RE: has anyone run into these symptoms

[Guest guest]

:

I would at least report it to his doctor by phone and see if he feels a need to see him. I know many here have the feeling of having pressure around the head. My husband feels he has a hat on. His also had the clammy feeling , hot one moment where he wants his clothes off and then the next cold to where he wants everything back on. Your father feeling of suffocating could be because he had a panic attack, but it could be something else. I know I'd at less call the doctor, and let them know and see what he has to say. I think everyone would rest better if they did .

Vera

******************************

From: "ladybug64dd" <diggle@t...>

Date: Sun Feb 17, 2002 9:21 pm

Subject: has anyone run into these symptoms

My father has msa, diagnosed in 1996. My parents dont have access to

a computer so I do this for them. Something unusual happened to my

dad on Friday night and I wonder if anyone out there has experienced

this and if so what did you do?

My father(Arno) woke up in the night complaining that he was hot,

burning up. My mom (Trudy) said he didnt feel warm but was actually

clammy to touch. So they got up my dad got a drink and went to the

washroom. His BP sitting was 80/55 pulse 92. Thermometer was not

working so no temp. They couldnt get his standing BP because he was

to dizzy to stand long enough to get a reading. He said that he had

a headache and it felt like he was suffocating and felt like there

was a steel band around his head. My mom is really worried as we all

are. They live in a small town (pop.350) nearest medical facilities

are a 5 hour drive or the medi vac. Help!! It feels like my dad has

taken a turn for the worse and they are so isolated up there.

[Guest guest]

I have had this many times. I am 43 year old. When that hat BP and HR

incidence with me , people go thru a fast list of ?'s

1)did i take my meds?

Sometimes I fall asleep and someone failed to wake me for the meds:)

2) How many gatorades did I drink that day?

OR

this is while they are moving and situating me into another position

depending if I was sitting , standing, or laying at the moment.

3) also, it is getting to the point that UTI's are becoming a problem. so

look for other behaviors that aren't his norm. I am not saying everything is

due to UTI'S

For sleeping

1.) Ask the doctor about

a.elevation of head and/or feet/legs.

b. tell the doc about the steelband feeling around ur dad's head, the

BP/HR readings BEFORE he went to the bathroom, and the feeling of excessive

heat to him but not to ur mom.

2) Consider a bedside comode right next to ther bed. Walking to a bathroom

when ur dizzy oir lightheaded increases the chance of falling and being

confide to a bed.

I have my commode facing my bedside next to my bedtable. I also have a

plastic gripper sheet under the commode and table. I don't want to stain my

lite pink carpeting .

3.) The use of a thin, white hospital blankets on his bedas oppose to heavy

coverings may help his feeling of being over heated. I put pillows (body

pillow and 4 head size pillows -2 stacked, 1 ,then 1) ontop of the body

pillow to help prevent me from rolling my upper body off the wedge pillow. I

leave the sheet and blanket untucked over the pillows. ASK ur dad though,

because he may like it differently than me. I get overheated if I end up

bundled in my blanket like a little baby.

nancy m.

ladybug64dd wrote:

> My father has msa, diagnosed in 1996. My parents dont have access to

> a computer so I do this for them. Something unusual happened to my

> dad on Friday night and I wonder if anyone out there has experienced

> this and if so what did you do?

> My father(Arno) woke up in the night complaining that he was hot,

> burning up. My mom (Trudy) said he didnt feel warm but was actually

> clammy to touch. So they got up my dad got a drink and went to the

> washroom. His BP sitting was 80/55 pulse 92. Thermometer was not

> working so no temp. They couldnt get his standing BP because he was

> to dizzy to stand long enough to get a reading. He said that he had

> a headache and it felt like he was suffocating and felt like there

> was a steel band around his head. My mom is really worried as we all

> are. They live in a small town (pop.350) nearest medical facilities

> are a 5 hour drive or the medi vac. Help!! It feels like my dad has

> taken a turn for the worse and they are so isolated up there.

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

[Guest guest]

HI ANYONE,

Anyone had eegs of their arms and legs and know the excrutiating pain

and the humilation you feel when you cannot get your thumb to move no matter

how many electrical volts you feel?????

Please respond, i am desperatefor answers on this.

Poconocrazy

Re: has anyone run into these symptoms

> I have had this many times. I am 43 year old. When that hat BP and HR

> incidence with me , people go thru a fast list of ?'s

> 1)did i take my meds?

> Sometimes I fall asleep and someone failed to wake me for the meds:)

> 2) How many gatorades did I drink that day?

> OR

> this is while they are moving and situating me into another position

> depending if I was sitting , standing, or laying at the moment.

> 3) also, it is getting to the point that UTI's are becoming a problem. so

> look for other behaviors that aren't his norm. I am not saying everything

is

> due to UTI'S

>

> For sleeping

>

> 1.) Ask the doctor about

> a.elevation of head and/or feet/legs.

> b. tell the doc about the steelband feeling around ur dad's head, the

> BP/HR readings BEFORE he went to the bathroom, and the feeling of

excessive

> heat to him but not to ur mom.

> 2) Consider a bedside comode right next to ther bed. Walking to a

bathroom

> when ur dizzy oir lightheaded increases the chance of falling and being

> confide to a bed.

> I have my commode facing my bedside next to my bedtable. I also have a

> plastic gripper sheet under the commode and table. I don't want to stain

my

> lite pink carpeting .

> 3.) The use of a thin, white hospital blankets on his bedas oppose to

heavy

> coverings may help his feeling of being over heated. I put pillows (body

> pillow and 4 head size pillows -2 stacked, 1 ,then 1) ontop of the body

> pillow to help prevent me from rolling my upper body off the wedge pillow.

I

> leave the sheet and blanket untucked over the pillows. ASK ur dad though,

> because he may like it differently than me. I get overheated if I end up

> bundled in my blanket like a little baby.

>

> nancy m.

> ladybug64dd wrote:

>

> > My father has msa, diagnosed in 1996. My parents dont have access to

> > a computer so I do this for them. Something unusual happened to my

> > dad on Friday night and I wonder if anyone out there has experienced

> > this and if so what did you do?

> > My father(Arno) woke up in the night complaining that he was hot,

> > burning up. My mom (Trudy) said he didnt feel warm but was actually

> > clammy to touch. So they got up my dad got a drink and went to the

> > washroom. His BP sitting was 80/55 pulse 92. Thermometer was not

> > working so no temp. They couldnt get his standing BP because he was

> > to dizzy to stand long enough to get a reading. He said that he had

> > a headache and it felt like he was suffocating and felt like there

> > was a steel band around his head. My mom is really worried as we all

> > are. They live in a small town (pop.350) nearest medical facilities

> > are a 5 hour drive or the medi vac. Help!! It feels like my dad has

> > taken a turn for the worse and they are so isolated up there.

> >

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe

> >

> >

> >

> >

[Guest guest]

Hello ,

Yes, when I was in the hospital in August 2001, that

was one of the test performed on me. The tech did the

test on me, then himself, then went to get neuro. I

was given a high voltage and nothing happened. I

guess it is one of the " strange " things that happen.

wanda

--- karen darcy drcfamily@...> wrote:

> HI ANYONE,

> Anyone had eegs of their arms and legs and know

> the excrutiating pain

> and the humilation you feel when you cannot get your

> thumb to move no matter

> how many electrical volts you feel?????

> Please respond, i am desperatefor answers on

> this.

> Poconocrazy

>

__________________________________________________

[Guest guest]

Hello ,

Yes, when I was in the hospital in August 2001, that

was one of the test performed on me. The tech did the

test on me, then himself, then went to get neuro. I

was given a high voltage and nothing happened. I

guess it is one of the " strange " things that happen.

wanda

--- karen darcy drcfamily@...> wrote:

> HI ANYONE,

> Anyone had eegs of their arms and legs and know

> the excrutiating pain

> and the humilation you feel when you cannot get your

> thumb to move no matter

> how many electrical volts you feel?????

> Please respond, i am desperatefor answers on

> this.

> Poconocrazy

>

__________________________________________________

[Guest guest]

Hello ,

Yes, when I was in the hospital in August 2001, that

was one of the test performed on me. The tech did the

test on me, then himself, then went to get neuro. I

was given a high voltage and nothing happened. I

guess it is one of the " strange " things that happen.

wanda

--- karen darcy drcfamily@...> wrote:

> HI ANYONE,

> Anyone had eegs of their arms and legs and know

> the excrutiating pain

> and the humilation you feel when you cannot get your

> thumb to move no matter

> how many electrical volts you feel?????

> Please respond, i am desperatefor answers on

> this.

> Poconocrazy

>

__________________________________________________

[Guest guest]

Hi lawanda,

Thanks for writing back. After the tests did you

get an awful itch and rash the next day?

Also, the tests to my left arm brought me to tears with the pain from

the ' STUN GUN'

Today it is very sore/ numb all the way up to my shoulder.

What gives???????????????

Re: has anyone run into these symptoms

> Hello ,

>

> Yes, when I was in the hospital in August 2001, that

> was one of the test performed on me. The tech did the

> test on me, then himself, then went to get neuro. I

> was given a high voltage and nothing happened. I

> guess it is one of the " strange " things that happen.

>

> wanda

> --- karen darcy drcfamily@...> wrote:

> > HI ANYONE,

> > Anyone had eegs of their arms and legs and know

> > the excrutiating pain

> > and the humilation you feel when you cannot get your

> > thumb to move no matter

> > how many electrical volts you feel?????

> > Please respond, i am desperatefor answers on

> > this.

> > Poconocrazy

> >

>

> __________________________________________________

>

[Guest guest]

Hi lawanda,

Thanks for writing back. After the tests did you

get an awful itch and rash the next day?

Also, the tests to my left arm brought me to tears with the pain from

the ' STUN GUN'

Today it is very sore/ numb all the way up to my shoulder.

What gives???????????????

Re: has anyone run into these symptoms

> Hello ,

>

> Yes, when I was in the hospital in August 2001, that

> was one of the test performed on me. The tech did the

> test on me, then himself, then went to get neuro. I

> was given a high voltage and nothing happened. I

> guess it is one of the " strange " things that happen.

>

> wanda

> --- karen darcy drcfamily@...> wrote:

> > HI ANYONE,

> > Anyone had eegs of their arms and legs and know

> > the excrutiating pain

> > and the humilation you feel when you cannot get your

> > thumb to move no matter

> > how many electrical volts you feel?????

> > Please respond, i am desperatefor answers on

> > this.

> > Poconocrazy

> >

>

> __________________________________________________

>

[Guest guest]

hello karen,

no, i did not have the itching, it stayed numb to the

touch, but hurt inside. i did have a red spot from

where they put those electrobe things. all the neuro

told me at the time was that my nerves were

interupted. it was not until 3 days and 3 or 4 tests

later that he gave me the dx and said it was all

connected somewhere in the brain. sorry i could not

be more helpful.

wanda

--- karen darcy drcfamily@...> wrote:

> Hi lawanda,

> Thanks for writing back. After the tests did you

> get an awful itch and rash the next day?

> Also, the tests to my left arm brought me to

> tears with the pain from

> the ' STUN GUN'

> Today it is very sore/ numb all the way up to my

> shoulder.

> What gives???????????????

>

> Re: has anyone run into these

> symptoms

>

>

> > Hello ,

> >

> > Yes, when I was in the hospital in August 2001,

> that

> > was one of the test performed on me. The tech did

> the

> > test on me, then himself, then went to get neuro.

> I

> > was given a high voltage and nothing happened. I

> > guess it is one of the " strange " things that

> happen.

> >

> > wanda

> > --- karen darcy drcfamily@...> wrote:

> > > HI ANYONE,

> > > Anyone had eegs of their arms and legs and

> know

> > > the excrutiating pain

> > > and the humilation you feel when you cannot get

> your

> > > thumb to move no matter

> > > how many electrical volts you feel?????

> > > Please respond, i am desperatefor answers on

> > > this.

> > > Poconocrazy

> > >

> >

> > __________________________________________________

> >

[Guest guest]

--, I am not an expert by any means but are you talking about

EMG and not EEG? I believe EEG is only done on your brain. I have had

both but have not had any humilation with either. I really didnt feel

the EMG either so it wasn't painful to me.

Belinda

- In shydrager@y..., " karen darcy " wrote:

> HI ANYONE,

> Anyone had eegs of their arms and legs and know the

excrutiating pain

> and the humilation you feel when you cannot get your thumb to move

no matter

> how many electrical volts you feel?????

> Please respond, i am desperatefor answers on this.

> Poconocrazy

> Re: has anyone run into these symptoms

>

>

> > I have had this many times. I am 43 year old. When that hat BP

and HR

> > incidence with me , people go thru a fast list of ?'s

> > 1)did i take my meds?

> > Sometimes I fall asleep and someone failed to wake me for the

meds:)

> > 2) How many gatorades did I drink that day?

> > OR

> > this is while they are moving and situating me into another

position

> > depending if I was sitting , standing, or laying at the moment.

> > 3) also, it is getting to the point that UTI's are becoming a

problem. so

> > look for other behaviors that aren't his norm. I am not saying

everything

> is

> > due to UTI'S

> >

> > For sleeping

> >

> > 1.) Ask the doctor about

> > a.elevation of head and/or feet/legs.

> > b. tell the doc about the steelband feeling around ur dad's

head, the

> > BP/HR readings BEFORE he went to the bathroom, and the feeling of

> excessive

> > heat to him but not to ur mom.

> > 2) Consider a bedside comode right next to ther bed. Walking to a

> bathroom

> > when ur dizzy oir lightheaded increases the chance of falling and

being

> > confide to a bed.

> > I have my commode facing my bedside next to my bedtable. I also

have a

> > plastic gripper sheet under the commode and table. I don't want

to stain

> my

> > lite pink carpeting .

> > 3.) The use of a thin, white hospital blankets on his bedas

oppose to

> heavy

> > coverings may help his feeling of being over heated. I put

pillows (body

> > pillow and 4 head size pillows -2 stacked, 1 ,then 1) ontop of

the body

> > pillow to help prevent me from rolling my upper body off the

wedge pillow.

> I

> > leave the sheet and blanket untucked over the pillows. ASK ur

dad though,

> > because he may like it differently than me. I get overheated if

I end up

> > bundled in my blanket like a little baby.

> >

> > nancy m.

> > ladybug64dd wrote:

> >

> > > My father has msa, diagnosed in 1996. My parents dont have

access to

> > > a computer so I do this for them. Something unusual happened to

my

> > > dad on Friday night and I wonder if anyone out there has

experienced

> > > this and if so what did you do?

> > > My father(Arno) woke up in the night complaining that he was

hot,

> > > burning up. My mom (Trudy) said he didnt feel warm but was

actually

> > > clammy to touch. So they got up my dad got a drink and went

to the

> > > washroom. His BP sitting was 80/55 pulse 92. Thermometer was

not

> > > working so no temp. They couldnt get his standing BP because

he was

> > > to dizzy to stand long enough to get a reading. He said that

he had

> > > a headache and it felt like he was suffocating and felt like

there

> > > was a steel band around his head. My mom is really worried as

we all

> > > are. They live in a small town (pop.350) nearest medical

facilities

> > > are a 5 hour drive or the medi vac. Help!! It feels like my

dad has

> > > taken a turn for the worse and they are so isolated up there.

> > >

> > >

> > > If you do not wish to belong to shydrager, you may

> > > unsubscribe by sending a blank email to

> > >

> > > shydrager-unsubscribe@y...

> > >

> > >

> > >

> > >

[Guest guest]

--, I am not an expert by any means but are you talking about

EMG and not EEG? I believe EEG is only done on your brain. I have had

both but have not had any humilation with either. I really didnt feel

the EMG either so it wasn't painful to me.

Belinda

- In shydrager@y..., " karen darcy " wrote:

> HI ANYONE,

> Anyone had eegs of their arms and legs and know the

excrutiating pain

> and the humilation you feel when you cannot get your thumb to move

no matter

> how many electrical volts you feel?????

> Please respond, i am desperatefor answers on this.

> Poconocrazy

> Re: has anyone run into these symptoms

>

>

> > I have had this many times. I am 43 year old. When that hat BP

and HR

> > incidence with me , people go thru a fast list of ?'s

> > 1)did i take my meds?

> > Sometimes I fall asleep and someone failed to wake me for the

meds:)

> > 2) How many gatorades did I drink that day?

> > OR

> > this is while they are moving and situating me into another

position

> > depending if I was sitting , standing, or laying at the moment.

> > 3) also, it is getting to the point that UTI's are becoming a

problem. so

> > look for other behaviors that aren't his norm. I am not saying

everything

> is

> > due to UTI'S

> >

> > For sleeping

> >

> > 1.) Ask the doctor about

> > a.elevation of head and/or feet/legs.

> > b. tell the doc about the steelband feeling around ur dad's

head, the

> > BP/HR readings BEFORE he went to the bathroom, and the feeling of

> excessive

> > heat to him but not to ur mom.

> > 2) Consider a bedside comode right next to ther bed. Walking to a

> bathroom

> > when ur dizzy oir lightheaded increases the chance of falling and

being

> > confide to a bed.

> > I have my commode facing my bedside next to my bedtable. I also

have a

> > plastic gripper sheet under the commode and table. I don't want

to stain

> my

> > lite pink carpeting .

> > 3.) The use of a thin, white hospital blankets on his bedas

oppose to

> heavy

> > coverings may help his feeling of being over heated. I put

pillows (body

> > pillow and 4 head size pillows -2 stacked, 1 ,then 1) ontop of

the body

> > pillow to help prevent me from rolling my upper body off the

wedge pillow.

> I

> > leave the sheet and blanket untucked over the pillows. ASK ur

dad though,

> > because he may like it differently than me. I get overheated if

I end up

> > bundled in my blanket like a little baby.

> >

> > nancy m.

> > ladybug64dd wrote:

> >

> > > My father has msa, diagnosed in 1996. My parents dont have

access to

> > > a computer so I do this for them. Something unusual happened to

my

> > > dad on Friday night and I wonder if anyone out there has

experienced

> > > this and if so what did you do?

> > > My father(Arno) woke up in the night complaining that he was

hot,

> > > burning up. My mom (Trudy) said he didnt feel warm but was

actually

> > > clammy to touch. So they got up my dad got a drink and went

to the

> > > washroom. His BP sitting was 80/55 pulse 92. Thermometer was

not

> > > working so no temp. They couldnt get his standing BP because

he was

> > > to dizzy to stand long enough to get a reading. He said that

he had

> > > a headache and it felt like he was suffocating and felt like

there

> > > was a steel band around his head. My mom is really worried as

we all

> > > are. They live in a small town (pop.350) nearest medical

facilities

> > > are a 5 hour drive or the medi vac. Help!! It feels like my

dad has

> > > taken a turn for the worse and they are so isolated up there.

> > >

> > >

> > > If you do not wish to belong to shydrager, you may

> > > unsubscribe by sending a blank email to

> > >

> > > shydrager-unsubscribe@y...

> > >

> > >

> > >

> > >

[Guest guest]

--, I am not an expert by any means but are you talking about

EMG and not EEG? I believe EEG is only done on your brain. I have had

both but have not had any humilation with either. I really didnt feel

the EMG either so it wasn't painful to me.

Belinda

- In shydrager@y..., " karen darcy " wrote:

> HI ANYONE,

> Anyone had eegs of their arms and legs and know the

excrutiating pain

> and the humilation you feel when you cannot get your thumb to move

no matter

> how many electrical volts you feel?????

> Please respond, i am desperatefor answers on this.

> Poconocrazy

> Re: has anyone run into these symptoms

>

>

> > I have had this many times. I am 43 year old. When that hat BP

and HR

> > incidence with me , people go thru a fast list of ?'s

> > 1)did i take my meds?

> > Sometimes I fall asleep and someone failed to wake me for the

meds:)

> > 2) How many gatorades did I drink that day?

> > OR

> > this is while they are moving and situating me into another

position

> > depending if I was sitting , standing, or laying at the moment.

> > 3) also, it is getting to the point that UTI's are becoming a

problem. so

> > look for other behaviors that aren't his norm. I am not saying

everything

> is

> > due to UTI'S

> >

> > For sleeping

> >

> > 1.) Ask the doctor about

> > a.elevation of head and/or feet/legs.

> > b. tell the doc about the steelband feeling around ur dad's

head, the

> > BP/HR readings BEFORE he went to the bathroom, and the feeling of

> excessive

> > heat to him but not to ur mom.

> > 2) Consider a bedside comode right next to ther bed. Walking to a

> bathroom

> > when ur dizzy oir lightheaded increases the chance of falling and

being

> > confide to a bed.

> > I have my commode facing my bedside next to my bedtable. I also

have a

> > plastic gripper sheet under the commode and table. I don't want

to stain

> my

> > lite pink carpeting .

> > 3.) The use of a thin, white hospital blankets on his bedas

oppose to

> heavy

> > coverings may help his feeling of being over heated. I put

pillows (body

> > pillow and 4 head size pillows -2 stacked, 1 ,then 1) ontop of

the body

> > pillow to help prevent me from rolling my upper body off the

wedge pillow.

> I

> > leave the sheet and blanket untucked over the pillows. ASK ur

dad though,

> > because he may like it differently than me. I get overheated if

I end up

> > bundled in my blanket like a little baby.

> >

> > nancy m.

> > ladybug64dd wrote:

> >

> > > My father has msa, diagnosed in 1996. My parents dont have

access to

> > > a computer so I do this for them. Something unusual happened to

my

> > > dad on Friday night and I wonder if anyone out there has

experienced

> > > this and if so what did you do?

> > > My father(Arno) woke up in the night complaining that he was

hot,

> > > burning up. My mom (Trudy) said he didnt feel warm but was

actually

> > > clammy to touch. So they got up my dad got a drink and went

to the

> > > washroom. His BP sitting was 80/55 pulse 92. Thermometer was

not

> > > working so no temp. They couldnt get his standing BP because

he was

> > > to dizzy to stand long enough to get a reading. He said that

he had

> > > a headache and it felt like he was suffocating and felt like

there

> > > was a steel band around his head. My mom is really worried as

we all

> > > are. They live in a small town (pop.350) nearest medical

facilities

> > > are a 5 hour drive or the medi vac. Help!! It feels like my

dad has

> > > taken a turn for the worse and they are so isolated up there.

> > >

> > >

> > > If you do not wish to belong to shydrager, you may

> > > unsubscribe by sending a blank email to

> > >

> > > shydrager-unsubscribe@y...

> > >

> > >

> > >

> > >

[Guest guest]

Belinda,

The one I was referring to was the emg. I am assuming

that is what karen was referring to also, since she

said arms and legs. The initals didn't even hit me

until your note. thanks

wanda

--- belnorest Belindastime@...> wrote:

> --, I am not an expert by any means but are you

> talking about

> EMG and not EEG? I believe EEG is only done on your

> brain. I have had

> both but have not had any humilation with either. I

> really didnt feel

> the EMG either so it wasn't painful to me.

> Belinda

>

> - In shydrager@y..., " karen darcy "

> wrote:

> > HI ANYONE,

> > Anyone had eegs of their arms and legs and

> know the

> excrutiating pain

> > and the humilation you feel when you cannot get

> your thumb to move

> no matter

> > how many electrical volts you feel?????

> > Please respond, i am desperatefor answers on

> this.

> > Poconocrazy

> > Re: has anyone run into these

> symptoms

> >

> >

> > > I have had this many times. I am 43 year old.

> When that hat BP

> and HR

> > > incidence with me , people go thru a fast list

> of ?'s

> > > 1)did i take my meds?

> > > Sometimes I fall asleep and someone failed to

> wake me for the

> meds:)

> > > 2) How many gatorades did I drink that day?

> > > OR

> > > this is while they are moving and situating me

> into another

> position

> > > depending if I was sitting , standing, or laying

> at the moment.

> > > 3) also, it is getting to the point that UTI's

> are becoming a

> problem. so

> > > look for other behaviors that aren't his norm.

> I am not saying

> everything

> > is

> > > due to UTI'S

> > >

> > > For sleeping

> > >

> > > 1.) Ask the doctor about

> > > a.elevation of head and/or feet/legs.

> > > b. tell the doc about the steelband feeling

> around ur dad's

> head, the

> > > BP/HR readings BEFORE he went to the bathroom,

> and the feeling of

> > excessive

> > > heat to him but not to ur mom.

> > > 2) Consider a bedside comode right next to ther

> bed. Walking to a

> > bathroom

> > > when ur dizzy oir lightheaded increases the

> chance of falling and

> being

> > > confide to a bed.

> > > I have my commode facing my bedside next to my

> bedtable. I also

> have a

> > > plastic gripper sheet under the commode and

> table. I don't want

> to stain

> > my

> > > lite pink carpeting .

> > > 3.) The use of a thin, white hospital blankets

> on his bedas

> oppose to

> > heavy

> > > coverings may help his feeling of being over

> heated. I put

> pillows (body

> > > pillow and 4 head size pillows -2 stacked, 1

> ,then 1) ontop of

> the body

> > > pillow to help prevent me from rolling my upper

> body off the

> wedge pillow.

> > I

> > > leave the sheet and blanket untucked over the

> pillows. ASK ur

> dad though,

> > > because he may like it differently than me. I

> get overheated if

> I end up

> > > bundled in my blanket like a little baby.

> > >

> > > nancy m.

> > > ladybug64dd wrote:

> > >

> > > > My father has msa, diagnosed in 1996. My

> parents dont have

> access to

> > > > a computer so I do this for them. Something

> unusual happened to

> my

> > > > dad on Friday night and I wonder if anyone out

> there has

> experienced

> > > > this and if so what did you do?

> > > > My father(Arno) woke up in the night

> complaining that he was

> hot,

> > > > burning up. My mom (Trudy) said he didnt feel

> warm but was

> actually

> > > > clammy to touch. So they got up my dad got a

> drink and went

> to the

> > > > washroom. His BP sitting was 80/55 pulse 92.

> Thermometer was

> not

> > > > working so no temp. They couldnt get his

> standing BP because

> he was

> > > > to dizzy to stand long enough to get a

> reading. He said that

> he had

> > > > a headache and it felt like he was suffocating

> and felt like

> there

> > > > was a steel band around his head. My mom is

> really worried as

> we all

> > > > are. They live in a small town (pop.350)

> nearest medical

> facilities

> > > > are a 5 hour drive or the medi vac. Help!! It

> feels like my

> dad has

> > > > taken a turn for the worse and they are so

> isolated up there.

> > > >

> > > >

> > > > If you do not wish to belong to shydrager, you

> may

> > > > unsubscribe by sending a blank email to

> > > >

> > > > shydrager-unsubscribe@y...

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi Belinda,

You are correct. It was late last night and i wrote eeg . The Real name of

the tests are Evoked potentials. The highlighted area in the instruction

sheet also says Electrical stimulation of the upper and lower extremities.

I was referring to the humiliation of the tech getting angry because the

nerves in the hand were not working. she was very impatient.

The pain was related to the continual zapping

although she got no response

Still itching in the poconos,

Thanks,

karen

Re: has anyone run into these symptoms

> >

> >

> > > I have had this many times. I am 43 year old. When that hat BP

> and HR

> > > incidence with me , people go thru a fast list of ?'s

> > > 1)did i take my meds?

> > > Sometimes I fall asleep and someone failed to wake me for the

> meds:)

> > > 2) How many gatorades did I drink that day?

> > > OR

> > > this is while they are moving and situating me into another

> position

> > > depending if I was sitting , standing, or laying at the moment.

> > > 3) also, it is getting to the point that UTI's are becoming a

> problem. so

> > > look for other behaviors that aren't his norm. I am not saying

> everything

> > is

> > > due to UTI'S

> > >

> > > For sleeping

> > >

> > > 1.) Ask the doctor about

> > > a.elevation of head and/or feet/legs.

> > > b. tell the doc about the steelband feeling around ur dad's

> head, the

> > > BP/HR readings BEFORE he went to the bathroom, and the feeling of

> > excessive

> > > heat to him but not to ur mom.

> > > 2) Consider a bedside comode right next to ther bed. Walking to a

> > bathroom

> > > when ur dizzy oir lightheaded increases the chance of falling and

> being

> > > confide to a bed.

> > > I have my commode facing my bedside next to my bedtable. I also

> have a

> > > plastic gripper sheet under the commode and table. I don't want

> to stain

> > my

> > > lite pink carpeting .

> > > 3.) The use of a thin, white hospital blankets on his bedas

> oppose to

> > heavy

> > > coverings may help his feeling of being over heated. I put

> pillows (body

> > > pillow and 4 head size pillows -2 stacked, 1 ,then 1) ontop of

> the body

> > > pillow to help prevent me from rolling my upper body off the

> wedge pillow.

> > I

> > > leave the sheet and blanket untucked over the pillows. ASK ur

> dad though,

> > > because he may like it differently than me. I get overheated if

> I end up

> > > bundled in my blanket like a little baby.

> > >

> > > nancy m.

> > > ladybug64dd wrote:

> > >

> > > > My father has msa, diagnosed in 1996. My parents dont have

> access to

> > > > a computer so I do this for them. Something unusual happened to

> my

> > > > dad on Friday night and I wonder if anyone out there has

> experienced

> > > > this and if so what did you do?

> > > > My father(Arno) woke up in the night complaining that he was

> hot,

> > > > burning up. My mom (Trudy) said he didnt feel warm but was

> actually

> > > > clammy to touch. So they got up my dad got a drink and went

> to the

> > > > washroom. His BP sitting was 80/55 pulse 92. Thermometer was

> not

> > > > working so no temp. They couldnt get his standing BP because

> he was

> > > > to dizzy to stand long enough to get a reading. He said that

> he had

> > > > a headache and it felt like he was suffocating and felt like

> there

> > > > was a steel band around his head. My mom is really worried as

> we all

> > > > are. They live in a small town (pop.350) nearest medical

> facilities

> > > > are a 5 hour drive or the medi vac. Help!! It feels like my

> dad has

> > > > taken a turn for the worse and they are so isolated up there.

> > > >

> > > >

> > > > If you do not wish to belong to shydrager, you may

> > > > unsubscribe by sending a blank email to

> > > >

> > > > shydrager-unsubscribe@y...

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi Belinda,

You are correct. It was late last night and i wrote eeg . The Real name of

the tests are Evoked potentials. The highlighted area in the instruction

sheet also says Electrical stimulation of the upper and lower extremities.

I was referring to the humiliation of the tech getting angry because the

nerves in the hand were not working. she was very impatient.

The pain was related to the continual zapping

although she got no response

Still itching in the poconos,

Thanks,

karen

Re: has anyone run into these symptoms

> >

> >

> > > I have had this many times. I am 43 year old. When that hat BP

> and HR

> > > incidence with me , people go thru a fast list of ?'s

> > > 1)did i take my meds?

> > > Sometimes I fall asleep and someone failed to wake me for the

> meds:)

> > > 2) How many gatorades did I drink that day?

> > > OR

> > > this is while they are moving and situating me into another

> position

> > > depending if I was sitting , standing, or laying at the moment.

> > > 3) also, it is getting to the point that UTI's are becoming a

> problem. so

> > > look for other behaviors that aren't his norm. I am not saying

> everything

> > is

> > > due to UTI'S

> > >

> > > For sleeping

> > >

> > > 1.) Ask the doctor about

> > > a.elevation of head and/or feet/legs.

> > > b. tell the doc about the steelband feeling around ur dad's

> head, the

> > > BP/HR readings BEFORE he went to the bathroom, and the feeling of

> > excessive

> > > heat to him but not to ur mom.

> > > 2) Consider a bedside comode right next to ther bed. Walking to a

> > bathroom

> > > when ur dizzy oir lightheaded increases the chance of falling and

> being

> > > confide to a bed.

> > > I have my commode facing my bedside next to my bedtable. I also

> have a

> > > plastic gripper sheet under the commode and table. I don't want

> to stain

> > my

> > > lite pink carpeting .

> > > 3.) The use of a thin, white hospital blankets on his bedas

> oppose to

> > heavy

> > > coverings may help his feeling of being over heated. I put

> pillows (body

> > > pillow and 4 head size pillows -2 stacked, 1 ,then 1) ontop of

> the body

> > > pillow to help prevent me from rolling my upper body off the

> wedge pillow.

> > I

> > > leave the sheet and blanket untucked over the pillows. ASK ur

> dad though,

> > > because he may like it differently than me. I get overheated if

> I end up

> > > bundled in my blanket like a little baby.

> > >

> > > nancy m.

> > > ladybug64dd wrote:

> > >

> > > > My father has msa, diagnosed in 1996. My parents dont have

> access to

> > > > a computer so I do this for them. Something unusual happened to

> my

> > > > dad on Friday night and I wonder if anyone out there has

> experienced

> > > > this and if so what did you do?

> > > > My father(Arno) woke up in the night complaining that he was

> hot,

> > > > burning up. My mom (Trudy) said he didnt feel warm but was

> actually

> > > > clammy to touch. So they got up my dad got a drink and went

> to the

> > > > washroom. His BP sitting was 80/55 pulse 92. Thermometer was

> not

> > > > working so no temp. They couldnt get his standing BP because

> he was

> > > > to dizzy to stand long enough to get a reading. He said that

> he had

> > > > a headache and it felt like he was suffocating and felt like

> there

> > > > was a steel band around his head. My mom is really worried as

> we all

> > > > are. They live in a small town (pop.350) nearest medical

> facilities

> > > > are a 5 hour drive or the medi vac. Help!! It feels like my

> dad has

> > > > taken a turn for the worse and they are so isolated up there.

> > > >

> > > >

> > > > If you do not wish to belong to shydrager, you may

> > > > unsubscribe by sending a blank email to

> > > >

> > > > shydrager-unsubscribe@y...

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi Belinda,

You are correct. It was late last night and i wrote eeg . The Real name of

the tests are Evoked potentials. The highlighted area in the instruction

sheet also says Electrical stimulation of the upper and lower extremities.

I was referring to the humiliation of the tech getting angry because the

nerves in the hand were not working. she was very impatient.

The pain was related to the continual zapping

although she got no response

Still itching in the poconos,

Thanks,

karen

Re: has anyone run into these symptoms

> >

> >

> > > I have had this many times. I am 43 year old. When that hat BP

> and HR

> > > incidence with me , people go thru a fast list of ?'s

> > > 1)did i take my meds?

> > > Sometimes I fall asleep and someone failed to wake me for the

> meds:)

> > > 2) How many gatorades did I drink that day?

> > > OR

> > > this is while they are moving and situating me into another

> position

> > > depending if I was sitting , standing, or laying at the moment.

> > > 3) also, it is getting to the point that UTI's are becoming a

> problem. so

> > > look for other behaviors that aren't his norm. I am not saying

> everything

> > is

> > > due to UTI'S

> > >

> > > For sleeping

> > >

> > > 1.) Ask the doctor about

> > > a.elevation of head and/or feet/legs.

> > > b. tell the doc about the steelband feeling around ur dad's

> head, the

> > > BP/HR readings BEFORE he went to the bathroom, and the feeling of

> > excessive

> > > heat to him but not to ur mom.

> > > 2) Consider a bedside comode right next to ther bed. Walking to a

> > bathroom

> > > when ur dizzy oir lightheaded increases the chance of falling and

> being

> > > confide to a bed.

> > > I have my commode facing my bedside next to my bedtable. I also

> have a

> > > plastic gripper sheet under the commode and table. I don't want

> to stain

> > my

> > > lite pink carpeting .

> > > 3.) The use of a thin, white hospital blankets on his bedas

> oppose to

> > heavy

> > > coverings may help his feeling of being over heated. I put

> pillows (body

> > > pillow and 4 head size pillows -2 stacked, 1 ,then 1) ontop of

> the body

> > > pillow to help prevent me from rolling my upper body off the

> wedge pillow.

> > I

> > > leave the sheet and blanket untucked over the pillows. ASK ur

> dad though,

> > > because he may like it differently than me. I get overheated if

> I end up

> > > bundled in my blanket like a little baby.

> > >

> > > nancy m.

> > > ladybug64dd wrote:

> > >

> > > > My father has msa, diagnosed in 1996. My parents dont have

> access to

> > > > a computer so I do this for them. Something unusual happened to

> my

> > > > dad on Friday night and I wonder if anyone out there has

> experienced

> > > > this and if so what did you do?

> > > > My father(Arno) woke up in the night complaining that he was

> hot,

> > > > burning up. My mom (Trudy) said he didnt feel warm but was

> actually

> > > > clammy to touch. So they got up my dad got a drink and went

> to the

> > > > washroom. His BP sitting was 80/55 pulse 92. Thermometer was

> not

> > > > working so no temp. They couldnt get his standing BP because

> he was

> > > > to dizzy to stand long enough to get a reading. He said that

> he had

> > > > a headache and it felt like he was suffocating and felt like

> there

> > > > was a steel band around his head. My mom is really worried as

> we all

> > > > are. They live in a small town (pop.350) nearest medical

> facilities

> > > > are a 5 hour drive or the medi vac. Help!! It feels like my

> dad has

> > > > taken a turn for the worse and they are so isolated up there.

> > > >

> > > >

> > > > If you do not wish to belong to shydrager, you may

> > > > unsubscribe by sending a blank email to

> > > >

> > > > shydrager-unsubscribe@y...

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Greetings !

Why be humiliated? You need to start to realize that things are what they

are. Don't feel humiliated at any of the symptoms. Start to accept them.

Yes, I've had those tests. It's not the worse pain I've ever had. But it

is 'interesting'.

Regards,

=jbf=

B. Fisher

[Guest guest]

Greetings !

Why be humiliated? You need to start to realize that things are what they

are. Don't feel humiliated at any of the symptoms. Start to accept them.

Yes, I've had those tests. It's not the worse pain I've ever had. But it

is 'interesting'.

Regards,

=jbf=

B. Fisher

[Guest guest]

Greetings !

Have a talk with your doctor. No tech should get 'angry' at the patient.

You have the symptoms, the tech doesn't.

Regards,

=jbf=

B. Fisher

[Guest guest]

Greetings !

Have a talk with your doctor. No tech should get 'angry' at the patient.

You have the symptoms, the tech doesn't.

Regards,

=jbf=

B. Fisher

[Guest guest]

Greetings !

Have a talk with your doctor. No tech should get 'angry' at the patient.

You have the symptoms, the tech doesn't.

Regards,

=jbf=

B. Fisher

[Guest guest]

---

,

I am so sorry that the tech put you through the humilation of redoing

your hand so many times. I don't know but I would think if she

couldnt get your nerves in your hand to do anything it would mean

something was wrong with the nerves in your hand and not keep zapping

you. I often wonder if people ever stop and think about what they are

doing to others and think about if they were the one laying there

being zapped. I would call the doctor and ask him/her about it, for

sure!

Belinda

In shydrager@y..., " karen darcy " wrote:

> Hi Belinda,

> You are correct. It was late last night and i wrote eeg . The Real

name of

> the tests are Evoked potentials. The highlighted area in the

instruction

> sheet also says Electrical stimulation of the upper and lower

extremities.

> I was referring to the humiliation of the tech getting angry

because the

> nerves in the hand were not working. she was very impatient.

> The pain was related to the continual zapping

> although she got no response

> Still itching in the poconos,

> Thanks,

> karen

> Re: has anyone run into these symptoms

> > >

> > >

> > > > I have had this many times. I am 43 year old. When that hat

BP

> > and HR

> > > > incidence with me , people go thru a fast list of ?'s

> > > > 1)did i take my meds?

> > > > Sometimes I fall asleep and someone failed to wake me for the

> > meds:)

> > > > 2) How many gatorades did I drink that day?

> > > > OR

> > > > this is while they are moving and situating me into another

> > position

> > > > depending if I was sitting , standing, or laying at the

moment.

> > > > 3) also, it is getting to the point that UTI's are becoming a

> > problem. so

> > > > look for other behaviors that aren't his norm. I am not

saying

> > everything

> > > is

> > > > due to UTI'S

> > > >

> > > > For sleeping

> > > >

> > > > 1.) Ask the doctor about

> > > > a.elevation of head and/or feet/legs.

> > > > b. tell the doc about the steelband feeling around ur

dad's

> > head, the

> > > > BP/HR readings BEFORE he went to the bathroom, and the

feeling of

> > > excessive

> > > > heat to him but not to ur mom.

> > > > 2) Consider a bedside comode right next to ther bed. Walking

to a

> > > bathroom

> > > > when ur dizzy oir lightheaded increases the chance of falling

and

> > being

> > > > confide to a bed.

> > > > I have my commode facing my bedside next to my bedtable. I

also

> > have a

> > > > plastic gripper sheet under the commode and table. I don't

want

> > to stain

> > > my

> > > > lite pink carpeting .

> > > > 3.) The use of a thin, white hospital blankets on his bedas

> > oppose to

> > > heavy

> > > > coverings may help his feeling of being over heated. I put

> > pillows (body

> > > > pillow and 4 head size pillows -2 stacked, 1 ,then 1) ontop of

> > the body

> > > > pillow to help prevent me from rolling my upper body off the

> > wedge pillow.

> > > I

> > > > leave the sheet and blanket untucked over the pillows. ASK ur

> > dad though,

> > > > because he may like it differently than me. I get overheated

if

> > I end up

> > > > bundled in my blanket like a little baby.

> > > >

> > > > nancy m.

> > > > ladybug64dd wrote:

> > > >

> > > > > My father has msa, diagnosed in 1996. My parents dont have

> > access to

> > > > > a computer so I do this for them. Something unusual

happened to

> > my

> > > > > dad on Friday night and I wonder if anyone out there has

> > experienced

> > > > > this and if so what did you do?

> > > > > My father(Arno) woke up in the night complaining that he was

> > hot,

> > > > > burning up. My mom (Trudy) said he didnt feel warm but was

> > actually

> > > > > clammy to touch. So they got up my dad got a drink and

went

> > to the

> > > > > washroom. His BP sitting was 80/55 pulse 92. Thermometer

was

> > not

> > > > > working so no temp. They couldnt get his standing BP

because

> > he was

> > > > > to dizzy to stand long enough to get a reading. He said

that

> > he had

> > > > > a headache and it felt like he was suffocating and felt like

> > there

> > > > > was a steel band around his head. My mom is really worried

as

> > we all

> > > > > are. They live in a small town (pop.350) nearest medical

> > facilities

> > > > > are a 5 hour drive or the medi vac. Help!! It feels like my

> > dad has

> > > > > taken a turn for the worse and they are so isolated up

there.

> > > > >

> > > > >

> > > > > If you do not wish to belong to shydrager, you may

> > > > > unsubscribe by sending a blank email to

> > > > >

> > > > > shydrager-unsubscribe@y...

> > > > >

> > > > >

> > > > >

> > > > >