Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Thanks so much for your reply, I am from New Buffalo Michigan, we are both lost here, I certainly no no doc's in area either. o From: Inbody <inbo5599@...> Sent: Thu, February 17, 2011 7:22:39 PMSubject: Re: Re: - capsules and seromas Does anyone know of experienced doc around Grand Rapids, Michigan? Not doing well. MRI showed fluid around breast both sides that should be biopsed for ALCL Lymphoma. Also, working with neurologist on diagnosis for Human Adjuvant. ANA came back high and getting lumbar puncture next week. Having seizures regularly. Thanks! From: bebe444girl <moodynomad@...> Sent: Thu, February 17, 2011 5:41:29 PMSubject: Re: - capsules and seromas Hi - so i spoke with a girl on the phone today who doesn't get on the computer much and lives in FLA. She used dr barnett and said she was very thorough. She did a lolipop incision and removed every bit of the capsule (which was dark and thick she said). so, i'd never heard of her before but since i got that info i figured maybe it was supposed to be shared with you so sorry you are so sick.healing wishes, ~bev in Ca>> Hi Sandy, I just picked your email because I am not sure how this works?? I  > joined Early jan 2011, because I got so sick, and i sent 1 email to the saline > support group but never heard back from anyone. So I just kept reading untill > now when I would like to ask a question to the girls in this group have any of > you used Dr. Marguerite P. Barnett in Sarasota Fl. Or does anyone know any > doc's in Chicago, Ind. area's. I sure hope this email gets out there.> Thanks for your help > > > > ________________________________> From: Sandy <dusty.com@...>> > Cc: Sandy <dusty.com@...>> Sent: Fri, January 21, 2011 2:46:54 PM> Subject: - capsules and seromas> >  >  > Capsules Left Behind >  > Chemical Breath > It smelled like paint thinner coming > up through my lungs 24/7 >  > After Capsule Removal > I faintly smelled chemicals >  > Than the chemical odor inhanced as time went by> The odor of paint thinner surfaced again>  > My doctor ordered an ultra sound test> Thats when they found a seroma in my left breast>  > First Seroma Removal>  > My original surgeon removed my seroma> and ripped out my drains like you were pulling > the cord on an old lawn mower to get it started>  >       > I let out a scream >  I now have numbness and pain in my left breast>  > After First Seroma Removal> Within a week I faintly smelled chemicals again>  > Chemical Breath > As time went by the chemical odor inhanced > I smelled the chemicals up through my lungs 24/7 >  > My doctor ordered another ultra sound test> The test revealed another seroma but > not as large as the first one>   > My original surgeon who put the implants in > insisted if he removes my2nd seroma the > stakes were high I would have a stroke>  > Second Seroma Removal > Doctor Kolb removed seroma #2> I experienced no pain through the whole process >  > Recent mammogram and ultra sound test>  No Seroma >  > Capsule and Seroma Removal> Dr. Kolb came to my rescue twice > To fix my original surgeons work>  >  NO STROKE>   >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Hi bebe, thank you for your help, this is really nice that there are people out here who really do understand. Thanks From: bebe444girl <moodynomad@...> Sent: Thu, February 17, 2011 5:41:29 PMSubject: Re: - capsules and seromas Hi - so i spoke with a girl on the phone today who doesn't get on the computer much and lives in FLA. She used dr barnett and said she was very thorough. She did a lolipop incision and removed every bit of the capsule (which was dark and thick she said). so, i'd never heard of her before but since i got that info i figured maybe it was supposed to be shared with you so sorry you are so sick.healing wishes, ~bev in Ca>> Hi Sandy, I just picked your email because I am not sure how this works?? I  > joined Early jan 2011, because I got so sick, and i sent 1 email to the saline > support group but never heard back from anyone. So I just kept reading untill > now when I would like to ask a question to the girls in this group have any of > you used Dr. Marguerite P. Barnett in Sarasota Fl. Or does anyone know any > doc's in Chicago, Ind. area's. I sure hope this email gets out there.> Thanks for your help > > > > ________________________________> From: Sandy <dusty.com@...>> > Cc: Sandy <dusty.com@...>> Sent: Fri, January 21, 2011 2:46:54 PM> Subject: - capsules and seromas> >  >  > Capsules Left Behind >  > Chemical Breath > It smelled like paint thinner coming > up through my lungs 24/7 >  > After Capsule Removal > I faintly smelled chemicals >  > Than the chemical odor inhanced as time went by> The odor of paint thinner surfaced again>  > My doctor ordered an ultra sound test> Thats when they found a seroma in my left breast>  > First Seroma Removal>  > My original surgeon removed my seroma> and ripped out my drains like you were pulling > the cord on an old lawn mower to get it started>  >       > I let out a scream >  I now have numbness and pain in my left breast>  > After First Seroma Removal> Within a week I faintly smelled chemicals again>  > Chemical Breath > As time went by the chemical odor inhanced > I smelled the chemicals up through my lungs 24/7 >  > My doctor ordered another ultra sound test> The test revealed another seroma but > not as large as the first one>   > My original surgeon who put the implants in > insisted if he removes my2nd seroma the > stakes were high I would have a stroke>  > Second Seroma Removal > Doctor Kolb removed seroma #2> I experienced no pain through the whole process >  > Recent mammogram and ultra sound test>  No Seroma >  > Capsule and Seroma Removal> Dr. Kolb came to my rescue twice > To fix my original surgeons work>  >  NO STROKE>   >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Hi , Nice to meet you! If you ever want to talk email me and we can exchange numbers. Before I found this support group and all the information on the web I felt like I was all alone in a big black abyss. I literally started crying when I found and read the stories on myimplantstory.com I couldn't believe how many others were out there in the same situation. I wonder how many more years it will take before this is commonly acknowledged. I just saw Dr. Delacruz from West Bloomfield, MI on the support group surgeon's list. Anyone have any feedback on her? The plastic surgeon that did my implants doesn't think that implants can be associated with Human Adjuvant or ALCL Lymphoma. I hesitate in having someone do the explant that doesn't understand the association because it sounds like I have to make sure a total capsulectomy and draining of contaminated fluid is done? From: "@..." <egrlinda@...> Sent: Thu, February 17, 2011 8:33:15 PMSubject: Re: Re: - capsules and seromas Thanks so much for your reply, I am from New Buffalo Michigan, we are both lost here, I certainly no no doc's in area either. o From: Inbody <inbo5599@...> Sent: Thu, February 17, 2011 7:22:39 PMSubject: Re: Re: - capsules and seromas Does anyone know of experienced doc around Grand Rapids, Michigan? Not doing well. MRI showed fluid around breast both sides that should be biopsed for ALCL Lymphoma. Also, working with neurologist on diagnosis for Human Adjuvant. ANA came back high and getting lumbar puncture next week. Having seizures regularly. Thanks! From: bebe444girl <moodynomad@...> Sent: Thu, February 17, 2011 5:41:29 PMSubject: Re: - capsules and seromas Hi - so i spoke with a girl on the phone today who doesn't get on the computer much and lives in FLA. She used dr barnett and said she was very thorough. She did a lolipop incision and removed every bit of the capsule (which was dark and thick she said). so, i'd never heard of her before but since i got that info i figured maybe it was supposed to be shared with you so sorry you are so sick.healing wishes, ~bev in Ca>> Hi Sandy, I just picked your email because I am not sure how this works?? I  > joined Early jan 2011, because I got so sick, and i sent 1 email to the saline > support group but never heard back from anyone. So I just kept reading untill > now when I would like to ask a question to the girls in this group have any of > you used Dr. Marguerite P. Barnett in Sarasota Fl. Or does anyone know any > doc's in Chicago, Ind. area's. I sure hope this email gets out there.> Thanks for your help > > > > ________________________________> From: Sandy <dusty.com@...>> > Cc: Sandy <dusty.com@...>> Sent: Fri, January 21, 2011 2:46:54 PM> Subject: - capsules and seromas> >  >  > Capsules Left Behind >  > Chemical Breath > It smelled like paint thinner coming > up through my lungs 24/7 >  > After Capsule Removal > I faintly smelled chemicals >  > Than the chemical odor inhanced as time went by> The odor of paint thinner surfaced again>  > My doctor ordered an ultra sound test> Thats when they found a seroma in my left breast>  > First Seroma Removal>  > My original surgeon removed my seroma> and ripped out my drains like you were pulling > the cord on an old lawn mower to get it started>  >       > I let out a scream >  I now have numbness and pain in my left breast>  > After First Seroma Removal> Within a week I faintly smelled chemicals again>  > Chemical Breath > As time went by the chemical odor inhanced > I smelled the chemicals up through my lungs 24/7 >  > My doctor ordered another ultra sound test> The test revealed another seroma but > not as large as the first one>   > My original surgeon who put the implants in > insisted if he removes my2nd seroma the > stakes were high I would have a stroke>  > Second Seroma Removal > Doctor Kolb removed seroma #2> I experienced no pain through the whole process >  > Recent mammogram and ultra sound test>  No Seroma >  > Capsule and Seroma Removal> Dr. Kolb came to my rescue twice > To fix my original surgeons work>  >  NO STROKE>   >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 ... I had some of the symptoms you describe also unfortunately, from my silicone implants.. If you can't find a surgeon close enough to you, I would suggest going to: www.aaem.com website and making a few calls if you find a local doctor there....this doc should understand what you're up against. Hopefully he/she can recommend a surgeon and then help you recover from this poisoning. I so wish you the best of luck. Another site that might be helpful for finding a holistic practioner: http://www.holisticmedicine.org/displaycommon.cfm?an=1 & subarticlenbr=118 Hugs, There would be nothing to frighten you if you refused to be afraid. Gandhi From: Inbody <inbo5599@...> Sent: Thu, February 17, 2011 7:22:39 PMSubject: Re: Re: - capsules and seromas Does anyone know of experienced doc around Grand Rapids, Michigan? Not doing well. MRI showed fluid around breast both sides that should be biopsed for ALCL Lymphoma. Also, working with neurologist on diagnosis for Human Adjuvant. ANA came back high and getting lumbar puncture next week. Having seizures regularly. Thanks! From: bebe444girl <moodynomad@...> Sent: Thu, February 17, 2011 5:41:29 PMSubject: Re: - capsules and seromas Hi - so i spoke with a girl on the phone today who doesn't get on the computer much and lives in FLA. She used dr barnett and said she was very thorough. She did a lolipop incision and removed every bit of the capsule (which was dark and thick she said). so, i'd never heard of her before but since i got that info i figured maybe it was supposed to be shared with you so sorry you are so sick.healing wishes, ~bev in Ca>> Hi Sandy, I just picked your email because I am not sure how this works?? I  > joined Early jan 2011, because I got so sick, and i sent 1 email to the saline > support group but never heard back from anyone. So I just kept reading untill > now when I would like to ask a question to the girls in this group have any of > you used Dr. Marguerite P. Barnett in Sarasota Fl. Or does anyone know any > doc's in Chicago, Ind. area's. I sure hope this email gets out there.> Thanks for your help > > > > ________________________________> From: Sandy <dusty.com@...>> > Cc: Sandy <dusty.com@...>> Sent: Fri, January 21, 2011 2:46:54 PM> Subject: - capsules and seromas> >  >  > Capsules Left Behind >  > Chemical Breath > It smelled like paint thinner coming > up through my lungs 24/7 >  > After Capsule Removal > I faintly smelled chemicals >  > Than the chemical odor inhanced as time went by> The odor of paint thinner surfaced again>  > My doctor ordered an ultra sound test> Thats when they found a seroma in my left breast>  > First Seroma Removal>  > My original surgeon removed my seroma> and ripped out my drains like you were pulling > the cord on an old lawn mower to get it started>  >       > I let out a scream >  I now have numbness and pain in my left breast>  > After First Seroma Removal> Within a week I faintly smelled chemicals again>  > Chemical Breath > As time went by the chemical odor inhanced > I smelled the chemicals up through my lungs 24/7 >  > My doctor ordered another ultra sound test> The test revealed another seroma but > not as large as the first one>   > My original surgeon who put the implants in > insisted if he removes my2nd seroma the > stakes were high I would have a stroke>  > Second Seroma Removal > Doctor Kolb removed seroma #2> I experienced no pain through the whole process >  > Recent mammogram and ultra sound test>  No Seroma >  > Capsule and Seroma Removal> Dr. Kolb came to my rescue twice > To fix my original surgeons work>  >  NO STROKE>   >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Thanks for the info . I appreciate it. Hugs, From: Natural Medicine <natmedgal@...> Sent: Thu, February 17, 2011 9:32:54 PMSubject: Re: Re: - capsules and seromas ... I had some of the symptoms you describe also unfortunately, from my silicone implants.. If you can't find a surgeon close enough to you, I would suggest going to: www.aaem.com website and making a few calls if you find a local doctor there....this doc should understand what you're up against. Hopefully he/she can recommend a surgeon and then help you recover from this poisoning. I so wish you the best of luck. Another site that might be helpful for finding a holistic practioner: http://www.holisticmedicine.org/displaycommon.cfm?an=1 & subarticlenbr=118 Hugs, There would be nothing to frighten you if you refused to be afraid. Gandhi From: Inbody <inbo5599@...> Sent: Thu, February 17, 2011 7:22:39 PMSubject: Re: Re: - capsules and seromas Does anyone know of experienced doc around Grand Rapids, Michigan? Not doing well. MRI showed fluid around breast both sides that should be biopsed for ALCL Lymphoma. Also, working with neurologist on diagnosis for Human Adjuvant. ANA came back high and getting lumbar puncture next week. Having seizures regularly. Thanks! From: bebe444girl <moodynomad@...> Sent: Thu, February 17, 2011 5:41:29 PMSubject: Re: - capsules and seromas Hi - so i spoke with a girl on the phone today who doesn't get on the computer much and lives in FLA. She used dr barnett and said she was very thorough. She did a lolipop incision and removed every bit of the capsule (which was dark and thick she said). so, i'd never heard of her before but since i got that info i figured maybe it was supposed to be shared with you so sorry you are so sick.healing wishes, ~bev in Ca>> Hi Sandy, I just picked your email because I am not sure how this works?? I  > joined Early jan 2011, because I got so sick, and i sent 1 email to the saline > support group but never heard back from anyone. So I just kept reading untill > now when I would like to ask a question to the girls in this group have any of > you used Dr. Marguerite P. Barnett in Sarasota Fl. Or does anyone know any > doc's in Chicago, Ind. area's. I sure hope this email gets out there.> Thanks for your help > > > > ________________________________> From: Sandy <dusty.com@...>> > Cc: Sandy <dusty.com@...>> Sent: Fri, January 21, 2011 2:46:54 PM> Subject: - capsules and seromas> >  >  > Capsules Left Behind >  > Chemical Breath > It smelled like paint thinner coming > up through my lungs 24/7 >  > After Capsule Removal > I faintly smelled chemicals >  > Than the chemical odor inhanced as time went by> The odor of paint thinner surfaced again>  > My doctor ordered an ultra sound test> Thats when they found a seroma in my left breast>  > First Seroma Removal>  > My original surgeon removed my seroma> and ripped out my drains like you were pulling > the cord on an old lawn mower to get it started>  >       > I let out a scream >  I now have numbness and pain in my left breast>  > After First Seroma Removal> Within a week I faintly smelled chemicals again>  > Chemical Breath > As time went by the chemical odor inhanced > I smelled the chemicals up through my lungs 24/7 >  > My doctor ordered another ultra sound test> The test revealed another seroma but > not as large as the first one>   > My original surgeon who put the implants in > insisted if he removes my2nd seroma the > stakes were high I would have a stroke>  > Second Seroma Removal > Doctor Kolb removed seroma #2> I experienced no pain through the whole process >  > Recent mammogram and ultra sound test>  No Seroma >  > Capsule and Seroma Removal> Dr. Kolb came to my rescue twice > To fix my original surgeons work>  >  NO STROKE>   >  > Quote Link to comment Share on other sites More sharing options...
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