Re: Another Hospital Admission

[Guest guest]

Hi,

Dehydration and infection are always signs of swallowing problems, so a

swallowing test should be considered. Don't let them just rehydrate the

patient and go home without looking for a cause, it will come back to haunt

you. In addition to MSA problems, the patient can get other problems on top

of MSA.

Surgery with a MSA patient only requires that:

(A) - you inform the anesthesiologist that the patient has autonomic failure

and orthostatic hypotension and therefore tends to have a loss of BP with

dehydration. Hydration via IV has helped this problem in MSA patients.

( - Also tell them every medicine (as well as amount and doseage) the

patient takes. IF the patient is taking OTC meds or suppllements you MUST

also tell them, as things like that can hurt blood clotting or BP also.

Take care, Bill Werre

vvmooney wrote:

> I sent a message last week about my husband's lack of appetite,

> weight loss, lack of sense of smell, vomitting when he ate, etc. The

> response from several of you was to get him to the doctor, which I

> did last Thursday. The results of the tests were liver - extremely

> high counts. We went for an ultrasound today of the liver today and

> abnormalities in the spleen, gall bladder, and liver were found. He

> was admitted to the hospital and they are doing a cat scan tomorrow.

> They started the procedure tonight, but then found his kidneys counts

> were off.

> They are going to hydrate him tonight and then do the cat scan in the

> morning.

> My question to you: have any of you experienced these type of

> problems? He blacked out Monday and again today twice. He is

> extremely week from not eating.

> Also, there has been information on this web site about surgery and

> anesthesia for shy-drager patients and I can't seem to find the

> information. Do any of you remember?

> I appreciate any help you can give me. Thank you.

[Guest guest]

to Bob Werre: I tried to write you directly at your site b.werre@... and I got it back saying no such site. Do I have your correct email address? Please write me back. Thanks again for your call the other night. Is this the information you wanted me to know about hydration before my mom's surgery next Friday? Vicki Latham

My direct email site is dvmac7@...

[Guest guest]

Hi, nothing to offer as help but wanted to say you both are in our prayers.

Hope they can be of help to you.

S.

Another Hospital Admission

> I sent a message last week about my husband's lack of appetite,

> weight loss, lack of sense of smell, vomitting when he ate, etc. The

> response from several of you was to get him to the doctor, which I

> did last Thursday. The results of the tests were liver - extremely

> high counts. We went for an ultrasound today of the liver today and

> abnormalities in the spleen, gall bladder, and liver were found. He

> was admitted to the hospital and they are doing a cat scan tomorrow.

> They started the procedure tonight, but then found his kidneys counts

> were off.

> They are going to hydrate him tonight and then do the cat scan in the

> morning.

> My question to you: have any of you experienced these type of

> problems? He blacked out Monday and again today twice. He is

> extremely week from not eating.

> Also, there has been information on this web site about surgery and

> anesthesia for shy-drager patients and I can't seem to find the

> information. Do any of you remember?

> I appreciate any help you can give me. Thank you.

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

VVmooney,

Eating is important but getting enough fluids is the most important factor.

In fact, Dehydration may be involved in some of these test results.

Dehydration means one has a lower volume of blood, so the tests are going to

be high, and will cause patients with OH to pass out.

Let us know how things turn out.

God Bless,

Judy & Jim Stark

Another Hospital Admission

> I sent a message last week about my husband's lack of appetite,

> weight loss, lack of sense of smell, vomitting when he ate, etc. The

> response from several of you was to get him to the doctor, which I

> did last Thursday. The results of the tests were liver - extremely

> high counts. We went for an ultrasound today of the liver today and

> abnormalities in the spleen, gall bladder, and liver were found. He

> was admitted to the hospital and they are doing a cat scan tomorrow.

> They started the procedure tonight, but then found his kidneys counts

> were off.

> They are going to hydrate him tonight and then do the cat scan in the

> morning.

> My question to you: have any of you experienced these type of

> problems? He blacked out Monday and again today twice. He is

> extremely week from not eating.

> Also, there has been information on this web site about surgery and

> anesthesia for shy-drager patients and I can't seem to find the

> information. Do any of you remember?

> I appreciate any help you can give me. Thank you.

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

VVmooney,

Eating is important but getting enough fluids is the most important factor.

In fact, Dehydration may be involved in some of these test results.

Dehydration means one has a lower volume of blood, so the tests are going to

be high, and will cause patients with OH to pass out.

Let us know how things turn out.

God Bless,

Judy & Jim Stark

Another Hospital Admission

> I sent a message last week about my husband's lack of appetite,

> weight loss, lack of sense of smell, vomitting when he ate, etc. The

> response from several of you was to get him to the doctor, which I

> did last Thursday. The results of the tests were liver - extremely

> high counts. We went for an ultrasound today of the liver today and

> abnormalities in the spleen, gall bladder, and liver were found. He

> was admitted to the hospital and they are doing a cat scan tomorrow.

> They started the procedure tonight, but then found his kidneys counts

> were off.

> They are going to hydrate him tonight and then do the cat scan in the

> morning.

> My question to you: have any of you experienced these type of

> problems? He blacked out Monday and again today twice. He is

> extremely week from not eating.

> Also, there has been information on this web site about surgery and

> anesthesia for shy-drager patients and I can't seem to find the

> information. Do any of you remember?

> I appreciate any help you can give me. Thank you.

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

hi my mom was just admitted to the hospital late last night for dehydration and not being able to swallow any food or medication she also blacked out we have to decide on a feeding tube in her stomach or not? what are your thoughts on this? she has msa melissa

[Guest guest]

hi my mom was just admitted to the hospital late last night for dehydration and not being able to swallow any food or medication she also blacked out we have to decide on a feeding tube in her stomach or not? what are your thoughts on this? she has msa melissa

[Guest guest]

hi my mom was just admitted to the hospital late last night for dehydration and not being able to swallow any food or medication she also blacked out we have to decide on a feeding tube in her stomach or not? what are your thoughts on this? she has msa melissa

[Guest guest]

The PEG can be life saving and life enhancing. Tho I must

admit it is a big decision.

My husband had one but he could also eat some soft things with care.

God bless you and give you wisdom for the decision making time.

Barb in Arlington

--

"I'll lean on you and you lean on me and we'll be okay." Dave s

[Guest guest]

The PEG can be life saving and life enhancing. Tho I must

admit it is a big decision.

My husband had one but he could also eat some soft things with care.

God bless you and give you wisdom for the decision making time.

Barb in Arlington

--

"I'll lean on you and you lean on me and we'll be okay." Dave s

[Guest guest]

The PEG can be life saving and life enhancing. Tho I must

admit it is a big decision.

My husband had one but he could also eat some soft things with care.

God bless you and give you wisdom for the decision making time.

Barb in Arlington

--

"I'll lean on you and you lean on me and we'll be okay." Dave s

[Guest guest]

,

Charlotte my wife went through this in 1998 and got the PEG. After

that she was able to eat a mechanically soft diet with speech therapy.

She lived another three years with the PEG getting almost all liquids through

the tube. For most of those three years, she had a fair quality of

life.

Take care, Bill Werre

========================================================

T7311478@... wrote:

hi

my mom was just admitted to the hospital late last night for dehydration

and not being able to swallow any food or medication she also blacked out

we have to decide on a feeding tube in her stomach or not? what are

your thoughts on this? she has msa melissa

If you do not wish to belong to shydrager,

you may

unsubscribe by sending a blank email

to

shydrager-unsubscribe

[Guest guest]

,

Charlotte my wife went through this in 1998 and got the PEG. After

that she was able to eat a mechanically soft diet with speech therapy.

She lived another three years with the PEG getting almost all liquids through

the tube. For most of those three years, she had a fair quality of

life.

Take care, Bill Werre

========================================================

T7311478@... wrote:

hi

my mom was just admitted to the hospital late last night for dehydration

and not being able to swallow any food or medication she also blacked out

we have to decide on a feeding tube in her stomach or not? what are

your thoughts on this? she has msa melissa

If you do not wish to belong to shydrager,

you may

unsubscribe by sending a blank email

to

shydrager-unsubscribe

[Guest guest]

:

Such difficult decisions! My first thought is wondering what she wants to happen... Have you as a family discussed with her how she wants to manage the course of her illness? Is she able now to participate in the decision-making process? I'm sure you will do your best to honor her wishes regarding her care and any treatment, etc.

God bless,

Grace

Re: Another Hospital Admission

hi my mom was just admitted to the hospital late last night for dehydration and not being able to swallow any food or medication she also blacked out we have to decide on a feeding tube in her stomach or not? what are your thoughts on this? she has msa melissa

[Guest guest]

:

Such difficult decisions! My first thought is wondering what she wants to happen... Have you as a family discussed with her how she wants to manage the course of her illness? Is she able now to participate in the decision-making process? I'm sure you will do your best to honor her wishes regarding her care and any treatment, etc.

God bless,

Grace

Re: Another Hospital Admission

hi my mom was just admitted to the hospital late last night for dehydration and not being able to swallow any food or medication she also blacked out we have to decide on a feeding tube in her stomach or not? what are your thoughts on this? she has msa melissa

[Guest guest]

:

Such difficult decisions! My first thought is wondering what she wants to happen... Have you as a family discussed with her how she wants to manage the course of her illness? Is she able now to participate in the decision-making process? I'm sure you will do your best to honor her wishes regarding her care and any treatment, etc.

God bless,

Grace

Re: Another Hospital Admission

hi my mom was just admitted to the hospital late last night for dehydration and not being able to swallow any food or medication she also blacked out we have to decide on a feeding tube in her stomach or not? what are your thoughts on this? she has msa melissa

[Guest guest]

Hi everyone: Bob was discharged from the hospital yesterday. The

swallowng test showed he was aspirating water & now he needs to have all

his liquids thickened. The dr. said the next step (if the thickener

doesn't work) is a feeding tube, which he said he doesn't want. Do many

of the patients on this list have one? Regards, jerrie

[Guest guest]

Hi everyone: Bob was discharged from the hospital yesterday. The

swallowng test showed he was aspirating water & now he needs to have all

his liquids thickened. The dr. said the next step (if the thickener

doesn't work) is a feeding tube, which he said he doesn't want. Do many

of the patients on this list have one? Regards, jerrie

[Guest guest]

Hi everyone: Bob was discharged from the hospital yesterday. The

swallowng test showed he was aspirating water & now he needs to have all

his liquids thickened. The dr. said the next step (if the thickener

doesn't work) is a feeding tube, which he said he doesn't want. Do many

of the patients on this list have one? Regards, jerrie

[Guest guest]

Hi, I don't know how many have one-Leo has had a feeding tube for about 3

yrs. He could still eat some, till he could not use his hands anymore. It

was a trememdous help with liquids. He was dehydrated and couldn't get the

meds down til the peg tube. Ginger

Re: Another Hospital Admission

> Hi everyone: Bob was discharged from the hospital yesterday. The

> swallowng test showed he was aspirating water & now he needs to have all

> his liquids thickened. The dr. said the next step (if the thickener

> doesn't work) is a feeding tube, which he said he doesn't want. Do many

> of the patients on this list have one? Regards, jerrie

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Hi, I don't know how many have one-Leo has had a feeding tube for about 3

yrs. He could still eat some, till he could not use his hands anymore. It

was a trememdous help with liquids. He was dehydrated and couldn't get the

meds down til the peg tube. Ginger

Re: Another Hospital Admission

> Hi everyone: Bob was discharged from the hospital yesterday. The

> swallowng test showed he was aspirating water & now he needs to have all

> his liquids thickened. The dr. said the next step (if the thickener

> doesn't work) is a feeding tube, which he said he doesn't want. Do many

> of the patients on this list have one? Regards, jerrie

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Hi, I don't know how many have one-Leo has had a feeding tube for about 3

yrs. He could still eat some, till he could not use his hands anymore. It

was a trememdous help with liquids. He was dehydrated and couldn't get the

meds down til the peg tube. Ginger

Re: Another Hospital Admission

> Hi everyone: Bob was discharged from the hospital yesterday. The

> swallowng test showed he was aspirating water & now he needs to have all

> his liquids thickened. The dr. said the next step (if the thickener

> doesn't work) is a feeding tube, which he said he doesn't want. Do many

> of the patients on this list have one? Regards, jerrie

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Jerrie,

Most late stage MSA patients need a PEG at some point. Swallowing becomes a

real problem and aspiration is common. Some patients refuse the PEG and take

their chances. In my wife's case, she got the PEG in August 1998 and I feel

it gave her at least three more years of quality life. She regained her

ability to eat and some speech after getting the PEG, but took all liquids

through the tube (and most meds). We supplemented her eating with things

like Ensure and Jevity to make sure she got a proper balanced diet.

Take care, Bill Werre

=========================================

deenzer@... wrote:

> Hi everyone: Bob was discharged from the hospital yesterday. The

> swallowng test showed he was aspirating water & now he needs to have all

> his liquids thickened. The dr. said the next step (if the thickener

> doesn't work) is a feeding tube, which he said he doesn't want. Do many

> of the patients on this list have one? Regards, jerrie

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>