Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 Tony, Yes, it is a shame that to describe it to anyone in the public, that is the only term they can use to glean some understanding of the disorder. take care, Bill tonyswartzlloyd wrote: > Thanks, Bill and Pam. I had heard that it was thought to be SDS. In > any event, it underscores the public perception - or lack of it - is > of this mysterious, (fortunately) rare, and incurable disease that > can be named only as 'something like Parkinson's. > > Tony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 Hi all: these " alphabet diseases " as they are called, are so hard to diagnose, as we all know. He did have PSP & was at a facility in New Jersey for a period of time. Regards, jerrie Quote Link to comment Share on other sites More sharing options...
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