Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 Carol and Rob I was given Nitro patches to try but stopped using them after 3 days because it made my dizzy ness so much more pronounced. This was many months ago before we really noticed that my BP, which at times was very high, was now getting very low`especially with standing.At the time I did`nt think it was helping and certainly would`nt try it now. Thanks for your concern. Love , Marg Manson cblanger49 wrote: Aletta,You recently suggested that a Nitro spray might help Marg's chest pain. Although this might be true, nitro should be used only with great caution on MSA patients. It has the effect of drastically lowering the blood pressure, and in a person with already compromised bp regulation and orthostatic hypotension, it could cause pressure to bbecome too low and the heart to fail. Rob and I heard a horror story about this at the MSA conference in Cleveland a year and a half ago -- the MSA patient died after being given nitro. So, use only with great care.Carol & RobLexington, MA> >> > > Bill> > >> > > In the short time I`ve been with this group I have really come to see> > > you as a very valuable resource of information.At present I only have> > > a possible dx of SDS but in any event I do experience daily severe> > > chest pain which has been well investigated and I can only assume it> > > to be part of my illness.My problem is with medication. I have tried> > > T3`s with some relief,Neurotin, with littlehelp and now my GP wants me> > > to try Morphine-She knows nothing about MSA and will be learning along> > > side me -I would appreciate your expanding on the advice you recently> > > gave on the dangers of pain meds for people with Autonomic nervous> > > system problems.Are there any safe ones ? Thanks for staying with the> > > group and for taking the time to help.> > >> > > Marg Manson> > >> > >> >> >> >If you do not wish to belong to shydrager, you may> >unsubscribe by sending a blank email to> >> >shydrager-unsubscribe@y...> >> >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 I only said that if you take it out of context. My suggestion was to have a cardiologist check it out. Nitro requires a prescription, you can't just get it. My mother is alive thanks to nitro, but her problem is congestive heart disease (complcated by diabetes). Because my problem is not directly heart related (just Tachycardia/Arrythmia CNS related) it would aggrevate. I was happy to have the stress test and echogram last year to prove that my heart could take the strain it is under with days of 125 beat per minute with drops to forty and skipped beats, that's where my angina pains com from. Just because you have MSA doesn't mean you can't also have another (co-morbid) heart condition, then it's a doctor's call which treatment takes precedence. Even after having a heart attack, I've never taken anything for it. Does freak you out those chest pains, always wonder, is this it? I'm feeling defensive about the whole drug thing. I shouldn't have to even say this. For the record, from the time I decided to stop taking my seizure meds (so I could have a baby) at age 23 until 2 years ago I did not take as much as an aspirin (including childbirth, one at 11 lb - breech, and another at 10 lb), with exception of surgeries. I rarely have as much as one drink per week, got drunk the first time at age 42, smoked briefly before age 23 and started again in frustration three years ago. I've never had a soft drink in the house and only cook from scratch. There came a time that I had to choose between being a non-functional human being curled up in a permanent fetal position, propped up on the couch drooling, or take a risk or two and seen how much living I still had in me. I made my choice, with considerable help from some very human doctors, and have myself monitored and assessed. Not only did I not have the luxury of being taken care of, but it is not in my character to take anything lying down.LOL I was able to do things today I have not done in over three years, and some other things are still lousy as ever. Today I could entertain the optimism that perhaps there is after all the slight possibility I could again earn an income, haven't figured out how, but it beats the pants off imagining your funeral and how your kids will cope without even one parent to help them. Tonight I laughed on the phone with my daughter, I could clearly hear every word and the sweet melodic voice I remember. One man's cure is another man's poison - I think we all know that. I'm not telling you this is a triumph, let's face it it is dumb luck, there is a whole list of stuff that did me nothing but harm, just in the last year. I do hope that the very fact that these meds of all things work so well gives some doctor a better handle on how to proceed, I'm not dumb enough to think it is over. At 5/29/02 07:58 PM Wednesday, you wrote: Aletta, You recently suggested that a Nitro spray might help Marg's chest pain. Although this might be true, nitro should be used only with great caution on MSA patients. It has the effect of drastically lowering the blood pressure, and in a person with already compromised bp regulation and orthostatic hypotension, it could cause pressure to bbecome too low and the heart to fail. Rob and I heard a horror story about this at the MSA conference in Cleveland a year and a half ago -- the MSA patient died after being given nitro. So, use only with great care. Carol & Rob Lexington, MA > > > > > Bill > > > > > > In the short time I`ve been with this group I have really come to see > > > you as a very valuable resource of information.At present I only have > > > a possible dx of SDS but in any event I do experience daily severe > > > chest pain which has been well investigated and I can only assume it > > > to be part of my illness.My problem is with medication. I have tried > > > T3`s with some relief,Neurotin, with littlehelp and now my GP wants me > > > to try Morphine-She knows nothing about MSA and will be learning along > > > side me -I would appreciate your expanding on the advice you recently > > > gave on the dangers of pain meds for people with Autonomic nervous > > > system problems.Are there any safe ones ? Thanks for staying with the > > > group and for taking the time to help. > > > > > > Marg Manson > > > > > > > > > > > >If you do not wish to belong to shydrager, you may > >unsubscribe by sending a blank email to > > > >shydrager-unsubscribe@y... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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