Re: Cure for MSA?- I don't think so!

[Guest guest]

Pam,

Unfortunately that type of person will just get a new name from Yahoo or

Excite or someone else and strike again. The person learned just enough

about MSA (although they confuse it with MS also) to make up a story that

sounds plausible to someone desperate for a cure. Everyone here must realize

that there are people who will lie for profit or even to advance their own

ideas on the internet. It is NEVER justifiable to make up stories and put

them out as SPAM or chain letters, a lie is a lie and it is wrong.

As you say, when a cure is found, this list will know about it first and

there will be 50 emails proclaiming it. If a cure had been found in 1992,

Charlotte would be alive today (even if I had to go to China to find it).

Take care, Bill Werre

[Guest guest]

Pam,

Unfortunately that type of person will just get a new name from Yahoo or

Excite or someone else and strike again. The person learned just enough

about MSA (although they confuse it with MS also) to make up a story that

sounds plausible to someone desperate for a cure. Everyone here must realize

that there are people who will lie for profit or even to advance their own

ideas on the internet. It is NEVER justifiable to make up stories and put

them out as SPAM or chain letters, a lie is a lie and it is wrong.

As you say, when a cure is found, this list will know about it first and

there will be 50 emails proclaiming it. If a cure had been found in 1992,

Charlotte would be alive today (even if I had to go to China to find it).

Take care, Bill Werre

[Guest guest]

Pam,

Unfortunately that type of person will just get a new name from Yahoo or

Excite or someone else and strike again. The person learned just enough

about MSA (although they confuse it with MS also) to make up a story that

sounds plausible to someone desperate for a cure. Everyone here must realize

that there are people who will lie for profit or even to advance their own

ideas on the internet. It is NEVER justifiable to make up stories and put

them out as SPAM or chain letters, a lie is a lie and it is wrong.

As you say, when a cure is found, this list will know about it first and

there will be 50 emails proclaiming it. If a cure had been found in 1992,

Charlotte would be alive today (even if I had to go to China to find it).

Take care, Bill Werre

[Guest guest]

Way to go, Pam!

Thank you,

Belinda

- In shydrager@y..., Pam Bower wrote:

> ,

>

> We were all appalled by your post to the Shy-Drager/

> MSA list asking for $50 to receive the " cure " for MSA.

> Your post was in extremely poor taste and meant to

> exploit people. We know there is NO SUCH CURE! (For

> starters we know such a cure would be worth way more

> than $50... maybe you should increase your price next

> time!)

>

> Legitimate medical and scientific researchers are

> working very hard to understand the underlying cause

> of this disorder and when they find it believe me we

> will be the first to know about it.

>

> You have been removed from our mailing list and banned

> from resubscribing. You've also been reported to

> Yahoo.com for spamming practices.

>

> Pam Bower

> Moderator, Yahoo Shydrager Group

>

>

>

>

______________________________________________________________________

> File your taxes online! http://taxes.yahoo.ca

[Guest guest]

Yeah, no kidding... he actually subscribed last night just before he

sent that and his email already bounces. He also uploaded stuff to

that website he cited last night as well... check the root directory

at http://www.geocities.com/ericzemann That bank account where he

wants you to send money though can probably be traced.

Hugs,

Pam

> Pam,

>

> Unfortunately that type of person will just get a new name from

Yahoo or

> Excite or someone else and strike again. The person learned just

enough

> about MSA (although they confuse it with MS also) to make up a

story that

> sounds plausible to someone desperate for a cure.

[Guest guest]

Bill,

You are so right. So many of us rely on what you and Pam say. We know

that you either one of you would never lead us astray. You have

always been there to help us no matter what are questions are. I just

want to thank both of you very much and the rest of board for all

your caring and help from the bottom of my heart.

With love and God's blessings,

Belinda

> Pam,

>

> Unfortunately that type of person will just get a new name from

Yahoo or

> Excite or someone else and strike again. The person learned just

enough

> about MSA (although they confuse it with MS also) to make up a

story that

> sounds plausible to someone desperate for a cure. Everyone here

must realize

> that there are people who will lie for profit or even to advance

their own

> ideas on the internet. It is NEVER justifiable to make up stories

and put

> them out as SPAM or chain letters, a lie is a lie and it is wrong.

>

> As you say, when a cure is found, this list will know about it

first and

> there will be 50 emails proclaiming it. If a cure had been found

in 1992,

> Charlotte would be alive today (even if I had to go to China to

find it).

>

> Take care, Bill Werre

[Guest guest]

Pam,

Good for you. We don't need someone like this on our list and making a bad

influence on people reading our list. We all give when we can and what we

can for research.

S.

Cure for MSA?- I don't think so!

> ,

>

> We were all appalled by your post to the Shy-Drager/

> MSA list asking for $50 to receive the " cure " for MSA.

> Your post was in extremely poor taste and meant to

> exploit people. We know there is NO SUCH CURE! (For

> starters we know such a cure would be worth way more

> than $50... maybe you should increase your price next

> time!)

>

> Legitimate medical and scientific researchers are

> working very hard to understand the underlying cause

> of this disorder and when they find it believe me we

> will be the first to know about it.

>

> You have been removed from our mailing list and banned

> from resubscribing. You've also been reported to

> Yahoo.com for spamming practices.

>

> Pam Bower

> Moderator, Yahoo Shydrager Group

>

>

>

> ______________________________________________________________________

> File your taxes online! http://taxes.yahoo.ca

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

PAM, more thanks for taking care of us. We simply do not have time or

patience for depraved foolishness.

Send jokes, humor is therapeutic.

LA Louise trying to keep up with constructive and informative posts.

[Guest guest]

Thanks Pam-Belinda speaks for me, too-I'm new to group, was referred by the

hospital at Vanderbilt University. This disease is so devastating to our

families, that it appalls me that someone would capitalize on us in our

weakest moments. We are all trying hard to cope and I've shared some of your

stories with my family as it makes me feel we are not alone-no one we know

has MSA. Thanks for watching out for us. Cindy B.

Cure for MSA?- I don't think so!

> ,

>

> We were all appalled by your post to the Shy-Drager/

> MSA list asking for $50 to receive the " cure " for MSA.

> Your post was in extremely poor taste and meant to

> exploit people. We know there is NO SUCH CURE! (For

> starters we know such a cure would be worth way more

> than $50... maybe you should increase your price next

> time!)

>

> Legitimate medical and scientific researchers are

> working very hard to understand the underlying cause

> of this disorder and when they find it believe me we

> will be the first to know about it.

>

> You have been removed from our mailing list and banned

> from resubscribing. You've also been reported to

> Yahoo.com for spamming practices.

>

> Pam Bower

> Moderator, Yahoo Shydrager Group

>

>

>

> ______________________________________________________________________

> File your taxes online! http://taxes.yahoo.ca

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Pam,

I also reported that website to geocites as an ad which violates their terms

of service and gave them the money site as a reference. They also violated

the terms of service when they sent a chain email referencing the site. Did

you report this incident to Yahoo groups also? I was sort of expecting an

answer to my complaint.

Hugs, Bill.

---------------------------------------------------------------

pammygbower wrote:

> Yeah, no kidding... he actually subscribed last night just before he

> sent that and his email already bounces. He also uploaded stuff to

> that website he cited last night as well... check the root directory

> at http://www.geocities.com/ericzemann That bank account where he

> wants you to send money though can probably be traced.

>

> Hugs,

> Pam

[Guest guest]

Bill I forwarded the entire letter to the yahoo abuse site but have not

received an acknowledgment yet.

It was a bit of a shock to see it but there are all kinds of nuts roaming

loose.

Barb

--

"Faith is not belief without proof, but trust without reservations."

Elton Trueblood

[Guest guest]

Pam,

You are so cool. I am basically an illiterate computer user. I had no

idea, you could get to all of the infor you provided. Thanks for awareness

info.

Marilyn in TN

[Guest guest]

Yes I did and I asked them to get back to me. I don't know how long these

sorts of things take though.

Re: Cure for MSA?- I don't think so!

> Pam,

>

> I also reported that website to geocites as an ad which violates their

terms

> of service and gave them the money site as a reference. They also

violated

> the terms of service when they sent a chain email referencing the site.

Did

> you report this incident to Yahoo groups also? I was sort of expecting an

> answer to my complaint.

>

> Hugs, Bill.

[Guest guest]

Yes I did and I asked them to get back to me. I don't know how long these

sorts of things take though.

Re: Cure for MSA?- I don't think so!

> Pam,

>

> I also reported that website to geocites as an ad which violates their

terms

> of service and gave them the money site as a reference. They also

violated

> the terms of service when they sent a chain email referencing the site.

Did

> you report this incident to Yahoo groups also? I was sort of expecting an

> answer to my complaint.

>

> Hugs, Bill.

[Guest guest]

Yes I did and I asked them to get back to me. I don't know how long these

sorts of things take though.

Re: Cure for MSA?- I don't think so!

> Pam,

>

> I also reported that website to geocites as an ad which violates their

terms

> of service and gave them the money site as a reference. They also

violated

> the terms of service when they sent a chain email referencing the site.

Did

> you report this incident to Yahoo groups also? I was sort of expecting an

> answer to my complaint.

>

> Hugs, Bill.

[Guest guest]

Greetings Bill!

Unfortunately, many ISPs fail to follow their own policies. I've found it

sometimes takes contact with a manager before action is taken. That can be

hard to do with ISPs that like to operate anonymously.

Regards,

=jbf=

B. Fisher

[Guest guest]

Greetings Bill!

Unfortunately, many ISPs fail to follow their own policies. I've found it

sometimes takes contact with a manager before action is taken. That can be

hard to do with ISPs that like to operate anonymously.

Regards,

=jbf=

B. Fisher

[Guest guest]

Greetings Bill!

Unfortunately, many ISPs fail to follow their own policies. I've found it

sometimes takes contact with a manager before action is taken. That can be

hard to do with ISPs that like to operate anonymously.

Regards,

=jbf=

B. Fisher