Re: msa community on-line presence

[Guest guest]

Welcome Elliott. Thanks for your offer to help with things technical. For

now I think the group is reasonably happy with the Yahoo service for the

mailing list though it does have it's limitations. Prior to moving to

Yahoo this group was hosted directly at Vanderbilt University and it was

found that Yahoo offered more features that interested us such as a digest

version and web access to archives. We chat on Sundays using AIM which

seems to be catching on in the last few months, we regularly get about a

dozen people every week. More chat options couldn't hurt as I'm sure we'd

attract different groups of people depending on the technology used.

But enough about the technical side of things... they'll be time for that

later... how is your dad doing? How long has he had MSA symptoms? Is there

anything in particular that you'd like to ask about facilitating his ongoing

care?

Regards,

Pam

msa community on-line presence

Hi,

My dad has MSA, so, now that I actually have internet access, and more

importantly also have time time, I thought I'd hop on-line and research it

some, so that's how I found this mailing list. So I thought I'd say hi to

everone and I'll just kinda snoop around and explore in the background over

here.

I'm one of those people.. you know.. computer people, who can stare at a

screen full of code for hours on end, and finds that entertaining. So

anyway, one of my interests is communications or collaboration types of

applications. Common examples would be chat rooms, e-mail servers, web

servers.

So anyway I got bored one evening and I started thinking (that's always

dangerous) and well I have a small server that's got a relatively " small "

connection to the internet, but I was wondering if maybe I could put it to

some use for the MSA community. For example I could currently set up web

server accounts and POP e-mail accounts for people. Eventually I could even

set up a chat room or BBS or e-mail list software if anyone wanted to

moderate it. (I'm not a good moderator...) I know there are already a LOT

of reliable and free services out there (like Yahoo.) I guess one advantage

to a using a free service run by a private indivudal such as myself is that

the service wouldn't have those annoying advertisements and might be faster,

(as long as it's capacity isn't over-loaded) although depending on the

individual running the service it could always be less reliable than your

services like Yahoo. Anyway, without getting into a long technical

discussion I was wondering if you all thought there might be some demand or

use in the MSA community for anything of this sort? Please lemmie know -

-thanks

-Elliot

If you do not wish to belong to shydrager, you may

unsubscribe by sending a blank email to

shydrager-unsubscribe

[Guest guest]

Welcome Elliott. Thanks for your offer to help with things technical. For

now I think the group is reasonably happy with the Yahoo service for the

mailing list though it does have it's limitations. Prior to moving to

Yahoo this group was hosted directly at Vanderbilt University and it was

found that Yahoo offered more features that interested us such as a digest

version and web access to archives. We chat on Sundays using AIM which

seems to be catching on in the last few months, we regularly get about a

dozen people every week. More chat options couldn't hurt as I'm sure we'd

attract different groups of people depending on the technology used.

But enough about the technical side of things... they'll be time for that

later... how is your dad doing? How long has he had MSA symptoms? Is there

anything in particular that you'd like to ask about facilitating his ongoing

care?

Regards,

Pam

msa community on-line presence

Hi,

My dad has MSA, so, now that I actually have internet access, and more

importantly also have time time, I thought I'd hop on-line and research it

some, so that's how I found this mailing list. So I thought I'd say hi to

everone and I'll just kinda snoop around and explore in the background over

here.

I'm one of those people.. you know.. computer people, who can stare at a

screen full of code for hours on end, and finds that entertaining. So

anyway, one of my interests is communications or collaboration types of

applications. Common examples would be chat rooms, e-mail servers, web

servers.

So anyway I got bored one evening and I started thinking (that's always

dangerous) and well I have a small server that's got a relatively " small "

connection to the internet, but I was wondering if maybe I could put it to

some use for the MSA community. For example I could currently set up web

server accounts and POP e-mail accounts for people. Eventually I could even

set up a chat room or BBS or e-mail list software if anyone wanted to

moderate it. (I'm not a good moderator...) I know there are already a LOT

of reliable and free services out there (like Yahoo.) I guess one advantage

to a using a free service run by a private indivudal such as myself is that

the service wouldn't have those annoying advertisements and might be faster,

(as long as it's capacity isn't over-loaded) although depending on the

individual running the service it could always be less reliable than your

services like Yahoo. Anyway, without getting into a long technical

discussion I was wondering if you all thought there might be some demand or

use in the MSA community for anything of this sort? Please lemmie know -

-thanks

-Elliot

If you do not wish to belong to shydrager, you may

unsubscribe by sending a blank email to

shydrager-unsubscribe

[Guest guest]

Welcome Elliott. Thanks for your offer to help with things technical. For

now I think the group is reasonably happy with the Yahoo service for the

mailing list though it does have it's limitations. Prior to moving to

Yahoo this group was hosted directly at Vanderbilt University and it was

found that Yahoo offered more features that interested us such as a digest

version and web access to archives. We chat on Sundays using AIM which

seems to be catching on in the last few months, we regularly get about a

dozen people every week. More chat options couldn't hurt as I'm sure we'd

attract different groups of people depending on the technology used.

But enough about the technical side of things... they'll be time for that

later... how is your dad doing? How long has he had MSA symptoms? Is there

anything in particular that you'd like to ask about facilitating his ongoing

care?

Regards,

Pam

msa community on-line presence

Hi,

My dad has MSA, so, now that I actually have internet access, and more

importantly also have time time, I thought I'd hop on-line and research it

some, so that's how I found this mailing list. So I thought I'd say hi to

everone and I'll just kinda snoop around and explore in the background over

here.

I'm one of those people.. you know.. computer people, who can stare at a

screen full of code for hours on end, and finds that entertaining. So

anyway, one of my interests is communications or collaboration types of

applications. Common examples would be chat rooms, e-mail servers, web

servers.

So anyway I got bored one evening and I started thinking (that's always

dangerous) and well I have a small server that's got a relatively " small "

connection to the internet, but I was wondering if maybe I could put it to

some use for the MSA community. For example I could currently set up web

server accounts and POP e-mail accounts for people. Eventually I could even

set up a chat room or BBS or e-mail list software if anyone wanted to

moderate it. (I'm not a good moderator...) I know there are already a LOT

of reliable and free services out there (like Yahoo.) I guess one advantage

to a using a free service run by a private indivudal such as myself is that

the service wouldn't have those annoying advertisements and might be faster,

(as long as it's capacity isn't over-loaded) although depending on the

individual running the service it could always be less reliable than your

services like Yahoo. Anyway, without getting into a long technical

discussion I was wondering if you all thought there might be some demand or

use in the MSA community for anything of this sort? Please lemmie know -

-thanks

-Elliot

If you do not wish to belong to shydrager, you may

unsubscribe by sending a blank email to

shydrager-unsubscribe

[Guest guest]

Elliot,

What a kind offer!

Deborah

Reply-To: shydrager

To: shydrager

Subject: msa community on-line presence

Date: Fri, 10 May 2002 08:09:47 -0000

Hi,

My dad has MSA, so, now that I actually have internet access, and more

importantly also have time time, I thought I'd hop on-line and research it

some, so that's how I found this mailing list. So I thought I'd say hi to

everone and I'll just kinda snoop around and explore in the background over

here.

I'm one of those people.. you know.. computer people, who can stare at a

screen full of code for hours on end, and finds that entertaining. So

anyway, one of my interests is communications or collaboration types of

applications. Common examples would be chat rooms, e-mail servers, web

servers.

So anyway I got bored one evening and I started thinking (that's always

dangerous) and well I have a small server that's got a relatively " small "

connection to the internet, but I was wondering if maybe I could put it to

some use for the MSA community. For example I could currently set up web

server accounts and POP e-mail accounts for people. Eventually I could even

set up a chat room or BBS or e-mail list software if anyone wanted to

moderate it. (I'm not a good moderator...) I know there are already a LOT

of reliable and free services out there (like Yahoo.) I guess one advantage

to a using a free service run by a private indivudal such as myself is that

the service wouldn't have those annoying advertisements and might be faster,

(as long as it's capacity isn't over-loaded) although depending on the

individual running the service it could always be less reliable than your

services like Yahoo. Anyway, without getting into a long technical

discussion I was wondering if you all thought there might be some demand or

use in the MSA community for anything of this sort? Please lemmie know -

-thanks

-Elliot

If you do not wish to belong to shydrager, you may

unsubscribe by sending a blank email to

shydrager-unsubscribe

[Guest guest]

Hi Pam and also Deborah,

Thanks for the replies. Nice ta make your acquaintence.

Yeah I do think Yahoo does have some limitations.. I always found it to be kinda

annoyingly slow when I was using a dial-up connection. But what can ya do..

that goes for just about any web-based system these days.. Well I'm sure as I

hang out in this and any other groups I can find I may get some ideas as to any

innovations that could be useful.

Well as for anything in particular that I might want to ask about MSA? Hmmm..

No, not really. Not yet anyway. Dealing with MSA seems like dealing with a

boat that's taking on water from all sides. Problems can develop very rapidly..

and there's so many of them. So I'm just kinda assessing the situation to try

and get a feel for it and try and develop a general strategy. I'm working on

the most serious issues first... like transferring. We're working with physical

therapy to maximize his independence, and we're also investigating assistive

technology... like wheel chair lift, that sort of thing.

I think he's had MSA for.. 3 or 4 years? I dunno.. I have a terrible memory for

time-based events.

I dunno.. he may have been hanging out on this list... his name's Harold.

We're currently working out some computer literacy and functionality issues.

:-) Once we get past those he should be able to benefit from the Internet quite

a lot I hope. He already has gotten a lot out of it but there is a lot more he

could get out of it.

laters-

-elliot

> Welcome Elliott. Thanks for your offer to help with things technical. For

> now I think the group is reasonably happy with the Yahoo service for the

> mailing list though it does have it's limitations. Prior to moving to

> Yahoo this group was hosted directly at Vanderbilt University and it was

> found that Yahoo offered more features that interested us such as a digest

> version and web access to archives. We chat on Sundays using AIM which

> seems to be catching on in the last few months, we regularly get about a

> dozen people every week. More chat options couldn't hurt as I'm sure we'd

> attract different groups of people depending on the technology used.

>

> But enough about the technical side of things... they'll be time for that

> later... how is your dad doing? How long has he had MSA symptoms? Is there

> anything in particular that you'd like to ask about facilitating his ongoing

> care?

>

> Regards,

> Pam

>

>

>

> msa community on-line presence

>

>

> Hi,

>

> My dad has MSA, so, now that I actually have internet access, and more

> importantly also have time time, I thought I'd hop on-line and research it

> some, so that's how I found this mailing list. So I thought I'd say hi to

> everone and I'll just kinda snoop around and explore in the background over

> here.

>

> I'm one of those people.. you know.. computer people, who can stare at a

> screen full of code for hours on end, and finds that entertaining. So

> anyway, one of my interests is communications or collaboration types of

> applications. Common examples would be chat rooms, e-mail servers, web

> servers.

>

> So anyway I got bored one evening and I started thinking (that's always

> dangerous) and well I have a small server that's got a relatively " small "

> connection to the internet, but I was wondering if maybe I could put it to

> some use for the MSA community. For example I could currently set up web

> server accounts and POP e-mail accounts for people. Eventually I could even

> set up a chat room or BBS or e-mail list software if anyone wanted to

> moderate it. (I'm not a good moderator...) I know there are already a LOT

> of reliable and free services out there (like Yahoo.) I guess one advantage

> to a using a free service run by a private indivudal such as myself is that

> the service wouldn't have those annoying advertisements and might be faster,

> (as long as it's capacity isn't over-loaded) although depending on the

> individual running the service it could always be less reliable than your

> services like Yahoo. Anyway, without getting into a long technical

> discussion I was wondering if you all thought there might be some demand or

> use in the MSA community for anything of this sort? Please lemmie know -

>

> -thanks

> -Elliot

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe@y...

>

>

>

>

>

[Guest guest]

Hi Pam and also Deborah,

Thanks for the replies. Nice ta make your acquaintence.

Yeah I do think Yahoo does have some limitations.. I always found it to be kinda

annoyingly slow when I was using a dial-up connection. But what can ya do..

that goes for just about any web-based system these days.. Well I'm sure as I

hang out in this and any other groups I can find I may get some ideas as to any

innovations that could be useful.

Well as for anything in particular that I might want to ask about MSA? Hmmm..

No, not really. Not yet anyway. Dealing with MSA seems like dealing with a

boat that's taking on water from all sides. Problems can develop very rapidly..

and there's so many of them. So I'm just kinda assessing the situation to try

and get a feel for it and try and develop a general strategy. I'm working on

the most serious issues first... like transferring. We're working with physical

therapy to maximize his independence, and we're also investigating assistive

technology... like wheel chair lift, that sort of thing.

I think he's had MSA for.. 3 or 4 years? I dunno.. I have a terrible memory for

time-based events.

I dunno.. he may have been hanging out on this list... his name's Harold.

We're currently working out some computer literacy and functionality issues.

:-) Once we get past those he should be able to benefit from the Internet quite

a lot I hope. He already has gotten a lot out of it but there is a lot more he

could get out of it.

laters-

-elliot

> Welcome Elliott. Thanks for your offer to help with things technical. For

> now I think the group is reasonably happy with the Yahoo service for the

> mailing list though it does have it's limitations. Prior to moving to

> Yahoo this group was hosted directly at Vanderbilt University and it was

> found that Yahoo offered more features that interested us such as a digest

> version and web access to archives. We chat on Sundays using AIM which

> seems to be catching on in the last few months, we regularly get about a

> dozen people every week. More chat options couldn't hurt as I'm sure we'd

> attract different groups of people depending on the technology used.

>

> But enough about the technical side of things... they'll be time for that

> later... how is your dad doing? How long has he had MSA symptoms? Is there

> anything in particular that you'd like to ask about facilitating his ongoing

> care?

>

> Regards,

> Pam

>

>

>

> msa community on-line presence

>

>

> Hi,

>

> My dad has MSA, so, now that I actually have internet access, and more

> importantly also have time time, I thought I'd hop on-line and research it

> some, so that's how I found this mailing list. So I thought I'd say hi to

> everone and I'll just kinda snoop around and explore in the background over

> here.

>

> I'm one of those people.. you know.. computer people, who can stare at a

> screen full of code for hours on end, and finds that entertaining. So

> anyway, one of my interests is communications or collaboration types of

> applications. Common examples would be chat rooms, e-mail servers, web

> servers.

>

> So anyway I got bored one evening and I started thinking (that's always

> dangerous) and well I have a small server that's got a relatively " small "

> connection to the internet, but I was wondering if maybe I could put it to

> some use for the MSA community. For example I could currently set up web

> server accounts and POP e-mail accounts for people. Eventually I could even

> set up a chat room or BBS or e-mail list software if anyone wanted to

> moderate it. (I'm not a good moderator...) I know there are already a LOT

> of reliable and free services out there (like Yahoo.) I guess one advantage

> to a using a free service run by a private indivudal such as myself is that

> the service wouldn't have those annoying advertisements and might be faster,

> (as long as it's capacity isn't over-loaded) although depending on the

> individual running the service it could always be less reliable than your

> services like Yahoo. Anyway, without getting into a long technical

> discussion I was wondering if you all thought there might be some demand or

> use in the MSA community for anything of this sort? Please lemmie know -

>

> -thanks

> -Elliot

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe@y...

>

>

>

>

>

[Guest guest]

Hi Pam and also Deborah,

Thanks for the replies. Nice ta make your acquaintence.

Yeah I do think Yahoo does have some limitations.. I always found it to be kinda

annoyingly slow when I was using a dial-up connection. But what can ya do..

that goes for just about any web-based system these days.. Well I'm sure as I

hang out in this and any other groups I can find I may get some ideas as to any

innovations that could be useful.

Well as for anything in particular that I might want to ask about MSA? Hmmm..

No, not really. Not yet anyway. Dealing with MSA seems like dealing with a

boat that's taking on water from all sides. Problems can develop very rapidly..

and there's so many of them. So I'm just kinda assessing the situation to try

and get a feel for it and try and develop a general strategy. I'm working on

the most serious issues first... like transferring. We're working with physical

therapy to maximize his independence, and we're also investigating assistive

technology... like wheel chair lift, that sort of thing.

I think he's had MSA for.. 3 or 4 years? I dunno.. I have a terrible memory for

time-based events.

I dunno.. he may have been hanging out on this list... his name's Harold.

We're currently working out some computer literacy and functionality issues.

:-) Once we get past those he should be able to benefit from the Internet quite

a lot I hope. He already has gotten a lot out of it but there is a lot more he

could get out of it.

laters-

-elliot

> Welcome Elliott. Thanks for your offer to help with things technical. For

> now I think the group is reasonably happy with the Yahoo service for the

> mailing list though it does have it's limitations. Prior to moving to

> Yahoo this group was hosted directly at Vanderbilt University and it was

> found that Yahoo offered more features that interested us such as a digest

> version and web access to archives. We chat on Sundays using AIM which

> seems to be catching on in the last few months, we regularly get about a

> dozen people every week. More chat options couldn't hurt as I'm sure we'd

> attract different groups of people depending on the technology used.

>

> But enough about the technical side of things... they'll be time for that

> later... how is your dad doing? How long has he had MSA symptoms? Is there

> anything in particular that you'd like to ask about facilitating his ongoing

> care?

>

> Regards,

> Pam

>

>

>

> msa community on-line presence

>

>

> Hi,

>

> My dad has MSA, so, now that I actually have internet access, and more

> importantly also have time time, I thought I'd hop on-line and research it

> some, so that's how I found this mailing list. So I thought I'd say hi to

> everone and I'll just kinda snoop around and explore in the background over

> here.

>

> I'm one of those people.. you know.. computer people, who can stare at a

> screen full of code for hours on end, and finds that entertaining. So

> anyway, one of my interests is communications or collaboration types of

> applications. Common examples would be chat rooms, e-mail servers, web

> servers.

>

> So anyway I got bored one evening and I started thinking (that's always

> dangerous) and well I have a small server that's got a relatively " small "

> connection to the internet, but I was wondering if maybe I could put it to

> some use for the MSA community. For example I could currently set up web

> server accounts and POP e-mail accounts for people. Eventually I could even

> set up a chat room or BBS or e-mail list software if anyone wanted to

> moderate it. (I'm not a good moderator...) I know there are already a LOT

> of reliable and free services out there (like Yahoo.) I guess one advantage

> to a using a free service run by a private indivudal such as myself is that

> the service wouldn't have those annoying advertisements and might be faster,

> (as long as it's capacity isn't over-loaded) although depending on the

> individual running the service it could always be less reliable than your

> services like Yahoo. Anyway, without getting into a long technical

> discussion I was wondering if you all thought there might be some demand or

> use in the MSA community for anything of this sort? Please lemmie know -

>

> -thanks

> -Elliot

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe@y...

>

>

>

>

>

[Guest guest]

Elliot,

Welcome to our wild boat ride, NOT. Sorry to see you here on the list but

glad that you have the ability to help your father out. It is heart warming

to see a family member rise to the challenge of helping out. Your father is

a very fortunate man to have you.

Strategy might come to be a useless term for you as time progresses. It

is hard to develop a strategy when so many things pop up unexpectedly.

Getting PT and mobility/transfer needs taken care of is a good start but

remember that they too will change. What works this week, might not work

next week.

I'm glad you are setting him up with a PC system. Before having to retire

due to disability, i was the IT Director for the University of Louisiana at

Lafayette. Running a computer network for the university wound up really

helping out with my building my system for my own disability here at home.

I found that even when I have trouble speaking, I can type what I am

thinking and it comes out correct. I have looked into speech technology for

the PC but find that my voice volume and tone change from day to day

depending on how I am doing physically. That means that the words and

commands don't always come out the way I want them too. Another

frustration. I am also looking into touch screens and have found that when

my hands don't work really well, that the Fisher Price Mouse for

preschoolers is much easier for me to use than the mice that are used for

the adult population.

Anyway, I could geek talk all day. I have put a network into my home so

that I can be in any room downstairs and plug my laptop in to the DSL line

and main server that I built and put in my kitchen. This way, even when I

am unable to get out of bed, I have access to the internet. Another thing

that I have done (actually what my husband did) that is of extreme benefit

due to my lack of balance is that he took the computer chair out of the

kitchen (where my server is located) and got me a wireless mouse and

keyboard and put a rocker/recliner in front of the PC for me to use. I can

safely nod off, put my legs up, rock, and do just about anything without

falling out of the chair or causing myself more pain from the hardness of a

chair. It is not a sight that would make Better Homes & Gardens but for me

it is wonderful.

Looking forward to getting to know you and your father.

Deborah Setzer

aka Tenacity Wins

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com