Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Shirley Get the trach. What your doctor is telling you is no longer has the automatic function of normal breathing. His brain is no longer telling his body to take a breath. He could go in an instant if someone isn't there. Trach's can be fitted with a switch of some kind that allows them to be turned off and on for talking. I'd have to look but Judy's Mark had one and a couple more have had them due to MSA. There should be a reference in the archives as well as the name of what Mark had. Remember, the functions that are controlled by the autonomic system no longer work as they should and one of those is breathing as is heart rate, digestion, bowel movements, ect. Get the trach as soon as possible. The CPAP will not work for what he has now unless he wears is 24 hours a day and he won't want to do that. Sally in KS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Shirley Get the trach. What your doctor is telling you is no longer has the automatic function of normal breathing. His brain is no longer telling his body to take a breath. He could go in an instant if someone isn't there. Trach's can be fitted with a switch of some kind that allows them to be turned off and on for talking. I'd have to look but Judy's Mark had one and a couple more have had them due to MSA. There should be a reference in the archives as well as the name of what Mark had. Remember, the functions that are controlled by the autonomic system no longer work as they should and one of those is breathing as is heart rate, digestion, bowel movements, ect. Get the trach as soon as possible. The CPAP will not work for what he has now unless he wears is 24 hours a day and he won't want to do that. Sally in KS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Greetings Shirley! I concur on this. really, really needs to see a pulmonologist as soon as possible. He may require assistive ventilation all the time now. Think of . It is not as bad as that, but he may need assistance from a ventilator to keep an eye on his breathing. If he does not breathe within a certain period of time, the machine will kick start his breathing. But that is JUST a guess on my part. Don't be afraid of it. The pulmonologist may try other routes, such as medication, which can help increase the respiratory drive. Time to see the specialist on an emergency basis. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Hi Shirley, I'm Mark's Judy and still read most messages but don't post too often. Mark had a valve for his trach that is called a Passey Muir valve. It worked great, insurance covered it but the cost is only around $50.00. It is put on manually and can be worn all day but not during sleep. Mark did manage to talk pretty well with his on. The valve also cut down on suctioning and seemed to help him swallow a little better. Hope this helps, Take care, Judy Whittaker Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Hi Shirley, I'm Mark's Judy and still read most messages but don't post too often. Mark had a valve for his trach that is called a Passey Muir valve. It worked great, insurance covered it but the cost is only around $50.00. It is put on manually and can be worn all day but not during sleep. Mark did manage to talk pretty well with his on. The valve also cut down on suctioning and seemed to help him swallow a little better. Hope this helps, Take care, Judy Whittaker Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Hi Shirley, I'm Mark's Judy and still read most messages but don't post too often. Mark had a valve for his trach that is called a Passey Muir valve. It worked great, insurance covered it but the cost is only around $50.00. It is put on manually and can be worn all day but not during sleep. Mark did manage to talk pretty well with his on. The valve also cut down on suctioning and seemed to help him swallow a little better. Hope this helps, Take care, Judy Whittaker Quote Link to comment Share on other sites More sharing options...
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