Re: Marg and living in BC; my grandfather>Marg & group

[Guest guest]

Marg,

I go on June 20th at 9am. I am glad that I am getting the second

opinion. Its a wonderful thing I believe to have done. I pray that

you will be able to know for sure about yourself asap. Let us know if

you go to Mayo Clinic or somewhere else. Maybe you can get the Mayo

clinic to do a trial on you so you can have it done free. I don't

know, just a suggestion from what I think I heard in the group chat

today that you might be able to go free. I am not sure if you have to

be an American citizen or not. Did anyone know that for sure today?

Marg, I hope I didn't misunderstand this today. If anyone can let

Marg know for sure, I would appreciate it. Thanks!

God bless,

Belinda

Marg:

> > Even if you go to the Mayo, what will you have achieved, unless

you

> > can afford to live in the US the treatments available to you will

> not

> > improve. Think hard before you spend the money, you might be

better

> > off spending it on PT, better foods, rainy day fund. I too am

> > frightened by the changes in health care, and I know the

treatment

> > I've been getting is sub-standard at best. I'm terrified of

losing

> > ground because there will not be long or acute care beds for us,

> and

> > our illness has no support group within reach. If you have a good

> GP

> > put him/her in contact with resources in the states (mine is

> internet

> > friendly, and willing to do the reading). More testing won't cure

> you,

> > treatment is still symptomatic, a well informed GP can manage

that

> > part nicely. Even if the grass is greener on the other side, can

we

> > afford it, will it improve your life or just take precious funds

> and

> > moments away?

> >

> > Of course, if you can afford it, go girl.

> >

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe@y...

> >

> >

> >

> >

> >

[Guest guest]

Belinda

I don`t think all of my message got to you...I was having problems with the computer and my teen was out at school working on their yearbook she usually helps me out ,my computer skills are zero! I believe anyone can go to the Mayo but of course nothing comes free .I looked at their web page and it does say that in neurology they don`t accept every referral.I have been in touch with a neuro nurse in the UK and I can see Prof Mathias as a private patient but it will take some time to set up.It`s hard to believe BC has no Specialists interested in MSA.I hope you don`t have to go so far for your second opinion! I hope all goes well for you on June 20th please keep as well as you can and let us know how it goes

love, Marg Manson

belnorest wrote: Marg,I go on June 20th at 9am. I am glad that I am getting the second opinion. Its a wonderful thing I believe to have done. I pray that you will be able to know for sure about yourself asap. Let us know if you go to Mayo Clinic or somewhere else. Maybe you can get the Mayo clinic to do a trial on you so you can have it done free. I don't know, just a suggestion from what I think I heard in the group chat today that you might be able to go free. I am not sure if you have to be an American citizen or not. Did anyone know that for sure today? Marg, I hope I didn't misunderstand this today. If anyone can let Marg know for sure, I would appreciate it. Thanks!God bless,Belinda Marg:> > Even if you go to the Mayo, what will you have achieved, unless you > > can afford to live in the US the treatments available to you will > not > > improve. Think hard before you spend the money, you might be better > > off spending it on PT, better foods, rainy day fund. I too am > > frightened by the changes in health care, and I know the treatment > > I've been getting is sub-standard at best. I'm terrified of losing > > ground because there will not be long or acute care beds for us, > and > > our illness has no support group within reach. If you have a good > GP > > put him/her in contact with resources in the states (mine is > internet > > friendly, and willing to do the reading). More testing won't cure > you, > > treatment is still symptomatic, a well informed GP can manage that > > part nicely. Even if the grass is greener on the other side, can we > > afford it, will it improve your life or just take precious funds > and > > moments away?> > > > Of course, if you can afford it, go girl.> > > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe@y...> > > > > > > > > >

[Guest guest]

Belinda

I don`t think all of my message got to you...I was having problems with the computer and my teen was out at school working on their yearbook she usually helps me out ,my computer skills are zero! I believe anyone can go to the Mayo but of course nothing comes free .I looked at their web page and it does say that in neurology they don`t accept every referral.I have been in touch with a neuro nurse in the UK and I can see Prof Mathias as a private patient but it will take some time to set up.It`s hard to believe BC has no Specialists interested in MSA.I hope you don`t have to go so far for your second opinion! I hope all goes well for you on June 20th please keep as well as you can and let us know how it goes

love, Marg Manson

belnorest wrote: Marg,I go on June 20th at 9am. I am glad that I am getting the second opinion. Its a wonderful thing I believe to have done. I pray that you will be able to know for sure about yourself asap. Let us know if you go to Mayo Clinic or somewhere else. Maybe you can get the Mayo clinic to do a trial on you so you can have it done free. I don't know, just a suggestion from what I think I heard in the group chat today that you might be able to go free. I am not sure if you have to be an American citizen or not. Did anyone know that for sure today? Marg, I hope I didn't misunderstand this today. If anyone can let Marg know for sure, I would appreciate it. Thanks!God bless,Belinda Marg:> > Even if you go to the Mayo, what will you have achieved, unless you > > can afford to live in the US the treatments available to you will > not > > improve. Think hard before you spend the money, you might be better > > off spending it on PT, better foods, rainy day fund. I too am > > frightened by the changes in health care, and I know the treatment > > I've been getting is sub-standard at best. I'm terrified of losing > > ground because there will not be long or acute care beds for us, > and > > our illness has no support group within reach. If you have a good > GP > > put him/her in contact with resources in the states (mine is > internet > > friendly, and willing to do the reading). More testing won't cure > you, > > treatment is still symptomatic, a well informed GP can manage that > > part nicely. Even if the grass is greener on the other side, can we > > afford it, will it improve your life or just take precious funds > and > > moments away?> > > > Of course, if you can afford it, go girl.> > > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe@y...> > > > > > > > > >