Re: frustration.............vitamins

[Guest guest]

Greetings Trudi!

I would use GREAT caution with vitamins. Take the one a day type. No more.

There are also numerous scientific studies that show mega doses of vitamins

can hurt health - not improve it. But making it worse, most MSA patients

have extremely sensitive systems. So, mega dosing would only make matters

worse.

Regards,

=jbf=

B. Fisher

[Guest guest]

. Sam takes 2000 units of Vitamin E each day at the neuro's

suggestion--isn't sure, but said it might help. Have you heard

this? Thanks, Lou R.At 09:22 AM 3/6/2002 -0500, you wrote:

>Greetings Trudi!

>

>I would use GREAT caution with vitamins. Take the one a day type. No more.

>There are also numerous scientific studies that show mega doses of vitamins

>can hurt health - not improve it. But making it worse, most MSA patients

>have extremely sensitive systems. So, mega dosing would only make matters

>worse.

>

>

>Regards,

>=jbf=

>

> B. Fisher

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

. Sam takes 2000 units of Vitamin E each day at the neuro's

suggestion--isn't sure, but said it might help. Have you heard

this? Thanks, Lou R.At 09:22 AM 3/6/2002 -0500, you wrote:

>Greetings Trudi!

>

>I would use GREAT caution with vitamins. Take the one a day type. No more.

>There are also numerous scientific studies that show mega doses of vitamins

>can hurt health - not improve it. But making it worse, most MSA patients

>have extremely sensitive systems. So, mega dosing would only make matters

>worse.

>

>

>Regards,

>=jbf=

>

> B. Fisher

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

My brother's neuro also recommended Vitamin E -- which is the only thing she

did recommend although she conceded that CoEnzyme CoQ10 probably wouldn't

hurt anything and could be beneficial. I believe the Vitamin E

recommendation has to do with the current thinking that the whole

alpha-synuclein issue has a strong connection to oxidation. Given that line

of thought, a case could probably be made that an adequate intake of all the

anti-oxidant vitamins could be benefical to MSA patients.

Jerry Cash

RE: frustration.............vitamins

. Sam takes 2000 units of Vitamin E each day at the neuro's

suggestion--isn't sure, but said it might help. Have you heard

this? Thanks, Lou R.At 09:22 AM 3/6/2002 -0500, you wrote:

>Greetings Trudi!

>

>I would use GREAT caution with vitamins. Take the one a day type. No

more.

>There are also numerous scientific studies that show mega doses of vitamins

>can hurt health - not improve it. But making it worse, most MSA patients

>have extremely sensitive systems. So, mega dosing would only make matters

>worse.

>

>

>Regards,

>=jbf=

>

> B. Fisher

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

My brother's neuro also recommended Vitamin E -- which is the only thing she

did recommend although she conceded that CoEnzyme CoQ10 probably wouldn't

hurt anything and could be beneficial. I believe the Vitamin E

recommendation has to do with the current thinking that the whole

alpha-synuclein issue has a strong connection to oxidation. Given that line

of thought, a case could probably be made that an adequate intake of all the

anti-oxidant vitamins could be benefical to MSA patients.

Jerry Cash

RE: frustration.............vitamins

. Sam takes 2000 units of Vitamin E each day at the neuro's

suggestion--isn't sure, but said it might help. Have you heard

this? Thanks, Lou R.At 09:22 AM 3/6/2002 -0500, you wrote:

>Greetings Trudi!

>

>I would use GREAT caution with vitamins. Take the one a day type. No

more.

>There are also numerous scientific studies that show mega doses of vitamins

>can hurt health - not improve it. But making it worse, most MSA patients

>have extremely sensitive systems. So, mega dosing would only make matters

>worse.

>

>

>Regards,

>=jbf=

>

> B. Fisher

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

My brother's neuro also recommended Vitamin E -- which is the only thing she

did recommend although she conceded that CoEnzyme CoQ10 probably wouldn't

hurt anything and could be beneficial. I believe the Vitamin E

recommendation has to do with the current thinking that the whole

alpha-synuclein issue has a strong connection to oxidation. Given that line

of thought, a case could probably be made that an adequate intake of all the

anti-oxidant vitamins could be benefical to MSA patients.

Jerry Cash

RE: frustration.............vitamins

. Sam takes 2000 units of Vitamin E each day at the neuro's

suggestion--isn't sure, but said it might help. Have you heard

this? Thanks, Lou R.At 09:22 AM 3/6/2002 -0500, you wrote:

>Greetings Trudi!

>

>I would use GREAT caution with vitamins. Take the one a day type. No

more.

>There are also numerous scientific studies that show mega doses of vitamins

>can hurt health - not improve it. But making it worse, most MSA patients

>have extremely sensitive systems. So, mega dosing would only make matters

>worse.

>

>

>Regards,

>=jbf=

>

> B. Fisher

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Lou,

There have been studies which show that 400 IU of vitamin E per day can help the

heart. A study of 1200 IU of vitamin E per day yielded the same heart results.

I have also seen studies which show 3000 IU of vitamin E per day can cause

unwanted side effects. I am sure if your neuro has suggested it, they must have

checked it out. There have been studies that have suggested that antioxidents

MAY help slow the progression of brain cell death, but early studies on

seliguine

suggested that it might slow brain cell death also and that seems to be falling

out of favor these days. They are also doing studies on another antioxident

called CoQ10 to see if it may help.

As long as the neurologist is watching him and has suggested it, I would go with

it. My cardiologist has me on 400 IU of vitamin E per day also. If my mechanic

(Certified) tells me to replace a fan belt, I do it. Been five years since my

car broke down on the road.

Take care, Bill Werre

lou Reynolds wrote:

> . Sam takes 2000 units of Vitamin E each day at the neuro's

> suggestion--isn't sure, but said it might help. Have you heard

> this? Thanks, Lou R.At 09:22 AM 3/6/2002 -0500, you wrote:

> >Greetings Trudi!

> >

> >I would use GREAT caution with vitamins. Take the one a day type. No more.

> >There are also numerous scientific studies that show mega doses of vitamins

> >can hurt health - not improve it. But making it worse, most MSA patients

> >have extremely sensitive systems. So, mega dosing would only make matters

> >worse.

> >

> >

> >Regards,

> >=jbf=

> >

> > B. Fisher

> >

> >

> >If you do not wish to belong to shydrager, you may

> >unsubscribe by sending a blank email to

> >

> >shydrager-unsubscribe

> >

> >

> >

> >

> >

[Guest guest]

Well, I guess we will continue with the vitamin E until told to do

otherwise, and he also takes selegeline--now onto 6 years. We surely can't

figure out what helps him and what does not--there seem to be few drastic

reactions one way or the other. So it goes. Thanks. Lou R.At 09:55

AM 3/7/2002 -0500, you wrote:

> Lou,

>

>There have been studies which show that 400 IU of vitamin E per day can

>help the

>heart. A study of 1200 IU of vitamin E per day yielded the same heart

>results.

>I have also seen studies which show 3000 IU of vitamin E per day can cause

>unwanted side effects. I am sure if your neuro has suggested it, they

>must have

>checked it out. There have been studies that have suggested that antioxidents

>MAY help slow the progression of brain cell death, but early studies on

>seliguine

>suggested that it might slow brain cell death also and that seems to be

>falling

>out of favor these days. They are also doing studies on another antioxident

>called CoQ10 to see if it may help.

>

>As long as the neurologist is watching him and has suggested it, I would

>go with

>it. My cardiologist has me on 400 IU of vitamin E per day also. If my

>mechanic

>(Certified) tells me to replace a fan belt, I do it. Been five years since my

>car broke down on the road.

>

>Take care, Bill Werre

>

>

>lou Reynolds wrote:

>

> > . Sam takes 2000 units of Vitamin E each day at the neuro's

> > suggestion--isn't sure, but said it might help. Have you heard

> > this? Thanks, Lou R.At 09:22 AM 3/6/2002 -0500, you wrote:

> > >Greetings Trudi!

> > >

> > >I would use GREAT caution with vitamins. Take the one a day type. No

> more.

> > >There are also numerous scientific studies that show mega doses of

> vitamins

> > >can hurt health - not improve it. But making it worse, most MSA patients

> > >have extremely sensitive systems. So, mega dosing would only make matters

> > >worse.

> > >

> > >

> > >Regards,

> > >=jbf=

> > >

> > > B. Fisher

> > >

> > >

> > >If you do not wish to belong to shydrager, you may

> > >unsubscribe by sending a blank email to

> > >

> > >shydrager-unsubscribe

> > >

> > >

> > >

> > >

> > >

[Guest guest]

HELLO AGAIN,I WAS WANTING TO KNOW DOES ANY ONE TAKE

B12 SHOTS,THEY TOLD ME THAT I HAVE A B12 DEFIENCE SO I

HAVE TO TAKE IT ONCE A MONTH..THANK YOU

--- Werre b.werre@...> wrote:

> Lou,

>

> There have been studies which show that 400 IU of

> vitamin E per day can help the

> heart. A study of 1200 IU of vitamin E per day

> yielded the same heart results.

> I have also seen studies which show 3000 IU of

> vitamin E per day can cause

> unwanted side effects. I am sure if your neuro has

> suggested it, they must have

> checked it out. There have been studies that have

> suggested that antioxidents

> MAY help slow the progression of brain cell death,

> but early studies on seliguine

> suggested that it might slow brain cell death also

> and that seems to be falling

> out of favor these days. They are also doing

> studies on another antioxident

> called CoQ10 to see if it may help.

>

> As long as the neurologist is watching him and has

> suggested it, I would go with

> it. My cardiologist has me on 400 IU of vitamin E

> per day also. If my mechanic

> (Certified) tells me to replace a fan belt, I do it.

> Been five years since my

> car broke down on the road.

>

> Take care, Bill Werre

>

>

> lou Reynolds wrote:

>

> > . Sam takes 2000 units of Vitamin E each day

> at the neuro's

> > suggestion--isn't sure, but said it might help.

> Have you heard

> > this? Thanks, Lou R.At 09:22 AM 3/6/2002

> -0500, you wrote:

> > >Greetings Trudi!

> > >

> > >I would use GREAT caution with vitamins. Take

> the one a day type. No more.

> > >There are also numerous scientific studies that

> show mega doses of vitamins

> > >can hurt health - not improve it. But making it

> worse, most MSA patients

> > >have extremely sensitive systems. So, mega

> dosing would only make matters

> > >worse.

> > >

> > >

> > >Regards,

> > >=jbf=

> > >

> > > B. Fisher

> > >

> > >

> > >If you do not wish to belong to shydrager, you

> may

> > >unsubscribe by sending a blank email to

> > >

> > >shydrager-unsubscribe

> > >

> > >

> > >

> > >

> > >

[Guest guest]

HELLO AGAIN,I WAS WANTING TO KNOW DOES ANY ONE TAKE

B12 SHOTS,THEY TOLD ME THAT I HAVE A B12 DEFIENCE SO I

HAVE TO TAKE IT ONCE A MONTH..THANK YOU

--- Werre b.werre@...> wrote:

> Lou,

>

> There have been studies which show that 400 IU of

> vitamin E per day can help the

> heart. A study of 1200 IU of vitamin E per day

> yielded the same heart results.

> I have also seen studies which show 3000 IU of

> vitamin E per day can cause

> unwanted side effects. I am sure if your neuro has

> suggested it, they must have

> checked it out. There have been studies that have

> suggested that antioxidents

> MAY help slow the progression of brain cell death,

> but early studies on seliguine

> suggested that it might slow brain cell death also

> and that seems to be falling

> out of favor these days. They are also doing

> studies on another antioxident

> called CoQ10 to see if it may help.

>

> As long as the neurologist is watching him and has

> suggested it, I would go with

> it. My cardiologist has me on 400 IU of vitamin E

> per day also. If my mechanic

> (Certified) tells me to replace a fan belt, I do it.

> Been five years since my

> car broke down on the road.

>

> Take care, Bill Werre

>

>

> lou Reynolds wrote:

>

> > . Sam takes 2000 units of Vitamin E each day

> at the neuro's

> > suggestion--isn't sure, but said it might help.

> Have you heard

> > this? Thanks, Lou R.At 09:22 AM 3/6/2002

> -0500, you wrote:

> > >Greetings Trudi!

> > >

> > >I would use GREAT caution with vitamins. Take

> the one a day type. No more.

> > >There are also numerous scientific studies that

> show mega doses of vitamins

> > >can hurt health - not improve it. But making it

> worse, most MSA patients

> > >have extremely sensitive systems. So, mega

> dosing would only make matters

> > >worse.

> > >

> > >

> > >Regards,

> > >=jbf=

> > >

> > > B. Fisher

> > >

> > >

> > >If you do not wish to belong to shydrager, you

> may

> > >unsubscribe by sending a blank email to

> > >

> > >shydrager-unsubscribe

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Jack has B12 shots as his was low and we were hoping that was his only problem,

but no such luck. His mother had to have B12 shots, but did not have MSA. Judy

Jerry Cash wrote:

> Lou,

>

> My brother takes monthly B-12 shots because he has been tested to be B-12

> deficient. We had hoped early on that his MSA symptoms were caused by

> Pernicious Anemia (which runs in our family (both my mother and grandmother

> had and were successfully treated for pernicious anemia) but his tests

> showed that he did not have PA.

>

> As you may know, PA can cause symptoms which include ataxia, nervous system

> degradation, weakness, etc.

>

> I had actually posted an inquiry some months ago to see how many on the list

> with MSA have B-12 deficiency out of curosity. As I recall there were not

> many answered that they had it.

>

> Hope this helps,

>

> Jerry Cash

>

> Re: frustration.............vitamins

>

> HELLO AGAIN,I WAS WANTING TO KNOW DOES ANY ONE TAKE

> B12 SHOTS,THEY TOLD ME THAT I HAVE A B12 DEFIENCE SO I

> HAVE TO TAKE IT ONCE A MONTH..THANK YOU

> --- Werre b.werre@...> wrote:

> > Lou,

> >

> > There have been studies which show that 400 IU of

> > vitamin E per day can help the

> > heart. A study of 1200 IU of vitamin E per day

> > yielded the same heart results.

> > I have also seen studies which show 3000 IU of

> > vitamin E per day can cause

> > unwanted side effects. I am sure if your neuro has

> > suggested it, they must have

> > checked it out. There have been studies that have

> > suggested that antioxidents

> > MAY help slow the progression of brain cell death,

> > but early studies on seliguine

> > suggested that it might slow brain cell death also

> > and that seems to be falling

> > out of favor these days. They are also doing

> > studies on another antioxident

> > called CoQ10 to see if it may help.

> >

> > As long as the neurologist is watching him and has

> > suggested it, I would go with

> > it. My cardiologist has me on 400 IU of vitamin E

> > per day also. If my mechanic

> > (Certified) tells me to replace a fan belt, I do it.

> > Been five years since my

> > car broke down on the road.

> >

> > Take care, Bill Werre

> >

> >

> > lou Reynolds wrote:

> >

> > > . Sam takes 2000 units of Vitamin E each day

> > at the neuro's

> > > suggestion--isn't sure, but said it might help.

> > Have you heard

> > > this? Thanks, Lou R.At 09:22 AM 3/6/2002

> > -0500, you wrote:

> > > >Greetings Trudi!

> > > >

> > > >I would use GREAT caution with vitamins. Take

> > the one a day type. No more.

> > > >There are also numerous scientific studies that

> > show mega doses of vitamins

> > > >can hurt health - not improve it. But making it

> > worse, most MSA patients

> > > >have extremely sensitive systems. So, mega

> > dosing would only make matters

> > > >worse.

> > > >

> > > >

> > > >Regards,

> > > >=jbf=

> > > >

> > > > B. Fisher

> > > >

> > > >

> > > >If you do not wish to belong to shydrager, you

> > may

> > > >unsubscribe by sending a blank email to

> > > >

> > > >shydrager-unsubscribe

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Jack has B12 shots as his was low and we were hoping that was his only problem,

but no such luck. His mother had to have B12 shots, but did not have MSA. Judy

Jerry Cash wrote:

> Lou,

>

> My brother takes monthly B-12 shots because he has been tested to be B-12

> deficient. We had hoped early on that his MSA symptoms were caused by

> Pernicious Anemia (which runs in our family (both my mother and grandmother

> had and were successfully treated for pernicious anemia) but his tests

> showed that he did not have PA.

>

> As you may know, PA can cause symptoms which include ataxia, nervous system

> degradation, weakness, etc.

>

> I had actually posted an inquiry some months ago to see how many on the list

> with MSA have B-12 deficiency out of curosity. As I recall there were not

> many answered that they had it.

>

> Hope this helps,

>

> Jerry Cash

>

> Re: frustration.............vitamins

>

> HELLO AGAIN,I WAS WANTING TO KNOW DOES ANY ONE TAKE

> B12 SHOTS,THEY TOLD ME THAT I HAVE A B12 DEFIENCE SO I

> HAVE TO TAKE IT ONCE A MONTH..THANK YOU

> --- Werre b.werre@...> wrote:

> > Lou,

> >

> > There have been studies which show that 400 IU of

> > vitamin E per day can help the

> > heart. A study of 1200 IU of vitamin E per day

> > yielded the same heart results.

> > I have also seen studies which show 3000 IU of

> > vitamin E per day can cause

> > unwanted side effects. I am sure if your neuro has

> > suggested it, they must have

> > checked it out. There have been studies that have

> > suggested that antioxidents

> > MAY help slow the progression of brain cell death,

> > but early studies on seliguine

> > suggested that it might slow brain cell death also

> > and that seems to be falling

> > out of favor these days. They are also doing

> > studies on another antioxident

> > called CoQ10 to see if it may help.

> >

> > As long as the neurologist is watching him and has

> > suggested it, I would go with

> > it. My cardiologist has me on 400 IU of vitamin E

> > per day also. If my mechanic

> > (Certified) tells me to replace a fan belt, I do it.

> > Been five years since my

> > car broke down on the road.

> >

> > Take care, Bill Werre

> >

> >

> > lou Reynolds wrote:

> >

> > > . Sam takes 2000 units of Vitamin E each day

> > at the neuro's

> > > suggestion--isn't sure, but said it might help.

> > Have you heard

> > > this? Thanks, Lou R.At 09:22 AM 3/6/2002

> > -0500, you wrote:

> > > >Greetings Trudi!

> > > >

> > > >I would use GREAT caution with vitamins. Take

> > the one a day type. No more.

> > > >There are also numerous scientific studies that

> > show mega doses of vitamins

> > > >can hurt health - not improve it. But making it

> > worse, most MSA patients

> > > >have extremely sensitive systems. So, mega

> > dosing would only make matters

> > > >worse.

> > > >

> > > >

> > > >Regards,

> > > >=jbf=

> > > >

> > > > B. Fisher

> > > >

> > > >

> > > >If you do not wish to belong to shydrager, you

> > may

> > > >unsubscribe by sending a blank email to

> > > >

> > > >shydrager-unsubscribe

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Lou,

I'm not a MSA patient but a caregiver and I have to take B12 shots every 2

months. I started out once a month but it evidently got better and now only

every 2 months. I was told I had the deficiency too.

S.

Re: frustration.............vitamins

> HELLO AGAIN,I WAS WANTING TO KNOW DOES ANY ONE TAKE

> B12 SHOTS,THEY TOLD ME THAT I HAVE A B12 DEFIENCE SO I

> HAVE TO TAKE IT ONCE A MONTH..THANK YOU

> --- Werre b.werre@...> wrote:

> > Lou,

> >

> > There have been studies which show that 400 IU of

> > vitamin E per day can help the

> > heart. A study of 1200 IU of vitamin E per day

> > yielded the same heart results.

> > I have also seen studies which show 3000 IU of

> > vitamin E per day can cause

> > unwanted side effects. I am sure if your neuro has

> > suggested it, they must have

> > checked it out. There have been studies that have

> > suggested that antioxidents

> > MAY help slow the progression of brain cell death,

> > but early studies on seliguine

> > suggested that it might slow brain cell death also

> > and that seems to be falling

> > out of favor these days. They are also doing

> > studies on another antioxident

> > called CoQ10 to see if it may help.

> >

> > As long as the neurologist is watching him and has

> > suggested it, I would go with

> > it. My cardiologist has me on 400 IU of vitamin E

> > per day also. If my mechanic

> > (Certified) tells me to replace a fan belt, I do it.

> > Been five years since my

> > car broke down on the road.

> >

> > Take care, Bill Werre

> >

> >

> > lou Reynolds wrote:

> >

> > > . Sam takes 2000 units of Vitamin E each day

> > at the neuro's

> > > suggestion--isn't sure, but said it might help.

> > Have you heard

> > > this? Thanks, Lou R.At 09:22 AM 3/6/2002

> > -0500, you wrote:

> > > >Greetings Trudi!

> > > >

> > > >I would use GREAT caution with vitamins. Take

> > the one a day type. No more.

> > > >There are also numerous scientific studies that

> > show mega doses of vitamins

> > > >can hurt health - not improve it. But making it

> > worse, most MSA patients

> > > >have extremely sensitive systems. So, mega

> > dosing would only make matters

> > > >worse.

> > > >

> > > >

> > > >Regards,

> > > >=jbf=

> > > >

> > > > B. Fisher

> > > >

> > > >

> > > >If you do not wish to belong to shydrager, you

> > may

> > > >unsubscribe by sending a blank email to

> > > >

> > > >shydrager-unsubscribe

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Lou,

I'm not a MSA patient but a caregiver and I have to take B12 shots every 2

months. I started out once a month but it evidently got better and now only

every 2 months. I was told I had the deficiency too.

S.

Re: frustration.............vitamins

> HELLO AGAIN,I WAS WANTING TO KNOW DOES ANY ONE TAKE

> B12 SHOTS,THEY TOLD ME THAT I HAVE A B12 DEFIENCE SO I

> HAVE TO TAKE IT ONCE A MONTH..THANK YOU

> --- Werre b.werre@...> wrote:

> > Lou,

> >

> > There have been studies which show that 400 IU of

> > vitamin E per day can help the

> > heart. A study of 1200 IU of vitamin E per day

> > yielded the same heart results.

> > I have also seen studies which show 3000 IU of

> > vitamin E per day can cause

> > unwanted side effects. I am sure if your neuro has

> > suggested it, they must have

> > checked it out. There have been studies that have

> > suggested that antioxidents

> > MAY help slow the progression of brain cell death,

> > but early studies on seliguine

> > suggested that it might slow brain cell death also

> > and that seems to be falling

> > out of favor these days. They are also doing

> > studies on another antioxident

> > called CoQ10 to see if it may help.

> >

> > As long as the neurologist is watching him and has

> > suggested it, I would go with

> > it. My cardiologist has me on 400 IU of vitamin E

> > per day also. If my mechanic

> > (Certified) tells me to replace a fan belt, I do it.

> > Been five years since my

> > car broke down on the road.

> >

> > Take care, Bill Werre

> >

> >

> > lou Reynolds wrote:

> >

> > > . Sam takes 2000 units of Vitamin E each day

> > at the neuro's

> > > suggestion--isn't sure, but said it might help.

> > Have you heard

> > > this? Thanks, Lou R.At 09:22 AM 3/6/2002

> > -0500, you wrote:

> > > >Greetings Trudi!

> > > >

> > > >I would use GREAT caution with vitamins. Take

> > the one a day type. No more.

> > > >There are also numerous scientific studies that

> > show mega doses of vitamins

> > > >can hurt health - not improve it. But making it

> > worse, most MSA patients

> > > >have extremely sensitive systems. So, mega

> > dosing would only make matters

> > > >worse.

> > > >

> > > >

> > > >Regards,

> > > >=jbf=

> > > >

> > > > B. Fisher

> > > >

> > > >

> > > >If you do not wish to belong to shydrager, you

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