Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 , I realize that you're probably overwhelmed as it is, but I personally couldn't let that kind of treatment by a physician go un-addressed. If I had experienced such un-professional treatment, I'd be writing a letter to the Hospital Board of Trustees. It would probably be futile, but if these types of indiscretions are never reported, there is no history for the hospital to use to take action even if they want to. Jerry Cash If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Dear Dear and Jeff, My heart goes out to you both. I am so sorry that Jeff had to go through this. I have also been through the same thing with 2 doctors so I know the humilation that Jeff feels. It is so uncalled for and very devasating to have it happen to you. I know that I cried everytime I tried to tell someone what those doctors did to me. One of those doctors were at a Medical University Clinic. Please know that there are other doctors out there who aren't that bad. I didn't believe it until recently but it's true. Don't give up, keep your head high, and fight for your rights and your health. I am also glad you didn't pay that jerk. I wasn't as smart. God Bless, Belinda > Hi Jean and Chrissie- > > Disheartening to say the least. First of all, he didn't get to see > Jankovic. He saw another doctor who had the most godawful bedside manner. > It was obvious that he hadn't reviewed Jeffs file at all. He came in > there with this " you shut up, you're just the patient " attitude. He told > Jeff that he didn't have MSA, and THEN started reviewing his file in front > of him...started to do some SERIOUS backpedaling. He decided that Jeff > needed to " start from scratch " , and Jeff told the doc that he wasn't > goingto repeat a whole bunch of tests he's already been through several > times. The doctor ordered a bunch of tests for Jeff, including a sleep > study and some specialized EMG's, but he wanted to do it right then, and > have Jeff admitted to the hospital. Jeff tried to explain that their > hospital was out of network, and that he would want to do the testing > somewhere closer to home (Houston is 7 hours away). The doctor said, > " Well, I guess you're just going to leave AMA " !!!! and stormed out the > door. Thank God for Dr. Wang, the intern who did Jeff's original workup in > December. She did the preconsult and workup on Wednesday, and was able to > get Jeff calmed down somewhat after his interview with this doc. THEN he > gives Jeff a bill for $855 for the visit. Now realize that on our first > visit, Jankovic spent at least 30 minutes talking to Jeff. This yahoo was > in there less than 10! And they did the EXACT same workup. Dr. J's fee > was $325. Jeff told the cashier that there was no way he was going to pay > $855 for the abuse he got from that doctor. The doctor came out to the > cashier's desk, scratched out $855, wrote in N/C and told Jeff (in front of > everyone) that he never wanted to see him again!! > > Jeff got in from Houston Wednesday night and was COMPLETELY wiped out and > demoralized. He could barely function yesterday and last night was so > upset that he threw all his meds in the trash (he retrieved them a little > later) He's not eating well, he's not sleeping well at all, so he can't > get past this. It seems in the week since his doctor actually came out and > told him he was dying, that he feels this futility in everything he does. > And frankly, I don't know how to handle it. What do I tell him? A big > part of me wants to scream at him and tell him to fight this with > everything he's got, and the other small part that sees him suffer wants me > to tell him it's OK, it's your body, if it's too much for you then just let > go.....he looks to me for the validation of his actions, and I don't even > know what those actions should be!!! He's a very proud man, does not > accept help graciously. What's it going to be like for him when he can't > drive, can't walk, can't make it to the bathroom on his own. > > He was better (spirit-wise) this morning. He went in to work for a little > while, which is encouraging. He just loves this support group, even though > he doesn't post. He reads the experiences everyone shares and it makes > him feel so much better to know that there are people out there who really > UNDERSTAND. Thank you all for that blessing in our lives!! > > I want to get you all a list of some of the tests the doctor wants to > run....maybe you can shed some light on them. Will post them later. > > Thanks for your thoughts, M. > > > Re: Jeff Maciejewski > > , > Wondering how Jeff made out with his doctor's visit?. > Jean & Chrissie > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe@y... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Dear Dear and Jeff, My heart goes out to you both. I am so sorry that Jeff had to go through this. I have also been through the same thing with 2 doctors so I know the humilation that Jeff feels. It is so uncalled for and very devasating to have it happen to you. I know that I cried everytime I tried to tell someone what those doctors did to me. One of those doctors were at a Medical University Clinic. Please know that there are other doctors out there who aren't that bad. I didn't believe it until recently but it's true. Don't give up, keep your head high, and fight for your rights and your health. I am also glad you didn't pay that jerk. I wasn't as smart. God Bless, Belinda > Hi Jean and Chrissie- > > Disheartening to say the least. First of all, he didn't get to see > Jankovic. He saw another doctor who had the most godawful bedside manner. > It was obvious that he hadn't reviewed Jeffs file at all. He came in > there with this " you shut up, you're just the patient " attitude. He told > Jeff that he didn't have MSA, and THEN started reviewing his file in front > of him...started to do some SERIOUS backpedaling. He decided that Jeff > needed to " start from scratch " , and Jeff told the doc that he wasn't > goingto repeat a whole bunch of tests he's already been through several > times. The doctor ordered a bunch of tests for Jeff, including a sleep > study and some specialized EMG's, but he wanted to do it right then, and > have Jeff admitted to the hospital. Jeff tried to explain that their > hospital was out of network, and that he would want to do the testing > somewhere closer to home (Houston is 7 hours away). The doctor said, > " Well, I guess you're just going to leave AMA " !!!! and stormed out the > door. Thank God for Dr. Wang, the intern who did Jeff's original workup in > December. She did the preconsult and workup on Wednesday, and was able to > get Jeff calmed down somewhat after his interview with this doc. THEN he > gives Jeff a bill for $855 for the visit. Now realize that on our first > visit, Jankovic spent at least 30 minutes talking to Jeff. This yahoo was > in there less than 10! And they did the EXACT same workup. Dr. J's fee > was $325. Jeff told the cashier that there was no way he was going to pay > $855 for the abuse he got from that doctor. The doctor came out to the > cashier's desk, scratched out $855, wrote in N/C and told Jeff (in front of > everyone) that he never wanted to see him again!! > > Jeff got in from Houston Wednesday night and was COMPLETELY wiped out and > demoralized. He could barely function yesterday and last night was so > upset that he threw all his meds in the trash (he retrieved them a little > later) He's not eating well, he's not sleeping well at all, so he can't > get past this. It seems in the week since his doctor actually came out and > told him he was dying, that he feels this futility in everything he does. > And frankly, I don't know how to handle it. What do I tell him? A big > part of me wants to scream at him and tell him to fight this with > everything he's got, and the other small part that sees him suffer wants me > to tell him it's OK, it's your body, if it's too much for you then just let > go.....he looks to me for the validation of his actions, and I don't even > know what those actions should be!!! He's a very proud man, does not > accept help graciously. What's it going to be like for him when he can't > drive, can't walk, can't make it to the bathroom on his own. > > He was better (spirit-wise) this morning. He went in to work for a little > while, which is encouraging. He just loves this support group, even though > he doesn't post. He reads the experiences everyone shares and it makes > him feel so much better to know that there are people out there who really > UNDERSTAND. Thank you all for that blessing in our lives!! > > I want to get you all a list of some of the tests the doctor wants to > run....maybe you can shed some light on them. Will post them later. > > Thanks for your thoughts, M. > > > Re: Jeff Maciejewski > > , > Wondering how Jeff made out with his doctor's visit?. > Jean & Chrissie > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe@y... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Dear Dear and Jeff, My heart goes out to you both. I am so sorry that Jeff had to go through this. I have also been through the same thing with 2 doctors so I know the humilation that Jeff feels. It is so uncalled for and very devasating to have it happen to you. I know that I cried everytime I tried to tell someone what those doctors did to me. One of those doctors were at a Medical University Clinic. Please know that there are other doctors out there who aren't that bad. I didn't believe it until recently but it's true. Don't give up, keep your head high, and fight for your rights and your health. I am also glad you didn't pay that jerk. I wasn't as smart. God Bless, Belinda > Hi Jean and Chrissie- > > Disheartening to say the least. First of all, he didn't get to see > Jankovic. He saw another doctor who had the most godawful bedside manner. > It was obvious that he hadn't reviewed Jeffs file at all. He came in > there with this " you shut up, you're just the patient " attitude. He told > Jeff that he didn't have MSA, and THEN started reviewing his file in front > of him...started to do some SERIOUS backpedaling. He decided that Jeff > needed to " start from scratch " , and Jeff told the doc that he wasn't > goingto repeat a whole bunch of tests he's already been through several > times. The doctor ordered a bunch of tests for Jeff, including a sleep > study and some specialized EMG's, but he wanted to do it right then, and > have Jeff admitted to the hospital. Jeff tried to explain that their > hospital was out of network, and that he would want to do the testing > somewhere closer to home (Houston is 7 hours away). The doctor said, > " Well, I guess you're just going to leave AMA " !!!! and stormed out the > door. Thank God for Dr. Wang, the intern who did Jeff's original workup in > December. She did the preconsult and workup on Wednesday, and was able to > get Jeff calmed down somewhat after his interview with this doc. THEN he > gives Jeff a bill for $855 for the visit. Now realize that on our first > visit, Jankovic spent at least 30 minutes talking to Jeff. This yahoo was > in there less than 10! And they did the EXACT same workup. Dr. J's fee > was $325. Jeff told the cashier that there was no way he was going to pay > $855 for the abuse he got from that doctor. The doctor came out to the > cashier's desk, scratched out $855, wrote in N/C and told Jeff (in front of > everyone) that he never wanted to see him again!! > > Jeff got in from Houston Wednesday night and was COMPLETELY wiped out and > demoralized. He could barely function yesterday and last night was so > upset that he threw all his meds in the trash (he retrieved them a little > later) He's not eating well, he's not sleeping well at all, so he can't > get past this. It seems in the week since his doctor actually came out and > told him he was dying, that he feels this futility in everything he does. > And frankly, I don't know how to handle it. What do I tell him? A big > part of me wants to scream at him and tell him to fight this with > everything he's got, and the other small part that sees him suffer wants me > to tell him it's OK, it's your body, if it's too much for you then just let > go.....he looks to me for the validation of his actions, and I don't even > know what those actions should be!!! He's a very proud man, does not > accept help graciously. What's it going to be like for him when he can't > drive, can't walk, can't make it to the bathroom on his own. > > He was better (spirit-wise) this morning. He went in to work for a little > while, which is encouraging. He just loves this support group, even though > he doesn't post. He reads the experiences everyone shares and it makes > him feel so much better to know that there are people out there who really > UNDERSTAND. Thank you all for that blessing in our lives!! > > I want to get you all a list of some of the tests the doctor wants to > run....maybe you can shed some light on them. Will post them later. > > Thanks for your thoughts, M. > > > Re: Jeff Maciejewski > > , > Wondering how Jeff made out with his doctor's visit?. > Jean & Chrissie > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe@y... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Greetings and Jeff! Jeff, I'm really writing this to you. You're wife just happens to be the courier for this note. But it's just me to you, okay? First, let's pretend you are at work and face this type of problem. It's overwhelming. Where do you start? By trying to tackle the whole thing at once? Nope. You find one corner of the puzzle that you can solve, work on it, step back, and see if you can solve other pieces. So, let me suggest a way to do just that. First of all, it is EXTREMELY important that you resolve your sleep problems. Severe sleep apnea (or other sleep problems) causes a severe strain on your central nervous system. Believe me. I know. I've used a CPAP / BiPAP unit for more than six years now. I would NOT be alive without it. And my symptoms get MUCH worse if I sleep poorly. Let's see if that is a corner of the whole puzzle we can solve. I hope that if you can get your sleep problems under control, you will be better able to work through the other problems. How to get started on solving this? First of all, your PCP should be able to refer you for a sleep study. Sometimes they are reluctant to do so, because of the cost. If your PCP heads down that path, be insistent, and note that it is now impacting your ability to drive, and worry that it will result in a serious accident, even death. If you PCP doesn't listen to that, then change PCPs. If they are not worried about the resulting litigation they should not be in the practice of medicine - or anything else, for that matter. How can getting the sleep test help? It's quite likely from what you describe you are suffering SEVERE sleep deprivation. This is WAY beyond just missing a little bit of sleep. Remember, there is a reason that sleep deprivation is used as a form of torture throughout the world. It is effective. It is simple. And it will destroy the person being tortured. All without leaving a mark on that person. Here are a couple of site that discuss sleep apnea: http://health.yahoo.com/health/dc/000811/0.html http://www.cpapman.com/disorder.htm Please get on this immediately! It is that important to your health and to your family. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Greetings and Jeff! Jeff, I'm really writing this to you. You're wife just happens to be the courier for this note. But it's just me to you, okay? First, let's pretend you are at work and face this type of problem. It's overwhelming. Where do you start? By trying to tackle the whole thing at once? Nope. You find one corner of the puzzle that you can solve, work on it, step back, and see if you can solve other pieces. So, let me suggest a way to do just that. First of all, it is EXTREMELY important that you resolve your sleep problems. Severe sleep apnea (or other sleep problems) causes a severe strain on your central nervous system. Believe me. I know. I've used a CPAP / BiPAP unit for more than six years now. I would NOT be alive without it. And my symptoms get MUCH worse if I sleep poorly. Let's see if that is a corner of the whole puzzle we can solve. I hope that if you can get your sleep problems under control, you will be better able to work through the other problems. How to get started on solving this? First of all, your PCP should be able to refer you for a sleep study. Sometimes they are reluctant to do so, because of the cost. If your PCP heads down that path, be insistent, and note that it is now impacting your ability to drive, and worry that it will result in a serious accident, even death. If you PCP doesn't listen to that, then change PCPs. If they are not worried about the resulting litigation they should not be in the practice of medicine - or anything else, for that matter. How can getting the sleep test help? It's quite likely from what you describe you are suffering SEVERE sleep deprivation. This is WAY beyond just missing a little bit of sleep. Remember, there is a reason that sleep deprivation is used as a form of torture throughout the world. It is effective. It is simple. And it will destroy the person being tortured. All without leaving a mark on that person. Here are a couple of site that discuss sleep apnea: http://health.yahoo.com/health/dc/000811/0.html http://www.cpapman.com/disorder.htm Please get on this immediately! It is that important to your health and to your family. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Greetings and Jeff! Jeff, I'm really writing this to you. You're wife just happens to be the courier for this note. But it's just me to you, okay? First, let's pretend you are at work and face this type of problem. It's overwhelming. Where do you start? By trying to tackle the whole thing at once? Nope. You find one corner of the puzzle that you can solve, work on it, step back, and see if you can solve other pieces. So, let me suggest a way to do just that. First of all, it is EXTREMELY important that you resolve your sleep problems. Severe sleep apnea (or other sleep problems) causes a severe strain on your central nervous system. Believe me. I know. I've used a CPAP / BiPAP unit for more than six years now. I would NOT be alive without it. And my symptoms get MUCH worse if I sleep poorly. Let's see if that is a corner of the whole puzzle we can solve. I hope that if you can get your sleep problems under control, you will be better able to work through the other problems. How to get started on solving this? First of all, your PCP should be able to refer you for a sleep study. Sometimes they are reluctant to do so, because of the cost. If your PCP heads down that path, be insistent, and note that it is now impacting your ability to drive, and worry that it will result in a serious accident, even death. If you PCP doesn't listen to that, then change PCPs. If they are not worried about the resulting litigation they should not be in the practice of medicine - or anything else, for that matter. How can getting the sleep test help? It's quite likely from what you describe you are suffering SEVERE sleep deprivation. This is WAY beyond just missing a little bit of sleep. Remember, there is a reason that sleep deprivation is used as a form of torture throughout the world. It is effective. It is simple. And it will destroy the person being tortured. All without leaving a mark on that person. Here are a couple of site that discuss sleep apnea: http://health.yahoo.com/health/dc/000811/0.html http://www.cpapman.com/disorder.htm Please get on this immediately! It is that important to your health and to your family. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Dear and Jeff, sorry to hear about your worse condition Jeff. Seems that the patients are getting younger and younger. Allthough it is also possible that MSA is getting better known. Anyway, Jeff, it looks like that you struggle with the same problem my wife Anne does, namely, to give the disease a name. Giving the animal a name (bad translation of dutch common saying?) is important to explain to friends why you are not able to do the things that you were used to. And believe me, I know how often Anne was pissed off when the doctors suggested another illness. Then she could startover again explaining to relatives and friends how she was doing and how the propositions were. Finally she is diagnosed with PAF, pure autonomic failure and finally she accepts that giving the animal a name is not important, but how do you treat the symptoms and make the best of your life. PAF is less deadly(= life expectance is longer) and we both realize that now we have the best years of our lifes and now is the time to enjoy life while we can. Jeff and , read and ask as much as possible on the list, then here are no doctors, but the most experience with this disease and treatments you will ever find. God bless you and you are in our hearts. Timo & Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Dear and Jeff, sorry to hear about your worse condition Jeff. Seems that the patients are getting younger and younger. Allthough it is also possible that MSA is getting better known. Anyway, Jeff, it looks like that you struggle with the same problem my wife Anne does, namely, to give the disease a name. Giving the animal a name (bad translation of dutch common saying?) is important to explain to friends why you are not able to do the things that you were used to. And believe me, I know how often Anne was pissed off when the doctors suggested another illness. Then she could startover again explaining to relatives and friends how she was doing and how the propositions were. Finally she is diagnosed with PAF, pure autonomic failure and finally she accepts that giving the animal a name is not important, but how do you treat the symptoms and make the best of your life. PAF is less deadly(= life expectance is longer) and we both realize that now we have the best years of our lifes and now is the time to enjoy life while we can. Jeff and , read and ask as much as possible on the list, then here are no doctors, but the most experience with this disease and treatments you will ever find. God bless you and you are in our hearts. Timo & Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Greetings ? Why the EMGs? This is a guess, but I think doctors want to see if there is nerve conduction impairment between the brain and the various parts of the body. This is often, but not always caused by multiple sclerosis or other disorders that cause problems with the peripheral nervous system. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Greetings ? Why the EMGs? This is a guess, but I think doctors want to see if there is nerve conduction impairment between the brain and the various parts of the body. This is often, but not always caused by multiple sclerosis or other disorders that cause problems with the peripheral nervous system. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Greetings ? Why the EMGs? This is a guess, but I think doctors want to see if there is nerve conduction impairment between the brain and the various parts of the body. This is often, but not always caused by multiple sclerosis or other disorders that cause problems with the peripheral nervous system. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Hello and Jeff: You certainly have had a terrible experience with the doctor, and I guess all those afflicted (and sometimes their caretakers) feel like " throwing in the towel " at times. That's okay. And we are all dying, that's a sure thing. I tell Sam that I do the best I can with him, and that I know he would do the same for me if he had to, and then I always add to that last phrase with a laugh, " but incompetently. " He agrees with that. It'[s very hard for a man, I guess. Don't give up--get what you can out of each day, both of you. Lou R.At 11:14 AM 3/8/2002 -0500, you wrote: >Hi Jean and Chrissie- > >Disheartening to say the least. First of all, he didn't get to see >Jankovic. He saw another doctor who had the most godawful bedside manner. > It was obvious that he hadn't reviewed Jeffs file at all. He came in >there with this " you shut up, you're just the patient " attitude. He told >Jeff that he didn't have MSA, and THEN started reviewing his file in front >of him...started to do some SERIOUS backpedaling. He decided that Jeff >needed to " start from scratch " , and Jeff told the doc that he wasn't >goingto repeat a whole bunch of tests he's already been through several >times. The doctor ordered a bunch of tests for Jeff, including a sleep >study and some specialized EMG's, but he wanted to do it right then, and >have Jeff admitted to the hospital. Jeff tried to explain that their >hospital was out of network, and that he would want to do the testing >somewhere closer to home (Houston is 7 hours away). The doctor said, > " Well, I guess you're just going to leave AMA " !!!! and stormed out the >door. Thank God for Dr. Wang, the intern who did Jeff's original workup in >December. She did the preconsult and workup on Wednesday, and was able to >get Jeff calmed down somewhat after his interview with this doc. THEN he >gives Jeff a bill for $855 for the visit. Now realize that on our first >visit, Jankovic spent at least 30 minutes talking to Jeff. This yahoo was >in there less than 10! And they did the EXACT same workup. Dr. J's fee >was $325. Jeff told the cashier that there was no way he was going to pay >$855 for the abuse he got from that doctor. The doctor came out to the >cashier's desk, scratched out $855, wrote in N/C and told Jeff (in front of >everyone) that he never wanted to see him again!! > >Jeff got in from Houston Wednesday night and was COMPLETELY wiped out and >demoralized. He could barely function yesterday and last night was so >upset that he threw all his meds in the trash (he retrieved them a little >later) He's not eating well, he's not sleeping well at all, so he can't >get past this. It seems in the week since his doctor actually came out and >told him he was dying, that he feels this futility in everything he does. > And frankly, I don't know how to handle it. What do I tell him? A big >part of me wants to scream at him and tell him to fight this with >everything he's got, and the other small part that sees him suffer wants me >to tell him it's OK, it's your body, if it's too much for you then just let >go.....he looks to me for the validation of his actions, and I don't even >know what those actions should be!!! He's a very proud man, does not >accept help graciously. What's it going to be like for him when he can't >drive, can't walk, can't make it to the bathroom on his own. > >He was better (spirit-wise) this morning. He went in to work for a little >while, which is encouraging. He just loves this support group, even though >he doesn't post. He reads the experiences everyone shares and it makes >him feel so much better to know that there are people out there who really >UNDERSTAND. Thank you all for that blessing in our lives!! > >I want to get you all a list of some of the tests the doctor wants to >run....maybe you can shed some light on them. Will post them later. > >Thanks for your thoughts, M. > > > Re: Jeff Maciejewski > >, >Wondering how Jeff made out with his doctor's visit?. >Jean & Chrissie > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Hello and Jeff: You certainly have had a terrible experience with the doctor, and I guess all those afflicted (and sometimes their caretakers) feel like " throwing in the towel " at times. That's okay. And we are all dying, that's a sure thing. I tell Sam that I do the best I can with him, and that I know he would do the same for me if he had to, and then I always add to that last phrase with a laugh, " but incompetently. " He agrees with that. It'[s very hard for a man, I guess. Don't give up--get what you can out of each day, both of you. Lou R.At 11:14 AM 3/8/2002 -0500, you wrote: >Hi Jean and Chrissie- > >Disheartening to say the least. First of all, he didn't get to see >Jankovic. He saw another doctor who had the most godawful bedside manner. > It was obvious that he hadn't reviewed Jeffs file at all. He came in >there with this " you shut up, you're just the patient " attitude. He told >Jeff that he didn't have MSA, and THEN started reviewing his file in front >of him...started to do some SERIOUS backpedaling. He decided that Jeff >needed to " start from scratch " , and Jeff told the doc that he wasn't >goingto repeat a whole bunch of tests he's already been through several >times. The doctor ordered a bunch of tests for Jeff, including a sleep >study and some specialized EMG's, but he wanted to do it right then, and >have Jeff admitted to the hospital. Jeff tried to explain that their >hospital was out of network, and that he would want to do the testing >somewhere closer to home (Houston is 7 hours away). The doctor said, > " Well, I guess you're just going to leave AMA " !!!! and stormed out the >door. Thank God for Dr. Wang, the intern who did Jeff's original workup in >December. She did the preconsult and workup on Wednesday, and was able to >get Jeff calmed down somewhat after his interview with this doc. THEN he >gives Jeff a bill for $855 for the visit. Now realize that on our first >visit, Jankovic spent at least 30 minutes talking to Jeff. This yahoo was >in there less than 10! And they did the EXACT same workup. Dr. J's fee >was $325. Jeff told the cashier that there was no way he was going to pay >$855 for the abuse he got from that doctor. The doctor came out to the >cashier's desk, scratched out $855, wrote in N/C and told Jeff (in front of >everyone) that he never wanted to see him again!! > >Jeff got in from Houston Wednesday night and was COMPLETELY wiped out and >demoralized. He could barely function yesterday and last night was so >upset that he threw all his meds in the trash (he retrieved them a little >later) He's not eating well, he's not sleeping well at all, so he can't >get past this. It seems in the week since his doctor actually came out and >told him he was dying, that he feels this futility in everything he does. > And frankly, I don't know how to handle it. What do I tell him? A big >part of me wants to scream at him and tell him to fight this with >everything he's got, and the other small part that sees him suffer wants me >to tell him it's OK, it's your body, if it's too much for you then just let >go.....he looks to me for the validation of his actions, and I don't even >know what those actions should be!!! He's a very proud man, does not >accept help graciously. What's it going to be like for him when he can't >drive, can't walk, can't make it to the bathroom on his own. > >He was better (spirit-wise) this morning. He went in to work for a little >while, which is encouraging. He just loves this support group, even though >he doesn't post. He reads the experiences everyone shares and it makes >him feel so much better to know that there are people out there who really >UNDERSTAND. Thank you all for that blessing in our lives!! > >I want to get you all a list of some of the tests the doctor wants to >run....maybe you can shed some light on them. Will post them later. > >Thanks for your thoughts, M. > > > Re: Jeff Maciejewski > >, >Wondering how Jeff made out with his doctor's visit?. >Jean & Chrissie > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Hello and Jeff: You certainly have had a terrible experience with the doctor, and I guess all those afflicted (and sometimes their caretakers) feel like " throwing in the towel " at times. That's okay. And we are all dying, that's a sure thing. I tell Sam that I do the best I can with him, and that I know he would do the same for me if he had to, and then I always add to that last phrase with a laugh, " but incompetently. " He agrees with that. It'[s very hard for a man, I guess. Don't give up--get what you can out of each day, both of you. Lou R.At 11:14 AM 3/8/2002 -0500, you wrote: >Hi Jean and Chrissie- > >Disheartening to say the least. First of all, he didn't get to see >Jankovic. He saw another doctor who had the most godawful bedside manner. > It was obvious that he hadn't reviewed Jeffs file at all. He came in >there with this " you shut up, you're just the patient " attitude. He told >Jeff that he didn't have MSA, and THEN started reviewing his file in front >of him...started to do some SERIOUS backpedaling. He decided that Jeff >needed to " start from scratch " , and Jeff told the doc that he wasn't >goingto repeat a whole bunch of tests he's already been through several >times. The doctor ordered a bunch of tests for Jeff, including a sleep >study and some specialized EMG's, but he wanted to do it right then, and >have Jeff admitted to the hospital. Jeff tried to explain that their >hospital was out of network, and that he would want to do the testing >somewhere closer to home (Houston is 7 hours away). The doctor said, > " Well, I guess you're just going to leave AMA " !!!! and stormed out the >door. Thank God for Dr. Wang, the intern who did Jeff's original workup in >December. She did the preconsult and workup on Wednesday, and was able to >get Jeff calmed down somewhat after his interview with this doc. THEN he >gives Jeff a bill for $855 for the visit. Now realize that on our first >visit, Jankovic spent at least 30 minutes talking to Jeff. This yahoo was >in there less than 10! And they did the EXACT same workup. Dr. J's fee >was $325. Jeff told the cashier that there was no way he was going to pay >$855 for the abuse he got from that doctor. The doctor came out to the >cashier's desk, scratched out $855, wrote in N/C and told Jeff (in front of >everyone) that he never wanted to see him again!! > >Jeff got in from Houston Wednesday night and was COMPLETELY wiped out and >demoralized. He could barely function yesterday and last night was so >upset that he threw all his meds in the trash (he retrieved them a little >later) He's not eating well, he's not sleeping well at all, so he can't >get past this. It seems in the week since his doctor actually came out and >told him he was dying, that he feels this futility in everything he does. > And frankly, I don't know how to handle it. What do I tell him? A big >part of me wants to scream at him and tell him to fight this with >everything he's got, and the other small part that sees him suffer wants me >to tell him it's OK, it's your body, if it's too much for you then just let >go.....he looks to me for the validation of his actions, and I don't even >know what those actions should be!!! He's a very proud man, does not >accept help graciously. What's it going to be like for him when he can't >drive, can't walk, can't make it to the bathroom on his own. > >He was better (spirit-wise) this morning. He went in to work for a little >while, which is encouraging. He just loves this support group, even though >he doesn't post. He reads the experiences everyone shares and it makes >him feel so much better to know that there are people out there who really >UNDERSTAND. Thank you all for that blessing in our lives!! > >I want to get you all a list of some of the tests the doctor wants to >run....maybe you can shed some light on them. Will post them later. > >Thanks for your thoughts, M. > > > Re: Jeff Maciejewski > >, >Wondering how Jeff made out with his doctor's visit?. >Jean & Chrissie > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Very good advise Bill !! Blanche Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Where the hell is this guy (doctor) at? I want to write a letter to his medical association and enclose your email with it!. It's bad enough we have this problem, but to be treated like this is completely uncalled for. How many other of you would like to do the same? One short letter and send this email along with it? This really undoes my buttons! Tell Jeff to hang in there. Ray Re: Jeff Maciejewski > > , > Wondering how Jeff made out with his doctor's visit?. > Jean & Chrissie > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 I second the motion to file a formal complaint. Something is very wrong here, I guarantee he did not learn to act that way in medical school. The doctors first challenge from his peers is: DO NO HARM. By harm They mean both mental and or physical Harm. Your doctor broke the first rule of medicine. Do no harm. God Bless, Judy & Jim Stark. Re: Jeff Maciejewski > Dear and Jeff, > > I am so angry after reading of the awful treatment Jeff received from that > doctor. I think you should post his name so that others can be forewarned to > not go to him. I also think you should file a complaint with the state > medical board, the hospital, and any other governing organization. There is > absolutely no excuse for that type of behavior. > > It reminded me so much of the treatment my parents and I received when my dad > received his diagnosis of MSA. Had I known then what I know now I would have > filed a complaint - or been very direct with the doctor at the time of the > visit. In short, he was rude and aggressive with my mom. His exam seemed > thorough, but he yelled at my mom about how she would have to do this and > that. It was very intimidating and obviously still gets my ire up. > > Jeff, hang in there. > > Thinking of you both, > Cindy > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Hi all, Jeff and are going through a tough time as they are still not at the acceptance stage. Continuing a complaint at this time would cause a lot of stress and since the doctor removed any charge, I don't feel it is worth it to them. When I filed a complaint, they did not remove the charge, BUT they did improve ther ER service and learned about MSA. Since that was my purpose, I got what I wanted. A letter would probably not get them anything as he removed the charge, the best they could hope for is an apology at this point (and I doubt they will get one). Remember that the doctor must account to the hospital for the tests and time, so he knows he was wrong (yes he would not admit it then), but hopefully he will learn from the experience. If he is really a good doctor and was having a bad day, he will learn, if not he is a bad doctor and yes it would help to write for documentation. If you do decide to write, limit the letter to a brief expalanation of the incident; mention that you thought it was very unprofessional; and decide what you want before writing the letter and mention it in the first paragraph (like I feel I deserve an apology). A letter to a professional group at this time is not warrented as you got some redress in the removal of the charge. They will view that as an admission of error and file it as over and done. The hospital is the better place as they are still trying to cover their part of the loss of income, and will file it as an active complaint - they lost some money. I can understand the anger on the list over this, but let's keep it in perspective. If you are going to complain, wait until you are calm and rational, it does far more good. Also write your letter, wait a day and read it again before sending it. Take care, Bill Werre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 : As a bystander, I really appreciate your approach to problems and succint way of expressing it. Well done! Message: 2 Date: Fri, 8 Mar 2002 15:08:50 -0500 Subject: RE: Jeff Maciejewski Greetings and Jeff! Jeff, I'm really writing this to you. You're wife just happens to be the courier for this note. But it's just me to you, okay? First, let's pretend you are at work and face this type of problem. It's overwhelming. Where do you start? By trying to tackle the whole thing at once? Nope. You find one corner of the puzzle that you can solve, work on it, step back, and see if you can solve other pieces. So, let me suggest a way to do just that. First of all, it is EXTREMELY important that you resolve your sleep problems. Severe sleep apnea (or other sleep problems) causes a severe strain on your central nervous system. Believe me. I know. I've used a CPAP / BiPAP unit for more than six years now. I would NOT be alive without it. And my symptoms get MUCH worse if I sleep poorly. Let's see if that is a corner of the whole puzzle we can solve. I hope that if you can get your sleep problems under control, you will be better able to work through the other problems. How to get started on solving this? First of all, your PCP should be able to refer you for a sleep study. Sometimes they are reluctant to do so, because of the cost. If your PCP heads down that path, be insistent, and note that it is now impacting your ability to drive, and worry that it will result in a serious accident, even death. If you PCP doesn't listen to that, then change PCPs. If they are not worried about the resulting litigation they should not be in the practice of medicine - or anything else, for that matter. How can getting the sleep test help? It's quite likely from what you describe you are suffering SEVERE sleep deprivation. This is WAY beyond just missing a little bit of sleep. Remember, there is a reason that sleep deprivation is used as a form of torture throughout the world. It is effective. It is simple. And it will destroy the person being tortured. All without leaving a mark on that person. Here are a couple of site that discuss sleep apnea: http://health.yahoo.com/health/dc/000811/0.html http://www.cpapman.com/disorder.htm Please get on this immediately! It is that important to your health and to your family. Regards, =jbf= B. Fisher Sennewald Charlottesville, Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 : As a bystander, I really appreciate your approach to problems and succint way of expressing it. Well done! Message: 2 Date: Fri, 8 Mar 2002 15:08:50 -0500 Subject: RE: Jeff Maciejewski Greetings and Jeff! Jeff, I'm really writing this to you. You're wife just happens to be the courier for this note. But it's just me to you, okay? First, let's pretend you are at work and face this type of problem. It's overwhelming. Where do you start? By trying to tackle the whole thing at once? Nope. You find one corner of the puzzle that you can solve, work on it, step back, and see if you can solve other pieces. So, let me suggest a way to do just that. First of all, it is EXTREMELY important that you resolve your sleep problems. Severe sleep apnea (or other sleep problems) causes a severe strain on your central nervous system. Believe me. I know. I've used a CPAP / BiPAP unit for more than six years now. I would NOT be alive without it. And my symptoms get MUCH worse if I sleep poorly. Let's see if that is a corner of the whole puzzle we can solve. I hope that if you can get your sleep problems under control, you will be better able to work through the other problems. How to get started on solving this? First of all, your PCP should be able to refer you for a sleep study. Sometimes they are reluctant to do so, because of the cost. If your PCP heads down that path, be insistent, and note that it is now impacting your ability to drive, and worry that it will result in a serious accident, even death. If you PCP doesn't listen to that, then change PCPs. If they are not worried about the resulting litigation they should not be in the practice of medicine - or anything else, for that matter. How can getting the sleep test help? It's quite likely from what you describe you are suffering SEVERE sleep deprivation. This is WAY beyond just missing a little bit of sleep. Remember, there is a reason that sleep deprivation is used as a form of torture throughout the world. It is effective. It is simple. And it will destroy the person being tortured. All without leaving a mark on that person. Here are a couple of site that discuss sleep apnea: http://health.yahoo.com/health/dc/000811/0.html http://www.cpapman.com/disorder.htm Please get on this immediately! It is that important to your health and to your family. Regards, =jbf= B. Fisher Sennewald Charlottesville, Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 : As a bystander, I really appreciate your approach to problems and succint way of expressing it. Well done! Message: 2 Date: Fri, 8 Mar 2002 15:08:50 -0500 Subject: RE: Jeff Maciejewski Greetings and Jeff! Jeff, I'm really writing this to you. You're wife just happens to be the courier for this note. But it's just me to you, okay? First, let's pretend you are at work and face this type of problem. It's overwhelming. Where do you start? By trying to tackle the whole thing at once? Nope. You find one corner of the puzzle that you can solve, work on it, step back, and see if you can solve other pieces. So, let me suggest a way to do just that. First of all, it is EXTREMELY important that you resolve your sleep problems. Severe sleep apnea (or other sleep problems) causes a severe strain on your central nervous system. Believe me. I know. I've used a CPAP / BiPAP unit for more than six years now. I would NOT be alive without it. And my symptoms get MUCH worse if I sleep poorly. Let's see if that is a corner of the whole puzzle we can solve. I hope that if you can get your sleep problems under control, you will be better able to work through the other problems. How to get started on solving this? First of all, your PCP should be able to refer you for a sleep study. Sometimes they are reluctant to do so, because of the cost. If your PCP heads down that path, be insistent, and note that it is now impacting your ability to drive, and worry that it will result in a serious accident, even death. If you PCP doesn't listen to that, then change PCPs. If they are not worried about the resulting litigation they should not be in the practice of medicine - or anything else, for that matter. How can getting the sleep test help? It's quite likely from what you describe you are suffering SEVERE sleep deprivation. This is WAY beyond just missing a little bit of sleep. Remember, there is a reason that sleep deprivation is used as a form of torture throughout the world. It is effective. It is simple. And it will destroy the person being tortured. All without leaving a mark on that person. Here are a couple of site that discuss sleep apnea: http://health.yahoo.com/health/dc/000811/0.html http://www.cpapman.com/disorder.htm Please get on this immediately! It is that important to your health and to your family. Regards, =jbf= B. Fisher Sennewald Charlottesville, Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 , You hang in there, be as supportive as you can be. You are both in my prayers. Concerning the 'Doctor " , and I use this word loosely his behavior was totally uncalled for and unethical in his profession. I agree with what others have said that you should not let this pass without reporting him. *****If Dr. Baser is reading this, please respond as a doctor who cares about her patient. Please give some advise as to the proper procedure to follow.***** , Dr. Baser is 's doctor and she is wonderful..... Tell Jeff that he didn't deserve the treatment he received. He deserves so much MORE from a DOCTOR. Joan Re: Jeff Maciejewski > > , > Wondering how Jeff made out with his doctor's visit?. > Jean & Chrissie > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 Greetings ! Thanks for the kind words. But I would hope I could do that, since I solve lots of very difficult, time and business critical computer problems as part of my job. Either I do this correctly, or companies we support loose lots of money. Fortunately, solving problems is something I love to do. I discovered early on with this disorder, that tackling one thing at a time is essential. No magic. Just consistent use of that approach. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 Hi : I can understand your frustration with Jeff's Dr. I went thru the same sort of thing with my sister (). A neuro visited her in the hospital & practically told her he thought he could cure her, believe it or not. The first visit to his office, he was wonderful and prescribed some meds. They really didn't do much. The last time we went, when he realized he wasn't really " curing her " , he came in to see us with a resident, practically ignored us, treated terribly. We just ignored him & of course never returned. During 's MSA, in & out of hospitals, rehabs, etc. I only had to write 1 letter. And, after writing the letter, the problem was corrected. I never hesitated to mention to anyone if I felt they were not taking care of her properly. In my current job, we test many medical profs., including med students & Drs. They do have to take several tests, the final one for their license. I'm very impressed with alot of the younger upcoming Drs. I don't know if in the future they will change, but at this point in their life, they are eager for knowledge & seem like they would have a good bedside manner. There have been a few that have been extremely arrogant and just plain obnoxious, but not too many. Of course, we are testing them, so I guess they figure they had better be nice . My PCP is quite funny. In conversation, she has mentioned the names of Drs. in our area that she knows or went to med school with that are as she says, " scoping/testing for dollars " and to keep away from them. So, as with all professions, there are always a few duds. I think MSA must be a very frustrating disease to some Drs. as well as to all of us. They are trained to heal and help, but with today's HMO's, medicare, etc. their hands are tied. I think they just plain have some bad days and unfortunately make judgment errors. Carole Barber ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
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