Re: report from a self-made guinea pig

[Guest guest]

It seems that I recall that hedera is a type of ivy plant--but I can't

find the word in my dictionary. MLReynoldsAt 09:33 AM 5/29/2002

-0400, you wrote:

Pam,

hed comes from the latin and means ivy or ivy shaped, we know what

degenerative means and in context of a nerve disorder, I assumed it was

spelled correctly. Therefore I thought of the shape of glial

cells and came up with " ivy shaped nerve cells "

) hedero seemed to be ivy shaped cancer cells in at least

one case - we weren't talking about cancer, but it seems they were also

looking for cancer (brain tumor?) from the report. Yes I know that

assume means to make an ass out of you and me ) Just the

engineering logic taking over )

Bill! Where did you get

" some sort of ivy-shaped nerves " ??? LOL ... ok they

did misspell the word

" hederodegenerative "

it's " heredodegenerative " .

Actually it seemed to me to be a good diagnostic report. I am not

sure I agree with their conclusions as there were no pyramidal or

extra-pyramidal signs which are common in MSA. But they are doctors

and did the tests which gives them much more insight than me as a

layman. But they seemed to do a complete diagnostic workup. I

as a layman, would guess that if this has been going on less than five

years it is " possible MSA " if more than five years

" doubtful MSA " . Basically they are saying it is too early

to tell what it is.

Take care, Bill

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[Guest guest]

,

I did not write the "all over the place, unpredictable" bit, that was

Aletta's original posting. Actually that is sort of difficult to

pin down exactly as I have seen it used differently in several papers.

Evidently it is not exactly defined for a medical term like say ataxia.

But your term along with hers seems to tie it down pretty well.

The major terms we all need are:

Orthostatic hypotension = BP rises when patient lays down, and

falls when patient rises to a sitting or standing position

Dysphagia = Speech or swallowing difficulties

Dysautonomia = autonomic failure = automatic functions of the body

do not work properly like temperature and OH

Ataxia = movement disorders

Some of the other things are too complex for most of us to actually

understand.

Take care, Bill

==============================================

" B. Fisher" wrote:

Greetings

Bill,Sorry

to disagree on one point. Sporadic when used as a medical term for

a disease means that there is no familial history. I modified the

definition.Aletta,

this is a great idea. Something that should be a good resource for

all of us. Thanks.Regards,=jbf=

B. Fisher