Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 I've had a few interesting neuro's the last few years: there was the one who after a ghastly night at the hospital gave me ten minutes of his very diluted time and pronounced how nice it must be for me to have my husband support me so I could be ill. Never bothered to find out that I was single and two years of illness had bankrupted me - asshole this happened to be the same doctor who makes the pronouncement to his new residents that they need not go into the symptomology of Shy-Drager because they are unlinkely to encounter it during their entire practice there was the one, who, after having another of my specialists suggest I have Shy Drager, told me it was not possible since I was too young (46) and female - duh! the one who told me the MRI (for which I had to wait a year) showed I did not have MS, when asked if I needed another appointment he said no, you don't have MS do you? the one who told me after doing a brief memory test (no more than 10 minutes for the entire appointment), told me I needed to keep seeing a psychiatrist The one who suggested without any tests or consults with my GP or psychiatrist I needed anti-depressants, told me I was most likely menopausal and a little lonely I did oncer upon a time have a good neuro, when I was 13 he diagnosed Bell's Palsy, saw me often, treated me with respect 9and ran inteference with my mother, he also diagnosed my epilepsy when I was 18 my daughter's neuro was spectacular when he diagnosed and treated her trigeminal neuralgia, he returned all her calls saw her often and her meds were well monitored - but he did tell her, he felt because of her young age she was a priority - what does that say? The rheumatologist, psychiatrict, eye-doctor (optha-something) and current GP are fabulous, the odds are that I will not get to see a movement specialist of neuro for some time referrals right now are not happening at all and even when they were making them, unless it was life or death it easily took up to a year. It has taken many years just to do the ruling out and most of that was not done by neuros. None of the docs who claimed it was in my head ever bothered to call my shrink. I had to beg him to send it in writing to my GP that I was not experiencing anything of a psychiatric nature. It was my shrink who bothered to test for orthostatic hypotension, researched MSA and properly gave me medication to help with symptoms. Colour me hesitant to see another. What good would it do?? At Friday 5/24/02 08:59 PM, you wrote: Bill, The point I was trying to make was that most neurologists are supposedly brainy people, who usually are very short on people skills, and sometimes on brain skills as well. Sorry if I hurt any neuro's feelings. This comes, as I said, from a lifetime experience dealing with neurologists as a colleague, as a patient, and as a patient advocate. I won't go into details. I was commiserating with who said that one neurologist said that he could diagnose her husband if they would let him do an autopsy. What kind of creep would say that? It's best to stick with the medical centers who have some reputation in the MSA diagnosis field. Some local neurologists have no inkling of MSA and, if they have a patient, don't even bother to come up to speed on the latest medical treatment. On the other hand, some non-neurologists we have met are great, such as an ER doctor in Northern Wisconsin who knew what was going on when my husband had a mental blackout. Sorry, but sour on docs. Barbara Woodford If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 I've had a few interesting neuro's the last few years: there was the one who after a ghastly night at the hospital gave me ten minutes of his very diluted time and pronounced how nice it must be for me to have my husband support me so I could be ill. Never bothered to find out that I was single and two years of illness had bankrupted me - asshole this happened to be the same doctor who makes the pronouncement to his new residents that they need not go into the symptomology of Shy-Drager because they are unlinkely to encounter it during their entire practice there was the one, who, after having another of my specialists suggest I have Shy Drager, told me it was not possible since I was too young (46) and female - duh! the one who told me the MRI (for which I had to wait a year) showed I did not have MS, when asked if I needed another appointment he said no, you don't have MS do you? the one who told me after doing a brief memory test (no more than 10 minutes for the entire appointment), told me I needed to keep seeing a psychiatrist The one who suggested without any tests or consults with my GP or psychiatrist I needed anti-depressants, told me I was most likely menopausal and a little lonely I did oncer upon a time have a good neuro, when I was 13 he diagnosed Bell's Palsy, saw me often, treated me with respect 9and ran inteference with my mother, he also diagnosed my epilepsy when I was 18 my daughter's neuro was spectacular when he diagnosed and treated her trigeminal neuralgia, he returned all her calls saw her often and her meds were well monitored - but he did tell her, he felt because of her young age she was a priority - what does that say? The rheumatologist, psychiatrict, eye-doctor (optha-something) and current GP are fabulous, the odds are that I will not get to see a movement specialist of neuro for some time referrals right now are not happening at all and even when they were making them, unless it was life or death it easily took up to a year. It has taken many years just to do the ruling out and most of that was not done by neuros. None of the docs who claimed it was in my head ever bothered to call my shrink. I had to beg him to send it in writing to my GP that I was not experiencing anything of a psychiatric nature. It was my shrink who bothered to test for orthostatic hypotension, researched MSA and properly gave me medication to help with symptoms. Colour me hesitant to see another. What good would it do?? At Friday 5/24/02 08:59 PM, you wrote: Bill, The point I was trying to make was that most neurologists are supposedly brainy people, who usually are very short on people skills, and sometimes on brain skills as well. Sorry if I hurt any neuro's feelings. This comes, as I said, from a lifetime experience dealing with neurologists as a colleague, as a patient, and as a patient advocate. I won't go into details. I was commiserating with who said that one neurologist said that he could diagnose her husband if they would let him do an autopsy. What kind of creep would say that? It's best to stick with the medical centers who have some reputation in the MSA diagnosis field. Some local neurologists have no inkling of MSA and, if they have a patient, don't even bother to come up to speed on the latest medical treatment. On the other hand, some non-neurologists we have met are great, such as an ER doctor in Northern Wisconsin who knew what was going on when my husband had a mental blackout. Sorry, but sour on docs. Barbara Woodford If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 I've had a few interesting neuro's the last few years: there was the one who after a ghastly night at the hospital gave me ten minutes of his very diluted time and pronounced how nice it must be for me to have my husband support me so I could be ill. Never bothered to find out that I was single and two years of illness had bankrupted me - asshole this happened to be the same doctor who makes the pronouncement to his new residents that they need not go into the symptomology of Shy-Drager because they are unlinkely to encounter it during their entire practice there was the one, who, after having another of my specialists suggest I have Shy Drager, told me it was not possible since I was too young (46) and female - duh! the one who told me the MRI (for which I had to wait a year) showed I did not have MS, when asked if I needed another appointment he said no, you don't have MS do you? the one who told me after doing a brief memory test (no more than 10 minutes for the entire appointment), told me I needed to keep seeing a psychiatrist The one who suggested without any tests or consults with my GP or psychiatrist I needed anti-depressants, told me I was most likely menopausal and a little lonely I did oncer upon a time have a good neuro, when I was 13 he diagnosed Bell's Palsy, saw me often, treated me with respect 9and ran inteference with my mother, he also diagnosed my epilepsy when I was 18 my daughter's neuro was spectacular when he diagnosed and treated her trigeminal neuralgia, he returned all her calls saw her often and her meds were well monitored - but he did tell her, he felt because of her young age she was a priority - what does that say? The rheumatologist, psychiatrict, eye-doctor (optha-something) and current GP are fabulous, the odds are that I will not get to see a movement specialist of neuro for some time referrals right now are not happening at all and even when they were making them, unless it was life or death it easily took up to a year. It has taken many years just to do the ruling out and most of that was not done by neuros. None of the docs who claimed it was in my head ever bothered to call my shrink. I had to beg him to send it in writing to my GP that I was not experiencing anything of a psychiatric nature. It was my shrink who bothered to test for orthostatic hypotension, researched MSA and properly gave me medication to help with symptoms. Colour me hesitant to see another. What good would it do?? At Friday 5/24/02 08:59 PM, you wrote: Bill, The point I was trying to make was that most neurologists are supposedly brainy people, who usually are very short on people skills, and sometimes on brain skills as well. Sorry if I hurt any neuro's feelings. This comes, as I said, from a lifetime experience dealing with neurologists as a colleague, as a patient, and as a patient advocate. I won't go into details. I was commiserating with who said that one neurologist said that he could diagnose her husband if they would let him do an autopsy. What kind of creep would say that? It's best to stick with the medical centers who have some reputation in the MSA diagnosis field. Some local neurologists have no inkling of MSA and, if they have a patient, don't even bother to come up to speed on the latest medical treatment. On the other hand, some non-neurologists we have met are great, such as an ER doctor in Northern Wisconsin who knew what was going on when my husband had a mental blackout. Sorry, but sour on docs. Barbara Woodford If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Hi Aletta. Don't you just wish that you could get some of these self-opiniated ignorant people (Bastards), who are doctors only because they had good memories, and introduce them to some of the pleasures of having some of the health problems other people suffer? Regards fron Bill P. Re: Neurologists I've had a few interesting neuro's the last few years: there was the one who after a ghastly night at the hospital gave me ten minutes of his very diluted time and pronounced how nice it must be for me to have my husband support me so I could be ill. Never bothered to find out that I was single and two years of illness had bankrupted me - asshole this happened to be the same doctor who makes the pronouncement to his new residents that they need not go into the symptomology of Shy-Drager because they are unlinkely to encounter it during their entire practice there was the one, who, after having another of my specialists suggest I have Shy Drager, told me it was not possible since I was too young (46) and female - duh! the one who told me the MRI (for which I had to wait a year) showed I did not have MS, when asked if I needed another appointment he said no, you don't have MS do you? the one who told me after doing a brief memory test (no more than 10 minutes for the entire appointment), told me I needed to keep seeing a psychiatrist The one who suggested without any tests or consults with my GP or psychiatrist I needed anti-depressants, told me I was most likely menopausal and a little lonely I did oncer upon a time have a good neuro, when I was 13 he diagnosed Bell's Palsy, saw me often, treated me with respect 9and ran inteference with my mother, he also diagnosed my epilepsy when I was 18 my daughter's neuro was spectacular when he diagnosed and treated her trigeminal neuralgia, he returned all her calls saw her often and her meds were well monitored - but he did tell her, he felt because of her young age she was a priority - what does that say? The rheumatologist, psychiatrict, eye-doctor (optha-something) and current GP are fabulous, the odds are that I will not get to see a movement specialist of neuro for some time referrals right now are not happening at all and even when they were making them, unless it was life or death it easily took up to a year. It has taken many years just to do the ruling out and most of that was not done by neuros. None of the docs who claimed it was in my head ever bothered to call my shrink. I had to beg him to send it in writing to my GP that I was not experiencing anything of a psychiatric nature. It was my shrink who bothered to test for orthostatic hypotension, researched MSA and properly gave me medication to help with symptoms.Colour me hesitant to see another. What good would it do??At Friday 5/24/02 08:59 PM, you wrote: Bill,The point I was trying to make was that most neurologists are supposedly brainy people, who usually are very short on people skills, and sometimes on brain skills as well. Sorry if I hurt any neuro's feelings. This comes, as I said, from a lifetime experience dealing with neurologists as a colleague, as a patient, and as a patient advocate. I won't go into details.I was commiserating with who said that one neurologist said that he could diagnose her husband if they would let him do an autopsy. What kind of creep would say that?It's best to stick with the medical centers who have some reputation in the MSA diagnosis field. Some local neurologists have no inkling of MSA and, if they have a patient, don't even bother to come up to speed on the latest medical treatment. On the other hand, some non-neurologists we have met are great, such as an ER doctor in Northern Wisconsin who knew what was going on when my husband had a mental blackout.Sorry, but sour on docs.Barbara WoodfordIf you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Hi Aletta. Don't you just wish that you could get some of these self-opiniated ignorant people (Bastards), who are doctors only because they had good memories, and introduce them to some of the pleasures of having some of the health problems other people suffer? Regards fron Bill P. Re: Neurologists I've had a few interesting neuro's the last few years: there was the one who after a ghastly night at the hospital gave me ten minutes of his very diluted time and pronounced how nice it must be for me to have my husband support me so I could be ill. Never bothered to find out that I was single and two years of illness had bankrupted me - asshole this happened to be the same doctor who makes the pronouncement to his new residents that they need not go into the symptomology of Shy-Drager because they are unlinkely to encounter it during their entire practice there was the one, who, after having another of my specialists suggest I have Shy Drager, told me it was not possible since I was too young (46) and female - duh! the one who told me the MRI (for which I had to wait a year) showed I did not have MS, when asked if I needed another appointment he said no, you don't have MS do you? the one who told me after doing a brief memory test (no more than 10 minutes for the entire appointment), told me I needed to keep seeing a psychiatrist The one who suggested without any tests or consults with my GP or psychiatrist I needed anti-depressants, told me I was most likely menopausal and a little lonely I did oncer upon a time have a good neuro, when I was 13 he diagnosed Bell's Palsy, saw me often, treated me with respect 9and ran inteference with my mother, he also diagnosed my epilepsy when I was 18 my daughter's neuro was spectacular when he diagnosed and treated her trigeminal neuralgia, he returned all her calls saw her often and her meds were well monitored - but he did tell her, he felt because of her young age she was a priority - what does that say? The rheumatologist, psychiatrict, eye-doctor (optha-something) and current GP are fabulous, the odds are that I will not get to see a movement specialist of neuro for some time referrals right now are not happening at all and even when they were making them, unless it was life or death it easily took up to a year. It has taken many years just to do the ruling out and most of that was not done by neuros. None of the docs who claimed it was in my head ever bothered to call my shrink. I had to beg him to send it in writing to my GP that I was not experiencing anything of a psychiatric nature. It was my shrink who bothered to test for orthostatic hypotension, researched MSA and properly gave me medication to help with symptoms.Colour me hesitant to see another. What good would it do??At Friday 5/24/02 08:59 PM, you wrote: Bill,The point I was trying to make was that most neurologists are supposedly brainy people, who usually are very short on people skills, and sometimes on brain skills as well. Sorry if I hurt any neuro's feelings. This comes, as I said, from a lifetime experience dealing with neurologists as a colleague, as a patient, and as a patient advocate. I won't go into details.I was commiserating with who said that one neurologist said that he could diagnose her husband if they would let him do an autopsy. What kind of creep would say that?It's best to stick with the medical centers who have some reputation in the MSA diagnosis field. Some local neurologists have no inkling of MSA and, if they have a patient, don't even bother to come up to speed on the latest medical treatment. On the other hand, some non-neurologists we have met are great, such as an ER doctor in Northern Wisconsin who knew what was going on when my husband had a mental blackout.Sorry, but sour on docs.Barbara WoodfordIf you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Hi Aletta. Don't you just wish that you could get some of these self-opiniated ignorant people (Bastards), who are doctors only because they had good memories, and introduce them to some of the pleasures of having some of the health problems other people suffer? Regards fron Bill P. Re: Neurologists I've had a few interesting neuro's the last few years: there was the one who after a ghastly night at the hospital gave me ten minutes of his very diluted time and pronounced how nice it must be for me to have my husband support me so I could be ill. Never bothered to find out that I was single and two years of illness had bankrupted me - asshole this happened to be the same doctor who makes the pronouncement to his new residents that they need not go into the symptomology of Shy-Drager because they are unlinkely to encounter it during their entire practice there was the one, who, after having another of my specialists suggest I have Shy Drager, told me it was not possible since I was too young (46) and female - duh! the one who told me the MRI (for which I had to wait a year) showed I did not have MS, when asked if I needed another appointment he said no, you don't have MS do you? the one who told me after doing a brief memory test (no more than 10 minutes for the entire appointment), told me I needed to keep seeing a psychiatrist The one who suggested without any tests or consults with my GP or psychiatrist I needed anti-depressants, told me I was most likely menopausal and a little lonely I did oncer upon a time have a good neuro, when I was 13 he diagnosed Bell's Palsy, saw me often, treated me with respect 9and ran inteference with my mother, he also diagnosed my epilepsy when I was 18 my daughter's neuro was spectacular when he diagnosed and treated her trigeminal neuralgia, he returned all her calls saw her often and her meds were well monitored - but he did tell her, he felt because of her young age she was a priority - what does that say? The rheumatologist, psychiatrict, eye-doctor (optha-something) and current GP are fabulous, the odds are that I will not get to see a movement specialist of neuro for some time referrals right now are not happening at all and even when they were making them, unless it was life or death it easily took up to a year. It has taken many years just to do the ruling out and most of that was not done by neuros. None of the docs who claimed it was in my head ever bothered to call my shrink. I had to beg him to send it in writing to my GP that I was not experiencing anything of a psychiatric nature. It was my shrink who bothered to test for orthostatic hypotension, researched MSA and properly gave me medication to help with symptoms.Colour me hesitant to see another. What good would it do??At Friday 5/24/02 08:59 PM, you wrote: Bill,The point I was trying to make was that most neurologists are supposedly brainy people, who usually are very short on people skills, and sometimes on brain skills as well. Sorry if I hurt any neuro's feelings. This comes, as I said, from a lifetime experience dealing with neurologists as a colleague, as a patient, and as a patient advocate. I won't go into details.I was commiserating with who said that one neurologist said that he could diagnose her husband if they would let him do an autopsy. What kind of creep would say that?It's best to stick with the medical centers who have some reputation in the MSA diagnosis field. Some local neurologists have no inkling of MSA and, if they have a patient, don't even bother to come up to speed on the latest medical treatment. On the other hand, some non-neurologists we have met are great, such as an ER doctor in Northern Wisconsin who knew what was going on when my husband had a mental blackout.Sorry, but sour on docs.Barbara WoodfordIf you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 I'd settle for infecting them with my symptoms for 24 hours. They'd either be better doctors or stark-raving mad. Sould sucking paracites, who bill for their time to make us (and that includes when your taxes pay for it) feel worse than we already are. At Friday 5/24/02 09:37 PM, you wrote: Hi Aletta. Don't you just wish that you could get some of these self-opiniated ignorant people (Bastards), who are doctors only because they had good memories, and introduce them to some of the pleasures of having some of the health problems other people suffer? Regards fron Bill P. Re: Neurologists I've had a few interesting neuro's the last few years: there was the one who after a ghastly night at the hospital gave me ten minutes of his very diluted time and pronounced how nice it must be for me to have my husband support me so I could be ill. Never bothered to find out that I was single and two years of illness had bankrupted me - asshole this happened to be the same doctor who makes the pronouncement to his new residents that they need not go into the symptomology of Shy-Drager because they are unlinkely to encounter it during their entire practice there was the one, who, after having another of my specialists suggest I have Shy Drager, told me it was not possible since I was too young (46) and female - duh! the one who told me the MRI (for which I had to wait a year) showed I did not have MS, when asked if I needed another appointment he said no, you don't have MS do you? the one who told me after doing a brief memory test (no more than 10 minutes for the entire appointment), told me I needed to keep seeing a psychiatrist The one who suggested without any tests or consults with my GP or psychiatrist I needed anti-depressants, told me I was most likely menopausal and a little lonely I did oncer upon a time have a good neuro, when I was 13 he diagnosed Bell's Palsy, saw me often, treated me with respect 9and ran inteference with my mother, he also diagnosed my epilepsy when I was 18 my daughter's neuro was spectacular when he diagnosed and treated her trigeminal neuralgia, he returned all her calls saw her often and her meds were well monitored - but he did tell her, he felt because of her young age she was a priority - what does that say? The rheumatologist, psychiatrict, eye-doctor (optha-something) and current GP are fabulous, the odds are that I will not get to see a movement specialist of neuro for some time referrals right now are not happening at all and even when they were making them, unless it was life or death it easily took up to a year. It has taken many years just to do the ruling out and most of that was not done by neuros. None of the docs who claimed it was in my head ever bothered to call my shrink. I had to beg him to send it in writing to my GP that I was not experiencing anything of a psychiatric nature. It was my shrink who bothered to test for orthostatic hypotension, researched MSA and properly gave me medication to help with symptoms. Colour me hesitant to see another. What good would it do?? At Friday 5/24/02 08:59 PM, you wrote: Bill, The point I was trying to make was that most neurologists are supposedly brainy people, who usually are very short on people skills, and sometimes on brain skills as well. Sorry if I hurt any neuro's feelings. This comes, as I said, from a lifetime experience dealing with neurologists as a colleague, as a patient, and as a patient advocate. I won't go into details. I was commiserating with who said that one neurologist said that he could diagnose her husband if they would let him do an autopsy. What kind of creep would say that? It's best to stick with the medical centers who have some reputation in the MSA diagnosis field. Some local neurologists have no inkling of MSA and, if they have a patient, don't even bother to come up to speed on the latest medical treatment. On the other hand, some non-neurologists we have met are great, such as an ER doctor in Northern Wisconsin who knew what was going on when my husband had a mental blackout. Sorry, but sour on docs. Barbara Woodford If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 There is something to that. My GP graduated in 1998. All the other docs I've seen here are over 50, and probably stopped reading journals years ago. At Saturday 5/25/02 08:58 AM, you wrote: Sam and I are happy with our neurologist here in the Philadelphia area, whom we have been with almost 4 1/2 years. We moved from upstate New York at that time, and when I couldn't get any personal recommendations in this suburban area, I did what I have done the numerous times my husband was transferred. I picked the youngest doctor who was board-certified in his speciality--I figured they would be up-to-date-, would not have too many patients, and would be available. This often worked out well. The neurologist we had had for two years in New York state was not to my liking--didn't like to be asked questions--but I think he knew what he was doing, but he was the only one available, and he said that Sam might have Parkinson's Plus, which indeed Sam does.. One place we lived had a booklet put out by the medical society which told all the dates of degrees, specialities, boards passed or pending, and what medical school the doctor graduated from, what other education he had and where he had done the residency. This was a marvelous booklet, but I encountered it only one time. I always ask the name of the medical school of the doctor when I call for an appointment of an unknown doctor. Even so, it is always tricky, but we have done pretty well with our doctors. Lou R. If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 There is something to that. My GP graduated in 1998. All the other docs I've seen here are over 50, and probably stopped reading journals years ago. At Saturday 5/25/02 08:58 AM, you wrote: Sam and I are happy with our neurologist here in the Philadelphia area, whom we have been with almost 4 1/2 years. We moved from upstate New York at that time, and when I couldn't get any personal recommendations in this suburban area, I did what I have done the numerous times my husband was transferred. I picked the youngest doctor who was board-certified in his speciality--I figured they would be up-to-date-, would not have too many patients, and would be available. This often worked out well. The neurologist we had had for two years in New York state was not to my liking--didn't like to be asked questions--but I think he knew what he was doing, but he was the only one available, and he said that Sam might have Parkinson's Plus, which indeed Sam does.. One place we lived had a booklet put out by the medical society which told all the dates of degrees, specialities, boards passed or pending, and what medical school the doctor graduated from, what other education he had and where he had done the residency. This was a marvelous booklet, but I encountered it only one time. I always ask the name of the medical school of the doctor when I call for an appointment of an unknown doctor. Even so, it is always tricky, but we have done pretty well with our doctors. Lou R. If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 There is something to that. My GP graduated in 1998. All the other docs I've seen here are over 50, and probably stopped reading journals years ago. At Saturday 5/25/02 08:58 AM, you wrote: Sam and I are happy with our neurologist here in the Philadelphia area, whom we have been with almost 4 1/2 years. We moved from upstate New York at that time, and when I couldn't get any personal recommendations in this suburban area, I did what I have done the numerous times my husband was transferred. I picked the youngest doctor who was board-certified in his speciality--I figured they would be up-to-date-, would not have too many patients, and would be available. This often worked out well. The neurologist we had had for two years in New York state was not to my liking--didn't like to be asked questions--but I think he knew what he was doing, but he was the only one available, and he said that Sam might have Parkinson's Plus, which indeed Sam does.. One place we lived had a booklet put out by the medical society which told all the dates of degrees, specialities, boards passed or pending, and what medical school the doctor graduated from, what other education he had and where he had done the residency. This was a marvelous booklet, but I encountered it only one time. I always ask the name of the medical school of the doctor when I call for an appointment of an unknown doctor. Even so, it is always tricky, but we have done pretty well with our doctors. Lou R. If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2002 Report Share Posted May 27, 2002 Barbara, I agree with you that a movement disorder clinic would be the best place for a diagnoses of MSA or any problem with movement. I would not go to a neurologist who was a pain specialist for a movement disorder. You are experienced with working with doctors and know what to look for in a doctor. Unfortunately many on the list do not have that experience or training and some of the emails which are extremely critical of neurologists recently come from people who have not even been diagnosed as " probable MSA " . Unfortunately, some of them have mentioned taking medicines for pain which can cause symptoms of MSA. I can see where a doctor would be reluctant to give out pain medicines on a daily basis to a MSA patient as our neurologist always pointed out that most pain killers could worsen MSA symptoms. We were always advised to use pain killers as little as possible. You also realize that with MSA you must accept the fact that there is presently no cure for MSA and you must deal with it as best you can. Some people have trouble accepting that fact and want a cure now. In that case, the doctor may have sarcastically told the person that the only sure diagnoses is an autopsy, which is true. You also know that diagnoses of MSA is difficult at best and you must realize that doctors are human and have bad days just like me and you. Fisher got tired of hearing continuous complaints about " ALL " neurologists and people seemed to jump him, yet they expect to be able to tell MSA patients to use opiates and have people get upset at them. Opiates and overdoses of muscle relaxants can hurt MSA patients - so doctors who refuse to give them to MSA patients are doing their job. Pain from MSA usually comes from dystonia which can usually be controlled with much safer treatments. If using opiates becomes necessary - it should be limited to necessary short term use only. Only a doctor is qualified to make that decision to use something that powerful, knowing it can make the MSA symptoms worse and balance use against the possibility of addiction. I do feel strongly that making blanket statements about bad neurologists is harmful to the list. I am sure there are some out there, but I have dealt with 8 neurologists for my wife and children and six of the eight were great - the other two were at least competent. But until I learned about MSA and brain disorders, I could not have told you if they were competent and most here on the list need to trust their neurologists. That is why I feel we should help the people by examining the care they receive and not rush to judge the neuro. If they are trying PD or MS medicines; advising exercise, liquids and good diet; and working with the patient - I assume they are doing the best they can. As a movement disorder specialist said at the Boston conference " MSA is the worst trick that mother nature can play on a human being " . I am all for talking out problems with communication on the list. We can help each other get good care (which CAN come from an ordinary GP who is willing to work with you). It IS best to see a movement disorder specialist for a diagnoses. But " ALL " neurologists are not " bad " and I feel most are good, just as any field or profession. Take care, Bill Werre ============================================ woodford wrote: > Bill, > > The point I was trying to make was that most neurologists are supposedly > brainy people, who usually are very short on people skills, and sometimes > on brain skills as well. Sorry if I hurt any neuro's feelings. This > comes, as I said, from a lifetime experience dealing with neurologists as > a colleague, as a patient, and as a patient advocate. I won't go into > details. > > I was commiserating with who said that one neurologist said that he > could diagnose her husband if they would let him do an autopsy. What kind > of creep would say that? > > It's best to stick with the medical centers who have some reputation in > the MSA diagnosis field. Some local neurologists have no inkling of MSA > and, if they have a patient, don't even bother to come up to speed on the > latest medical treatment. On the other hand, some non-neurologists we > have met are great, such as an ER doctor in Northern Wisconsin who knew > what was going on when my husband had a mental blackout. > > Sorry, but sour on docs. > > Barbara Woodford > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2002 Report Share Posted May 27, 2002 Barbara, I agree with you that a movement disorder clinic would be the best place for a diagnoses of MSA or any problem with movement. I would not go to a neurologist who was a pain specialist for a movement disorder. You are experienced with working with doctors and know what to look for in a doctor. Unfortunately many on the list do not have that experience or training and some of the emails which are extremely critical of neurologists recently come from people who have not even been diagnosed as " probable MSA " . Unfortunately, some of them have mentioned taking medicines for pain which can cause symptoms of MSA. I can see where a doctor would be reluctant to give out pain medicines on a daily basis to a MSA patient as our neurologist always pointed out that most pain killers could worsen MSA symptoms. We were always advised to use pain killers as little as possible. You also realize that with MSA you must accept the fact that there is presently no cure for MSA and you must deal with it as best you can. Some people have trouble accepting that fact and want a cure now. In that case, the doctor may have sarcastically told the person that the only sure diagnoses is an autopsy, which is true. You also know that diagnoses of MSA is difficult at best and you must realize that doctors are human and have bad days just like me and you. Fisher got tired of hearing continuous complaints about " ALL " neurologists and people seemed to jump him, yet they expect to be able to tell MSA patients to use opiates and have people get upset at them. Opiates and overdoses of muscle relaxants can hurt MSA patients - so doctors who refuse to give them to MSA patients are doing their job. Pain from MSA usually comes from dystonia which can usually be controlled with much safer treatments. If using opiates becomes necessary - it should be limited to necessary short term use only. Only a doctor is qualified to make that decision to use something that powerful, knowing it can make the MSA symptoms worse and balance use against the possibility of addiction. I do feel strongly that making blanket statements about bad neurologists is harmful to the list. I am sure there are some out there, but I have dealt with 8 neurologists for my wife and children and six of the eight were great - the other two were at least competent. But until I learned about MSA and brain disorders, I could not have told you if they were competent and most here on the list need to trust their neurologists. That is why I feel we should help the people by examining the care they receive and not rush to judge the neuro. If they are trying PD or MS medicines; advising exercise, liquids and good diet; and working with the patient - I assume they are doing the best they can. As a movement disorder specialist said at the Boston conference " MSA is the worst trick that mother nature can play on a human being " . I am all for talking out problems with communication on the list. We can help each other get good care (which CAN come from an ordinary GP who is willing to work with you). It IS best to see a movement disorder specialist for a diagnoses. But " ALL " neurologists are not " bad " and I feel most are good, just as any field or profession. Take care, Bill Werre ============================================ woodford wrote: > Bill, > > The point I was trying to make was that most neurologists are supposedly > brainy people, who usually are very short on people skills, and sometimes > on brain skills as well. Sorry if I hurt any neuro's feelings. This > comes, as I said, from a lifetime experience dealing with neurologists as > a colleague, as a patient, and as a patient advocate. I won't go into > details. > > I was commiserating with who said that one neurologist said that he > could diagnose her husband if they would let him do an autopsy. What kind > of creep would say that? > > It's best to stick with the medical centers who have some reputation in > the MSA diagnosis field. Some local neurologists have no inkling of MSA > and, if they have a patient, don't even bother to come up to speed on the > latest medical treatment. On the other hand, some non-neurologists we > have met are great, such as an ER doctor in Northern Wisconsin who knew > what was going on when my husband had a mental blackout. > > Sorry, but sour on docs. > > Barbara Woodford > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2002 Report Share Posted May 27, 2002 Barbara, I agree with you that a movement disorder clinic would be the best place for a diagnoses of MSA or any problem with movement. I would not go to a neurologist who was a pain specialist for a movement disorder. You are experienced with working with doctors and know what to look for in a doctor. Unfortunately many on the list do not have that experience or training and some of the emails which are extremely critical of neurologists recently come from people who have not even been diagnosed as " probable MSA " . Unfortunately, some of them have mentioned taking medicines for pain which can cause symptoms of MSA. I can see where a doctor would be reluctant to give out pain medicines on a daily basis to a MSA patient as our neurologist always pointed out that most pain killers could worsen MSA symptoms. We were always advised to use pain killers as little as possible. You also realize that with MSA you must accept the fact that there is presently no cure for MSA and you must deal with it as best you can. Some people have trouble accepting that fact and want a cure now. In that case, the doctor may have sarcastically told the person that the only sure diagnoses is an autopsy, which is true. You also know that diagnoses of MSA is difficult at best and you must realize that doctors are human and have bad days just like me and you. Fisher got tired of hearing continuous complaints about " ALL " neurologists and people seemed to jump him, yet they expect to be able to tell MSA patients to use opiates and have people get upset at them. Opiates and overdoses of muscle relaxants can hurt MSA patients - so doctors who refuse to give them to MSA patients are doing their job. Pain from MSA usually comes from dystonia which can usually be controlled with much safer treatments. If using opiates becomes necessary - it should be limited to necessary short term use only. Only a doctor is qualified to make that decision to use something that powerful, knowing it can make the MSA symptoms worse and balance use against the possibility of addiction. I do feel strongly that making blanket statements about bad neurologists is harmful to the list. I am sure there are some out there, but I have dealt with 8 neurologists for my wife and children and six of the eight were great - the other two were at least competent. But until I learned about MSA and brain disorders, I could not have told you if they were competent and most here on the list need to trust their neurologists. That is why I feel we should help the people by examining the care they receive and not rush to judge the neuro. If they are trying PD or MS medicines; advising exercise, liquids and good diet; and working with the patient - I assume they are doing the best they can. As a movement disorder specialist said at the Boston conference " MSA is the worst trick that mother nature can play on a human being " . I am all for talking out problems with communication on the list. We can help each other get good care (which CAN come from an ordinary GP who is willing to work with you). It IS best to see a movement disorder specialist for a diagnoses. But " ALL " neurologists are not " bad " and I feel most are good, just as any field or profession. Take care, Bill Werre ============================================ woodford wrote: > Bill, > > The point I was trying to make was that most neurologists are supposedly > brainy people, who usually are very short on people skills, and sometimes > on brain skills as well. Sorry if I hurt any neuro's feelings. This > comes, as I said, from a lifetime experience dealing with neurologists as > a colleague, as a patient, and as a patient advocate. I won't go into > details. > > I was commiserating with who said that one neurologist said that he > could diagnose her husband if they would let him do an autopsy. What kind > of creep would say that? > > It's best to stick with the medical centers who have some reputation in > the MSA diagnosis field. Some local neurologists have no inkling of MSA > and, if they have a patient, don't even bother to come up to speed on the > latest medical treatment. On the other hand, some non-neurologists we > have met are great, such as an ER doctor in Northern Wisconsin who knew > what was going on when my husband had a mental blackout. > > Sorry, but sour on docs. > > Barbara Woodford > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 My husband has had MSA for about 5 years, being evaluated and diagnosed at the Mayo Clinic, ville. He has reached the point where traveling 400 miles to ville for checkups is to hard on him. We lived in Clinton, SC, but have not been able to locate a neurologist that may specialize in the disease, at least, somewhat. Is anyone able to help us. Clinton is in the upstate of SC. so a doctor within a 60 mile radius would be of help. Will appreciate any feedback. Winifred Card Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Hi Winifred, Here is a name from a national list, I am not sure if anyone on the list uses this doctor. I would think that Greenville and Augusta might have movement disorder specialists also. Generally a doctor who specializes in PD would also know about MSA or SDS. J. Bergmann, M.D. Department of Neurology Medical University of South Carolina 96 Lucas Street, Suite 307 ton, SC 29425 USA Phone: Fax: Multiple System Atrophy Parkinson’s Disease and Related Dysautonomia Take care, Bill Werre ------------------------------ bill and win wrote: My husband has had MSA for about 5 years, being evaluated and diagnosed at the Mayo Clinic, ville. He has reached the point where traveling 400 miles to ville for checkups is to hard on him. We lived in Clinton, SC, but have not been able to locate a neurologist that may specialize in the disease, at least, somewhat. Is anyone able to help us. Clinton is in the upstate of SC. so a doctor within a 60 mile radius would be of help. Will appreciate any feedback. Winifred Card If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Winifred, I go by Bill rather than . We have several members of the list in South Carolina, hopefully one of them is familiar with a doctor near you and will answer. Take care, Bill Werre in Virginia. bill and win wrote: Thank you for the prompt reply. May have to resort to Dr. Bergman in ton, which is only about a three hour drive from Clinton. I am new on the shydrager support list so have a lot to learn. Thanks again. Winifred Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Thank you for the prompt reply. May have to resort to Dr. Bergman in ton, which is only about a three hour drive from Clinton. I am new on the shydrager support list so have a lot to learn. Thanks again. Winifred Re: neurologists Hi Winifred, Here is a name from a national list, I am not sure if anyone on the list uses this doctor. I would think that Greenville and Augusta might have movement disorder specialists also. Generally a doctor who specializes in PD would also know about MSA or SDS. J. Bergmann, M.D. Department of Neurology Medical University of South Carolina 96 Lucas Street, Suite 307 ton, SC 29425 USA Phone: Fax: Multiple System Atrophy Parkinson’s Disease and Related Dysautonomia Take care, Bill Werre ------------------------------ bill and win wrote: My husband has had MSA for about 5 years, being evaluated and diagnosed at the Mayo Clinic, ville. He has reached the point where traveling 400 miles to ville for checkups is to hard on him. We lived in Clinton, SC, but have not been able to locate a neurologist that may specialize in the disease, at least, somewhat. Is anyone able to help us. Clinton is in the upstate of SC. so a doctor within a 60 mile radius would be of help. Will appreciate any feedback. Winifred Card If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 Dr. Bergmann is who I am on the waiting list to see. There are no MDS neurologists in Charlotte and the 3 neuro's that I saw here and the MDS that I saw in Winston-Salem all told me that they have never seen anyone like me before and frankly they did not know what to do with me. I haven't seen Dr. Bergmann yet but am hopeful that he will have knowledge of atypical PD syndromes and can offer some help. Hugs, Deborah aka Tenacity Reply-To: shydrager To: shydrager Subject: Re: neurologists Date: Wed, 05 Jun 2002 11:54:19 -0400 Hi Winifred, Here is a name from a national list, I am not sure if anyone on the list uses this doctor. I would think that Greenville and Augusta might have movement disorder specialists also. Generally a doctor who specializes in PD would also know about MSA or SDS. J. Bergmann, M.D. Department of Neurology Medical University of South Carolina 96 Lucas Street, Suite 307 ton, SC 29425 USA Phone: Fax: Multiple System Atrophy Parkinson’s Disease and Related Dysautonomia Take care, Bill Werre ------------------------------ bill and win wrote: > My husband has had MSA for about 5 years, being evaluated and > diagnosed at the Mayo Clinic, ville. He has reached the point > where traveling 400 miles to ville for checkups is to hard on > him. We lived in Clinton, SC, but have not been able to locate a > neurologist that may specialize in the disease, at least, somewhat. Is > anyone able to help us. Clinton is in the upstate of SC. so a doctor > within a 60 mile radius would be of help. Will appreciate any > feedback. Winifred Card > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
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