley, I am so sorry to hear Ralph is not home yet and you are still traveling to and from the hospital. Jerry is remembering his recent hospital stay and the frustration and " alone " feeling he had, even though he knew we were all there for him. I remember the exhaustion, and worry I experienced. You will certainly be in our thoughts and prayers. Jan & Jerry > We thought Ralph would be home yesterday, but they are keeping him longer. > He is having a rough time getting his blood pressure (to low) and now is > pulse is high. I came home for a little while. I just do not know what to > do. I have been there full days since Tuesday morning. Our daughter also. > I have notice more dementia with him and when I left he said he was lonely > (as to say I am not there enough). I am in tears. They told us that it is > Shy Drager (Parkinson Plus). Our daughter is home from college now, his son > came up all afternoon on Sunday. Please keep us in your prayers. Love, > Shirley > > " I believe that friends are quiet angels who lift us to our feet when our > wings have trouble remembering how to fly " > OmegaMom43@m..., OmegaMom44 (AOL Instant Messenger) > All mail scanned for viruses by Norton Antivirus 2002. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Dear Shirley, I am so sorry to hear Ralph is not home yet and you are still traveling to and from the hospital. Jerry is remembering his recent hospital stay and the frustration and " alone " feeling he had, even though he knew we were all there for him. I remember the exhaustion, and worry I experienced. You will certainly be in our thoughts and prayers. Jan & Jerry > We thought Ralph would be home yesterday, but they are keeping him longer. > He is having a rough time getting his blood pressure (to low) and now is > pulse is high. I came home for a little while. I just do not know what to > do. I have been there full days since Tuesday morning. Our daughter also. > I have notice more dementia with him and when I left he said he was lonely > (as to say I am not there enough). I am in tears. They told us that it is > Shy Drager (Parkinson Plus). Our daughter is home from college now, his son > came up all afternoon on Sunday. Please keep us in your prayers. Love, > Shirley > > " I believe that friends are quiet angels who lift us to our feet when our > wings have trouble remembering how to fly " > OmegaMom43@m..., OmegaMom44 (AOL Instant Messenger) > All mail scanned for viruses by Norton Antivirus 2002. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Dear Shirley, I am so sorry to hear Ralph is not home yet and you are still traveling to and from the hospital. Jerry is remembering his recent hospital stay and the frustration and " alone " feeling he had, even though he knew we were all there for him. I remember the exhaustion, and worry I experienced. You will certainly be in our thoughts and prayers. Jan & Jerry > We thought Ralph would be home yesterday, but they are keeping him longer. > He is having a rough time getting his blood pressure (to low) and now is > pulse is high. I came home for a little while. I just do not know what to > do. I have been there full days since Tuesday morning. Our daughter also. > I have notice more dementia with him and when I left he said he was lonely > (as to say I am not there enough). I am in tears. They told us that it is > Shy Drager (Parkinson Plus). Our daughter is home from college now, his son > came up all afternoon on Sunday. Please keep us in your prayers. Love, > Shirley > > " I believe that friends are quiet angels who lift us to our feet when our > wings have trouble remembering how to fly " > OmegaMom43@m..., OmegaMom44 (AOL Instant Messenger) > All mail scanned for viruses by Norton Antivirus 2002. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Shirley, I'm sorry to hear that Ralph is still having a difficult time. Rob was in the hospital for a clinical trial a couple of years ago and they took him off of all his meds, which caused his blood pressure to drop drastically. His level of confusion was terrible and I was shocked at some of the things he was saying and doing. Even though I was there every day, every day when I arrived he would ask me if I had been there the day before. The nurses assured me that it was due to a lack of blood to his brain and sure enough, once he was back on his meds and his blood pressure was being propped up again he was much better. Hang in there, Carol & Rob Lexington, MA > We thought Ralph would be home yesterday, but they are keeping him longer. > He is having a rough time getting his blood pressure (to low) and now is > pulse is high. I came home for a little while. I just do not know what to > do. I have been there full days since Tuesday morning. Our daughter also. > I have notice more dementia with him and when I left he said he was lonely > (as to say I am not there enough). I am in tears. They told us that it is > Shy Drager (Parkinson Plus). Our daughter is home from college now, his son > came up all afternoon on Sunday. Please keep us in your prayers. Love, > Shirley > > " I believe that friends are quiet angels who lift us to our feet when our > wings have trouble remembering how to fly " > OmegaMom43@m..., OmegaMom44 (AOL Instant Messenger) > All mail scanned for viruses by Norton Antivirus 2002. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Dear Shirley, Try to hang in there. Hospitalization's are a drag for everyone involved. Sometimes I think it is harder on the caregiver who is trying to be there all the time. I am sure that once they get his meds under control, he will start to improve. I know that it is hard, but see if you can sneak in a nap or just take some time for yourself. We are thinking of you and hope for some good news soon. Love, Jean & Chrissie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Shirley, This is a rough, rough time. I am sorry Ralph and you are going through this. I hope he is stable and going home soon. Hang in there. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 shirley and family, I hope ur husband (ur dad) gets stable soon and comes home. nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Shirley, Your family is included in our prayers each day. I am so sorry to hear about what Ralph is going through. I know he is sick and tired of being sick and tired. I had problems with memory when I was in the hospital too. They got better once I returned home and recovered from the trauma of it all. I also became completely despondent when a nurse would come in trying to find a vein to poke for yet another IV site. I collapsed a vein every 6 hours and the highlight of my last hospitalization was when anesthesiology came in and tried and failed to find a vein. It was then put on my medical chart that surgery for IV therapy was not warranted at this time. That was my happiest day. I finally had blown so many veins that they would no longer torture me. One thing that did for me that helped a lot was bring me something to eat from a restaurant. I know that may sound silly but it did more good than any medication the hospital, nursing staff or doctors could do for me. I hope this ordeal will be over for both of you soon and you can get back home and not have so much more added to your plate. My blood pressure was also all over the place (mostly extremely low...one reading was 58/36) and my pulse went quite high (as much as 121 bpm). There was nothing that they could do for that in the hospital other than monitor me because they were afraid. It's the same at home as it was there.... all over the place. You might want to ask why they are still keeping him and ask if in their opinion his care of him would be any different at home as it is in the hospital. I guess what I am trying to say is are they doing this because they are afraid of a lawsuit or unfamiliar with this disease and what it does or do they think that there is some kind of advantage for Ralph being in the hospital. His being " lonely " doesn't help anyone, mostly you. There is only so much that a care partner can do in this situation and it is exhausting. I don't know how my husband survived 36 days over 4 hospitalizations in 4 months with me. I don't know how I survived it either. I didn't mean to ramble but my heart just went out to both of you because of this long hospitalization. If you need/want to talk or if Ralph does.... email me offline and I'll give you our phone number. We can at least offer support and information from having gone through this over and over and over and over again. Hang in there. Hugs, Deborah aka Tenacity _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
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