Re: Re: Stress, Exertion and Symptoms

[Guest guest]

HELLO,I WAS WONDERING IF ANYONE HAS EVERY HAD A

PLUMARY FUNCTION TEST DONE BEFORE.I HAD ONE THE OTHER

DAY AND I FELT THAT THEY REALLY GOT MAD WITH ME

BECAUSE I COULDN,T DO THE THINGS THE WAY THAT THEY

WANTED THEM DONE,OR MAYBE IT IS JUST ME.THE WAY THAT I

HAD BEEN FEELING LATELY I FEEL LIKE THAT I CAN,T DO

ANYTHING TO PLEASE PEOPLE.THEYB ALSO HAD ME DO A

MUSCLE THING SAING THAT THEY WERE SEEING HOW MUCH

MUSCLE THAT I HAD,OR SOMTHING LIKE THAT.I AM ALSO DUE

TO HAVE A EMG DONE MONDAY.WILL THIS TEST DETEMINE WHAT

I HAVE.PLEASE LET ME KNOW IF ANY OF YA HAVE EVERY DONE

THESE TEST BEFORE..THANK YOU JANICE HARRELL 1-904

534-2882 OR 374-1362 YOU CAN CALL ANYTIME IT IS NICE

TALKING TO PEOPLE THAT KNOWS A LITTLE ABOUT WHAT WE

ARE ALL GOING THREW..

--- belnorest Belindastime@...> wrote:

> -,

> I know what you are talking about. I too can only do

> an extremely

> small fraction of what I use to do. They say you

> have to find your

> limitations on when to stop. I think that when your

> body tells you to

> stop don't force the issue " stop " . I too would not

> be able to do

> anything for 2 or 3 days later when surpassing the

> limit. It is very

> frustrating but something that we have to do. I hope

> this helps.

> God Bless,

> Belinda

>

> -- In shydrager@y..., " bigredbmw "

> wrote:

> > In the past few weeks, the stresses of everyday

> life (not even

> > counting the stresses of MSA itself) have been

> piling up. During

> this

> > time, my symptoms have all gotten much worse.

> >

> > I've also had occasion to exert myself in multiple

> ways, some

> > physical some mental. Saturday I had the stress

> and physical

> exertion

> > of cleaning out the offices that my business

> occupied for six

> years,

> > but which we now must close due to my illness.

> Saturday night and

> all

> > day Sunday I was very fatigued, and Sunday night I

> woke several

> times

> > in the night with my heart alternating between

> racing and going

> slow,

> > the clear sensation of " hearing " my heartbeat, not

> to mention

> labored

> > breathing, even with my CPAP. I also had flu-like

> body aches, which

> > sometimes persist for days after I have severe

> periods of dystonia.

> >

> > I was just starting to get " back on my feet " so to

> speak, when I

> made

> > my first visit to the physical therapist this

> morning. Although I

> did

> > not have to exert myself at all, just the fact

> that she put my body

> > into certain postures has lest me exhausted and

> cramped (and very

> > sore). Now I'm sitting in a chair feeling like a

> vegetable and

> having

> > difficulty even typing.

> >

> > So, my question is, do other MSA patients suffer

> from this

> seemingly

> > disproportinate elevation in symptoms from what

> would seem to be

> > relatively little activity or stimulus?

> >

> > I'm about to start a 4-6 week regimine of PT twice

> per week. My

> hope

> > is that over time, my body will adjust, but I also

> fear that I

> could

> > spend a lot of time in a pretty useless state,

> just when I seemed

> to

> > be finding some level of " groove " in this illness.

> I'm at the point

> > where I've made the decision to be a productive

> person and not let

> > the disease get the better of me, but I also

> frequently feel like I

> > not only missed the bus, but that it ran me over.

> >

> > I have another question, which I'm going to write

> in another thread.

> >

> > Thanks for your responses.

> >

> > Pax,

> >

>

>

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