Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Thanks for the encouragement. We've been to enough MD's to realize that there's doctors and then there's DOCTORS, if you know what I mean. Thank God for Jeff's PCP's! They are totally supportive, and have the integrity to admit that they don't know what they don't know, but are willing to find out. Just as an example, Jeff saw them on Friday, told them what happened, and what the doctor's recommendation was for a sleep study, and he's going in tonight to have it done!! They have actually organized a study group with the neuro's in town to analyze Jeff's case. San Angelo is probably the biggest " small town " in the USA. Everywhere we go, people know about Jeff and what's happening. We are on a first name basis with the entire pharmacy staff at Eckerd. The doctors keep in close contact with the pharmacist to make sure the drugs Jeff's getting are not in conflict with each other. I could go on, but really we feel very blessed that we have such great support here. Re: Jeff Maciejewski , You hang in there, be as supportive as you can be. You are both in my prayers. Concerning the 'Doctor " , and I use this word loosely his behavior was totally uncalled for and unethical in his profession. I agree with what others have said that you should not let this pass without reporting him. *****If Dr. Baser is reading this, please respond as a doctor who cares about her patient. Please give some advise as to the proper procedure to follow.***** , Dr. Baser is 's doctor and she is wonderful..... Tell Jeff that he didn't deserve the treatment he received. He deserves so much MORE from a DOCTOR. Joan Re: Jeff Maciejewski > > , > Wondering how Jeff made out with his doctor's visit?. > Jean & Chrissie > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 Hi , Jeff had his sleep study done last night. As you forewarned us, he was hooked up every which way but to the ceiling! He was there from about 8:30 to 5:00 AM. The technician on duty said that he had multiple " events " during his deep sleep phase. She said that most of them were obstructive, but some were " central " . She is supposed to do some analyzing and then the results are to be sent off to a disorder clinic for review. She's been doing these tests for 7 years and said she's never seen a " central " event. What does that mean? We should get the full report in about 2 weeks. They did a preliminary fitting for a CPAP. I've just gotten through printing up the sleep disorder info from the links you sent. Thanks for all your help again!!! M. RE: Jeff Maciejewski Greetings and Jeff! Jeff, I'm really writing this to you. You're wife just happens to be the courier for this note. But it's just me to you, okay? First, let's pretend you are at work and face this type of problem. It's overwhelming. Where do you start? By trying to tackle the whole thing at once? Nope. You find one corner of the puzzle that you can solve, work on it, step back, and see if you can solve other pieces. So, let me suggest a way to do just that. First of all, it is EXTREMELY important that you resolve your sleep problems. Severe sleep apnea (or other sleep problems) causes a severe strain on your central nervous system. Believe me. I know. I've used a CPAP / BiPAP unit for more than six years now. I would NOT be alive without it. And my symptoms get MUCH worse if I sleep poorly. Let's see if that is a corner of the whole puzzle we can solve. I hope that if you can get your sleep problems under control, you will be better able to work through the other problems. How to get started on solving this? First of all, your PCP should be able to refer you for a sleep study. Sometimes they are reluctant to do so, because of the cost. If your PCP heads down that path, be insistent, and note that it is now impacting your ability to drive, and worry that it will result in a serious accident, even death. If you PCP doesn't listen to that, then change PCPs. If they are not worried about the resulting litigation they should not be in the practice of medicine - or anything else, for that matter. How can getting the sleep test help? It's quite likely from what you describe you are suffering SEVERE sleep deprivation. This is WAY beyond just missing a little bit of sleep. Remember, there is a reason that sleep deprivation is used as a form of torture throughout the world. It is effective. It is simple. And it will destroy the person being tortured. All without leaving a mark on that person. Here are a couple of site that discuss sleep apnea: http://health.yahoo.com/health/dc/000811/0.html http://www.cpapman.com/disorder.htm Please get on this immediately! It is that important to your health and to your family. Regards, =jbf= B. Fisher If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 Hi , Jeff had his sleep study done last night. As you forewarned us, he was hooked up every which way but to the ceiling! He was there from about 8:30 to 5:00 AM. The technician on duty said that he had multiple " events " during his deep sleep phase. She said that most of them were obstructive, but some were " central " . She is supposed to do some analyzing and then the results are to be sent off to a disorder clinic for review. She's been doing these tests for 7 years and said she's never seen a " central " event. What does that mean? We should get the full report in about 2 weeks. They did a preliminary fitting for a CPAP. I've just gotten through printing up the sleep disorder info from the links you sent. Thanks for all your help again!!! M. RE: Jeff Maciejewski Greetings and Jeff! Jeff, I'm really writing this to you. You're wife just happens to be the courier for this note. But it's just me to you, okay? First, let's pretend you are at work and face this type of problem. It's overwhelming. Where do you start? By trying to tackle the whole thing at once? Nope. You find one corner of the puzzle that you can solve, work on it, step back, and see if you can solve other pieces. So, let me suggest a way to do just that. First of all, it is EXTREMELY important that you resolve your sleep problems. Severe sleep apnea (or other sleep problems) causes a severe strain on your central nervous system. Believe me. I know. I've used a CPAP / BiPAP unit for more than six years now. I would NOT be alive without it. And my symptoms get MUCH worse if I sleep poorly. Let's see if that is a corner of the whole puzzle we can solve. I hope that if you can get your sleep problems under control, you will be better able to work through the other problems. How to get started on solving this? First of all, your PCP should be able to refer you for a sleep study. Sometimes they are reluctant to do so, because of the cost. If your PCP heads down that path, be insistent, and note that it is now impacting your ability to drive, and worry that it will result in a serious accident, even death. If you PCP doesn't listen to that, then change PCPs. If they are not worried about the resulting litigation they should not be in the practice of medicine - or anything else, for that matter. How can getting the sleep test help? It's quite likely from what you describe you are suffering SEVERE sleep deprivation. This is WAY beyond just missing a little bit of sleep. Remember, there is a reason that sleep deprivation is used as a form of torture throughout the world. It is effective. It is simple. And it will destroy the person being tortured. All without leaving a mark on that person. Here are a couple of site that discuss sleep apnea: http://health.yahoo.com/health/dc/000811/0.html http://www.cpapman.com/disorder.htm Please get on this immediately! It is that important to your health and to your family. Regards, =jbf= B. Fisher If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 Beth, I took my brother to two sleeps studies in two different facilities, and neither would permit family to stay after the patient was settled in. I am sure though that arrangements can be made to accommodate any special circumstances your husband has, including wheel chair use and incontenence issues. I'm sure others on the list such as jbf will tell you how important it is that he deal with the sleep apnea issues. Also, if he is a loud snorer my sister-in-law would tell you that you will be amazed at how much more peaceful your nights will be after he starts on CPAP or BiPap if they are prescribed for him. Jerry Cash RE: Jeff Maciejewski Greetings and Jeff! Jeff, I'm really writing this to you. You're wife just happens to be the courier for this note. But it's just me to you, okay? First, let's pretend you are at work and face this type of problem. It's overwhelming. Where do you start? By trying to tackle the whole thing at once? Nope. You find one corner of the puzzle that you can solve, work on it, step back, and see if you can solve other pieces. So, let me suggest a way to do just that. First of all, it is EXTREMELY important that you resolve your sleep problems. Severe sleep apnea (or other sleep problems) causes a severe strain on your central nervous system. Believe me. I know. I've used a CPAP / BiPAP unit for more than six years now. I would NOT be alive without it. And my symptoms get MUCH worse if I sleep poorly. Let's see if that is a corner of the whole puzzle we can solve. I hope that if you can get your sleep problems under control, you will be better able to work through the other problems. How to get started on solving this? First of all, your PCP should be able to refer you for a sleep study. Sometimes they are reluctant to do so, because of the cost. If your PCP heads down that path, be insistent, and note that it is now impacting your ability to drive, and worry that it will result in a serious accident, even death. If you PCP doesn't listen to that, then change PCPs. If they are not worried about the resulting litigation they should not be in the practice of medicine - or anything else, for that matter. How can getting the sleep test help? It's quite likely from what you describe you are suffering SEVERE sleep deprivation. This is WAY beyond just missing a little bit of sleep. Remember, there is a reason that sleep deprivation is used as a form of torture throughout the world. It is effective. It is simple. And it will destroy the person being tortured. All without leaving a mark on that person. Here are a couple of site that discuss sleep apnea: http://health.yahoo.com/health/dc/000811/0.html http://www.cpapman.com/disorder.htm Please get on this immediately! It is that important to your health and to your family. Regards, =jbf= B. Fisher If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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