Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 In a message dated 4/11/00 3:47:45 PM Eastern Daylight Time, angmullins93@... writes: << Hey everybody, one thing that helps keep me motivated is other peoples success stories. Since I am new to the board and don't know the history that most of you know about each other, I would love to hear everyones story.What made you start Taebo? How long have you been doing it? Have you seen any results? Can't wait to hear them, Angie who just ate 3 reduce fat chips ahoy cookies because I have a cold and am feeling sorry for myself! >> Angie, Check out our web page. Click on meet the members. A lot of us talk about our experiences with Tae Bo there. who can't remember the site's address but knows it should appear on the bottom of this email! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 Hi Angie, I started TB last Dec (1998). I started with the instructional, and then the basic and then went to the advanced. When I started, I weighed about 115lbs. I'm 4'10 " . I really wasn't looking to lose weight, I just wanted to tone up. Then I moved to the advanced in February. In May of 1999, I noticed a big difference, and was fitting into clothes that I hadn't fit into for a long time. I went from a size 5 to a size 3/4 and lost about 15 lbs. I continued to do the Advanced tape until about September. Then I stopped. Slowly but surely, the weight and the inches came back on. I noticed that in Dec of 99 some of the clothes that I finally fit into, didn't fit anymore. I was so upset with myself. I decided to order the Advanced Live tapes. I finally started doing them the last week of Feb 2000. At first, my clothes were getting tighter, now there fitting a little bit better. I've lost 1/2 " in my waist, 1/2 " in each thigh, and 1 " in my hips. I know that by the time May comes rolling around, I will look like I did last May. It just takes a while. Before I met all of you, I was ready to give up. All of you are really great and have helped me to keep on kickin! Thanks to all of you and Blanks and his Tae-Bo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 > Hey everybody, one thing that helps keep me motivated is other > peoples success stories. Since I am new to the board and don't know > the history that most of you know about each other, I would love to > hear everyones story.What made you start Taebo? How long have you > been doing it? Have you seen any results? > Angie, I gave birth to my daughter on Christmas day, 1998 and weighed about 186 lbs (I'm 5'9). I started going to WW in January and was going to the gym and running on the treadmill, lifting weights, doing the machines, etc. In May 1999 my uncle who has raised me since I was 10 years old (my parents were killed by a drunk driver when I was 10) committed suicide. It was the most traumatic thing that I have ever been through (even more so than my parents death) because it was so unexpected and NOBODY had seen it coming. To this day, I still cannot imagine my uncle pulling the trigger. Anyway, I had ordered the tae-bo tapes at some point after Skylar was born (or maybe before, I can't remember), but I only did the instructional once and didn't get into it. So, when my uncle died, I went and stayed with my aunt for about a month and brought my tae-bo tapes with me, since I wouldn't have access to a gym. At this point in time (May, 1999) I had gotten down to between 160-165 lbs. I was working out for an hour on the treadmill or machines and lifting weights, but I was getting bored with it all. So, I started doing tae-bo and did the basic workout for a week or two and then started in with the advance and the rest is history! I only do tae-bo now and I am in the best shape I have ever been in. I have always been active. I played basketball and volleyball in high school....was on the Crew (rowing) team in college and have always worked out at the gym after that. But, I have never had the muscle definition that I have from tae-bo. Before tae-bo, I used to get on the treadmill and zone out. I worked out because I felt I had to in order to lose weight. I certainly didn't enjoy it. When I was finished running, I wrote down how far I had run and the calories burned down to the tenth. The only reason I did it was so I could burn calories....it wasn't fun. With tae-bo, I enjoy working out. The most important change that has occurred for me is the inner changes....the ones you can't physically see by looking at me. I am more confident in who I am as a person. I actually like who I am and like what I see looking back at me in the mirror. I learned that a workout is so much more than a physical thing...that you have to work your spirit and your mind, as well as your body, in order to get results. When I made that connection, it all fell into place for me. I am no longer obsessed with the number on the scale (I could care less what it says). I don't obsess about the foods I eat (I eat whatever I want to in moderation...I no longer count calories/fat grams). And, I am finally happy with myself. I have suffered from both anorexia and bulimia in the past, so I have always been obsessed with food/weight. I never thought I'd ever be able to look in the mirror and be happy with what was looking back at me. My biggest success is the fact that I am healthy, both mentally and physically. I feel strong and confident and happy to be who I am. Yes, I have lost an additional 15 lbs. since May....I'm between 148 and 150lbs (my WW goal weight was 150lbs so I'm right on target, but have a lot more muscle this time around) and I continue to tone and shape my body, but it's done so much more for me on the inside. Yes, I LOVE the outside results, but it's what it's changed on the inside that matters the most. who just laughed when the tae-bo customer service girl asked me how I had time to do all these workouts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 > Hey everybody, one thing that helps keep me motivated is other > peoples success stories. Since I am new to the board and don't know > the history that most of you know about each other, I would love to > hear everyones story.What made you start Taebo? How long have you > been doing it? Have you seen any results? > > Can't wait to hear them, > Angie > who just ate 3 reduce fat chips ahoy cookies because I have a cold > and am feeling sorry for myself! Angie, I am forwarding below my response to a similar question on Saturday. To read about where I and many others started from, go to our websight at http://taeboon/isportsdot.com and check under " meet the members. " If you forget the address, you can find it at the bottom of each e-mail from egroups or at the egroups site at tae-bo_onegroups under " links. " etcarroll <etcarroll@g...> Date: Sun Apr 9, 2000 1:31pm Subject: Re: I'm Curious and My BRAG of the week (ATTENTION AMANDA) ---- Original Message ----- From: gigsgal@a... tae-bo_onegroups Sent: Friday, April 07, 2000 10:16 PM Subject: I'm Curious Can everyone tell me their results with taebo. That really motivates me when I hear peoples results with things. I would really appreciate it. Thanks! Angie Angie, I am proud to announce (and am BRAGGING, AMANDA), that I have lost 11 pounds doing taebo for almost a year. I didn't have much to lose when I started and I have been exercising at least 6 days a week for an hour for years, but I have definitely lost some weight from taebeo. I'm 5'6 " and went from 142 pounds to 131 pounds (YES, it is official after weighing myself at very fitness clubs and at home). Part of the weight loss (especially the last 5 pounds) could be attributed to other things as well -- I changed my antidepressant from Zoloft to a supposedly weight-neutral one called Celexa and I switched from birth control pills (trinorinyl) to the sponge. I've also stopped drinking alcohol, which also means less binge eating calories for me. I have probably lost a clothing size (from a 12 to a 10) and I know my body is a lot toner (ab muscles, shapely calves, buff arms). I have more stamina, balance, and strength. I also have more confidence about my body and have started yoga (6 months) and am even thinking about taking dance lessons. I am most proud of the latter because I have always felt very unathletic, uncoordinated, and " move-challenged. " I now feel like an athlete and this is coming from someone who did everything to get out of gym classes and team sports in school. Really, Angie, taebo can do wonders for you physically and emotionally. You can achieve things you never even imagined. Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 > Patti & Everyone: > > You may put your story (success or no success) in our Files section > on this site in the yellow box for the benefit of others. If you > have any difficulty, I can put it in there for you. > > Do I create a new file? Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Go to Files in the yellow box, then " Enzyme Success Stories and Not- So-Success Stories " , then " Create a Text File " . See if that works. > > Patti & Everyone: > > > > You may put your story (success or no success) in our Files section > > on this site in the yellow box for the benefit of others. If you > > have any difficulty, I can put it in there for you. > > > > > Do I create a new file? > Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Dear Aja, Ever tryed neurofeedback? Gail Pike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Hi Maureen, Well, I'm not exactly like you, but sort of... I had a stroke when I was 16 rather than brain surgery -- but brain damage is is brain damage, I suppose...? I have a very hard time speaking because of the aphasia that struck (along with half my brain being paralyzed). Because of the stroke, I have epilepsy, & I'm trying very hard to move away from conventional meds by using vitamins, amino acids, nutrition, etc., but I'm still on Tegretol & hating it because of all the side effects, short term & long term. Still, I have simple-partial seizures (aura-type) which is controlled a lot by Taurine etc. Why did you have brain surgery? ~Aja >From: " napsac2 " <maureen@...> >Reply- > >Subject: [ ] success stories >Date: Thu, 23 May 2002 22:24:44 -0000 > >Hey top mom! > >I guess I am looking for someone close to my situation. That's like >looking for a needle in a haystack..but. Someone who is still on >drugs looking to move to alternative medicine (or already has), blood >type O, >has petit mal/aura type seizures, maybe has also had brain surgery >like me and still having seizures (my seizures occur in the left >temporal zone...thus, close to speech and memory), yada, yada, yada. >I guess I am just a bit nervous. No matter how many doctors, >friends, etc., you have to cheer you on - you are still alone and >can't be sure of the results with such a move. So, having someone >else who is living it or has lived it (never quite exact...but..) >would be nice. Am I in dream world or what _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Maureen: You are a little ahead of us. Right now we have neurologists looking at whether my son is a candidate for surgury but we are looking for alternatives. We are very leary of surgery since there are a lot of not so successful stories. You did what most modern people seem to do--trust your doctors. Don't hit yourself over the head about it. We trusted the doctors for a long time too, but have now realized that we are the ones who must do the research. I would love to find something alternative, so I'm reading all these posts carefully in case there is something we could try. >From: " napsac2 " <maureen@...> >Subject: [ ] success stories - to aja >Date: Fri, 24 May 2002 02:30:06 -0000 > >Hey aja, >I had surgery because that is what my doctor said was the only >solution. I was diagnosed while I was living in France at the age >of 21. We don't know the reasoning. I was very athletic in high >school and college. I was also very much of a tom boy when I >was little. So, who knows why I have epilepsy? So, while in >France, my french family often noticed me looking confused and >disorientated at bizarre times...so my french mother suggested I >go to a doctor to see if there was something wrong. SO, an EEG >and the doctor told me that I had epilepsy. Shocked is an >understatement, but I just accepted and took the drugs she >suggested - but I have to admit, I wasn't loyal about taking the >meds. I didn't like putting them in me...and I guess I was just >acting young and rebelious...maybe even in a state of shock. >Four months later, when I got back to the U.S , my parents >thought I should get a second opinion. We did and this doctor >who focuses on JUST EPILEPSY agreed and increased the >dosage to make sure I was controlled. Then, I began having >seizures again and more frequent...,and a bit more severe over >time (3 to four years). After trying about 7 different meds, my >doctor suggested surgery. We just assumed this was the only >way to go. After all, this is what she focused her life and job with >- controlling seizures! She must know what she is doing! I still >got a second opinion from another doctor, which in retrospect, >was funny. I went to see a doctor the was like... her twin - they >both focused on surgery for epileptics - of COURSE they're going >to agree! But, that was 7 years ago when I thought that's all there >was. Following surgery, I had to take speech therapy as I >couldn't read. I couldn't remember BASICS...making a >sentence....example " What beautiful flowers " was difficult. I didn't >know how to say " flowers. " I knew what they were, but didn't >remeber how to say them. The language I once spoke and >taught at a local high school, French., was gone. Eventually, it >came back., but with lots of practice. > >I guess I'm not angry that I did this. I'm sure for some people >there is a success story following surgery. My seizures ARE >better and more controlled. But, now that I see people who >nipped in the bud....well, I guess I can only blame myself for not >looking further and for alternatives prior surgery. In 1995, I just >didn't see it as a possibility. And I don't think this doctor - and >many others - will NEVER see it. BUT, now I am and I am on a >mission! Soon, I look to have a success story. And it is nice to >have such a group to look at every day. Very inspiring. =) > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Dear Aja, California has more " Health Nuts " and consequently more alternative type services offered. Gail Pike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Hi Gail, I've checked it out a little, & it looks promising -- with the right people... I can't find the " right people " to go to who live/work in my area (MD, Mont. Co.). Maybe I'll move to CA...? >From: gpike90805@... >Reply- > >Subject: Re: [ ] success stories >Date: Thu, 23 May 2002 22:59:37 EDT > >Dear Aja, Ever tryed neurofeedback? Gail Pike > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Dear , Before making a final decision about surgery, you might want to contact Sig Othmer, lead scientist at EEG Spectrum. When a question came up several years ago, I contacted him and got some very useful information and insights about seizures and how to control them. As I recall, he has worked with folks who were trying neurofeedback as a last option before surgery. Zoe http://www.eegspectrum.com/ > Maureen: > You are a little ahead of us. Right now we have neurologists looking at > whether my son is a candidate for surgury but we are looking for > alternatives. We are very leary of surgery since there are a lot of not so > successful stories. You did what most modern people seem to do-- trust your > doctors. Don't hit yourself over the head about it. We trusted the doctors > for a long time too, but have now realized that we are the ones who must do > the research. I would love to find something alternative, so I'm reading > all these posts carefully in case there is something we could try. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Dear Maureen, I have some similarities to your situation. I'm Blood Type O, and my seizures begin in the Left Temporal Lobe with a complex partial seizure and progress into generalized absence seizures. I've been on medication, and recently stopped very carefully because the side effects were terrible and the meds didn't control my seizures. My neurologist would have had me on the operating table, no doubt, but I decided to change doctors. I feel much better with supplements than I did with medications, but I still haven't found the " silver bullet " to end my seizures. Nevertheless, I'll accept the consequences of seizures in lieu of the horrible side effects of taking medications. So, like you, I'm searching for answers and hoping that I might be able to encourage someone else along the way. It is a step-by-step, day-by-day procedure and I learn something new every day. Best wishes, Carrol napsac2 <maureen@...> wrote: Hey top mom! I guess I am looking for someone close to my situation. That's like looking for a needle in a haystack..but. Someone who is still on drugs looking to move to alternative medicine (or already has), blood type O, has petit mal/aura type seizures, maybe has also had brain surgery like me and still having seizures (my seizures occur in the left temporal zone...thus, close to speech and memory), yada, yada, yada. I guess I am just a bit nervous. No matter how many doctors, friends, etc., you have to cheer you on - you are still alone and can't be sure of the results with such a move. So, having someone else who is living it or has lived it (never quite exact...but..) would be nice. Am I in dream world or what? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 I wish that I could help. Our son is the one with epilepsy . he had surgery for left mesial temporal sclerosis in nov. of 2000 and has been seizure free for nearly a year now. He is still on meds but hopes to be off soon. alternatives helped but didn't cure him. surgery has been the most beneficial. although it has caused some learning problems as it is his dominant side. if you want more info please feel free to e-mai;l me directly as i hardly ever get to go through all this mail formt he group as it is very overwhelming. Topmom7698@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Nic and Ingeborg, I would really like to hear some success stories right about now too. I stopped taking all meds today in hopes that my head will clear and I will be able to function again. I do know a lady that lives in the same small town I live in that was dx with lyme and is now working full time. She was able to continue to work part time while she had lyme so she didn't get the point I did before being dx. I do now that she couldn't even make it a few feet at one point. I also know that a lady in my LLMD's office has gotten 90% of her health back. And my LLMD has gotten 90% of his health back. And a lady I met when I was first dx is living a more " normal " life now. She hasn't been able to return to work, but she does go to Bible Study and perhaps a department store and out to eat every now and then. She was bedridden for about two years or more. Now, she is about 50/50 I would say. I don't know, I need to ask her what percentage she is functioning at. Any other success stories out there? Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Nic and Ingeborg, I would really like to hear some success stories right about now too. I stopped taking all meds today in hopes that my head will clear and I will be able to function again. I do know a lady that lives in the same small town I live in that was dx with lyme and is now working full time. She was able to continue to work part time while she had lyme so she didn't get the point I did before being dx. I do now that she couldn't even make it a few feet at one point. I also know that a lady in my LLMD's office has gotten 90% of her health back. And my LLMD has gotten 90% of his health back. And a lady I met when I was first dx is living a more " normal " life now. She hasn't been able to return to work, but she does go to Bible Study and perhaps a department store and out to eat every now and then. She was bedridden for about two years or more. Now, she is about 50/50 I would say. I don't know, I need to ask her what percentage she is functioning at. Any other success stories out there? Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Nic and Ingeborg, I would really like to hear some success stories right about now too. I stopped taking all meds today in hopes that my head will clear and I will be able to function again. I do know a lady that lives in the same small town I live in that was dx with lyme and is now working full time. She was able to continue to work part time while she had lyme so she didn't get the point I did before being dx. I do now that she couldn't even make it a few feet at one point. I also know that a lady in my LLMD's office has gotten 90% of her health back. And my LLMD has gotten 90% of his health back. And a lady I met when I was first dx is living a more " normal " life now. She hasn't been able to return to work, but she does go to Bible Study and perhaps a department store and out to eat every now and then. She was bedridden for about two years or more. Now, she is about 50/50 I would say. I don't know, I need to ask her what percentage she is functioning at. Any other success stories out there? Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Kate, I have posted numerous times over the course of the past couple of years to reach out and let you know my success with Sunrider Herbal Food. To give you some background, my whole family and I were hit with Lyme in 1989. First my husband came down with a flu with a stiff neck, which lead to encephalitis and a major hospitalization. Two days after that my father passed away. On the day of my father's funeral, my daughter came down with a severe case of Chickenpox, which she caught from my son who had it several weeks before. After her recovery, and most likely from the stress of the situation (losing their grandfather and their father being in the hospital) both of my children became very ill with neurological problems, i.e., falling, limping, memory problems, not to mention swollen joints and massive headaches, and sleeping endlessly or not at all. My son was then 11 and my daughter 8 years old. The pediatrician blew me off and said it was stress. I took them to my family doctor, and he had been seeing a number of Lyme cases in the area (I live in central NJ) and he tested them and they both came up positive. He referred me to a pediatrician who would treat them and they were both hospitalized together in May, 1989. My husband was now being treated for depression in another hospital an hour away. (They saw the brain infection as depression). That was May, 1989, (Memorial Day weekend) the start of the biggest nightmare in my life. I received a phone call from my family doctor at the hospital one day and he informed me that he found a Lyme test that had gotten buried on his desk from my husband when he was taken to the ER in March of that year. He said it was positive. I felt like this was a sadistic test of my strength. My husband was not being treated for what was really wrong with him and all this time was wasted. My children were on i.v. rosephen for 30 days and then on orals for another two months. They felt better, went back to school when the summer was over, and slowly deteriorated again. Then I became ill with Lyme in November of that year, but was not diagnosed until April of 1990, when my face collapsed from Facial Palsy. I was then treated as well intravenously and with repeated courses of orals. This went on for years with my children taking turns going back into the hospital and were both classified Chronically Ill, spending most of their middle school days on home instruction. I know this sounds all too familiar to many of you. Then when I finally was at my wits end in 1995, with my daughter in a hospital bed in my family room on a 24 hour i.v. pump of ampercillin, and me lying on the couch next to her with CFS and Lyme, I finally took the advice of a friend of mine who was introduced to Sunrider Herbal Foods from a cousin of hers on her trip to California. I relented to her nagging and made myself a smoothy as she had taught me to. I felt like my body had a nutritional support that I hadn't experienced with any other vitamins or even juicing. I began to give it to my daughter and after a short time, I noticed she had better color in her cheeks. Within a month, she was off the i.v. and back in school. We have been eating these foods since 1995 and have been Lyme antibiotic free since then. It is a natural part of our lives, and I use a lot of the household replacement products from Sunrider as well, and purchase all of my skin care through them, which allows me to save money as they are so concentrated. Also, what we cleanse and nourish our skin with is extremely important as it allows our bodies to cleanses properly without clogging up the pores. Even cleaners and laundry detergent are important to be pure because we breath in toxins from cleaners and clothing washed in laundry detergent may have chemicals which touch our skin. I have reached out and helped many in my area with chronic illnesses. My friend who introduced me to these foods has helped AIDS groups as well. I became an Herbal Food Advisor for this company, having attended many seminars and classes, because I believe so passionately in these products. They are based on the theory of regeneration from ancient China, " If the body receives proper nourishment, it will heal itself. " I would be happy to speak to any of you who would like more info on these products. All my best, Rauch Herbal Food Advisor Sunrider Int'l (732) 946-2216 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Do you have good Lyme Literate doctors in Holland? Do they follow a protocol? Holland is beautiful. Would like to hear more. Thanks.........suev iglubach <iglubach@...> wrote: Hello Lymies, Nic just started a new treatment, so his story is not a success story at the moment. We hope it will become sometime but I know it takes time to treat and recover from Lyme. For now I think success stories from other Lymies will help him to fight this disease and gave him his faith for a better future back. And I think he wouldn't be the only one. On the American site: http://flash.lymenet.org they allready have a topic for 'Success stories', but over her I miss it. Thanks & Greetings from Holland, Nic & Ingeborg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Hello Suev, A good LLMD? What is that? We don't have them at all. Some will say they know everything about Lyme, but how more they promise, how less they take their patient serious. Ones Nic went to such a doctor in Amsterdam. This 'duck' didn't even read Nic's case or listened to his story. It didn't matter what Nic told him, the 'duck' was sure it wasn't LD but PSMA (some kind of musscle disease like ALS). And this 'duck' isn't the only one here in Holland. Yes they have a protocol, sure. But it told them that LD would be deffinitly over in 30 days on abx?! But we are so happy that Nic's familly-doctor doesn't follow this protocal anymore. She only listen to what we tell her about good treatment. So maybe she will become a LLMD even when she is only a first line doctor. I also have the address from dr. Meer in Switzerland (New ILADS Guidelines) and that is I supposse the nearest LLMD. So when she needs help or advice, she can ask this doctor. Yes, Holland is beautiful, but not for Lymies, Greetings Nic & Ingeborg Hello Lymies, > > Nic just started a new treatment, so his story is not a success story > at the moment. We hope it will become sometime but I know it takes > time to treat and recover from Lyme. > > For now I think success stories from other Lymies will help him to > fight this disease and gave him his faith for a better future back. > And I think he wouldn't be the only one. > > On the American site: http://flash.lymenet.org they allready have a > topic for 'Success stories', but over her I miss it. > > Thanks & Greetings from Holland, > > Nic & Ingeborg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Thanks Connie for your words of encouragement. I had a name for what knocked me on my behind in Dec. 2002. I started treatment in 2003: 3 months at the beginning and 3 months at the end I am guessing. At times such as now, I have wondered about continuing with the abx since I am less functioning while taking them. I especially don't deal well with the inflamed brain for lack of really knowing what is going on. I am very low functioning at that time and need to just lie still, close my eyes and wait it out. But, when I go off the abx, I also have a rough time of it. Then I read something such as your post that helps me to get started again. I just stopped taking all meds as of Tuesday afternoon due to cold/flu like symptoms...different than what I was all ready dealing with for the past 2 and a half years. I really do think I caught a cold. I am now going to give myself a bicillin shot and get the ball rolling again. I sure hope I don't have the head thing again. It finally let up today after 4 days of it. I am bedridden for the most part with the exception of being able to get out and about in my power chair every now and then for a short time. I really enjoy those times and am very thankful for the power chair. I also am thankful for the person who comes and cleans the house, does the laundry and fixes meals 10 hours a week. I am thankful for the county for paying for this at min. wage. I am not multitasked anymore. It seems it takes all I have just to sit or stand...thinking and processing is out for the most part. I am wondering what others have found that they can do. I have found that straight walking at times works. Other times it does not. Sitting upright in the power chair works for short periods of time. Other times not. Staying down for several days seems to recharge my batteries so I can do something once and a while if I limit myself. The only thing that I have been able to count on is that I have been able to take a hot bath every other day in epsom salts. This is good. But, other than that, I don't know what to expect most of the time. I read two paper backs recently while I have been flat on my back for the past 4 days. That is a first in over 2 years. The print was out of focus or I had double vision, but I was able to do the best I could. When I first got this, I was in shock that I couldn't read. At that time, it wasn't the double or blurred vision..it had something to do with processing. It was very strange. It was as if my mind was picking up the word and then immediately dropping it and then picking up the next word and dropping it. The mind moved very slowly also. I expect the ability to read to continue to come and go for now. Well, yammering is one symptom I have picked up since this hit I must admit. You all take care now ya hear! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 <<<<<<For now I think success stories from other Lymies will help him to fight this disease and gave him his faith for a better future back. And I think he wouldn't be the only one.>>>>>>> Even though it seems as if you will never return to a normal way of life. ...........please believe you will. I've been there so I know what Nic is going through. I thought I would lose my job and become a vegetable for life. Fortunately, after a lot of trial and error with Drs. and meds, I found a LLMD that through several meds, was able to help me kill off those ugly spirochetes. I then followed a protocol consisting of various vitamins and minerals to help rebuild my spirocheteal and abx destroyed body. Remember it takes a long time on abx to destroy the buggers, and it takes awhile to rebuild your immune system after years of treatment. Just remember there are people that have gotten better.......it is definitely within your grasps......it just isn't going to happen in a short time frame. Unfortunately, most people who get better leave this group, I am one of those people....so you don't get to talk to a lot of people who are cured. I pop in once in a blue moon, just to see if I can offer any hope. So Nic.......hang in there........there is a light at the end of the tunnel. I was terribly ill.........and yes, I did survive lyme..you will too. ConnieKnwnj When our bodies & minds are out of balance....... ........we suffer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 How much Lyme is experienced in Holland? is there any reports for Holland on Lyme Disease? iglubach <iglubach@...> wrote: Hello Suev, A good LLMD? What is that? We don't have them at all. Some will say they know everything about Lyme, but how more they promise, how less they take their patient serious. Ones Nic went to such a doctor in Amsterdam. This 'duck' didn't even read Nic's case or listened to his story. It didn't matter what Nic told him, the 'duck' was sure it wasn't LD but PSMA (some kind of musscle disease like ALS). And this 'duck' isn't the only one here in Holland. Yes they have a protocol, sure. But it told them that LD would be deffinitly over in 30 days on abx?! But we are so happy that Nic's familly-doctor doesn't follow this protocal anymore. She only listen to what we tell her about good treatment. So maybe she will become a LLMD even when she is only a first line doctor. I also have the address from dr. Meer in Switzerland (New ILADS Guidelines) and that is I supposse the nearest LLMD. So when she needs help or advice, she can ask this doctor. Yes, Holland is beautiful, but not for Lymies, Greetings Nic & Ingeborg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 Hello Sue, Here in Holland we don't have reports about how many Lymies we have. We (the Lymies) want to know, but for the civilians of Holland it become hard to give their opinion. Our goverment makes the rules, and we just have to follow them. The doctors say they are LL when they found a rash on their own body (first level). But they give theirself abx for who know how long to recover and we have to do it with 30 days at the most. For the rest they only follow the good paid ($ 4 million) study and not the reply from ILADS. And the problem is that the official group for Lymies follows them as well (the wrong protocal). For Holland chronic Lyme isn't possible. So when you have it, you'll stand alone. Greetings from Holland, Nic & Ingeborg Hello Suev, > > A good LLMD? What is that? We don't have them at all. Some will say > they know everything about Lyme, but how more they promise, how less > they take their patient serious. Ones Nic went to such a doctor in > Amsterdam. This 'duck' didn't even read Nic's case or listened to his > story. It didn't matter what Nic told him, the 'duck' was sure it > wasn't LD but PSMA (some kind of musscle disease like ALS). And > this 'duck' isn't the only one here in Holland. > > Yes they have a protocol, sure. But it told them that LD would be > deffinitly over in 30 days on abx?! > > But we are so happy that Nic's familly-doctor doesn't follow this > protocal anymore. She only listen to what we tell her about good > treatment. So maybe she will become a LLMD even when she is only a > first line doctor. I also have the address from dr. Meer in > Switzerland (New ILADS Guidelines) and that is I supposse the nearest > LLMD. So when she needs help or advice, she can ask this doctor. > > Yes, Holland is beautiful, but not for Lymies, > > Greetings Nic & Ingeborg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 Connie Can you enlighten us on what vits/minerals you did to help rebuild your system? Did you do it while on abx? Re: [ ] Success Stories <<<<<<For now I think success stories from other Lymies will help him to fight this disease and gave him his faith for a better future back. And I think he wouldn't be the only one.>>>>>>> Even though it seems as if you will never return to a normal way of life. ..........please believe you will. I've been there so I know what Nic is going through. I thought I would lose my job and become a vegetable for life. Fortunately, after a lot of trial and error with Drs. and meds, I found a LLMD that through several meds, was able to help me kill off those ugly spirochetes. I then followed a protocol consisting of various vitamins and minerals to help rebuild my spirocheteal and abx destroyed body. Remember it takes a long time on abx to destroy the buggers, and it takes awhile to rebuild your immune system after years of treatment. Just remember there are people that have gotten better.......it is definitely within your grasps......it just isn't going to happen in a short time frame. Unfortunately, most people who get better leave this group, I am one of those people....so you don't get to talk to a lot of people who are cured. I pop in once in a blue moon, just to see if I can offer any hope. So Nic.......hang in there........there is a light at the end of the tunnel. I was terribly ill.........and yes, I did survive lyme..you will too. ConnieKnwnj When our bodies & minds are out of balance....... .......we suffer! Quote Link to comment Share on other sites More sharing options...
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