Re: Re: from the guinea pig's desk

[Guest guest]

At Saturday 6/8/02 12:26 AM, you wrote:

Aletta,

I am so glad that you were able to see the doctor. I am also glad

that you found a medication that helps you. Is your daughter doing

better that she is able to come and see you?

Yep, lots better. She had a seizure last summer and hit her head on

concrete, nasty concussion kept her off wrk for seven months. Very

hard on her financially. Life has been hard enough on her (8 foster

homes, long trial testifying against her biological father - seven years

in prison). She was just putting her life in order, moved closer to

us and then the seizures started.

My other daughter Koo, (I am her biological mother), has trigeminal

neuralgia, but neurontin has kept it in check.

I am sorry she also

suffers from neurological problems. I hope that you enjoy your time

together. Time is too short not to.

I plan to, you're right, time is always going to be too short.

What is the

temperature up there

to need a blanket?

In the 70's, it's me not the weather. Just took a hot bath, and

already my hands and feet are like blocks of ice. So now I'm on a

hot cocoa. I'm shaking (I don't shiver, straigt to shudder and

shake, had gooseflesh all day)

I am in Georgia and

the temperatures are in the

90's and very humid. I would die in a blanket!

It was not such a bad day, got to walk, found some lovely porcelain in

the Sally Ann Thrift shop (3 cake plates, cookie platter and a tea

beaker). I've slowly collected some very impressive porcelain, all

of it mismatches very whimsically. So tonight we had tea, using my

new treasures. Tea ceremonies of any sort are healing, I

think.

Hope today is better

for you!

Blowing feathery clouds of karma your way.

God bless,

Belinda

> Saw the doctor today, very pleased with the buscopan clearing up a

number

> of symptoms. Extending my script for another three

months. Having

> bloodwork done on Monday. If my iron levels are still

excessive,

or RBC

> high he will consider ordering a phlebotomy. Still feels

unreal to

have

> him refer to Shy-Drager as definite, but I need to hear it.

This

is the

> first time I actually heard his voice, I've always lip-read

him,

never

> heard him (not in memory), completely different, and I could 'hear'

him

> even when he turned away. I'm also able to idetify far-away

sound

(no

> longer a noise blur).

>

> My oldest daughter Shari is coming over tomorrow, haven't seen her

for

> almost a year. She's still plagued by neurological

problems. At

least

> she's able to work again. I often worry that all of us having

neurological

> problems is linked, and with her I know it can't be hereditary (I'm

not her

> biological mother). I've heard molds and toxins can trigger

neurological

> problems. Also in the J. Fox special they mentioned

the

set of

> Family Ties seemed to produce a nest of Parkinsons, and other such

clusters

> have also been identified. Does anyone have specific

literature or

links

> for this.

>

> Thanks to the vertigo being at bay I can walk much better, I've

extended my

> walks to about eight blocks. I've also been able to do

exercises

standing

> up (it's been months). According to the doctor, if I'm not

experiencing

> any negative effects it is completely safe to take the buscopan for

an

> extended period of time. It may not be a standard treatment,

but

I'm

> terribly pleased with how well it works for me. Quality of

life is

everything.

>

> He did not think ablation was the way to go for the facio/cranial

pain. He

> will try to help me get the Sage Mouth Moisturizer, and the

Citrucel -

> which has still not been possible. My mother in law could not

find

any in

> Toronto either. The Glaxxo Welcome people were not helpful at

all. My

> doctor will call them and see if he can get me some (maybe they

just don't

> want to deal with the great unwashed). He signed a request for

a

liguid

> food allowance, but we'll see if that actually cmes through - would

be nice.

>

> Aside from that I've been sitting wrapped in blankets on a summer's

day -

> limbs blue and stiff. Ah well, one thing at a time. Optimistic

maybe, but

> seeing any improvement is possible, gives me the incentive to beat

this

> dragon, no matter how bad the odds.

>

> aletta mes

> vancouver, bc Canada

> web:

http://aletta.0catch.com

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