Re: To ShErry - Mayo CLinic

[Guest guest]

Sherry,

I was seen at Mayo Rochester in January 2000. I had previously been dx'd with PD and then PSP by a medic I absolutely had no confidence in so decided to go to the top: Mayo Clinic.

I was agreeably surprised when I found out how easy it was to make an appointment -- no doctor referral necessary -- wait was less than a month. Tests were done that were not even suggested by previous neuros (sweat test and tIlt table {B/P} test). I also was seen by a physiatrist (PT MD) and rheumatologist (extensive x-rays of back, hips etc.).

If you call to make an appointment on your own and have some idea of your condition let them know so that they can schedule you with the proper neurologist. At the time I went I wasn't aware just how specialized the field of neurology was and initially saw a neuro whose field was neuoro-muscular when I) should have asked to see a neuro in movement disorder. I ended up seeing a Dr. van Gerpin but I believe the one to see (besides Dr. Low the top guy, I think) is a Dr. A (odd name starts with "A" _ can't find it in any of my papers). Maybe someone else on the lsit knows who I mean.

I was very satisfied with their findings -- satisfied in that I had finally received a correct dx. I am now seeing local (40 miles away) neuro (after a long search for one who even knew anything about MSA) and I see him for symptom management every 3 months. I see my family doctor the same for all my other aches and pains. She knew little about MSA but is great in working with me. Just yesterday when in her office she actually asked me what I knew about a certain point that I had learned from this list. So between the two medics, I feel I am getting the best care I can for this horrible disorder.

Being 1000 (more or less) away from Mayo it is impractical for me to get there again. If I were closer I certainly would use them on a regular basis.

I hope this answers some of your questions....if I can be of any help further, just let me know.

Barbara Pond in Blacksburg (SW)VA

SHALOM

[Guest guest]

Barbara

I was really interested in your experiences with the Mayo Clinic.My M.D. has suggested I go there to get a proper diagnosis but living in Canada I wonder how expensive it is ? could you give me any idea how much it costs to see a Dr and have the autonomic tests done?

Thanks

Marg Manson

Bvpond44@... wrote: Sherry, I was seen at Mayo Rochester in January 2000. I had previously been dx'd with PD and then PSP by a medic I absolutely had no confidence in so decided to go to the top: Mayo Clinic. I was agreeably surprised when I found out how easy it was to make an appointment -- no doctor referral necessary -- wait was less than a month. Tests were done that were not even suggested by previous neuros (sweat test and tIlt table {B/P} test). I also was seen by a physiatrist (PT MD) and rheumatologist (extensive x-rays of back, hips etc.). If you call to make an appointment on your own and have some idea of your condition let them know so that they can schedule you with the proper neurologist. At the time I went I wasn't aware just how specialized the field of neurology was and initially saw a neuro whose field was neuoro-muscular when I) should have asked to see a neuro in movement disorder. I ended up seeing a Dr. van Gerpin but I believe the one to see (besides Dr. Low the top guy, I think) is a Dr. A (odd name starts with "A" _ can't find it in any of my papers). Maybe someone else on the lsit knows who I mean. I was very satisfied with their findings -- satisfied in that I had finally received a correct dx. I am now seeing local (40 miles away) neuro (after a long search for one who even knew anything about MSA) and I see him for symptom management every 3 months. I see my family doctor the same for all my other aches and pains. She knew little about MSA but is great in working with me. Just yesterday when in her office she actually asked me what I knew about a certain point that I had learned from this list. So between the two medics, I feel I am getting the best care I can for this horrible disorder. Being 1000 (more or less) away from Mayo it is impractical for me to get there again. If I were closer I certainly would use them on a regular basis. I hope this answers some of your questions....if I can be of any help further, just let me know. Barbara Pond in Blacksburg (SW)VA SHALOM If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe

[Guest guest]

Barbara

I was really interested in your experiences with the Mayo Clinic.My M.D. has suggested I go there to get a proper diagnosis but living in Canada I wonder how expensive it is ? could you give me any idea how much it costs to see a Dr and have the autonomic tests done?

Thanks

Marg Manson

Bvpond44@... wrote: Sherry, I was seen at Mayo Rochester in January 2000. I had previously been dx'd with PD and then PSP by a medic I absolutely had no confidence in so decided to go to the top: Mayo Clinic. I was agreeably surprised when I found out how easy it was to make an appointment -- no doctor referral necessary -- wait was less than a month. Tests were done that were not even suggested by previous neuros (sweat test and tIlt table {B/P} test). I also was seen by a physiatrist (PT MD) and rheumatologist (extensive x-rays of back, hips etc.). If you call to make an appointment on your own and have some idea of your condition let them know so that they can schedule you with the proper neurologist. At the time I went I wasn't aware just how specialized the field of neurology was and initially saw a neuro whose field was neuoro-muscular when I) should have asked to see a neuro in movement disorder. I ended up seeing a Dr. van Gerpin but I believe the one to see (besides Dr. Low the top guy, I think) is a Dr. A (odd name starts with "A" _ can't find it in any of my papers). Maybe someone else on the lsit knows who I mean. I was very satisfied with their findings -- satisfied in that I had finally received a correct dx. I am now seeing local (40 miles away) neuro (after a long search for one who even knew anything about MSA) and I see him for symptom management every 3 months. I see my family doctor the same for all my other aches and pains. She knew little about MSA but is great in working with me. Just yesterday when in her office she actually asked me what I knew about a certain point that I had learned from this list. So between the two medics, I feel I am getting the best care I can for this horrible disorder. Being 1000 (more or less) away from Mayo it is impractical for me to get there again. If I were closer I certainly would use them on a regular basis. I hope this answers some of your questions....if I can be of any help further, just let me know. Barbara Pond in Blacksburg (SW)VA SHALOM If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe

[Guest guest]

Barbara

I was really interested in your experiences with the Mayo Clinic.My M.D. has suggested I go there to get a proper diagnosis but living in Canada I wonder how expensive it is ? could you give me any idea how much it costs to see a Dr and have the autonomic tests done?

Thanks

Marg Manson

Bvpond44@... wrote: Sherry, I was seen at Mayo Rochester in January 2000. I had previously been dx'd with PD and then PSP by a medic I absolutely had no confidence in so decided to go to the top: Mayo Clinic. I was agreeably surprised when I found out how easy it was to make an appointment -- no doctor referral necessary -- wait was less than a month. Tests were done that were not even suggested by previous neuros (sweat test and tIlt table {B/P} test). I also was seen by a physiatrist (PT MD) and rheumatologist (extensive x-rays of back, hips etc.). If you call to make an appointment on your own and have some idea of your condition let them know so that they can schedule you with the proper neurologist. At the time I went I wasn't aware just how specialized the field of neurology was and initially saw a neuro whose field was neuoro-muscular when I) should have asked to see a neuro in movement disorder. I ended up seeing a Dr. van Gerpin but I believe the one to see (besides Dr. Low the top guy, I think) is a Dr. A (odd name starts with "A" _ can't find it in any of my papers). Maybe someone else on the lsit knows who I mean. I was very satisfied with their findings -- satisfied in that I had finally received a correct dx. I am now seeing local (40 miles away) neuro (after a long search for one who even knew anything about MSA) and I see him for symptom management every 3 months. I see my family doctor the same for all my other aches and pains. She knew little about MSA but is great in working with me. Just yesterday when in her office she actually asked me what I knew about a certain point that I had learned from this list. So between the two medics, I feel I am getting the best care I can for this horrible disorder. Being 1000 (more or less) away from Mayo it is impractical for me to get there again. If I were closer I certainly would use them on a regular basis. I hope this answers some of your questions....if I can be of any help further, just let me know. Barbara Pond in Blacksburg (SW)VA SHALOM If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe