Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 Do you believe that there is anything that can be done about the LD situation regarding your government ? Would it be helpful for our doctors to contact the doctors in Holland or maybe your government officials? Is there any chance that Lymies in Holland can get their medications from outside the country? Some people in the USA get their meds from England, Canada or Mexico. I am so sorry to hear that you have some of the same problems we have here. sue iglubach <iglubach@...> wrote: Hello Sue, Here in Holland we don't have reports about how many Lymies we have. We (the Lymies) want to know, but for the civilians of Holland it become hard to give their opinion. Our goverment makes the rules, and we just have to follow them. The doctors say they are LL when they found a rash on their own body (first level). But they give theirself abx for who know how long to recover and we have to do it with 30 days at the most. For the rest they only follow the good paid ($ 4 million) study and not the reply from ILADS. And the problem is that the official group for Lymies follows them as well (the wrong protocal). For Holland chronic Lyme isn't possible. So when you have it, you'll stand alone. Greetings from Holland, Nic & Ingeborg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 Hello 3/6/04, In reference to your comment: è So I was given various supplements to help bring è balance back to my body and to help with any lingering è problems I had..I did vitamin/mineral drips once a week è for a few months......that really helped a è lot........combined with various vitamins and è minerals......of which I continue to take. è Vitamin/mineral supplementation has to be è administered based on each individuals blood/urine è tests. What works for me, may not necessarily work è for someone else. ******Connie this is wise suggestions......right now I'm in the middle of trying to get my body back in balance and it changes weekly it seems with my vitamins/herbs, depending on my detox process.....very frustrating to say the least. *****Being an allopathic trained nurse I had a hard time getting my head wrapped around the statements made in the alternative/complimentary world of medicine and their statements of " getting your body back into balance " .....talk about a hardheaded nurse. I thought my Homeopathic MD would strangle me before I finally started getting a grasp. I would get so frustrated when he would say " you are not listening to your body " .....Treating the body as a " whole " was a new concept to me. In alternative medicine you are taught to treat the body holistically or as a " whole " ......I was taught to treat the symptom NOT the cause as allopathic docs are taught in med school. You go to see a doctor and tell him " doc, I have this pain " and he gives you something for the pain!! < sigh> I rarely saw doctors in my 59 yrs, who was interested in finding the cause, until I started with alternative medicine. ******When you say, " what is good for me, might not be good for you " is stating a mouthful. IT IS SOOOOOOO TRUE.......Plus, I have found that there is so much " JUNK GARBAGE " vitamins and herbs out there. People look for pricing and not for quality. Cheap is not always good when purchasing vitamins and herbs. Fillers and perservatives in vitamins can be deadly for those with autoimmune disease and especially those who have MCS (Medical Chemical Sensitivities)....That is why I NEVER purchase vitamins/herbs from Cosco, Sam's, Wal-mart, K-mart, drug stores, grocery outlets, dollar stores, etc., etc., KNOW your manufacturer, how it is made, where it is made, what conditions it is made under, how it is stored, how long it sets on shelves and how it is transported. ****Again, your post was a good one for those who don't have vitamin/herbal experiences. Keep a smile on your face, love in your heart and walk with the angels, holding hand in the " chain of love " ...... Angel Huggzz or Angel http://www.dream-tool.net/tools/messages.mv?index+hepheimers (Msg Board) www.hepheimers.com (website) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 Hello 3/6/04, In reference to your comment: è it's amazing how many of our problems come from è foods we are allergic to. ******The alarming thing is people, for the most part, understand " allergic reaction " BUT don't understand that " food sensitivities " OR better known as " food intolerance " can do the same thing! Intolerance and allergic are not the same thing...OR .....Food Interactions with Herbal Remedies and Prescription Drugs....All of this can sometimes be overwhelming, but when folks are sick and running scared (BECAUSE THEY CAN'T FIND A KNOWLEDGEABLE DOCTOR) they tend to blame everything on their ailments (ie., Lyme) when in fact it is caused from something else. A good example is allergy to " gluten " ....now that is one subject to really get your head wrapped around....just like your milk allergy you found.;.....research, research, research and then more research, while taking charge of your OWN healthcare journey. YOU are in charge of your own healtcare journey NOT the doctors, they are merely a member of your healthcare " team " ......I make this statement to ALL the doctors I see, as I thank them for understanding my journey's goals.....hehehehe *****here are a couple of articles you might find interesting... Angel Huggzzz or Angel ========= Symptoms of Food Sensitivities Multiple symptoms are typical of food intolerances and should be watched for. In her book, Depression and Natural Medicine, Rita Elkins talks about golfer Casper, who complained for years of weight gain, stomach aliments, sinus congestion, backaches, headaches and bad temper. Apparently, after some investigation and testing, he was found to be sensitive to beet sugar, lamb, apples, pork, eggs, citrus fruit, wheat and any fruits or vegetables fertilized with nitrates or sprayed with chemicals. Casper changed his lifestyle and diet, and as a result, his health and moods significantly improved. The most common symptoms of a food allergy in adults are depression, headaches and fatigue. Mood changes can range from mild forms of anxiety to feeling seriously depressed. Manic outbursts of uncontrollable anger are also possible. The relationship between food allergies and even schizophrenia has been proposed. Two types of reactions can occur if you eat something you are sensitive to. One, there can be an immediate reaction characterized by symptoms that quickly occur and are easy to recognize. If you eat shrimp and break out in hives or develop an unusual headache, you know the shrimp is probably responsible. Its the second type of reaction to a food that is more difficult to identify because it may not occur for a day or two. If you eat a large meal and various foods on Sunday, you may feel overly fatigued, lethargic and depressed on Tuesday. In such a case, connecting your symptoms to a meal you ate two days ago is unlikely. Several medical journals in the 1980s published articles proposing that delayed food allergies cause nearly all cases of migraine headaches. In addition, reports in the Journal of Arthritis and Rheumatism disclosed that many cases of rheumatoid and osteoarthritis cleared up when certain offending foods were removed from the diet. In fact, when some test groups fasted, their arthritic symptoms all but disappeared. What this suggests is that a major malfunction causes food particles to trigger a series of biochemical events, causing them to act as inflammatory agents and affecting joints, creating what appears to be arthritis. For this reason, perhaps calling this phenomenon a food allergy is not totally accurate because the same kind of immune processes that occur with a typical allergy are not found in these situations. ------------------------------------------------------------------------------ -- Information provided is intended to provide an electronic reference library about nutrition and health. The views expressed in this or other sections of this site, have not been independently researched or confirmed. Updated on : 5/26/02 2:10:33 PM ========= Food Interactions with Herbal Remedies and Prescription Drugs by Allan Spreen, M.D. For years now, we've known about adverse interactions between certain drugs. I've been hearing that herbal remedies raise the same types of concerns. Now I wonder whether herbal remedies and drugs have adverse interactions with some types of food. Has there been much research on this? Drugs often come from herbal compounds with a similar action: The idea in creating drugs is to strengthen the action (if possible), while allowing the fewest possible adverse side effects. Foods can interfere with or enhance the actions of both drugs and herbs. The best example of food-drug interaction is the well-known one between cheese and the monoamine oxidase inhibitors, or MAOIs, where the cheese actually increases the power of the MAOI. This is only one example; there are many foods that do interfere with both drug and herb absorption. Herbs can be susceptible to the same problems of drugs (i.e., tolerance, addiction, toxicity, etc.), depending on the chemical. However, when you stick with herbs with a long, well-established history for a certain action, you generally have a chemical that the body has the capacity to deal with, without too much toxic stress. That certainly doesn't mean you can't get into trouble with herbs, but I prefer their actions to prescription drugs. The Graedons, authors of the popular book, " The People's Pharmacy, " have also written some books on this very subject. One is called " Deadly Drug Interactions, " and there is another on food interactions. The rule is: Do your homework before putting ANYTHING in your mouth. Good Health, A.N. Spreen, M.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 <<<<<Can you enlighten us on what vits/minerals you did to help rebuild your system? Did you do it while on abx?>>>>. Hi , I took the vitamins and minerals after abx treatment. Too numerous to list........but essentially what it was based on, was my symptoms and what my test results showed. So I was given various supplements to help bring balance back to my body and to help with any lingering problems I had..I did vitamin/mineral drips once a week for a few months......that really helped a lot........combined with various vitamins and minerals......of which I continue to take. Vitamin/mineral supplementation has to be administered based on each individuals blood/urine tests. What works for me, may not necessarily work for someone else. Hope this helps, ConnieK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 <<<<<<<That is why I NEVER purchase vitamins/herbs from Cosco, Sam's,Wal-mart, K-mart, drug stores, grocery outlets, dollar stores, etc., etc., KNOW your manufacturer, how it is made, where it is made, what conditions it is made under, how it is stored, how long it sets on shelves and how it is transported.>>>>> , I agree with you 100%.......I also follow a diet that doesn't have any foods in it that I am allergic too. Every time you eat a food that is an allergen to your body.....you cause inflammation in your body as well as lower your immune system......not to mention you feel horrible......it's amazing how many of our problems come from foods we are allergic to. For years, I would cough and cough and cough.......until the point I would throw up. It was horrible when I would have these attacks...stressful on my body as well as embarrassing. I could never figure out why I would have these coughing fits. After having extensive testing (through blood)........they found it was a protein within cow's milk. I stopped eating everything that was connected to cow's milk, and switched to soy and rice milk, as well as goat cheese and sheep cheese. I enjoy the sheep cheese the most. I no longer cough.....and I haven't caught a cold or flu or a virus in almost a year......since I found out what I was allergic too. The body is amazing!!! ConnieKnwnj When our bodies & minds are out of balance....... ........we suffer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Go to www.bodychangers.com in WI Success stories > > Hi anyone > > Can any of you who have success stories or heard of success stories please > mail me. It give me real motivation reading them and keeps me going. > > Thanks > > Debbie Batty > Admin Controller > Stuttaford Van Lines (Pty) Ltd - Port > E-Mail: debbie.batty@... > Website: www.stuttafordvanlines.com > Tel: 041-4057400 > Direct No: 041-4057416 > Fax: 041-4534616 > Vax: 021-4130477 > > > > Attention: > This e-mail message is privileged and confidential. If you are > not the intended recipient delete the message and notify the sender > Any views or opinions presented are solely those of the author. > > This e-mail has been scanned and cleared by MailMarshal. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 > Re: Success stories > > Hi > > I don't have access to the internet is there nothing that can be e-mailed > or faxed to me on +27-41-4130477 please. > > Thanks so much > Debbie > > > Go to www.bodychangers.com > > in WI > > Success stories > > > > > > Hi anyone > > > > Can any of you who have success stories or heard of success stories > please > > mail me. It give me real motivation reading them and keeps me going. > > > > Thanks > > > > Debbie Batty > > Admin Controller > > Stuttaford Van Lines (Pty) Ltd - Port > > E-Mail: debbie.batty@... > > Website: www.stuttafordvanlines.com > > Tel: 041-4057400 > > Direct No: 041-4057416 > > Fax: 041-4534616 > > Vax: 021-4130477 > > > > > > > > Attention: > > This e-mail message is privileged and confidential. If you are > > not the intended recipient delete the message and notify the sender > > Any views or opinions presented are solely those of the author. > > > > This e-mail has been scanned and cleared by MailMarshal. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 You're on this board...you must have access to the Internet. > > > > Re: Success stories > > > > Hi > > > > I don't have access to the internet is there nothing that can be e-mailed > > or faxed to me on +27-41-4130477 please. > > > > Thanks so much > > Debbie > > > > > > Go to www.bodychangers.com > > > > in WI > > > > Success stories > > > > > > > > > > Hi anyone > > > > > > Can any of you who have success stories or heard of success stories > > please > > > mail me. It give me real motivation reading them and keeps me going. > > > > > > Thanks > > > > > > Debbie Batty > > > Admin Controller > > > Stuttaford Van Lines (Pty) Ltd - Port > > > E-Mail: debbie.batty@s... > > > Website: www.stuttafordvanlines.com > > > Tel: 041-4057400 > > > Direct No: 041-4057416 > > > Fax: 041-4534616 > > > Vax: 021-4130477 > > > > > > > > > > > > Attention: > > > This e-mail message is privileged and confidential. If you are > > > not the intended recipient delete the message and notify the sender > > > Any views or opinions presented are solely those of the author. > > > > > > This e-mail has been scanned and cleared by MailMarshal. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 > > Not too many success stories in the files. I did read one from a Jeanne > Krieg who said she had 6 months of hell, but she didn't go into any > detail. Is there any way I can get in touch with her. I really am > needing the support. ==>Sorry about not having a lot of Success Stories. It's only due to my lack of time to post them because there have been many in our messages over the past 2 years. ==>Jeanne Krieg is one of our moderators. Bee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 After working with cancer victims this past 17 months, I have learned a lot about human nature. First, nearly everyone I have come in contact with is freaked out at diagnosis time. PEOPLE GET SCARED! Fear does most people in; sheep to the slaughter, so to speak. If you fear death either outright or subliminally, your entire focus on what it takes to stay alive changes and generally not for the better. You have to keep in mind that death will greet us all at some point, it is just a matter of choosing the time, place, and way. This did not seem like fun, so I had better find another way to overcome what was attacking me. People do not think in terms of. " What did I do to stay alive? " They simply grab at things until either something works of they succumb. There does not appear to be middle ground. No one is there to organize a system into a study that tracks all this stuff and very few people think in terms of scientific methodology. Therefore, what was done last week is forgotten in the pell-mell rush to save a life. It is not done intentionally; it is simply overlooked because the focus on living is not the same as understanding what it took to stay alive. If you happen to stumble across something that sort-of kind-of worked, that becomes the " cure " and for the most part a one step solution is brought forth. Cancer is not a fits-all disease. What works for one does not necessarily work for another. So when it comes to marketing, you find a handful of people who for whatever reason were successful and use them as the cornerstone of your campaign. " These people used our " stuff " and lived; it can do that for you. Because the next person in line is scared out of their mind facing death, the grab at " the simple solution " and either get lucky or die. You don't hear about the death from this tragedy in marketing, only the handful of success stores. This is not an indictment of all natural products, but it does fit the bill in many, many instances. " Buy our stuff and you will live. " Just like allopathic medicine, about a third live through no fault of their own and that is the success reported. You do not hear about the other 2/3 that never stood a chance. That is criminal. That is typical. That is what potentially will shut the natural remedy market down in the long run. Have no illusions about this, natural medicine is every bit profit motivated as allopathic medicine is. Second, I have spent virtually all of my adult life researching how things work and how I can improve them. I have an innate curiosity about fixing broken things and I really am very, very good at it. This is what separates me from a lot of people. I looked at my problem and thought more about this being another engineering effort than I did anything else. I have never failed at an engineering project even with millions of dollars and thousands of jobs on the line, I have always won. Why should one little project like cancer be a point of defeat? Part of the writing things down was simply my notes on an engineering project so I could track positive and negative results. How could I fix what was broken (me) if I did not document what I had done that did or did not work? It was obvious that the medical community had no answers in my case, so the ground I was treading upon was tenuous at best. There was no roadmap and that left me the task of dropping the trail of breadcrumbs at least for myself. Third, people tend to look for a way to profit from misfortune. As much as anything, I started to write everything down for our sons. If I could " inherit " cancer (as I thought I could when this all started), then I thought that what time I had left should be spent helping them to face the same potential battle down the road. I put together our website and foundation simply because I thought other people could benefit from what I learned, good or bad. I could see no reason to have other people make the same mistakes and die if that is what happened to me. There was never a thought about profit motive. I did not wake up and say, " Lets make money today off the fact I have terminal cancer. " When this did turn around, there was nobody more surprised than me. It then became more incumbent to try and demonstrate that you do not have to die right now a very agonizing death. Again goes back to number one, realizing that my life is finite to begin with and I simply am choosing to change the time line of my demise to somewhere down the road most probably from a more pleasant means (old age). Fourth and final point is that most people, 82% by statistical analysis, want major decisions made by someone else. " Here's my problem, fix it for me. " Doctors are confronted daily with a plethora of populace that want them to decide their fate. That is why no matter what goes on, modern medicine will continue to rule the day when dealing with illness of almost any form. " Just fix me up, Doc; I hurt. " I don't care what it takes just make the pain go away. If you say it can't be fixed, then who am I to argue with you about that? Again the mental makeup of most people is this way. It is not necessarily a bad thing, simply the way it is. If you cannot accept that most people will not step out on a limb and cut it off behind them, then you will never understand why they don't survive cancer when told there is no chance for survival. I am reasonably articulate and have spent the vast majority of my time taking very complex mathematics, physics, and scientific research projects apart and helping others understand the underlying concepts. That is part of what a research engineer does. Just because I understand it does not mean that others will. If I cannot explain what is in my head, then the knowledge is worthless. Who most benefits from what I know is defined by who understands what I know. The $3 words mean nothing just because I can pronounce them. If you don't know what they mean, I sound good but have lost the battle because I failed to make my knowledge useful. Most people again do not have that ability. This is not a point of bragging, just a simple statement of fact. I was successful as a consulting engineer because I could solve very difficult problems and then help others to understand what was done. Very few people do this successfully and that is also what is needed to make a study work. Much of it comes down to who the study is written for. If I was working only with other PhD's and MD's and hard core researchers, the vernacular would be different. But they are not the ones who are dying. Common every day ordinary people are dying all around me from cancer and to offer help and hope means they need not to be afraid of the big words and secrets held by the medical community. Part of this also has to do with my belief structure. I firmly believe every single one on the face of the earth was put here for a purpose. Most people will flounder their entire lives and never find a reason to live; rather they simply exist and then die. At one point in my life, I had considered going into the ministry. At the time, I did not have the temperament for it. Now that the majority of my worklife has passed, this little issue with cancer became a sort of wake-up call to put my life to some real use other than making money. When I drove home that day from the doctor's office after finding out there was only the possibility of a few months to live to maybe a year on the outside, it really set things clear in my mind. Living and dying were only a small part of the puzzle. Once before I had ignored the call of God to help people. This time I decided that if I lived, I would do exactly that. I won't make decisions for anyone other than myself, but I can teach people to face reality squarely and not be afraid of what they see. If they can in turn take that knowledge and write down what has happened to them all along the way.. Guess what happens? More documentation about what works and what does not. That is the only way it will happen. Nobody is going to do this in an organized way. Nobody is going to withstand the costs. Nobody but the people dying will benefit so why bother? Modern medicine does not have a niche for those who think outside the box. If you did not " cure " it allopathically, nobody cares. Now, answer the questions: " Why don't more people write down what they did? " " Why isn't there solid research on alternative treatment programs? " " Who profits most from proving it does not take hundreds of thousands of dollars to beat cancer by chance? " Bruce Guilmette, PhD Survive Cancer Foundation, Inc. <http://survivecancerfoundation.org> http://survivecancerfoundation.org Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Matt 6:34 (NIV) _____ From: [mailto: ] On Behalf Of Ian Dixon Sent: Thursday, April 27, 2006 5:59 PM Subject: [ ] success stories Joe You commented: " you might note that bruce G has done very well......has written up his case very well too! there are so few instances of this and so much more noise instead. " I AGREE totally with that part of your email - and what annoys me is that no one seems to systematically analyze why people who do significantly outlive their prognosis do so. Without that sort of in depth study, what we find is success stories being used as adjuncts to marketing ploys - buy this - it worked on me. And that is so misleading even if true. WHERE IS THE RESEARCH ON SUCCESS STORIES? Maybe then those like myself who believe that holistic factors made the difference can be weighed in some sort of scientific basis. Ian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Hello Bruce I just read this fascinating e-mail.This is going to be a fairly long response. I am an International Oil rig trouble shooter. I have spent 33 years, solving problems other people could not. At the moment my project is a multi-million $ " Super Rig " in the Kuwaiti desert. The rig was built as the deepest land rig in the middle east to drill to 18,000 feet and beyond. The rig was shipped to Kuwait and assembled. It didnt work. I came here in October. Two weeks later we started drilling and have just completed our first well, one of the best ever found in Kuwait. That's a little work background. You and I have been in the business of " problem solving " for most of our lives. Here's a little " cancer " background. A year ago last April I was diagnosed with advanced prostate cancer. My psa was 102;never had a problem before. I resisted the urologist's " immediate " biopsy call, followed by a radiacal prostectomy, castration, radiation, and chemo. I wanted to get some background on cancer. I applied the same techniques that have served me so well in my proffesion. After eight months of intensive reaseach, (while continuing to work) I felt I had enough information to take the next step. This was, obviously a firm diagnosis. By then I had discovered I did not need an intrusive biopsy. I had instead an MRSI, that is, a normal MRI with spectroscopy, available only in 17 clinics in the USA. The MRSI not only confirmed the cancer but identified the areas to which it had spread, and through the chemical analysis was able to grade the cancer fairly closely. The next step was a pet scan which confirmed the MRSI showing mets throughout the skeleton as well as the primary tumor. The good news for me was there is no soft tissue uptake. By this time my psa was 254. My urologist had written me a scathing letter, (sent registered mail) in which he disavowed any responsiblity for my decision, informing me that I would probably come down with spinal cord compression in the desert and have to be medivac' out. What he did not know was that I had been in contact with Dr n Kenyon, the doctor who took care of Gearing Tosh, the .005% survivor, author of " Living Proof - A Medical Mutiny " I had also been in touch with Vince Gammil of the Center for Natural Oncology, and had read many anecdotal accounts of long term cancer survivors. It had become apparent that in EVERY INSTANCE of survival against advanced cancers the key elements were pro-active decisons and change of diet/lifestyle. As an engineer it made perfect sense to " unload " the immune system as much as possible in order to have as much resources available to fight cancer. While it is true that life-long vegetarians also get cancer, nevertheless, an unloaded, primed immune system can only help whatever other therapies are applied. With this in mind I started a very srict diet of rice and beans for one month in the desert. By the time I turned up for treatment at the Center for Natural Oncolgy, and the San Diego Clinic in Mexico my psa had allready dropped 50 points!!!! It was felt that I did not need radiation or chemo. I am on intermittent hormone suppression, bisophosphonates for the bone mets, an immune system booster produced by the lab at the Center for Natural Oncology, a vaccine is being made from my blood, I had hyperthermia and vit C, K and selenium treatments. I am still on a radical vegan diet supplemented with Pau Darco tea and Jasmine green tea. I will be seeing Dr Kenyon some time in the fall. All the pain and stiffness from the bone mets has disappeared and I feel as good as I have ever felt in my life, which is pretty good. My research uncovered that cancer cells are very primitive and cannot survive extremes of temperature or starvation. I also discovered the mechanism by which Killer T cells tear open cancer cells, injecting perforin and exposing the cancer cells to the toxins in the blood stream. I have pictures of this activity from several medical science websites. One can see armies of lymphocytes swarming through the body " homing " in on invaders, marking them for the T and B cells. Using " visualization " techniques one can stimulate ones own immune system by " direct order. " In my case, I use an army of Polar Bears to " seek and destroy. " All of these things turn us from " victims " to " victors " We become pro-active. We, the patients, have a huge part to play in the fight. As you so sadly point out, most people, for one reason or another " exist " until they die. One simply cannot " change " a person's life-long habits overnight. All one can do is offer the information and hope that some of it sticks. Each cancer patient ultimately is responsible for their own fate. If they choose to put that fate totally in the hands of " experts " then they are at the mercy of their particular " experts " limitations. The other factor which plays a part in survival, not only in cancer but in healthy life, is our emotional, spiritual condition. I have a survival advantage in that I have been working in and out of war zones for over thirty years. I had to come to terms with death a long time ago due to the nature of my occupation. That led me to look closely at my mortality and my spiritualty. I have done a lot of work in that area. Sadly, again, as you point out, someone who has never seriously been confronted with his own mortality, or seriously studied his spiritual nature, cannot suddenly become a different person. The parameters for change to bring about a phase transition strong enough to confer a survival advantage are very complex. Sometimes, miracles do happen, and people truly are " born again " instantly. But even that pre-supposes a willingness to change. So where does that leave me, us? My feeling is this. If the present course of treatments and pro-active things I am doing result, as in the case of Tosh, in a permanent remission (I expect this fight to be lifelong from now on), then I will feel bound to share the things I have found with other people. I am in a unique position to do this because my wife and I own an Inn. We are considering creating an " alternative environment to treatment " . A resource center were people can come and stay for a few days. A place where they can cut through the jungle of " alternative medicine " . Find real case histories, meet real people, be directed to the best resources on the planet, and that will include the highest and best of main stream technology paired with " complimentary medicine; " a place where people who have never cooked can learn to cook Vegan, learn to juice, learn to think for themselves, learn to be Pro-Active. I think the Lord is directing us into this area. (I use this term because for me the power in universe that best symbolises the attributes of all that is good and life-supporting is the image of a loving Father as handed down to us in the gospels) I envisage a group of " professional problem solvers " pooling our brains and compiling information that is clear, direct, supported and proven to help people in their treatment decisions. What do you think of all this Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 What can I do to help you? Bruce Guilmette, PhD Survive Cancer Foundation, Inc. <http://survivecancerfoundation.org> http://survivecancerfoundation.org Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Matt 6:34 (NIV) _____ From: [mailto: ] On Behalf Of Dan Captain Sent: Friday, April 28, 2006 2:16 AM Subject: [ ] RE: success stories Hello Bruce I just read this fascinating e-mail.This is going to be a fairly long response. I am an International Oil rig trouble shooter. I have spent 33 years, solving problems other people could not. At the moment my project is a multi-million $ " Super Rig " in the Kuwaiti desert. The rig was built as the deepest land rig in the middle east to drill to 18,000 feet and beyond. The rig was shipped to Kuwait and assembled. It didnt work. I came here in October. Two weeks later we started drilling and have just completed our first well, one of the best ever found in Kuwait. That's a little work background. You and I have been in the business of " problem solving " for most of our lives. Here's a little " cancer " background. A year ago last April I was diagnosed with advanced prostate cancer. My psa was 102;never had a problem before. I resisted the urologist's " immediate " biopsy call, followed by a radiacal prostectomy, castration, radiation, and chemo. I wanted to get some background on cancer. I applied the same techniques that have served me so well in my proffesion. After eight months of intensive reaseach, (while continuing to work) I felt I had enough information to take the next step. This was, obviously a firm diagnosis. By then I had discovered I did not need an intrusive biopsy. I had instead an MRSI, that is, a normal MRI with spectroscopy, available only in 17 clinics in the USA. The MRSI not only confirmed the cancer but identified the areas to which it had spread, and through the chemical analysis was able to grade the cancer fairly closely. The next step was a pet scan which confirmed the MRSI showing mets throughout the skeleton as well as the primary tumor. The good news for me was there is no soft tissue uptake. By this time my psa was 254. My urologist had written me a scathing letter, (sent registered mail) in which he disavowed any responsiblity for my decision, informing me that I would probably come down with spinal cord compression in the desert and have to be medivac' out. What he did not know was that I had been in contact with Dr n Kenyon, the doctor who took care of Gearing Tosh, the .005% survivor, author of " Living Proof - A Medical Mutiny " I had also been in touch with Vince Gammil of the Center for Natural Oncology, and had read many anecdotal accounts of long term cancer survivors. It had become apparent that in EVERY INSTANCE of survival against advanced cancers the key elements were pro-active decisons and change of diet/lifestyle. As an engineer it made perfect sense to " unload " the immune system as much as possible in order to have as much resources available to fight cancer. While it is true that life-long vegetarians also get cancer, nevertheless, an unloaded, primed immune system can only help whatever other therapies are applied. With this in mind I started a very srict diet of rice and beans for one month in the desert. By the time I turned up for treatment at the Center for Natural Oncolgy, and the San Diego Clinic in Mexico my psa had allready dropped 50 points!!!! It was felt that I did not need radiation or chemo. I am on intermittent hormone suppression, bisophosphonates for the bone mets, an immune system booster produced by the lab at the Center for Natural Oncology, a vaccine is being made from my blood, I had hyperthermia and vit C, K and selenium treatments. I am still on a radical vegan diet supplemented with Pau Darco tea and Jasmine green tea. I will be seeing Dr Kenyon some time in the fall. All the pain and stiffness from the bone mets has disappeared and I feel as good as I have ever felt in my life, which is pretty good. My research uncovered that cancer cells are very primitive and cannot survive extremes of temperature or starvation. I also discovered the mechanism by which Killer T cells tear open cancer cells, injecting perforin and exposing the cancer cells to the toxins in the blood stream. I have pictures of this activity from several medical science websites. One can see armies of lymphocytes swarming through the body " homing " in on invaders, marking them for the T and B cells. Using " visualization " techniques one can stimulate ones own immune system by " direct order. " In my case, I use an army of Polar Bears to " seek and destroy. " All of these things turn us from " victims " to " victors " We become pro-active. We, the patients, have a huge part to play in the fight. As you so sadly point out, most people, for one reason or another " exist " until they die. One simply cannot " change " a person's life-long habits overnight. All one can do is offer the information and hope that some of it sticks. Each cancer patient ultimately is responsible for their own fate. If they choose to put that fate totally in the hands of " experts " then they are at the mercy of their particular " experts " limitations. The other factor which plays a part in survival, not only in cancer but in healthy life, is our emotional, spiritual condition. I have a survival advantage in that I have been working in and out of war zones for over thirty years. I had to come to terms with death a long time ago due to the nature of my occupation. That led me to look closely at my mortality and my spiritualty. I have done a lot of work in that area. Sadly, again, as you point out, someone who has never seriously been confronted with his own mortality, or seriously studied his spiritual nature, cannot suddenly become a different person. The parameters for change to bring about a phase transition strong enough to confer a survival advantage are very complex. Sometimes, miracles do happen, and people truly are " born again " instantly. But even that pre-supposes a willingness to change. So where does that leave me, us? My feeling is this. If the present course of treatments and pro-active things I am doing result, as in the case of Tosh, in a permanent remission (I expect this fight to be lifelong from now on), then I will feel bound to share the things I have found with other people. I am in a unique position to do this because my wife and I own an Inn. We are considering creating an " alternative environment to treatment " . A resource center were people can come and stay for a few days. A place where they can cut through the jungle of " alternative medicine " . Find real case histories, meet real people, be directed to the best resources on the planet, and that will include the highest and best of main stream technology paired with " complimentary medicine; " a place where people who have never cooked can learn to cook Vegan, learn to juice, learn to think for themselves, learn to be Pro-Active. I think the Lord is directing us into this area. (I use this term because for me the power in universe that best symbolises the attributes of all that is good and life-supporting is the image of a loving Father as handed down to us in the gospels) I envisage a group of " professional problem solvers " pooling our brains and compiling information that is clear, direct, supported and proven to help people in their treatment decisions. What do you think of all this Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 While the well-written and very appropriate piece was not written to me specifically, I did want to comment. I am thankful that so many of us, without major problem solving experience or ever having faced the prospect of survival, at least before our cancer developed, have been able to do exactly what these two engineer trained people have done. I suppose the many that have never had a 'born again' experience, in the sense usually used, are blessed in that they were born with a brain. People that fall totally into the arms of conventional medicine are not to blame for this. The greater majority of people born into this world are conditioned to this very end. From religion to the politics of Nationalism to the subservience to Allopathic Medicine it is all conditioning. Thankfully many of us have been able to escape and in many cases simply because it makes sense while in others out of necessity. It does take, however, a 'type' of thinking to do this before we are stricken or as in my case, the exposure to the wonderful kooky world of Natural Healing, by an uncle and aunt when I was only ten. The seed was planted and so we must now be uncles and aunts to others and hope, that by example, patience, and reason be able to fertilize those seeds. There were a lot of good suggestions in both of those pieces and much will help many. What I particularly was impressed with was that Dan had the wisdom to seek out someone that knows what works and what does not and that person , tries to keep us on track from time to time. Joe C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 GO DAN .... you are on to something HUGE!!!! Very inspiring for me - just 40 with breast cancer, her2neu positive and just undergoing a bilateral mastectomy. God Bless, Darlene _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Ian, Most of the time the problem is that when people do walk away from cancer using supplements, that's it. They no longer have a need/urge/desire to do anything other than deal with themselves. So they go and do and forget, for the most part, what they went through. The vast majority of people will revert to former patterns of lifestyle simply because they do. It makes no sense, but then little in life does most of the time. The second most popular question asked of me when I tell people that diet and nutrition are two of the most critical things they can do to help themselves is, " How long do I have to do this? " When I tell them the lifestyle change is forever, the normal rejoinder is something like, " I can't do that, " or " That's not fair, " or " then its not worth the sacrifice. " And those are the people that cancer revisits and frequently kills. But it is a conscious choice for them that the lifestyle is more important than life. The difference is head knowledge and heart knowledge. Regardless of whether or not you know the right thing to do, it is a question of whether or not you will have the discipline to actually carry forth. No amount of knowledge will make a nickel's worth of difference if you will not apply that knowledge. Sad and silly, but true. Had an email from a lady who has smoked and drank for 40 years with liver involvement of lung cancer and it is not an issue of whether or not she can stop, she has no desire to stop. Her life is just not worth living, according to her, if she cannot continue to smoke and drink. In my own family we have someone who just went through a bout of gallbladder cancer and he refuses to give up his Friday night fish fries (deep fried of course). Now he is starting to have stomach problems and recurring pain in the area of the liver. He too has told me that because he is past 70, he has lived longer than he expected to and if he has to give up the deep fried food he loves, then his life is just not really worth putting up with. You cannot overcome stupidity or willful acts of neglect. It makes no sense, but that is life also. Regards, Bruce _____ From: [mailto: ] On Behalf Of Ian Dixon Sent: Friday, April 28, 2006 10:19 AM Subject: [ ] success stories Bruce I think the problem is that the medics are from a discipline that uses chemistry and physics a lot. So they apply one or two chemicals and look to an expected result statistically. So what is cancer is caused by a poor immune system which in turn id due to a variety of dietary deficiencies -just accept that as a postulation - well adding vitamin A may help a few who happened to be deficient in vitamin A - but the intensive pill application method or high dosage may harm others - and those lacking/needing selenium do not benefit from vitamin A supplements, etc. So their studies are inconclusive What I am saying - start at the other end - why is this man alive when he should, statistically, be dead long ago - analyse. Do the same for the next and so on Look for common threads Then take a big sample - and give them standard medication - plus a lot of holistic advice and see if statistically it makes a difference. I am coming from a terminal diagnosis with an untreatable cancer - has anyone yet asked me detailed questions in any empirical manner? No. I believe they do their best - but with the blinkers that they get from studying hard facts for long hours in a framework that causes blind spots. Give you an example: my aging father-in-law was a doctor - he obviously regards my approach to cancer as being mostly nonsense - he attributes my success to medical misdiagnosis - that is his choice. Also his choice is to eat lots of pre-prepared foods with minimal fruit and vegetables - the result is that he cannot be left alone for long periods as he is then at increasing risk to himself through poor diet. I am sure that with each condition arising from his impoverished immune system he will know the correct prescription be it ointment or anti-biotic. What he cannot see is the cause - his diet/lifestyle. At first I found this situation both incredible and also offensive to me - now I regard it with pity. But people like me are dying of my disease - and are not being given either hope or tools with which to fight! - there is so much to learn from survivors and it is so important! Regards Ian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Re: Doctors are confronted daily with a plethora of populace that want them to decide their fate. That is why no matter what goes on, modern medicine will continue to rule the day when dealing with illness of almost any form. " Just fix me up, Doc; I hurt. " I don't care what it takes just make the pain go away. ...I really like the way you put things it makes so much sense...by the way, just wondering, you being so intuitive and all. Have you ever read the book " World Without Cancer " , by G. by any chance? And if you did I woul really like to know what YOUR take is on it. Yours Truly, JV Bruce Guilmette PhD <bruce@...> wrote: After working with cancer victims this past 17 months, I have learned a lot about human nature. First, nearly everyone I have come in contact with is freaked out at diagnosis time. PEOPLE GET SCARED! Fear does most people in; sheep to the slaughter, so to speak. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 Yes, I have. It is interesting, and a piece of the puzzle, but there are a number of things in it I disagree with. Generally speaking, I find that cancer is not quite that easily pigeonholed. I most strongly agree that nutrition is a key to health, but you cannot lay all or at least a vast majority of cancers strictly at that doorstep. I am a very strong proponent of good nutrition and juicing of the proper vegetables for the right reasons. It literally worked for me and a number of people I am counseling at this time. BUT and this is a very large exclusionary statement, I cannot in good conscious state that because you eat wrong you get cancer. Does not work that way. I have heard from way too many people that do all the right things including regular colon cleanses, vegan, full vegetarian, Paleolithic diets, etc. that still end up with some form or other of cancer. There are just too many other factors involved to make the overly broad statements about the general cause of cancer. Diet and nutrition support good health but are not strictly a means to an end. I wish I had more time to devote to this, but I have another 80+ emails to go through yet this morning. Regards, Bruce Guilmette, PhD Survive Cancer Foundation, Inc. <http://survivecancerfoundation.org> http://survivecancerfoundation.org Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Matt 6:34 (NIV) _____ From: [mailto: ] On Behalf Of Vale Sent: Friday, April 28, 2006 8:56 PM Subject: RE: [ ] success stories Re: Doctors are confronted daily with a plethora of populace that want them to decide their fate. That is why no matter what goes on, modern medicine will continue to rule the day when dealing with illness of almost any form. " Just fix me up, Doc; I hurt. " I don't care what it takes just make the pain go away. ...I really like the way you put things it makes so much sense...by the way, just wondering, you being so intuitive and all. Have you ever read the book " World Without Cancer " , by G. by any chance? And if you did I woul really like to know what YOUR take is on it. Yours Truly, JV Bruce Guilmette PhD <bruce@...> wrote: After working with cancer victims this past 17 months, I have learned a lot about human nature. First, nearly everyone I have come in contact with is freaked out at diagnosis time. PEOPLE GET SCARED! Fear does most people in; sheep to the slaughter, so to speak. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 > > are there any success stories out there from people who have done this > program and been successful. can you explain what your experience was > and the duration of being on the diet. > > thanks any stories help to motivate me to stay on this program. as > you know it's the most difficult thing to undertake. > > doris ==>Hi Doris. There are many Success Stories found in our Group's Files (left menu) in the " Candida Success Stories Folder. The best to you, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Hi Jan, I believe Robynn has an area for progress/personal experience on this protocol in the files section. The problem is that unfortunately, people rarely take the time to post to sections like this. It might be helpful to search the archives of the list with terms like " success " or " feel better, " etc. That can get tedious though. I also have an area on Planet Thrive for members to rate/review the Healing Lyme protocol: http://tinyurl.com/2uqgw7 So far only 2 people have posted a rating/review. I hope that more of you will share your experiences here after being on the protocol for several months. This type of valuable insight is so helpful to people like Jan who are new to the protocol. Best, www.PlanetThrive.com > > I'm thinking about starting the Buhner protocal, but need some > encouragement. Is there a particular way to get success stories on this website? Thank you, and be well, Jan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 By the way, to read the member reviews currently on Planet Thrive, just go to http://tinyurl.com/2uqgw7 and click on the " 2 member reviews " link in the upper right of the page. If more people add their reviews, the # of reviews will change but that will always be the link... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 > > are there any success stories of people who have done this diet and > don't have to watch what they eat anymore and are feeling better? all > the " success " stories i've read so except for you, Bee, are about how > they are feeling better but are still on the diet. > > doris > Doris: Okay if I put my two cents in? I see the post is for Bee. Anyway, this is totally only my opinion and might not be relevant to your question, depending on what you mean by watching what you eat. But I believe after you have candida, you have a responsibility to not subject your body to the abuse of " normal " eating again. I feel that it's pretty clear by this website what the combination of toxins now in the environment and the refining of food does to the human body. I went through the program, and I can eat what I want now, I am back to all dairy and grains and starches and " normal " types of foods, but organic, properly soaked and prepared and unprocessed. I feel good every day, no symptoms. But I would not consider going back to the sugar-laden and processed foods that make up the diet of people who don't watch what they eat. I got myself into the position I was in by doing exactly that, and I am not going back there. I can eat a restaurant meal, have a little processed food when I am traveling or a handful of this or that at a social occasion, but I will never eat the way people consider " normal " again. I don't think anyone knows how much toxic food you can eat post-recovery and still stay recovered, but I don't wouldn't feel it was fair to my body to treat it tha way after having experienced the consequences. Sorry to be so negative here, but having candida sort of scared me straight. Joanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2009 Report Share Posted October 14, 2009 What survey was that? I've never heard of that statistic! Regards, Darla 2009/10/14 dsmutum <dsmutum@...> Was really excited when I read that according to a survey nearly 40% of households who had a child diagnosed with autism reported that their child did not currently have the condition. In other words they were cured. What I would really like is to find out what treatments these families used.It would be great if someone could compile a list of success stories - where children diagonised with autism were cured, along with the treatments used. I am sure a lot of parents here would agree with me. Right now we are thoroughly confused with all the treatments out there (costing thousands of pounds) and the mixed messages we are getting all the time. Cheers,Adam Mutumhttp://www.imaan.biz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2009 Report Share Posted October 14, 2009 The best place I know for comparing therapies is a page on the Autism Research Institute where parents (not doctors) have rated treatments better/same/worse. In this context it's probably helpful to recognise that there seems to be a huge placebo effect in autism. The research on hyperbaric oxygen by Dan Rossignol which was mentioned earlier found a placebo effect of 38% ie 38% of parents whose children were receiving no treatment at all felt that they saw benefits (from nothing). Sally Darla wrote: > > What survey was that? I've never heard of that statistic! > > Regards, > Darla > > 2009/10/14 dsmutum <dsmutum@... <mailto:dsmutum@...>> > > > > Was really excited when I read that according to a survey nearly > 40% of households who had a child diagnosed with autism reported > that their child did not currently have the condition. In other > words they were cured. > > What I would really like is to find out what treatments these > families used. > > It would be great if someone could compile a list of success > stories - where children diagonised with autism were cured, along > with the treatments used. I am sure a lot of parents here would > agree with me. > Right now we are thoroughly confused with all the treatments out > there (costing thousands of pounds) and the mixed messages we are > getting all the time. > > Cheers, > > Adam Mutum > http://www.imaan.biz <http://www.imaan.biz/> > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.5.421 / Virus Database: 270.14.15/2434 - Release Date: 10/13/09 19:11:00 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2009 Report Share Posted October 14, 2009 Oops! Sorry I forgot to mention that.I am referring to the results of The National Children's Health Survey in the US. This was a telephone survey of 78,000 households conducted in the 2007. Here is the Reuter's report: http://www.reuters.com/article/pressRelease/idUS73619+05-Oct-2009+PRN20091005 Cheers,Adam Mutumhttp://www.imaan.biz2009/10/14'>http://www.imaan.biz2009/10/14 Darla <rexel4@...> What survey was that? I've never heard of that statistic! Regards, Darla 2009/10/14 dsmutum <dsmutum@...> Was really excited when I read that according to a survey nearly 40% of households who had a child diagnosed with autism reported that their child did not currently have the condition. In other words they were cured. What I would really like is to find out what treatments these families used.It would be great if someone could compile a list of success stories - where children diagonised with autism were cured, along with the treatments used. I am sure a lot of parents here would agree with me. Right now we are thoroughly confused with all the treatments out there (costing thousands of pounds) and the mixed messages we are getting all the time. Cheers,Adam Mutumhttp://www.imaan.biz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2009 Report Share Posted October 14, 2009 The recent article that someone posted here called " Can children with Autism recover? If so, how? " states that between 3% and 25% of children reportedly loose their ASD diagnosis and enter the normal range of cognitive, adaptive and social skills. They state (as their conclusion) that the possible mechanisms of recovery include: normalising input by forcing attention outward or enriching the environment; promoting the reinforcement value of social stimuli; preventing interfering behaviours; mass practice of weak skills; reducing stress and stablizing arousal. Improving nutrition and sleep quality is non-specifically beneficial. Our son (now 5) would no longer qualify for his previous diagnosis of ASD. I don't know what his diagnosis would be now, possibly nothing but an anxiety disorder. They state in the study that I referenced above that many kids who loose the diagnosis of ASD have residual vulnerabilities which appear to include: anxiety (especially social anxiety), depression, tics, attention problems, and perhaps continuing difficulty with higher-level, complex social and language interactions. I say this because recovery is a big word and the kids who loose their diagnosis often still have some residual difficulties (but not pervasive developmental issues). Anyway, our son has lost his diagnosis through intensive Verbal Behaviour intervention (40 hours a week from the age of two years to the present), biomed (getting his horrible gut and digestion sorted out), and pretty much the above cited mechanisms: we reduced stress (we did a lot of this) and stabilized arousal in him (by using routine and lots of down time and minimising disruptions to routine, etc). Best wishes, Darla 2009/10/14 Dilip Mutum <dsmutum@...> Oops! Sorry I forgot to mention that.I am referring to the results of The National Children's Health Survey in the US. This was a telephone survey of 78,000 households conducted in the 2007. Here is the Reuter's report: http://www.reuters.com/article/pressRelease/idUS73619+05-Oct-2009+PRN20091005 Cheers,Adam Mutumhttp://www.imaan.biz 2009/10/14 Darla <rexel4@...> What survey was that? I've never heard of that statistic! Regards, Darla 2009/10/14 dsmutum <dsmutum@...> Was really excited when I read that according to a survey nearly 40% of households who had a child diagnosed with autism reported that their child did not currently have the condition. In other words they were cured. What I would really like is to find out what treatments these families used.It would be great if someone could compile a list of success stories - where children diagonised with autism were cured, along with the treatments used. I am sure a lot of parents here would agree with me. Right now we are thoroughly confused with all the treatments out there (costing thousands of pounds) and the mixed messages we are getting all the time. Cheers,Adam Mutumhttp://www.imaan.biz Quote Link to comment Share on other sites More sharing options...
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