Guest guest Posted June 8, 2009 Report Share Posted June 8, 2009 Rose, they may write "none specified" because they don't know who will be the sped teacher managing him next year. Or else, they do not want to put names on the IEP. Some schools are like that. Roxanna Autism Happens ( ) Question? I was re-reading our draft IEP and on the top part it says - case manager, not specified. what is a case manager? thanks Rose Wanna slim down for summer? Go to America Takes it Off to learn how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2009 Report Share Posted June 8, 2009 Roxanna, you are amazing! I did ask who would be my son's sped teacher for next year and they didn't know. Also, they don't like to tell the kids who their teachers are till the last day of school. From: Roxanna <MadIdeas@...> Sent: Monday, June 8, 2009 10:40:59 AMSubject: Re: ( ) Question? Rose, they may write "none specified" because they don't know who will be the sped teacher managing him next year. Or else, they do not want to put names on the IEP. Some schools are like that. RoxannaAutism Happens ( ) Question? I was re-reading our draft IEP and on the top part it says - case manager, not specified.what is a case manager? thanksRose Wanna slim down for summer? Go to America Takes it Off to learn how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 That's an idividual decision. If you have the money and won't be taking food out of the mouths of your babies to do it - then I say go for it, that will help with the questions and doubt as to whether you are " doing it right " . If, like a lot of us you can afford to buy it and do it yourself, but can't spare the big price tag that comes with the clinic, it can work as well. I personally cannot afford the clinic, I don't like the idea of injections without doctor supervision so I chose the sublinual method. It has worked quite well for me so far. I tend to be a person who does a lot of research and reading and usually don't have trouble with reading and understanding directions. Whichever way you go - good luck! > > I'm really considering the HCG shots. Does most people go to like a medi place or buy on their own. I was looking into Medshape, I kind of feel for my first time I should have some support. How do you feel, I know it's very pricey but I'm kind of scared to order on my own. Has anyone went went through them and what did you think. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 I did my first round w/ a doctor and felt it helped as far as keeping me on track and getting the proper mixture from an actual pharmacy. There was no trick to mixing it. This round I bought online and am doing it without a doctor. I now know what I'm supposed to do so I don't feel I need to spend the extra money w/ a Dr. and these groups help. If there's something I don't know, someone here does. I have no problem giving myself injections and I prefer the idea of that to sublingual, but everyone has their own opinion about that. From: illnailyaca <illnailyaca@...> Sent: Friday, September 4, 2009 8:32:26 AMSubject: Question? I'm really considering the HCG shots. Does most people go to like a medi place or buy on their own. I was looking into Medshape, I kind of feel for my first time I should have some support. How do you feel, I know it's very pricey but I'm kind of scared to order on my own. Has anyone went went through them and what did you think. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 > > I'm really considering the HCG shots. Does most people go to like a medi place or buy on their own. I was looking into Medshape, I kind of feel for my first time I should have some support. How do you feel, I know it's very pricey but I'm kind of scared to order on my own. Has anyone went went through them and what did you think. Thanks. > I am having great results with oral drops under the tongue along with taking Physician grade vit B 12 drops. Also take a calcium,magnesium,potassium supplement to help with leg cramps. You get the same results with oral hcg and where I get it is good quality. I'm a nurse and prefer not to go through the hassle of doing injections. Check out hcgdietitworks.com They are good honest people. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 My chest tightness and trouble breathing, or air-hunger, has been attributed to Babesia, rather than Lyme, and did not start until I did contract the Babesia, years after already having Lyme. I have lots of 'heat', too. It got better when I was treated Babesia, and got even better when I treated for Bartonella with Cipro for a year.  But the 'heat' did not go away completely until the current round of treatment for Babesia that I am in the middle of (Mepron, Minocycline, and just added Azithromycin and Amantidine). The chest tightness and air-hunger are still with me, but at times are not as bad - so I think there is some improvement there, as well. Good luck figuring it all out! ~Terri  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Yes. It is actually called Insulin Potentiation Low Dose Chemo Therapy. You can find more information about it at http://www.iptforcancer.com/ and at http://iptq.com/ My husband is undergoing this treatment right now. There are no side effects and you do not get sick. However it is not covered by insurance. From: gr8momsthinkalike Has anyone hear of low dose chemo? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Hi, Just to be a little more clear....low dose chemo traditional method is dripping the chemo into your whole body at a low dose. Good cells and bad are both effected. With IPT, there is special method to give the low dose chemo quickly, with syringes, at the " therapeutic " moment so that it is targeted only into the cancer cells, keeping your good cells unaffected. Also, IPT doctors take your payment. Some people's insurance will cover part of the cost, but the best way to see if this can work for your case is to go through an expert billing person familiar with coding, etc. Some of the people I have chatted with did get partial coverage. Usually the IPT doctors have the names of these billing people, who are very nice. Also, I know about them. Hope this is helpful. Glad to know your husband is having good success with IPT! Wondering which clinic he is going to. In health, Carol > > Yes. > It is actually called Insulin Potentiation Low Dose Chemo Therapy. You can find more information about it at http://www.iptforcancer.com/ and at > http://iptq.com/ > My husband is undergoing this treatment right now. There are no side effects and you do not get sick. However it is not covered by insurance. > > > From: gr8momsthinkalike > > Has anyone hear of low dose chemo? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 The only way that Insurance will pay for part of the treatment is if the plan you have allows for " out of network benefits " In our case Medicare is the Insurance and Medicare will not pay a penny if the doctor is not a Medicare participating doctor. And if Medicare does not pay, your secondary will not pay either. So it is all out of pocket. Of course when your health and your life is concerned you pay. We are fortunate to be able to handle the expense. It is unfortunate that there are so many people who cannot. The irony is that regular chemo costs so much more and yet the insurance companies will pay no matter what plan you have. This costs less than regular chemo and they won't pay, because it is alternative. Our health care system is really insane. My Husband is being treated at Linchitz Medical Wellness in Glen Cove, Long Island. We think the world of Dr. Linchitz. We think he is a very smart and capable practitioner and a very compassionate doctor. If anyone wants more information you are welcome to contact me directly at ngitig@... [ ] Re: Question? Hi, Just to be a little more clear....low dose chemo traditional method is dripping the chemo into your whole body at a low dose. Good cells and bad are both effected. With IPT, there is special method to give the low dose chemo quickly, with syringes, at the " therapeutic " moment so that it is targeted only into the cancer cells, keeping your good cells unaffected. Also, IPT doctors take your payment. Some people's insurance will cover part of the cost, but the best way to see if this can work for your case is to go through an expert billing person familiar with coding, etc. Some of the people I have chatted with did get partial coverage. Usually the IPT doctors have the names of these billing people, who are very nice. Also, I know about them. Hope this is helpful. Glad to know your husband is having good success with IPT! Wondering which clinic he is going to. In health, Carol > > Yes. > It is actually called Insulin Potentiation Low Dose Chemo Therapy. You can find more information about it at http://www.iptforcancer.com/ and at > http://iptq.com/ > My husband is undergoing this treatment right now. There are no side effects and you do not get sick. However it is not covered by insurance. > > > From: gr8momsthinkalike > > Has anyone hear of low dose chemo? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Hi! Great to get the details from you. Yes, you are right about Medicare. They won't pay a dime. I have heard of some other insurances like Blue Cross,Shield paying about 50% of the cost if it is billed right and if you have out of network benefits. Thanks for summing this up. Congratulations! I also love Dr. Linchitz and have been to his clinic for Vit. C while visiting my father in NY. I also have known him a bit before that too. You are in great hands there. He is one of the very best! And a great person and doctor as well. One of the tops in the field. I also want to extend the same invitation to you. In case you have any IPT questions, from a patient's point of view, I can often give little tips or answers that can be helpful. So you can use me as a lifeline anytime! I just love how this stuff works and so few patients are available like this to share. (Also he has a great nursing staff over there, too!) All you say is so true and I cannot believe this fortunate and fantastic treatment is not available across the board for everyone if they so choose. In health, Carol > > > > Yes. > > It is actually called Insulin Potentiation Low Dose Chemo Therapy. You can find more information about it at http://www.iptforcancer.com/ and at > > http://iptq.com/ > > My husband is undergoing this treatment right now. There are no side effects and you do not get sick. However it is not covered by insurance. > > > > > > From: gr8momsthinkalike > > > > Has anyone hear of low dose chemo? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Carol, How is it you are so knowledgeable about IPT? Have you had the treatment? where? for what type of cancer? We are hoping that this will be the answer to our situation. Nili [ ] Re: Question? Hi! Great to get the details from you. Yes, you are right about Medicare. They won't pay a dime. I have heard of some other insurances like Blue Cross,Shield paying about 50% of the cost if it is billed right and if you have out of network benefits. Thanks for summing this up. Congratulations! I also love Dr. Linchitz and have been to his clinic for Vit. C while visiting my father in NY. I also have known him a bit before that too. You are in great hands there. He is one of the very best! And a great person and doctor as well. One of the tops in the field. I also want to extend the same invitation to you. In case you have any IPT questions, from a patient's point of view, I can often give little tips or answers that can be helpful. So you can use me as a lifeline anytime! I just love how this stuff works and so few patients are available like this to share. (Also he has a great nursing staff over there, too!) All you say is so true and I cannot believe this fortunate and fantastic treatment is not available across the board for everyone if they so choose. In health, Carol > > > > Yes. > > It is actually called Insulin Potentiation Low Dose Chemo Therapy. You can find more information about it at http://www.iptforcancer.com/ and at > > http://iptq.com/ > > My husband is undergoing this treatment right now. There are no side effects and you do not get sick. However it is not covered by insurance. > > > > > > From: gr8momsthinkalike > > > > Has anyone hear of low dose chemo? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Thank you for the web site, I will check into it right away. Has your husband tried hyperbaric therapy? that has great reviews Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Hi Nili, Thanks for asking. Yes, of course! IPT saved my life from a stage 4 cancer and I am speaking from personal experience with it when I write. Since my recovery 3 years ago, people from all over have contacted me on and off, since I am one of the few people who is very vocal and enjoys sharing. Healing is my passion, so it is my joy to pass on what help I can. I have continued to learn a lot since then and ongoing. I also met a lot of the IPT doctors as well, two years ago, at a conference they had. Hope this answers your question. Wishing you good luck. Feel free to keep in touch. Carol " Nili Gitig " <ngitig@...> wrote: > > Carol, > How is it you are so knowledgeable about IPT? Have you had the treatment? where? for what type of cancer? > We are hoping that this will be the answer to our situation. > Nili > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Carol thanks for answering so candidly. Like you, I like to share information and help others find a different path. What kind of Cancer did you recover from? Where did you do your IPT treatments? Do you still do anything for maintenance? My husband has been diagnosed with Lung Cancer Stage IIIB. So far his cancer has not spread to other organs however he did have a Pleural Effusion. He did not want to do any traditional chemo and I supported him with that decision. For several months we just changed his diet, added the Budwig Protocol and lots of supplements. From Sept. to End of December there was no progression of his disease but not a significant improvement either. He was getting antsy to see some results faster so decided to do IPT + High Dose Vitamin C treatments which started in February. We are anxiously awaiting his next scan in June. Nili From: Prem Carol Hi Nili, Thanks for asking. Yes, of course! IPT saved my life from a stage 4 cancer and I am speaking from personal experience with it when I write. Since my recovery 3 years ago, people from all over have contacted me on and off, since I am one of the few people who is very vocal and enjoys sharing. Healing is my passion, so it is my joy to pass on what help I can. I have continued to learn a lot since then and ongoing. I also met a lot of the IPT doctors as well, two years ago, at a conference they had. Hope this answers your question. Wishing you good luck. Feel free to keep in touch. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Thanks for your kind words. I have found that keeping up on regular Vit. C drips and sticking to a good diet are the foundations of maintaining good health. Keep us posted! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2010 Report Share Posted September 25, 2010 I would suggest contacting Wilderness Family Naturals. Their customer service is great. I have used WFN for years and never had a burnt taste. Alobar On Sat, Sep 25, 2010 at 2:25 PM, Trish <teageeaz@...> wrote: > I have been using coconut oil for a couple of years. I've tried various > brands and found a most to be ok. Last week I ordered some from Wilderness > Family Naturals. > When it arrived I tried some straight from the spoon and it has an after > taste.. The taste reminds me of something burnt. Have any of you experienced > that with wilderness naturals? > Is there a brand you would recommend over all others? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2010 Report Share Posted September 25, 2010 Alobar, Thank you.. It is kind of odd, being my first time of ordering from them I was concerned it was the normal taste. I'm glad to hear you have not experienced. I'll call them Monday. .. > > > I have been using coconut oil for a couple of years. I've tried various > > brands and found a most to be ok. Last week I ordered some from Wilderness > > Family Naturals. > > When it arrived I tried some straight from the spoon and it has an after > > taste.. The taste reminds me of something burnt. Have any of you experienced > > that with wilderness naturals? > > Is there a brand you would recommend over all others? > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 There is no BCR trial. The closest is the German CLL Study group that has a FCR compared to B+R trial. No data yet, perhaps at ASH... NCT00769522 ~chris > > Does anyone in the group know the results from any trials comparing FCR with BCR? > > Thanks, > Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 Hi Ladies,I was thinking about making an appointment to head to Atlanta to possibly be treated from dr.Kolbs.I don't know weather I had fungus or mold or both but was wandering if she would treat me.I can't just go to my regular doctor and ask her to treat me.Does anyone have any suggestions?Thanks,Kass Quote Link to comment Share on other sites More sharing options...
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