strange question

[Guest guest]

Hi , I just found a new shipment of Sun Tea Jars at

K-Mart! Maybe you can try there. Hope this helps, Myrna

[Guest guest]

Thanks to all who answered. I followed Pat's advice and found 4 sun

tea jars at a Goodwill store tonight. It cost me $6 total. I'm

very excited. I received a scoby in the mail today (Thanks, Beau)

and got a batch started tonight.

I'm sure I'll have tons more questions as I get deeper into this.

Thanks to everyone.

[Guest guest]

Hi Tammie...yes...we have 1 in college and another going next year. You MUST

apply first for FAFSA...that's the fed's financila aid thingy....they will

either give u some help or nothing. That can be done online...jsut make sure to

ahve ur tax info handy & Social Sec. #'s. You will first be asked to get an

ID....after getting the ID # for your child, you can then proceed to do the

form...about 15 pages or so, maybe anhour of ur time. Getting the ID takes a

few days - a week to get..that's also done online at FAFSA. Last year they gave

us nothing..this year, however, with 2 being in college 2205/2006 they gave

us 4,000 for 1 and 3,000 for the other.....so that helps some. After u either

get $$$ or not from them, u can then apply for student loans, which are done

thru the school itself. Not a big deal, but alot of phone calls and online

stuff. But u really should do ALL of that ASAP. You will not be able to apply

for Student Loans unless u have done the FAFSA. Most schools have a few banks

and also the Federal Student Loan. The easiest is to go thru the Feds on that

one too. Good luck. Haven't participated in the emails in a long time but

still get them and read them so if there's anything else u want to ask just

email..Gail

[Guest guest]

Hi Tammie...yes...we have 1 in college and another going next year. You MUST

apply first for FAFSA...that's the fed's financila aid thingy....they will

either give u some help or nothing. That can be done online...jsut make sure to

ahve ur tax info handy & Social Sec. #'s. You will first be asked to get an

ID....after getting the ID # for your child, you can then proceed to do the

form...about 15 pages or so, maybe anhour of ur time. Getting the ID takes a

few days - a week to get..that's also done online at FAFSA. Last year they gave

us nothing..this year, however, with 2 being in college 2205/2006 they gave

us 4,000 for 1 and 3,000 for the other.....so that helps some. After u either

get $$$ or not from them, u can then apply for student loans, which are done

thru the school itself. Not a big deal, but alot of phone calls and online

stuff. But u really should do ALL of that ASAP. You will not be able to apply

for Student Loans unless u have done the FAFSA. Most schools have a few banks

and also the Federal Student Loan. The easiest is to go thru the Feds on that

one too. Good luck. Haven't participated in the emails in a long time but

still get them and read them so if there's anything else u want to ask just

email..Gail

[Guest guest]

Janelle wrote:

> Hi girls, I seem to have a enlarged taste bud (????) at the back of

my tounge, it doesn't hurt more annoying than anything as it feels like

something is stuck on my tounge and it's hitting on the roof of my

mouth, has anyone else had this, can it be candida related? i don't

want to see the doc for fear of getting antibiotics ( been on sooooo

many different ones the last year) is there anything else i can do?

==>Yes it can be candida related, but you could get a diagnosis from

the doctor just to find out for sure, but you do not " have to " follow

his advice nor take antibiotics. In the meantime do the treatments

recommended in the Thrush article (contained in the Treatments Folder).

Bee

>

[Guest guest]

Colleen,

I apologize, I don't remember your previous post. What is your situation? Have you been diagnosed with Ctoma? Are you scheduled to have surgery?

I am having surgery for a Mastoidectomy on Wed and my Dr will be cleaning out the Mastoid area. This will be my 7th surgery and the Ctoma just keeps coming back. I have all kinds of symptoms and have found that the only thigs that helps me is the surgery. Right now, the back of my left ear hurts, I am nauseous, dizzy, have Vertigo. As much as I dislike Surgery I have learned the difference of what I feel like before and after the Surgery.

Ctoma can be a deadly monster if it is not removed. It keeps growing and growing and eats everything in its path, if surgery is avoided. I do not want the Ctoma to get through the Skull and into my brain.

It seems to me that everyone's experience with the Ctoma is different. I don't think that anyone can really answer if a heating pad will work or not. We have all been told that surgery (the sooner the better) is what is needed.

I don’t mean to sound so harsh, but I felt the same way you did in the beginning of my Ctoma experiences and understand how this monster works .

Please ask me any questions that you want.

Sincerely,

Ingrid

Strange question

Okay, I don't know if this is related or not but I'm curious ... maybe someone else has experienced this, I don't know.For the last few months my scalp just above my infected ear (about an inch or two) and slightly back a bit gets tinglely and itchy. Every now and then I also hear a 'snap' or a 'click' sound in that general area. Always in the same spot.I posted a while back regarding pain relief techniques people may know but I only got one response telling me I should talk to my doctor to get the surgery sooner. Well, that's not going to happen, so I'm going to ask again and hopefully someone will have some suggestions. The pain in my ear is getting to be disruptive. People ask me what it feels like and I tell them imagine a balloon being blown up slowly inside your ear - one breath at a time. For every breath, there is pressure and pain but once you get use to it, the pressure and pain subsides. Then, another breath in exhaled into the balloon. Would a heating pad on the ear help? I don't have one and I don't want to rush out and get one if it's not going to work. I would appreciate anyones opinion on that.Thanks,Colleen

[Guest guest]

Hello Ingrid,

I've posted a few times regarding my situation.

To give you a break down of what I've posted in the past:

- ear infections all my life but no surgeries or tubes have ever

been done to correct it. I've never been put under or been in a

hospital for anything (other than childbirth), so this whole thing

is scaring the hell out of me.

- since August of 2005 I've had this " balloon " growing inside my

ear. It took me over a year to get the GP to send me to a

specialist.

- Had a CT done last October which confirmed a c-toma.

- Surgery is scheduled for March 13th. According to the ENT,

he'll be removing all my hearing bones and part of the mastoid,

and possibly my inner ear (symptoms suggest inner ear

involvement even though the CT didn't pick anything up).

- Where I live, there is no way I can get in any sooner and there

is risk of being bumped (again). I originally had a surgery date

of January 5th but was bumped (the surgeon needed to work his

schedule around his holiday time and wouldn't be back until

March).

- In the mean time, the GP and ENT are completely

unsympathic to how much pain I'm in and just don't seem to

understand that Advil or Tylenol just don't cut it anymore.

Alcohol works best but I've been trying to loose weight and

get in shape prior to the surgery. Alcohol certainly doesn't

help that. I was hoping to find alternatives to drugs and

alcohol to relieve the pain until I finally get this critter taken

out.

I'm get the impression that there are no alternatives - which

really doesn't help my frame of mind right now. This whole

experience has reminded me of a child how game/song:

I am slowly going crazy. 1-2-3-4-5-6-switch

Crazy going slowly am I. 6-5-4-3-2-1-switch

Colleen

>

> Colleen,

>

> I apologize, I don't remember your previous post. What is your situation?

Have you

been diagnosed with Ctoma? Are you scheduled to have surgery?

>

> I am having surgery for a Mastoidectomy on Wed and my Dr will be cleaning out

the

Mastoid area. This will be my 7th surgery and the Ctoma just keeps coming back.

I have

all kinds of symptoms and have found that the only thigs that helps me is the

surgery.

Right now, the back of my left ear hurts, I am nauseous, dizzy, have Vertigo.

As much as I

dislike Surgery I have learned the difference of what I feel like before and

after the

Surgery.

>

> Ctoma can be a deadly monster if it is not removed. It keeps growing and

growing and

eats everything in its path, if surgery is avoided. I do not want the Ctoma to

get through

the Skull and into my brain.

>

> It seems to me that everyone's experience with the Ctoma is different. I

don't think that

anyone can really answer if a heating pad will work or not. We have all been

told that

surgery (the sooner the better) is what is needed.

>

> I don't mean to sound so harsh, but I felt the same way you did in the

beginning of my

Ctoma experiences and understand how this monster works .

>

> Please ask me any questions that you want.

>

> Sincerely,

> Ingrid

>

>

>

> Strange question

>

>

> Okay, I don't know if this is related or not but I'm curious ... maybe

someone else has

> experienced this, I don't know.

>

> For the last few months my scalp just above my infected ear (about an inch

or two) and

> slightly back a bit gets tinglely and itchy. Every now and then I also hear

a 'snap' or a

'click'

> sound in that general area. Always in the same spot.

>

> I posted a while back regarding pain relief techniques people may know but I

only got

one

> response telling me I should talk to my doctor to get the surgery sooner.

Well, that's

not

> going to happen, so I'm going to ask again and hopefully someone will have

some

> suggestions. The pain in my ear is getting to be disruptive. People ask me

what it feels

like

> and I tell them imagine a balloon being blown up slowly inside your ear -

one breath at

a

> time. For every breath, there is pressure and pain but once you get use to

it, the

pressure

> and pain subsides. Then, another breath in exhaled into the balloon.

>

> Would a heating pad on the ear help? I don't have one and I don't want to

rush out and

get

> one if it's not going to work. I would appreciate anyones opinion on that.

>

> Thanks,

> Colleen

>

[Guest guest]

Colleen,

Sorry to hear that you are having such a hard time. Where do you live? Is there anyway you can get to an Otologist or another ENT that is more sympathetic or maybe has a more open schedule?

What you are feeling is normal. It is a real pain when Doctors just dismiss you and don't listen. I've been through it and I know how horrible it feels. That is one of the reasons I switched Dr's.

The Ctoma has eaten all of my middle ear bones. They can rebuild the middle bones with a prosthetic or a torp. This is a replacement for the middle bones. Mine worked beautifully until 6 weeks ago.

I also have had to had my ear canal operated on and widened.

Ctoma is scarey because it is not something that you normally hear about. Everyone seems to have different symptoms. You are not going crazy, you are scared and am in pain.

Something I do that may sound weird, but does give me temp relief. I put any kind of uncooked rice in sock (about 2 cups) and then tie a knot in the sock. I put it in the Microwave on high for about a minute. Depending on the Microwave will depend on how warm the rice gets. I make it really warm, not hot and it is soothing. Again not a solution but maybe a little comfort. Advil or Tylenol does not help me. Have you called and tried to get any pain medicine? I understand not wanting to take it, but sometimes you just have to do what you have to do.

As far as getting into shape before surgery, maybe having a few drinks here and there won’t hurt. Please don't mix it with any pain medicine.

If you would like to email me direct my email is ijannetta@...

Ingrid

Strange question> > > Okay, I don't know if this is related or not but I'm curious ... maybe someone else has > experienced this, I don't know.> > For the last few months my scalp just above my infected ear (about an inch or two) and > slightly back a bit gets tinglely and itchy. Every now and then I also hear a 'snap' or a 'click' > sound in that general area. Always in the same spot.> > I posted a while back regarding pain relief techniques people may know but I only got one > response telling me I should talk to my doctor to get the surgery sooner. Well, that's not > going to happen, so I'm going to ask again and hopefully someone will have some > suggestions. The pain in my ear is getting to be disruptive. People ask me what it feels like > and I tell them imagine a balloon being blown up slowly inside your ear - one breath at a > time. For every breath, there is pressure and pain but once you get use to it, the pressure > and pain subsides. Then, another breath in exhaled into the balloon. > > Would a heating pad on the ear help? I don't have one and I don't want to rush out and get > one if it's not going to work. I would appreciate anyones opinion on that.> > Thanks,> Colleen>

[Guest guest]

For the last few months my scalp just above my infected ear (about an inch or two) and slightly back a bit gets tinglely and itchy. Every now and then I also hear a 'snap' or a 'click' sound in that general area. Always in the same spot.

Hi Colleen

Eventually the ctoma will affect everything on the bad ear side from the top of your head down to your shoulder. It's not suprising when you consider that ctoma is an expanding object in a small confined space. It puts pressure on the surrounding structures and there are plenty of cranial nerves around there.

Would a heating pad on the ear help? I don't have one and I don't want to rush out and get one if it's not going to work. I would appreciate anyones opinion on that.Is that the same as a hot-water bottle? If so, it will usually help to ease earache and the surrounding tension but probably not have much effect on the pressure inside your ear. As you know the only lasting relief will be with removal of the ctoma.

Phil

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.1.410 / Virus Database: 268.17.14/658 - Release Date: 29/01/07

[Guest guest]

> Sorry to hear that you are having such a hard time. Where do you live? Is

there anyway

you can get to an Otologist or another ENT that is more sympathetic or maybe has

a more

open schedule?

Nope. I live in Northern Canada ... ENTs and sympathic GPs are hard to come by.

You

certainly do not want to be switching doctors once you have a surgery date

because it's

guaranteed to be at a later date.

> Something I do that may sound weird, but does give me temp relief. I put any

kind of

uncooked rice in sock (about 2 cups) and then tie a knot in the sock.

That would act like a heating pad - but much cheaper. I'll give that a try

tonight to see if it

helps.

Thanks,

Colleen

[Guest guest]

> Eventually the ctoma will affect everything on the bad ear side from the top

of your head

down to your shoulder. It's not suprising when you consider that ctoma is an

expanding

object in a small confined space. It puts pressure on the surrounding structures

and there are

plenty of cranial nerves around there.

- which would explain why it feels like there is an expanding balloon in my

head. But if that

is the case, wouldn't that suggest this thing is growing quickly? What happens

if it does eat

it's way through the skull? Is that the clicking and popping sound I hear and

feel above my

ear? I sure hope not.

> Is that the same as a hot-water bottle? If so, it will usually help to ease

earache and the

surrounding tension but probably not have much effect on the pressure inside

your ear. As

you know the only lasting relief will be with removal of the ctoma.

- Yes it would be the same as a hot-water bottle. Heat normally increases

pressure, so I

wasn't sure I wanted to try the heat unless someone has because of the pressure

inside my

ear. I'll try the heated rice tonight that Ingrid suggested and see how that

works.

Thanks for the input.

Colleen

[Guest guest]

>

> I have a 5 year old that has been on enzymes for a couple of years.

> He has multiple food sensitivities and yeast issues off and on. The

> problem is this: He does not " get " puzzles. He can not complete one

> on his own. When I talk to him about pieces that can on the edge or

> corner, things just don't click. I'm just wondering if there is some

> kind of supplement that will help with this kind of reasoning (or lack

> thereof). Any ideas?

I can't answer this question specifically, but for my son, B vitamins

[especially B6, B12, and folic acid], fish oil, amino acids

[especially carnitine] and anti-virals were very helpful for this type

of issue.

Dana

[Guest guest]

My son had/has the same problem. He is 9 now. I know now that my son

easily gets visually overwhelmed. He is also dyslexic. In hindsight,

I would have addressed the visual system more aggressively early on.

My son gets visual therapy from a developmental optomitrist. It has

helped, but we have a long road ahead. You can read more about

visual therapy by googling it.

Here is a guess: Our nutritionist recommended OPC formula made by

the Yarrow company to help ease the frustration with handwriting.

This may help with the puzzle working as well. My son can now do

some puzzles but usually avoids them.

Kim

Western Michigan University

Office of University Relations

300 Walwood Hall

387-8404

Fax: 387-8422

>>> danasview <danasview@...> 02/08/07 9:57 AM >>>

>

> I have a 5 year old that has been on enzymes for a couple of

years.

> He has multiple food sensitivities and yeast issues off and on.

The

> problem is this: He does not " get " puzzles. He can not complete

one

> on his own. When I talk to him about pieces that can on the edge

or

> corner, things just don't click. I'm just wondering if there is

some

> kind of supplement that will help with this kind of reasoning (or

lack

> thereof). Any ideas?

I can't answer this question specifically, but for my son, B

vitamins

[especially B6, B12, and folic acid], fish oil, amino acids

[especially carnitine] and anti-virals were very helpful for this

type

of issue.

Dana

[Guest guest]

I've been looking in to this! I would have never considered vision to be a

problem, especially since my son (7) has 20/20 vision.

Here is a link http://www.add-adhd.org/index.html

Drea

_____

From:

[mailto: ] On Behalf Of Kim

Sent: Thursday, February 08, 2007 9:16 AM

Subject: Re: Re: Strange question

My son had/has the same problem. He is 9 now. I know now that my son

easily gets visually overwhelmed. He is also dyslexic. In hindsight,

I would have addressed the visual system more aggressively early on.

My son gets visual therapy from a developmental optomitrist. It has

helped, but we have a long road ahead. You can read more about

visual therapy by googling it.

Here is a guess: Our nutritionist recommended OPC formula made by

the Yarrow company to help ease the frustration with handwriting.

This may help with the puzzle working as well. My son can now do

some puzzles but usually avoids them.

Kim

..

<http://geo./serv?s=97359714/grpId=3297531/grpspId=1705061616/msgId

=101703/stime=1170951534/nc1=1/nc2=2/nc3=3>

[Guest guest]

My son also has 20/20 vision. All the hardware is there, but the

problem lies in processing what the eye sees. Think of it as a piece

of sensory integration.

kim

Western Michigan University

Office of University Relations

300 Walwood Hall

387-8404

Fax: 387-8422

>>> Drea <dgarza@...> 02/08/07 1:10 PM >>>

I've been looking in to this! I would have never considered vision

to be a

problem, especially since my son (7) has 20/20 vision.

Here is a link http://www.add-adhd.org/index.html

Drea

_____

From:

[mailto: ] On Behalf Of Kim

Sent: Thursday, February 08, 2007 9:16 AM

Subject: Re: Re: Strange question

My son had/has the same problem. He is 9 now. I know now that my son

easily gets visually overwhelmed. He is also dyslexic. In hindsight,

I would have addressed the visual system more aggressively early on.

My son gets visual therapy from a developmental optomitrist. It has

helped, but we have a long road ahead. You can read more about

visual therapy by googling it.

Here is a guess: Our nutritionist recommended OPC formula made by

the Yarrow company to help ease the frustration with handwriting.

This may help with the puzzle working as well. My son can now do

some puzzles but usually avoids them.

Kim

..

<http://geo./serv?s=97359714/grpId=3297531/grpspId=1705061616/msgId

=101703/stime=1170951534/nc1=1/nc2=2/nc3=3>

[Guest guest]

My NT daughter was a struggling reader (mildly dyslexic). Two

summers ago, when she had just turned 6, we started vision therapy.

It helped her a lot. The developmental optometrist also had us

purchase a software program with a lot of helpful exercises that were

actually fun to do. She is now half way through 1st grade and

reading fine, very few word reversals and no more reversals when

writing letters and numbers. I can't say enough about vision therapy.

rose

On Feb 8, 2007, at 1:10 PM, Drea wrote:

> I've been looking in to this! I would have never considered vision

> to be a

> problem, especially since my son (7) has 20/20 vision.

> Here is a link http://www.add-adhd.org/index.html

>

>

>

> Drea

>

> _____

>

> From:

> [mailto: ] On Behalf Of Kim

> Sent: Thursday, February 08, 2007 9:16 AM

>

> Subject: Re: Re: Strange question

>

> My son had/has the same problem. He is 9 now. I know now that my son

> easily gets visually overwhelmed. He is also dyslexic. In hindsight,

> I would have addressed the visual system more aggressively early on.

[Guest guest]

Rose, Do you recall the name of the software?

Kim

Western Michigan University

Office of University Relations

300 Walwood Hall

387-8404

Fax: 387-8422

>>> Rose Baumann <rose@...> 02/08/07 4:40 PM >>>

My NT daughter was a struggling reader (mildly dyslexic). Two

summers ago, when she had just turned 6, we started vision therapy.

It helped her a lot. The developmental optometrist also had us

purchase a software program with a lot of helpful exercises that

were

actually fun to do. She is now half way through 1st grade and

reading fine, very few word reversals and no more reversals when

writing letters and numbers. I can't say enough about vision

therapy.

rose

On Feb 8, 2007, at 1:10 PM, Drea wrote:

> I've been looking in to this! I would have never considered vision

> to be a

> problem, especially since my son (7) has 20/20 vision.

> Here is a link http://www.add-adhd.org/index.html

>

>

>

> Drea

>

> _____

>

> From:

> [mailto: ] On Behalf Of Kim

> Sent: Thursday, February 08, 2007 9:16 AM

>

> Subject: Re: Re: Strange question

>

> My son had/has the same problem. He is 9 now. I know now that my

son

> easily gets visually overwhelmed. He is also dyslexic. In

hindsight,

> I would have addressed the visual system more aggressively early

on.

[Guest guest]

What is the name of the program you purchased?

Tamet

[Guest guest]

Not sure why this is, except that when people have adrenal problems, they often crave salt and are recommended to take salt. I craved a beef oxo drink which I had every morning on waking, the craving was tremendous - and I usually craved another one in the afternoon. I am fine now, and hardly ever crave this drink, though I do occasionally, and then I know I need to boost my adrenals a bit more.Perhaps somebody else can tell you why you get the salt taste on your lips.

Luv - Sheila

HiI started NAE just over a week ago now. The last couple of days my lips have tasted salty!? I lick my lips with my tounge and they taste of salt. Any ideas anyone or does this happen to anyone else? It may not even be the NAE but just seems a bit strange!No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.10/1550 - Release Date: 13/07/2008 17:58

[Guest guest]

Thanks Shiela, its just strange! How did you treat your adrenals? Did you go it alone or with advice? How long do we have to treat our adrenals and do you think NAE is enough to do this job or would you expect something stronger is needed?

Thanks

From: sheilaturner <sheilaturner@...>Subject: Re: Strange Questionthyroid treatment Date: Monday, 14 July, 2008, 3:39 PM

Not sure why this is, except that when people have adrenal problems, they often crave salt and are recommended to take salt. I craved a beef oxo drink which I had every morning on waking,

Luv - Sheila

HiI started NAE just over a week ago now. The last couple of days my lips have tasted salty!? I lick my lips with my tounge and they taste of salt. Any ideas anyone or does this happen to anyone else? It may not even be the NAE but just seems a bit strange!No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.4.10/1550 - Release Date: 13/07/2008 17:58

Not happy with your email address?

Get the one you really want - millions of new email addresses available now at

[Guest guest]



Hi

I am still treating my adrenals, but I only take one tablet a day with my breakfast now. I don't think I have ever really had a problem though, not like some people, so really take NAE as a maintenance dose, not as a treatment dose. I did it through the advice I picked up on the Internet - mainly through Dr Peatfield's papers. It is hard to tell what individuals need, as we are all different. NAE works fine for most people, but if not strong enough, there is Isocort, and if that is not strong enough, then you may need to take hydrocortisone.

luv - Sheila

Thanks Shiela, its just strange! How did you treat your adrenals? Did you go it alone or with advice? How long do we have to treat our adrenals and do you think NAE is enough to do this job or would you expect something stronger is needed?

Thanks

From: sheilaturner <sheilaturnertpa-uk (DOT) org.uk>Subject: Re: Strange Questionthyroid treatment Date: Monday, 14 July, 2008, 3:39 PM

Not sure why this is, except that when people have adrenal problems, they often crave salt and are recommended to take salt. I craved a beef oxo drink which I had every morning on waking,

Luv - Sheila

HiI started NAE just over a week ago now. The last couple of days my lips have tasted salty!? I lick my lips with my tounge and they taste of salt. Any ideas anyone or does this happen to anyone else? It may not even be the NAE but just seems a bit strange!No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.4.10/1550 - Release Date: 13/07/2008 17:58

Not happy with your email address? Get the one you really want - millions of new email addresses available now at

No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.10/1551 - Release Date: 14/07/2008 06:49

[Guest guest]

Personally, it's hard to say but in my own history, I have terrible issues

with my back. It has always beemn my primary focus of complaint since I was

4-5 years of age.

One of the priamry areas of pain for me is my mid back although now it's my

tailbone/ low back.mid back/neck but through the first half of my life, it

was my mid back. I do have MILD like 6-8 degrees ONLY scoliosis in the

Thorasic spine which is the area where it hurts But it's Not Supposed to

hurt me. (Rolls eyes). Whatever the case, it hurts so... whatever.

When I was in PT during my pediatric rheumatology days, they focused on

mobilization on the spine area esp there to try and work on moving the

vertebrae and also helping build the muscles up. I do have fibro too so I

don't know if that is a contributing factor. A few years ago, when Iw as in

PT again, that PT focused on traction and decompression so whatevere the

case, the spine can be problematic for anyone with Arthritis conditions I

suppose.

I have always been told that people with JRA don't have a lot of spine

issues in partricuar even when they can have them but it's not a huge focus

but for me, it has been the primary area of problems, pain and dysfunction.

It causes me the most pain out of anything else and so... I shrug...

So all I'm saying is that with Grant and PsA... I would say, it could def.

be his PsA even if it's Not typical of PsA

The other thing to find out... if he has PT... you would know but sometimes

it's good to find out if he has any orthopedic issues. I have flatter feet..

not completely but enough to need pretty complex orthotics (Ankle foot

orthotics) and combined with the mild curvature in my spine, a orthopedic

doctor did tell me that these things alone could contribute to greater

pressure, pain on my spine, hips, knees and ankles throwing me off balance

completely. Of coursew rhey told my mom to always have me in very good

sturdy shoes.. no flip flops (hey I live n san diego LOL)... and all of that

jazz so it's something to consider as well.

The weight of the backpack... sleeping position.... I actually find that I

need to sleep with a pillow betwwen my knees and one behind my spine..

ussualy my teddy bear actually (shy grin)... in order to sleep in a proper

position as well as to feel comfortable and help pain control. It helps to

ave my body pillow in front of me too. Backpacks are a REAL spine killer

when you have arthritisor well to anyone but they just don't know it! Also

not being able to reach the floor with your feet properly when sitting in

those horrid hard chairs at school can put stress on the back as well esp.

if he does have spine issues. I know I ran into this problem and my PT's

really did a great job of increasing our awareness over this.

Anyways. hope ths helps some

Issadora

On Fri, Feb 13, 2009 at 7:11 AM, toivonen4 <toivonen4@...> wrote:

> Happy friday the 13th to everyone! Yesterday Grant was home sick with

> flu like symptoms. He had a slight fever, threw up once and slept a

> good portion of the day. He looked much better today and went to

> school. One other symptom he had and still has today is his back

> hurts. He can pinpoint a spot on his spine which is a little more

> than half way up his back that hurts. I asked him if he fell on it

> or anything like that and he didn't. I'm just curious if any of you

> have experienced this and if it could possibly be related to the PsA.

> What do you think?

>

> & Grant (11, PsA/Uveitis)

>

>

>

--

" How exactly does one become a butterfly? You must want to fly so badly that

you are willing to give up being a caterpillar. "

- Trina us

[Guest guest]

Are you taking all the companion nutrients? Did you try salt loading? You could have been having detox symptoms. Donna in IL From: iodine [mailto:iodine ] On Behalf Of SageSent: Monday, November 22, 2010 3:05 PMiodine Subject: Strange Question I started Ioderal with 1/2 tablet and took this for 10 days. One week ago I graduated up to 1 tablet and that day by 2:00 my heart rate went up to 116 (normal is in the 70's). My heart rate stayed high all week. I kept decreasing my thyroid medication to none. I haven't taken any in 48 hours. Today my heart rate is almost normal and I don't feel that racy feeling inside my body and mind. I just don't want to have any kind of hypo crash. So far I'm feeling fine. I was on 75mcg of T3.Is it normal to need to decrease thyroid or go completely off especially so soon after starting Iodine?I also FORGOT to take my bio-identical estrogen yesterday and I took extra progesterone because I felt so tearful, irritable and down. (today is day 26 of cycle)Now that I'm taking iodine could estrogen have been causing the high heart rate? Does anyone know if there is a connection here?Or could it just be coming off the thyroid hormone and my body adjusting to the iodine.Any ideas welcome.Sage

[Guest guest]

Yes, I am taking ALL the companion supplements including the ATP Co-factors.

Heartrate finally stabalized after 48 hours of no thyroid hormones. Seem to be

feeling ok now and was able to increase ioderal to 1 1/2.

Thank you for checking back with me. We have been out of phone/power with

storms.

Sage

>

> Are you taking all the companion nutrients? Did you try salt loading? You

could have been having detox symptoms.

>

> Donna in IL

>

> From: iodine [mailto:iodine ] On Behalf Of Sage

> Sent: Monday, November 22, 2010 3:05 PM

> iodine

> Subject: Strange Question

>

>

>

> I started Ioderal with 1/2 tablet and took this for 10 days. One week ago I

graduated up to 1 tablet and that day by 2:00 my heart rate went up to 116

(normal is in the 70's). My heart rate stayed high all week. I kept decreasing

my thyroid medication to none. I haven't taken any in 48 hours. Today my heart

rate is almost normal and I don't feel that racy feeling inside my body and

mind. I just don't want to have any kind of hypo crash. So far I'm feeling fine.

I was on 75mcg of T3.

>

> Is it normal to need to decrease thyroid or go completely off especially so

soon after starting Iodine?

>

> I also FORGOT to take my bio-identical estrogen yesterday and I took extra

progesterone because I felt so tearful, irritable and down. (today is day 26 of

cycle)

>

> Now that I'm taking iodine could estrogen have been causing the high heart

rate? Does anyone know if there is a connection here?

>

> Or could it just be coming off the thyroid hormone and my body adjusting to

the iodine.

>

> Any ideas welcome.

>

> Sage

>

> ________________________________

>

[Guest guest]

Hi everyone,

My computer was down for a few days so I'm happy to be catching up.

I have been trying to really clean up my eating, to best prepare for explant and try to get my health back.

I have started to drink some crazy stuff to get as many vits/mineral as poss.

Recently I began drinking this green drink from Bolthouse, called Green Goodness, it looks like....let's just say it looks horrible (pea green)

but tastes great and has super stuff in it.

Now we get to the question.....if we have algae/mold in us and we are affected by moldy environments should I be drinking algae (some are good for you)

Sounds crazy? There is Spirulina and Chlorella (type of algae?) Could this be bad for gals w/implants?

Sun I know you are the expert in such matters...hopefully someone can shed some light on this strange topic.

I really get buried when I try to think of every supplement/therapy, exercise,diet etc. that I should be doing to try and get better.

I wish I could just get explant and start healing.

I need to start losing weight, my body is holding on to this toxic load for no apparent reason. I eat very good and I still can't loose 1 lb!!!!

Ok, finally the weather in upstate NY is beginning to thaw and I can at least see new life....maybe it's a sign for us all.