Question?

[Guest guest]

Perla...I run and power walk. I used to run about five miles a day and now I'm running about two miles and walking for three.Embarrassment... totally relate. I'm at goal now, I've lost 105 pounds and you know what? I'm STILL embarrassed. I live in the desert so it is finally cooling off here a bit at night so I wait until around 1AM to go running. Of course, there was a nasty incident with " nak'ed guy " (story for another day) while I was running but I still can't bring myself to run during the day in front of people.

I couldn't even bring myself to go to a gym so I bought a treadmill and bowflex. I still have NO clue what to do with the bowflex but I have one. ;o) Point being, I understand what you are saying about the exercise thing. I'm still feeling the same as you.

My suggestion for you is walking. Go to the mall, you certainly won't be out of place there and just walk. Walk from one end of the mall to the other. Recent studies show that 20-30 minutes of exercise x4 daily is MORE beneficial than two full hours at a time. Being a newbie you likely won't be able to walk fast or far and that's okay, you want to break it up anyway. So go to the mall, walk 5-20 minutes and stop in a store and look around. Take your time, then go do it again. Nobody will even know you are exercising.

I don't suggest walking at 1am because I'm here to tell you, nak'ed guys are out at that time, yikes! But a mall? You'd fit in, it would be a place you could enjoy, it's out in public, and nobody will even know what you are doing.

When you start to get just a tad more fit then maybe Curves. I don't know a lot about it, never had a membership but I've heard wonderful things about it. Everyone else will be in the same boat as you. As you lose weight your confidence will increase and you might not have the same hangups as I do running in public! ;o)

When you go back to school in a week and your friends are eating stuff that you are used to the #1 suggestion I have for you is to cut out ALL white carbs. No sugar, no pasta, no rice, no flour, no potatoes. It will make your blood sugar all mooky <--yes, my new word) and you'll be so hungry you'll want to gnaw on your own left thigh. Cut out ALL white carbs. Stick to protein. Ohhhh, you'll still battle head hunger but you won't be battling stomach hunger. No, it isn't going to be easy but you are doing this to save your very life. If you are getting surgery as a teen then that means it is quite likely you'll be double your size in 10 - 20 years. You could die from this. This is big time serious. The 30 days of the post op diet is hard but done right it is totally doable. It's one month out of your entire life and done well, you stand a good chance of having a nice, long, and healthy life. The trick for me during the post op diet was that I realized I really wasn't denying myself anything, I was simply going to wait for another day to eat what I wanted. Chips, cookies, the works... it's not like I could never have it again, I just couldn't have it at that very moment.

Start finding protein shakes you like now, don't wait until your friends are eating chips to discover you picked the absolute worst protein product out there. I like Matrix 5.0 Chocolate with Da Vinci S/F Raspberry syrup. I also love love love Whey Gourmet Chocolate/Peanut butter protein shakes. Totally doable with water and not milk (as Matrix) and it's about 120 calories and 22gms protein. Those items can be found at www.netrition.com.Like peanut butter? LOVE peanut butter? Check out the following, low carbs, low calories, 75% less fat, and ALL the flavor:

http://www.bellplantation.com/mm5/merchant.mvc?Screen=PROD & Store_Code=BP & Product_Code=PB2-4 & Category_Code=Fantastic stuff. Add a tablespoon to your Chocolate Matrix 5.0 and it's a total of 150 calories, 25gms protein, and even a little extra fiber.

While it will be hard it IS something you can do. You and me, we can't do the traditional diet and exercise and keep the pounds off. I don't know specifics of why that is but the bottom line is that we just can't. We wouldn't be posting here if we could. But with a band and restriction, that is the kind of hard WE can do. Being banded is no walk in the park, it's pretty damned hard. But it really is the *kind* of hard WE can do unlike traditional diet and exercise.

I used to beat myself up because I couldn't just quit stuffing my face with burgers. I don't do that anymore, today I know there are biological reasons we overeat. But that doesn't mean we are out of options, it means we do things different from others, we get banded and get our lives back.

During the post op diet just keep remembering the goal, thin and healthy. Take it day by day, hour by hour, heck... take it one minute at a time if you have to. But you can do this. I never thought in a million years I'd be giving up bread and soda, along with my big fat butt in exchange for protein shakes and running but I am.

Oy veh... I did it again. I wrote another book. But honestly, what I have written is true. If I can do it .. damn sure anyone can do it! If you want it bad enough, you'll get it.252/150/147Banded 12/06

Goal in 10 months!!!On 10/24/07, Perla Escobar <dimples_171990@...> wrote:

Hey Everyone im new to the group and im gettin banded on Nov. 5 im

really excited to get it done but i was just wondering what kind of

excercise do you guys do because honestly ive never been good at

excercise i guess because i would get embarassed since my weight but i

really want this band to work and i know i have to do excercise in

order to loose weight succesfully?? so i was just wondering...... and

also does yore body hurt after the surgery?? oh and im a senior in

high school so i have to go to school after a week of being back so i

was wondering if its hard to get around and what did you drink during

thew liquid phase to not get hungry cuse i have to see all my friends

eat chips and all that crazy junk food :-( lol! well i would

appreciate any suggestions and comments and i will keep in contacr

because i will definately need the support after surgery :-)!!

oh annd is anyone having surgery on November 5th??

Perla

[Guest guest]

Perla, You go girl! I'm proud of you for taking the step now while your still so young and wanting to get healthy...A lot of us have waited until we're older and BAM! We're now in our 30's, 40's, 50's and 60's before we take control and do something about it...But you are taking control now...Very impressive... As for exercise...I am one year out from surgery and I'm 1 pound from being at my goal of 135 and I don't exercise...I tried walking but to boring...I'm just not into exercising...I wish I were but I'm not...Exercise will help you lose the weight faster and to tone up...I really need to find something that will interest me to help me in those areas...But your being so young may not have the same problems us oldies have with loose skin, drooping everything else ... So if you can find something you like to do then do that... As for eating...The 1st few weeks may be

be harder for you than for us...Since you'll be around young people who will be eating in front of you...Eating food you won't be able to eat...Take you some jello, broath and drink lots of water...Also get you some protien powder...A really good one is Matrix 5.0 (the cookies & cream is really good). That will fill you up good...You can buy it online just type it in your browser... Good luck and best wishes...Take care Rena DOB: 9/26/06 204/136/135 Perla Escobar <dimples_171990@...> wrote: Hey Everyone im new to the group and im gettin banded on Nov. 5 im really excited to get it done but i was just wondering what kind of excercise do you guys do because honestly ive never been good at excercise i guess because i would get embarassed since my weight but i really want this band to work and i know i have to do excercise in order to loose weight succesfully?? so i was just wondering...... and also does yore body hurt after the surgery?? oh and im a senior in high school so i have to go to school after a week of being back so i was wondering if its hard to get around and what did you drink during thew liquid phase to not get hungry cuse i have to see all my friends eat chips and all that crazy junk food :-( lol! well i would appreciate any suggestions and comments and i will keep in contacr because i will definately need the support after

surgery :-)!! oh annd is anyone having surgery on November 5th??Perla __________________________________________________

[Guest guest]

Perla, When I began this weight loss journey, I weighed 247 pounds. At five weeks, we were able to start exercisins. I joined Curves because I was too embarassed to do anything else. Curves was perfect for this. Everyone in there was just like me or they were much older. The more I went, the more weight I lost, the easier it became. I did that for a year before I joined the YMCA and began working out with all sorts of people. I realize that I am not quite as fit as many (especially the men) but I am more fit than many others. Then, I also realized that no one in there really cares what you look like...no one really pays attention to other people. That is one of those things we all put in our heads. At this point, since I am below goal, I exercise in all sorts of ways. I run, swim, and lift weights. It has gotten much easier since

I've lost all the weight. I could not have done these things before losing the weight. I always hated exercising before but now I love it. Good luck to you. You should be proud that you are taking this step at such an early age. Why wait until you reach mid-life and have gained even more weight? Get a handle on it now and your life will be so much better! Keep asking questions... Jenni DOB 2/23/06 247/145/140 5 fills 3 unfillsBipley <Bipley@...> wrote: Perla...I run and power walk. I used to run about five miles a day and now I'm running about two miles and walking for three.Embarrassment... totally relate. I'm at goal now, I've lost 105 pounds and you know what? I'm STILL embarrassed. I live in the desert so it is finally cooling off here a bit at night so I wait until around 1AM to go running. Of course, there was a nasty incident with "nak'ed guy" (story for another day) while I was running but I still can't bring myself to run during the day in front of people. I couldn't even bring myself to go to a gym so I bought a treadmill and bowflex. I still have NO clue what to do with the bowflex but I have one. ;o) Point being, I understand what you are saying about the exercise thing. I'm still feeling the same as you. My suggestion for you is walking. Go to the mall,

you certainly won't be out of place there and just walk. Walk from one end of the mall to the other. Recent studies show that 20-30 minutes of exercise x4 daily is MORE beneficial than two full hours at a time. Being a newbie you likely won't be able to walk fast or far and that's okay, you want to break it up anyway. So go to the mall, walk 5-20 minutes and stop in a store and look around. Take your time, then go do it again. Nobody will even know you are exercising. I don't suggest walking at 1am because I'm here to tell you, nak'ed guys are out at that time, yikes! But a mall? You'd fit in, it would be a place you could enjoy, it's out in public, and nobody will even know what you are doing. When you start to get just a tad more fit then maybe Curves. I don't know a lot about it, never had a membership but I've heard wonderful things about it. Everyone else will be in the same boat as you.

As you lose weight your confidence will increase and you might not have the same hangups as I do running in public! ;o) When you go back to school in a week and your friends are eating stuff that you are used to the #1 suggestion I have for you is to cut out ALL white carbs. No sugar, no pasta, no rice, no flour, no potatoes. It will make your blood sugar all mooky <--yes, my new word) and you'll be so hungry you'll want to gnaw on your own left thigh. Cut out ALL white carbs. Stick to protein. Ohhhh, you'll still battle head hunger but you won't be battling stomach hunger. No, it isn't going to be easy but you are doing this to save your very life. If you are getting surgery as a teen then that means it is quite likely you'll be double your size in 10 - 20 years. You could die from this. This is big time serious. The 30 days of the post op diet is hard but done right it is totally doable. It's

one month out of your entire life and done well, you stand a good chance of having a nice, long, and healthy life. The trick for me during the post op diet was that I realized I really wasn't denying myself anything, I was simply going to wait for another day to eat what I wanted. Chips, cookies, the works... it's not like I could never have it again, I just couldn't have it at that very moment. Start finding protein shakes you like now, don't wait until your friends are eating chips to discover you picked the absolute worst protein product out there. I like Matrix 5.0 Chocolate with Da Vinci S/F Raspberry syrup. I also love love love Whey Gourmet Chocolate/Peanut butter protein shakes. Totally doable with water and not milk (as Matrix) and it's about 120 calories and 22gms protein. Those items can be found at www.netrition.com.Like peanut butter? LOVE peanut

butter? Check out the following, low carbs, low calories, 75% less fat, and ALL the flavor:http://www.bellplantation.com/mm5/merchant.mvc?Screen=PROD & Store_Code=BP & Product_Code=PB2-4 & Category_Code=Fantastic stuff. Add a tablespoon to your Chocolate Matrix 5.0 and it's a total of 150 calories, 25gms protein, and even a little extra fiber. While it will be hard it IS something you can do. You and me, we can't do the traditional diet and exercise and keep the pounds off. I don't know specifics of why that is but the bottom line is that we just can't. We wouldn't be posting here if we could. But with a band and restriction, that is the kind of hard WE can do. Being banded is no walk in the park, it's pretty damned hard. But it really is

the *kind* of hard WE can do unlike traditional diet and exercise. I used to beat myself up because I couldn't just quit stuffing my face with burgers. I don't do that anymore, today I know there are biological reasons we overeat. But that doesn't mean we are out of options, it means we do things different from others, we get banded and get our lives back. During the post op diet just keep remembering the goal, thin and healthy. Take it day by day, hour by hour, heck... take it one minute at a time if you have to. But you can do this. I never thought in a million years I'd be giving up bread and soda, along with my big fat butt in exchange for protein shakes and running but I am. Oy veh... I did it again. I wrote another book. But honestly, what I have written is true. If I can do it .. damn sure anyone can do it! If you want it bad enough, you'll get it.252/150/147Banded 12/06

Goal in 10 months!!! On 10/24/07, Perla Escobar <dimples_171990hotmail> wrote: Hey Everyone im new to the group and im gettin banded on Nov. 5 im really excited to get it done but i was just wondering what kind of excercise do you guys do because honestly ive never been good at excercise i guess because i would get embarassed since my weight but i really want this band to work and i know i have to do excercise in order to loose weight succesfully?? so i was just wondering...... and also does yore body hurt after the surgery?? oh and im a senior in high school so i have to go to school after a week of being back so i was wondering if its

hard to get around and what did you drink during thew liquid phase to not get hungry cuse i have to see all my friends eat chips and all that crazy junk food :-( lol! well i would appreciate any suggestions and comments and i will keep in contacr because i will definately need the support after surgery :-)!! oh annd is anyone having surgery on November 5th??Perla __________________________________________________

[Guest guest]

I just talked to a man from Germany who lost 13 kgs (28.6 lbs) in 1 month by doing Nordic walking. Apparently it is done with two things in your hands, like ski poles. Does not sound too strenuos, but then I did not try it, nor did I research it. The idea of leaning on the poles, if necessary, appeals to me. Plus I could beat up anyone I would want to. Just joking...

Margaret

On 10/25/07, J Currie <giftedtch@...> wrote:

Perla,

When I began this weight loss journey, I weighed 247 pounds. At five weeks, we were able to start exercisins. I joined Curves because I was too embarassed to do anything else. Curves was perfect for this. Everyone in there was just like me or they were much older. The more I went, the more weight I lost, the easier it became. I did that for a year before I joined the YMCA and began working out with all sorts of people. I realize that I am not quite as fit as many (especially the men) but I am more fit than many others. Then, I also realized that no one in there really cares what you look like...no one really pays attention to other people. That is one of those things we all put in our heads.

At this point, since I am below goal, I exercise in all sorts of ways. I run, swim, and lift weights. It has gotten much easier since I've lost all the weight. I could not have done these things before losing the weight. I always hated exercising before but now I love it.

Good luck to you. You should be proud that you are taking this step at such an early age. Why wait until you reach mid-life and have gained even more weight? Get a handle on it now and your life will be so much better! Keep asking questions...

Jenni

DOB 2/23/06

247/145/140

5 fills

3 unfillsBipley <Bipley@...> wrote:

Perla...I run and power walk. I used to run about five miles a day and now I'm running about two miles and walking for three.Embarrassment... totally relate. I'm at goal now, I've lost 105 pounds and you know what? I'm STILL embarrassed. I live in the desert so it is finally cooling off here a bit at night so I wait until around 1AM to go running. Of course, there was a nasty incident with " nak'ed guy " (story for another day) while I was running but I still can't bring myself to run during the day in front of people. I couldn't even bring myself to go to a gym so I bought a treadmill and bowflex. I still have NO clue what to do with the bowflex but I have one. ;o) Point being, I understand what you are saying about the exercise thing. I'm still feeling the same as you. My suggestion for you is walking. Go to the mall, you certainly won't be out of place there and just walk. Walk from one end of the mall to the other. Recent studies show that 20-30 minutes of exercise x4 daily is MORE beneficial than two full hours at a time. Being a newbie you likely won't be able to walk fast or far and that's okay, you want to break it up anyway. So go to the mall, walk 5-20 minutes and stop in a store and look around. Take your time, then go do it again. Nobody will even know you are exercising. I don't suggest walking at 1am because I'm here to tell you, nak'ed guys are out at that time, yikes! But a mall? You'd fit in, it would be a place you could enjoy, it's out in public, and nobody will even know what you are doing. When you start to get just a tad more fit then maybe Curves. I don't know a lot about it, never had a membership but I've heard wonderful things about it. Everyone else will be in the same boat as you. As you lose weight your confidence will increase and you might not have the same hangups as I do running in public! ;o) When you go back to school in a week and your friends are eating stuff that you are used to the #1 suggestion I have for you is to cut out ALL white carbs. No sugar, no pasta, no rice, no flour, no potatoes. It will make your blood sugar all mooky <--yes, my new word) and you'll be so hungry you'll want to gnaw on your own left thigh. Cut out ALL white carbs. Stick to protein. Ohhhh, you'll still battle head hunger but you won't be battling stomach hunger. No, it isn't going to be easy but you are doing this to save your very life. If you are getting surgery as a teen then that means it is quite likely you'll be double your size in 10 - 20 years. You could die from this. This is big time serious. The 30 days of the post op diet is hard but done right it is totally doable. It's one month out of your entire life and done well, you stand a good chance of having a nice, long, and healthy life. The trick for me during the post op diet was that I realized I really wasn't denying myself anything, I was simply going to wait for another day to eat what I wanted. Chips, cookies, the works... it's not like I could never have it again, I just couldn't have it at that very moment. Start finding protein shakes you like now, don't wait until your friends are eating chips to discover you picked the absolute worst protein product out there. I like Matrix 5.0 Chocolate with Da Vinci S/F Raspberry syrup. I also love love love Whey Gourmet Chocolate/Peanut butter protein shakes. Totally doable with water and not milk (as Matrix) and it's about 120 calories and 22gms protein. Those items can be found at www.netrition.com.Like peanut butter? LOVE peanut butter? Check out the following, low carbs, low calories, 75% less fat, and ALL the flavor:

http://www.bellplantation.com/mm5/merchant.mvc?Screen=PROD & Store_Code=BP & Product_Code=PB2-4 & Category_Code=

Fantastic stuff. Add a tablespoon to your Chocolate Matrix 5.0 and it's a total of 150 calories, 25gms protein, and even a little extra fiber. While it will be hard it IS something you can do. You and me, we can't do the traditional diet and exercise and keep the pounds off. I don't know specifics of why that is but the bottom line is that we just can't. We wouldn't be posting here if we could. But with a band and restriction, that is the kind of hard WE can do. Being banded is no walk in the park, it's pretty damned hard. But it really is the *kind* of hard WE can do unlike traditional diet and exercise. I used to beat myself up because I couldn't just quit stuffing my face with burgers. I don't do that anymore, today I know there are biological reasons we overeat. But that doesn't mean we are out of options, it means we do things different from others, we get banded and get our lives back. During the post op diet just keep remembering the goal, thin and healthy. Take it day by day, hour by hour, heck... take it one minute at a time if you have to. But you can do this. I never thought in a million years I'd be giving up bread and soda, along with my big fat butt in exchange for protein shakes and running but I am. Oy veh... I did it again. I wrote another book. But honestly, what I have written is true. If I can do it .. damn sure anyone can do it! If you want it bad enough, you'll get it.252/150/147Banded 12/06 Goal in 10 months!!!

On 10/24/07, Perla Escobar <dimples_171990@...

> wrote:

Hey Everyone im new to the group and im gettin banded on Nov. 5 im really excited to get it done but i was just wondering what kind of excercise do you guys do because honestly ive never been good at excercise i guess because i would get embarassed since my weight but i really want this band to work and i know i have to do excercise in order to loose weight succesfully?? so i was just wondering...... and also does yore body hurt after the surgery?? oh and im a senior in high school so i have to go to school after a week of being back so i was wondering if its hard to get around and what did you drink during thew liquid phase to not get hungry cuse i have to see all my friends eat chips and all that crazy junk food :-( lol! well i would appreciate any suggestions and comments and i will keep in contacr because i will definately need the support after surgery :-)!! oh annd is anyone having surgery on November 5th??Perla

__________________________________________________

[Guest guest]

bump!

From: xxsarahxx_40 <xxsarahxx_40@...>Subject: Question?thyroid treatment Date: Tuesday, 8 July, 2008, 11:03 AM

HelloHow long does it take a does increse of T4, thyroxine, to stabalise in the blood? And for things to level out? I am on day 24 of an increase to 150mcg and feeling weird, but that may be my poor adrenal fucntion trying to cope, I dont know. I feel sick every morning, shaky, low blood sugary and spaced out sometimes, also detached, god im fed up with it all, feel like giving in but I know I cant!Thanks ps Nice to see Shelia back online!

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[Guest guest]

----Original Message----From: xxsarahxx_40@...Date: 08/07/2008 18:40 <thyroid treatment >Subj: Fw: Question?

bump!

How long does it take a does increse of T4, thyroxine, to stabalise in the blood

4 - 6 weeks.

And for things to level out? I am on day 24 of an increase to 150mcg and feeling weird, but that may be my poor adrenal fucntion trying to cope, I dont know.

Yes most likely, you my need to lower this a little to introduce the adrenal support that Dr Peatfield recommends when you see him.

I feel sick every morning, shaky, low blood sugary and spaced out sometimes, also detached,

Classic low adrenal symptoms these .

god im fed up

I don't blame you, it is enough to make anyone pull their hair out!

Mo

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[Guest guest]

Thanks Mo again!

I am taking NAE, only started it 4 days ago and havent reduced my T4 but will wait and see what Dr P says, I will probably need something stronger

From: moosborne@... <moosborne@...>Subject: Re: Question?thyroid treatment Date: Tuesday, 8 July, 2008, 7:39 PM

----Original Message----From: xxsarahxx_40@ .co. ukDate: 08/07/2008 18:40 <thyroidpatientadvoc acygroups (DOT) com>Subj: Fw: [thyroidpatientadvo cacy] Question?

bump!

How long does it take a does increse of T4, thyroxine, to stabalise in the blood

4 - 6 weeks.

And for things to level out? I am on day 24 of an increase to 150mcg and feeling weird, but that may be my poor adrenal fucntion trying to cope, I dont know.

Yes most likely, you my need to lower this a little to introduce the adrenal support that Dr Peatfield recommends when you see him.

I feel sick every morning, shaky, low blood sugary and spaced out sometimes, also detached,

Classic low adrenal symptoms these .

god im fed up

I don't blame you, it is enough to make anyone pull their hair out!

Mo

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____________ _________ _________ _________ _________ ____

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[Guest guest]

Hi ,

Dose stabilisation for T4 is 25 days. You symptoms do sound

adrenalish.

Subject: Question?

Hello

How long does it take a does increse of T4, thyroxine, to stabalise in

the blood? And for things to level out? but that may be my poor adrenal

fucntion

trying to cope, I dont know. I feel sick every morning, shaky, low

blood sugary and spaced out sometimes, also detached, god im fed up

with it all,

------------------------------------

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing

medication.

[Guest guest]

Well I am on day 28 of dose increase so I guess that will have stabalised and things should level out a bit. If i was going to go hyper I would know by now, right?

From: jenny stenning <jennystenning@...>Subject: RE: Question?thyroid treatment Date: Saturday, 12 July, 2008, 10:21 AM

Hi ,Dose stabilisation for T4 is 25 days. You symptoms do soundadrenalish.Subject: [thyroidpatientadvo cacy] Question?HelloHow long does it take a does increse of T4, thyroxine, to stabalise in the blood? And for things to level out? but that may be my poor adrenalfucntion trying to cope, I dont know. I feel sick every morning, shaky, low blood sugary and spaced out sometimes, also detached, god im fed up with it all, ------------ --------- --------- ------Messages are not a substitute for professional medical advice. Alwaysconsult with a suitably qualified practitioner before changingmedication.

[Guest guest]

Hi Sherry,

Are you still taking MTX?

If It helped one before, it could very well help again. Often times

it is taken in conjunction to Enbrel.

Stay Well,

[Guest guest]

Have you called your rheumy to report the increase in pain? You

should do so. Sometimes you need to increase the dose of MTX or add

one of the biologicals. The rib pain could be costochondritis, which

is common with PA. It is an inflammation of the connective tissues

of the ribs. It can causes severe pain upon taking a deep breath.

" S. Zorzi " <szorzi_1999@...>

[Guest guest]

Sherry:  the Enbrel will likely help but give it some time.  The first thing I

noticed when I started taking it was a reduction in the swelling in my ankles -

virtually overnight.  However, pain relief came so slowly that I didn't notice

it on a day to day basis.  Then after about six weeks, I suddenly realized that

I was feeling better and could do things that I hadn't been able to do just two

months before.

The rib thing could be the result of PA (and she also needs to know this) from

what others in this support group have experienced; but since you work as a home

health nurse, think back on whether you might have done anything to

strain/damage them.  I am suffering the same thing right now but it's the result

of a fall I had about ten days ago.  My ribs are clearly the weakest part of my

body and are always susceptible to injury if I take a tumble or am in an

accident.  In fact, it was a fall and rib injuries that my physical therapist

believes triggered my PA.  Two weeks after the fall, she started noticing

inflammation in my body that had never been there before and within a few months

- when it didn't go away - she convinced me to go to my primary care physician

(who then sent me to a rheumy after some initial testing) because she was

convinced I had some kind of systemic inflammatory disease.  I will always be

grateful to her - particularly after

hearing how many people had to struggle for years before a proper diagnosis. 

If due to an injury, physical therapy is a godsend. 

 Joanna Hoelscher

[Guest guest]

Yes, I am still taking the MTX but just started the Enbrel yesterday.

I also take several other medications. I sometimes wonder about all

the interactions of these meds. I read all the information and it

sounds like the two conditions can cause many symptoms. But, this

arm pain and soreness is so annoying and painful. I have to work but

the way I feel sure makes me want to crawl back in bed. I take

Welbutrin, something like Relafen, Trazadone at night. I take

Darvocet only when I have to and aspirin pretty often. I really

think this group will offer me some support. I don't like

complaining. All I really want to do is find out if my symptoms are

along the line of others who have this problem. The psoriasis has

cleared except for my scalp. So, at least that is better. Thanks for

all your comments. Sherry

[Guest guest]

Sherry, I'm on Humira today but have been on Enbrel previously and got relief

pretty quickly.  I can't imagine doing a physical job with PA, and

Fibromyalgia!  I have all of the same, though I got the arthritis at age 8, P at

age 16 and F in my 30s.  I'm 44 today so I've experienced these strange pains

for a long time.  Morning stiffness is very common and get's less and less when

the disease is controlled.  I'm hoping the Enbrel will bring you that relief

very soon.  

[Guest guest]

Sherry,

If you want to find out about your drugs interactions, the is a website, called

drugs.com that can help you research it. I also use mayoclinic.com often. This

information is especially valuable if

you take any over the counter preparations along with your prescription drugs.

Good luck and

God Bless

Janet in Ca

[Guest guest]

Hi Sherry,

So sorry your symptoms are increasing.

Take a look at http://www.fibrohugs.org/

This site has a lot of information on fibro and its symptoms.

I, too, have P, PSA and fibro and the fibro can include so many more

problems than I had ever considered. I was treated with MTX and Enbrel

for a little over a year but had to stop them because I just couldn't

deal with the infections. They *did* help diminish the pain of both

the PSA and fibro a lot.

Given a month or so, you should notice a difference.

You have my respect for continuing to work, especially in home health,

with these diagnoses. The nurses and physical therapists in my home

health have been so encouraging and helpful.

Stay alert for opportunistic staph infection after you've been on the

Enbrel long enough for you immune system to be down. That's what got

to me and I'm just not brave enough to try that again any time soon.

Maybe you know more / better tricks for avoiding / treating staph? I

want to protect what's left of my feeble brain. <grin>

Take care,

Patty in beautiful Pineywoods of East Texas

where the crape myrtles, purple morning glory, hyacinth bean vines,

zinnias and ginger lily are blooming in our yard.

[Guest guest]

While I understand fully the risk of infection while on meds for PsA (especially

the biologics), at least so far I have had just the opposite experience.  I have

not even had a cold!  And there has not been a year in the past decade that I've

not gotten a severe upper respiratory infection (sore throat, cough, hoarseness,

etc) until this past year and a half on Enbrel.  Knock on wood but I also thank

my lucky stars that I have always had a pretty health immune system in terms of

rarely getting an infection - and that doesn't seem to have changed, only

improved for whatever crazy reason. 

 Joanna Hoelscher

[Guest guest]

<<Patty in beautiful Pineywoods of East Texas where the crape myrtles,

purple morning glory, hyacinth bean vines,zinnias and ginger lily are

blooming in our yard.>>

Patty,

I want to spend a day in your yard.

-Eileen

[Guest guest]

Hi I had the severe pain in the shoulders, legs, feet, and hands a few months

ago. It was painful to just open a door, turn a nob, and to sit down. My 3

year old and 7 year old were helping out with the laundry and opening doors for

me. I was tired all the time. I started Enbrel injections, and felt normal the

next day.

I hope you have these results with Enbrel.

Rita

[Guest guest]

my case manager is in charge of my sons wraparound services he makes sure that the behavior specialist and tss are doing their job and he also attends meetings. sherryFrom: beachbodytan2002 <beachbodytan2002@...> Sent: Sunday, June 7, 2009 7:31:54 AMSubject: ( ) Question?

I was re-reading our draft IEP and on the top part it says - case manager, not specified.

what is a case manager?

thanks

Rose

[Guest guest]

Rose,

A case manager is the teacher who works with your student, she/he writes the IEP, handles your child's case, oversees everything. Who wrote the IEP???? My son had a case manager and next year he will get a new one since he is going to the jr. high. He should have the same one for the next 2 years...and then when he goes to high school he will get another one for the next three years. Also, the case manager is usually a teacher from the Special Education team. The case manager is there for the student too. If they are having problems...the child can go to the case manager...who in turns represents the child. The c.m. can talk to other teachers on behalf of the students...work things out...etc.

It is important for the child and the c.m. to have a good relationship....if not...insist on getting a new case manager. A case manager plays an important part so make sure you child has a good one and one where there is a good relationship between he/her and your child.

Jan

I hope I made sense.

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: beachbodytan2002 <beachbodytan2002@...>Subject: ( ) Question? Date: Sunday, June 7, 2009, 7:31 AM

I was re-reading our draft IEP and on the top part it says - case manager, not specified.what is a case manager? thanksRose

[Guest guest]

Rose,

I live in PA and work in the school district. A case manager is a Spec. Ed. teacher who writes your child's IEP. He or she works with your chld....oversees your child's education. This person is a teacher and when you go to IEP meetings this person usually runs it. Basically, this is the person you contact concerning your child. The Case Manager is there for your child. You child can go to their cm anytime ....for problems, help, etc.

Now a Case Manager in the wrap-around service is another person. In PA we have Provider 50 (wrap-around) thru the state. You apply at the office of assistance...my son got an Access(medical) card. Then I chose the agency to work with. They then evaluated my son (psychaitrist) and work out a plan ...should the TSS come to the house, be with the child in school and how many hours. Then there is the mobile therapist...who comes to the house and the BSC (behavior specialist counselor/case manager).

So in reality there are two types of case managers. The one mentioned in the IEP is the spec. ed. teacher who writes the IEP.

jan

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: Rose <beachbodytan2002@...>Subject: Re: ( ) Question? Date: Sunday, June 7, 2009, 8:12 AM

Hi Sherry.

Is this (case manager) seperate from the school - like an outside agency? did you have to apply someplace to get one? How did you find out about a case manager? What is a wraparound? I've heard this many times on this group but don't know what that is. I'm in NY, maybe we call it something different. But the only person I know that makes sure my son gets the services he needs or they are providing it - is myself, a lawyer or a good advocate. T.G. I didn't need that this year but my parent trainer(autism specialist) was a Hugh help.

TSS, is that the same as respite worker through a medicaid program?

thanks

Rose

From: Sherry Burford <aspiemomone> Sent: Sunday, June 7, 2009 7:46:05 AMSubject: Re: ( ) Question?

my case manager is in charge of my sons wraparound services he makes sure that the behavior specialist and tss are doing their job and he also attends meetings. sherry

From: beachbodytan2002 <beachbodytan2002> Sent: Sunday, June 7, 2009 7:31:54 AMSubject: ( ) Question?

I was re-reading our draft IEP and on the top part it says - case manager, not specified.what is a case manager? thanksRose

[Guest guest]

Thank you for the clarification Jan !

We have a consultant teacher from resource room which describes your description as a case manager to the T. but on our draft IEP it says case manager - not specified. So it sounds like a case manager is something different. yet - just as you described our consultant teacher does just that. She was the best we had. For the whole past year, I've been having parent training from an autism specialist. though out the year I would fax him my sons test, quiz's, homework scores, report writing papers, etc... he would explain why he did so poor and under executive function give some strategies on what needs to be done to help him. Same with taking test. My son knows the subject very well. memorized the whole class lesson but got a low mark on his test. - the specialize explained why - (I also faxed over my son's agenda papers too) he said it was because he didn't have the proper notes to

prepare him for his test. nor, my son couldn't pronounce some of the words/names from s/s class nor can he spell them so he left that question blank. sad, because he knew the answers. So, parent trainer recommended 'all test have boxed answers' so he has a visual on the spelling of the word. Anyway, his s/s teacher gave him another quiz with the boxed words and my son got 100%. same test that he left answers blank. Hugh help. Another important thing that was added was, my son processes everything slower. (processing delays). So he recommended notes typed out for him by his teacher all the time. my son doesn't know what is important to copy so he copies everything and completes nothing. So, he doesn't have much to study from. On my son's IEP, he now has important goals that are his weakest areas that he needs so much help with. They are really focusing on his needs

for this September. He is also getting all new teachers. I'm going to miss this person that was working with us both. She did a great job making sure he had a good year. She understood his needs. I hope they understand his needs and works with him next year too. we'll see.

I thought your son was already in middle school? Did you have your CSE meeting yet? Sorry, I've been so BUSY trying to get everything needed and preparing for this meeting I haven't been reading all the post. How are things with you and your son? As time is passing - how are you and your son doing with adjusting/healing without your poppy. I remember how hard that was on you both. I hope and pray you are both healing from your loss.

Rose

From: rushen janice <jrushen@...> Sent: Sunday, June 7, 2009 7:52:53 AMSubject: Re: ( ) Question?

Rose,

A case manager is the teacher who works with your student, she/he writes the IEP, handles your child's case, oversees everything. Who wrote the IEP???? My son had a case manager and next year he will get a new one since he is going to the jr. high. He should have the same one for the next 2 years...and then when he goes to high school he will get another one for the next three years. Also, the case manager is usually a teacher from the Special Education team. The case manager is there for the student too. If they are having problems...the child can go to the case manager...who in turns represents the child. The c.m. can talk to other teachers on behalf of the students...work things out...etc.

It is important for the child and the c.m. to have a good relationship. ...if not...insist on getting a new case manager. A case manager plays an important part so make sure you child has a good one and one where there is a good relationship between he/her and your child.

Jan

I hope I made sense.

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: beachbodytan2002 <beachbodytan2002>Subject: ( ) Question? Date: Sunday, June 7, 2009, 7:31 AM

I was re-reading our draft IEP and on the top part it says - case manager, not specified.what is a case manager? thanksRose

[Guest guest]

>

> A case manager is the teacher who works with your student, she/he writes the

IEP, handles your child's case, oversees everything.  Who wrote the IEP????

My son's IEP was written by the school diagnostician, in conference with all his

core teachers (all general ed) and with reference to the autism team's

recommendations. Since this is his first IEP, he doesn't have a case manager

yet. They call case managers " monitoring teachers " in our school district.

And, as you know, what the case manager is writing is the first draft of the

IEP. The IEP is finalized in a full team meeting that includes the parent(s).

Ruth

[Guest guest]

sorry that i didnt get back sooner rose, but yes i imagine it is probably the same thing, initially my son school guidance counselor gave me the info as i sought help thru her first.sherryFrom: Rose <beachbodytan2002@...> Sent: Sunday, June 7, 2009 8:12:14 AMSubject: Re: ( ) Question?

Hi Sherry.

Is this (case manager) seperate from the school - like an outside agency? did you have to apply someplace to get one? How did you find out about a case manager? What is a wraparound? I've heard this many times on this group but don't know what that is. I'm in NY, maybe we call it something different. But the only person I know that makes sure my son gets the services he needs or they are providing it - is myself, a lawyer or a good advocate. T.G. I didn't need that this year but my parent trainer(autism specialist) was a Hugh help.

TSS, is that the same as respite worker through a medicaid program?

thanks

Rose

From: Sherry Burford <aspiemomone> Sent: Sunday, June 7, 2009 7:46:05 AMSubject: Re: ( ) Question?

my case manager is in charge of my sons wraparound services he makes sure that the behavior specialist and tss are doing their job and he also attends meetings. sherry

From: beachbodytan2002 <beachbodytan2002> Sent: Sunday, June 7, 2009 7:31:54 AMSubject: ( ) Question?

I was re-reading our draft IEP and on the top part it says - case manager, not specified.what is a case manager? thanksRose