Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Dear Group, hit on one of my hot buttons when she brought up the topic of research. Since my husband Rob was diagnosed we have been interested in contributing to research on MSA. We have made some donations to Dr. Freeman's autonomic research at Beth Israel Deaconess Hospital here in Boston, but we would like to do something on a larger scale. I approached Don Summers about having the SDS/MSA Support Group be a conduit for research funds, but he feels that they have their hands full already and that research is not part of their charter. So we are left with no real " group " to look to for guidance. I would be interested in forming a group to look into research funding opportunities. Do any of you or your families have any interest in this? It's not a trivial task. According to Dr. Freeman, it takes about a million dollars to fund ONE major research multi-year project at a major medical center. But I believe we have a great many creative people here, and we just might be able to do it. It would mean really getting out there and raising some serious money. Asking for large donations from employers, foundations, friends and families. But we might be able to make a real difference in the future of people with MSA. What do you think? Carol & Rob Langer Lexington, MA > > > > > I think Don was just responding to my email asking > > > about possible organizations to whom my family and > > I > > > could donate the money that was contributed in my > > > father's memory. Sorry if I started something. > > > > > > > > > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe@y... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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