new memeber

January 19, 2004

>my grandson was born yesterday in Palm Springs, CA.. 8lbs

> 13oz., 20in long. )

Congradulations to the entire family!

> As for my weight, I was 140lbs a couple of years ago before my health

> started taking a nose-dive. I'm only 5'5.5 " so that's not a " skinny "

I was that weight for a few minutes back around eighth grade, about 40 years

ago. Believe me, many people on this list would give their right arm to be

anywhere near that weight. In fact, that's the " middle " weight in the range

for 5'5 " on most height/weight charts.

>but that first week or so, when you only ate

> like 1200cal/day,

It's been 1000 cal/day for the first week since he introduced the FoodMover.

A lot of people find that just way too hard and just start off with the

calorie card for their current weight.

> I've just got SO far to go.

Just look forward to each single pound and aim towards changing your diet to

include low-fat, low grain healthier foods at first.

Baby steps.

I wonder how I'll be able to keep

> motivated that long if this turns out like the 1.5 years I dieted

> without losing.

I'm 50 years old and have dieted just about all of them, and about 47 of

those without losing any weight at all, yet *I* keep at it.

Sue in NJ

June 23, 2004

Hey Aimee,

Welcome to the group, my name is Jonathon, im 24, achon from New Zealand.

Are you going to the convention in San Fran this year?

Jonathon

new memeber

> Hi everyone, my name is aimee and i am a 26 year old achondorplasic

> dwarf from New jersey. I joined the group to meet new people and

> hopefully form some really cool friendships. I was a member of the

> LPA growing up as a child but as time passed and i got older my

> family eventually lost contact. So i here i am again...

>

> ===

>

May 16, 2005

Angel a great start. Do yourself a favor and start a journal? it can be a food journal, emotions, exercise, or whtever youwant. You will want to look back and see what meals and days have worked for you.

NH... Mom to Abby Liz 10/94 Anne 7/99

May 16, 2005

---Hi Angel:

Welcome!!!!

Sounds like you are on to something with your food plan, since you

lost 5 pounds in one week!! Congratulations!!!!

You will find lots of support here!

Faye from Somerville, MA

In 100-plus , " bingamadori " <blkcherrybrandy@a...>

wrote:

> Hi all,

>

> New to the group here. My name is Angel, I'm 25 and I'm from way

way

> up north in Michigan. I have been overweight since age 7. I've

> pretty much been in the 20 plus sizes since middle school. I have

no

> children to blame for this " condition " just bad genes and a poor

way

> to deal with boredom.

>

> I've always had high self-esteem and love myself dearly so the

weight

> hasn't ever got me down much. Don't get me wrong; I know I've been

> discriminated against because of my weight in my life, but I don't

> sweat the small people . . . They will just not gain the pleasure

of

> having me in their life. (My dad calls this delusions of granduer:))

>

> So here I was this past Tuesday in the grocery store. For some

> reason I bought good food. Then I got home and for some reason I

> thought to myself that I can eat around 2000 calories daily and

lose

> weight. That day I ate less than 2000 calories, and the next day,

> and the next and so on.

>

> Here I sit, 6 days later, at 314 lbs when I had weighed 319 last

> Sunday.

>

> So hopefully this is it. Hopefully this won't get old and boring,

> and I'll keep it up. I'm just looking to correspond with other

> people who want health like me.

>

> That's my short intro. Hope to get to know you all.

>

> Angel

May 16, 2005

Hi Angel,

Welcome. It is a great time of year to do what you are doing as there are plenty of fresh fruits and things around to help keep your foods interesting. Looking forward to hearing how you are doing.

take care,

cbbingamadori <blkcherrybrandy@...> wrote:

Hi all,New to the group here. My name is Angel, I'm 25 and I'm from way way up north in Michigan. I have been overweight since age 7. I've pretty much been in the 20 plus sizes since middle school. I have no children to blame for this "condition" just bad genes and a poor way to deal with boredom. I've always had high self-esteem and love myself dearly so the weight hasn't ever got me down much. Don't get me wrong; I know I've been discriminated against because of my weight in my life, but I don't sweat the small people . . . They will just not gain the pleasure of having me in their life. (My dad calls this delusions of granduer:))So here I was this past Tuesday in the grocery store. For some reason I bought good food. Then I got home and for some reason I thought

to myself that I can eat around 2000 calories daily and lose weight. That day I ate less than 2000 calories, and the next day, and the next and so on.Here I sit, 6 days later, at 314 lbs when I had weighed 319 last Sunday. So hopefully this is it. Hopefully this won't get old and boring, and I'll keep it up. I'm just looking to correspond with other people who want health like me.That's my short intro. Hope to get to know you all.Angel100-Plus Files page 100-plus/files100-Plus Links page 100-plus/links

Stay connected, organized, and protected. Take the tour

May 16, 2005

Welcome Angel!

You'll love it here Jow far up in MI? I

visited Escanaba once and have family that used

to live in Ludington. They moved closer and now I

only have to go as far as Holland <GBG>. You've

done great for the past 6 days - mix it up so you

don't get bored. Have you added drinking water

and working out to your day yet?

--- bingamadori <blkcherrybrandy@...> wrote:

> Hi all,

>

> New to the group here. My name is Angel, I'm

> 25 and I'm from way way

> up north in Michigan.

Live, Love, Laugh

May 16, 2005

Congrats Angel and welcome to the group

Tema bingamadori <blkcherrybrandy@...> wrote:

Hi all,New to the group here. My name is Angel, I'm 25 and I'm from way way up north in Michigan. I have been overweight since age 7. I've pretty much been in the 20 plus sizes since middle school. I have no children to blame for this "condition" just bad genes and a poor way to deal with boredom. I've always had high self-esteem and love myself dearly so the weight hasn't ever got me down much. Don't get me wrong; I know I've been discriminated against because of my weight in my life, but I don't sweat the small people . . . They will just not gain the pleasure of having me in their life. (My dad calls this delusions of granduer:))So here I was this past Tuesday in the grocery store. For some reason I bought good food. Then I got home and for some reason I thought

to myself that I can eat around 2000 calories daily and lose weight. That day I ate less than 2000 calories, and the next day, and the next and so on.Here I sit, 6 days later, at 314 lbs when I had weighed 319 last Sunday. So hopefully this is it. Hopefully this won't get old and boring, and I'll keep it up. I'm just looking to correspond with other people who want health like me.That's my short intro. Hope to get to know you all.Angel100-Plus Files page 100-plus/files100-Plus Links page 100-plus/links

April 20, 2006

Welcome Debbie:

Nice to have you in the group. My son is 15 - aren't teenagers lovely!

Sounds like you have a lot on your plate. The middle of the night chats

must be tough to deal with. For a while my son decided that getting up

as early as possible was the way to go. Five-thirty is too early for

me. He is pretty self sufficient - can help himself to cereal and stuff

for breakfast. However, as soon as our dog hears someone stirring, he

needs to go out so my husband and I were taking turns to get up and

walk the dog. Not a big deal, certainly not compared to what you are

dealing with (and it sounds like you are dealing with it by yourself)

but it was exhausting all the same.

Anyway, all of that was just by way of saying welcome and I have an

older kid too. Will be glad to chat anytime.

Regards,

Trish

>

> Hello everyone..my name is Debbie and I'm 44 years old and the mother

> of a 19 year old who isn't just dealing with Aspergers, but also

> schizoeffective disorder and diabetes. Each day seems to be a new

> challenge/struggle, not only for her but for me as well as the

> caretaker. Lately, her thing is to (because her sleeping patterns

are

> all ass-backwards) get me up around 1-3 am to " sit and talk " . I'm

only

> human here and the lack of sleep is really getting to me.

> I'm frustrated and more than a little lonely. I moved from NY to

> Indiana last June and I don't really have anyone here that I can talk

> to who really understands....so I decided to join a couple of groups.

>

> Debbie

>

April 20, 2006

Debbie, does she have any special interests that she can handle herself during that time? Can you "save" them for her. Maybe leave notes for her to follow, make it like a game until she falls back asleep? Good luck, I know the lack of sleep thing is a killer!

new memeber

Hello everyone..my name is Debbie and I'm 44 years old and the mother of a 19 year old who isn't just dealing with Aspergers, but also schizoeffective disorder and diabetes. Each day seems to be a new challenge/struggle, not only for her but for me as well as the caretaker. Lately, her thing is to (because her sleeping patterns are all ass-backwards) get me up around 1-3 am to "sit and talk". I'm only human here and the lack of sleep is really getting to me. I'm frustrated and more than a little lonely. I moved from NY to Indiana last June and I don't really have anyone here that I can talk to who really understands....so I decided to join a couple of groups.Debbie

April 9, 2008

Hi New Member,

Does this mean that Andre is taking growth hormone injections for the RSS? Is

this something that growth hormone work would work for? My son is growth

hormone deficint and takes the injections, he is 12 and has been taking them

since he was 5. He was so deficient that he was 4 deviations below the growth

charts. We have had great success with the injections, had we not done them his

adult height would have been around 4 " 10. Now he is perfectly average. His

endocronologist does not like that he is gfcf, typical of a medical dr. who does

not understand autism and diet. At first my son did not eat much on the diet,

eventually that changes. Weight and height perfect. With his supplements his

calcium is on the high end of normal. The diet is the number 1 thing we have

done with him and saw BIG improvements up to this point. All stimming ended,

better concentration, less fog, better behavior. It's not all perfect, but were

still working on things.

Good luck

New Memeber

Hi All,

I came across information about this site while I was on another

site. I'm glad I did! I have a nine year old son named Andre who has

PDD and Silver Syndrome (growth disorder). I tried to

implement the GF diet without success:0(. Since my son is already a

very malnourished child because of the RSS when I noticed him losing

weight I stopped the diet. He was losing the weight because he hated

the foods. Now I'm looking at trying the enzymes to help him over

come some of his stemming and autistic behaviors. My son is getting

older and he likes little girls but because of his conditions he

isn't sure how to approach the issue or girls. He is the sweetest,

shy, soft spoken and most timid child anyone could ever meet. He

really is a joy to be around everyone that meets him loves him. I'm

trying to help my son by getting him some intervention that will

provide solid results. My son is in special education right now and

he is very high functioning and with time and help will be

mainstreamed. However, I'm currently facing major challenges with the

quality of his education. Andre is in the 4th grade reading on a 1st

grade level. This week I will be setting up his initial assessment

with Sylvan Learning Center for his reading issues. Let give you guys

some history on Andre, I honestly believe that his autism was caused

by his childhood immunizations. What leads me to think this is that

after his set of shots at 9mos my child changed. He stopped babbling

ma-ma and da-da. He stopped smiling; he began to grunt I don't your

regular baby grunt I mean grunting so loudly that I was embarrassed

to take him out sometimes. It was like my son went catatonic almost.

I expressed my concerns to his Pediatrician. He told me I had nothing

to worry about, but noted a significant drop on his growth and

development curve. That's when I was given the RSS diagnosis. I still

knew there was something more to my child's new strange behaviors. At

one year when I knew that my son should be saying at least mom or

dada or juice I had nothing. Again another trip to the Doctors

yielded me nothing. I didn't get a concrete diagnosis until Andre was

4yrs.. At that time my son had just began to form simple sentences

and called my name for the very first time. Although, Andre's

language has improved he still speaks on the age level of a 5 or 6

year old. He has a great sense of humor and loves to pretend play and

make wise cracks.

April 10, 2008

> I came across information about this site while I was on another

> site. I'm glad I did! I have a nine year old son named Andre who has

> PDD and Silver Syndrome (growth disorder). I tried to

> implement the GF diet without success:0(. Since my son is already a

> very malnourished child because of the RSS when I noticed him losing

> weight I stopped the diet. He was losing the weight because he hated

> the foods. Now I'm looking at trying the enzymes to help him over

> come some of his stemming and autistic behaviors.

One of my kids was a slow growth kid, altho not RSS so far as I know.

Enzymes were very beneficial for him, and carnitine for the growth

issue. At my house, carnitine was required for proper absorption of

fats, vitamin C, B12, folic acid, and TMG. Plus it allowed for normal

growth. It can also help with low muscle tone.

Dana

September 28, 2008

A little side note. I noticed you said you supplement with substitutes and

minerals.

Do you by any chance take Glucosamin and Chondroitin? If so, are you allergic to

shellfish at all?

I ask this because most people don't know that Chondrotin is derived from

shellfish.

If you have any shellfish allergy at all and are taking this on a regular basis

and in the quantity that is recommended, it can have an allergic side effect.

Ranging from merely a slight cough and hay-fever type result, to a full blown

anaphylactic " spelling " shock.

I found this out after my Rheumatologist recommended I take it, after taking it

for a week and a half I started having severe trouble breathing and a rash.

Then I found out about the shellfish connection.

Didn't even know I was really allergic until this time. Due to the high dosage,

it can cause a cumulative effect.

Just a little FYI.

Shayna

It is better to be hated for who you are than liked for who you aren't.

From: adallen51 <adallen07@...>

Subject: New Memeber

spinal problems

Date: Sunday, September 28, 2008, 11:12 AM

Good Morning Everyone,

My name is Audrey and I am from Wisconsin. I joined the group in the

hopes that I may find further resources to assist me. I am at my wits

end! A little history about myself. I have been suffering for over

ten years, going from doctor to doctor, being told by several doctors

that my problem were psychosomatic, without even ordering proper

diagnostic test. They all just wanted to stuff me full of pain meds,

anxiety or depression meds and shove me out the door. I had to fight

with my last GP just to see a Rheumatologist because he refused to

let me have an MRI done and fill out papers for my pending

disability. Which I did finally when my appeal this past December.

In the past two years I was finally able to be diagnosed by both a

rheumatologist and a neurologist. I have been diagnosed with

fibromyalgia, chronic pain syndrome, severe scoliosis in the low

back, stenosis, bulging disc and osteophyte at L5, degenerative disc

disease, chronic fatigue, SI joint pain, sciatica, several types of

arthritis and the list goes on.

Over the last month or so, I have had increased pain on a daily

basis, putting me right over the top. I had another series of x-rays

and an MRI this past week. I am being referred back to my neurologist

because it now appears that I have four pinched nerves in my neck.

I am hyper-sensitive to most medications and don't tolerate pain meds

at all. I had been relying on over OTC meds with little relief and

they are now causing stomach problems. I do take Librium as needed as

the pain level sometimes brings on anxiety attacks. I do tend to go

the holistic route to self treat. I take sea salt baths with various

oils. I supplement with vitamins and minerals. I try to eat a healthy

diet. I am also very much intune with nature, visualizations and

meditation. But lately, my pain level has been so high, that I find

little relief in that as well.

I am so sorry to has rambled on so. I truly feel everyone's pain and

struggle. I am so happy to have found a group of people who I can

relate to.

Dreaming of a less pain filled day,

Audrey

" Reach high, for stars lie hidden

in your soul. Dream deep,

for every dream precedes the goal. "

Pamela Vaull Starr quote

September 28, 2008

Hi Shaynal,

Thanks for the heads up. Although it was recommended, I can not take this as I

do have an allergy to shellfish. I have been looking into a a vegan form made

from plants. It is very expensive I think.

Have a great day,

Audrey

http://clk.atdmt.com/MRT/go/msnnkwxp1020093185mrt/direct/01/

February 7, 2009

Cheri,

I don't know the answers to your questions, but I do know that there are two

centers in NC with hard chamber HBOT. One is in the Charlotte area on the

northern side in Huntersville. It's called Charlotte Metro Hyperbarics.

The other is Miracle Mountain just north of Boone. We have four children

who will be starting HBOT.two at Miracle Mountain in March, and two at

Charlotte Metro on Monday. Dr. Rose is the medical director at Charlotte

Metro, and used to be my children's pediatrician. She may be able to answer

your questions. Also, there's a great neurologist in the Charlotte

area(Concord) named Dr. Corbier. He's booked out two to four months, but

worth coming to see. He's the only one I know of in the state who believes

in HBOT for brain injury.

Meleah

From: medicaid

[mailto:medicaid ] On Behalf Of cherikirbyallen

Sent: Friday, February 06, 2009 6:38 PM

medicaid

Subject: [ ] new memeber

I have a 16 yr old son, Devin. Shortly after birth he was diagnosed

with meningitis. He then developed hydrocephalus. He has brain

injuries. He has short term memory loss, and also comprehension

difficulties. I am not sure if this group can help me. I would like to

know if there are any procedures or treatments that can help

hydrocephalus. Devin has a VP shunt. I really need some support. We

live in western NC.---Cheri

February 7, 2009

hi Cheri,

Just wanted you to know your options and that there in an excellent facility in

Wisconsin that has a DAN doctor, Bio-medical Therapy, HBOT, and suit therapy all

under one roof. They are very family oriented and Dr Vandyke that is the

Dr there is very flexible with his schedule and can probably see you within the

next few weeks.

I would definitely call them and get pricing to see how they compare to any

other facility that you look into.

We are taking my daughter back there in March because of the great spring price

packages they were offering!

If you have any more questions, please feel free to contact me anytime.

Kristi Hogg, TN

www.westtennesseecares.org

www.wisconsinhyperbarics.com

www.ihausa.org

From: Meleah Corner <rmcorner@...>

Subject: RE: [ ] new memeber

medicaid

Date: Saturday, February 7, 2009, 11:31 AM